Guest guest Posted May 4, 2010 Report Share Posted May 4, 2010 Have you had a chest x-ray to rule out a persistent pnuemonia which may be part of the myeloma? What is the possibility that the myeloma is effecting your lungs ability to exchange oxygen & wastes in the capillaries? I know the myeloma has to do with plasma cells Im assuming the blue tube you are referring to is a ventolin inhaler? If conventional asthma meds are not having any kind of effect on this issue, you might persue looking into Vocal Cord Dysfunction, which looks and acts ALOT like asthma but does not respond to asthma treatments. Madeline is a member of the group who has a wealth of knowledge about VCD. Many doctors misdiagnose it as asthma. Asthma I have had trouble with asthma for a full year now. It started after a cold and since then I always feel a restriction in my throat (or an elephant on my ribcape). I walk about 100 steps and then I have to stop, huffing and puffing for about 5 minutes until my breath is even. The blue tube does not work on me (I actually do not have any typical asthma attacks). There is no wheezing, just the restriction when I want to breathe. I have tried Advair and Alvesco but I do not feel any relief. Apart from that, I have multiple myeloma and am very weak. Would anybody have a suggestion? Thanks in advance. Irmgard in Montreal Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2010 Report Share Posted May 10, 2010 I have been diagnosed with VCD along with the asthma. The lung functions confirm asthma but my symptoms are more than the test results reflect. I still have shortness of breath, and hoarseness. It is definitely better when I use the nebulizer every six hours but it is too exhausting to get up in the middle of the night and use the nebulizer. I am scheduled to see an ENT Friday the 14th and he is to be the best in this area. So I’ll see then. If anyone has any input about VCD I would like to hear about it. Many thanks! Melinda Atlanta, GA -----Original Message----- From: asthma [mailto:asthma ]On Behalf Of FFTaz71@... Sent: Tuesday, May 04, 2010 9:59 PM To: asthma Subject: Re: Asthma Have you had a chest x-ray to rule out a persistent pnuemonia which may be part of the myeloma? What is the possibility that the myeloma is effecting your lungs ability to exchange oxygen & wastes in the capillaries? I know the myeloma has to do with plasma cells Im assuming the blue tube you are referring to is a ventolin inhaler? If conventional asthma meds are not having any kind of effect on this issue, you might persue looking into Vocal Cord Dysfunction, which looks and acts ALOT like asthma but does not respond to asthma treatments. Madeline is a member of the group who has a wealth of knowledge about VCD. Many doctors misdiagnose it as asthma. -----Original Message----- From: irmgardlochmann <irmgardlochmann> To: asthma Sent: Tue, May 4, 2010 12:12 pm Subject: Asthma I have had trouble with asthma for a full year now. It started after a cold and since then I always feel a restriction in my throat (or an elephant on my ribcape). I walk about 100 steps and then I have to stop, huffing and puffing for about 5 minutes until my breath is even. The blue tube does not work on me (I actually do not have any typical asthma attacks). There is no wheezing, just the restriction when I want to breathe. I have tried Advair and Alvesco but I do not feel any relief. Apart from that, I have multiple myeloma and am very weak. Would anybody have a suggestion? Thanks in advance. Irmgard in Montreal Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 11, 2010 Report Share Posted May 11, 2010 That would be Madeline for info on the VCD. I will have to kick her butt if she doesn't get back on here soon. I will call her tonight. Cheryl Burton ncicheryl@... To: asthma Sent: Mon, May 10, 2010 7:19:57 PMSubject: RE: Asthma I have been diagnosed with VCD along with the asthma. The lung functions confirm asthma but my symptoms are more than the test results reflect. I still have shortness of breath, and hoarseness. It is definitely better when I use the nebulizer every six hours but it is too exhausting to get up in the middle of the night and use the nebulizer. I am scheduled to see an ENT Friday the 14th and he is to be the best in this area. So I’ll see then. If anyone has any input about VCD I would like to hear about it. Many thanks! Melinda Atlanta, GA -----Original Message----- From: asthmayahoogroups (DOT) com [mailto:asthma@ yahoogroups. com]On Behalf Of FFTaz71aol (DOT) com Sent: Tuesday, May 04, 2010 9:59 PM To: asthmayahoogroups (DOT) com Subject: Re: Asthma Have you had a chest x-ray to rule out a persistent pnuemonia which may be part of the myeloma? What is the possibility that the myeloma is effecting your lungs ability to exchange oxygen & wastes in the capillaries? I know the myeloma has to do with plasma cells Im assuming the blue tube you are referring to is a ventolin inhaler? If conventional asthma meds are not having any kind of effect on this issue, you might persue looking into Vocal Cord Dysfunction, which looks and acts ALOT like asthma but does not respond to asthma treatments. Madeline is a member of the group who has a wealth of knowledge about VCD. Many doctors misdiagnose it as asthma. -----Original Message----- From: irmgardlochmann <irmgardlochmann@ yahoo.com> To: asthmayahoogroups (DOT) com Sent: Tue, May 4, 2010 12:12 pm Subject: Asthma I have had trouble with asthma for a full year now. It started after a cold and since then I always feel a restriction in my throat (or an elephant on my ribcape). I walk about 100 steps and then I have to stop, huffing and puffing for about 5 minutes until my breath is even. The blue tube does not work on me (I actually do not have any typical asthma attacks). There is no wheezing, just the restriction when I want to breathe. I have tried Advair and Alvesco but I do not feel any relief. Apart from that, I have multiple myeloma and am very weak. Would anybody have a suggestion? Thanks in advance. Irmgard in Montreal Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 11, 2010 Report Share Posted May 11, 2010 Thank you!! To: asthma Sent: Tue, May 11, 2010 1:44:18 PMSubject: Re: Asthma That would be Madeline for info on the VCD. I will have to kick her butt if she doesn't get back on here soon. I will call her tonight. Cheryl Burton ncicherylyahoo (DOT) com From: Melinda Chatham <melindachatham@ bellsouth. net>To: asthmayahoogroups (DOT) comSent: Mon, May 10, 2010 7:19:57 PMSubject: RE: Asthma I have been diagnosed with VCD along with the asthma. The lung functions confirm asthma but my symptoms are more than the test results reflect. I still have shortness of breath, and hoarseness. It is definitely better when I use the nebulizer every six hours but it is too exhausting to get up in the middle of the night and use the nebulizer. I am scheduled to see an ENT Friday the 14th and he is to be the best in this area. So I’ll see then. If anyone has any input about VCD I would like to hear about it. Many thanks! Melinda Atlanta, GA Asthma I have had trouble with asthma for a full year now. It started after a cold and since then I always feel a restriction in my throat (or an elephant on my ribcape). I walk about 100 steps and then I have to stop, huffing and puffing for about 5 minutes until my breath is even. The blue tube does not work on me (I actually do not have any typical asthma attacks). There is no wheezing, just the restriction when I want to breathe. I have tried Advair and Alvesco but I do not feel any relief.Apart from that, I have multiple myeloma and am very weak.Would anybody have a suggestion? Thanks in advance.Irmgard in Montreal Quote Link to comment Share on other sites More sharing options...
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