Guest guest Posted September 10, 2010 Report Share Posted September 10, 2010 We went to see Dr. Sun today in Oakland. He was very nice. They have her records for the last year and her images. We talked about what had been going on.He said her shunt was fine,and her headaches are intermittent. I told him the headaches are always there and got worse about 7 weeks ago. I even told him about her recent " infection " no shunt tap etc. He said the first step would be to do icp monitoring to make sure her icp isnt elevated and if so then she could be blocked. Maddy has been slightly blocked and it didnt change much. Anyways I told him I would like this to be done up there not here at this hospital. He said she needs to see a neurologist about headaches,which I explained they have tried meds before and they didnt help. He doesnt want her on diamox either.He did an x ray of her neck to look at her decompression area,because there is an artifact on the mri. He also discussed a programmable shunt as well,instead of non programmable. They had me sign a release to get more medical records sent up there. The urologist told me back in May they want to see her back in 4 months,but they didnt put that in the chart so Dr. Sun wasnt aware of that. He said her spine looks ok on the MRI. He said her pains could be growing pains,I disagreed. They want me to call in 2 weeks and they will go from there. I know he will figure it out. I am just so frustrated. I wanted him to have some sort of plan already. Also cant get any local docs to give any pain meds,because she looks good. So it will be another long couple of weeks. Please keep Maddy in your prayers. ADDD6F65-1BEB-A824-2A48-BDE1F8F3B131 1.03.01 Quote Link to comment Share on other sites More sharing options...
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