Re: medicaid uses in autism??

[Guest guest]

,I agree with you.  so you never wanted or needed to use the PT, speech, or OT it would provide?Yes, that is what I wish too.  I wish we weren't in the whole either.  Our farm wouldhave been paid off two years ago, now we have another 125,000 to go! and more in the whole besides.

The drugs we did were antibiotics, Xopanex, Pulmacort.  the antibiotics that cover both strep and staph (which he would get at the same time) are extremely pricey and not covered under insurance.Then there were all those trips to the emergency room for anaphylaxis, sudden onset pneumonia, fecal impaction etc...

We were lucky when his pediatrician opened up an urgent care, after hours clinic, and he takes Medicaid.  It has helped, but we were so far in the hole once it kicked in, We will be years digging ourselves out.

I am seriously thinking of just selling the farm and moving.  It is just so far to everything we do, and there is no support group out here.  It seems that north of Dallas has a lot more support, so I may start looking that way. 

We never did any type of psychotropics.  I am curious.  If your son got really sick --I mean mine would be fine one minute and wind up with a high fever and pneumonia within a couple of hours.  Did you handle these naturally?  If so, how?

I mean, now the point may be moot as he has not needed asthma meds since we started ACE.  Can you imagine?  I'm wondering if all these years it wasn't really adrenal issues.  I am still cautiously optimistic.

It is jsut frightening when your child gets bit by four our five mosquitoes and within an hour the staph has radiated to the size of oranges from every bite site within an hour!  It freaks me out!His last bout was in September/October.  We had pulled him from school by then, so I know that helped, but I really think putting him on ACE and starting AC has helped his immune system.

For now, the respite we get helps me keep my sanity through home schooling.  We have covered a lot of ground since September.  We are still seeing stimming, though.  That has become the toughest beast to conquer!  He had lost this, and then IV chelation brought it back, and I am trying everything to fight yeast, but the stimming remains.  It is greatly diminished to non-existent, at times, but usually on days 2 an 3 off a round, it is really constant.

Any thoughts on this?  I'm thinking maybe kefir would help with this?  Does it fight yeast?I wish there were something in the program that could help you all.  Of course my thinking is that they owe our children big time for what was done to them according to public policy.

Haven

[Guest guest]

Haven lots of questions there...I'll do my best. As for OT and speech, these

did not seem effective to me, so I didn't pursue them. I didn't feel as if OTs

understood the whole developmental picture. I didn't feel as if speech would

help a non-verbal child. We needed something much more intensive. The

work/cost it would take to get these took away from work I did in other areas to

get my kids well. It never seemed worth the work.

I implemented OT and speech with our home ABA program and then within our home

Son-Rise program.

I wanted my child home as much as possible. Otherwise we were risking

infection, risking constant fight or flight (primitive reflexes), constant

sensory overload, and it's very difficult to travel with cultured vegetables and

kale while the world eats gold fish and Mcnuggets.

As for how to treat infections. We were fortunate that we implemented his

healing path (that was working, though slowly) very early. I did this with

both of my wheezing kids at 6 months and 2 yrs old. I got them well at home.

I was scared to death to go to the ER when my son had seizures. I knew they

would put him on meds. I was scared to death for one more breathing treatment

as I knew it was making my kids worse. So I sat with them night after night

with them upright in the shower, using herbs, a perfect diet, enemas everyday

and I got my babies to clear their systems.

As for how to address symptoms with an older child. I don't believe meds are

the answer. I believe we need to address everything that is inflamming the

child. And add all that we can to stimulate immune function. I believe

herbs, homeopathy, natural ways of clearing the body....the way the body was

designed is the answer. If you do use steroids, antibiodics it's a temp fix.

A bandaid while further weakening the system. Setting the child up for repeated

infections.

Once my baby girl had green coming out of her eyes, she wheezed, my son gone,

diarhea, seizures.....I refused to take my baby girl to the doctor. I treated

her at home with my breastmilk while I did the body ecology diet, herbs,

probiotic foods etc...

The ECI worker in our home that day looked at me with stern eyes and said " get

that baby to the doctor. " I thought for sure they would call child services.

I had to stop my ECI services because what I was doing in my home from

enemas-tantrums over green drinks-to cultured raw foods-herbs, I believed I

would loose my children. I was so scared and felt so alone. But I knew I was

right. No way would I take my sick baby to the doctors for another drug.

Something snapped in me in those waiting rooms. " why are all these kids sick? "

Kids crying, mucous, sippy cups of milk, baggies of sugar processed foods...all

waiting for either an antibiodic or surgery to removed their inflammation.

I knew I was right and after about 18 months of daily diligence, my baby girl no

longer wheezed. After about 6 years my son has recovered and is well.

This is our story, for us, we got enough of the right direction and were able to

implement it fast enough to turn our challenges around.

Our kids are all different, all differently affected...but I believe overall

today's treatments are causing further insult to our already sick kids.

Overall I believe that given the right nutrients the body can begin to heal.

I'd go to the hospital for anaphalaxis. If you have to go for strep or staph, I

believe there are other routes to take to stop the vicious cycle. Treating an

infection may be something you have to do. But the route issue is not being

addressed in this way.

Your farm might be the best thing to hold onto. I love the life you describe.

As for being alone....girl I feel VERY ALONE. This lifestyle has created

wellness for my kids, and isolation for my husband and I. None of what we did

to help our kids was easy to travel to either. MANY times we talk of moving.

Then we realize that no matter where we go, we'll still be in the autism world.

We'll always be different and possibly isolated. We don't play video games,

sit on the computer, or watch tv. We eat real food and my kids do their own

chores. My kid missed his entire early childhood. We will be working with him

for the rest of his childhood. It's hard to find others to fit in with. I think

we all on this path feel alone for various reasons.

I think you are awesome my friend!

>

> ,

>

> I agree with you. so you never wanted or needed to use the PT, speech, or

> OT it would provide?

>

> Yes, that is what I wish too. I wish we weren't in the whole either. Our

> farm wouldhave been paid off two years ago, now we have another 125,000 to

> go! and more in the whole besides.

>

> The drugs we did were antibiotics, Xopanex, Pulmacort. the antibiotics that

> cover both strep and staph (which he would get at the same time) are

> extremely pricey and not covered under insurance.

>

> Then there were all those trips to the emergency room for anaphylaxis,

> sudden onset pneumonia, fecal impaction etc...

>

> We were lucky when his pediatrician opened up an urgent care, after hours

> clinic, and he takes Medicaid. It has helped, but we were so far in the

> hole once it kicked in, We will be years digging ourselves out.

>

> I am seriously thinking of just selling the farm and moving. It is just so

> far to everything we do, and there is no support group out here. It seems

> that north of Dallas has a lot more support, so I may start looking that

> way.

>

> We never did any type of psychotropics. I am curious. If your son got

> really sick --I mean mine would be fine one minute and wind up with a high

> fever and pneumonia within a couple of hours. Did you handle these

> naturally? If so, how?

>

> I mean, now the point may be moot as he has not needed asthma meds since we

> started ACE. Can you imagine? I'm wondering if all these years it wasn't

> really adrenal issues. I am still cautiously optimistic.

>

> It is jsut frightening when your child gets bit by four our five mosquitoes

> and within an hour the staph has radiated to the size of oranges from every

> bite site within an hour! It freaks me out!

>

> His last bout was in September/October. We had pulled him from school by

> then, so I know that helped, but I really think putting him on ACE and

> starting AC has helped his immune system.

>

> For now, the respite we get helps me keep my sanity through home schooling.

> We have covered a lot of ground since September.

>

> We are still seeing stimming, though. That has become the toughest beast to

> conquer! He had lost this, and then IV chelation brought it back, and I am

> trying everything to fight yeast, but the stimming remains. It is greatly

> diminished to non-existent, at times, but usually on days 2 an 3 off a

> round, it is really constant.

>

> Any thoughts on this? I'm thinking maybe kefir would help with this? Does

> it fight yeast?

>

> I wish there were something in the program that could help you all. Of

> course my thinking is that they owe our children big time for what was done

> to them according to public policy.

>

> Haven

>

[Guest guest]

Girl, you have GOT to write a book and tell your story!  I'm good at editing (when I am not in a hurry!)  You are very brave to do why you did.  I am still too ingrained int hinking a doctor will help when they have helped very little, and the lat trip to the ER was a nightmare, and they misdiagnosed him.

I have always believed these drugs were just a band-aid.  I'm all for finding the root of the problem.Did you ever read " The Maker's Diet. " ?Speech, PT, and OT have helped my son, so we are going to use it until the stuff gets cut.  Then we will be back to doing everything on our own.  At least we will still have RPM, and that has also really helped him to learn his academics.

Get started on that book!My " dream " is an autism community where we all live and work and there is a real school designed for our kids, and the Whole Foods Market is within walking distance.   I think someone built one for adults upnorth somewhere.