Guest guest Posted August 28, 2012 Report Share Posted August 28, 2012 " Yes, he did check for co infections, he ran a very expensive InfectiousPanel from Quest. " or B. could you say the name of the Panel of tests to check for these co infections? THX PAMELA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 28, 2012 Report Share Posted August 28, 2012 Here is information on the Quest tests for various tick borne diseases:http://www.questdiagnostics.com/testcenter/testguide.action?dc=CF_Tick-borneDis Note that the PCR tests are more accurate than the Western Blot (which is highly inaccurate). Igenex lab in California will also test for all the co-infections. You or your doctor can request the test kit and have the doctor's office do the blood draw. I wouldn't waste money on anything other than the Igenex tests. And, that's I'll say about lyme on this list. There is a DFW specific lyme yahoo group: NTXLyme and a Texas lyme group.http://health.groups.yahoo.com/group/NTXlyme/ http://health.groups.yahoo.com/group/txlyme/ B. " Yes, he did check for co infections, he ran a very expensive Infectious Panel from Quest. " or B. could you say the name of the Panel of tests to check for these co infections? THX PAMELA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 28, 2012 Report Share Posted August 28, 2012 Pamela,That was my own term (infectious panel) forall the test that he orderedOn myself for my specific complaintAt that time. From: Texas_Thyroid_Groups [mailto:Texas_Thyroid_Groups ] On Behalf Of pkmorphew@...Sent: Tuesday, August 28, 2012 3:28 PMTo: Texas_Thyroid_Groups Subject: Re: labs are in " Yes, he did check for co infections, he ran a very expensive InfectiousPanel from Quest. " or B. could you say the name of the Panel of tests to check for these co infections?THXPAMELA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2012 Report Share Posted August 29, 2012 , where do you get the "Alive Vit C Organic Fruit Blend" and the "Himalaya Stress Care for Energy and Adrenal Support" ?? Are they available online besides Amazon? Thanks, I need some C, and would like to try Adrenal support, have adrenal insufficiency.Need super clean: No yeast, sugar, dairy (lactose and casein), soy, MSG, gluten!! Candida leaky gut, rashes, migraines, Fibro, HypoT.Thanks, Vicki KThe best Vitamin C is Alive Vit C Organic Fruit Blend…a whole food source. I love this stuff…doesn’t taste so good.I think I mentioned I am on Himalaya Stress Care for Energy and Adrenal Support --- You can read about in on Amazon.It is amazing. No wheat, no corn, no soy, no yeast, and dairy. From: Texas_Thyroid_Groups [mailto:Texas_Thyroid_Groups ] On Behalf Of Sent: Monday, August 27, 2012 2:50 PMTo: Texas_Thyroid_Groups Subject: Re: labs are in What is "very low end Lyme disease"? What is it acute (i.e., you treated within 30-60 days) or was it chronic? Doxy doesn't do much for chronic lyme and most of the time the docs don't Rx the right amount to get high enough blood levels to hit any of the lyme? Lyme never leaves your body. It changes forms and settles in your tissue and even cartilage. Often, to recover at all, you need a variety of abx to hit the various forms and most often dual antibiotics. For example, Doxy just keeps the lyme from reproducing and doesn't kill it. So, unless you are on it (with a high dosage to keep a high level in your blood), for 4-6 weeks, it doesn't go away. Did you get any testing done for heavy metals? Heavy metals tend to make it impossible to get rid of any sort of infection. Unfortunately, I think the doc is uninformed when it comes to low dose cortisol treatment for adrenal fatigue - that will not damage your organs. High doses long term can be problematic. There are alternatives to low dose cortisol, as well. Vitamin B5 and vitamin C are essential to adrenal function. http://www.healthy.net/scr/article.aspx?id=2127 (vitamin B5 and your adrenals)http://www.adrenalfatiguerecovery.com/vitamin-c.html I find the emergen-c packets to be a great form of vitamin c and they have synergistic amounts of b vitamins.You have to do what works for you. Just make sure to read the tiny print packet insert for any drugs you take since those list all the potential side effects. Insomnia is one of the side effects of Lexapro, so it's quite interesting that the doc would think it would help with sleep. I find that in order to get quality sleep I need a nightime routine - no overhead lights after dinner. No computer after 9pm. An entirely dark room (room darkening shades), an air purifier for white noise. I also turn down the AC at nite as I do not sleep well at all if it's too warm (above 72). I also cannot watch anything intense on TV before bed. It's just too stimulating. Also, I avoid caffeine after 2pm or so. Another thing to consider with regards to anxiety is EMF. I am very, very sensitive to EMF and I do not use Wifi in my house. I do not have any electric devices on by my bed. I keep my phone away from me as much as possible.The one that doc does seem right about is that you do need quality sleep to heal. Ideally going to bed by 10pm. Your body replenishes hormones between 10pm and roughly 1am. So, you'll be running on empty if you go to bed late - I feel like trash if I don't go to bed early enough no matter how late I sleep. Good luck. B Ok, I think that is a good idea and I will do it.Looks like I am going to have to go on Lexapro for awhile for the anxiety…I do take estrogen 4/4 trochetsYes, I was treated for very low end Lyme disease—couldn’t tolerate Doxycycline so we did Omnicef…and we treated Fungal issues.Yes, I have viral issues and went through Dr. S IV therapy for the and Valcyte and Valtrex….didn’t change my levels at all.I also lost 50 lbs last year, truly, without the help of thyroid, I just quit eating so much food and suffered! It definitely helped my prayer life by being receptive and “empty”… I am very confident with this psychiatrist, he knows I go to Spurlock, and he supports that,But he says “we have to get your anxiety relieved so you can sleep and heal” He tells me that cortisol canEat your organs up, and its better to take meds for anxiety all your life than to let that happen…He believes you have to stop anxiety in the early am, before the fight or flight system kicks in,Or else its futile…He is a very good and compassionate man. Thank you , From: Texas_Thyroid_Groups [mailto:Texas_Thyroid_Groups ] On Behalf Of Sent: Monday, August 27, 2012 2:09 PMTo: Texas_Thyroid_Groups Subject: Re: labs are in Per the long reply I just posted to your other email, you should be tested for celiac disease/gluten intolerance. The blood tests are not always accurate. You can get tested on your own at enterolab.com. The reason many doctors don't test for this is because the treatment doesn't require a doctor to Rx anything and treating this means a lot less doctor visits in the future. Also, most doctors are quite ignorant about this and unless they've graduated with the past 5-7 years, they were taught this was a rare disease. B. , my thyroid peroxidase antibodies were 73, but Dr. S wasn’t concerned about it.Any opinion? From: Texas_Thyroid_Groups [mailto:Texas_Thyroid_Groups ] On Behalf Of Sent: Monday, August 27, 2012 1:13 PMTo: Texas_Thyroid_Groups Subject: Re: labs are in Did they test your thyroid antibodies and did they do a sonogram of your thyroid? That is the only way to rule out autoimmune thyroid disease, which is the most common form of hypothyroidism (Hashimoto's). B. sorry , i forgot to say that i don't have autoimmune disease. but i never got tested for that or gluten. i will talk to the Dr about it. Thanks To: Texas_Thyroid_Groups Sent: Mon, August 27, 2012 12:34:39 PMSubject: Re: labs are in Your Free T4 is still in the lower end of the range. Many of us need our Free T4 to be at least midpoint to feel well. Since you are getting your thyroid compounded, you might ask the doctor to increase the amount of T4 as your T3 is near the upper end of the range already (although some folks do okay with it above range).You don't have ranges for the estradiol (or progesterone), but that number does not look high to me. It may be noted as high if you are post-menopausal, but the idea of the replacement hormone is to get you back to pre-menopausal levels. What are you doing diet wise? Many of us need to be gluten-free as there is a high incidence of celiac disease/gluten intolerance among folks with autoimmune thyroid disease. I also avoid nightshades (tomatoes, peppers, potatos and eggplant) and that has helped tremendously with reducing the stiffness and achiness. Yoga can also provide some relief. B. Hi, peeps here are the results of my lab work not sure what to think. i think it looks good but, for the estrogen is to high i think, but will let the Dr know what i think. Cortisol -am 11.5 (6.2-19.4) testoterone,serum 27 (8-48) tsh 0.01 red flaged ( 0.450-4.500)progesterone 18.9 esttradiol 33.4 dhea-sulfate red flagged 258.6 ( 35.4-256.0) triiodothyronine,free,serum 4.1 (2.0-4.4) t4,free (Direct) 1.18 ( 0.82-1.77) % free testosterone 1.81 (0.50-2.80 ) %testosterone,free 0.49 ( 0.10-0.85) I did not take my med before the lab work and when i do take my med it's 140 mg of compounded thyroid with acidophiles and then i take my dhea 7 keto 25 mg at noon then about 2 or 3 i take my multi and mineral vitamin and extra b12 then about 9:oo pm i take my bhrt progesterone and estrogen. i have stiff fingers and toes and today when i have my neck down to long it gets stiff . the hair seems to be better not oily but soft. i just made a Dr appointment for next week on Wednesday. so i guess it is up to the Dr now . Thanks Jan, i hope you are doing better. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2012 Report Share Posted August 29, 2012 Vicki K, I bought the Alive Vit C Organic Fruit Blend at WholefoodsUpon the recommendation of a person there that I trustHis knowledge…The Himalaya Stress Care I bought at Natural Grocers (upon the recommendation of a highly specialized massage person I go to)But they carry it on Amazon (where you can read peoples reviews if you do a search on the product)And Wholefoods carries it. I hope you find both products as worthy as I have… From: Texas_Thyroid_Groups [mailto:Texas_Thyroid_Groups ] On Behalf Of Vicki L. King K5VLKSent: Tuesday, August 28, 2012 5:53 PMTo: Texas_Thyroid_Groups Subject: Re: labs are in , where do you get the " Alive Vit C Organic Fruit Blend " and the " Himalaya Stress Care for Energy and Adrenal Support " ?? Are they available online besides Amazon? Thanks, I need some C, and would like to try Adrenal support, have adrenal insufficiency. Need super clean: No yeast, sugar, dairy (lactose and casein), soy, MSG, gluten!! Candida leaky gut, rashes, migraines, Fibro, HypoT. Thanks, Vicki K The best Vitamin C is Alive Vit C Organic Fruit Blend…a whole food source. I love this stuff…doesn’t taste so good. I think I mentioned I am on Himalaya Stress Care for Energy and Adrenal Support --- You can read about in on Amazon. It is amazing. No wheat, no corn, no soy, no yeast, and dairy. From: Texas_Thyroid_Groups [mailto:Texas_Thyroid_Groups ] On Behalf Of Sent: Monday, August 27, 2012 2:50 PMTo: Texas_Thyroid_Groups Subject: Re: labs are in What is " very low end Lyme disease " ? What is it acute (i.e., you treated within 30-60 days) or was it chronic? Doxy doesn't do much for chronic lyme and most of the time the docs don't Rx the right amount to get high enough blood levels to hit any of the lyme? Lyme never leaves your body. It changes forms and settles in your tissue and even cartilage. Often, to recover at all, you need a variety of abx to hit the various forms and most often dual antibiotics. For example, Doxy just keeps the lyme from reproducing and doesn't kill it. So, unless you are on it (with a high dosage to keep a high level in your blood), for 4-6 weeks, it doesn't go away. Did you get any testing done for heavy metals? Heavy metals tend to make it impossible to get rid of any sort of infection. Unfortunately, I think the doc is uninformed when it comes to low dose cortisol treatment for adrenal fatigue - that will not damage your organs. High doses long term can be problematic. There are alternatives to low dose cortisol, as well. Vitamin B5 and vitamin C are essential to adrenal function. http://www.healthy.net/scr/article.aspx?id=2127 (vitamin B5 and your adrenals)http://www.adrenalfatiguerecovery.com/vitamin-c.html I find the emergen-c packets to be a great form of vitamin c and they have synergistic amounts of b vitamins.You have to do what works for you. Just make sure to read the tiny print packet insert for any drugs you take since those list all the potential side effects. Insomnia is one of the side effects of Lexapro, so it's quite interesting that the doc would think it would help with sleep. I find that in order to get quality sleep I need a nightime routine - no overhead lights after dinner. No computer after 9pm. An entirely dark room (room darkening shades), an air purifier for white noise. I also turn down the AC at nite as I do not sleep well at all if it's too warm (above 72). I also cannot watch anything intense on TV before bed. It's just too stimulating. Also, I avoid caffeine after 2pm or so. Another thing to consider with regards to anxiety is EMF. I am very, very sensitive to EMF and I do not use Wifi in my house. I do not have any electric devices on by my bed. I keep my phone away from me as much as possible.The one that doc does seem right about is that you do need quality sleep to heal. Ideally going to bed by 10pm. Your body replenishes hormones between 10pm and roughly 1am. So, you'll be running on empty if you go to bed late - I feel like trash if I don't go to bed early enough no matter how late I sleep. Good luck. B Ok, I think that is a good idea and I will do it.Looks like I am going to have to go on Lexapro for awhile for the anxiety…I do take estrogen 4/4 trochetsYes, I was treated for very low end Lyme disease—couldn’t tolerate Doxycycline so we did Omnicef…and we treated Fungal issues.Yes, I have viral issues and went through Dr. S IV therapy for the and Valcyte and Valtrex….didn’t change my levels at all.I also lost 50 lbs last year, truly, without the help of thyroid, I just quit eating so much food and suffered! It definitely helped my prayer life by being receptive and “empty”… I am very confident with this psychiatrist, he knows I go to Spurlock, and he supports that,But he says “we have to get your anxiety relieved so you can sleep and heal” He tells me that cortisol canEat your organs up, and its better to take meds for anxiety all your life than to let that happen…He believes you have to stop anxiety in the early am, before the fight or flight system kicks in,Or else its futile…He is a very good and compassionate man. Thank you , From: Texas_Thyroid_Groups [mailto:Texas_Thyroid_Groups ] On Behalf Of Sent: Monday, August 27, 2012 2:09 PMTo: Texas_Thyroid_Groups Subject: Re: labs are in Per the long reply I just posted to your other email, you should be tested for celiac disease/gluten intolerance. The blood tests are not always accurate. You can get tested on your own at enterolab.com. The reason many doctors don't test for this is because the treatment doesn't require a doctor to Rx anything and treating this means a lot less doctor visits in the future. Also, most doctors are quite ignorant about this and unless they've graduated with the past 5-7 years, they were taught this was a rare disease. B. , my thyroid peroxidase antibodies were 73, but Dr. S wasn’t concerned about it.Any opinion? From: Texas_Thyroid_Groups [mailto:Texas_Thyroid_Groups ] On Behalf Of Sent: Monday, August 27, 2012 1:13 PMTo: Texas_Thyroid_Groups Subject: Re: labs are in Did they test your thyroid antibodies and did they do a sonogram of your thyroid? That is the only way to rule out autoimmune thyroid disease, which is the most common form of hypothyroidism (Hashimoto's). B. sorry , i forgot to say that i don't have autoimmune disease. but i never got tested for that or gluten. i will talk to the Dr about it. Thanks To: Texas_Thyroid_Groups Sent: Mon, August 27, 2012 12:34:39 PMSubject: Re: labs are in Your Free T4 is still in the lower end of the range. Many of us need our Free T4 to be at least midpoint to feel well. Since you are getting your thyroid compounded, you might ask the doctor to increase the amount of T4 as your T3 is near the upper end of the range already (although some folks do okay with it above range).You don't have ranges for the estradiol (or progesterone), but that number does not look high to me. It may be noted as high if you are post-menopausal, but the idea of the replacement hormone is to get you back to pre-menopausal levels. What are you doing diet wise? Many of us need to be gluten-free as there is a high incidence of celiac disease/gluten intolerance among folks with autoimmune thyroid disease. I also avoid nightshades (tomatoes, peppers, potatos and eggplant) and that has helped tremendously with reducing the stiffness and achiness. Yoga can also provide some relief. B. Hi, peeps here are the results of my lab work not sure what to think. i think it looks good but, for the estrogen is to high i think, but will let the Dr know what i think. Cortisol -am 11.5 (6.2-19.4) testoterone,serum 27 (8-48) tsh 0.01 red flaged ( 0.450-4.500)progesterone 18.9 esttradiol 33.4 dhea-sulfate red flagged 258.6 ( 35.4-256.0) triiodothyronine,free,serum 4.1 (2.0-4.4) t4,free (Direct) 1.18 ( 0.82-1.77) % free testosterone 1.81 (0.50-2.80 ) %testosterone,free 0.49 ( 0.10-0.85) I did not take my med before the lab work and when i do take my med it's 140 mg of compounded thyroid with acidophiles and then i take my dhea 7 keto 25 mg at noon then about 2 or 3 i take my multi and mineral vitamin and extra b12 then about 9:oo pm i take my bhrt progesterone and estrogen. i have stiff fingers and toes and today when i have my neck down to long it gets stiff . the hair seems to be better not oily but soft. i just made a Dr appointment for next week on Wednesday. so i guess it is up to the Dr now . Thanks Jan, i hope you are doing better. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2012 Report Share Posted August 29, 2012 Thanks , I'll have to look at Amazon, we don't have Whole Foods in this burg. Vicki KVicki K,I bought the Alive Vit C Organic Fruit Blend at Wholefoods.The Himalaya Stress Care I bought at Natural Grocers (upon the recommendation of a highly specialized massage person I go to)But they carry it on Amazon (where you can read peoples reviews if you do a search on the product)And Wholefoods carries it.I hope you find both products as worthy as I have… From: Texas_Thyroid_Groups [mailto:Texas_Thyroid_Groups ] On Behalf Of Vicki L. King K5VLKSent: Tuesday, August 28, 2012 5:53 PMTo: Texas_Thyroid_Groups Subject: Re: labs are in , where do you get the "Alive Vit C Organic Fruit Blend" and the "Himalaya Stress Care for Energy and Adrenal Support" ?? Are they available online besides Amazon? Thanks, I need some C, and would like to try Adrenal support, have adrenal insufficiency. Need super clean: No yeast, sugar, dairy (lactose and casein), soy, MSG, gluten!! Candida leaky gut, rashes, migraines, Fibro, HypoT. Thanks, Vicki K The best Vitamin C is Alive Vit C Organic Fruit Blend…a whole food source. I love this stuff…doesn’t taste so good. I think I mentioned I am on Himalaya Stress Care for Energy and Adrenal Support --- You can read about in on Amazon. It is amazing. No wheat, no corn, no soy, no yeast, and dairy. From: Texas_Thyroid_Groups [mailto:Texas_Thyroid_Groups ] On Behalf Of Sent: Monday, August 27, 2012 2:50 PMTo: Texas_Thyroid_Groups Subject: Re: labs are in What is "very low end Lyme disease"? What is it acute (i.e., you treated within 30-60 days) or was it chronic? Doxy doesn't do much for chronic lyme and most of the time the docs don't Rx the right amount to get high enough blood levels to hit any of the lyme? Lyme never leaves your body. It changes forms and settles in your tissue and even cartilage. Often, to recover at all, you need a variety of abx to hit the various forms and most often dual antibiotics. For example, Doxy just keeps the lyme from reproducing and doesn't kill it. So, unless you are on it (with a high dosage to keep a high level in your blood), for 4-6 weeks, it doesn't go away. Did you get any testing done for heavy metals? Heavy metals tend to make it impossible to get rid of any sort of infection. Unfortunately, I think the doc is uninformed when it comes to low dose cortisol treatment for adrenal fatigue - that will not damage your organs. High doses long term can be problematic. There are alternatives to low dose cortisol, as well. Vitamin B5 and vitamin C are essential to adrenal function. http://www.healthy.net/scr/article.aspx?id=2127 (vitamin B5 and your adrenals)http://www.adrenalfatiguerecovery.com/vitamin-c.html I find the emergen-c packets to be a great form of vitamin c and they have synergistic amounts of b vitamins.You have to do what works for you. Just make sure to read the tiny print packet insert for any drugs you take since those list all the potential side effects. Insomnia is one of the side effects of Lexapro, so it's quite interesting that the doc would think it would help with sleep. I find that in order to get quality sleep I need a nightime routine - no overhead lights after dinner. No computer after 9pm. An entirely dark room (room darkening shades), an air purifier for white noise. I also turn down the AC at nite as I do not sleep well at all if it's too warm (above 72). I also cannot watch anything intense on TV before bed. It's just too stimulating. Also, I avoid caffeine after 2pm or so. Another thing to consider with regards to anxiety is EMF. I am very, very sensitive to EMF and I do not use Wifi in my house. I do not have any electric devices on by my bed. I keep my phone away from me as much as possible.The one that doc does seem right about is that you do need quality sleep to heal. Ideally going to bed by 10pm. Your body replenishes hormones between 10pm and roughly 1am. So, you'll be running on empty if you go to bed late - I feel like trash if I don't go to bed early enough no matter how late I sleep. Good luck. B Ok, I think that is a good idea and I will do it.Looks like I am going to have to go on Lexapro for awhile for the anxiety…I do take estrogen 4/4 trochetsYes, I was treated for very low end Lyme disease—couldn’t tolerate Doxycycline so we did Omnicef…and we treated Fungal issues.Yes, I have viral issues and went through Dr. S IV therapy for the and Valcyte and Valtrex….didn’t change my levels at all.I also lost 50 lbs last year, truly, without the help of thyroid, I just quit eating so much food and suffered! It definitely helped my prayer life by being receptive and “empty”… I am very confident with this psychiatrist, he knows I go to Spurlock, and he supports that,But he says “we have to get your anxiety relieved so you can sleep and heal” He tells me that cortisol canEat your organs up, and its better to take meds for anxiety all your life than to let that happen…He believes you have to stop anxiety in the early am, before the fight or flight system kicks in,Or else its futile…He is a very good and compassionate man. Thank you , From: Texas_Thyroid_Groups [mailto:Texas_Thyroid_Groups ] On Behalf Of Sent: Monday, August 27, 2012 2:09 PMTo: Texas_Thyroid_Groups Subject: Re: labs are in Per the long reply I just posted to your other email, you should be tested for celiac disease/gluten intolerance. The blood tests are not always accurate. You can get tested on your own at enterolab.com. The reason many doctors don't test for this is because the treatment doesn't require a doctor to Rx anything and treating this means a lot less doctor visits in the future. Also, most doctors are quite ignorant about this and unless they've graduated with the past 5-7 years, they were taught this was a rare disease. B. , my thyroid peroxidase antibodies were 73, but Dr. S wasn’t concerned about it.Any opinion? From: Texas_Thyroid_Groups [mailto:Texas_Thyroid_Groups ] On Behalf Of Sent: Monday, August 27, 2012 1:13 PMTo: Texas_Thyroid_Groups Subject: Re: labs are in Did they test your thyroid antibodies and did they do a sonogram of your thyroid? That is the only way to rule out autoimmune thyroid disease, which is the most common form of hypothyroidism (Hashimoto's). B. sorry , i forgot to say that i don't have autoimmune disease. but i never got tested for that or gluten. i will talk to the Dr about it. Thanks To: Texas_Thyroid_Groups Sent: Mon, August 27, 2012 12:34:39 PMSubject: Re: labs are in Your Free T4 is still in the lower end of the range. Many of us need our Free T4 to be at least midpoint to feel well. Since you are getting your thyroid compounded, you might ask the doctor to increase the amount of T4 as your T3 is near the upper end of the range already (although some folks do okay with it above range).You don't have ranges for the estradiol (or progesterone), but that number does not look high to me. It may be noted as high if you are post-menopausal, but the idea of the replacement hormone is to get you back to pre-menopausal levels. What are you doing diet wise? Many of us need to be gluten-free as there is a high incidence of celiac disease/gluten intolerance among folks with autoimmune thyroid disease. I also avoid nightshades (tomatoes, peppers, potatos and eggplant) and that has helped tremendously with reducing the stiffness and achiness. Yoga can also provide some relief. B. Hi, peeps here are the results of my lab work not sure what to think. i think it looks good but, for the estrogen is to high i think, but will let the Dr know what i think. Cortisol -am 11.5 (6.2-19.4) testoterone,serum 27 (8-48) tsh 0.01 red flaged ( 0.450-4.500)progesterone 18.9 esttradiol 33.4 dhea-sulfate red flagged 258.6 ( 35.4-256.0) triiodothyronine,free,serum 4.1 (2.0-4.4) t4,free (Direct) 1.18 ( 0.82-1.77) % free testosterone 1.81 (0.50-2.80 ) %testosterone,free 0.49 ( 0.10-0.85) I did not take my med before the lab work and when i do take my med it's 140 mg of compounded thyroid with acidophiles and then i take my dhea 7 keto 25 mg at noon then about 2 or 3 i take my multi and mineral vitamin and extra b12 then about 9:oo pm i take my bhrt progesterone and estrogen. i have stiff fingers and toes and today when i have my neck down to long it gets stiff . the hair seems to be better not oily but soft. i just made a Dr appointment for next week on Wednesday. so i guess it is up to the Dr now . Thanks Jan, i hope you are doing better. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2012 Report Share Posted August 29, 2012 You might also want to look at the prices on iherb.com or swansonvitamins.com I buy all my supplements from those two as they are by far the least expensive. Swanson is usually cheaper (not always as you get an addt'l discount from iherb depending upon how much you buy). Also, Amazon is now required to collect sales tax on orders to Texas, so you have to include that in the price. . Thanks , I'll have to look at Amazon, we don't have Whole Foods in this burg. Vicki K Vicki K, I bought the Alive Vit C Organic Fruit Blend at Wholefoods. The Himalaya Stress Care I bought at Natural Grocers (upon the recommendation of a highly specialized massage person I go to) But they carry it on Amazon (where you can read peoples reviews if you do a search on the product) And Wholefoods carries it. I hope you find both products as worthy as I have… From: Texas_Thyroid_Groups [mailto:Texas_Thyroid_Groups ] On Behalf Of Vicki L. King K5VLK Sent: Tuesday, August 28, 2012 5:53 PMTo: Texas_Thyroid_Groups Subject: Re: labs are in , where do you get the " Alive Vit C Organic Fruit Blend " and the " Himalaya Stress Care for Energy and Adrenal Support " ?? Are they available online besides Amazon? Thanks, I need some C, and would like to try Adrenal support, have adrenal insufficiency. Need super clean: No yeast, sugar, dairy (lactose and casein), soy, MSG, gluten!! Candida leaky gut, rashes, migraines, Fibro, HypoT. Thanks, Vicki K The best Vitamin C is Alive Vit C Organic Fruit Blend…a whole food source. I love this stuff…doesn’t taste so good. I think I mentioned I am on Himalaya Stress Care for Energy and Adrenal Support --- You can read about in on Amazon. It is amazing. No wheat, no corn, no soy, no yeast, and dairy. From: Texas_Thyroid_Groups [mailto:Texas_Thyroid_Groups ] On Behalf Of Sent: Monday, August 27, 2012 2:50 PMTo: Texas_Thyroid_Groups Subject: Re: labs are in What is " very low end Lyme disease " ? What is it acute (i.e., you treated within 30-60 days) or was it chronic? Doxy doesn't do much for chronic lyme and most of the time the docs don't Rx the right amount to get high enough blood levels to hit any of the lyme? Lyme never leaves your body. It changes forms and settles in your tissue and even cartilage. Often, to recover at all, you need a variety of abx to hit the various forms and most often dual antibiotics. For example, Doxy just keeps the lyme from reproducing and doesn't kill it. So, unless you are on it (with a high dosage to keep a high level in your blood), for 4-6 weeks, it doesn't go away. Did you get any testing done for heavy metals? Heavy metals tend to make it impossible to get rid of any sort of infection. Unfortunately, I think the doc is uninformed when it comes to low dose cortisol treatment for adrenal fatigue - that will not damage your organs. High doses long term can be problematic. There are alternatives to low dose cortisol, as well. Vitamin B5 and vitamin C are essential to adrenal function. http://www.healthy.net/scr/article.aspx?id=2127 (vitamin B5 and your adrenals)http://www.adrenalfatiguerecovery.com/vitamin-c.html I find the emergen-c packets to be a great form of vitamin c and they have synergistic amounts of b vitamins.You have to do what works for you. Just make sure to read the tiny print packet insert for any drugs you take since those list all the potential side effects. Insomnia is one of the side effects of Lexapro, so it's quite interesting that the doc would think it would help with sleep. I find that in order to get quality sleep I need a nightime routine - no overhead lights after dinner. No computer after 9pm. An entirely dark room (room darkening shades), an air purifier for white noise. I also turn down the AC at nite as I do not sleep well at all if it's too warm (above 72). I also cannot watch anything intense on TV before bed. It's just too stimulating. Also, I avoid caffeine after 2pm or so. Another thing to consider with regards to anxiety is EMF. I am very, very sensitive to EMF and I do not use Wifi in my house. I do not have any electric devices on by my bed. I keep my phone away from me as much as possible. The one that doc does seem right about is that you do need quality sleep to heal. Ideally going to bed by 10pm. Your body replenishes hormones between 10pm and roughly 1am. So, you'll be running on empty if you go to bed late - I feel like trash if I don't go to bed early enough no matter how late I sleep. Good luck. B Ok, I think that is a good idea and I will do it. Looks like I am going to have to go on Lexapro for awhile for the anxiety… I do take estrogen 4/4 trochets Yes, I was treated for very low end Lyme disease—couldn’t tolerate Doxycycline so we did Omnicef…and we treated Fungal issues. Yes, I have viral issues and went through Dr. S IV therapy for the and Valcyte and Valtrex….didn’t change my levels at all. I also lost 50 lbs last year, truly, without the help of thyroid, I just quit eating so much food and suffered! It definitely helped my prayer life by being receptive and “empty”… I am very confident with this psychiatrist, he knows I go to Spurlock, and he supports that, But he says “we have to get your anxiety relieved so you can sleep and heal” He tells me that cortisol can Eat your organs up, and its better to take meds for anxiety all your life than to let that happen… He believes you have to stop anxiety in the early am, before the fight or flight system kicks in, Or else its futile… He is a very good and compassionate man. Thank you , From: Texas_Thyroid_Groups [mailto:Texas_Thyroid_Groups ] On Behalf Of Sent: Monday, August 27, 2012 2:09 PMTo: Texas_Thyroid_Groups Subject: Re: labs are in Per the long reply I just posted to your other email, you should be tested for celiac disease/gluten intolerance. The blood tests are not always accurate. You can get tested on your own at enterolab.com. The reason many doctors don't test for this is because the treatment doesn't require a doctor to Rx anything and treating this means a lot less doctor visits in the future. Also, most doctors are quite ignorant about this and unless they've graduated with the past 5-7 years, they were taught this was a rare disease. B. , my thyroid peroxidase antibodies were 73, but Dr. S wasn’t concerned about it. Any opinion? From: Texas_Thyroid_Groups [mailto:Texas_Thyroid_Groups ] On Behalf Of Sent: Monday, August 27, 2012 1:13 PMTo: Texas_Thyroid_Groups Subject: Re: labs are in Did they test your thyroid antibodies and did they do a sonogram of your thyroid? That is the only way to rule out autoimmune thyroid disease, which is the most common form of hypothyroidism (Hashimoto's). B. sorry , i forgot to say that i don't have autoimmune disease. but i never got tested for that or gluten. i will talk to the Dr about it. Thanks From: To: Texas_Thyroid_Groups Sent: Mon, August 27, 2012 12:34:39 PMSubject: Re: labs are in Your Free T4 is still in the lower end of the range. Many of us need our Free T4 to be at least midpoint to feel well. Since you are getting your thyroid compounded, you might ask the doctor to increase the amount of T4 as your T3 is near the upper end of the range already (although some folks do okay with it above range). You don't have ranges for the estradiol (or progesterone), but that number does not look high to me. It may be noted as high if you are post-menopausal, but the idea of the replacement hormone is to get you back to pre-menopausal levels. What are you doing diet wise? Many of us need to be gluten-free as there is a high incidence of celiac disease/gluten intolerance among folks with autoimmune thyroid disease. I also avoid nightshades (tomatoes, peppers, potatos and eggplant) and that has helped tremendously with reducing the stiffness and achiness. Yoga can also provide some relief. B. Hi, peeps here are the results of my lab work not sure what to think. i think it looks good but, for the estrogen is to high i think, but will let the Dr know what i think. Cortisol -am 11.5 (6.2-19.4) testoterone,serum 27 (8-48) tsh 0.01 red flaged ( 0.450-4.500)progesterone 18.9 esttradiol 33.4 dhea-sulfate red flagged 258.6 ( 35.4-256.0) triiodothyronine,free,serum 4.1 (2.0-4.4) t4,free (Direct) 1.18 ( 0.82-1.77) % free testosterone 1.81 (0.50-2.80 ) % testosterone,free 0.49 ( 0.10-0.85) I did not take my med before the lab work and when i do take my med it's 140 mg of compounded thyroid with acidophiles and then i take my dhea 7 keto 25 mg at noon then about 2 or 3 i take my multi and mineral vitamin and extra b12 then about 9:oo pm i take my bhrt progesterone and estrogen. i have stiff fingers and toes and today when i have my neck down to long it gets stiff . the hair seems to be better not oily but soft. i just made a Dr appointment for next week on Wednesday. so i guess it is up to the Dr now . Thanks Jan, i hope you are doing better. Quote Link to comment Share on other sites More sharing options...
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