Guest guest Posted July 22, 2008 Report Share Posted July 22, 2008 Sorry Dayna, I have no experience with this but it seems to me that something is going on, it is too far out for her to be forming excess scar tissue from the surgery I would think. Good luck finding out whats happening. Many Blessings, Subject: Re: TC sign? To: tetheredspinalcord Date: Monday, July 21, 2008, 11:28 PM Hi, I talked to the nurse's at Children's and they did not seem concerned. They did not believe it to be a sign of her cord retethering. My husband and I still want to make an appointment and have them check it out. Has anyone else had this " symptom " - of a small hard lump and hemangioma when their cord retethered? Thanks! Dayna > > > > Hi, My 16 month old daughter has meningocele and was born with TC- > > repaired at 12 days old. Tonight during her bath I noticed a very tiny > > lump and what appears to be a hemangioma along her scar on her lower > > back. Do you think this could be a sign of her cord retethering? I'm > > planning to call her Dr's tomorrow. > > > > Thanks so much, > > Dayna > > > Hi Dayna and Avery Grace- > > It's Ethan's mom, from Georgia. I was wondering how you were doing and > what you found out about the tiny lump. Keep doing fabulous Avery > Grace! Ethan's almost walking too! > Quote Link to comment Share on other sites More sharing options...
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