Guest guest Posted June 27, 2010 Report Share Posted June 27, 2010 there is someone else at Oakland that people are very fond of so hopefully someone knows Dr. Sun as well...Is it jerry oakes? My daughter's feet her in her arch prior to her first release. Much luck! randee In a message dated 6/27/2010 2:20:11 P.M. Central Daylight Time, cedgecomb_1977@... writes: Maddy had her mri of lower spine and neck,he didnt do the area between neck and lower spine. Nsg said she looks good. He said he isnt concerned about her bladder issues,meaning the witholding. He didnt even listen to what urology said. A couple weeks ago she started saying it hurts her back when she tries to dog paddle on her tummy while in the pool. Maddy's latest complaint is that her feet and calves hurt alot. She has started saying this in the last week or so,this is on top of lower back pain,neck pain,leg pain (back of top og legs),arm pain and of course headache. She is still having bladder issues. I am having her records and recent films sent to Dr. Sun @ Oakland Childrens. I met the nurse for him about a month ago at a hydro walk and she said they can help Maddy. I have heard many wonderful things about him. I will keep you all posted. Do any of you with otc or your kids with otc says their feet or calves hurt? This is something new and I feel its related to everything else going on. Also at nsg off he asked Maddy to walk heel to toe in a straight line and she couldnt do it. Does that have anything to do with tc? Thanks [Non-text portions of this message have been removed] Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 28, 2010 Report Share Posted June 28, 2010 I have heard many good things about Dr. Sun and I really enjoyed talking with his nurse. Ty for the advice ________________________________ To: tetheredspinalcord Sent: Sun, June 27, 2010 12:31:35 PM Subject: Re: maddy update there is someone else at Oakland that people are very fond of so hopefully someone knows Dr. Sun as well...Is it jerry oakes? My daughter's feet her in her arch prior to her first release. Much luck! randee In a message dated 6/27/2010 2:20:11 P.M. Central Daylight Time, cedgecomb_1977@... writes: Maddy had her mri of lower spine and neck,he didnt do the area between neck and lower spine. Nsg said she looks good. He said he isnt concerned about her bladder issues,meaning the witholding. He didnt even listen to what urology said. A couple weeks ago she started saying it hurts her back when she tries to dog paddle on her tummy while in the pool. Maddy's latest complaint is that her feet and calves hurt alot. She has started saying this in the last week or so,this is on top of lower back pain,neck pain,leg pain (back of top og legs),arm pain and of course headache. She is still having bladder issues. I am having her records and recent films sent to Dr. Sun @ Oakland Childrens. I met the nurse for him about a month ago at a hydro walk and she said they can help Maddy. I have heard many wonderful things about him. I will keep you all posted. Do any of you with otc or your kids with otc says their feet or calves hurt? This is something new and I feel its related to everything else going on. Also at nsg off he asked Maddy to walk heel to toe in a straight line and she couldnt do it. Does that have anything to do with tc? Thanks [Non-text portions of this message have been removed] Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 28, 2010 Report Share Posted June 28, 2010 I would love to hear back what you think about Dr. Sun - we are about an hour away from Oakland. Right now the nsg my son see's is two and half hours from home. I am just curious who the nsg who would not listen to the Urologist was? Just know that my son has never been able to walk the heel to toe in a straight line ever. My son has had some calf and foot pain. The type of pain he had when he retethered was in his knee (which he had never had) and constant shooting pains down his legs (and back). These were new and they did not go away. Thanks, Anne maddy update Maddy had her mri of lower spine and neck,he didnt do the area between neck and lower spine. Nsg said she looks good. He said he isnt concerned about her bladder issues,meaning the witholding. He didnt even listen to what urology said. A couple weeks ago she started saying it hurts her back when she tries to dog paddle on her tummy while in the pool. Maddy's latest complaint is that her feet and calves hurt alot. She has started saying this in the last week or so,this is on top of lower back pain,neck pain,leg pain (back of top og legs),arm pain and of course headache. She is still having bladder issues. I am having her records and recent films sent to Dr. Sun @ Oakland Childrens. I met the nurse for him about a month ago at a hydro walk and she said they can help Maddy. I have heard many wonderful things about him. I will keep you all posted. Do any of you with otc or your kids with otc says their feet or calves hurt? This is something new and I feel its related to everything else going on. Also at nsg off he asked Maddy to walk heel to toe in a straight line and she couldnt do it. Does that have anything to do with tc? Thanks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 28, 2010 Report Share Posted June 28, 2010 I will let you know what we think of him. A very good friend recommended him. Who do you guys see for nsg. Maddy sees Dr. Magram at Children Hospital Central Ca in Madera,Ca which is near Fresno. Maddy's pains showed up one at a time and they have never gone away. Ty for the advice ________________________________ To: tetheredspinalcord Sent: Sun, June 27, 2010 10:27:33 PM Subject: Re: maddy update I would love to hear back what you think about Dr. Sun - we are about an hour away from Oakland. Right now the nsg my son see's is two and half hours from home. I am just curious who the nsg who would not listen to the Urologist was? Just know that my son has never been able to walk the heel to toe in a straight line ever. My son has had some calf and foot pain. The type of pain he had when he retethered was in his knee (which he had never had) and constant shooting pains down his legs (and back). These were new and they did not go away. Thanks, Anne maddy update Maddy had her mri of lower spine and neck,he didnt do the area between neck and lower spine. Nsg said she looks good. He said he isnt concerned about her bladder issues,meaning the witholding. He didnt even listen to what urology said. A couple weeks ago she started saying it hurts her back when she tries to dog paddle on her tummy while in the pool. Maddy's latest complaint is that her feet and calves hurt alot. She has started saying this in the last week or so,this is on top of lower back pain,neck pain,leg pain (back of top og legs),arm pain and of course headache. She is still having bladder issues. I am having her records and recent films sent to Dr. Sun @ Oakland Childrens. I met the nurse for him about a month ago at a hydro walk and she said they can help Maddy. I have heard many wonderful things about him. I will keep you all posted. Do any of you with otc or your kids with otc says their feet or calves hurt? This is something new and I feel its related to everything else going on. Also at nsg off he asked Maddy to walk heel to toe in a straight line and she couldnt do it. Does that have anything to do with tc? Thanks Quote Link to comment Share on other sites More sharing options...
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