Guest guest Posted October 19, 1999 Report Share Posted October 19, 1999 << Hey , did you make mention some time ago of " cell regrowth " in the future, or something like that? Can you tell us any more about it? Marie >> Hey Marie, Yeah Cell regrowth has been acomplished in labs at HEI but as far as I know it is not even close to ready for human experimnts..When I asked about it my doc at HEI who is running that show told me while we were discussing the idea of a 2nd ABI for potentially better results that it was to early to say that in an ear was implanted if cell regrowth would be an option so I have chosen not to have a 2nd ABI put in as I may very well be one of the ginny pigs in cell regrowth. who just worked 13 hours so excuse me if I did not make sense Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 20, 1999 Report Share Posted October 20, 1999 In a message dated 10/20/99 3:38:25 PM !!!First Boot!!!, jchartra@... writes: << OK, so what cells exactly are they tring to regrow? Are they transplanting ears now?!! >> They are thrying to regrow the acustic nerve cells and possibly the facial nerve cells. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 20, 1999 Report Share Posted October 20, 1999 << I have a question then; if one was to have the translab approach, which is necessary to get the ABI, don't they " destroy " the hearing apparatus thru this approach? What good would it do then if the cells could regrow? If you have the translab and/or ABI, is cell regrowth not then even a possiblity if it ever does become a reality? Marie >> Yes Marie Tran lab does in fact remove all off the hearing nerve but from what I understand they will be trying to implant nerves much like they implant ABI's and CI's...it is way to early to determine how involved it will be as far as surgery or how long once implated it will take for the nerves to establish themselves. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 20, 1999 Report Share Posted October 20, 1999 Hi Sheryn, I'm really curious about Brackamnn saying it was removable. I *thought* it was not. I might be wrong considering I don't always follow the conversation 100%. The ABI is put in a small nitch in the brainstem. After it's there for a while the scar tissue or brain matter grows over it, thus keeping it in place. At least that's what I thought. If that's the case you would need to cut thru brain matter to get to it. Not something I'd like to try. By all means if any one knows more than me and I am hoping someone does, please do answer that! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 20, 1999 Report Share Posted October 20, 1999 I have a question then; if one was to have the translab approach, which is necessary to get the ABI, don't they " destroy " the hearing apparatus thru this approach? What good would it do then if the cells could regrow? If you have the translab and/or ABI, is cell regrowth not then even a possiblity if it ever does become a reality? Marie -----Original Message----- >They are thrying to regrow the acustic nerve cells and possibly the facial >nerve cells. > >------------------------------------------------------------------------ >See what's happening for NF2Con 2000! >http://www.home.earthlink.net/~earldillon/nf2convegas2000.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 20, 1999 Report Share Posted October 20, 1999 In a message dated 10/20/99 11:14:56 PM !!!First Boot!!!, sherynstewart@... writes: << Perhaps if one has the ABI, they may be able to still have the Cell regrowth option. Was this discussed at all ? This could be years before available. Sheryn , Hopeful in Sask. >> Hey Sheryn, Yes it was discussed but Brackman is not my doctor...Slattery is and he is the one reserching gene therapy and cell regrowth...he stated to me that it was to early to say who will be a canadiate for cell regrowth and if an implanted ear will be able to be effectively set for cell regrowth so thus my decision not to try for a better ABI on the 2nd side Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 20, 1999 Report Share Posted October 20, 1999 In a message dated 10/20/99 11:38:08 PM !!!First Boot!!!, Misha64@... writes: << I'm really curious about Brackamnn saying it was removable. I *thought* it was not. I might be wrong considering I don't always follow the conversation 100%. The ABI is put in a small nitch in the brainstem. After it's there for a while the scar tissue or brain matter grows over it, thus keeping it in place. >> Yo Mish,, ABI is removable should infection or damage to the implant occur..it is not a great idea but it can be done without causing sever trauma to the brainstem. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 20, 1999 Report Share Posted October 20, 1999 In a message dated 10/20/99 3:39:21 PM Eastern Daylight Time, ADRENHLIN@... writes: << They are thrying to regrow the acustic nerve cells and possibly the facial nerve cells. -- >> Sounds like cloning. They're trying the same thing to clone organs for transplant patients. That was in Discover or Omni I think. But it sounds like its a long way off. But I'll sign up to be a guniea pig :-) -Pat Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 20, 1999 Report Share Posted October 20, 1999 from OZ here, I have been reading the posts on Cell Regrowth. Just recently I was sent some very welcome news. There where pictures, but as some you do not receive photos or attachments I have had to remove them. The fact that they can now regrow nerves even if only periphery at this time it looks a lot brighter for us with NF2. Scroll down and enjoy. << OK, so what cells exactly are they tring to regrow? Are they transplanting ears now?!! >> They are thrying to regrow the acustic nerve cells and possibly the facial > nerve cells. > *********************************************** Daily Mail, Wednesday, August 18. 1999 Implant that could make damaged nerves work again. By JENNY HOPE Medical Correspondent BRITISH scientists are developing a pioneering technique for reconnecting severed nerves. It could let thousands of patients who have suffered injury or disability, regain the full use of their arms or legs. The breakthrough would also end the need for nerve grafts. But it will work only with peripheral nerves - those in outlying parts of the body- and not with spinal damage. Researchers at the Royal Free Hospital in London have found a way to persuade the severed ends of damaged nerves to grow through a special tube implanted to bridge the gap. The tiny tubes - a single millimetre in diameter are glued or stitched between the cut nerve ends. The inside of the tubing is coated with special cells, called Schwann cells, which release proteins that encourage nerve growth. Once the nerve fibres have grown and reconnected the polymer tubing simply dissolves away. Dr Georgio Terenghi, head of the Nerve Regeneration Group, and his team have already shown the technique works in the laboratory. They hope to begin implants into patients within two years. Dr Terenghi said yesterday: 'People in accidents sometimes suffer injuries to the peripheral nerves in their arms, legs or hands. Sometimes they lose a bit or nerve because the tissue gets mangled up and you can't put it back together.' 'You need something to bridge the gap. At the moment what surgeons do is take a nerve from a less important part or the body and transfer it to the site of the injury.' 'Generally they take it from the lower leg- but then you lose sensation in that part or the body if our technique works, it means you won't have to cut away a second piece of nerve to repair the first.' 'A patient could regain the function of his hand, for example, without losing sensation in his foot. The Schwann cells would be grown from the patient's own, taken from a tiny sample of nerve, to avoid rejection problems. Dr Terenghi said the length of time the tubes would stay in the patient depended on the length of nerve being grown. Nerves grow about a millimetre a day, so in the case of a long nerve - such as one running from the upper arm to the spinal cord - It could take a year or more. Dr Terenghi said early laboratory work had already shown that full nerve function could be restored in rats. Further work was needed to discover whether the technique could work as well in humans but 'it looks promising.' 'We hope that the first trials will begin in two years and, If successful, treatment could be widely available in five years, 'This will have a profound effect on those patients who would otherwise be left without full use of their hands or legs.' TECH UK Corporation, technology suppliers to the National Lottery, have donated £90,000 to the project. Researchers are developing insulin-producing cells, which could be transplanted into diabetics and end their daily need for injections. Professor Docherty who is in charge or the research at Aberdeen University, hopes patients will be able to benefit from it within five years. The scientists have made use or the discovery of cells secreting insulin at high levels in the pancreases of babies suffering a potentially ratal illness. The infants have too much insulin in their bloodstreams and their blood glucose levels are very low. They could die or suffer brain damage if their pancreases are not removed within a month of birth. Professor Docherty's team has been able to 'grow and divide' these cells. Once transplanted into diabetics, they could sup-ply the insulin which currently has to be injected. Insulin-dependent diabetes affects thousands of Britons and can lead to disability. The research team has been given funding of £219,OOO National Lottery cash through the Juvenile Diabetes Foundation. Professor Docherty, an internationally respected expert said: 'The discovery of insulin in 1922 freed millions from a death sentence. 'This grant gives the potential now to herald the end of this disease once and for all.' Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 1999 Report Share Posted October 21, 1999 Someone from here had forwarded an article about this. Anyways, doctors from England I think? In anycase, 's right. Mark ----Original Message Follows---- From: ADRENHLIN@... Reply-To: NF2_Crewonelist To: NF2_Crewonelist Subject: Re: Cell Regrowth Date: Wed, 20 Oct 1999 15:38:35 EDT From: ADRENHLIN@... In a message dated 10/20/99 3:38:25 PM !!!First Boot!!!, jchartra@... writes: << OK, so what cells exactly are they tring to regrow? Are they transplanting ears now?!! >> They are thrying to regrow the acustic nerve cells and possibly the facial nerve cells. ------------------------------------------------------------------------ See what's happening for NF2Con 2000! http://www.home.earthlink.net/~earldillon/nf2convegas2000.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 1999 Report Share Posted October 21, 1999 I have a question then; if one was to have the translab approach, which is necessary to get the ABI, don't they " destroy " the hearing apparatus thru this approach? Yup. What good would it do then if the cells could regrow? Hopefully the inner and outer cells, and cochlea will regrow causing you to NOT get an ABI. Celluar regrowth will rememdy facial paralysis that may accidently get cut. If you have the translab and/or ABI, is cell regrowth not then even a possiblity if it ever does become a reality? Well you can have the translab and the ABI option, but I think 's thinking more of facial nerve regrowth. Dunno, since I can't answer for him. Ah, nevermind, I just scrolled down =). In the hopes of cellular regrowth, one wouldn't need the ABI because of the Acoustic Nerve and other celluar regrowth. Researchers are far from this. From what I've read on Time Magazine concerning this, they're using what are called " stem cells " to regrow nerves. Stem Cells are the basic building blocks of organs. However, stem cells are mainly used form aborted Fetuses so now it comes down to an ethical issue. I'm no expert on this, so don't quote me. =) Mark Mark -----Original Message----- >They are thrying to regrow the acustic nerve cells and possibly the facial >nerve cells. > >------------------------------------------------------------------------ >See what's happening for NF2Con 2000! >http://www.home.earthlink.net/~earldillon/nf2convegas2000.html ------------------------------------------------------------------------ See what's happening for NF2Con 2000! http://www.home.earthlink.net/~earldillon/nf2convegas2000.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 1999 Report Share Posted October 21, 1999 , I think what Marie means is that trans-lab destroys the inner ear, ie, the ear bones and the cochlea: everything from the eardrum in. No cochlea, no hearing. I guess though if they could regrow the auditory nerve, then you could get a cochlear implant(?). > << I have a question then; if one was to have the translab approach, which is > necessary to get the ABI, don't they " destroy " the hearing apparatus thru > this approach? What good would it do then if the cells could regrow? If > you have the translab and/or ABI, is cell regrowth not then even a > possiblity if it ever does become a reality? Marie >> > > > Yes Marie Tran lab does in fact remove all off the hearing nerve but from > what I understand they will be trying to implant nerves much like they > implant ABI's and CI's...it is way to early to determine how involved it will > be as far as surgery or how long once implated it will take for the nerves to > establish themselves. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 1999 Report Share Posted October 21, 1999 Hello , Dr. Slattery's at HEI? Mark ----Original Message Follows---- From: ADRENHLIN@... Slattery is and he is the one reserching gene therapy and cell regrowth...he stated to me that it was to early to say who will be a canadiate for cell regrowth and if an implanted ear will be able to be effectively set for cell regrowth so thus my decision not to try for a better ABI on the 2nd side ------------------------------------------------------------------------ See what's happening for NF2Con 2000! http://www.home.earthlink.net/~earldillon/nf2convegas2000.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 1999 Report Share Posted October 21, 1999 I would think Tev would have the answer to that; he has a " nonworking " ABI, and if surgery is necessary, he thinks he will have to go to HEI, but I don't know if removal was part of the reason. Marie Re: Cell Regrowth >From: Misha64@... > >Hi Sheryn, > I'm really curious about Brackamnn saying it was removable. I *thought* >it was not. I might be wrong considering I don't always follow the >conversation 100%. The ABI is put in a small nitch in the brainstem. After >it's there for a while the scar tissue or brain matter grows over it, thus >keeping it in place. At least that's what I thought. If that's the case you >would need to cut thru brain matter to get to it. Not something I'd like to >try. By all means if any one knows more than me and I am hoping someone >does, please do answer that! > >------------------------------------------------------------------------ >See what's happening for NF2Con 2000! >http://www.home.earthlink.net/~earldillon/nf2convegas2000.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 1999 Report Share Posted October 21, 1999 In a message dated 10/21/99 10:17:56 PM !!!First Boot!!!, mark_sarmac@... writes: << Hello , Dr. Slattery's at HEI? Mark >> Yep Dr. Slattery is at HEI...I have seen him for over a year now and he is in my eyes a very very wonderful doctor..while he is not as famous as Brackmann you will definatly be hearing more(no pun intended) about Slattery as he becomes even more established as a leader in the treatment of NF2 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 1999 Report Share Posted October 21, 1999 In a message dated 10/22/99 12:19:16 AM !!!First Boot!!!, mcdrew@... writes: About this Dr. Slattery; is he an ENT or NS? I imagine ENT? Is he like Brackman's next in line?? Marie >> Yes Marie I see him as the replacment but I know many people who like Slattery better than Brackman...mabey Brackman is just to busy ??? he is an octologist him and Hitzelburger do AN removals and ABI's Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 1999 Report Share Posted October 21, 1999 About this Dr. Slattery; is he an ENT or NS? I imagine ENT? Is he like Brackman's next in line?? Marie Re: Cell Regrowth > > >Hello , > >Dr. Slattery's at HEI? > >Mark > > >----Original Message Follows---- >From: ADRENHLIN@... >Slattery is and he is >the one reserching gene therapy and cell regrowth...he stated to me that it >was to early to say who will be a canadiate for cell regrowth and if an >implanted ear will be able to be effectively set for cell regrowth so thus >my >decision not to try for a better ABI on the 2nd side > >------------------------------------------------------------------------ >See what's happening for NF2Con 2000! >http://www.home.earthlink.net/~earldillon/nf2convegas2000.html >------------------------------------------------------------------------ >See what's happening for NF2Con 2000! >http://www.home.earthlink.net/~earldillon/nf2convegas2000.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 1999 Report Share Posted October 21, 1999 << Oh, Brackman an octologist?? Never heard that one before! How did you happen to end up with Slattery rather than Brackman?? Marie >> Just lucky I guess <g> I am not sure why I was hooked up with Slattery...Just made an apointment thru my DO here and Slattery was my man...I was a little weary at first since he does not have Brackmans experience but I am VERY glad I stayed with him...you can't even tell I had surgery except I am deaf in that ear...no facial problems at all right out of surgery...only prob was PT screwed my back up badand my eye would not full close do to the post op swelling but that was down in a week. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 1999 Report Share Posted October 21, 1999 Oh, Brackman an octologist?? Never heard that one before! How did you happen to end up with Slattery rather than Brackman?? Marie Re: Cell Regrowth >From: ADRENHLIN@... > >In a message dated 10/22/99 12:19:16 AM !!!First Boot!!!, mcdrew@... >writes: > > > > About this Dr. Slattery; is he an ENT or NS? I imagine ENT? Is he like > Brackman's next in line?? Marie >> > Yes Marie I see him as the replacment but I know many people who like >Slattery better than Brackman...mabey Brackman is just to busy ??? he is an >octologist him and Hitzelburger do AN removals and ABI's > > >------------------------------------------------------------------------ >See what's happening for NF2Con 2000! >http://www.home.earthlink.net/~earldillon/nf2convegas2000.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 1999 Report Share Posted October 22, 1999 ----Original Message Follows---- Oh, Brackman an octologist?? <=======Brackmann maybe a lot of things but he ain't no oncologist. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 1999 Report Share Posted October 22, 1999 In a message dated 10/22/99 12:37:09 PM !!!First Boot!!!, VCha173195@... writes: << , Hi there, I was wondering what is a " DO " . All this abbreviations are wild to see what they stand for.. Have a great weekend... It's FRIDAY !!!! Yippee.. a >> HMMM no quite sure but I am gonna guess a DO is a doctor of Octology..ear specialist have ing to do with ears, nose and throat mabey ? he is a ear specialist tho Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 1999 Report Share Posted October 22, 1999 Hi Marie and the rest of the crew and first of all I want to thank the crewbies who were at the con for a great time and look forward to seeing you all again plus some new people in Santa Fe in2000! About the ABI I have a residual acoustic neuroma adjacent to my ABI thats not working and Dr.Cohen sought of brushed me off by not seeing me for 3 visits in a row so the logical choice for surgery would be Dr.Brackmann since he has the most acousitc neuroma experience and ABi experience in the world.the reason i sought of rule out radiation for now is because the ABI causes streak artifacts in my CAT scan and part of the tumor cannot be totally visualized for radiation treatment. Anyway thanks for a terrific time in andria.I dont send Email very much but I just want you to all know Im glad to be a crewbie and in touch with many real good people ! Thanks,Tev Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 1999 Report Share Posted October 22, 1999 << Tev, do you know if it is possible to surgically remove an ABI? Marie >> Hey Marie I aint Tev but I can answer...yeah it is possible....I belive 2 of em have been removed but I think they were the early single channel models with the plug that sticks thru the skull...I think they had an infection problem with them...I am ure at least one has been removed tho.. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 1999 Report Share Posted October 22, 1999 /Tev, do you know if it is possible to surgically remove an ABI? Marie Re: Cell Regrowth >From: DorfT@... > >Hi Marie and the rest of the crew and first of all I want to thank the >crewbies who were at the con for a great time and look forward to seeing >you all again plus some new people in Santa Fe in2000! About the ABI I >have a residual acoustic neuroma adjacent to my ABI thats not working and >Dr.Cohen sought of brushed me off by not seeing me for 3 visits in a row >so the logical choice for surgery would be Dr.Brackmann since he has the >most acousitc neuroma experience and ABi experience in the world.the reason i >sought of rule out radiation for now is because the ABI causes streak >artifacts in my CAT scan and part of the tumor cannot be totally visualized >for radiation treatment. Anyway thanks for a terrific time in andria.I >dont send Email very much but I just want you to all know Im glad to be a >crewbie and in touch with many real good people ! Thanks,Tev >------------------------------------------------------------------------ >See what's happening for NF2Con 2000! >http://www.home.earthlink.net/~earldillon/nf2convegas2000.html Quote Link to comment Share on other sites More sharing options...
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