Guest guest Posted May 21, 2000 Report Share Posted May 21, 2000 Carla- Welcome to the group!! You'll need to email me your mailing address since I am sending the newsletters out regular mail. The cookbooks are a fundraiser that we are doing for CAPS. If you would like to submit some recipes you can email them to Kym Avila at ekavila@.... They need to be submitted by June 10th and will go on sell June 19th for delivery around September and again I believe around November for Christmas delivery. The cookbooks will be selling for $10. Hope this answers your questions. Please feel free to ask at any time. Tanda Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2000 Report Share Posted May 21, 2000 Tanda, please mail your newsletter to : Carla Ades 4619 Bay Parkway Brooklyn, NY 11230 I'd like to know if an x-ray is necessary for the diagnosis of pos plagio. Our baby got her helmet when she was 4 months old. No ct or r-rays. She has torticollis also and pt 3 times a week. She is wearing the helmet since april 14 and I don't see ANY change . Is it posible? Is it possible that the helmet was not well fitted? Is it possible that it was a wrong diagnosis? The doctor guaranteed me it will get better, but how do I really know? How long should I wait to " see " any result? Carla Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2000 Report Share Posted May 22, 2000 Hi Carla, Here's a bit of an earlier post that might help ease your mind: "X-rays, CT scans or MRI's are often employed to ensure the plagiocephaly isn't due to a lambdoid suture being fused. However, doctor's might be becoming a little more sure of themselves in identifying positional plagiocephaly through outward characteristics that differentiate it from lambdoid craniosynostosis. Such as : The ear on the side of a prematurely fused lambdoid suture is pulled back toward the back of the head. In positional plagio, the ear on the affected side is pushed forward toward the face. In positional plagio, there is oftentimes compensatory bossing, or bulging of the forehead on the side of the "flat spot". In lambdoid cranio, that usually isn't the case (if no other suture is involved). In lambdoid craniosynostosis, the skull takes on a trapezoid shape (wider in front, narrower in back), in positional plagio it is more in the shape of a parallelogram (like a crooked rectangle). As a matter of fact, sometimes positional plagio is called "parallelism". I've also heard there is a bit of a longer waiting period to see results from some types of helmets. It seems the DOC Band is a little more "active" in the reshaping, and the helmet is passive in that the baby's head takes on the shape of the helmet as it grows and fills it in. So, if hasn't had a growth spurt in the last 3 weeks, she may just not be filling in her helmet very quickly. Get out the Miracle Grow! Start feeding her eggs and steak! Cut the cigarettes and coffee out of her diet! just jokin' Kaye/subscribe/Plagiocephaly ----- Original Message ----- From: carlades@... Plagiocephalyegroups Sent: Sunday, May 21, 2000 7:45 PM Subject: Re: Carla Tanda,please mail your newsletter to :Carla Ades4619 Bay ParkwayBrooklyn, NY 11230I'd like to know if an x-ray is necessary for the diagnosis of pos plagio. Our baby got her helmet when she was 4 months old. No ct or r-rays. She has torticollis also and pt 3 times a week. She is wearing the helmet since april 14 and I don't see ANY change .Is it posible? Is it possible that the helmet was not well fitted? Is it possible that it was a wrong diagnosis? The doctor guaranteed me it will get better, but how do I really know? How long should I wait to "see" any result?Carla Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2000 Report Share Posted May 22, 2000 Hi Carla, Here's a bit of an earlier post that might help ease your mind: "X-rays, CT scans or MRI's are often employed to ensure the plagiocephaly isn't due to a lambdoid suture being fused. However, doctor's might be becoming a little more sure of themselves in identifying positional plagiocephaly through outward characteristics that differentiate it from lambdoid craniosynostosis. Such as : The ear on the side of a prematurely fused lambdoid suture is pulled back toward the back of the head. In positional plagio, the ear on the affected side is pushed forward toward the face. In positional plagio, there is oftentimes compensatory bossing, or bulging of the forehead on the side of the "flat spot". In lambdoid cranio, that usually isn't the case (if no other suture is involved). In lambdoid craniosynostosis, the skull takes on a trapezoid shape (wider in front, narrower in back), in positional plagio it is more in the shape of a parallelogram (like a crooked rectangle). As a matter of fact, sometimes positional plagio is called "parallelism". I've also heard there is a bit of a longer waiting period to see results from some types of helmets. It seems the DOC Band is a little more "active" in the reshaping, and the helmet is passive in that the baby's head takes on the shape of the helmet as it grows and fills it in. So, if hasn't had a growth spurt in the last 3 weeks, she may just not be filling in her helmet very quickly. Get out the Miracle Grow! Start feeding her eggs and steak! Cut the cigarettes and coffee out of her diet! just jokin' Kaye/subscribe/Plagiocephaly ----- Original Message ----- From: carlades@... Plagiocephalyegroups Sent: Sunday, May 21, 2000 7:45 PM Subject: Re: Carla Tanda,please mail your newsletter to :Carla Ades4619 Bay ParkwayBrooklyn, NY 11230I'd like to know if an x-ray is necessary for the diagnosis of pos plagio. Our baby got her helmet when she was 4 months old. No ct or r-rays. She has torticollis also and pt 3 times a week. She is wearing the helmet since april 14 and I don't see ANY change .Is it posible? Is it possible that the helmet was not well fitted? Is it possible that it was a wrong diagnosis? The doctor guaranteed me it will get better, but how do I really know? How long should I wait to "see" any result?Carla Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2000 Report Share Posted May 22, 2000 Hi Carla, Here's a bit of an earlier post that might help ease your mind: "X-rays, CT scans or MRI's are often employed to ensure the plagiocephaly isn't due to a lambdoid suture being fused. However, doctor's might be becoming a little more sure of themselves in identifying positional plagiocephaly through outward characteristics that differentiate it from lambdoid craniosynostosis. Such as : The ear on the side of a prematurely fused lambdoid suture is pulled back toward the back of the head. In positional plagio, the ear on the affected side is pushed forward toward the face. In positional plagio, there is oftentimes compensatory bossing, or bulging of the forehead on the side of the "flat spot". In lambdoid cranio, that usually isn't the case (if no other suture is involved). In lambdoid craniosynostosis, the skull takes on a trapezoid shape (wider in front, narrower in back), in positional plagio it is more in the shape of a parallelogram (like a crooked rectangle). As a matter of fact, sometimes positional plagio is called "parallelism". I've also heard there is a bit of a longer waiting period to see results from some types of helmets. It seems the DOC Band is a little more "active" in the reshaping, and the helmet is passive in that the baby's head takes on the shape of the helmet as it grows and fills it in. So, if hasn't had a growth spurt in the last 3 weeks, she may just not be filling in her helmet very quickly. Get out the Miracle Grow! Start feeding her eggs and steak! Cut the cigarettes and coffee out of her diet! just jokin' Kaye/subscribe/Plagiocephaly ----- Original Message ----- From: carlades@... Plagiocephalyegroups Sent: Sunday, May 21, 2000 7:45 PM Subject: Re: Carla Tanda,please mail your newsletter to :Carla Ades4619 Bay ParkwayBrooklyn, NY 11230I'd like to know if an x-ray is necessary for the diagnosis of pos plagio. Our baby got her helmet when she was 4 months old. No ct or r-rays. She has torticollis also and pt 3 times a week. She is wearing the helmet since april 14 and I don't see ANY change .Is it posible? Is it possible that the helmet was not well fitted? Is it possible that it was a wrong diagnosis? The doctor guaranteed me it will get better, but how do I really know? How long should I wait to "see" any result?Carla Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2000 Report Share Posted May 22, 2000 Hi Carla, Here's a bit of an earlier post that might help ease your mind: "X-rays, CT scans or MRI's are often employed to ensure the plagiocephaly isn't due to a lambdoid suture being fused. However, doctor's might be becoming a little more sure of themselves in identifying positional plagiocephaly through outward characteristics that differentiate it from lambdoid craniosynostosis. Such as : The ear on the side of a prematurely fused lambdoid suture is pulled back toward the back of the head. In positional plagio, the ear on the affected side is pushed forward toward the face. In positional plagio, there is oftentimes compensatory bossing, or bulging of the forehead on the side of the "flat spot". In lambdoid cranio, that usually isn't the case (if no other suture is involved). In lambdoid craniosynostosis, the skull takes on a trapezoid shape (wider in front, narrower in back), in positional plagio it is more in the shape of a parallelogram (like a crooked rectangle). As a matter of fact, sometimes positional plagio is called "parallelism". I've also heard there is a bit of a longer waiting period to see results from some types of helmets. It seems the DOC Band is a little more "active" in the reshaping, and the helmet is passive in that the baby's head takes on the shape of the helmet as it grows and fills it in. So, if hasn't had a growth spurt in the last 3 weeks, she may just not be filling in her helmet very quickly. Get out the Miracle Grow! Start feeding her eggs and steak! Cut the cigarettes and coffee out of her diet! just jokin' Kaye/subscribe/Plagiocephaly ----- Original Message ----- From: carlades@... Plagiocephalyegroups Sent: Sunday, May 21, 2000 7:45 PM Subject: Re: Carla Tanda,please mail your newsletter to :Carla Ades4619 Bay ParkwayBrooklyn, NY 11230I'd like to know if an x-ray is necessary for the diagnosis of pos plagio. Our baby got her helmet when she was 4 months old. No ct or r-rays. She has torticollis also and pt 3 times a week. She is wearing the helmet since april 14 and I don't see ANY change .Is it posible? Is it possible that the helmet was not well fitted? Is it possible that it was a wrong diagnosis? The doctor guaranteed me it will get better, but how do I really know? How long should I wait to "see" any result?Carla Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2000 Report Share Posted May 22, 2000 Carla, Our ped was pretty well-informed about p.plagio and at 2 months she told us to position and check in a month, and then again at the 4 month well-baby. If there wasn't enough improvement by 4 months, to get a helmet/band. She wrote the Rx. We then went to a pediatric neurologist while waiting for the approval...(to cover our bases for our sake and insurance). The ped. neuro- a friend of my husband - felt the sutures, and did/talked about all the stuff posted below. The fact that we had some success repositioning him was another indication that it was not craniosyntosis (it wouldn't have made a difference w/cs). He said he'd have us get an x-ray, and if inconclusive, a CT scan, if we wanted more peace-of-mind. We were satisfied and had no x-rays or CT scan done, and everything has gone pretty well. sure knows her stuff, and she is the best at finding information for us! THANKS ANGELA!!!! Tami --- In Plagiocephalyegroups, " Kaye " <angelakaye@f...> wrote: > Hi Carla, > > Here's a bit of an earlier post that might help ease your mind: > > " X-rays, CT scans or MRI's are often employed to ensure the plagiocephaly isn't due to a lambdoid suture being fused. However, doctor's might be becoming a little more sure of themselves in identifying positional plagiocephaly through outward characteristics that differentiate it from lambdoid craniosynostosis. > > Such as : > > The ear on the side of a prematurely fused lambdoid suture is pulled back toward the back of the head. In positional plagio, the ear on the affected side is pushed forward toward the face. > > In positional plagio, there is oftentimes compensatory bossing, or bulging of the forehead on the side of the " flat spot " . In lambdoid cranio, that usually isn't the case (if no other suture is involved). > > In lambdoid craniosynostosis, the skull takes on a trapezoid shape (wider in front, narrower in back), in positional plagio it is more in the shape of a parallelogram (like a crooked rectangle). As a matter of fact, sometimes positional plagio is called " parallelism " . > > I've also heard there is a bit of a longer waiting period to see results from some types of helmets. It seems the DOC Band is a little more " active " in the reshaping, and the helmet is passive in that the baby's head takes on the shape of the helmet as it grows and fills it in. So, if hasn't had a growth spurt in the last 3 weeks, she may just not be filling in her helmet very quickly. > > Get out the Miracle Grow! Start feeding her eggs and steak! Cut the cigarettes and coffee out of her diet! just jokin' > > > Kaye > /subscribe/Plagiocephaly > ----- Original Message ----- > From: carlades@a... > Plagiocephalyegroups > Sent: Sunday, May 21, 2000 7:45 PM > Subject: Re: Carla > > > Tanda, > please mail your newsletter to : > Carla Ades > 4619 Bay Parkway > Brooklyn, NY 11230 > > I'd like to know if an x-ray is necessary for the diagnosis of pos plagio. > Our baby got her helmet when she was 4 months old. No ct or r-rays. She > has torticollis also and pt 3 times a week. She is wearing the helmet since > april 14 and I don't see ANY change . > Is it posible? Is it possible that the helmet was not well fitted? Is it > possible that it was a wrong diagnosis? The doctor guaranteed me it will get > better, but how do I really know? How long should I wait to " see " any result? > > Carla > > -------------------------------------------------------------------- ---------- > > > > -------------------------------------------------------------------- ---------- > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2000 Report Share Posted May 22, 2000 Carla we are also seeking tx w no ct or xray, also wondering of that's bad. Also, I've heard of someone on htis site going for the doc band after tx w a helmet - I think it had to do w a severe case of pp maybe ask around. - liz -----Original Message----- From: carlades@... <carlades@...> Plagiocephalyegroups <Plagiocephalyegroups> Date: Sunday, May 21, 2000 5:41 PM Subject: Re: Carla >Tanda, >please mail your newsletter to : >Carla Ades >4619 Bay Parkway >Brooklyn, NY 11230 > >I'd like to know if an x-ray is necessary for the diagnosis of pos plagio. >Our baby got her helmet when she was 4 months old. No ct or r-rays. She >has torticollis also and pt 3 times a week. She is wearing the helmet since >april 14 and I don't see ANY change . >Is it posible? Is it possible that the helmet was not well fitted? Is it >possible that it was a wrong diagnosis? The doctor guaranteed me it will get >better, but how do I really know? How long should I wait to " see " any result? > >Carla > >------------------------------------------------------------------------ >Failed tests, classes skipped, forgotten locker combinations. >Remember the good 'ol days >1/4053/4/_/689409/_/958956348/ >------------------------------------------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.