Re: Alanna, meds & chronic pain

[Guest guest]

Hi Deta,

Aww, yes that sounds familiar  I'd alternate ice & heat, back to back and that

seemed to help the most. What kind of pain issues do you have? Mine mostly stem

from my spine (back & neck) but I also have fibromyalgia and get nasty

migraine/complex regional headaches (those make you pray for death!).

Hope you have a nice low pain day!

 

Hugs,

 

 

> > >

> > > From: Alanna Wilgus <awilgus@... <awilgus%40wi. rr> <awilgus%40wi.

> rr>. com <awilgus%40wi.

>

> > rr.com>>

> > > Subject: Re: Alanna, meds & chronic pain

> > > To: Hugs-N-Pain@ yahoogroups. com <Hugs-N-Pain% 40yahoogroups. com>

> > > Date: Sunday, March 15, 2009, 7:13 PM

> > >

> > > ,

> > > I'm sorry it's taken me so long to write back. When the pain gets

> really

> > > bad I get so depressed, I just sleep and watch TV. Of course, that just

> > > makes me feel worse.

> > > When I was on Oxycontin for awhile, my doc increased it to 3 times a

> day

> > as

> > > well. I'm not sure if the drug companies market this stuff as lasting

> > > longer than it does, or if it's some metabolic variation. When I

> switched

> > > from Oxycontin to Avinza (similar to MS Contin, but 24 hour instead od

> > 12) I

> > > had no issues with withdrawl. Even the Fentanyl patches I use every 2

> > days

> > > instead of the manufacurer recommended 3 days.

> > > Oops, I may have accidentally sent this without finishing it. My

> fingers

> > > don't work like they used to. I have trouble using my laptop some days,

> > and

> > > use my Blackberry instead.

> > > Sound like we have similar conditions except I don't have DDD, but I do

> > > have neuoppathic pain in my hands & feet. Welcome to the group & I'll

> try

> > > to write between pity parties!

> > > Alanna

> > > Sent from my Verizon Wireless BlackBerry

> > >

> > > Re: Alanna, meds & chronic pain

> > >

> > >

> > >

> > >

> > >

> > >

[Guest guest]

Good Morning ,

Mine started out as deg. disc disease. After my 2nd surgery, spinal fusion,

the 11 hr. surgery basically turned my body against itself. Most of my pain

is from the waist down and mainly my right side. From my migraines to my

big toe on the right side. I am unable to take anti-inflammatories as they

cause

me to swell like a hot air balloon. My body feels like a match is lit in and

on

my body 24/7. I do get some relief from the injections and some is better

than none. I;ve been up since 3:45 this morning as I was hurting so bad I

could not get comfy in the bed. My recliner is now my best friend. hehe

Hope you have a wonderful Sunday and that your pain behaves today as well.

Deta

On Sun, Mar 22, 2009 at 5:47 AM, Barber wrote:

> Hi Deta,

> Aww, yes that sounds familiar I'd alternate ice & heat, back to back and

> that seemed to help the most. What kind of pain issues do you have? Mine

> mostly stem from my spine (back & neck) but I also have fibromyalgia and get

> nasty migraine/complex regional headaches (those make you pray for death!).

> Hope you have a nice low pain day!

>

> Hugs,

>

>

>

>

>

>

> > > >

> > > > From: Alanna Wilgus <awilgus@... <awilgus%40wi.rr> <awilgus%40wi.

> rr> <awilgus%40wi.

>

> > rr>. com <awilgus%40wi.

> >

> > > rr.com>>

> > > > Subject: Re: Alanna, meds & chronic pain

> > > > To: Hugs-N-Pain@ yahoogroups. com <Hugs-N-Pain% 40yahoogroups. com>

> > > > Date: Sunday, March 15, 2009, 7:13 PM

> > > >

> > > > ,

> > > > I'm sorry it's taken me so long to write back. When the pain gets

> > really

> > > > bad I get so depressed, I just sleep and watch TV. Of course, that

> just

> > > > makes me feel worse.

> > > > When I was on Oxycontin for awhile, my doc increased it to 3 times a

> > day

> > > as

> > > > well. I'm not sure if the drug companies market this stuff as lasting

> > > > longer than it does, or if it's some metabolic variation. When I

> > switched

> > > > from Oxycontin to Avinza (similar to MS Contin, but 24 hour instead

> od

> > > 12) I

> > > > had no issues with withdrawl. Even the Fentanyl patches I use every 2

> > > days

> > > > instead of the manufacurer recommended 3 days.

> > > > Oops, I may have accidentally sent this without finishing it. My

> > fingers

> > > > don't work like they used to. I have trouble using my laptop some

> days,

> > > and

> > > > use my Blackberry instead.

> > > > Sound like we have similar conditions except I don't have DDD, but I

> do

> > > > have neuoppathic pain in my hands & feet. Welcome to the group & I'll

> > try

> > > > to write between pity parties!

> > > > Alanna

> > > > Sent from my Verizon Wireless BlackBerry

> > > >

> > > > Re: Alanna, meds & chronic pain

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

[Guest guest]

hi alanna my name is donnie i am a painer i hate it when i have done taken my

pain meds for the day and still hert like hell i have been lucky my rsd in my

leg you can tell by looking at my leg i have a bad problem with my leg i have

been lucky to have a good pain doc i go see hem every 2 or 3 months he dose not

make me do eny more sergerys or perseadgers he mails me my script every month i

have been with my pain doc going on 3 years now he filled out the papers for my

disibility stateing that i could only work part time i got my disibility the

frist time i seen the judge got my 2 years back pay now i guese i have it made

all i do most of the time is watch tv this summer i am going to do a lot of

fishing if my pain lets me donnieKY

>

>

>

> Subject: Re: Hello, Remember me???

> To: Hugs-N-Pain

> Date: Tuesday, March 10, 2009, 10:38 AM

>

>

>

>

>

>

> Hi, my name is Alanna and I'm kind of new to the group.

> I am a pharmacist, although I haven't been able to work

> for over 2 years. Even though I tell the doctor that I'm

> a pharmacist, when I talk about medications in a

> knowledgable way, they look at me like I'm a druggie. I

> am on 240mg of morphine, fentanyl 75mcg patches and 60 mg of

> oxycodone a day and I am still in constant pain - unbearable

> about %50 of the time. I can't imagine doctors

> recommending toradol to someone in as much pain as you are.

> What's really sad is the fact that most drug seeking

> patients are actually in real pain and are undertreated.

> Their drug seeking behavior goes away when the pain is

> controlled.

> The saddest part is that most doctors are still practicing

> medicine as they learned in in medical school - sometimes 30

> years ago!

> Have you been to a pain specialist? They are at least

> partially up to date on current pain management practices.

> I hope you get some relief and I'm here if you need to

> talk and if anyone in the group has questions about

> medicines, I'm can probably help.

> Alanna

>

>

>

>

>

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>

>

[Guest guest]

,

I was in AGONY after all of my injections, none of which helped in the least. I

wonder if injecting all that junk into the CNS could actually make the pain

worse when all is over and done. I really onder if most of these docs know what

their doing - besides getting rich of course. Sorry, I don't mean to sound so

angry - it's the pain talkin' I guess.

Take care,

Alanna

Sent from my Verizon Wireless BlackBerry

Re: Alanna, meds & chronic pain

> >

> >

> >

> >

> >

> >

[Guest guest]

hi alanna and jenny the doc,s like doing all the injections to make there pocets

full of money i have had so menny injections some of the injections did help me

some but not much i dont want to try nomore injections or sergerys i have tryed

everthing i could try to make my pain better when you hert so bad like i did you

would try enything to make the pain better i am takeing oxyconten 80,s 1 in the

morning as soon as i wake up and 1 in the evening and my pain is not bad what i

hate about them you have to take them wether you hert or not or you go into

withdraws i hert 24/7 so i have to take 2 aday what about a person that dose not

hert all the time do thay take em eny way to keep from going into withdraws i

have been takeing pain meds for 8 years every day so i have to take them i hert

sobad when i amnot takeing them i cant walk and that sucks i have somuch nerv

damege if i let my leg get cold it herts so bad the pain meds dont work i have

to stay inside

and i hate it i got caben fever this wenter haveing to stay inside somuch it

pisses me off my wife thanks i am a drug addic and wont have nothing to do with

me i feel like i am all alone donnieKY

> >

> > From: Alanna Wilgus <awilgus@... <awilgus%40wi. rr>. com <awilgus%40wi.

> rr.com>>

> > Subject: Re: Alanna, meds & chronic pain

> > To: Hugs-N-Pain@ yahoogroups. com <Hugs-N-Pain% 40yahoogroups. com>

> > Date: Sunday, March 15, 2009, 7:13 PM

> >

> > ,

> > I'm sorry it's taken me so long to write back. When the pain gets really

> > bad I get so depressed, I just sleep and watch TV. Of course, that just

> > makes me feel worse.

> > When I was on Oxycontin for awhile, my doc increased it to 3 times a day

> as

> > well. I'm not sure if the drug companies market this stuff as lasting

> > longer than it does, or if it's some metabolic variation. When I switched

> > from Oxycontin to Avinza (similar to MS Contin, but 24 hour instead od

> 12) I

> > had no issues with withdrawl. Even the Fentanyl patches I use every 2

> days

> > instead of the manufacurer recommended 3 days.

> > Oops, I may have accidentally sent this without finishing it. My fingers

> > don't work like they used to. I have trouble using my laptop some days,

> and

> > use my Blackberry instead.

> > Sound like we have similar conditions except I don't have DDD, but I do

> > have neuoppathic pain in my hands & feet. Welcome to the group & I'll try

> > to write between pity parties!

> > Alanna

> > Sent from my Verizon Wireless BlackBerry

> >

> > Re: Alanna, meds & chronic pain

> >

> >

> >

> >

> >

> >

[Guest guest]

hi alanna and jenny the doc,s like doing all the injections to make there pocets

full of money i have had so menny injections some of the injections did help me

some but not much i dont want to try nomore injections or sergerys i have tryed

everthing i could try to make my pain better when you hert so bad like i did you

would try enything to make the pain better i am takeing oxyconten 80,s 1 in the

morning as soon as i wake up and 1 in the evening and my pain is not bad what i

hate about them you have to take them wether you hert or not or you go into

withdraws i hert 24/7 so i have to take 2 aday what about a person that dose not

hert all the time do thay take em eny way to keep from going into withdraws i

have been takeing pain meds for 8 years every day so i have to take them i hert

sobad when i amnot takeing them i cant walk and that sucks i have somuch nerv

damege if i let my leg get cold it herts so bad the pain meds dont work i have

to stay inside

and i hate it i got caben fever this wenter haveing to stay inside somuch it

pisses me off my wife thanks i am a drug addic and wont have nothing to do with

me i feel like i am all alone donnieKY

> >

> > From: Alanna Wilgus <awilgus@... <awilgus%40wi. rr>. com <awilgus%40wi.

> rr.com>>

> > Subject: Re: Alanna, meds & chronic pain

> > To: Hugs-N-Pain@ yahoogroups. com <Hugs-N-Pain% 40yahoogroups. com>

> > Date: Sunday, March 15, 2009, 7:13 PM

> >

> > ,

> > I'm sorry it's taken me so long to write back. When the pain gets really

> > bad I get so depressed, I just sleep and watch TV. Of course, that just

> > makes me feel worse.

> > When I was on Oxycontin for awhile, my doc increased it to 3 times a day

> as

> > well. I'm not sure if the drug companies market this stuff as lasting

> > longer than it does, or if it's some metabolic variation. When I switched

> > from Oxycontin to Avinza (similar to MS Contin, but 24 hour instead od

> 12) I

> > had no issues with withdrawl. Even the Fentanyl patches I use every 2

> days

> > instead of the manufacurer recommended 3 days.

> > Oops, I may have accidentally sent this without finishing it. My fingers

> > don't work like they used to. I have trouble using my laptop some days,

> and

> > use my Blackberry instead.

> > Sound like we have similar conditions except I don't have DDD, but I do

> > have neuoppathic pain in my hands & feet. Welcome to the group & I'll try

> > to write between pity parties!

> > Alanna

> > Sent from my Verizon Wireless BlackBerry

> >

> > Re: Alanna, meds & chronic pain

> >

> >

> >

> >

> >

> >

[Guest guest]

What is CRPS?

_printer-friendly version_

(http://www.rsds.org/2/what_is_rsd_crps/index_pfv.html)

Complex Regional Pain Syndrome (CRPS), also known as Reflex Sympathetic

Dystrophy, is a chronic neurological syndrome characterized by:

* severe burning pain

* pathological changes in bone and skin

* excessive sweating

* tissue swelling

* extreme sensitivity to touch

[For a complete description of CRPS symptoms, please read the _Diagnosis

section_ (http://www.rsds.org/3/clinical_guidelines/index.html#diagnosis) of

the Clinical Practice Guidelines section of this website.]

There are Two Types of CRPS - Type I and Type II

* CRPS Type I (also referred to as RSD) - cases in which the nerve

injury cannot be immediately identified

* CRPS Type II (also referred to as Causalgia) - cases in which a

distinct " major " nerve injury has occurred

* CRPS is best described in terms of an injury to a nerve or soft

tissue (e.g. broken bone) that does not follow the normal healing path

* CRPS development does not appear to depend on the magnitude of the

injury. The sympathetic nervous system seems to assume an abnormal function

after an injury.

* Since there is no single laboratory test to diagnose CRPS, the

physician must assess and document both subjective complaints (medical history)

and, if present, objective findings (physical examination).

Criteria for Diagnosing

Complex Regional Pain Syndrome Type I (RSD)

* The presence of an initiating noxious event, or a cause of

immobilization

* Continuing pain, allodynia, or hyperalgesia with which the pain is

disproportionate to any inciting event

* Evidence at some time of edema, changes in skin blood flow (skin

color changes, skin temperature changes more than 1.1°C difference from the

homologous body part), or abnormal sudomotor activity in the region of the pain

* This diagnosis is excluded by the existence of conditions that would

otherwise account for the degree of pain and dysfunction

Complex Regional Pain Syndrome Type II (Causalgia)

* The presence of continuing pain, allodynia, or hyperalgesia after a

nerve injury, not necessarily limited to the distribution of the injured

nerve

* Evidence at some time of edema, changes in skin blood flow (skin

color changes, skin temperature changes more than 1.1°C difference from the

homologous body part), or abnormal sudomotor activity in the region of pain

* This diagnosis is excluded by the existence of conditions that would

otherwise account for the degree of pain and dysfunction.

In a message dated 3/25/2009 6:25:57 P.M. Eastern Daylight Time,

awilgus@... writes:

RSD

**************Great Deals on Dell 15 " Laptops - Starting at $479

(http://pr.atwola.com/promoclk/100126575x1220635228x1201407499/aol?redir=http:%2\

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[Guest guest]

Donnie,

I have to go see my pain doctor every month which I hate because I have to sit

in this uncomfortable chair for 2 to 3 hours. Then she finally come in and

wants to know why I look so unhappy! Duh!

At least she's done trying all those crazy procedure and injections.

I donakt mean to sound stupid, but what does " RSD " stand for?

I have my hearing in @ 10 days. I've been waiting for over 2 years. I have to

pay back my work disability company, so I might not have anything left. I will

really look forward to getting this disability company off of my back. Every 6

months they " review " my case and try to hold back my checks for months, even

though my doctor fills out all their silly forms. I swear my case manager is

pure evil. I'm sure there's some kind of " crazy " test they have to pass to work

at one of those places.

I hope your pain isn't too bad today.

Thanks for listening.

Alanna

Sent from my Verizon Wireless BlackBerry

Re: Hello, Remember me???

> To: Hugs-N-Pain

> Date: Tuesday, March 10, 2009, 10:38 AM

>

>

>

>

>

>

> Hi, my name is Alanna and I'm kind of new to the group.

> I am a pharmacist, although I haven't been able to work

> for over 2 years. Even though I tell the doctor that I'm

> a pharmacist, when I talk about medications in a

> knowledgable way, they look at me like I'm a druggie. I

> am on 240mg of morphine, fentanyl 75mcg patches and 60 mg of

> oxycodone a day and I am still in constant pain - unbearable

> about %50 of the time. I can't imagine doctors

> recommending toradol to someone in as much pain as you are.

> What's really sad is the fact that most drug seeking

> patients are actually in real pain and are undertreated.

> Their drug seeking behavior goes away when the pain is

> controlled.

> The saddest part is that most doctors are still practicing

> medicine as they learned in in medical school - sometimes 30

> years ago!

> Have you been to a pain specialist? They are at least

> partially up to date on current pain management practices.

> I hope you get some relief and I'm here if you need to

> talk and if anyone in the group has questions about

> medicines, I'm can probably help.

> Alanna

>

>

>

>

>

> Recent Activity

>

>

>  3

> New MembersVisit Your Group

>

>

>

> Yahoo! Groups

> Auto Enthusiast Zone

> Auto Enthusiast Zone

> Discover auto groups

>

> Get in Shape

> on Yahoo! Groups

> Find a buddy

> and lose weight.

>

> Health Groups

> for people over 40

> Join people who are

> staying in shape.

> .

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>       

>

>