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I have an MRI being

>booked now and probably won't be able to get it until May. My doctor won't

>tell me what he thinks is wrong with me until we get the results back so

Hello Farrow,

I am wondering why you can't have an MRI done sooner than May. It sounds

as if you are really having something serious going on and I would think

the Dr would want that MRI as soon as possible.

And No you have not come to the wrong place, if it turns out that what you

have is chiari......there are many adults here who suffer from chiari as

well as children, who suffer from it.

Best wishes and welcome,

Judy Marie

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In a message dated 1/11/99 11:18:25 PM Eastern Standard Time,

pharoah@... writes:

<< I found this group after a few different people suggested that I may have

ACM. From what I've read though it seems more prevalent in children. >>

Hi Farrow,

First of all....Welcome to the group!!! ACM is common in all age groups!!

If you keep looking there are other sites that will tell that. I don't have

fibromyalgia, so I'm not sure of all the symptoms that are associated with

that. But from the sounds of what you said, it sure sounds a lot like ACM

too. Have you tried this site........

<A HREF= " http://www.pressenter.com/~wacma/info.htm " > </A>A

<A HREF= " http://www.pressenter.com/~wacma/info.htm " >CM Information</A> ?????

There are a lot of different sites at this one. If you've seen that one

already I know of others too if your interested. Well, good luck on finding

out about your MRI, hopefully you'll be able to get in before May. That sure

is a long wait. Take Care!!!

Luv ya,

Amy Jo in Michigan

ACM 1, 5 mm herniation, Suboccipital Craniectomy w/Duraplasty (my own),

laminectomy C-1, surgery 10-12-98. =)

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Welcome, Farrow!

At 11:12 PM 1/11/1999 -0500, pharoah wrote:

> Can anyone tell me if I'm way off base being here?

Nope, it certainly could be chiari, but a bunch of other stuff, too. i know

you're anxious to figure out what's wrong so you can start on the road to

hopefully correcting it - but it might not be the best idea to get your

heart set on having chiari :-) and then have it turn out to be somrthing

different. Know what I mean? Besides, chiari can be scary, and it may be

that you have something easier to fix.

Whereabouts in Ontario are you? I'm near Owen Sound and our Director,

Darlene, is in Kitchener. We've also got Eurico in Ottawa and Tracey in

Kingston. And a few other Ontarian Chiarians too.

peace and cheers and cheese and pears,

ronny

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>>booked now and probably won't be able to get it until May. My doctor

won't

>>tell me what he thinks is wrong with me until we get the results back so

>

>Hello Farrow,

> I am wondering why you can't have an MRI done sooner than May. It sounds

>as if you are really having something serious going on and I would think

>the Dr would want that MRI as soon as possible.

In Canada, May *is* as soon as possible :)

Chip

=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=

E-mail: chip@... (ACM-1, 26 months post-op)

St Croix Beach, Minnesota

Home page: Http://www.pressenter.com/~chip/chiari.htm

=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=

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  • 2 years later...

In a message dated 10/23/01 12:41:24 PM Central Daylight Time,

nasusxo@... writes:

> Some days you are the Bug, some days you are the Windshield "

>

>

Wow, today I feel like the bug forced to live the windshield over and over

and over and.....

le

married to Isaac

SAHM to

Marisa 6

Jordan 3

Christian 2

1-26-01 cvr 5-30-01

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THats the thing how do you tell where the score is?? WHat colum is it top

bottom?

At 10:11 AM 10/23/2001, you wrote:

>What's the score?

>

>Salli

>

>Enrique, 14, AS, TS

>, 12, NT

>Sophia, 7, NT

>Xavier, aka PUTTER!, 5, autism

>o, 2, NT

>

>

> Re: Hello!

>

>

> > Uhhhh I just did the ATECH but how the heck do you read it!

> >

> >

> > At 09:37 AM 10/23/2001, you wrote:

> > >I sent them to you, .

> > >

> > >Salli, Self-Appointed Guardian of the Autism Tests

> > >

> > >

> > >Yahoo! Groups

> >

> >Sponsor<<http://rd.yahoo.com/M=210672.1513963.3091383.1442549/D=egroupweb

> /S=>http://rd.yahoo.com/M=210672.1513963.3091383.1442549/D=egroupweb/S=

>1705061616:HM/A=656841/R=0/*<http://www.prostateinfo.com/piyg>http://www.prosta\

teinfo.com/piyg>

> > >

> > >

> > >

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What's the score?

Salli

Enrique, 14, AS, TS

, 12, NT

Sophia, 7, NT

Xavier, aka PUTTER!, 5, autism

o, 2, NT

Re: Hello!

> Uhhhh I just did the ATECH but how the heck do you read it!

>

>

> At 09:37 AM 10/23/2001, you wrote:

> >I sent them to you, .

> >

> >Salli, Self-Appointed Guardian of the Autism Tests

> >

> >

> >Yahoo! Groups

>

>Sponsor<http://rd.yahoo.com/M=210672.1513963.3091383.1442549/D=egroupweb/S=

1705061616:HM/A=656841/R=0/*http://www.prostateinfo.com/piyg>

> >

> >

> >

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NEVER MIND! I swear some days I am so dense it isn't funny!

Here you go!

Is this good or bad!

I. Speech/Language/Communication: 19

II. Sociability: 28

III. Sensory/Cognitive Awareness: 27

IV. Health/Physical/Behavior: 24

Total ATEC Summary Score: 98

Wife to

Mom to Ben 4.5 (aka Godzilla)

On call milk machine to Abby 15 mths (aka stinkerbell)

" Some days you are the Bug, some days you are the Windshield "

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> NEVER MIND! I swear some days I am so dense it isn't funny!

One of those natural blonde moments, no doubt...

>

> Here you go!

> Is this good or bad!

\

Good or bad? Well, it just IS. It's higher than Putter but Putter is older

and has had more interventions probably. Putter would have been higher last

year, but the first time I took the test, which was less than a year ago,

Putter was in the upper 80's, I think, but I have lost the piece of paper

somewhere in this office.

>

> I. Speech/Language/Communication: 19

> II. Sociability: 28

> III. Sensory/Cognitive Awareness: 27

> IV. Health/Physical/Behavior: 24

> Total ATEC Summary Score: 98

Anything above thirty is considered to be in the autistic ballpark, but I am

sure kids without autism could score over thirty for a whole variety of

reasons (however, I do think any kid who scored above thirty would be a

child with a few issues that need working on....) Most of us just use the

ATEC to compare our kids with themselves and see how much progress has been

made because it doesn't really make much sense to compare them to each

other. They are all SO different.

Salli

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Thanks when I get a few mins to myself I will so the other one!

At 10:48 AM 10/23/2001, you wrote:

> > NEVER MIND! I swear some days I am so dense it isn't funny!

>

>One of those natural blonde moments, no doubt...

> >

> > Here you go!

> > Is this good or bad!

>\

>Good or bad? Well, it just IS. It's higher than Putter but Putter is older

>and has had more interventions probably. Putter would have been higher last

>year, but the first time I took the test, which was less than a year ago,

>Putter was in the upper 80's, I think, but I have lost the piece of paper

>somewhere in this office.

> >

> > I. Speech/Language/Communication: 19

> > II. Sociability: 28

> > III. Sensory/Cognitive Awareness: 27

> > IV. Health/Physical/Behavior: 24

> > Total ATEC Summary Score: 98

>

>Anything above thirty is considered to be in the autistic ballpark, but I am

>sure kids without autism could score over thirty for a whole variety of

>reasons (however, I do think any kid who scored above thirty would be a

>child with a few issues that need working on....) Most of us just use the

>ATEC to compare our kids with themselves and see how much progress has been

>made because it doesn't really make much sense to compare them to each

>other. They are all SO different.

>

>Salli

>

>

>

>Yahoo! Groups

>Sponsor<http://rd.yahoo.com/M=210672.1513963.3091383.1442549/D=egroupweb/S=1705\

061616:HM/A=655208/R=0/*http://www.prostateinfo.com/piya>

>

>

>

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