Re: First time posting

[Guest guest]

Hi , I was dx with ipf Ju;y 05. This group will help you all we can. If you need to vent, please feel free, it helps.Just remember you and your family are not alone with this you can always call on us. May God keep you and your family . ipf 7/05 wrote: Hello everyone, My Mother-In-Law, Doris was dx with IPF in Sept 05. She turned 70 in Jan. 06. She moved in with me & my husband Steve in May 05. I quit my job as a secretary/records clerk at an elementary school in Oct 05 so I could take care of Doris full time. I joined this support group in April 06 and have been looking

over all the old and new post for a month now and all I can say is WOW... I have learned a lot from all of you wonderful people. You have helped me to better understand IPF, and the ups and downs of daily living with it, the ins and outs of meds and drs. and most of all the love and hope and faith it takes to endure. Love and Prayers,

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[Guest guest]

Hi , My name is . I am 50 and was diagnosed with IPF 3/06. This group is wonderful and I know you will feel like you have just found long lost family members. Besides wonderful information there is an endless amount of support. God Bless You and your family- wrote: Hello everyone, My Mother-In-Law, Doris was dx with IPF in Sept 05. She turned 70 in Jan. 06. She moved in with me & my husband Steve in May 05. I quit my job as a secretary/records clerk at an elementary school in Oct 05 so I could take care of Doris full time. I joined this support group in April

06 and have been looking over all the old and new post for a month now and all I can say is WOW... I have learned a lot from all of you wonderful people. You have helped me to better understand IPF, and the ups and downs of daily living with it, the ins and outs of meds and drs. and most of all the love and hope and faith it takes to endure. Love and Prayers,

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[Guest guest]

Hi , I'm Peggy 63, Dx 9/04 with ipf . Welcome to our group. You'll find wonderful people here. When I check my posts I almost panic if I don't hear from one of the " FAMILY " . So if there is any venting you need to do--GO--We're here for you. What an Angel you are to take care of your Mother-in-Love. God makes everyone an Angel of their very own. Is Doris on O2 yet? We will be praying for you all. Peggy 9/04 ipf

on 5/27/06 1:16 AM, at cacklecathy@... wrote:

Hello everyone,

My Mother-In-Law, Doris was dx with IPF in Sept 05. She turned 70 in Jan. 06.

She moved in with me & my husband Steve in May 05. I quit my job as a secretary/records clerk at an elementary school in Oct 05 so I could take care of Doris full time.

I joined this support group in April 06 and have been looking over all the old and new post for a month now and all I can say is WOW... I have learned a lot from all of you wonderful people. You have helped me to better understand IPF, and the ups and downs of daily living with it, the ins and outs of meds and drs. and most of all the love and hope and faith it takes to endure.

Love and Prayers,

[Guest guest]

Hi Carol, Haven't said Hi for a while. How are things going? Have you been able to get the brother-in-love out of the house yet? Tell him it will give him such a wonderful lift in his spirit. God Bless You... Peggy

on 5/27/06 3:59 AM, Carol Santi at carolsanti@... wrote:

,

My name is Carol and I have a brother-in-law with IPF. I also agree that this group is wonderful. I have learned so much from them. I read the posts faithfully and have a special folder I transfer information that I feel I may need later. I relay a lot of information to him and also print out quite a bit for him to read. He has a computer, but I can't get him to use it!!!!! I would love for him to realize that there is still life outside, even if you are on O2 24/7. I feel that I am getting to know some of the people here and they actually make me smile and " breathe " .

My thoughts are with you. You are watching your family and I am watching mine. Sometimes it is hard.

Carol

wrote:

Hello everyone,

My Mother-In-Law, Doris was dx with IPF in Sept 05. She turned 70 in Jan. 06.

She moved in with me & my husband Steve in May 05. I quit my job as a secretary/records clerk at an elementary school in Oct 05 so I could take care of Doris full time.

I joined this support group in April 06 and have been looking over all the old and new post for a month now and all I can say is WOW... I have learned a lot from all of you wonderful people. You have helped me to better understand IPF, and the ups and downs of daily living with it, the ins and outs of meds and drs. and most of all the love and hope and faith it takes to endure.

Love and Prayers,

[Guest guest]

To All Caregivers Have we told you lately that we love you. As I ranted and raved this morning about this monster, I looked in to my dear husbands eyes. The pain I saw was overwhelming. Please realize we don't want This. We don't want to leave the ones that have made our lives complete. Whether you be husband,wife, child or in-law, you ae loved. We find with this disease, we must be selfish. No one knows why, What, or how to help us. I know I feel like a small child not knowing what the future is. But without your stregenth love and support I know I could not make another day with the pain. Our pain is emotional, mental as well as physical. We seem to be laying it all on you. Please remember YOU ARE LOVED. Without you in our lives life would not be worth living. May God grant each and everyone of us the stregenth and grace to carry on. ipf 7/05.Peggy

wrote: Hi Carol, Haven't said Hi for a while. How are things going? Have you been able to get the brother-in-love out of the house yet? Tell him it will give him such a wonderful lift in his spirit. God Bless You... Peggyon 5/27/06 3:59 AM, Carol Santi at carolsanti@... wrote: , My name is Carol and I have a brother-in-law with IPF. I also agree that this group is wonderful. I have learned so much from them. I read the posts faithfully and have a special folder I transfer information that I feel I may need later. I relay a lot of information to him and also print out quite a bit for him to read. He has a computer, but I can't get him to use it!!!!! I would love for

him to realize that there is still life outside, even if you are on O2 24/7. I feel that I am getting to know some of the people here and they actually make me smile and "breathe". My thoughts are with you. You are watching your family and I am watching mine. Sometimes it is hard. Carol wrote: Hello everyone, My Mother-In-Law, Doris was dx with IPF in Sept 05. She turned 70 in Jan. 06. She moved in with me

& my husband Steve in May 05. I quit my job as a secretary/records clerk at an elementary school in Oct 05 so I could take care of Doris full time. I joined this support group in April 06 and have been looking over all the old and new post for a month now and all I can say is WOW... I have learned a lot from all of you wonderful people. You have helped me to better understand IPF, and the ups and downs of daily living with it, the ins and outs of meds and drs. and most of all the love and hope and faith it takes to endure. Love and Prayers,

[Guest guest]

Hi ...I've been reading all the posts this morning. What a special person you are to care for your mom-in-law. It's nice to think all women will but unfortunately some don't/won't.

I'm new to the board myself but find the same things you mention. Hugs. Sher ipf 5-06

First time posting

Hello everyone,

My Mother-In-Law, Doris was dx with IPF in Sept 05. She turned 70 in Jan. 06.

She moved in with me & my husband Steve in May 05. I quit my job as a secretary/records clerk at an elementary school in Oct 05 so I could take care of Doris full time.

I joined this support group in April 06 and have been looking over all the old and new post for a month now and all I can say is WOW... I have learned a lot from all of you wonderful people. You have helped me to better understand IPF, and the ups and downs of daily living with it, the ins and outs of meds and drs. and most of all the love and hope and faith it takes to endure.

Love and Prayers,

[Guest guest]

...how beautiful your words are. I didn't realize my husband, Rich, is so concerned! This morning, taking a shower I dropped a bar of soap. I've done it before but this time he came running...."Are you ok"... He has been my caregiver for some time due to other chronic conditions I deal with. He now has something else the same as I. Hugs. Sher ipf 5-06

Re: First time posting

To All Caregivers

Have we told you lately that we love you. As I ranted and raved this morning about this monster, I looked in to my dear husbands eyes. The pain I saw was overwhelming. Please realize we don't want This. We don't want to leave the ones that have made our lives complete. Whether you be husband,wife, child or in-law, you ae loved. We find with this disease, we must be selfish. No one knows why, What, or how to help us. I know I feel like a small child not knowing what the future is. But without your stregenth love and support I know I could not make another day with the pain. Our pain is emotional, mental as well as physical. We seem to be laying it all on you. Please remember YOU ARE LOVED. Without you in our lives life would not be worth living. May God grant each and everyone of us the stregenth and grace to carry on.

ipf 7/05.Peggy wrote:

Hi Carol, Haven't said Hi for a while. How are things going? Have you been able to get the brother-in-love out of the house yet? Tell him it will give him such a wonderful lift in his spirit. God Bless You... Peggyon 5/27/06 3:59 AM, Carol Santi at carolsanti@... wrote:

, My name is Carol and I have a brother-in-law with IPF. I also agree that this group is wonderful. I have learned so much from them. I read the posts faithfully and have a special folder I transfer information that I feel I may need later. I relay a lot of information to him and also print out quite a bit for him to read. He has a computer, but I can't get him to use it!!!!! I would love for him to realize that there is still life outside, even if you are on O2 24/7. I feel that I am getting to know some of the people here and they actually make me smile and "breathe". My thoughts are with you. You are watching your family and I am watching mine. Sometimes it is hard. Carol wrote:

Hello everyone, My Mother-In-Law, Doris was dx with IPF in Sept 05. She turned 70 in Jan. 06. She moved in with me & my husband Steve in May 05. I quit my job as a secretary/records clerk at an elementary school in Oct 05 so I could take care of Doris full time. I joined this support group in April 06 and have been looking over all the old and new post for a month now and all I can say is WOW... I have learned a lot from all of you wonderful people. You have helped me to better understand IPF, and the ups and downs of daily living with it, the ins and outs of meds and drs. and most of all the love and hope and faith it takes to endure. Love and Prayers,

[Guest guest]

,

This is exactly what I mean when I say that only 'we' get it. Your words could have come from my mouth. I see that same look on my husband's face. I feel the same guilt that I am so needy. I even feel guilty that I am sick. We had so many plans for 'later'. I am grateful that he is here for me and I so much appreciate these people who are making such an effort to care for family with IPF/PF. They will never know how much it meant.

Joyce PF 1997> > > Hello everyone,> > My Mother-In-Law, Doris was dx with IPF in Sept 05. She turned 70 in Jan. 06.> > She moved in with me & my husband Steve in May 05. I quit my job as a secretary/records clerk at an elementary school in Oct 05 so I could take care of Doris full time.> > I joined this support group in April 06 and have been looking over all the old and new post for a month now and all I can say is WOW... I have learned a lot from all of you wonderful people. You have helped me to better understand IPF, and the ups and downs of daily living with it, the ins and outs of meds and drs. and most of all the love and hope and faith it takes to endure.> > Love and Prayers,> > > > > > > >

[Guest guest]

Thank you all for such a warm welcome.

I am the one who feels so blessed. God has shown me all my life that HE will not put more on me than what I can handle.

To answer some of the questions concerning Doris ... At this time she only has about 30% lung capacity. Prednisone just about killed her. She had all but 3 of the side effects from it. The latest one, bleeding from her rectum, had her in the hospital for 3 days. Her muscles were so weak she wasn't able to stand and then she was blacking out at the least little bit of activity. She is down to 5mg a day and will take her last dose of it on Tues. She is already feeling much better. Imuran caused her to be so sick she was in the bed after only 2 days of being on it.

Prednisone is a great drug for some...it has saved my fathers life more than once.

I printed out some of the info on NAC and showed it to her Drs. so that is what she is on now. She starts respiratory therapy in 2 wks.

Since her return home from the hospital a nurse comes here 3 days a wk to get her vitals and to bathe her. A physical therapist will start working with her next wk (in our home). This service will only last about a month. We are praying that by then she will regain some of her muscle tone and strength and be able to resume doing somethings for herself.

Please keep her in your prayer as we will continue to pray for each of you.

Love and Prayers,

In Breathe-Support , "janne5303" wrote:>> > Hi ,> > Welcome! How blessed you mother in law is to have you. Was she> diagnosed in an advanced stage? How is she doing? Tell her that we all> are in the same boat....we understand her sufferings and grief..let her> know that she is not alone.> > Thanks you for being so caring and supportive!> > Hugs,> > Joyce PF 1997> > >> >> > Hello everyone,> >> > My Mother-In-Law, Doris was dx with IPF in Sept 05. She turned 70 in> > Jan. 06.> >> > She moved in with me & my husband Steve in May 05. I quit my job as a> > secretary/records clerk at an elementary school in Oct 05 so I could> > take care of Doris full time.> >> > I joined this support group in April 06 and have been looking over all> > the old and new post for a month now and all I can say is WOW... I> have> > learned a lot from all of you wonderful people. You have helped me to> > better understand IPF, and the ups and downs of daily living with it,> > the ins and outs of meds and drs. and most of all the love and hope> and> > faith it takes to endure.> >> > Love and Prayers,> >> > > >>

[Guest guest]

, Some of us are having a little stomach distress with the NAC.. not bad just give it to her with food.

I'm on 600 mg 3 times per day. How many leaders of o2 is she on??

I put back a picture of me on prednisone. It's really ugly but so is this Disease. How long has she been on it.

ok gal, I'm going to try the ol sleep trick once again.. Good Night God Bless you and keep his hand on Doris..

Where are you from?? I don't remember..Peggy resenting ipf since 9/04

Peggy 09/04 ipf

Thank you all for such a warm welcome.

I am the one who feels so blessed. God has shown me all my life that HE will not put more on me than what I can handle.

To answer some of the questions concerning Doris ... At this time she only has about 30% lung capacity. Prednisone just about killed her. She had all but 3 of the side effects from it. The latest one, bleeding from her rectum, had her in the hospital for 3 days. Her muscles were so weak she wasn't able to stand and then she was blacking out at the least little bit of activity. She is down to 5mg a day and will take her last dose of it on Tues. She is already feeling much better. Imuran caused her to be so sick she was in the bed after only 2 days of being on it.

Prednisone is a great drug for some...it has saved my fathers life more than once.

I printed out some of the info on NAC and showed it to her Drs. so that is what she is on now. She starts respiratory therapy in 2 wks.

Since her return home from the hospital a nurse comes here 3 days a wk to get her vitals and to bathe her. A physical therapist will start working with her next wk (in our home). This service will only last about a month. We are praying that by then she will regain some of her muscle tone and strength and be able to resume doing somethings for herself.

Please keep her in your prayer as we will continue to pray for each of you.

Love and Prayers,

In Breathe-Support , " janne5303 " wrote:

>

>

> Hi ,

>

> Welcome! How blessed you mother in law is to have you. Was she

> diagnosed in an advanced stage? How is she doing? Tell her that we all

> are in the same boat....we understand her sufferings and grief..let her

> know that she is not alone.

>

> Thanks you for being so caring and supportive!

>

> Hugs,

>

> Joyce PF 1997

>

> >

> >

> > Hello everyone,

> >

> > My Mother-In-Law, Doris was dx with IPF in Sept 05. She turned 70 in

> > Jan. 06.

> >

> > She moved in with me & my husband Steve in May 05. I quit my job as a

> > secretary/records clerk at an elementary school in Oct 05 so I could

> > take care of Doris full

[Guest guest]

Peggy,

Doris started on o2 - 24/7 - 2L in Sept. She is now up to 3L.

Drs. started her on prednisone in Oct. 10mg a day increased it to 30mg in April now she is down to 5mg. She will take her last dose of it Tuesday.

NAC was started Monday. She only takes 2-600mg pills a day will add another 600mg tomorrow. She has had stomach problems for yrs. but NAC has not made them worse.

We live in Albany, GA.

Love and prayers,

> > >> > >> > > Hello everyone,> > >> > > My Mother-In-Law, Doris was dx with IPF in Sept 05. She turned 70 in> > > Jan. 06.> > >> > > She moved in with me & my husband Steve in May 05. I quit my job as a> > > secretary/records clerk at an elementary school in Oct 05 so I could> > > take care of Doris full> >

[Guest guest]

Hi , I was started on 2L in June 05 I think. but up to 3 when moving around. Now I don't need it just sitting but raise to what ever level I need it all depends on what I'm doing. My Dr. told me to increase it until I felt comfortable with what ever I was doing. This was my transplant Dr. I have an oximeter and check it often. Right now it's 98 with pulse of 78.. I haven't had it on for two hours now.. All I can tell you and everyone is that God has His plan and My O2 level is better. I give Him all the praise.

I was put on Preveacet ?? sp for quite a while for my stomach. now I take Zantac 150

" When God brings you to it, He'll bring you through it ! " God Bless you for being such a loving care-giver... Peggy resenting ipf since 9/04

Peggy 09/04 ipf

Peggy,

Doris started on o2 - 24/7 - 2L in Sept. She is now up to 3L.

Drs. started her on prednisone in Oct. 10mg a day increased it to 30mg in April now she is down to 5mg. She will take her last dose of it Tuesday.

NAC was started Monday. She only takes 2-600mg pills a day will add another 600mg tomorrow. She has had stomach problems for yrs. but NAC has not made them worse.

We live in Albany, GA.

Love and prayers,

>

> , Some of us are having a little stomach distress with the NAC.. not

> bad just give it to her with food.

> I'm on 600 mg 3 times per day. How many leaders of o2 is she on??

>

> I put back a picture of me on prednisone. It's really ugly but so is this

> Disease. How long has she been on it.

> ok gal, I'm going to try the ol sleep trick once again.. Good Night God

> Bless you and keep his hand on Doris..

> Where are you from?? I don't remember..Peggy resenting ipf since 9/04

>

>

>

> Peggy 09/04 ipf

>

>

> Thank you all for such a warm welcome.

>

> I am the one who feels so blessed. God has shown me all my life that HE

> will not put more on me than what I can handle.

>

> To answer some of the questions concerning Doris ... At this time she only

>