Guest guest Posted July 5, 1999 Report Share Posted July 5, 1999 Hey everybody... i have a quick couple of questions.. if you don't eat do you still have to take your shot?? see, somedays i don't feel like eating and nothing sounds good... so why should i take a shot just to eat something just to take another shot.. it seems like a big useless circle to me... and another question.. does anyone have any information about piercings and tattoos and whether it is safe for someone with diabetes to get either... i was looking into a piercing and am scared because i don't want it to get infected... Thanks.. Goldmoon There are things I cannot do... I cannot watch while people suffer... I cannot sit when something must be done... I cannot judge those who are different... There are things I cannot do...run... hide..ignore... Homepage: http://home.talkcity.com/roflway/goldmoon ICQ: 2716755 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 7, 1999 Report Share Posted July 7, 1999 Goldmoon - Piercings are okay. I have six in my ears. However, you must be sure that proper procedures of cleanliness are observed. in Cincinnati Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2006 Report Share Posted March 7, 2006 Hi Group, I have a new Oxygen Company.. The girl that came today just tickedme off I think .lol Now for the questions. How often have you been told tochange your tubing, bottle and cannula. This girl said change everythingonce a week. She also said I can only use 25' of hose because the pressurewill be inaccurate. Well I hate to say it but my bathrooms are 30 feet frommy machine.. NOW WHAT ! I really didn't like her so I'm looking for you allto give me some good ammo to slam her with. She said Medicare and InsuranceCO's will not let them bring more supplies.. I think that's (excuse me)crap.Ok I think I'm done. Best to all. Peggy My 02 company has never said that before. They are always bringing new supplies including portable carts when the little rubber footies come off. Including today, dropping of extra cannula. My supplier say to change out when it begins to look *yucky*. I'd check that out with another O2 company or even Medicare at their 1-800 #. I will check tomorrow with my O2 company to see what they say and will get back to you. kiss kiss ~Ginger~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2006 Report Share Posted March 7, 2006 My husband gets his supplies through the VA in Little Rock and we have NO complaints at all about his supplies. The man comes every week and restocks what he has used and always leaves extra hoses, washers for the portable tanks, etc. In fact since my husband works, he has the big unit in our house and a 2nd unit at his barber shop. The man also told us that he could connect 2 of the 25 feet hoses together and use them if we wanted but we haven't. I think they make a 50 foot hose too because he use to have some that were just way too long! We move the unit we have at the house from bedroom to living room too since it has rollers. Sorry you're having so much trouble. You'd think that people would go way out of their way to help those that are having the most trouble and try their best to make it easier on them instead of harder. Guess that's just me though! Good luck! Judy >From: TongueDancer2U@... >Reply-To: Breathe-Support >To: Breathe-Support >Subject: Re: Questions >Date: Tue, 7 Mar 2006 20:26:00 EST > > >In a message dated 3/7/2006 5:47:14 PM Central Standard Time, >pac1773@... writes: > >Hi Group, I have a new Oxygen Company.. The girl that came today just >ticked >me off I think .lol Now for the questions. How often have you been told >to >change your tubing, bottle and cannula. This girl said change everything >once a week. She also said I can only use 25' of hose because the pressure >will be inaccurate. Well I hate to say it but my bathrooms are 30 feet >from >my machine.. NOW WHAT ! I really didn't like her so I'm looking for you >all >to give me some good ammo to slam her with. She said Medicare and >Insurance >CO's will not let them bring more supplies.. I think that's (excuse me) >crap. >Ok I think I'm done. Best to all. Peggy > > > > > >My 02 company has never said that before. They are always bringing new >supplies including portable carts when the little rubber footies come off. >Including today, dropping of extra cannula. My supplier say to change out >when it >begins to look *yucky*. I'd check that out with another O2 company or even >Medicare at their 1-800 #. I will check tomorrow with my O2 company to see >what >they say and will get back to you. >kiss kiss >~Ginger~ _________________________________________________________________ Is your PC infected? Get a FREE online computer virus scan from McAfee® Security. http://clinic.mcafee.com/clinic/ibuy/campaign.asp?cid=3963 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2006 Report Share Posted March 7, 2006 Thanks Ginger & Judy, The man that use to come brought bags of supplies so I am a little spoiled but I live out of town in the forest so It's quite a trip for them. I am really going to raise cane tomorrow. This gal today acted like she had to buy this stuff.. GRRR I can't wait to get my Insurance co on the phone tomorrow.. Have a great night. Breath easy, God Bless Peggy on 3/7/06 8:26 PM, TongueDancer2U@... at TongueDancer2U@... wrote: Hi Group, I have a new Oxygen Company.. The girl that came today just ticked me off I think .lol Now for the questions. How often have you been told to change your tubing, bottle and cannula. This girl said change everything once a week. She also said I can only use 25' of hose because the pressure will be inaccurate. Well I hate to say it but my bathrooms are 30 feet from my machine.. NOW WHAT ! I really didn't like her so I'm looking for you all to give me some good ammo to slam her with. She said Medicare and Insurance CO's will not let them bring more supplies.. I think that's (excuse me) crap. Ok I think I'm done. Best to all. Peggy My 02 company has never said that before. They are always bringing new supplies including portable carts when the little rubber footies come off. Including today, dropping of extra cannula. My supplier say to change out when it begins to look *yucky*. I'd check that out with another O2 company or even Medicare at their 1-800 #. I will check tomorrow with my O2 company to see what they say and will get back to you. kiss kiss ~Ginger~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2006 Report Share Posted March 7, 2006 My company has a device that checks the output of O2. It look like a thing you check your car radator. They test it at the unit to see if the 3 lpm is really 3 lpm. They should be able to put it on a the end of 25 ft tube and at 50 ft. tube and see if there is a drop in flow. If it doen't drop use the 50 ft Peggy wrote: Hi Group, I have a new Oxygen Company.. The girl that came today just tickedme off I think .lol Now for the questions. How often have you been told tochange your tubing, bottle and cannula. This girl said change everythingonce a week. She also said I can only use 25' of hose because the pressurewill be inaccurate. Well I hate to say it but my bathrooms are 30 feet frommy machine.. NOW WHAT ! I really didn't like her so I'm looking for you allto give me some good ammo to slam her with. She said Medicare and InsuranceCO's will not let them bring more supplies.. I think that's (excuse me)crap.Ok I think I'm done. Best to all. Peggy Brings words and photos together (easily) with PhotoMail - it's free and works with Yahoo! Mail. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2006 Report Share Posted March 7, 2006 Moving that o2 unit around the house is a pane. Get the 50 ft.hose and set it up in middle of the house, My 50' will let me get to the washer in the basement. (Yes I have allready told the group I do the wash but it take a little longer with the PF) P Dean Cossey wrote: My husband gets his supplies through the VA in Little Rock and we have NO complaints at all about his supplies. The man comes every week and restocks what he has used and always leaves extra hoses, washers for the portable tanks, etc. In fact since my husband works, he has the big unit in our house and a 2nd unit at his barber shop. The man also told us that he could connect 2 of the 25 feet hoses together and use them if we wanted but we haven't. I think they make a 50 foot hose too because he use to have some that were just way too long! We move the unit we have at the house from bedroom to living room too since it has rollers. Sorry you're having so much trouble. You'd think that people would go way out of their way to help those that are having the most trouble and try their best to make it easier on them instead of harder. Guess that's just me though! Good luck! Judy>Reply-To: Breathe-Support >To: Breathe-Support >Subject: Re: Questions>Date: Tue, 7 Mar 2006 20:26:00 EST>>>>>Hi Group, I have a new Oxygen Company.. The girl that came today just >ticked>me off I think .lol Now for the questions. How often have you been told >to>change your tubing, bottle and cannula. This girl said change everything>once a week. She also said I can only use 25' of hose because the pressure>will be inaccurate. Well I hate to say it but my bathrooms are 30 feet >from>my machine.. NOW WHAT ! I really didn't like her so I'm looking for you >all>to give me some good ammo to slam her with. She said Medicare and >Insurance>CO's will not let them bring more supplies.. I think that's (excuse me)>crap.>Ok I think I'm done. Best to all. Peggy>>>>>>My 02 company has never said that before. They are always bringing new>supplies including portable carts when the little rubber footies come off.>Including today, dropping of extra cannula. My supplier say to change out >when it>begins to look *yucky*. I'd check that out with another O2 company or even>Medicare at their 1-800 #. I will check tomorrow with my O2 company to see >what>they say and will get back to you.>kiss kiss>~Ginger~_________________________________________________________________Is your PC infected? Get a FREE online computer virus scan from McAfee® Security. http://clinic.mcafee.com/clinic/ibuy/campaign.asp?cid=3963 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2006 Report Share Posted March 8, 2006 I have a friend who is a respiratory therapist and he says that 50 feet is the max you can use...he says that if you are on 3 liters, you will get 3 liters at the end of 50 feet...but it will be less if the tubing is longer than that. And you should change the tubing once a week...you don't want any bacteria growing in the tubing because of the moisture. The problem I had with 50 foot tubing was humidity...I was so dry and didn't think the humidity was traveling that far. You can always ask to have someone else come to your house...maybe that girl was new or something. --Diane Quinlan dianequinlan@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2006 Report Share Posted March 8, 2006 Thanks for the info P, My husband cooks vacuum's makes the bed AND does the wash. LOL , IPF has taught him so much.. Who would think after 40 years he could do all these things. I'm proud of him. You too for helping your wonderful wife. God Bless. Peggy on 3/8/06 12:35 AM, at kpoooh9@... wrote: Moving that o2 unit around the house is a pane. Get the 50 ft.hose and set it up in middle of the house, My 50' will let me get to the washer in the basement. (Yes I have allready told the group I do the wash but it take a little longer with the PF) P Dean Cossey wrote: My husband gets his supplies through the VA in Little Rock and we have NO complaints at all about his supplies. The man comes every week and restocks what he has used and always leaves extra hoses, washers for the portable tanks, etc. In fact since my husband works, he has the big unit in our house and a 2nd unit at his barber shop. The man also told us that he could connect 2 of the 25 feet hoses together and use them if we wanted but we haven't. I think they make a 50 foot hose too because he use to have some that were just way too long! We move the unit we have at the house from bedroom to living room too since it has rollers. Sorry you're having so much trouble. You'd think that people would go way out of their way to help those that are having the most trouble and try their best to make it easier on them instead of harder. Guess that's just me though! Good luck! Judy >From: TongueDancer2U@... >Reply-To: Breathe-Support >To: Breathe-Support >Subject: Re: Questions >Date: Tue, 7 Mar 2006 20:26:00 EST > > >In a message dated 3/7/2006 5:47:14 PM Central Standard Time, >pac1773@... writes: > >Hi Group, I have a new Oxygen Company.. The girl that came today just >ticked >me off I think .lol Now for the questions. How often have you been told >to >change your tubing, bottle and cannula. This girl said change everything >once a week. She also said I can only use 25' of hose because the pressure >will be inaccurate. Well I hate to say it but my bathrooms are 30 feet >from >my machine.. NOW WHAT ! I really didn't like her so I'm looking for you >all >to give me some good ammo to slam her with. She said Medicare and >Insurance >CO's will not let them bring more supplies.. I think that's (excuse me) >crap. >Ok I think I'm done. Best to all. Peggy > > > > > >My 02 company has never said that before. They are always bringing new >supplies including portable carts when the little rubber footies come off. >Including today, dropping of extra cannula. My supplier say to change out >when it >begins to look *yucky*. I'd check that out with another O2 company or even >Medicare at their 1-800 #. I will check tomorrow with my O2 company to see >what >they say and will get back to you. >kiss kiss >~Ginger~ _________________________________________________________________ Is your PC infected? Get a FREE online computer virus scan from McAfee® Security. http://clinic.mcafee.com/clinic/ibuy/campaign.asp?cid=3963 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2006 Report Share Posted March 8, 2006 Hi Diane, I just spoke with " HER " on the phone and once I explained there are other company's here in town very willing to give me what I needed she got a little more cooperative. She even offered me one of the new mach Inogen. It sounds great but well see. She also agreed I could use 50' of hose. I think she is just full of herself until she gets dumped out.. LOL Oh well I WIN.. Thanks for the info. God BLESS. Peggy on 3/8/06 10:25 AM, dianequinlan@... at dianequinlan@... wrote: I have a friend who is a respiratory therapist and he says that 50 feet is the max you can use...he says that if you are on 3 liters, you will get 3 liters at the end of 50 feet...but it will be less if the tubing is longer than that. And you should change the tubing once a week...you don't want any bacteria growing in the tubing because of the moisture. The problem I had with 50 foot tubing was humidity...I was so dry and didn't think the humidity was traveling that far. You can always ask to have someone else come to your house...maybe that girl was new or something. -- Diane Quinlan dianequinlan@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2006 Report Share Posted May 9, 2006 I have had 2 sessions with pulminary rehab and find that the exercise makes me feel better. As for NAC, The rehab instructor's dad was treated for PF about 2 yrs before he died in his sleep. She said she got him an appointment at duke hosp in durham, n.c. for a second opinion. The doctor there put him on NAC and she said it helped her dad. I am not up to the suggested dosage yet because of all the heart meds i'm on, but I've took 1 bottle with no noticeable side effects and rehab people tell me I'm doing great. I'm assuming that you stay on this as long as you feel like it's helping you, but I would not load up until I tried it awhile. I went along with rehab to keep the doctor in my corner. I will not tell him I'm on supplements because he will laugh and say I'm buying ground up hay. You will find that you will need to read a lot on different web sites and make up your own mind as to which way you want to go. There is a lot of information out there. Grey Questions I just received the information from the Pulmonary Foundation.Wow. A downer to read. Questions: 1. Why is exercise important? 2. I'm waiting to begin pulmonary therapy and I wonder if you find this helpful/necessary/beneficial? I know "it depends" on the who, what and so on. 3. I checked out Puritan and the price for NAC w/them is about half what I just paid. Is this something that you find is a long term supplement? I hate to buy in bulk only to find it's a temporary thing. Thanks so much.--Sher Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2006 Report Share Posted May 9, 2006 Sher - Exercise is very important. We want to keep the good part of our lungs as strong as we can. Pulmonary Rehab is awesome (Peggy, it sounds as if you had a bad experience) because you learn how to exercise while being monitored. When I went through the program, I was hooked up to a computer at all times - respiratory therapists monitored my heart and oxygen saturation. They taught me how to breathe and cough more efficiently. The programs across the country are run differently - maybe other people who have gone through rehab can share their stories. I find that exercising for me (and all I do is walk) helps keep me sane. You feel like you are accomplishing something. Of course, before anyone does any type of exercising, check with your doctor. It's imperative that we keep our oxygen levels above 88-90. I also highly recommend a pulse oximeter. It's a great way to keep tabs on how our hearts and oxygen saturation is doing. Honestly, I should probably be lifting weights to keep my arm strength up, but I haven't gotten that far. NAC is a long term supplement. You probably won't see results for about 5-6 weeks. It does seem to help my cough. It's not as sharp or as frequent as it used to be. Leanne Moderator DX IPF 1-16-03 PS. You know, I was just thinking, maybe it would be helpful if we signed off with our names and when we were diagnosed with pf/ipf. That way we can all get an idea of where each other is at. Just a thougt. LeanneSher K Bauman wrote: I just received the information from the Pulmonary Foundation.Wow. A downer to read. Questions: 1. Why is exercise important? 2. I'm waiting to begin pulmonary therapy and I wonder if you find this helpful/necessary/beneficial? I know "it depends" on the who, what and so on. 3. I checked out Puritan and the price for NAC w/them is about half what I just paid. Is this something that you find is a long term supplement? I hate to buy in bulk only to find it's a temporary thing. Thanks so much.--Sher Yahoo! Messenger with Voice. PC-to-Phone calls for ridiculously low rates. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2006 Report Share Posted May 9, 2006 Good idea, Leanne! it would be helpful if we signed off with our names and when we were diagnosed with pf/ipf. That way we can all get an idea of where each other is at. Joyce PF 1997 > I just received the information from the Pulmonary Foundation.Wow. A downer to read.> Questions: > 1. Why is exercise important?> 2. I'm waiting to begin pulmonary therapy and I wonder if you find this helpful/necessary/beneficial? > I know "it depends" on the who, what and so on.> 3. I checked out Puritan and the price for NAC w/them is about half what I just paid. Is this something that you find is a long term supplement? I hate to buy in bulk only to find it's a temporary thing.> Thanks so much.--Sher> > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2006 Report Share Posted May 9, 2006 Thanks to you who replied to my questions. I think I will order two bottles of NAC to get the better price. Gee I can buy two from Puritan for what I paid for one a few days ago! I will start walking...thanks Leanne. Sher/ 5-4-06 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2006 Report Share Posted May 9, 2006 Leanne...you write "When I WENT through"... Does one go for a short while, a long while? Sher/ IPF 5-4-06 Re: Questions Sher - Exercise is very important. We want to keep the good part of our lungs as strong as we can. Pulmonary Rehab is awesome (Peggy, it sounds as if you had a bad experience) because you learn how to exercise while being monitored. When I went through the program, I was hooked up to a computer at all times - respiratory therapists monitored my heart and oxygen saturation. They taught me how to breathe and cough more efficiently. The programs across the country are run differently - maybe other people who have gone through rehab can share their stories. I find that exercising for me (and all I do is walk) helps keep me sane. You feel like you are accomplishing something. Of course, before anyone does any type of exercising, check with your doctor. It's imperative that we keep our oxygen levels above 88-90. I also highly recommend a pulse oximeter. It's a great way to keep tabs on how our hearts and oxygen saturation is doing. Honestly, I should probably be lifting weights to keep my arm strength up, but I haven't gotten that far. NAC is a long term supplement. You probably won't see results for about 5-6 weeks. It does seem to help my cough. It's not as sharp or as frequent as it used to be. Leanne Moderator DX IPF 1-16-03 PS. You know, I was just thinking, maybe it would be helpful if we signed off with our names and when we were diagnosed with pf/ipf. That way we can all get an idea of where each other is at. Just a thougt. LeanneSher K Bauman wrote: I just received the information from the Pulmonary Foundation.Wow. A downer to read. Questions: 1. Why is exercise important? 2. I'm waiting to begin pulmonary therapy and I wonder if you find this helpful/necessary/beneficial? I know "it depends" on the who, what and so on. 3. I checked out Puritan and the price for NAC w/them is about half what I just paid. Is this something that you find is a long term supplement? I hate to buy in bulk only to find it's a temporary thing. Thanks so much.--Sher Yahoo! Messenger with Voice. PC-to-Phone calls for ridiculously low rates. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2006 Report Share Posted May 9, 2006 Hi Sher, I bought mine from Puritan, buy 2 get three free. Well I love a deal so that's what I thought I ordered. LOL My little box showed up with 10 bottles. Oops I guess I goofed. I surly won't run out anytime soon.. God Bless You and help you fight this beast we all are fighting. I think the sooner we read every horrible thing about this disease the sooner we can get on with the living part of our life.. I have been out visiting today, doing a lot of Heart jogging (laughing) My heart is so happy it got a good work out. Anyhow don't let this scare you out of your life. I am praying for you and yours. Peggy on 5/9/06 5:46 PM, Sher K Bauman at bofus@... wrote: Thanks to you who replied to my questions. I think I will order two bottles of NAC to get the better price. Gee I can buy two from Puritan for what I paid for one a few days ago! I will start walking...thanks Leanne. Sher/ 5-4-06 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2006 Report Share Posted May 9, 2006 Grey Singletary oct 05---oxygen as needed PF Questions I just received the information from the Pulmonary Foundation.Wow. A downer to read. Questions: 1. Why is exercise important? 2. I'm waiting to begin pulmonary therapy and I wonder if you find this helpful/necessary/beneficial? I know "it depends" on the who, what and so on. 3. I checked out Puritan and the price for NAC w/them is about half what I just paid. Is this something that you find is a long term supplement? I hate to buy in bulk only to find it's a temporary thing. Thanks so much.--Sher Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2006 Report Share Posted May 9, 2006 SHOOT, I'm such a slow learner. Peggy 9/28/04 ..on 5/9/06 5:46 PM, Sher K Bauman at bofus@... wrote: Thanks to you who replied to my questions. I think I will order two bottles of NAC to get the better price. Gee I can buy two from Puritan for what I paid for one a few days ago! I will start walking...thanks Leanne. Sher/ 5-4-06 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2006 Report Share Posted May 9, 2006 Peggy, Love heart jogging . Ipf 7\05Peggy wrote: Hi Sher, I bought mine from Puritan, buy 2 get three free. Well I love a deal so that's what I thought I ordered. LOL My little box showed up with 10 bottles. Oops I guess I goofed. I surly won't run out anytime soon.. God Bless You and help you fight this beast we all are fighting. I think the sooner we read every horrible thing about this disease the sooner we can get on with the living part of our life.. I have been out visiting today, doing a lot of Heart jogging (laughing) My heart is so happy it got a good work out. Anyhow don't let this scare you out of your life. I am praying for you and yours. Peggyon 5/9/06 5:46 PM, Sher K Bauman at bofus@... wrote: Thanks to you who replied to my questions. I think I will order two bottles of NAC to get the better price. Gee I can buy two from Puritan for what I paid for one a few days ago!I will start walking...thanks Leanne.Sher/ 5-4-06 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2006 Report Share Posted May 9, 2006 Thanks , What kind of work do you do ? I feel like such a wimp. God Bless you. I know it must be hard being on so much pain med. Take care of you.. Peggy IPF 9/04 on 5/9/06 6:49 PM, linda arnold at lovepuppy49@... wrote: Peggy, Love heart jogging . Ipf 7\05 Peggy wrote: Hi Sher, I bought mine from Puritan, buy 2 get three free. Well I love a deal so that's what I thought I ordered. LOL My little box showed up with 10 bottles. Oops I guess I goofed. I surly won't run out anytime soon.. God Bless You and help you fight this beast we all are fighting. I think the sooner we read every horrible thing about this disease the sooner we can get on with the living part of our life.. I have been out visiting today, doing a lot of Heart jogging (laughing) My heart is so happy it got a good work out. Anyhow don't let this scare you out of your life. I am praying for you and yours. Peggy on 5/9/06 5:46 PM, Sher K Bauman at bofus@... wrote: Thanks to you who replied to my questions. I think I will order two bottles of NAC to get the better price. Gee I can buy two from Puritan for what I paid for one a few days ago! I will start walking...thanks Leanne. Sher/ 5-4-06 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2006 Report Share Posted May 9, 2006 I check in at hosp 5:15 tomorrow morning for kidney procedure----stint in the tube that comes from kidney to bladder. Doctor says that if it has to stay in-----He will do this every 6 months. Something else to look forward to. Grey Questions I just received the information from the Pulmonary Foundation.Wow. A downer to read. Questions: 1. Why is exercise important? 2. I'm waiting to begin pulmonary therapy and I wonder if you find this helpful/necessary/beneficial? I know "it depends" on the who, what and so on. 3. I checked out Puritan and the price for NAC w/them is about half what I just paid. Is this something that you find is a long term supplement? I hate to buy in bulk only to find it's a temporary thing. Thanks so much.--Sher Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2006 Report Share Posted May 9, 2006 Grey, you will be in my prayers. I pray for all of us to find our own strengths. Sher PF 5-06 Questions I just received the information from the Pulmonary Foundation.Wow. A downer to read. Questions: 1. Why is exercise important? 2. I'm waiting to begin pulmonary therapy and I wonder if you find this helpful/necessary/beneficial? I know "it depends" on the who, what and so on. 3. I checked out Puritan and the price for NAC w/them is about half what I just paid. Is this something that you find is a long term supplement? I hate to buy in bulk only to find it's a temporary thing. Thanks so much.--Sher Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2006 Report Share Posted May 9, 2006 Peggy, I am the phone operator at the Wal-Mart here in Lebanon, 1/2 mile from home. All I do is sit and watch rump spread. Without pain meds 24/7 pain will run life, Without I am unable to even get out of bed. Before found Dr who treats pain with meds. I spent 5 years almost entirely in bed. Didn't like it at all.Now I live with the thought " You might slow me down but you will not stop me." As far as working, I am just trying to keep ins.SSI or disability so much trouble will keep just as I am as long as I can.Then go on short term disability then long term at work, will cover 18 months. IPF-7/05 Peggy wrote: Thanks , What kind of work do you do ? I feel like such a wimp. God Bless you. I know it must be hard being on so much pain med. Take care of you.. Peggy IPF 9/04on 5/9/06 6:49 PM, linda arnold at lovepuppy49@... wrote: Peggy, Love heart jogging . Ipf 7\05Peggy wrote: Hi Sher, I bought mine from Puritan, buy 2 get three free. Well I love a deal so that's what I thought I ordered. LOL My little box showed up with 10 bottles. Oops I guess I goofed. I surly won't run out anytime soon.. God Bless You and help you fight this beast we all are fighting. I think the sooner we read every horrible thing about this disease the sooner we can get on with the living part of our life.. I have been out visiting today, doing a lot of Heart jogging (laughing) My heart is so happy it got a good work out. Anyhow don't let this scare you out of your life. I am praying for you and yours. Peggyon 5/9/06 5:46 PM, Sher K Bauman at bofus@... wrote: Thanks to you who replied to my questions. I think I will order two bottles of NAC to get the better price. Gee I can buy two from Puritan for what I paid for one a few days ago!I will start walking...thanks Leanne.Sher/ 5-4-06 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2006 Report Share Posted May 9, 2006 Grey, May God Keep You In The Palms Of His Hands . Prayers on the way up. IPF 7/05Sher K Bauman wrote: Grey, you will be in my prayers. I pray for all of us to find our own strengths. Sher PF 5-06 Questions I just received the information from the Pulmonary Foundation.Wow. A downer to read. Questions: 1. Why is exercise important? 2. I'm waiting to begin pulmonary therapy and I wonder if you find this helpful/necessary/beneficial? I know "it depends" on the who, what and so on. 3. I checked out Puritan and the price for NAC w/them is about half what I just paid. Is this something that you find is a long term supplement? I hate to buy in bulk only to find it's a temporary thing. Thanks so much.--Sher Yahoo! Mail goes everywhere you do. Get it on your phone. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2006 Report Share Posted May 9, 2006 Grey, Life just gets funner and funner doesn't it! I am praying that this procedure will go well for you. I think the reason that mine was tough was because the ureter completly closed and stuck. My stink stayed in for a few weeks and I never had to go back. My prayers are with you! Let us know when you get home and feel like it. Hugs, Joyce >> I check in at hosp 5:15 tomorrow morning for kidney procedure----stint in the tube that comes from kidney to bladder. Doctor says that if it has to stay in-----He will do this every 6 months. Something else to look forward to. Grey> Questions> > > I just received the information from the Pulmonary Foundation.Wow. A downer to read.> Questions: > 1. Why is exercise important?> 2. I'm waiting to begin pulmonary therapy and I wonder if you find this helpful/necessary/beneficial? > I know "it depends" on the who, what and so on.> 3. I checked out Puritan and the price for NAC w/them is about half what I just paid. Is this something that you find is a long term supplement? I hate to buy in bulk only to find it's a temporary thing.> Thanks so much.--Sher> > > Quote Link to comment Share on other sites More sharing options...
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