Guest guest Posted July 16, 2004 Report Share Posted July 16, 2004 Hi , I attended 2 sleep studies and was diagnosed with Severe Obstructive Sleep Apnea last summer. I got my c-pap machine, never used it as we were in the process of moving. We moved into our new place in October of last year and I can't find the manual for the machine so I can't tell you what the pressure is set to. I'm afraid to start fiddling with the menus until I can find the manual. With my luck, I'll mess up the settings and be stuck without it. As soon as I figure out where the manual was packed, I'll let you know what it's set to. I've been using mine on and off. I've been told that my fibro symptoms will improve dramatically if I use it on a regular basis. Now if I could just teach myself not to turn it off in the middle of the night.. hehehehe. I find when I have bad sleep nights with tons of pain, I'm awake about every hour and the machine isn't helping if I can't get to sleep because of pain. What a vicious cycle this is. I guess I 'll just have to try to train myself to leave it alone.. .maybe hubby can move it out of my reach and once it's on.. it's on... I'd have to get up to turn it off :-) Now to find out what I can do to make the pain more manageable overnight. I think that's what we'd all like to do. hugs, Norah Bleazard - Burlington, Ontario Canada www.bleazard.net ~ www.janorlites.com E-MAIL= norah.fibroyahoo@... CHAT= MSN = black_dak_98@... Yahoo = drazaelbn AIM = black98dak ICQ = 105346330 Fibromites_Fighting_Weight: http://groups.yahoo.com/group/Fibromites_Fighting_Weight http://fibromites.ath.cx wrote: > I had my sleep study last night. I slept about the same as I usually > do, even hooked up to all that stuff. The doctor looked at the > results and I don't qualify for a cpap, according to my insurance > company. However the doctor thinks that a cpap would still help me > quite a bit and help me sleep better. He asked me if I wanted to try > one for a month, I'd have to pay for the rental fee out of my > pocket. It is computerized and will keep track of the pressure (or > whatever) and is set to a range of 7-10. When the doctor tested me > on it, he started it at a 4 and I felt like I was going to > suffocate. When he had it set to 8 it felt better although it could > have been a little higher or maybe I just needed to get used to it. > If it helped, he'll talk to the insurance company and try to get > them to pay for one for me. He really thinks it'll help. > > I decided to give it a shot, I guess it can't hurt. After the month > is up I guess he can see what pressure is was at while I was wearing > it. It's gonna take a while to get used to though. My husband came > with me to get the machine and as the nose piece and machine was > being tested on me, I was using hand signals to let the person know > how it was going. My husband said, " Don't be afraid, you can talk > with that think on. " She looked at him and said, no she really > can't, it's very difficult. I open my mouth and air just flows out! > Maybe tonight, I'll lean over and blow in my husband's ear! > > Just curious, for those of you who use a cpap, what is the pressure > on yours set to? I guess that's what they call it anyway. > > in KS > > > > 1. While it is wonderful to share our experiences with everyone on the > list as to what treatments do and don't work for us, pls always check > with your dr. Some treatments are dangerous when given along with > other meds as well as to certain health conditions or just dangerous > in general. > > 2. If you are in a difficult situation (doesn't matter what it is) pls > don't be afraid to ask for help. It is the first step to trying to > make that situation better. > > > Have a nice day everyone. > > > > * Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 16, 2004 Report Share Posted July 16, 2004 Thanks Dash, that makes a lot of sense. Hope you feel better. thankful hugs, Norah Bleazard - Burlington, Ontario Canada www.bleazard.net ~ www.janorlites.com E-MAIL= norah.fibroyahoo@... CHAT= MSN = black_dak_98@... Yahoo = drazaelbn AIM = black98dak ICQ = 105346330 Fibromites_Fighting_Weight: http://groups.yahoo.com/group/Fibromites_Fighting_Weight http://fibromites.ath.cx dash wrote: > Norah, if u are short on sleep and suffering spleep ap. it also > increases your swelling. > > My back is a tad better after hot pad, pain pill, and naproxin. CAn't > write much. dash Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 16, 2004 Report Share Posted July 16, 2004 Norah, if u are short on sleep and suffering spleep ap. it also increases your swelling. My back is a tad better after hot pad, pain pill, and naproxin. CAn't write much. dash Re: Sleep study Hi , I attended 2 sleep studies and was diagnosed with Severe Obstructive Sleep Apnea last summer. I got my c-pap machine, never used it as we were in the process of moving. We moved into our new place in October of last year and I can't find the manual for the machine so I can't tell you what the pressure is set to. I'm afraid to start fiddling with the menus until I can find the manual. With my luck, I'll mess up the settings and be stuck without it. As soon as I figure out where the manual was packed, I'll let you know what it's set to. I've been using mine on and off. I've been told that my fibro symptoms will improve dramatically if I use it on a regular basis. Now if I could just teach myself not to turn it off in the middle of the night.. hehehehe. I find when I have bad sleep nights with tons of pain, I'm awake about every hour and the machine isn't helping if I can't get to sleep because of pain. What a vicious cycle this is. I guess I 'll just have to try to train myself to leave it alone.. .maybe hubby can move it out of my reach and once it's on.. it's on... I'd have to get up to turn it off :-) Now to find out what I can do to make the pain more manageable overnight. I think that's what we'd all like to do. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 16, 2004 Report Share Posted July 16, 2004 No sleep study here, but sometimes without fan, I can't breathe. I use it often. Maybe without that cpap you can survive with the fan. dash Re: Sleep study , I have had my CPAP for a year this month. I do not snore any more and have gotten use to it and I can not sleep without it. My CPAP is set to 9 and works fine for me. Also if you lose or gain weight the pressure should be regulated to the changes. I know someone who had it and was 390 lbs and had Gastric bypass surgery and is now down to like 160 lbs and does not use one any longer. I also find if I have a fan blowing on me as well I do not get the suffocating feeling you can experience. Any other questions feel free to ask in IN wrote: I had my sleep study last night. I slept about the same as I usually do, even hooked up to all that stuff. The doctor looked at the results and I don't qualify for a cpap, according to my insurance company. However the doctor thinks that a cpap would still help me quite a bit and help me sleep better. He asked me if I wanted to try one for a month, I'd have to pay for the rental fee out of my pocket. It is computerized and will keep track of the pressure (or whatever) and is set to a range of 7-10. When the doctor tested me on it, he started it at a 4 and I felt like I was going to suffocate. When he had it set to 8 it felt better although it could have been a little higher or maybe I just needed to get used to it. If it helped, he'll talk to the insurance company and try to get them to pay for one for me. He really thinks it'll help. I decided to give it a shot, I guess it can't hurt. After the month is up I guess he can see what pressure is was at while I was wearing it. It's gonna take a while to get used to though. My husband came with me to get the machine and as the nose piece and machine was being tested on me, I was using hand signals to let the person know how it was going. My husband said, " Don't be afraid, you can talk with that think on. " She looked at him and said, no she really can't, it's very difficult. I open my mouth and air just flows out! Maybe tonight, I'll lean over and blow in my husband's ear! Just curious, for those of you who use a cpap, what is the pressure on yours set to? I guess that's what they call it anyway. in KS Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 16, 2004 Report Share Posted July 16, 2004 I too have fans running on me all the time, can't do without them. Penny UK On 16/07/2004 23:23:02, fibromyalgia_support_group wrote: > No sleep study here, but sometimes without fan, I > can't breathe. I use it often. Maybe without that cpap you can survive with the fan. dash Quote Link to comment Share on other sites More sharing options...
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