Guest guest Posted May 2, 2006 Report Share Posted May 2, 2006 Maybe if someone could post the addresses of Oprah, Montel, The View, Dr. Phil. and all, more would be apt to send a messege regarding our disease. I know I would. kiss kiss, ~Ginger~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2006 Report Share Posted May 2, 2006 I sent emails to Jerry (who I was told had PF) but got no reply. Even a thank you for your email. I have also tried to contact Dr Tim on ABC News but again no reply. So you just give up. Thanks Dave Re: OverwhelmedI felt the same way for months after I was diagnosed. But just told my self(with the help of statements of my primary Dr. (not lung). That I was not goingto let this control my life at least what is left of it and while I'm notconfined to bed. I am doing what I want to do, be it a lot slower, but it isgetting done. I also have volunteered to work on committees who are trying toget our little island released from Portland Me and become it's own town. Boywhat a lot of mind and paper work that I can get buried in.What I still need to vent on is the lack of media interest in our little problemthat is killing almost as many as breast cancer. Yet look at the attention theyget. I guess I feel that I wish I had cancer and not this. See if you've won, play MSN Search and Win Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2006 Report Share Posted May 3, 2006 Hey, Everyone: Yes, we can email all the talk and news shows and try to get them to show some support for IPF or PF research. However, I assume each of us have a local newspaper that has a Dear Editors Column. If we all wrote "Dear Editor" and explained the disease and how it has affected our lives and the lives of our friends here on the internet, maybe that would at least start some local awareness as to the fact the disease even exists. I had my haircut yesterday and spent the time telling the fella cutting my hair about the disease and lack of research. No, it did not bore him, he was actually interested in hearing about it. Just a thought. Barb in KYDAVID ADAMS wrote: I sent emails to Jerry (who I was told had PF) but got no reply. Even a thank you for your email. I have also tried to contact Dr Tim on ABC News but again no reply. So you just give up. Thanks Dave Re: OverwhelmedI felt the same way for months after I was diagnosed. But just told my self(with the help of statements of my primary Dr. (not lung). That I was not goingto let this control my life at least what is left of it and while I'm notconfined to bed. I am doing what I want to do, be it a lot slower, but it isgetting done. I also have volunteered to work on committees who are trying toget our little island released from Portland Me and become it's own town. Boywhat a lot of mind and paper work that I can get buried in.What I still need to vent on is the lack of media interest in our little problemthat is killing almost as many as breast cancer. Yet look at the attention theyget. I guess I feel that I wish I had cancer and not this. See if you've won, play MSN Search and Win Yahoo! Messenger with Voice. Make PC-to-Phone Calls to the US (and 30+ countries) for 2¢/min or less. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2006 Report Share Posted May 3, 2006 Good idea Ginger. I will do a little research and get back with ya all. Barb in KYTongueDancer2U@... wrote: Maybe if someone could post the addresses of Oprah, Montel, The View, Dr. Phil. and all, more would be apt to send a messege regarding our disease. I know I would. kiss kiss, ~Ginger~ Get amazing travel prices for air and hotel in one click on Yahoo! FareChase Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2006 Report Share Posted May 6, 2006 I am an morbidly obese female that has Severe Lung Disease Drs. have a scasle of discription of patients according to their "size". I was considered "grotesquely obese" at one time. Boy did I take offense to that. I think I would have rather them tell me I was way too fat! lol There are other discriptions, I can't remember them right now....maybe because I never fit in that catagory...just the grotesquely and moved down to morbid. Wish there was a catagory for "pleasingly plump". kiss kiss, ~Ginger~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2006 Report Share Posted May 6, 2006 HI EVERYONE; QUESTION: WHY ARE YOU NOT INVOLVED WITH NATIONAL JEWISH HOSPITAL AND RESEARCH ??? i WAS TOLD THIS IS THE #1 LUNG AND RESEARCH ORG. IN THE WORLD. DO YOU KNOW SOMETHING i DON'T? LOISBarbara Soice wrote: Hey, Everyone: Yes, we can email all the talk and news shows and try to get them to show some support for IPF or PF research. However, I assume each of us have a local newspaper that has a Dear Editors Column. If we all wrote "Dear Editor" and explained the disease and how it has affected our lives and the lives of our friends here on the internet, maybe that would at least start some local awareness as to the fact the disease even exists. I had my haircut yesterday and spent the time telling the fella cutting my hair about the disease and lack of research. No, it did not bore him, he was actually interested in hearing about it. Just a thought. Barb in KYDAVID ADAMS wrote: I sent emails to Jerry (who I was told had PF) but got no reply. Even a thank you for your email. I have also tried to contact Dr Tim on ABC News but again no reply. So you just give up. Thanks Dave Re: OverwhelmedI felt the same way for months after I was diagnosed. But just told my self(with the help of statements of my primary Dr. (not lung). That I was not goingto let this control my life at least what is left of it and while I'm notconfined to bed. I am doing what I want to do, be it a lot slower, but it isgetting done. I also have volunteered to work on committees who are trying toget our little island released from Portland Me and become it's own town. Boywhat a lot of mind and paper work that I can get buried in.What I still need to vent on is the lack of media interest in our little problemthat is killing almost as many as breast cancer. Yet look at the attention theyget. I guess I feel that I wish I had cancer and not this. See if you've won, play MSN Search and Win Yahoo! Messenger with Voice. Make PC-to-Phone Calls to the US (and 30+ countries) for 2¢/min or less. How low will we go? Check out Yahoo! Messenger’s low PC-to-Phone call rates. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2006 Report Share Posted May 6, 2006 Hey, Lois: If your talking to me, here's what happened. When I saw my pulm dr. four months ago, he was suppose to got me in touch with the Jewish Hospital in Louisville, KY. I found out yesterday, while gathering medical records and such, that my pulm. dr. hasn't even started to do anything for me. Well, that jerk just wasted an additional four months of my life. Maybe the Lord led me to this dr. in Lexington. I kinda believe he did. I will know more after I see him. Wow, I tell ya, a person shouldn't look if they are afraid of what they might find. I looked through the written reports I had received from the hospital and the dr's, and to hear them tell it, I am an morbidly obese female that has Severe Lung Disease. On of the Dr.'s thought that the IPF was from some serious illness that I have that hasn't been found. I am not going to look at anymore Dr. reports. They are just too scarey. Lord, they make it sound Like I am on deaths door. Today is day two of my quitting smoking goal. The commit lozenges really help quite a bit. One day at a time. If I can hold on for a week, I probably won't have anymore problem quitting. At least I hope. You all have a great weekend. Barb in KYLois Joiner wrote: HI EVERYONE; QUESTION: WHY ARE YOU NOT INVOLVED WITH NATIONAL JEWISH HOSPITAL AND RESEARCH ??? i WAS TOLD THIS IS THE #1 LUNG AND RESEARCH ORG. IN THE WORLD. DO YOU KNOW SOMETHING i DON'T? LOISBarbara Soice wrote: Hey, Everyone: Yes, we can email all the talk and news shows and try to get them to show some support for IPF or PF research. However, I assume each of us have a local newspaper that has a Dear Editors Column. If we all wrote "Dear Editor" and explained the disease and how it has affected our lives and the lives of our friends here on the internet, maybe that would at least start some local awareness as to the fact the disease even exists. I had my haircut yesterday and spent the time telling the fella cutting my hair about the disease and lack of research. No, it did not bore him, he was actually interested in hearing about it. Just a thought. Barb in KYDAVID ADAMS wrote: I sent emails to Jerry (who I was told had PF) but got no reply. Even a thank you for your email. I have also tried to contact Dr Tim on ABC News but again no reply. So you just give up. Thanks Dave Re: OverwhelmedI felt the same way for months after I was diagnosed. But just told my self(with the help of statements of my primary Dr. (not lung). That I was not goingto let this control my life at least what is left of it and while I'm notconfined to bed. I am doing what I want to do, be it a lot slower, but it isgetting done. I also have volunteered to work on committees who are trying toget our little island released from Portland Me and become it's own town. Boywhat a lot of mind and paper work that I can get buried in.What I still need to vent on is the lack of media interest in our little problemthat is killing almost as many as breast cancer. Yet look at the attention theyget. I guess I feel that I wish I had cancer and not this. See if you've won, play MSN Search and Win Yahoo! Messenger with Voice. Make PC-to-Phone Calls to the US (and 30+ countries) for 2¢/min or less. How low will we go? Check out Yahoo! Messenger’s low PC-to-Phone call rates. __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2006 Report Share Posted May 6, 2006 Way to go Barb! I learned a long time ago Not to read medical reports I obfect to the term obese I'd rather be fluffy.Keep up with the commit log. Barbara Soice wrote: Hey, Lois: If your talking to me, here's what happened. When I saw my pulm dr. four months ago, he was suppose to got me in touch with the Jewish Hospital in Louisville, KY. I found out yesterday, while gathering medical records and such, that my pulm. dr. hasn't even started to do anything for me. Well, that jerk just wasted an additional four months of my life. Maybe the Lord led me to this dr. in Lexington. I kinda believe he did. I will know more after I see him. Wow, I tell ya, a person shouldn't look if they are afraid of what they might find. I looked through the written reports I had received from the hospital and the dr's, and to hear them tell it, I am an morbidly obese female that has Severe Lung Disease. On of the Dr.'s thought that the IPF was from some serious illness that I have that hasn't been found. I am not going to look at anymore Dr. reports. They are just too scarey. Lord, they make it sound Like I am on deaths door. Today is day two of my quitting smoking goal. The commit lozenges really help quite a bit. One day at a time. If I can hold on for a week, I probably won't have anymore problem quitting. At least I hope. You all have a great weekend. Barb in KYLois Joiner wrote: HI EVERYONE; QUESTION: WHY ARE YOU NOT INVOLVED WITH NATIONAL JEWISH HOSPITAL AND RESEARCH ??? i WAS TOLD THIS IS THE #1 LUNG AND RESEARCH ORG. IN THE WORLD. DO YOU KNOW SOMETHING i DON'T? LOISBarbara Soice wrote: Hey, Everyone: Yes, we can email all the talk and news shows and try to get them to show some support for IPF or PF research. However, I assume each of us have a local newspaper that has a Dear Editors Column. If we all wrote "Dear Editor" and explained the disease and how it has affected our lives and the lives of our friends here on the internet, maybe that would at least start some local awareness as to the fact the disease even exists. I had my haircut yesterday and spent the time telling the fella cutting my hair about the disease and lack of research. No, it did not bore him, he was actually interested in hearing about it. Just a thought. Barb in KYDAVID ADAMS wrote: I sent emails to Jerry (who I was told had PF) but got no reply. Even a thank you for your email. I have also tried to contact Dr Tim on ABC News but again no reply. So you just give up. Thanks Dave Re: OverwhelmedI felt the same way for months after I was diagnosed. But just told my self(with the help of statements of my primary Dr. (not lung). That I was not goingto let this control my life at least what is left of it and while I'm notconfined to bed. I am doing what I want to do, be it a lot slower, but it isgetting done. I also have volunteered to work on committees who are trying toget our little island released from Portland Me and become it's own town. Boywhat a lot of mind and paper work that I can get buried in.What I still need to vent on is the lack of media interest in our little problemthat is killing almost as many as breast cancer. Yet look at the attention theyget. I guess I feel that I wish I had cancer and not this. See if you've won, play MSN Search and Win Yahoo! Messenger with Voice. Make PC-to-Phone Calls to the US (and 30+ countries) for 2¢/min or less. How low will we go? Check out Yahoo! Messenger’s low PC-to-Phone call rates. __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2006 Report Share Posted May 6, 2006 Barb; I am glad you found a good doc and that youare happy with him. I have trouble with the medical field here in Las Cruces NM so I do head for Denver Colo to National Jewish. they like to do the fund raising for themselves so maybe we could get some Ideas from them on who, and how. that is all i thought of. but God can use all of this to help any of us... Lois.Barbara Soice wrote: Hey, Lois: If your talking to me, here's what happened. When I saw my pulm dr. four months ago, he was suppose to got me in touch with the Jewish Hospital in Louisville, KY. I found out yesterday, while gathering medical records and such, that my pulm. dr. hasn't even started to do anything for me. Well, that jerk just wasted an additional four months of my life. Maybe the Lord led me to this dr. in Lexington. I kinda believe he did. I will know more after I see him. Wow, I tell ya, a person shouldn't look if they are afraid of what they might find. I looked through the written reports I had received from the hospital and the dr's, and to hear them tell it, I am an morbidly obese female that has Severe Lung Disease. On of the Dr.'s thought that the IPF was from some serious illness that I have that hasn't been found. I am not going to look at anymore Dr. reports. They are just too scarey. Lord, they make it sound Like I am on deaths door. Today is day two of my quitting smoking goal. The commit lozenges really help quite a bit. One day at a time. If I can hold on for a week, I probably won't have anymore problem quitting. At least I hope. You all have a great weekend. Barb in KYLois Joiner wrote: HI EVERYONE; QUESTION: WHY ARE YOU NOT INVOLVED WITH NATIONAL JEWISH HOSPITAL AND RESEARCH ??? i WAS TOLD THIS IS THE #1 LUNG AND RESEARCH ORG. IN THE WORLD. DO YOU KNOW SOMETHING i DON'T? LOISBarbara Soice wrote: Hey, Everyone: Yes, we can email all the talk and news shows and try to get them to show some support for IPF or PF research. However, I assume each of us have a local newspaper that has a Dear Editors Column. If we all wrote "Dear Editor" and explained the disease and how it has affected our lives and the lives of our friends here on the internet, maybe that would at least start some local awareness as to the fact the disease even exists. I had my haircut yesterday and spent the time telling the fella cutting my hair about the disease and lack of research. No, it did not bore him, he was actually interested in hearing about it. Just a thought. Barb in KYDAVID ADAMS wrote: I sent emails to Jerry (who I was told had PF) but got no reply. Even a thank you for your email. I have also tried to contact Dr Tim on ABC News but again no reply. So you just give up. Thanks Dave Re: OverwhelmedI felt the same way for months after I was diagnosed. But just told my self(with the help of statements of my primary Dr. (not lung). That I was not goingto let this control my life at least what is left of it and while I'm notconfined to bed. I am doing what I want to do, be it a lot slower, but it isgetting done. I also have volunteered to work on committees who are trying toget our little island released from Portland Me and become it's own town. Boywhat a lot of mind and paper work that I can get buried in.What I still need to vent on is the lack of media interest in our little problemthat is killing almost as many as breast cancer. Yet look at the attention theyget. I guess I feel that I wish I had cancer and not this. See if you've won, play MSN Search and Win Yahoo! Messenger with Voice. Make PC-to-Phone Calls to the US (and 30+ countries) for 2¢/min or less. How low will we go? Check out Yahoo! Messenger’s low PC-to-Phone call rates. __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2006 Report Share Posted May 6, 2006 TongueDancer2U@... wrote: I am an morbidly obese female that has Severe Lung Disease Drs. have a scasle of discription of patients according to their "size". I was considered "grotesquely obese" at one time. Boy did I take offense to that. I think I would have rather them tell me I was way too fat! lol There are other discriptions, I can't remember them right now....maybe because I never fit in that catagory...just the grotesquely and moved down to morbid. Wish there was a catagory for "pleasingly plump". kiss kiss, ~Ginger~ New Yahoo! Messenger with Voice. Call regular phones from your PC and save big. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2006 Report Share Posted May 6, 2006 I am so proud of you for quitting smoking....it's the best thing you can do for yourself! Be strong....I'm rooting for you! You can do it!! Your will is strong, right? Don't let nicotine win....your lungs will be so happy!!! --Diane Quinlan dianequinlan@... Today is day two of my quitting smoking goal. The commit lozenges really help quite a bit. One day at a time. If I can hold on for a week, I probably won't have anymore problem quitting. At least I hope. You all have a great weekend. Barb in KY Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2006 Report Share Posted May 6, 2006 Barb, I don't know how these guys sleep at night. I went through some horrible medical care in the course of my illness. Wrong diagnosis, wrong meds, etc. You really do have to manage your own healthcare. I am praying that the doc in Lexington will help you. Have your act together and show him that you are interested in living! I would think he would be impressed with the fact that you have stopped smoking. Just give it all you got. You can do it. I am praying that you will prevail in your battle with tobacco. I know it must be sooooo difficult. My own mother smoked and could not stop. She was so ashamed of it that she would sneak away to smoke.....she died of emphysemia. God Bless, Joyce > I sent emails to Jerry (who I was told had PF) but got no reply. Even a thank you for your email.> I have also tried to contact Dr Tim on ABC News but again no reply. So you just give up.> Thanks> Dave> Re: Overwhelmed> > I felt the same way for months after I was diagnosed. But just told my self> (with the help of statements of my primary Dr. (not lung). That I was not going> to let this control my life at least what is left of it and while I'm not> confined to bed. I am doing what I want to do, be it a lot slower, but it is> getting done. I also have volunteered to work on committees who are trying to> get our little island released from Portland Me and become it's own town. Boy> what a lot of mind and paper work that I can get buried in.> > What I still need to vent on is the lack of media interest in our little problem> that is killing almost as many as breast cancer. Yet look at the attention they> get. I guess I feel that I wish I had cancer and not this.> > > > > > ---------------------------------> See if you've won, play MSN Search and Win > > > ---------------------------------> Yahoo! Messenger with Voice. Make PC-to-Phone Calls to the US (and 30+ countries) for 2¢/min or less. > > > ---------------------------------> How low will we go? Check out Yahoo! Messenger's low PC-to-Phone call rates. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2006 Report Share Posted May 7, 2006 .... that's me, at 246 and 5'10 " ! Fred ---- Original Message ---- From: TongueDancer2U@... To: Breathe-Support Subject: Re: Little Problem Date: Sat, 6 May 2006 20:20:48 EDT > >In a message dated 5/6/2006 6:43:08 PM Central Daylight Time, >babs594@... writes: > >I am an morbidly obese female that has Severe Lung Disease > > > Drs. have a scasle of discription of patients according to their > " size " . I >was considered " grotesquely obese " at one time. Boy did I take >offense to >that. I think I would have rather them tell me I was way too fat! >lol There are >other discriptions, I can't remember them right now....maybe because >I never >fit in that catagory...just the grotesquely and moved down to >morbid. Wish >there was a catagory for " pleasingly plump " . >kiss kiss, >~Ginger~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2006 Report Share Posted May 7, 2006 I lke pleasingly plump too. but I am just 20# overwt. and the Docs still want to call me fat. so what this lady will do 50 crunches for them anytime!!! maybe fat has something to do with it but its what you can do not what you can't!!!work at breathing cause it !!! lol .phredta11bl@... wrote: ... that's me, at 246 and 5'10"! Fred---- Original Message ----From: TongueDancer2U@...To: Breathe-Support Subject: Re: Little ProblemDate: Sat, 6 May 2006 20:20:48 EDT> >>>I am an morbidly obese female that has Severe Lung Disease>>> Drs. have a scasle of discription of patients according to their>"size". I >was considered "grotesquely obese" at one time. Boy did I take>offense to >that. I think I would have rather them tell me I was way too fat!>lol There are >other discriptions, I can't remember them right now....maybe because>I never >fit in that catagory...just the grotesquely and moved down to>morbid. Wish >there was a catagory for "pleasingly plump".>kiss kiss,>~Ginger~ Love cheap thrills? Enjoy PC-to-Phone calls to 30+ countries for just 2¢/min with Yahoo! Messenger with Voice. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2006 Report Share Posted May 7, 2006 Hi you fluffy people, I always told my grandkids that I was fluffy and fluffy grandmas were much better. I was 5'3" and 222 at the top of my prednisone weight. I began losing weight after I developed Bronchiectasis. I use up so much energy coughing and spitting that it must burn up calories. I am down to 157 now. Believe me it has not been worth it. I always thought the only way that I could lose weight was to be really sick....and it happened. It does not matter what I eat...I lose. It has happened a few pounds a month. It is nearly impossible to lose weight while on prednisone. It is also difficult when you can barely shuffle around. I did lose a little weight in rehab, but very little. Have you noticed how many food commercials are on t.v. plus all the cooking shows. I absolutly love to eat! Too bad it is so bad for us. Joyce >> ... that's me, at 246 and 5'10"!> > Fred> > ---- Original Message ----> To: Breathe-Support > Subject: Re: Little Problem> Date: Sat, 6 May 2006 20:20:48 EDT> > > > >> >> >I am an morbidly obese female that has Severe Lung Disease> >> >> > Drs. have a scasle of discription of patients according to their> >"size". I > >was considered "grotesquely obese" at one time. Boy did I take> >offense to > >that. I think I would have rather them tell me I was way too fat!> >lol There are > >other discriptions, I can't remember them right now....maybe because> >I never > >fit in that catagory...just the grotesquely and moved down to> >morbid. Wish > >there was a catagory for "pleasingly plump".> >kiss kiss,> >~Ginger~> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2006 Report Share Posted May 7, 2006 That's it, packing up and going to 's house...LOVE cake & ice cream!!!!! kiss kiss, ~Ginger~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2006 Report Share Posted May 7, 2006 Joyce, Please-Please give me any extra weight you don't want. Not on prednisone. Took it for about 3 months my doctor said he found only helped if used during 1st year.I seem to have had my ipf for about 2 when we looked back on old x-rays. I have to take in 6,000 to 7,000 cal per day to maintain 132lbs. I'm so tired or trying to eat enough to survive. Believe me when I say I have cake and icecream twice a day. janne5303 wrote: Hi you fluffy people, I always told my grandkids that I was fluffy and fluffy grandmas were much better. I was 5'3" and 222 at the top of my prednisone weight. I began losing weight after I developed Bronchiectasis. I use up so much energy coughing and spitting that it must burn up calories. I am down to 157 now. Believe me it has not been worth it. I always thought the only way that I could lose weight was to be really sick....and it happened. It does not matter what I eat...I lose. It has happened a few pounds a month. It is nearly impossible to lose weight while on prednisone. It is also difficult when you can barely shuffle around. I did lose a little weight in rehab, but very little. Have you noticed how many food commercials are on t.v. plus all the cooking shows. I absolutly love to eat! Too bad it is so bad for us. Joyce >> ... that's me, at 246 and 5'10"!> > Fred> > ---- Original Message ----> To: Breathe-Support > Subject: Re: Little Problem> Date: Sat, 6 May 2006 20:20:48 EDT> > > > >> >> >I am an morbidly obese female that has Severe Lung Disease> >> >> > Drs. have a scasle of discription of patients according to their> >"size". I > >was considered "grotesquely obese" at one time. Boy did I take> >offense to > >that. I think I would have rather them tell me I was way too fat!> >lol There are > >other discriptions, I can't remember them right now....maybe because> >I never > >fit in that catagory...just the grotesquely and moved down to> >morbid. Wish > >there was a catagory for "pleasingly plump".> >kiss kiss,> >~Ginger~> Yahoo! Mail goes everywhere you do. Get it on your phone. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2006 Report Share Posted May 7, 2006 Hey, : You can have my weight. I don't know which is worse trying to gain weight or trying to lose it. Neither one is good. I sure do feel for ya girl. Barb in KYlinda arnold wrote: Joyce, Please-Please give me any extra weight you don't want. Not on prednisone. Took it for about 3 months my doctor said he found only helped if used during 1st year.I seem to have had my ipf for about 2 when we looked back on old x-rays. I have to take in 6,000 to 7,000 cal per day to maintain 132lbs. I'm so tired or trying to eat enough to survive. Believe me when I say I have cake and icecream twice a day. janne5303 wrote: Hi you fluffy people, I always told my grandkids that I was fluffy and fluffy grandmas were much better. I was 5'3" and 222 at the top of my prednisone weight. I began losing weight after I developed Bronchiectasis. I use up so much energy coughing and spitting that it must burn up calories. I am down to 157 now. Believe me it has not been worth it. I always thought the only way that I could lose weight was to be really sick....and it happened. It does not matter what I eat...I lose. It has happened a few pounds a month. It is nearly impossible to lose weight while on prednisone. It is also difficult when you can barely shuffle around. I did lose a little weight in rehab, but very little. Have you noticed how many food commercials are on t.v. plus all the cooking shows. I absolutly love to eat! Too bad it is so bad for us. Joyce >> ... that's me, at 246 and 5'10"!> > Fred> > ---- Original Message ----> To: Breathe-Support > Subject: Re: Little Problem> Date: Sat, 6 May 2006 20:20:48 EDT> > > > >> >> >I am an morbidly obese female that has Severe Lung Disease> >> >> > Drs. have a scasle of discription of patients according to their> >"size". I > >was considered "grotesquely obese" at one time. Boy did I take> >offense to > >that. I think I would have rather them tell me I was way too fat!> >lol There are > >other discriptions, I can't remember them right now....maybe because> >I never > >fit in that catagory...just the grotesquely and moved down to> >morbid. Wish > >there was a catagory for "pleasingly plump".> >kiss kiss,> >~Ginger~> Yahoo! Mail goes everywhere you do. Get it on your phone. __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 8, 2006 Report Share Posted May 8, 2006 Dr has me eating small meals throughout the day. Not just sit down and eat a complete meal as I become so full and have trouble breathing. Gonna bypass all that though, just to go to 's for cake & ice cream. kiss kiss, ~Ginger~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 8, 2006 Report Share Posted May 8, 2006 I keep crackers with peanutbutter, candy bars etc in my pockets. mmmm....STILL gong o 's! A woman after my own heart. kiss kiss, ~Ginger~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 8, 2006 Report Share Posted May 8, 2006 Ginger, I have fresh strawberries grown locally with either sugar or choc syrup so come on I don't have to worry about lung disease getting me, cuz while at 's "Sweets Buffet"gluttony can have its way with me....lol. kiss kiss, ~Ginger~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 8, 2006 Report Share Posted May 8, 2006 , Were you ever heavy? How much 02 are you on. I read that our bodies use a lot of calories just trying to get oxygen out to our extremities. Our heart works harder and we breathe harder. I still have a good appetite but like you, I get tired when I eat. I will sit down to a nice meal and about 1/3 way through, I am just exhausted and it is not even appealing anymore. My husband thinks I should get an infomercial "cough your way to a new slimmer you". Hugs, Joyce > >> > ... that's me, at 246 and 5'10"!> > > > Fred> > > > ---- Original Message ----> > From: TongueDancer2U@> > To: Breathe-Support > > Subject: Re: Little Problem> > Date: Sat, 6 May 2006 20:20:48 EDT> > > > > > > >In a message dated 5/6/2006 6:43:08 PM Central Daylight Time, > > >babs594@ writes:> > >> > >I am an morbidly obese female that has Severe Lung Disease> > >> > >> > > Drs. have a scasle of discription of patients according to their> > >"size". I > > >was considered "grotesquely obese" at one time. Boy did I take> > >offense to > > >that. I think I would have rather them tell me I was way too fat!> > >lol There are > > >other discriptions, I can't remember them right now....maybe because> > >I never > > >fit in that catagory...just the grotesquely and moved down to> > >morbid. Wish > > >there was a catagory for "pleasingly plump".> > >kiss kiss,> > >~Ginger~> >> > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 8, 2006 Report Share Posted May 8, 2006 Joyce I went from 142 to 102 when I finally got diagnosis. Not on O2.Dr feels if sat levels still in 90's last time I went no need.Went down real low 2 months ago, but that's when I walked out on him.Everyone thinks sat levels so high because I still work,remember phone operators run their mouths a lot.haha.I have been fluffy at 200 plus in the past but lost weight because of back pain.Like you I can't eat much at once maybe a childs portion, but I eat all the time even at work. I keep crackers with peanutbutter, candy bars etc in my pockets. janne5303 wrote: , Were you ever heavy? How much 02 are you on. I read that our bodies use a lot of calories just trying to get oxygen out to our extremities. Our heart works harder and we breathe harder. I still have a good appetite but like you, I get tired when I eat. I will sit down to a nice meal and about 1/3 way through, I am just exhausted and it is not even appealing anymore. My husband thinks I should get an infomercial "cough your way to a new slimmer you". Hugs, Joyce > >> > ... that's me, at 246 and 5'10"!> > > > Fred> > > > ---- Original Message ----> > From: TongueDancer2U@> > To: Breathe-Support > > Subject: Re: Little Problem> > Date: Sat, 6 May 2006 20:20:48 EDT> > > > > > > >In a message dated 5/6/2006 6:43:08 PM Central Daylight Time, > > >babs594@ writes:> > >> > >I am an morbidly obese female that has Severe Lung Disease> > >> > >> > > Drs. have a scasle of discription of patients according to their> > >"size". I > > >was considered "grotesquely obese" at one time. Boy did I take> > >offense to > > >that. I think I would have rather them tell me I was way too fat!> > >lol There are > > >other discriptions, I can't remember them right now....maybe because> > >I never > > >fit in that catagory...just the grotesquely and moved down to> > >morbid. Wish > > >there was a catagory for "pleasingly plump".> > >kiss kiss,> > >~Ginger~> >> > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 8, 2006 Report Share Posted May 8, 2006 Ginger, I have fresh strawberries grown locally with either sugar or choc syrup so come on TongueDancer2U@... wrote: That's it, packing up and going to 's house...LOVE cake & ice cream!!!!! kiss kiss, ~Ginger~ Yahoo! Messenger with Voice. Make PC-to-Phone Calls to the US (and 30+ countries) for 2¢/min or less. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 8, 2006 Report Share Posted May 8, 2006 I wanna come along. I haven't had ice cream for a long time.. OK what time ??? Peggy on 5/8/06 10:20 AM, TongueDancer2U@... at TongueDancer2U@... wrote: Dr has me eating small meals throughout the day. Not just sit down and eat a complete meal as I become so full and have trouble breathing. Gonna bypass all that though, just to go to 's for cake & ice cream. kiss kiss, ~Ginger~ Quote Link to comment Share on other sites More sharing options...
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