Guest guest Posted March 24, 2005 Report Share Posted March 24, 2005 Dear I have RSD since childhood but when my left foot was crushed in a car crash the pain soon was also appearing in my right foot about five years later I had the classic symptom of the sensation of a line cut from my elbows down and my skin being peeled away. I envy you that you can still work. I am writing not just because we RSD suffers are under represented but tell you what worked for me. BTW lucky you live in Atlanta, beautiful city, I was in farm country where one doctor thought I was just looking for drugs, and my trusted family doctor was skeptical about the disease itself. Anyway... If you are seeing a doctor or neurologist or any merit you should be on a med labled for epilepsy. The one I was given is Topomax. It is the second most expensive drug in my arsenal and for the first 2 year I did not see the point, it takes a little getting used to, in fact it is a euphoric(we can all use a little of that). The effect of Topomax has been to make me feel that I am no longer under the control of the disease. For me it drove a lot of the terror out of the what was going on in my mind due to the disease. BTW I have 4 boys, I am 51, what a journey. Al R. > > > My name is . I am a 41 year old male who lives and > works near Atlanta. I have a wife and 3 daughters. I have left many > groups for various reasons. I hope this is the last group that I > join. > > I have RSD in my right foot and it might have spread to my right > leg. On Monday of this week I had a trial Spinal Cord Stimulator put > in. It was mercifully removed yesterday (it was killing my back). I > will not post very often but will always read the message board. > Thanks for having me. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2005 Report Share Posted March 24, 2005 Dear Al, Thanks for the advice. Is Topomax similiar to Nuerontin(?) I quit taking it when the off-label backlash hit. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2005 Report Share Posted March 24, 2005 Hello Chris Welcome to the group. I am sorry the spinal stimulator didn't work for you but it sounds like it was certainly worth trying. Kaylene >My name is . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2005 Report Share Posted March 30, 2005 Hi Jan Welcome to the group. Yeah, I think we ALL have experienced, something like what you describe. The cycle of pain, depression, being broke...I think is almost typical for us. I hope you find the comfort in this group as I have. Blessed Be, Lori Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2005 Report Share Posted March 30, 2005 Hi Chris Welcome to the group. This is really a wonderful bunch of caring, knowledgeable, people, I hope we can help you as this group has helped me. Looking forward to your future posts, Lori Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2005 Report Share Posted March 30, 2005 I am sorry you had to be in pain to find us, but welcome! My daughter is 15 so we do have somthing in common. I also, do not work now due to pain, it is hard at first but you can make a wonderful life being a stay at home mom! Do you have anything, not that back pain is not enough!, but do you have anything else wrong? Perhaps you have alread posted everything, I also have addidsons so there are days I am in a brain fog! It does make a great excuse! Gwen in Kansas wrote: Hi , Im new to this group..... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2005 Report Share Posted March 30, 2005 Jan, I'm so sorry for all your losses. I don't know why anyone in this world has to suffer and go through as much as you have been through. The statement below about being accused of being a drug seeker, everyone saying its " in your head " and being a guinea pig for all the drugs out there, is something that I think most(if not all) chronic pain patience have gone through. I know I have. I hope that if you decide to go with the pain pump that it helps you function and that Medicare does pay. I also wanted to tell you to that I have people all around me everyday and I still feel isolated and alone most of the time. The depression of being in pain all the time makes me feel like no one understands me anymore. I hope that you can find some hope for the future. Take care and welcome to the group, Caitlin Jan Townsend wrote:I have been accused of being a drug seeker and junkie and told that it was all mental. I was going to a psychiatrist because everyone had me thinking I was psycho and given horrible drugs which have done much damage to me including a weight gain of 70 pounds, which if anything, has been the cause of more pain and mental depression.... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2005 Report Share Posted March 30, 2005 Moderator's note: Please delete the previous message prior to sending your post in. Also, please delete all of the Yahoo information at the bottom of your posts. Thank you for your continued support helping all the moderator's. Hi I'm glad you found the group but so sorry you are in pain. I hope that you get the support you need and it helps you as much as it has me. What kind of back problems do you have? Do you take any meds for it? Its hard to find anyone that understands chronic pain unless they have been there themselves. How can you explain the misery, depression and pain that overtakes your life? Its a tough one. Welcome to the group. Caitlin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 31, 2005 Report Share Posted March 31, 2005 Non-relevant material has been deleted by moderators! Hey Well we have a few things in common it seems. My back problems don't compare to yours, but I too have lower back bulging disc (along with two in the T region)which make it so its hard to sleep on my back and if I stand or walk to long I get that sciatica pain that starts at the buttocks and runs down the leg. I take Hydrocodone and Zanaflex as well, along with Celexa for the depression. I am thinking of starting Neurotin or Cymbalta for nerve pain associated with cysys in my shoulders and nerve damage from a non-union fracture in my leg I had for 3 1/2 years. Do you find that the Neurontin makes a big difference in your pain levels? What I am taking now does not give me enough relief but I'm still trying to keep going, which is getting harder and harder. I know you can relate. I think you said you have a 13 yr. old daughter. I have a 4 yr. old and feel guilty alot that I can't do all the things with her I would like to do. My husband is supportive but does not (and cannot) understand all that pain takes away from me and hinders everything in my life. He does try to understand but until you go through it, one has no idea. I've never had a diskogram but have been told I may need one in the future. So yes, any info on that would be good. Nice to meet you and hope your having an okay day. Caitlin --- wrote: > > Hi Caitlin > > I crushed the L3 disk in my lower back in 1991. I > was arresting a drunk driver and got into a fight > with him and had to through him to the ground. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 15, 2011 Report Share Posted October 15, 2011 hi debbie how is the adren-al working for you? To: Texas_Thyroid_Groups Sent: Sunday, September 11, 2011 10:26 AMSubject: Re: new memberDHEA is an important precursor to sex hormones as well as other hormones needed by the body. If you are low in sex hormones, it seems logical that you may also be low in DHEA and should be tested.I discovered I was very low in estrogen and progesterone due to menopause...then because I took a 4x thru the day saliva test I discovered I had high cortisol and very low dhea. Unless you test and know for a fact that you are not dhea deficient, then a discussion about its need is more philisophical than medical.Thru my doctor, I am using prenenolone* and dhea (Ortho Molecular 5mb $14/100 @ Amazon)under the tongue 3x a day along with some adrenelen and blood sugar stabalizing support. The fog is gone, my energy level is normalizing. I am also on bio-identical estrogen and progesterone.*Prenenolone is a precursor to cortisol, DHEA, and progesterone. Debbie in Dallas> >> >> >> >> >> >> Jan tells me I am to introduce myself.> >> >> >>> >> >> >> I am 60, from Houston, been in menopause for ten> >> >> >> years and was> >> >> >> diagnosed hypothyroid in 1997. After a long time on> >> >> >> Synthroid and> >> >> >> Prempro, I am trying Armour and compounded hormones> >> >> >> in an attempt to> >> >> >> feel better.> >> >> >>> >> >> >> I have already found that my cholesterol (which was> >> >> >> 327 when I started> >> >> >> on Mevacor in 1987) has finally greatly improved on> >> >> >> Armour. For the> >> >> >> first time this last lab, it was well below 200,> >> >> >> even though I cut my> >> >> >> dose of Lipitor (which I've been on for nine years)> >> >> >> from 80 to 40 mg.> >> >> >>> >> >> >> My energy is better, but I still have hot flashes,> >> >> >> which were pretty> >> >> >> well controlled with Prempro.> >> >> >>> >> >> >> I am looking for any info, suggestions and support> >> >> >> that can help me.> >> >> >>> >> >> >> Marti __________________________________________________> >> > Quote Link to comment Share on other sites More sharing options...
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