Re: Hello

February 4, 2000

>went to the new doc today -

fastings were 317 - he wasn't too concerned >

****Gee, , I would be very concerned with a reading

that high. I sure hope the folks at the center can help you get this

straightened out. The trouble is, I think, that one disease is feeding on

the other, and I'll bet if you could get your bg's under control that your

depression would lessen a lot. Way back 30 years ago or so, my doc who

diagnosed me hypoglycemic was going into metal institutions, putting the

patients on low carb diets, and about 1/3 of them recovered completely and

pretty quickly too.

The best of luck to you, and we're all with you,

Barb

--------------

RAINBOW FARM UNLTD.

Breeding Premium Oldenburgs,

and fancy sport ponies.

http://www.rainbowfarm.com

Re: hello

>

>hi everyone - just to let you know - went to the new doc today -

>fastings were 317 - he wasn't too concerned - didn't know anything about

>bi-polar as they said he did - came home, talked to dh and the kids for

>a long long time - i am going into the behavioral health facility on

>sunday for a few days - someone will help me with sugars, help me with

>depression and teach my how to feel good enough about myself to want to

>be healthy - while i am so depressed, this decision is almost a relief -

>am terrified - but this is a wonderful place and i think that they can

>help us - the kids and dh suffer with this also - when i am off they are

>too.

>

>thanks so very much for everything

>i will be on no mail as of sunday at 5:30

>nancy

>

>---------------------------

February 4, 2000

hi everyone - just to let you know - went to the new doc today -

fastings were 317 - he wasn't too concerned - didn't know anything about

bi-polar as they said he did - came home, talked to dh and the kids for

a long long time - i am going into the behavioral health facility on

sunday for a few days - someone will help me with sugars, help me with

depression and teach my how to feel good enough about myself to want to

be healthy - while i am so depressed, this decision is almost a relief -

am terrified - but this is a wonderful place and i think that they can

help us - the kids and dh suffer with this also - when i am off they are

too.

thanks so very much for everything

i will be on no mail as of sunday at 5:30

nancy

February 4, 2000

,

Sounds like a good and brave choice for you. You know, I hate to be

negative, but this doc doesn't sound too sharp. Perhaps someone at the

health facility can recommend a doc? In any case, I'm glad you're going to

be getting some assistance. Will keep you in mind.

Hugs,

Teri

Re: hello

>

> hi everyone - just to let you know - went to the new doc today -

> fastings were 317 - he wasn't too concerned - didn't know anything about

> bi-polar as they said he did - came home, talked to dh and the kids for

> a long long time - i am going into the behavioral health facility on

> sunday for a few days - someone will help me with sugars, help me with

> depression and teach my how to feel good enough about myself to want to

> be healthy - while i am so depressed, this decision is almost a relief -

> am terrified - but this is a wonderful place and i think that they can

> help us - the kids and dh suffer with this also - when i am off they are

> too.

>

> thanks so very much for everything

> i will be on no mail as of sunday at 5:30

> nancy

>

> ---------------------------

February 4, 2000

teri - that is what we are hoping for -the place that i am going to is

tremendous and has an excellent staff - it is really rather luxurious -

with a lovely (la di da ) veranda etc - too bad the veranda is full of

snow right now :>) i know that they will help me - and teach me how to

eat correctly - i will see a nutritionist and be counseled by her - also

will be taught to do correct blood sugars and when - i can only see

steve and the kids tuesday and thursday night and sat and sun for a

little while - this will not be fun - but i am going for help - so here

we go - my stomach is heaving

hugs

Teri wrote:

>

> ,

>

> Sounds like a good and brave choice for you. You know, I hate to be

> negative, but this doc doesn't sound too sharp. Perhaps someone at the

> health facility can recommend a doc? In any case, I'm glad you're going to

> be getting some assistance. Will keep you in mind.

>

> Hugs,

> Teri

>

> Re: hello

>

> >

> > hi everyone - just to let you know - went to the new doc today -

> > fastings were 317 - he wasn't too concerned - didn't know anything about

> > bi-polar as they said he did - came home, talked to dh and the kids for

> > a long long time - i am going into the behavioral health facility on

> > sunday for a few days - someone will help me with sugars, help me with

> > depression and teach my how to feel good enough about myself to want to

> > be healthy - while i am so depressed, this decision is almost a relief -

> > am terrified - but this is a wonderful place and i think that they can

> > help us - the kids and dh suffer with this also - when i am off they are

> > too.

> >

> > thanks so very much for everything

> > i will be on no mail as of sunday at 5:30

> > nancy

> >

> > ---------------------------

February 4, 2000

At 04:27 PM 2/4/00 -0500, you wrote:

>

>hi everyone - just to let you know - went to the new doc today -

>fastings were 317 - he wasn't too concerned - didn't know anything about

This is REALLY SCARY!!!!! The current ADA diagnosis cut-off is two FBS

readings of *126* or higher. And your Doc wasn't concerned!!!???

>bi-polar as they said he did - came home, talked to dh and the kids for

>a long long time - i am going into the behavioral health facility on

>sunday for a few days - someone will help me with sugars, help me with

>depression and teach my how to feel good enough about myself to want to

>be healthy - while i am so depressed, this decision is almost a relief -

>am terrified - but this is a wonderful place and i think that they can

>help us - the kids and dh suffer with this also - when i am off they are

>too.

Hopefully they can help you find a doctor who is really " with it " about

diabetes.

in Constable

February 5, 2000

Hello Zissy;

My name is Michele. I'm a type 1. I've lived with diabetes most of my

life. If there is many thing that I can do to help you Please Email Me at

clickness@.... I know what it is like to need a shoulder to cry on and

someone just to listen. I'm hear for you. and anyone else. That needs

someone to listen/read.

May God Bless you today.

February 5, 2000

Hi, Zissy.

(This answering of e-mails at this point is called procrastination against

paying bills. -- Is that good for a laugh?? -- ;-o )

Any way, you sound quite discouraged and in need of a hand-up. Naomi said some

very helpful things. Read. Try eating the low carbohydrate way. All this

can be really confusing. Another group I'm in (a hypoglycemia group) had

several people asking where to start with the diet, etc. until they can learn /

read enough to make a go of things on their own.

The best book I know of for you to get your hands on is Dr. Bernstein's " Dr.

Bernstein's Diabetic Solution. " Try Amazon.com for it.

Let me give you my answer that I wrote to one of them about diet. I saved it

because I figured someone else might find it helpful someday. Hope it helps.

here goes --

>

> Beginner’s Diet ---

>

> Hi, Jill --

>

> I don't think there is any such thing as a " standard " diet for hypos

> [diabetics]. Most of us on this list I think follow a low-carb regimen. Or

> at least a low starch one.

>

> Generally speaking, stick with protein foods, and vegetables and fruits.

> (Light on the fruit.) Ignore the bottom layer of the traditional Food

> Pyramid. To start with, I think the best thing you can do is cut out all

> starches and sugars. --- Bread, pasta, rice, potatoes, winter squashes,

> etc. Also high-sugar fruit such as bananas.

>

> Concentrate on protein - meat, cheese, eggs, fish. A small portion (3 - 4

> oz or about 30 grams) a meal. Add to that *lots* of veggies - raw and

> cooked. I use about 8 oz at lunch (broccoli, tomatoes, cuke and mushrooms --

> you have your own choice here). At supper, it's more of these in a salad

> (maybe 6 oz), plus usually 2 cooked veggies. For flavor, I make a dip using

> yogurt and sour cream -or - mayo, plus about 1-1/2 Tbsp of dry soup or salad

> dressing mix -- about a half packet. I sometimes use this for salad

> dressing -- thinned with vinegar -- sometimes. Or I use a regular salad

> dressing. I use fruit for dessert -- apples,pears, strawberries and peaches

> (in season), etc.

>

> This can be a take-it-with-you lunch. Chop everything up, including the

> meat (I use Deli turkey). Put in the dressing/dip, and you have a crunchy

> salad. Add the fruit as separate.

>

> Meanwhile, here are some helpful websites you can search to find food lists

> developed by others. These would have a bit more clout as to testing, etc.

> But read everything with care and a grain of salt. (Sometimes several

> grains.) Your final decision on a routine may be different from mine.

> (YMMV, as they say. -- Your Mileage May Vary.)

>

> http://www.diabetes-normalsugars.com/ (Bernstein. Diabetes.)

>

> http://www.enterthezone.com/ -- Official home of the Zone diet

>

> http://www.cs.umass.edu/~swan/zone.html -- UNOFFICIAL Zone links

http://www.carbohydrateaddicts.com/ -- The Hellers' Carb Addicts Page

>

> http://www.mendosa.com/ (Rick Mendosa's Homepage)

>

> http://www.glycemic.com/ (Glycemic Research Institute Homepage.)

>

> http://www.cruzio.com/~mendosa/gilists.htm (The actual lists of foods and

> values.)

>

> http://www.dynanet.com/~bodychem/ -- Krimmels' site

>

> http://www.atkinscenter.com/diet101.html - Atkins diet Homepage

>

> http://www.huizen2.dds.nl/~hypo/index.htm -- Hypoglycemia Homepage

Holland. A

> very extensive site with tons of links to other sites.

>

> http://www.fred.net/slowup/haidiet.txt -- Hypoglycemia Association Diet

>

> And these on the Glycemic Index ---

>

> http://www.mendosa.com/gi.htm (Rick Mendosa's treatise on the GI.)

>

> http://www.glycemic.com/ (Glycemic Research Institute Homepage.)

>

> http://www.glycemic.com/inter.html (Women's fitness interviews.)

I can't help you with the meds because I'm not on any. Someone else can help

you there. That's the beauty of this group.

(And now it's time to go fix supper, so the bills get put off for another few

hours.)

----------------------------

At 11:10 AM 2/5/00 -0800, you wrote:

>

>I wanted to introduce myself so here goes. My name is Zissy pronounced

>Sissy it's a nickname that I have had for a good part of my life. I live

>in Bellflower CA which is in Los Angeles county. I moved here from Cocoa

>Beach, Florida on Sept. 4th, 1998. I have a son his name is and

>he lives in Florida until he graduates. I live with my boyfriend Glenn

>and his family. We moved in to help his parents with expenses because

>Glenn's sister started UC San Diego and the housing is expensive. I'm

>going to school for Computer Operator and Web Design and if I can start

>feeling better then one day I will finish.

>

in Constable

February 5, 2000

This regimen works very well for and many others. I would like to

point out though that NO regimen works for everyone, and that consulting

your doctor, diabetes educator, and/or nutritionist is a good thing to do

before beginning any radically different WOE (way of eating).

I am all for cutting out a level of the pyramid (breads, rice, potatoes,

pasta) IF that is what is best for the individual. However, my doctor,

diabetes educator, AND nutritionist are all against this method. They feel

that it does not provide balanced nutrition, and in some cases the higher

amount of protein can put too much stress on the kidneys.

I realize we've had this discussion before, and some of you are probably

getting tired of my objections to some posts, but I will continue to do so

as long as anyone posts that the " best " thing anyone can do is to totally

remove a food group and load up on protein. It IS the best for SOME people,

but not for everyone.

As Susie has helpfully show me, yes, I do watch my carbs, but I watch

EVERYTHING. I make things from scratch rather than mixes in order to avoid

sugars. Carbs are one consideration when I choose my exchanges from the

pyramid. This is what works for me and for some others. Some of us can

still eat starches as long as they are part of a balanced nutrition plan.

So, all I am asking is that we all keep in mind that there is no ONE best

plan. I for one, tried eating very much as describes, and gained 11

pounds in three weeks as my glucose levels raised an average of 20 points.

Public web site for this list may be found at www.msteri.com/diabetes

Teri

T2, nutrition & exercise, 4/99

This isn't a diet. It's a permanent lifestyle change.

I WILL do this!

Re: Hello

>

> Hi, Zissy.

>

Naomi said some

> very helpful things. Read.

>

> The best book I know of for you to get your hands on is Dr. Bernstein's

" Dr.

> Bernstein's Diabetic Solution. " Try Amazon.com for it.

>

> > Beginner's Diet ---

> >

> > Generally speaking, stick with protein foods, and vegetables and

fruits.

> > (Light on the fruit.) Ignore the bottom layer of the traditional Food

> > Pyramid. To start with, I think the best thing you can do is cut out

all

> > starches and sugars. --- Bread, pasta, rice, potatoes, winter squashes,

> > etc. Also high-sugar fruit such as bananas.

> >

> > Concentrate on protein - meat, cheese, eggs, fish. A small portion (3 -

4

> > oz or about 30 grams) a meal. Add to that *lots* of veggies - raw

and

> > cooked. I use about 8 oz at lunch (broccoli, tomatoes, cuke and

mushrooms --

> > you have your own choice here). At supper, it's more of these in a

salad

> > (maybe 6 oz), plus usually 2 cooked veggies. For flavor, I make a dip

using

> > yogurt and sour cream -or - mayo, plus about 1-1/2 Tbsp of dry soup or

salad

> > dressing mix -- about a half packet. I sometimes use this for salad

> > dressing -- thinned with vinegar -- sometimes. Or I use a regular

salad

> > dressing. I use fruit for dessert -- apples,pears, strawberries and

peaches

> > (in season), etc.

> >

> > This can be a take-it-with-you lunch. Chop everything up, including

the

> > meat (I use Deli turkey). Put in the dressing/dip, and you have a

crunchy

> > salad. Add the fruit as separate.

> >

> > Meanwhile, here are some helpful websites you can search to find food

lists

> > developed by others. These would have a bit more clout as to testing,

etc.

> > But read everything with care and a grain of salt. (Sometimes several

> > grains.) Your final decision on a routine may be different from mine.

> > (YMMV, as they say. -- Your Mileage May Vary.)

> >

> > http://www.diabetes-normalsugars.com/ (Bernstein. Diabetes.)

> >

> > http://www.enterthezone.com/ -- Official home of the Zone diet

>

> >

> > http://www.cs.umass.edu/~swan/zone.html -- UNOFFICIAL Zone links

>

> http://www.carbohydrateaddicts.com/ -- The Hellers' Carb Addicts Page

>

> >

> > http://www.mendosa.com/ (Rick Mendosa's Homepage)

>

> >

> > http://www.glycemic.com/ (Glycemic Research Institute Homepage.)

>

> >

> > http://www.cruzio.com/~mendosa/gilists.htm (The actual lists of

foods and

> > values.)

>

> >

> > http://www.dynanet.com/~bodychem/ -- Krimmels' site

>

> >

> > http://www.atkinscenter.com/diet101.html - Atkins diet Homepage

>

> >

> > http://www.huizen2.dds.nl/~hypo/index.htm -- Hypoglycemia Homepage

> Holland. A

> > very extensive site with tons of links to other sites.

> >

> > http://www.fred.net/slowup/haidiet.txt -- Hypoglycemia Association Diet

>

> >

> > And these on the Glycemic Index ---

> >

> > http://www.mendosa.com/gi.htm (Rick Mendosa's treatise on the GI.)

> >

> > http://www.glycemic.com/ (Glycemic Research Institute Homepage.)

> >

> > http://www.glycemic.com/inter.html (Women's fitness interviews.)

>

> I can't help you with the meds because I'm not on any. Someone else can

help

> you there. That's the beauty of this group.

>

> (And now it's time to go fix supper, so the bills get put off for another

few

> hours.)

>

> ----------------------------

> At 11:10 AM 2/5/00 -0800, you wrote:

> >

> >I wanted to introduce myself so here goes. My name is Zissy pronounced

> >Sissy it's a nickname that I have had for a good part of my life. I live

> >in Bellflower CA which is in Los Angeles county. I moved here from Cocoa

> >Beach, Florida on Sept. 4th, 1998. I have a son his name is and

> >he lives in Florida until he graduates. I live with my boyfriend Glenn

> >and his family. We moved in to help his parents with expenses because

> >Glenn's sister started UC San Diego and the housing is expensive. I'm

> >going to school for Computer Operator and Web Design and if I can start

> >feeling better then one day I will finish.

> >

>

> in Constable

>

> ---------------------------

February 5, 2000

Wow what a warm welcome!!! ô¿ô

I appreciate all of the help and kind words that were given to me. I

have a lot of reading to do and I will check out everything that each

and everyone of you sent me. I just got home from a long day trying to

find Glenn some new Snow Board Boots and Bindings so I'm going to sit

here and go to each site that was sent to me to check out. Hugs, Zissy

February 6, 2000

Hi, , tha t was a REALLY EXCELLENT post to Zissy...I must have missed it

the first time so I'm glad you saved it. I'm going to also, just for general

reference...and if someone needs it and you're not around to send it, I will!

Thanks again. Vicki

February 6, 2000

In a message dated 00-02-05 17:49:39 EST, you write:

<< Carbs are one consideration when I choose my exchanges from the

pyramid. This is what works for me and for some others. Some of us can

still eat starches as long as they are part of a balanced nutrition plan.

>>

Yes indeed, Teri...I advocate a low-carb WOE but I personally do eat about

100-125 carbs a day (more if I'm eating out) and cover with insulin. I guess

this would be called only a moderately low carb diet, since the classic food

pyramid probably would have about 300 carbs a day. And most Americans eat

considerably more than that. I think the key is frequent testing to learn how

your body reacts to foods, with special focus on carbs. Vicki (PS: I can

do this because I'm one of those thin type 1.5s so don't have to worry about

weight component).

February 6, 2000

In a message dated 00-02-06 21:10:43 EST, you write:

<< Ditto! Vicki always talks for me too, more eloquently

though :-), as I am a thin type 1.5 also, and eat the same as she does

pretty much.

>>

Thanks for the sweet words, partner-in-crime! Vicki

February 6, 2000

Vicki wrote:

>Yes indeed, Teri...I advocate a low-carb WOE but I personally do eat about

100-125 carbs a day (more if I'm eating out) and cover with insulin. I

guess

this would be called only a moderately low carb diet, since the classic

food

pyramid probably would have about 300 carbs a day. And most Americans eat

considerably more than that. I think the key is frequent testing to learn

how

your body reacts to foods, with special focus on carbs. Vicki (PS: I can

do this because I'm one of those thin type 1.5s so don't have to worry about

weight component). >

****Ditto! Vicki always talks for me too, more eloquently

though :-), as I am a thin type 1.5 also, and eat the same as she does

pretty much.

Barb

--------------

RAINBOW FARM UNLTD.

Breeding Premium Oldenburgs,

and fancy sport ponies.

http://www.rainbowfarm.com

Re: Hello

>From: WHIMSY2@...

>

>In a message dated 00-02-05 17:49:39 EST, you write:

>

><< Carbs are one consideration when I choose my exchanges from the

> pyramid. This is what works for me and for some others. Some of us can

> still eat starches as long as they are part of a balanced nutrition plan.

> >>

>

>Yes indeed, Teri...I advocate a low-carb WOE but I personally do eat about

>100-125 carbs a day (more if I'm eating out) and cover with insulin. I

guess

>this would be called only a moderately low carb diet, since the classic

food

>pyramid probably would have about 300 carbs a day. And most Americans eat

>considerably more than that. I think the key is frequent testing to learn

how

>your body reacts to foods, with special focus on carbs. Vicki (PS: I can

>do this because I'm one of those thin type 1.5s so don't have to worry

about

>weight component).

>

>---------------------------

February 7, 2000

At 05:45 PM 2/5/00 -0500, you wrote:

>

>This regimen works very well for and many others. I would like to

>point out though that NO regimen works for everyone, and that consulting

>your doctor, diabetes educator, and/or nutritionist is a good thing to do

>before beginning any radically different WOE (way of eating).

I think I mentioned YMMV. (Maybe didn't emphasize it.) To quote from a

post (this mail) by Whimsy2 --

>From: WHIMSY2@...:

>

>Yes indeed, Teri...I advocate a low-carb WOE but I personally do eat about

>100-125 carbs a day (more if I'm eating out) and cover with insulin. I guess

>this would be called only a moderately low carb diet, since the classic food

My total intake is a minimum of 130 carbs a day. Sometimes up to 150 or

160. BUT these are all from sources such as veggies and fruits. Hardly

any carbs come from Tier 1 of the Pyramid. A rare sandwich (week-ends).

No potatoes, pasta, rice, etc. I do find I can tolerate acorn squash.

Since my BG is completely controlled by diet (I'm type 2, discovered

early), I do not need to adjust insulin dosage.

My goal for protein is 97 g a day. Fat goal is 43 gpd. I am occasionally

under on the protein and usually over on the fat. Fiber intake is

anywhere from 25 g to 35 gpd. (I start off with 13 g fiber in my 1/2 cup

of Fiber One. -- My one daily compromise with the Pyramid Tier One. )

>I am all for cutting out a level of the pyramid (breads, rice, potatoes,

>pasta) IF that is what is best for the individual. However, my doctor,

>diabetes educator, AND nutritionist are all against this method. They feel

>that it does not provide balanced nutrition, and in some cases the higher

>amount of protein can put too much stress on the kidneys.

[snip]

in Constable

February 14, 2000

Zissy wrote:

<< The day I was diagnosed my random blood sugar level was 496

and since that day I have been struggling to keep it down and I haven't

been under 200. I went from 5 mg. of Glipizide once a day to 10 mg. once

a day and now I am on 10 mg. twice a day and still no dice. >>

There is some recent research hinting that we can predict diabetics' future

complications by examining their DNA structure. You are taking Glipizide,

which is one of the sulfonylureas. I am very much opposed to diabetics using

sulfonylureas, because IMO they go about treating diabetes all wrong. Your

pancreas beta cells are already overstressed from years of worsening insulin

resistance. What sulfs do is beat on the pancreas to produce yet more

insulin. You are in effect borrowing from the future to continue on

temporarily. You are shortening the time until your pancreas poops out

entirely with this medicine. What we want to do instead is to *baby* our

pancreas. It would be better for you to go on insulin now, while you still

have pancreas function remaining, than wait until it is too late, because

then you will have to conduct yourself like a type 1 ... your body's

response to carbohydrates will be more brittle.

Have you tried Glucophage yet? Why not try 500 mg, three times a day, along

with regular exercise, weight loss, and lowering your carbohydrate intake?

Diet is the easiest way to nail the good numbers. Are you testing often, so

that you can see which foods give you the most problems, and which ones are

okay for you?

Susie

February 9, 2009

Hi Alanna,

My name is Deta and I to am new to the group. From what I have

read we all have different dx but yet it ALL leads to pain. Mine all

started in 03' & spinal fusion in 05 " and just escalated downhill from

there. I never heard of a pain psychologist, I need to find one tho.

I get SO overwhelmed I can't function sometimes. My mind won't

shut off and all I can do is cry and wring my hands. Not a fun time.

I'm sorry your husband is being a Butt. Sorry but if he isn't supporting

you that's what he is. I guess I am lucky that ALL my family is so

supportive and loving and caring. I hope I never take that for granite.

If you ever need to talk I'm usually around 24/7. About 4 hours sleep

is normal for me in a night. My recliner has become my best friend.

Won't bore you anymore, hope today is being kind to you.

> Hello everyone,

> My name is Alanna and I'm new to this group. My doctor recommended

> that I try to connect with other people with chronic pain. I'll be

> 52 next month, married and have two boys. is 12 and Noah is 9

> and they are the light of my life.

> My pain started the fall of 2004 with what I thought was the flu- but

> the body aches and fatigue never went away. I was able to fight it

> for about a year with vitamins and exercise, but then I woke up one

> morning with an unbearable backache. It spread to my right lower

> quadrant and despite an apendectomy and having my ovary removed, the

> pain remained. I have a diagnosis of Fibromyalgia/CFS, bulging discs

> at C-5 and C-6 and also at L-4 & L-5. I have unexplained leg pain

> (joint and muscle)) especially at night. When I wake up in the

> morning, I usually can't feel my arms. If I am up and about too

> much, I develop a neuropathic pain in my feet which is kind of like

> having no skin. I have had bad reactions to NSAIDs, neuroleptics,

> most antidepressants and many other categories of medications other

> than opiods. I am on massive doses of those just to keep the pain

> bearable. I live to take naps when the pain allows. I've also

> gained about 40 pounds since I've been sick despite diet and

> exercise.

> I worked as a Pharmacist for 25 years, but have been unemployed since

> June of 2006. I am on disablity through work and have a hearing

> scheduled in a couple of months to qualify for Social Security. I

> can't do a fraction of what I used to do around the house, which

> upsets my husband to no end. That really adds to my frustration. I

> have a really wonderful pain psychologist, several friends who are

> very empathetic and a number of angels who watch over me.

> I've been reading the e-mails for several days and am pretty confused

> by the " alphabet soup " of conditions that you all have. I'm sure I'll

> catch on.

> I look forward to getting to know you better.

> Alanna

>

--

Soft Hugs and Prayers,

Deta

February 9, 2009

Alanna,

Hi nice to meet you. My name is Debbi, and my most debilating issue at this

moment is constant severe migraines. I just was released from the hospital

friday after a weeks stay. The pain has been unbearable. We have a pain doc that

worked realy hard with me & have gone thru facet joint injections, as well as

other things, some so invasive I had to be asleep.

I also have fibromylagia and some days the effert to get out of bed is almost

too much. I really do hear you about the pain & how your life has changed. I am

so sorry. A question; have you beed dx'd with chronic fatigue? Im not a doc, but

your early symptoms sound so much like mine and I was dx'd with that in my 20's.

I am now 45. I also have depression which I really believe is tied into the

pain.

You will be 52 next month? Happy early birthday. Take care & keep writing,

Debbi

________________________________

To: Hugs-N-Pain

Sent: Monday, February 9, 2009 2:13:14 PM

Subject: Hello

Hello everyone,

My name is Alanna and I'm new to this group. My doctor recommended

that I try to connect with other people with chronic pain. I'll be

52 next month, married and have two boys. is 12 and Noah is 9

and they are the light of my life.

My pain started the fall of 2004 with what I thought was the flu- but

the body aches and fatigue never went away. I was able to fight it

for about a year with vitamins and exercise, but then I woke up one

morning with an unbearable backache. It spread to my right lower

quadrant and despite an apendectomy and having my ovary removed, the

pain remained. I have a diagnosis of Fibromyalgia/ CFS, bulging discs

at C-5 and C-6 and also at L-4 & L-5. I have unexplained leg pain

(joint and muscle)) especially at night. When I wake up in the

morning, I usually can't feel my arms. If I am up and about too

much, I develop a neuropathic pain in my feet which is kind of like

having no skin. I have had bad reactions to NSAIDs, neuroleptics,

most antidepressants and many other categories of medications other

than opiods. I am on massive doses of those just to keep the pain

bearable. I live to take naps when the pain allows. I've also

gained about 40 pounds since I've been sick despite diet and

exercise.

I worked as a Pharmacist for 25 years, but have been unemployed since

June of 2006. I am on disablity through work and have a hearing

scheduled in a couple of months to qualify for Social Security. I

can't do a fraction of what I used to do around the house, which

upsets my husband to no end. That really adds to my frustration. I

have a really wonderful pain psychologist, several friends who are

very empathetic and a number of angels who watch over me.

I've been reading the e-mails for several days and am pretty confused

by the " alphabet soup " of conditions that you all have. I'm sure I'll

catch on.

I look forward to getting to know you better.

Alanna

February 9, 2009

Deta,

My name is Debbi. Not sure if we have talked or not... lol.... it has been a

very difficult week. As I was telling Alanna- I just got out of the hospital

from a weeks stay for intense migranes. Nice to meet you. Hang in there. Debbi

: )

________________________________

To: Hugs-N-Pain

Sent: Monday, February 9, 2009 2:33:57 PM

Subject: Re: Hello