Guest guest Posted February 15, 2006 Report Share Posted February 15, 2006 Thanks for the info. Went out yesterday and purchased it in a Health food Store. My nausea is apparently a side effect from IPF and I'm taking Prednisone 20mg per day. The pred helped me big time in the beginning and I've slowly been reduced in dosage but for the last 6 days I've been experiencing nausea from morning t'ill late afternoon. Has anyone else experienced this?? what did you do for it? My ox is 94 without the help of ox, with ox assistance 97%. Any physical exertion will drop my ox to 87-88% (without ox assistance). Thanks Jim Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2006 Report Share Posted February 16, 2006 this area of Texas , what part of Trxas are you located in. I am in South Texas...on the coast...near Corpus Christi. ~Ginger~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2006 Report Share Posted February 16, 2006 They were all over SLC SLC? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2006 Report Share Posted February 16, 2006 found myself a top notch pulmonologist and a top notch rheumatologist and have had good treatment since. Joyce, what type of treatment does your rheumatologist offer you, if I may ask? Mine has me on a regiment of chemo...cytoxin...1 gram a month for 6 months. I have had 4 doses. Its an all day affair...as I have to have something for nausea...which I have never ever had...and something to protect my bladder...as to be sure no damage is done there while the cytoxin passes through. The intent of this is to slow or stop the inflammation. I am learning so much here. Thank you so much. \~Ginger~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2006 Report Share Posted February 16, 2006 The problem I am facing in this area of Texas is that there are not many pulmonologists! They were all over SLC! Of course, that probably doesn't say much for the air quality in SLC! mary janne5303 wrote: Oh , I am so sorry about your doctor situation. It is difficult enough to deal with serious illness without having an insensitive doctor treating you like you are worrying about nothing. I have been there. I would leave the office, get into the elevator and cry. When I had my lung biopsy I actually felt validated. Finally, I could prove that I was in pain and actually sick. It was a cruel victory, however. I found myself a top notch pulmonologist and a top notch rheumatologist and have had good treatment since. I know it hard when you are so sick to shop for doctors. But you are fighting for your life. I wonder why these guys who have no heart even go into the business of caring for the sick?? I pray that God will lead you to the very best. You are worth it! Hugs, Joyce> >> > Joyce - you do have a wonderful spirit...and that is so important. It's easy to get scared or depressed....it's harder work to get yourself out of bed and ready to face the world somedays. But, I know it helps to talk to others who have the same fears and worries. You need to be able to talk about what is bothering you....I try to explain to my family when I'm having a bad day...but there's a lot of explanation that usually happens just to get them to understand...and then I'm exhausted. If that happens enough, my response to "how are you feeling?" will be "fine." So, that is why it is so easy to talk to this group. I know that people ask questions because they care and want to really understand. Some days we just don't have the energy for it, you know? I love to write and have thought about keeping a journal....it's another method of working through those feelings we have. As a nurse, I have seen patients die because they lost their spirit....and I saw patients who lived much> longer because they had such a will to live. So, you hang onto that positive attitude and outlook you have. > > > > > > --> > Diane Quinlan > > dianequinlan@ > > > > > > But, you know Ginger....inside where my spirit lives....I don't feel like I am dying. I have days when I feel scared or lonely but most of the time I am just excited to be alive and look forward to tomorrow. I have some little faces that I look forward to seeing. > > I am especially happy to meet you and others on this site. It helps so much to share. I have already learned so much. > > Hugs to you, friend.> > Joyce> >> > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2006 Report Share Posted February 16, 2006 Yes, Nexium is for reflux....I take mine at night, since that's when most people have problems cause they are laying down. The Nexium has helped me a lot. Do you take your medications with food, too? You should...especially since we all take several medications. The food helps to prevent your stomach from being irritated. --Diane Quinlan dianequinlan@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2006 Report Share Posted February 16, 2006 Nelda, Because my pulmonary fibrosis was caused by Lupus, the rheumatologist is treating me with immune suppressants. I have not been able to tolerate any of the usual ones so he has had me on Cellcept. (which is not approved for autoimmune disease but is being used by rheumatologists because it inhibits the very antibodies that autoimmune disease over produces. I have used it 6 years and it has had no side effects.) The insurance company is all of a sudden determined that I should not have it. But, I am appealing it. We will see. It is a battle all the way! My body chemistry would not tolerate Immuran, let alone Cytoxin. I pray that it is a wonder drug for you. Hugs, Joyce >> > > > found myself a top notch pulmonologist and a top notch rheumatologist and > have had good treatment since.> > > Joyce, what type of treatment does your rheumatologist offer you, if I > may ask? Mine has me on a regiment of chemo...cytoxin...1 gram a month for 6 > months. I have had 4 doses. Its an all day affair...as I have to have > something for nausea...which I have never ever had...and something to protect my > bladder...as to be sure no damage is done there while the cytoxin passes through. > The intent of this is to slow or stop the inflammation. I am learning so > much here. Thank you so much.> \~Ginger~> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2006 Report Share Posted February 16, 2006 Salt Lake City, UtahTongueDancer2U@... wrote: They were all over SLC SLC? marymassung What are the most popular cars? Find out at Yahoo! Autos Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2006 Report Share Posted February 16, 2006 Ginger, I am in San Marcos, Texas maryTongueDancer2U@... wrote: this area of Texas , what part of Trxas are you located in. I am in South Texas...on the coast...near Corpus Christi. ~Ginger~ marymassung What are the most popular cars? Find out at Yahoo! Autos Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2006 Report Share Posted February 17, 2006 Heres a question, for all that are using 02 Iam at 55-56 difussion how do I know if its time to talk about 02 more seriosly with my doc. ? and when I go to the mountains should I have one ? flying?at rehab I have been pushing myself to see when my numbers drop so when I am at work or doing my own ecercise I have a better understsnading of my limit. because I have been unknowly dealing with this desease for ...now 4 years I have gotten use to short of breath and sometimes just go with it . I now know I am harming myself more by not knowing my limits. Dorisjanne5303 wrote: Oh , I am so sorry about your doctor situation. It is difficult enough to deal with serious illness without having an insensitive doctor treating you like you are worrying about nothing. I have been there. I would leave the office, get into the elevator and cry. When I had my lung biopsy I actually felt validated. Finally, I could prove that I was in pain and actually sick. It was a cruel victory, however. I found myself a top notch pulmonologist and a top notch rheumatologist and have had good treatment since. I know it hard when you are so sick to shop for doctors. But you are fighting for your life. I wonder why these guys who have no heart even go into the business of caring for the sick?? I pray that God will lead you to the very best. You are worth it! Hugs, Joyce> >> > Joyce - you do have a wonderful spirit...and that is so important. It's easy to get scared or depressed....it's harder work to get yourself out of bed and ready to face the world somedays. But, I know it helps to talk to others who have the same fears and worries. You need to be able to talk about what is bothering you....I try to explain to my family when I'm having a bad day...but there's a lot of explanation that usually happens just to get them to understand...and then I'm exhausted. If that happens enough, my response to "how are you feeling?" will be "fine." So, that is why it is so easy to talk to this group. I know that people ask questions because they care and want to really understand. Some days we just don't have the energy for it, you know? I love to write and have thought about keeping a journal....it's another method of working through those feelings we have. As a nurse, I have seen patients die because they lost their spirit....and I saw patients who lived much> longer because they had such a will to live. So, you hang onto that positive attitude and outlook you have. > > > > > > --> > Diane Quinlan > > dianequinlan@ > > > > > > But, you know Ginger....inside where my spirit lives....I don't feel like I am dying. I have days when I feel scared or lonely but most of the time I am just excited to be alive and look forward to tomorrow. I have some little faces that I look forward to seeing. > > I am especially happy to meet you and others on this site. It helps so much to share. I have already learned so much. > > Hugs to you, friend.> > Joyce> >> > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2006 Report Share Posted February 17, 2006 Do you know what a pulse oximeter is? It clips onto your finger and reads out the percentage of oxygen that is in your blood....one way to check and see how well you are doing when you exercise is to use the pulse ox....when I went to pulmonary rehab, they checked my number before and after each exercise. It also helped me because now I know when my number is low....I know what it feels like. It's good to exercise, but it's dangerous to push until your oxygenation is too low....your doctor should be able to send you to be evaluated. Going to the mountains shouldn't make any difference unless you are talking about Denver. Are you on oxygen now? Good luck. --Diane Quinlan dianequinlan@... -------------- Original message -------------- Heres a question, for all that are using 02 Iam at 55-56 difussion how do I know if its time to talk about 02 more seriosly with my doc. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2006 Report Share Posted February 17, 2006 Actually, it can make a difference...depending upon the person, what the altitude is. I need supplemental 02 if I am at any elevation greater than 2000'. This is why I have an oximeter. It allows me to know when I need to begin using my portable 02 concentrator. marydianequinlan@... wrote: Do you know what a pulse oximeter is? It clips onto your finger and reads out the percentage of oxygen that is in your blood....one way to check and see how well you are doing when you exercise is to use the pulse ox....when I went to pulmonary rehab, they checked my number before and after each exercise. It also helped me because now I know when my number is low....I know what it feels like. It's good to exercise, but it's dangerous to push until your oxygenation is too low....your doctor should be able to send you to be evaluated. Going to the mountains shouldn't make any difference unless you are talking about Denver. Are you on oxygen now? Good luck. --Diane Quinlan dianequinlan@... -------------- Original message -------------- Heres a question, for all that are using 02 Iam at 55-56 difussion how do I know if its time to talk about 02 more seriosly with my doc. marymassung Brings words and photos together (easily) with PhotoMail - it's free and works with Yahoo! Mail. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2006 Report Share Posted February 17, 2006 at 55-56 difussion what does "difussion" mean?? Kim Re: Re: nausea Heres a question, for all that are using 02 Iam at 55-56 difussion how do I know if its time to talk about 02 more seriosly with my doc. ? and when I go to the mountains should I have one ? flying?at rehab I have been pushing myself to see when my numbers drop so when I am at work or doing my own ecercise I have a better understsnading of my limit. because I have been unknowly dealing with this desease for ...now 4 years I have gotten use to short of breath and sometimes just go with it . I now know I am harming myself more by not knowing my limits. Dorisjanne5303 wrote: Oh , I am so sorry about your doctor situation. It is difficult enough to deal with serious illness without having an insensitive doctor treating you like you are worrying about nothing. I have been there. I would leave the office, get into the elevator and cry. When I had my lung biopsy I actually felt validated. Finally, I could prove that I was in pain and actually sick. It was a cruel victory, however. I found myself a top notch pulmonologist and a top notch rheumatologist and have had good treatment since. I know it hard when you are so sick to shop for doctors. But you are fighting for your life. I wonder why these guys who have no heart even go into the business of caring for the sick?? I pray that God will lead you to the very best. You are worth it! Hugs, Joyce> >> > Joyce - you do have a wonderful spirit...and that is so important. It's easy to get scared or depressed....it's harder work to get yourself out of bed and ready to face the world somedays. But, I know it helps to talk to others who have the same fears and worries. You need to be able to talk about what is bothering you....I try to explain to my family when I'm having a bad day...but there's a lot of explanation that usually happens just to get them to understand...and then I'm exhausted. If that happens enough, my response to "how are you feeling?" will be "fine." So, that is why it is so easy to talk to this group. I know that people ask questions because they care and want to really understand. Some days we just don't have the energy for it, you know? I love to write and have thought about keeping a journal....it's another method of working through those feelings we have. As a nurse, I have seen patients die because they lost their spirit....and I saw patients who lived much> longer because they had such a will to live. So, you hang onto that positive attitude and outlook you have. > > > > > > --> > Diane Quinlan > > dianequinlan@ > > > > > > But, you know Ginger....inside where my spirit lives....I don't feel like I am dying. I have days when I feel scared or lonely but most of the time I am just excited to be alive and look forward to tomorrow. I have some little faces that I look forward to seeing. > > I am especially happy to meet you and others on this site. It helps so much to share. I have already learned so much. > > Hugs to you, friend.> > Joyce> >> > > > Quote Link to comment Share on other sites More sharing options...
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