Re: what is nacs

[Guest guest]

Hi Jan and ,

I am surprised that his doc does not advocate excersize. They usually want you in rehab right away. He must have reasons that he is not sharing with you. Ask him why. I am sooooo lazy and do not excersize but I think that people who do seem to do better.

Does use nebulizers? That is what helps me with the coughing. I use Duoneb, Acetycysteine, and Pulmacort in my nebs. Makes for long sessions and is so tiring. I also do physio therapy and postural drainage. But leaving that grunge in your lungs is a recipe for disaster. I also take Mucilex to thin the mucous. I drink water continually.

Keep going through back posts and search the internet. The more that you know, the better prepared you are for conversation with your doc. They talk to you more if they think you have a brain.

I hope the disease goes slowly and symptoms diminish. There is a good life for you yet. I just am so excited every day to be alive. Attitude is everything.

Joyce >> Hi, we are knew to your group. , my husband of 40 years was diagnosed a week ago with pulmonary fibrosis, with usual interstitial pneumonia. We are busy learning about this disease. He got sick one year ago, his CAT improved after we quit smoking so we played a wait and see game, assuming it was copd, he had a bronchoscopy last month as his symptoms worsened, that was inconclusive so had a VAT 2 weeks ago. We are both interested in herbs, vitamins any alternative type medicine. He was on prednisone in Dec. and his pulmonologist is not pushing it, or even encouraging going back on it. His pulmonologist strongly suggested not exercising. has been walking as briskly as possible several times a day, from the efforts group we learned use it or loose it. Do any of you exercise? I am having problems going back in your e-mails to learn as much as possible in a short length of time. We are retired, and except for the things he has been advised not to do ie:paint, etc he remains active. His cough is harsh!! with many episodes daily, any suggestions to helping with that would be appreciated.> We look forward to getting to know you folks, and learning how to navigate your site.apologize for the rambling, but have so much to learn!! lol this doesn't look like a walk in the park!!> & Jan pjliving@...>

[Guest guest]

I agree with Joyce the better educated you are going in to the doc. seems to bring a greater respect and team work so you can work together in finding what is going to work best for you.As far as natural suppliments my address'es are at home ,but you can look these up on the enternet. N.A.C , NAPRINAL, NATUR-LEAF it will also give you a little anatomy cell,enzemys information look for natural suppliments for pulminary fibrosis, I have nonspecific interstitial pneumonia [non smoker ] also I am in rehab they say a healthy stronger muscle needs less oxegen ,makes sence to me! but like one of your other responces there might be more to the reason why your doc. dose not want you to. good luck Dorisjanne5303 wrote: Hi Jan and , I am surprised that his

doc does not advocate excersize. They usually want you in rehab right away. He must have reasons that he is not sharing with you. Ask him why. I am sooooo lazy and do not excersize but I think that people who do seem to do better. Does use nebulizers? That is what helps me with the coughing. I use Duoneb, Acetycysteine, and Pulmacort in my nebs. Makes for long sessions and is so tiring. I also do physio therapy and postural drainage. But leaving that grunge in your lungs is a recipe for disaster. I also take Mucilex to thin the mucous. I drink water continually. Keep going through back posts and search the internet. The more that you know, the better prepared you are for conversation with your doc. They talk to you more if they think you have a brain. I hope the disease goes slowly and symptoms diminish. There is a good life for you yet. I just am so excited every day to be alive. Attitude is everything. Joyce >> Hi, we are knew to your group. , my husband of 40 years was diagnosed a week ago with pulmonary fibrosis, with usual interstitial pneumonia. We are busy learning about this disease. He got sick one year ago, his CAT improved after we quit smoking so we played a wait and see game, assuming it was copd, he had a bronchoscopy last month as his symptoms worsened, that was inconclusive so had a VAT 2 weeks ago. We are both interested in herbs, vitamins any alternative type medicine. He was on prednisone in Dec. and his pulmonologist is not pushing it, or even encouraging going back on it. His pulmonologist strongly suggested

not exercising. has been walking as briskly as possible several times a day, from the efforts group we learned use it or loose it. Do any of you exercise? I am having problems going back in your e-mails to learn as much as possible in a short length of time. We are retired, and except for the things he has been advised not to do ie:paint, etc he remains active. His cough is harsh!! with many episodes daily, any suggestions to helping with that would be appreciated.> We look forward to getting to know you folks, and learning how to navigate your site.apologize for the rambling, but have so much to learn!! lol this doesn't look like a walk in the park!!> & Jan pjliving@...>

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[Guest guest]

My pulmonologist would not put me in rehab until I had a certain level of improvement. It takes 02 to do exercise. Sometimes simply upping the 02 won't prevent a drop in 02 sats while exercising. I had to wait about 3 mos before he would allow rehab. marydoris soliz-hill wrote: I agree with Joyce the better educated you are going in to the doc. seems to bring a greater respect and team work so you can work together in finding what is going to work best for you.As far as natural suppliments my address'es are at home ,but you can look these up on the enternet. N.A.C , NAPRINAL, NATUR-LEAF it will also give you a little anatomy cell,enzemys information look for natural suppliments for pulminary fibrosis, I have nonspecific interstitial pneumonia [non smoker ] also I am in rehab

they say a healthy stronger muscle needs less oxegen ,makes sence to me! but like one of your other responces there might be more to the reason why your doc. dose not want you to. good luck Dorisjanne5303 wrote: Hi Jan and , I am surprised that his doc does not advocate excersize. They usually want you in rehab right away. He must have reasons that he is not sharing with you. Ask him why. I am sooooo lazy and do not excersize but I think that people who do seem to do better. Does use nebulizers? That is what helps me with the coughing. I use Duoneb, Acetycysteine, and Pulmacort in my nebs. Makes for long sessions and is so tiring. I also do physio

therapy and postural drainage. But leaving that grunge in your lungs is a recipe for disaster. I also take Mucilex to thin the mucous. I drink water continually. Keep going through back posts and search the internet. The more that you know, the better prepared you are for conversation with your doc. They talk to you more if they think you have a brain. I hope the disease goes slowly and symptoms diminish. There is a good life for you yet. I just am so excited every day to be alive. Attitude is everything. Joyce >> Hi, we are knew to your group. , my husband of 40 years was diagnosed a week ago with pulmonary fibrosis, with usual interstitial

pneumonia. We are busy learning about this disease. He got sick one year ago, his CAT improved after we quit smoking so we played a wait and see game, assuming it was copd, he had a bronchoscopy last month as his symptoms worsened, that was inconclusive so had a VAT 2 weeks ago. We are both interested in herbs, vitamins any alternative type medicine. He was on prednisone in Dec. and his pulmonologist is not pushing it, or even encouraging going back on it. His pulmonologist strongly suggested not exercising. has been walking as briskly as possible several times a day, from the efforts group we learned use it or loose it. Do any of you exercise? I am having problems going back in your e-mails to learn as much as possible in a short length of time. We are retired, and except for the things he has been advised not to do ie:paint, etc he remains active. His cough is harsh!! with many episodes daily, any suggestions to helping with that would be appreciated.> We look forward

to getting to know you folks, and learning how to navigate your site.apologize for the rambling, but have so much to learn!! lol this doesn't look like a walk in the park!!> & Jan pjliving@...> Yahoo! Autos. Looking for a sweet ride? Get pricing, reviews, & more on new and used cars.

marymassung

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[Guest guest]

my husband Tom was also just diagnosed - right now he is on NAC & from his experience & what we've read - that would be good for your husband. good luck

Kim

what is nacs

Hi, we are knew to your group. , my husband of 40 years was diagnosed a week ago with pulmonary fibrosis, with usual interstitial pneumonia. We are busy learning about this disease. He got sick one year ago, his CAT improved after we quit smoking so we played a wait and see game, assuming it was copd, he had a bronchoscopy last month as his symptoms worsened, that was inconclusive so had a VAT 2 weeks ago. We are both interested in herbs, vitamins any alternative type medicine. He was on prednisone in Dec. and his pulmonologist is not pushing it, or even encouraging going back on it. His pulmonologist strongly suggested not exercising. has been walking as briskly as possible several times a day, from the efforts group we learned use it or loose it. Do any of you exercise? I am having problems going back in your e-mails to learn as much as possible in a short length of time. We are retired, and except for the things he has been advised not to do ie:paint, etc he remains active. His cough is harsh!! with many episodes daily, any suggestions to helping with that would be appreciated.

We look forward to getting to know you folks, and learning how to navigate your site.apologize for the rambling, but have so much to learn!! lol this doesn't look like a walk in the park!!

& Jan pjliving@...