Re: Still speechless! Diagnosis

[Guest guest]

awwww (((((Joyce))))))))) God bless you hun, your in my prayers....

Vicky IPF 4/06

••••••••••••• Original Message •••••••••••••

Hi gang,

Saw the ENT doc today and got a camera up my nose and down my throat. Pleasant! He diagnosed Diffuse Leukoplakia of the larynx. Which means lesions on my voice box. This is usually seen in heavy smokers (never smoked) or heavy drinkers (never drank one drop) or aids patients. Now, the only link to that is that my immune system is suppressed with Prednisone and Cellcept.

He is going to do a biopsy under general anethesia at the hospital if my docs allow it. All this just in time for my evaluation in St. Louis. He told me not to even whisper. Aaaargh!!! I am the queen here...how can I rule without a voice??? How can I go for my evaluation and sit down with doctors for a conference and have no voice?

So, now I am furiously writing notes. Another downer! It is either premalignant or malignant. He does not know. Good grief!! I think I have had every malady known to mankind.

And, hey, I drove myself there and back! That makes me feel good. I was shaky, but so tired of being dependant. I have taken myself to the last two doc appts. Yeah!!! Got into a little trouble on the way home in rush hour traffic..I began coughing up gunk...couldn't find a Kleenex handy....and my throat was still numb. I just prayed until I got home and spit. Yuk! What a glamorous life!

Hugs to all,

Joyce PF 1997

[Guest guest]

Oh Joyce, I know that has been a trying day. Try not to worry about this stuff. Let me worry for you. I have a special place for worries. I catch an angle and sent them express... Your message is on the way and will be re-sent daily. get a dry erase board. They work great, I had one at one time. they make them tablet size. use a RED marker.. every one will know you mean business.. Love and prayers, Peggy

JoycePeggy 09/04 ipf

Hi gang,

Saw the ENT doc today and got a camera up my nose and down my throat. Pleasant! He diagnosed Diffuse Leukoplakia of the larynx. Which means lesions on my voice box. This is usually seen in heavy smokers (never smoked) or heavy drinkers (never drank one drop) or aids patients. Now, the only link to that is that my immune system is suppressed with Prednisone and Cellcept.

He is going to do a biopsy under general anethesia at the hospital if my docs allow it. All this just in time for my evaluation in St. Louis. He told me not to even whisper. Aaaargh!!! I am the queen here...how can I rule without a voice??? How can I go for my evaluation and sit down with doctors for a conference and have no voice?

So, now I am furiously writing notes. Another downer! It is either premalignant or malignant. He does not know. Good grief!! I think I have had every malady known to mankind.

And, hey, I drove myself there and back! That makes me feel good. I was shaky, but so tired of being dependant. I have taken myself to the last two doc appts. Yeah!!! Got into a little trouble on the way home in rush hour traffic..I began coughing up gunk...couldn't find a Kleenex handy....and my throat was still numb. I just prayed until I got home and spit. Yuk! What a glamorous life!

Hugs to all,

Joyce PF 1997

[Guest guest]

Joyce, I am one of those people who read all the posts and "input" info into my blond brain. I am a caregiver and am looking from the outside in. I find you absolutely remarkable. (not saying that the other members of the "gang" are not remarkable) but you renew my faith in God. Everytime I see a new member my heart just aches, but you show such strength, I just cannot explain myself.... AND thats unusual for me Thank God for computers. You may not be allowed to speak, but your beautiful voice comes across LOUD AND STRONG.

Carol Joyce wrote: Hi gang, Saw the ENT doc today and got a camera up my nose and down my throat. Pleasant! He diagnosed Diffuse Leukoplakia of the larynx. Which means lesions on my voice box. This is usually seen in heavy smokers (never smoked) or heavy drinkers (never drank one drop) or aids patients. Now, the only link to that is that my immune system is suppressed with Prednisone and Cellcept. He is going to do a biopsy under general anethesia at the hospital if my docs

allow it. All this just in time for my evaluation in St. Louis. He told me not to even whisper. Aaaargh!!! I am the queen here...how can I rule without a voice??? How can I go for my evaluation and sit down with doctors for a conference and have no voice? So, now I am furiously writing notes. Another downer! It is either premalignant or malignant. He does not know. Good grief!! I think I have had every malady known to mankind. And, hey, I drove myself there and back! That makes me feel good. I was shaky, but so tired of being dependant. I have taken myself to the last two doc appts. Yeah!!! Got into a little trouble on the way home in rush hour traffic..I began coughing up gunk...couldn't find a Kleenex handy....and my throat was still numb. I just

prayed until I got home and spit. Yuk! What a glamorous life! Hugs to all, Joyce PF 1997

[Guest guest]

Joyce,

My husband tells me I can rule the world with my eyes and the expression on my face!!! Hang in there. Prayers and well wishes coming your way.

Love and prayers,

[Guest guest]

Carol, SO well said.. Peggy 9/04 ipf

Carol SantiPeggy 09/04 ipf

Joyce,

I am one of those people who read all the posts and " input " info into my blond brain. I am a caregiver and am looking from the outside in. I find you absolutely remarkable. (not saying that the other members of the " gang " are not remarkable) but you renew my faith in God. Everytime I see a new member my heart just aches, but you show such strength, I just cannot explain myself.... AND thats unusual for me Thank God for computers. You may not be allowed to speak, but your beautiful voice comes across LOUD AND STRONG.

Carol

Joyce wrote:

Hi gang,

Saw the ENT doc today and got a camera up my nose and down my throat. Pleasant! He diagnosed Diffuse Leukoplakia of the larynx. Which means lesions on my voice box. This is usually seen in heavy smokers (never smoked) or heavy drinkers (never drank one drop) or aids patients. Now, the only link to that is that my immune system is suppressed with Prednisone and Cellcept.

He is going to do a biopsy under general anethesia at the hospital if my docs allow it. All this just in time for my evaluation in St. Louis. He told me not to even whisper. Aaaargh!!! I am the queen here...how can I rule without a voice??? How can I go for my evaluation and sit down with doctors for a conference and have no voice?

So, now I am furiously writing notes. Another downer! It is either premalignant or malignant. He does not know. Good grief!! I think I have had every malady known to mankind.

And, hey, I drove myself there and back! That makes me feel good. I was shaky, but so tired of being dependant. I have taken myself to the last two doc appts. Yeah!!! Got into a little trouble on the way home in rush hour traffic..I began coughing up gunk...couldn't find a Kleenex handy....and my throat was still numb. I just prayed until I got home and spit. Yuk! What a glamorous life!

Hugs to all,

Joyce PF 1997

[Guest guest]

I know this is a difficult time Joyce. I have you in my prayers and thoughts. love and hugs. Sher ipf-5-06

Still speechless! Diagnosis

Hi gang,

Saw the ENT doc today and got a camera up my nose and down my throat. Pleasant! He diagnosed Diffuse Leukoplakia of the larynx. Which means lesions on my voice box. This is usually seen in heavy smokers (never smoked) or heavy drinkers (never drank one drop) or aids patients. Now, the only link to that is that my immune system is suppressed with Prednisone and Cellcept.

He is going to do a biopsy under general anethesia at the hospital if my docs allow it. All this just in time for my evaluation in St. Louis. He told me not to even whisper. Aaaargh!!! I am the queen here...how can I rule without a voice??? How can I go for my evaluation and sit down with doctors for a conference and have no voice?

So, now I am furiously writing notes. Another downer! It is either premalignant or malignant. He does not know. Good grief!! I think I have had every malady known to mankind.

And, hey, I drove myself there and back! That makes me feel good. I was shaky, but so tired of being dependant. I have taken myself to the last two doc appts. Yeah!!! Got into a little trouble on the way home in rush hour traffic..I began coughing up gunk...couldn't find a Kleenex handy....and my throat was still numb. I just prayed until I got home and spit. Yuk! What a glamorous life!

Hugs to all,

Joyce PF 1997

[Guest guest]

Joyce, I'm so glad they caught it, I'm not so glad that you have one more thing in your cup. Know you're in all our prayers. I hear you on feeling good about getting yourself to appointment s on your own. I've decided to try not to do that myself. I'm finding that sometimes MD's deny what they've told me in the past.

p.s. You'll always be a Queen, you've got a heart of gold.

Take care, LynnA

>> > Hi gang,> > Saw the ENT doc today and got a camera up my nose and down my throat. > Pleasant! He diagnosed Diffuse Leukoplakia of the larynx. Which means> lesions on my voice box. This is usually seen in heavy smokers (never> smoked) or heavy drinkers (never drank one drop) or aids patients. Now,> the only link to that is that my immune system is suppressed with> Prednisone and Cellcept.> > He is going to do a biopsy under general anethesia at the hospital if my> docs allow it. All this just in time for my evaluation in St. Louis. > He told me not to even whisper. Aaaargh!!! I am the queen here...how> can I rule without a voice??? How can I go for my evaluation and sit> down with doctors for a conference and have no voice?> > So, now I am furiously writing notes. Another downer! It is either> premalignant or malignant. He does not know. Good grief!! I think I> have had every malady known to mankind.> > And, hey, I drove myself there and back! That makes me feel good. I> was shaky, but so tired of being dependant. I have taken myself to the> last two doc appts. Yeah!!! Got into a little trouble on the way home> in rush hour traffic..I began coughing up gunk...couldn't find a Kleenex> handy....and my throat was still numb. I just prayed until I got home> and spit. Yuk! What a glamorous life! [:- & ]> > Hugs to all,> > Joyce PF 1997>

[Guest guest]

,

I have been clapping my hands to get attention. When the grandkids are here it is a noisy place. I am going to get a wipe off board and red markers like Peggy said. I will work it out. Just another thing!

Thanks for caring,

Joyce PF 1997>> Joyce,> My husband tells me I can rule the world with my eyes and the expression on > my face!!! Hang in there. Prayers and well wishes coming your way.> Love and prayers,> >

[Guest guest]

Joyce, make everyone learn to use sign language. Then when get on your nerves, hold up hand. Do the Talk To The Hand ipf 7/05 Joyce wrote: Hi gang, Saw the ENT doc today and got a camera up my nose and down my throat. Pleasant! He diagnosed Diffuse Leukoplakia of the larynx. Which means lesions on my voice box. This is usually seen in heavy smokers (never smoked) or heavy drinkers (never drank one drop) or aids patients. Now, the only link to that is that my immune system is suppressed with Prednisone and Cellcept. He is going to do a biopsy under general anethesia at the hospital if my docs allow it. All this just in time for my evaluation in St. Louis. He told me not to even whisper. Aaaargh!!! I am the queen here...how can I rule without a voice??? How can I go for my evaluation and sit down with doctors for a conference and have no voice? So, now I am furiously writing notes. Another downer! It is either premalignant or malignant. He does not know. Good grief!! I think I have had every malady known to mankind. And, hey, I drove myself there and back! That makes me feel good. I was shaky, but so tired of being dependant. I have taken myself to the last two doc appts. Yeah!!! Got into a little trouble on the way home in rush hour traffic..I began coughing up

gunk...couldn't find a Kleenex handy....and my throat was still numb. I just prayed until I got home and spit. Yuk! What a glamorous life! Hugs to all, Joyce PF 1997 __________________________________________________

[Guest guest]

Joyce, I am keeping you in my thoughts and prayers. "Jesus I trust in YOU".

Ann- In Breathe-Support , "Joyce" wrote:>> > Hi gang,> > Saw the ENT doc today and got a camera up my nose and down my throat. > Pleasant! He diagnosed Diffuse Leukoplakia of the larynx. Which means> lesions on my voice box. This is usually seen in heavy smokers (never> smoked) or heavy drinkers (never drank one drop) or aids patients. Now,> the only link to that is that my immune system is suppressed with> Prednisone and Cellcept.> > He is going to do a biopsy under general anethesia at the hospital if my> docs allow it. All this just in time for my evaluation in St. Louis. > He told me not to even whisper. Aaaargh!!! I am the queen here...how> can I rule without a voice??? How can I go for my evaluation and sit> down with doctors for a conference and have no voice?> > So, now I am furiously writing notes. Another downer! It is either> premalignant or malignant. He does not know. Good grief!! I think I> have had every malady known to mankind.> > And, hey, I drove myself there and back! That makes me feel good. I> was shaky, but so tired of being dependant. I have taken myself to the> last two doc appts. Yeah!!! Got into a little trouble on the way home> in rush hour traffic..I began coughing up gunk...couldn't find a Kleenex> handy....and my throat was still numb. I just prayed until I got home> and spit. Yuk! What a glamorous life! [:- & ]> > Hugs to all,> > Joyce PF 1997>

[Guest guest]

.... there's a book out on learning Ameslan, my daughter and wife got

it (one of my daughter's friends is deaf and my wife had a coworker

who was deaf ... they taught themselves out of it). Want me to get

the title etc so you can look for it at Border's?

Phred

---- Original Message ----

From: lovepuppy49@...

To: Breathe-Support

Subject: Re: Still speechless! Diagnosis

Date: Fri, 2 Jun 2006 20:45:15 -0700 (PDT)

>Joyce,

> make everyone learn to use sign language. Then when get on your

>nerves, hold up hand. Do the Talk To The Hand

> ipf 7/05

>

>Joyce wrote:

> Hi gang,

> Saw the ENT doc today and got a camera up my nose and down my

>throat. Pleasant! He diagnosed Diffuse Leukoplakia of the larynx.

>Which means lesions on my voice box. This is usually seen in heavy

>smokers (never smoked) or heavy drinkers (never drank one drop) or

>aids patients. Now, the only link to that is that my immune system

>is suppressed with Prednisone and Cellcept.

> He is going to do a biopsy under general anethesia at the hospital

>if my docs allow it. All this just in time for my evaluation in St.

>Louis. He told me not to even whisper. Aaaargh!!! I am the queen

>here...how can I rule without a voice??? How can I go for my

>evaluation and sit down with doctors for a conference and have no

>voice?

> So, now I am furiously writing notes. Another downer! It is

>either premalignant or malignant. He does not know. Good grief!! I

>think I have had every malady known to mankind.

> And, hey, I drove myself there and back! That makes me feel good.

>I was shaky, but so tired of being dependant. I have taken myself to

>the last two doc appts. Yeah!!! Got into a little trouble on the

>way home in rush hour traffic..I began coughing up gunk...couldn't

>find a Kleenex handy....and my throat was still numb. I just prayed

>until I got home and spit. Yuk! What a glamorous life!

> Hugs to all,

> Joyce PF 1997

>

>

>

[Guest guest]

Fred,

Yes, get the title. Oh, I hope this is not permanant! Not being able to talk is so isolating. Just in these few weeks, the phone don't ring....everyone talks to each other. Aaaargh!! I am beginning to feel like a non-person. I can't even complain....I hate that! Joyce

> > Hi gang, > > Saw the ENT doc today and got a camera up my nose and down my> >throat. Pleasant! He diagnosed Diffuse Leukoplakia of the larynx. > >Which means lesions on my voice box. This is usually seen in heavy> >smokers (never smoked) or heavy drinkers (never drank one drop) or> >aids patients. Now, the only link to that is that my immune system> >is suppressed with Prednisone and Cellcept. > > He is going to do a biopsy under general anethesia at the hospital> >if my docs allow it. All this just in time for my evaluation in St.> >Louis. He told me not to even whisper. Aaaargh!!! I am the queen> >here...how can I rule without a voice??? How can I go for my> >evaluation and sit down with doctors for a conference and have no> >voice?> > So, now I am furiously writing notes. Another downer! It is> >either premalignant or malignant. He does not know. Good grief!! I> >think I have had every malady known to mankind. > > And, hey, I drove myself there and back! That makes me feel good. > >I was shaky, but so tired of being dependant. I have taken myself to> >the last two doc appts. Yeah!!! Got into a little trouble on the> >way home in rush hour traffic..I began coughing up gunk...couldn't> >find a Kleenex handy....and my throat was still numb. I just prayed> >until I got home and spit. Yuk! What a glamorous life! > > Hugs to all, > > Joyce PF 1997 > >> >> >

[Guest guest]

Joyce, you write so wonderfully well...are you by any chance journaling? I am starting a journal, writing letters to kids, etc. Put your beautiful words on paper! Love and prayer to you. Sher ipf 5-06

Re: Still speechless! Diagnosis

Fred,

Yes, get the title. Oh, I hope this is not permanant! Not being able to talk is so isolating. Just in these few weeks, the phone don't ring....everyone talks to each other. Aaaargh!! I am beginning to feel like a non-person. I can't even complain....I hate that! Joyce

> > Hi gang, > > Saw the ENT doc today and got a camera up my nose and down my> >throat. Pleasant! He diagnosed Diffuse Leukoplakia of the larynx. > >Which means lesions on my voice box. This is usually seen in heavy> >smokers (never smoked) or heavy drinkers (never drank one drop) or> >aids patients. Now, the only link to that is that my immune system> >is suppressed with Prednisone and Cellcept. > > He is going to do a biopsy under general anethesia at the hospital> >if my docs allow it. All this just in time for my evaluation in St.> >Louis. He told me not to even whisper. Aaaargh!!! I am the queen> >here...how can I rule without a voice??? How can I go for my> >evaluation and sit down with doctors for a conference and have no> >voice?> > So, now I am furiously writing notes. Another downer! It is> >either premalignant or malignant. He does not know. Good grief!! I> >think I have had every malady known to mankind. > > And, hey, I drove myself there and back! That makes me feel good. > >I was shaky, but so tired of being dependant. I have taken myself to> >the last two doc appts. Yeah!!! Got into a little trouble on the> >way home in rush hour traffic..I began coughing up gunk...couldn't> >find a Kleenex handy....and my throat was still numb. I just prayed> >until I got home and spit. Yuk! What a glamorous life! > > Hugs to all, > > Joyce PF 1997 > >> >> >

[Guest guest]

.... I gotta look for it.

Phred

---- Original Message ----

From: joycedalton29@...

To: Breathe-Support

Subject: RE: Re: Still speechless! Diagnosis

Date: Sat, 03 Jun 2006 15:47:44 -0000

>

>Fred,

>

>Yes, get the title. Oh, I hope this is not permanant! Not being

>able

>to talk is so isolating. Just in these few weeks, the phone don't

>ring....everyone talks to each other. Aaaargh!! I am beginning to

>feel

>like a non-person. I can't even complain....I hate that! []

>Joyce

>

>

>

>> > Hi gang,

>> > Saw the ENT doc today and got a camera up my nose and down my

>> >throat. Pleasant! He diagnosed Diffuse Leukoplakia of the larynx.

>> >Which means lesions on my voice box. This is usually seen in heavy

>> >smokers (never smoked) or heavy drinkers (never drank one drop) or

>> >aids patients. Now, the only link to that is that my immune system

>> >is suppressed with Prednisone and Cellcept.

>> > He is going to do a biopsy under general anethesia at the

>hospital

>> >if my docs allow it. All this just in time for my evaluation in

>St.

>> >Louis. He told me not to even whisper. Aaaargh!!! I am the queen

>> >here...how can I rule without a voice??? How can I go for my

>> >evaluation and sit down with doctors for a conference and have no

>> >voice?

>> > So, now I am furiously writing notes. Another downer! It is

>> >either premalignant or malignant. He does not know. Good grief!! I

>> >think I have had every malady known to mankind.

>> > And, hey, I drove myself there and back! That makes me feel good.

>> >I was shaky, but so tired of being dependant. I have taken myself

>to

>> >the last two doc appts. Yeah!!! Got into a little trouble on the

>> >way home in rush hour traffic..I began coughing up gunk...couldn't

>> >find a Kleenex handy....and my throat was still numb. I just

>prayed

>> >until I got home and spit. Yuk! What a glamorous life!

>> > Hugs to all,

>> > Joyce PF 1997

>> >

>> >

>> >

[Guest guest]

Hi all, well my visit to the ruemitoligist .I know I spelled that wrong bear with me brain is on over load! any wayb the results so far is I also have scleroderma the form that damages the organs, and tissue they say its rare at this point what isnt as far as ,did scleroderma cause my pf or didpf case scler. ? big ouestion .the dr was a good doc knew my case completly before I walked in ,she even new how I dont take med and am very dominate stuborn...ect.. she walked in and right off the bat said now I am going to dominate the first half of this confersation because I need to ask you questions .well of course I said ok! ha she also feels msu should pay for thier lack of training properly and felt this could have been less damaging oh well , so now I feel a deeper rush to get my ducks in order for my childeren ., I will be going through all the e-mails totay but will probably not check in again till next week here is a sight for neprinol I think someone asked for it a

while back 1-or ,www.biomediclabs.com she recomended no meds!!! she said what ever I am doing right now is keeping me stable! next week pf test ulg I really dont like those ...who dose ok got to go watch over the hedge! doris nisp pf scler.10-05 phredta11bl@... wrote: ... I gotta look for it.Phred---- Original Message ----From: joycedalton29@...To: Breathe-Support Subject: RE: Re: Still speechless! DiagnosisDate: Sat, 03 Jun 2006 15:47:44 -0000>>Fred,>>Yes, get the title. Oh, I hope this is not permanant! Not being>able>to talk is so isolating. Just in these few weeks, the phone don't>ring....everyone talks to each other.

Aaaargh!! I am beginning to>feel>like a non-person. I can't even complain....I hate that! [] >Joyce>>>>> > Hi gang,>> > Saw the ENT doc today and got a camera up my nose and down my>> >throat. Pleasant! He diagnosed Diffuse Leukoplakia of the larynx.>> >Which means lesions on my voice box. This is usually seen in heavy>> >smokers (never smoked) or heavy drinkers (never drank one drop) or>> >aids patients. Now, the only link to that is that my immune system>> >is suppressed with Prednisone and Cellcept.>> > He is going to do a biopsy under general anethesia at the>hospital>> >if my docs allow it. All this just in time for my evaluation in>St.>> >Louis. He told me not to even whisper. Aaaargh!!! I am the queen>> >here...how can I rule without a voice??? How can I go for my>>

>evaluation and sit down with doctors for a conference and have no>> >voice?>> > So, now I am furiously writing notes. Another downer! It is>> >either premalignant or malignant. He does not know. Good grief!! I>> >think I have had every malady known to mankind.>> > And, hey, I drove myself there and back! That makes me feel good.>> >I was shaky, but so tired of being dependant. I have taken myself>to>> >the last two doc appts. Yeah!!! Got into a little trouble on the>> >way home in rush hour traffic..I began coughing up gunk...couldn't>> >find a Kleenex handy....and my throat was still numb. I just>prayed>> >until I got home and spit. Yuk! What a glamorous life!>> > Hugs to all,>> > Joyce PF 1997>> >>> >>> >

[Guest guest]

Joyce The American sign lang. books are very easy to use and learn from. My children have been using signs since they were 5 & 6 yrs old.. You only need basics. I think you can probably get them on line I haven't looked. When I had my thyroid surgery I used it because I was afraid to talk.. LOL.. Ray has been home since Thurs and my fingers are tired..

God Bless you... Peggy

phredta11bl@... 09/04 ipf

.... there's a book out on learning Ameslan, my daughter and wife got

it (one of my daughter's friends is deaf and my wife had a coworker

who was deaf ... they taught themselves out of it). Want me to get

the title etc so you can look for it at Border's?

Phred

---- Original Message ----

From: lovepuppy49@...

To: Breathe-Support

Subject: Re: Still speechless! Diagnosis

Date: Fri, 2 Jun 2006 20:45:15 -0700 (PDT)

>Joyce,

> make everyone learn to use sign language. Then when get on your

>nerves, hold up hand. Do the Talk To The Hand

> ipf 7/05

>

>Joyce wrote:

> Hi gang,

> Saw the ENT doc today and got a camera up my nose and down my

>throat. Pleasant! He diagnosed Diffuse Leukoplakia of the larynx.

>Which means lesions on my voice box. This is usually seen in heavy

>smokers (never smoked) or heavy drinkers (never drank one drop) or

>aids patients. Now, the only link to that is that my immune system

>is suppressed with Prednisone and Cellcept.

> He is going to do a biopsy under general anethesia at the hospital

>if my docs allow it. All this just in time for my evaluation in St.

>Louis. He told me not to even whisper. Aaaargh!!! I am the queen

>here...how can I rule without a voice??? How can I go for my

>evaluation and sit down with doctors for a conference and have no

>voice?

> So, now I am furiously writing notes. Another downer! It is

>either premalignant or malignant. He does not know. Good grief!! I

>think I have had every malady known to mankind.

> And, hey, I drove myself there and back! That makes me feel good.

>I was shaky, but so tired of being dependant. I have taken myself to

>the last two doc appts. Yeah!!! Got into a little trouble on the

>way home in rush hour traffic..I began coughing up gunk...couldn't

>find a Kleenex handy....and my throat was still numb. I just prayed

>until I got home and spit. Yuk! What a glamorous life!

> Hugs to all,

> Joyce PF 1997

>

>

>

[Guest guest]

Peggy,

Did you say that he was blind, deaf and mute? If so how can he see sign language? How does he communicate?

I actually know the alphabet and some of the other stuff....but no one else does, so it does me no good to sign. I am just hating this. How long were you 'speechless'?

Waaaagh

Joyce PF 1997> > Hi gang, > > Saw the ENT doc today and got a camera up my nose and down my> >throat. Pleasant! He diagnosed Diffuse Leukoplakia of the larynx.> >Which means lesions on my voice box. This is usually seen in heavy> >smokers (never smoked) or heavy drinkers (never drank one drop) or> >aids patients. Now, the only link to that is that my immune system> >is suppressed with Prednisone and Cellcept.> > He is going to do a biopsy under general anethesia at the hospital> >if my docs allow it. All this just in time for my evaluation in St.> >Louis. He told me not to even whisper. Aaaargh!!! I am the queen> >here...how can I rule without a voice??? How can I go for my> >evaluation and sit down with doctors for a conference and have no> >voice?> > So, now I am furiously writing notes. Another downer! It is> >either premalignant or malignant. He does not know. Good grief!! I> >think I have had every malady known to mankind.> > And, hey, I drove myself there and back! That makes me feel good.> >I was shaky, but so tired of being dependant. I have taken myself to> >the last two doc appts. Yeah!!! Got into a little trouble on the> >way home in rush hour traffic..I began coughing up gunk...couldn't> >find a Kleenex handy....and my throat was still numb. I just prayed> >until I got home and spit. Yuk! What a glamorous life!> > Hugs to all, > > Joyce PF 1997 > >> >> >

[Guest guest]

We talk to him like Helen Keller. He feels out hands.. extremely smart. He has the sweetest spirit. He talks on our arms, backs .. He thinks we can understand. lol HE IS A REAL MIRICAL. He was only 1 lb 5oz. at birth, He was put into pure O2 which burned out his nerve centers to his eyes and ears.

he turned 52 yesterday. We treat him like one of the kids.. Shame on us.. His favorite thing is building,, hammers saws.. He's a trip to be around// Anyhow have a Wonderful Sunday.. Peggy 9/04 ipf

JoycePeggy 09/04 ipf

Peggy,

Did you say that he was blind, deaf and mute? If so how can he see sign language? How does he communicate?

I actually know the alphabet and some of the other stuff....but no one else does, so it does me no good to sign. I am just hating this. How long were you 'speechless'?

Waaaagh

Joyce PF 1997

>

> Joyce The American sign lang. books are very easy to use and learn from. My

> children have been using signs since they were 5 & 6 yrs old.. You only need

> basics. I think you can probably get them on line I haven't looked. When I

> had my thyroid surgery I used it because I was afraid to talk.. LOL.. Ray

> has been home since Thurs and my fingers are tired..

> God Bless you... Peggy

>

>

>

>

> phredta11bl@... 09/04 ipf

>

> ... there's a book out on learning Ameslan, my daughter and wife got

> it (one of my daughter's friends is deaf and my wife had a coworker

> who was deaf ... they taught themselves out of it). Want me to get

> the title etc so you can look for it at Border's?

>

> Phred

>

> ---- Orig

[Guest guest]

Is he your brother or brother-n-law? Has he lived a normal life....job, family, etc? It is fascinating! It is also humbling...I shouldn't complain!

Joyce PF1997> >> > Joyce The American sign lang. books are very easy to use and learn from. My> > children have been using signs since they were 5 & 6 yrs old.. You only need> > basics. I think you can probably get them on line I haven't looked. When I> > had my thyroid surgery I used it because I was afraid to talk.. LOL.. Ray> > has been home since Thurs and my fingers are tired..> > God Bless you... Peggy> > > > > > > > > > phredta11bl@ 09/04 ipf> > > > ... there's a book out on learning Ameslan, my daughter and wife got> > it (one of my daughter's friends is deaf and my wife had a coworker> > who was deaf ... they taught themselves out of it). Want me to get> > the title etc so you can look for it at Border's?> > > > Phred> > > > ---- Orig > >

[Guest guest]

He is environmentally retarded. since he has never seen or heard anything all he knows is what he has been taught. Well he does things that amaze us. it's almost like he can see and hear. He went to the Helen Keller Center in N. Y. for a while. and several other places to learn life skills.

Once he meets someone he always remembers by touching their hands and arms. When he had the cancer his Dr ask me if he was depressed or any of those things.. NO he doesn't know the word cancer so he didn't fear it. He never complained through two surgeries kemo and 32 radiation treatments. He has taught me so much about how to deal with serious illness. He is always happy and ready to help in what ever we're doing.

I've got to go to bed.. God Bless you with a peaceful night. Peggy

JoycePeggy 09/04 ipf

Is he your brother or brother-n-law? Has he lived a normal life....job, family, etc? It is fascinating! It is also humbling...I shouldn't complain!

Joyce PF1997

>

> We talk to him like Helen Keller. He feels out hands.. extremely smart. He

> has the sweetest spirit. He talks on our arms, backs .. He thinks we can

> understand. lol HE IS A REAL MIRICAL. He was only 1 lb 5oz. at birth, He

> was put into pure O2 which burned out his nerve centers to his eyes and

> ears.

> he turned 52 yesterday. We treat him like one of the kids.. Shame on us..

> His favorite thing is building,, hammers saws.. He's a trip to be around//

> Anyhow have a Wonderful Sunday.. Peggy 9/04 ipf

>

>

>

> JoycePeggy 09/04 ipf

>

>

> Peggy,

>

> Did you say that he was blind, deaf and mute? If so how can he see sign

> language? How does he communicate?

>

> I actually know the alphabet and some of the

[Guest guest]

Pegy He is truly blessed, and so are for knowing him God Bless 7/05Peggy wrote: He is environmentally retarded. since he has never seen or heard anything all he knows is what he has been taught. Well he does things that amaze us. it's almost like he can see and hear. He went to the Helen Keller Center in N. Y. for a while. and several other places to learn life skills.Once he meets someone he always remembers by touching their hands and arms. When he had the cancer his Dr ask me if he was depressed or any of those things.. NO he doesn't know the word cancer so he didn't fear it. He never complained through two surgeries kemo and 32 radiation treatments. He has taught me so much about how to deal with serious illness. He is always happy and ready to

help in what ever we're doing. I've got to go to bed.. God Bless you with a peaceful night. PeggyJoycePeggy 09/04 ipf Is he your brother or brother-n-law? Has he lived a normal life....job, family, etc? It is fascinating! It is also humbling...I shouldn't complain! Joyce PF1997>> We talk to him like Helen Keller. He feels out hands.. extremely smart. He> has the sweetest spirit. He talks on our arms, backs .. He thinks we can> understand. lol HE IS A REAL MIRICAL. He was only 1 lb 5oz. at birth, He> was put into pure O2 which burned out his nerve centers to his eyes and> ears. > he turned 52 yesterday. We treat him like one of the kids.. Shame on

us..> His favorite thing is building,, hammers saws.. He's a trip to be around//> Anyhow have a Wonderful Sunday.. Peggy 9/04 ipf> > > > JoycePeggy 09/04 ipf> > > Peggy, > > Did you say that he was blind, deaf and mute? If so how can he see sign> language? How does he communicate?> > I actually know the alphabet and some of the

[Guest guest]

Hey, Joyce: Sorry to hear that you have one more problem added to your list. I sure hope everything turns out well for you. The waiting and not knowing is the hardest part. Hang in there girl...you will be in my prayers. Barb in KY ipr or pf/ 11-05 Ann wrote: Joyce, I am keeping you in my thoughts and prayers. "Jesus I trust in YOU". Ann- In Breathe-Support , "Joyce" wrote:>> > Hi gang,> > Saw the ENT doc today and got a camera up my nose and down my throat. > Pleasant! He

diagnosed Diffuse Leukoplakia of the larynx. Which means> lesions on my voice box. This is usually seen in heavy smokers (never> smoked) or heavy drinkers (never drank one drop) or aids patients. Now,> the only link to that is that my immune system is suppressed with> Prednisone and Cellcept.> > He is going to do a biopsy under general anethesia at the hospital if my> docs allow it. All this just in time for my evaluation in St. Louis. > He told me not to even whisper. Aaaargh!!! I am the queen here...how> can I rule without a voice??? How can I go for my evaluation and sit> down with doctors for a conference and have no voice?> > So, now I am furiously writing notes. Another downer! It is either> premalignant or malignant. He does not know. Good grief!! I think I> have had every malady known to mankind.> > And, hey, I drove myself there and back! That makes me

feel good. I> was shaky, but so tired of being dependant. I have taken myself to the> last two doc appts. Yeah!!! Got into a little trouble on the way home> in rush hour traffic..I began coughing up gunk...couldn't find a Kleenex> handy....and my throat was still numb. I just prayed until I got home> and spit. Yuk! What a glamorous life! [:- & ]> > Hugs to all,> > Joyce PF 1997>

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