Guest guest Posted March 22, 2009 Report Share Posted March 22, 2009 hi les how are you doing less pain i hope tell me about your self nice to mete you donnieKY From: snowlesley@rocketma il.com <snowlesley@rocketma il.com> Subject: Re: Looking for friends in a world of pain To: Hugs-N-Pain@ yahoogroups. com Date: Friday, March 13, 2009, 7:36 AM Unfortunately even Dr's are misinformed about chronic pain. Your Primary Care Dr. has only completed the minimum education requirement to obtain their medical license. Even neurologists and surgeons have not completed the coursework in the causes and treatment of pain. I just spoke to a respected neurologist/ surgeon that had me drive 120 miles to his office where he told me he did not want to do any surgery because of my age (29) and because he felt there was not a specific cause of my pain even though 5 seperate Dr's have diagnosed the same problem. Either way after not listening to a word I said he informed me that the way to treat chronic spinal pain/numbness, tingling etc. was to keep my weight down, exercise, and to remove myself from opiates and take Advil instead. I can tell you the exercise is out of the picture since I can barely walk and have been disabled for over a year. I still have a hard time believing that I am disabled even when I got SSI disability the first time I applied for it no questions asked. Either way I am learning that even though a Dr. might seem as if they know what they are talking about they might not. I have also learned that Dr's who think they know everything usually know the least and care the least and are too full of themselves to learn the truth. Thank you for reading my ramblings I stink as a writer Lesley > > > > > Hi, my name is Les , > > > I just joined your group, and I'm looking for members who are being > > treated > > > the way I'm being treated by Dr's ,(to find out if there's anything we > > can > > > do about this ) and it looks like I've entered such a discussion right > > here > > > ? Recently, Az. passed a law where everyone who is prescribed narcotics > > are > > > in a data base that all Dr's and pharmacists can look at . Now the Dr's > > are > > > using this to black-list and shun everyone on drugs that are chronic > > pain > > > sufferers ,and are treating us like we're drug addicts ! I left my PCP > > > recently because she lashed out at me and told me I don't need my > > opiates , > > > that they don't help my PN. I told her they do help my PN, and she > > repeated > > > " opiates don't help PN ! " I went to a new Dr , and she was even worse > > !She > > > told me to get rid of my drugs, and I told her if she has something that > > > will stop my pain, I will ,and all she could tell me was to increase my > > > Celexa , and keep looking ! She also told me I was going to die soon > > because > > > my lipids are so high that my triple bypass will fail , and that I was > > so > > > obese I should have surgery . She proceeded to insult me with one insult > > > after another , and even put down my pain Dr (thankfully I have this man > > to > > > control my pain )by saying those Dr's just wanted us to be addicts .This > > i Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2009 Report Share Posted March 22, 2009 hi les how are you doing less pain i hope tell me about your self nice to mete you donnieKY From: snowlesley@rocketma il.com <snowlesley@rocketma il.com> Subject: Re: Looking for friends in a world of pain To: Hugs-N-Pain@ yahoogroups. com Date: Friday, March 13, 2009, 7:36 AM Unfortunately even Dr's are misinformed about chronic pain. Your Primary Care Dr. has only completed the minimum education requirement to obtain their medical license. Even neurologists and surgeons have not completed the coursework in the causes and treatment of pain. I just spoke to a respected neurologist/ surgeon that had me drive 120 miles to his office where he told me he did not want to do any surgery because of my age (29) and because he felt there was not a specific cause of my pain even though 5 seperate Dr's have diagnosed the same problem. Either way after not listening to a word I said he informed me that the way to treat chronic spinal pain/numbness, tingling etc. was to keep my weight down, exercise, and to remove myself from opiates and take Advil instead. I can tell you the exercise is out of the picture since I can barely walk and have been disabled for over a year. I still have a hard time believing that I am disabled even when I got SSI disability the first time I applied for it no questions asked. Either way I am learning that even though a Dr. might seem as if they know what they are talking about they might not. I have also learned that Dr's who think they know everything usually know the least and care the least and are too full of themselves to learn the truth. Thank you for reading my ramblings I stink as a writer Lesley > > > > > > From: Elaine Dowell <emdowell@.. . <emdowell%40live. com>> > > > Subject: RE: Looking for friends in a world of pain > > > To: hugs-n-pain@ yahoogroups. com <hugs-n-pain% 40yahoogroups. com> > > > Date: Thursday, February 26, 2009, 4:08 PM > > > > > > Kim, > > > > > > I relate in a lot of ways to your post. You sound like a brave person > > > feeling a little abandoned and overwhelmed. But you are not alone; > > please > > > take some comfort in that. People here do understand. > > > > > > This year marks 20 years of unrelenting headache (from damage of brain > > > surgery) and neck pain. I have lived on massive dosages of heavy > > narcotics, > > > and they did help. Then my doctor moved and no other doc in this area > > will > > > touch my case. Which led me to the pain clinic.% Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2009 Report Share Posted March 22, 2009 hi les how are you doing less pain i hope tell me about your self nice to mete you donnieKY From: snowlesley@rocketma il.com <snowlesley@rocketma il.com> Subject: Re: Looking for friends in a world of pain To: Hugs-N-Pain@ yahoogroups. com Date: Friday, March 13, 2009, 7:36 AM Unfortunately even Dr's are misinformed about chronic pain. Your Primary Care Dr. has only completed the minimum education requirement to obtain their medical license. Even neurologists and surgeons have not completed the coursework in the causes and treatment of pain. I just spoke to a respected neurologist/ surgeon that had me drive 120 miles to his office where he told me he did not want to do any surgery because of my age (29) and because he felt there was not a specific cause of my pain even though 5 seperate Dr's have diagnosed the same problem. Either way after not listening to a word I said he informed me that the way to treat chronic spinal pain/numbness, tingling etc. was to keep my weight down, exercise, and to remove myself from opiates and take Advil instead. I can tell you the exercise is out of the picture since I can barely walk and have been disabled for over a year. I still have a hard time believing that I am disabled even when I got SSI disability the first time I applied for it no questions asked. Either way I am learning that even though a Dr. might seem as if they know what they are talking about they might not. I have also learned that Dr's who think they know everything usually know the least and care the least and are too full of themselves to learn the truth. Thank you for reading my ramblings I stink as a writer Lesley > > > > > > From: Elaine Dowell <emdowell@.. . <emdowell%40live. com>> > > > Subject: RE: Looking for friends in a world of pain > > > To: hugs-n-pain@ yahoogroups. com <hugs-n-pain% 40yahoogroups. com> > > > Date: Thursday, February 26, 2009, 4:08 PM > > > > > > Kim, > > > > > > I relate in a lot of ways to your post. You sound like a brave person > > > feeling a little abandoned and overwhelmed. But you are not alone; > > please > > > take some comfort in that. People here do understand. > > > > > > This year marks 20 years of unrelenting headache (from damage of brain > > > surgery) and neck pain. I have lived on massive dosages of heavy > > narcotics, > > > and they did help. Then my doctor moved and no other doc in this area > > will > > > touch my case. Which led me to the pain clinic. I am hoping for the > > pump, > > > but am in the early stages of trial procedures. > > > > > > There is nothing you can do to make your family understand; my finds me > > an > > > embarrassment and a bother. Maybe if you speak with yours frankly and > > from > > > the heart you will have better luck. I will pray for that. Support would > > be > > > nice. Either way, you have to do what makes your quality of life the > > best > > > possible. We all deserve that. Please don't let it overwhelm you; > > answers > > > are out there and they are here too. This is a great group. > > > > > > Keeping you in my thoughts, > > > > > > elaine > > > > > > > To: Hugs-N-Pain@ yahoogroups. com <Hugs-N-Pain% 40yahoogroups. com> > > > > From: kimshomestyle@ ... <kimshomestyle% 40yahoo.com> > > > > Date: Thu, 26 Feb 2009 15:37:13 +0000 > > > > Subject: Looking for friends in a world of pain > > > > > > > > Hi my name is Kim, I have been living with chronic neck pain for two > > > > and a half years, My last surgery was 7 months ago, The pain is > > > > unbearable I feel like all I do is try to get through the day! I am > > > > taking the pain medicine the doctors told me to take but it scares me > > > > because I have been on it for 2 1/2 years, I have tried massage, > > > > chiropractor & acupuncture nothing seems to be working they don't > > > > understand why there is so much pain still. I am scared my whole life > > > > has changed so dramatically! I feel bad for my husband and my kids > > > > they did'nt sign up for this! I used to be this vibrant hard working > > > > woman now I am a 38 year old woman who can't even ride in the car for > > > > a long trip never mind working or excersing that is not even remotely > > > > possible I try not to feel sorry for myself but sometimes you just get > > > > in to one of them moods. I need to talk to people who are going > > > > through the same things so that I feel I am not losing myself! > > > > Sometimes I feel like my husband should take the kids and leave so > > > > that they have some kind of a normal life but then my world would > > > > really be empty and I would feel even more alone than I already do. > > > > Any advice would be greatly appreciated thank you for listening. > > > > > > > > > > > > > > > > ------------ --------- --------- ------ > > > > > > > > To read these messages on the Hugs web site go to: > > > > http://groups. yahoo.com/ group/Hugs- N-Pain > > > > you can contact me privately at starlyin@... <starlyin%40aol. com> > > > > Rose > > > > Owner/ Moderator Hugs N Pain > > > > God Bless our Troops > > > > Please Pray for them Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2009 Report Share Posted March 22, 2009 hi les how are you doing less pain i hope tell me about your self nice to mete you donnieKY Subject: Re: Re: Looking for friends in a world of pain To: Hugs-N-Pain Date: Sunday, March 15, 2009, 5:13 AM Hi,Donnie, Great to meet you ! I see you've been shunned and labeled too, and know all too well how I'm feeling ! Judged and convicted without a jury .....I'm so glad that Dr apologized to you ! I didn't get an apology, and in fact, I was treated even more unkindly for trying to speak up for myself . Thanks so much for the very kind welcome ! Les thecardiacclub@ yahoogroups. com chronicpainsupportc lub4women@ yahoogroups. com Re: Re: Looking for friends in a world of pain hi les my name is donnieKY i am a painer most docs thank painers are addics befor thay look at you thay have got you labeled as a addic and brush you off i had a doc i wet to see set a cross the room from me i looked at hem and sead you have done desided all ready there is nothing rong with me or you would be over here looking at my knee instead of setting overthere he came over looked at my knee and%2 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2009 Report Share Posted March 23, 2009 hi less it sucks being a painer cant hardly do enything my wife thanks i am a drug addic and will not have nothing to do with me i am so lonely i get know atention at all i would not know how to act if i got some atention donnieKY From: snowlesley@rocketma il.com <snowlesley@ rocketma il.com> Subject: Re: Looking for friends in a world of pain To: Hugs-N-Pain@ yahoogroups. com Date: Friday, March 13, 2009, 7:36 AM Unfortunately even Dr's are misinformed about chronic pain. Your Primary Care Dr. has only completed the minimum education requirement to obtain their medical license. Even neurologists and surgeons have not completed the coursework in the causes and treatment of pain. I just spoke to a respected neurologist/ surgeon that had me drive 120 miles to his office where he told me he did not want to do any surgery because of my age (29) and because he felt there was not a specific cause of my pain even though 5 seperate Dr's have diagnosed the same problem. Either way after not listening to a word I said he informed me that the way to treat chronic spinal pain/numbness, tingling etc. was to keep my weight down, exercise, and to remove myself from opiates and take Advil instead. I can tell you the exercise is out of the picture since I can barely walk and have been disabled for over a year. I still have a hard time believing that I am disabled even when I got SSI disability the first time I applied for it no questions asked. Either way I am learning that even though a Dr. might seem as if they know what they are talking about they might not. I have also learned that Dr's who think they know everything usually know the least and care the least and are too full of themselves to learn the truth. Thank you for reading my ramblings I stink as a writer Lesley > > > > > > From: Elaine Dowell <emdowell@.. . <emdowell%40live. com>> > > > Subject: RE: Looking for friends in a world of pain > > > To: hugs-n-pain@ yahoogroups. com <hugs-n-pain% 40yahoogroups. com> > > > Date: Thursday, February 26, 2009, 4:08 PM > > > > > > Kim, > > > > > > I relate in a lot of ways to your post. You sound like a brave person > > > feeling a little abandoned and overwhelmed. But you are not alone; > > please > > > take some comfort in that. People here do understand. > > > > > > This year marks 20 years of unrelenting headache (from damage of brain > > > surgery) and neck pain. I have lived on massive dosages of heavy > > narcotics, > > > and they did help. Then my doctor moved and no other doc in this area > > will > > > touch my case. Which led me to the pain clinic. I am hoping for the > > pump, > > > but am in the early stages of trial procedures. > > > > > > There is nothing you can do to make your family understand; my finds me > > an > > > embarrassment and a bother. Maybe if you speak with yours frankly and > > from > > > the heart you will have better luck. I will pray for that. Support would > > be > > > nice. Either way, you have to do what makes your quality of life the > > best > > > possible. We all deserve that. Please don't let it overwhelm you; > > answers > > > are out there and they are here too. This is a great group. > > > > > > Keeping you in my thoughts, > > > > > > elaine > > > > > > > To: Hugs-N-Pain@ yahoogroups. com <Hugs-N-Pain% 40yahoogroups. com> > > > > From: kimshomestyle@ ... <kimshomestyle% 40yahoo.com> > > > > Date: Thu, 26 Feb 2009 15:37:13 +0000 > > > > Subject: Looking for friends in a world of pain > > > > > > > > Hi my name is Kim, I have been living with chronic neck pain for two > > > > and a half years, My last surgery was 7 months ago, The pain is > > > > unbearable I feel like all I do is try to get through the day! I am > > > > taking the pain medicine the doctors told me to take but it scares me > > > > because I have been on it for 2 1/2 years, I have tried massage, > > > > chiropractor & acupuncture nothing seems to be working they don't > > > > understand why there is so much pain still. I am scared my whole life > > > > has changed so dramatically! I feel bad for my husband and my kids > > > > they did'nt sign up for this! I used to be this vibrant hard working > > > > woman now I am a 38 year old woman who can't even ride in the car for > > > > a long trip never mind working or excersing that is not even remotely > > > > possible I try not to feel sorry for myself but sometimes you just get > > > > in to one of them moods. I need to talk to people who are going > > > > through the same things so that I feel I am not losing myself! > > > > Sometimes I feel like my husband should take the kids and leave so > > > > that they have some kind of a normal life but then my world would > > > > really be empty and I would feel even more alone than I already do. > > > > Any advice would be greatly appreciated thank you for listening. > > > > > > > > > > > > > > > > ------------ --------- --------- ------ > > > > > > > > To read these messages on the Hugs web site go to: > > > > http://groups. yahoo.com/ group/Hugs- N-Pain > > > > you can contact me privately at starlyin@... <starlyin%40aol. com> > > > > Rose > > > > Owner/ Moderator Hugs N Pain > > > > God Bless our Troops > > > > Please Pray for them Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2009 Report Share Posted March 23, 2009 hi less it sucks being a painer cant hardly do enything my wife thanks i am a drug addic and will not have nothing to do with me i am so lonely i get know atention at all i would not know how to act if i got some atention donnieKY From: snowlesley@rocketma il.com <snowlesley@ rocketma il.com> Subject: Re: Looking for friends in a world of pain To: Hugs-N-Pain@ yahoogroups. com Date: Friday, March 13, 2009, 7:36 AM Unfortunately even Dr's are misinformed about chronic pain. Your Primary Care Dr. has only completed the minimum education requirement to obtain their medical license. Even neurologists and surgeons have not completed the coursework in the causes and treatment of pain. I just spoke to a respected neurologist/ surgeon that had me drive 120 miles to his office where he told me he did not want to do any surgery because of my age (29) and because he felt there was not a specific cause of my pain even though 5 seperate Dr's have diagnosed the same problem. Either way after not listening to a word I said he informed me that the way to treat chronic spinal pain/numbness, tingling etc. was to keep my weight down, exercise, and to remove myself from opiates and take Advil instead. I can tell you the exercise is out of the picture since I can barely walk and have been disabled for over a year. I still have a hard time believing that I am disabled even when I got SSI disability the first time I applied for it no questions asked. Either way I am learning that even though a Dr. might seem as if they know what they are talking about they might not. I have also learned that Dr's who think they know everything usually know the least and care the least and are too full of themselves to learn the truth. Thank you for reading my ramblings I stink as a writer Lesley > > > > > > From: Elaine Dowell <emdowell@.. . <emdowell%40live. com>> > > > Subject: RE: Looking for friends in a world of pain > > > To: hugs-n-pain@ yahoogroups. com <hugs-n-pain% 40yahoogroups. com> > > > Date: Thursday, February 26, 2009, 4:08 PM > > > > > > Kim, > > > > > > I relate in a lot of ways to your post. You sound like a brave person > > > feeling a little abandoned and overwhelmed. But you are not alone; > > please > > > take some comfort in that. People here do understand. > > > > > > This year marks 20 years of unrelenting headache (from damage of brain > > > surgery) and neck pain. I have lived on massive dosages of heavy > > narcotics, > > > and they did help. Then my doctor moved and no other doc in this area > > will > > > touch my case. Which led me to the pain clinic. I am hoping for the > > pump, > > > but am in the early stages of trial procedures. > > > > > > There is nothing you can do to make your family understand; my finds me > > an > > > embarrassment and a bother. Maybe if you speak with yours frankly and > > from > > > the heart you will have better luck. I will pray for that. Support would > > be > > > nice. Either way, you have to do what makes your quality of life the > > best > > > possible. We all deserve that. Please don't let it overwhelm you; > > answers > > > are out there and they are here too. This is a great group. > > > > > > Keeping you in my thoughts, > > > > > > elaine > > > > > > > To: Hugs-N-Pain@ yahoogroups. com <Hugs-N-Pain% 40yahoogroups. com> > > > > From: kimshomestyle@ ... <kimshomestyle% 40yahoo.com> > > > > Date: Thu, 26 Feb 2009 15:37:13 +0000 > > > > Subject: Looking for friends in a world of pain > > > > > > > > Hi my name is Kim, I have been living with chronic neck pain for two > > > > and a half years, My last surgery was 7 months ago, The pain is > > > > unbearable I feel like all I do is try to get through the day! I am > > > > taking the pain medicine the doctors told me to take but it scares me > > > > because I have been on it for 2 1/2 years, I have tried massage, > > > > chiropractor & acupuncture nothing seems to be working they don't > > > > understand why there is so much pain still. I am scared my whole life > > > > has changed so dramatically! I feel bad for my husband and my kids > > > > they did'nt sign up for this! I used to be this vibrant hard working > > > > woman now I am a 38 year old woman who can't even ride in the car for > > > > a long trip never mind working or excersing that is not even remotely > > > > possible I try not to feel sorry for myself but sometimes you just get > > > > in to one of them moods. I need to talk to people who are going > > > > through the same things so that I feel I am not losing myself! > > > > Sometimes I feel like my husband should take the kids and leave so > > > > that they have some kind of a normal life but then my world would > > > > really be empty and I would feel even more alone than I already do. > > > > Any advice would be greatly appreciated thank you for listening. > > > > > > > > > > > > > > > > ------------ --------- --------- ------ > > > > > > > > To read these messages on the Hugs web site go to: > > > > http://groups. yahoo.com/ group/Hugs- N-Pain > > > > you can contact me privately at starlyin@... <starlyin%40aol. com> > > > > Rose > > > > Owner/ Moderator Hugs N Pain > > > > God Bless our Troops > > > > Please Pray for them Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2009 Report Share Posted March 23, 2009 hi less it sucks being a painer cant hardly do enything my wife thanks i am a drug addic and will not have nothing to do with me i am so lonely i get know atention at all i would not know how to act if i got some atention donnieKY From: snowlesley@rocketma il.com <snowlesley@ rocketma il.com> Subject: Re: Looking for friends in a world of pain To: Hugs-N-Pain@ yahoogroups. com Date: Friday, March 13, 2009, 7:36 AM Unfortunately even Dr's are misinformed about chronic pain. Your Primary Care Dr. has only completed the minimum education requirement to obtain their medical license. Even neurologists and surgeons have not completed the coursework in the causes and treatment of pain. I just spoke to a respected neurologist/ surgeon that had me drive 120 miles to his office where he told me he did not want to do any surgery because of my age (29) and because he felt there was not a specific cause of my pain even though 5 seperate Dr's have diagnosed the same problem. Either way after not listening to a word I said he informed me that the way to treat chronic spinal pain/numbness, tingling etc. was to keep my weight down, exercise, and to remove myself from opiates and take Advil instead. I can tell you the exercise is out of the picture since I can barely walk and have been disabled for over a year. I still have a hard time believing that I am disabled even when I got SSI disability the first time I applied for it no questions asked. Either way I am learning that even though a Dr. might seem as if they know what they are talking about they might not. I have also learned that Dr's who think they know everything usually know the least and care the least and are too full of themselves to learn the truth. Thank you for reading my ramblings I stink as a writer Lesley > > > > > > From: Elaine Dowell <emdowell@.. . <emdowell%40live. com>> > > > Subject: RE: Looking for friends in a world of pain > > > To: hugs-n-pain@ yahoogroups. com <hugs-n-pain% 40yahoogroups. com> > > > Date: Thursday, February 26, 2009, 4:08 PM > > > > > > Kim, > > > > > > I relate in a lot of ways to your post. You sound like a brave person > > > feeling a little abandoned and overwhelmed. But you are not alone; > > please > > > take some comfort in that. People here do understand. > > > > > > This year marks 20 years of unrelenting headache (from damage of brain > > > surgery) and neck pain. I have lived on massive dosages of heavy > > narcotics, > > > and they did help. Then my doctor moved and no other doc in this area > > will > > > touch my case. Which led me to the pain clinic. I am hoping for the > > pump, > > > but am in the early stages of trial procedures. > > > > > > There is nothing you can do to make your family understand; my finds me > > an > > > embarrassment and a bother. Maybe if you speak with yours frankly and > > from > > > the heart you will have better luck. I will pray for that. Support would > > be > > > nice. Either way, you have to do what makes your quality of life the > > best > > > possible. We all deserve that. Please don't let it overwhelm you; > > answers > > > are out there and they are here too. This is a great group. > > > > > > Keeping you in my thoughts, > > > > > > elaine > > > > > > > To: Hugs-N-Pain@ yahoogroups. com <Hugs-N-Pain% 40yahoogroups. com> > > > > From: kimshomestyle@ ... <kimshomestyle% 40yahoo.com> > > > > Date: Thu, 26 Feb 2009 15:37:13 +0000 > > > > Subject: Looking for friends in a world of pain > > > > > > > > Hi my name is Kim, I have been living with chronic neck pain for two > > > > and a half years, My last surgery was 7 months ago, The pain is > > > > unbearable I feel like all I do is try to get through the day! I am > > > > taking the pain medicine the doctors told me to take but it scares me > > > > because I have been on it for 2 1/2 years, I have tried massage, > > > > chiropractor & acupuncture nothing seems to be working they don't > > > > understand why there is so much pain still. I am scared my whole life > > > > has changed so dramatically! I feel bad for my husband and my kids > > > > they did'nt sign up for this! I used to be this vibrant hard working > > > > woman now I am a 38 year old woman who can't even ride in the car for > > > > a long trip never mind working or excersing that is not even remotely > > > > possible I try not to feel sorry for myself but sometimes you just get > > > > in to one of them moods. I need to talk to people who are going > > > > through the same things so that I feel I am not losing myself! > > > > Sometimes I feel like my husband should take the kids and leave so > > > > that they have some kind of a normal life but then my world would > > > > really be empty and I would feel even more alone than I already do. > > > > Any advice would be greatly appreciated thank you for listening. > > > > > > > > > > > > > > > > ------------ --------- --------- ------ > > > > > > > > To read these messages on the Hugs web site go to: > > > > http://groups. yahoo.com/ group/Hugs- N-Pain > > > > you can contact me privately at starlyin@... <starlyin%40aol. com> > > > > Rose > > > > Owner/ Moderator Hugs N Pain > > > > God Bless our Troops > > > > Please Pray for them Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2009 Report Share Posted March 23, 2009 hi less it sucks being a painer cant hardly do enything my wife thanks i am a drug addic and will not have nothing to do with me i am so lonely i get know atention at all i would not know how to act if i got some atention donnieKY From: snowlesley@rocketma il.com <snowlesley@ rocketma il.com> Subject: Re: Looking for friends in a world of pain To: Hugs-N-Pain@ yahoogroups. com Date: Friday, March 13, 2009, 7:36 AM Unfortunately even Dr's are misinformed about chronic pain. Your Primary Care Dr. has only completed the minimum education requirement to obtain their medical license. Even neurologists and surgeons have not completed the coursework in the causes and treatment of pain. I just spoke to a respected neurologist/ surgeon that had me drive 120 miles to his office where he told me he did not want to do any surgery because of my age (29) and because he felt there was not a specific cause of my pain even though 5 seperate Dr's have diagnosed the same problem. Either way after not listening to a word I said he informed me that the way to treat chronic spinal pain/numbness, tingling etc. was to keep my weight down, exercise, and to remove myself from opiates and take Advil instead. I can tell you the exercise is out of the picture since I can barely walk and have been disabled for over a year. I still have a hard time believing that I am disabled even when I got SSI disability the first time I applied for it no questions asked. Either way I am learning that even though a Dr. might seem as if they know what they are talking about they might not. I have also learned that Dr's who think they know everything usually know the least and care the least and are too full of themselves to learn the truth. Thank you for reading my ramblings I stink as a writer Lesley > > > > > > From: Elaine Dowell <emdowell@.. . <emdowell%40live. com>> > > > Subject: RE: Looking for friends in a world of pain > > > To: hugs-n-pain@ yahoogroups. com <hugs-n-pain% 40yahoogroups. com> > > > Date: Thursday, February 26, 2009, 4:08 PM > > > > > > Kim, > > > > > > I relate in a lot of ways to your post. You sound like a brave person > > > feeling a little abandoned and overwhelmed. But you are not alone; > > please > > > take some comfort in that. People here do understand. > > > > > > This year marks 20 years of unrelenting headache (from damage of brain > > > surgery) and neck pain. I have lived on massive dosages of heavy > > narcotics, > > > and they did help. Then my doctor moved and no other doc in this area > > will > > > touch my case. Which led me to the pain clinic. I am hoping for the > > pump, > > > but am in the early stages of trial procedures. > > > > > > There is nothing you can do to make your family understand; my finds me > > an > > > embarrassment and a bother. Maybe if you speak with yours frankly and > > from > > > the heart you will have better luck. I will pray for that. Support would > > be > > > nice. Either way, you have to do what makes your quality of life the > > best > > > possible. We all deserve that. Please don't let it overwhelm you; > > answers > > > are out there and they are here too. This is a great group. > > > > > > Keeping you in my thoughts, > > > > > > elaine > > > > > > > To: Hugs-N-Pain@ yahoogroups. com <Hugs-N-Pain% 40yahoogroups. com> > > > > From: kimshomestyle@ ... <kimshomestyle% 40yahoo.com> > > > > Date: Thu, 26 Feb 2009 15:37:13 +0000 > > > > Subject: Looking for friends in a world of pain > > > > > > > > Hi my name is Kim, I have been living with chronic neck pain for two > > > > and a half years, My last surgery was 7 months ago, The pain is > > > > unbearable I feel like all I do is try to get through the day! I am > > > > taking the pain medicine the doctors told me to take but it scares me > > > > because I have been on it for 2 1/2 years, I have tried massage, > > > > chiropractor & acupuncture nothing seems to be working they don't > > > > understand why there is so much pain still. I am scared my whole life > > > > has changed so dramatically! I feel bad for my husband and my kids > > > > they did'nt sign up for this! I used to be this vibrant hard working > > > > woman now I am a 38 year old woman who can't even ride in the car for > > > > a long trip never mind working or excersing that is not even remotely > > > > possible I try not to feel sorry for myself but sometimes you just get > > > > in to one of them moods. I need to talk to people who are going > > > > through the same things so that I feel I am not losing myself! > > > > Sometimes I feel like my husband should take the kids and leave so > > > > that they have some kind of a normal life but then my world would > > > > really be empty and I would feel even more alone than I already do. > > > > Any advice would be greatly appreciated thank you for listening. > > > > > > > > > > > > > > > > ------------ --------- --------- ------ > > > > > > > > To read these messages on the Hugs web site go to: > > > > http://groups. yahoo.com/ group/Hugs- N-Pain > > > > you can contact me privately at starlyin@... <starlyin%40aol. com> > > > > Rose > > > > Owner/ Moderator Hugs N Pain > > > > God Bless our Troops > > > > Please Pray for them Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2009 Report Share Posted March 23, 2009 hi less it sucks being a painer cant hardly do enything my wife thanks i am a drug addic and will not have nothing to do with me i am so lonely i get know atention at all i would not know how to act if i got some atention donnieKY From: snowlesley@rocketma il.com <snowlesley@ rocketma il.com> Subject: Re: Looking for friends in a world of pain To: Hugs-N-Pain@ yahoogroups. com Date: Friday, March 13, 2009, 7:36 AM Unfortunately even Dr's are misinformed about chronic pain. Your Primary Care Dr. has only completed the minimum education requirement to obtain their medical license. Even neurologists and surgeons have not completed the coursework in the causes and treatment of pain. I just spoke to a respected neurologist/ surgeon that had me drive 120 miles to his office where he told me he did not want to do any surgery because of my age (29) and because he felt there was not a specific cause of my pain even though 5 seperate Dr's have diagnosed the same problem. Either way after not listening to a word I said he informed me that the way to treat chronic spinal pain/numbness, tingling etc. was to keep my weight down, exercise, and to remove myself from opiates and take Advil instead. I can tell you the exercise is out of the picture since I can barely walk and have been disabled for over a year. I still have a hard time believing that I am disabled even when I got SSI disability the first time I applied for it no questions asked. Either way I am learning that even though a Dr. might seem as if they know what they are talking about they might not. I have also learned that Dr's who think they know everything usually know the least and care the least and are too full of themselves to learn the truth. Thank you for reading my ramblings I stink as a writer Lesley > > I have a wonderful one! The 2 PCP's I went to who are against Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2009 Report Share Posted March 23, 2009 hi less it sucks being a painer cant hardly do enything my wife thanks i am a drug addic and will not have nothing to do with me i am so lonely i get know atention at all i would not know how to act if i got some atention donnieKY From: snowlesley@rocketma il.com <snowlesley@ rocketma il.com> Subject: Re: Looking for friends in a world of pain To: Hugs-N-Pain@ yahoogroups. com Date: Friday, March 13, 2009, 7:36 AM Unfortunately even Dr's are misinformed about chronic pain. Your Primary Care Dr. has only completed the minimum education requirement to obtain their medical license. Even neurologists and surgeons have not completed the coursework in the causes and treatment of pain. I just spoke to a respected neurologist/ surgeon that had me drive 120 miles to his office where he told me he did not want to do any surgery because of my age (29) and because he felt there was not a specific cause of my pain even though 5 seperate Dr's have diagnosed the same problem. Either way after not listening to a word I said he informed me that the way to treat chronic spinal pain/numbness, tingling etc. was to keep my weight down, exercise, and to remove myself from opiates and take Advil instead. I can tell you the exercise is out of the picture since I can barely walk and have been disabled for over a year. I still have a hard time believing that I am disabled even when I got SSI disability the first time I applied for it no questions asked. Either way I am learning that even though a Dr. might seem as if they know what they are talking about they might not. I have also learned that Dr's who think they know everything usually know the least and care the least and are too full of themselves to learn the truth. Thank you for reading my ramblings I stink as a writer Lesley > > > > > > From: Elaine Dowell <emdowell@.. . <emdowell%40live. com>> > > > Subject: RE: Looking for friends in a world of pain > > > To: hugs-n-pain@ yahoogroups. com <hugs-n-pain% 40yahoogroups. com> > > > Date: Thursday, February 26, 2009, 4:08 PM > > > > > > Kim, > > > > > > I relate in a lot of ways to your post. You sound like a brave person > > > feeling a little abandoned and overwhelmed. But you are not alone; > > please > > > take some comfort in that. People here do understand. > > > > > > This year marks 20 years of unrelenting headache (from damage of brain > > > surgery) and neck pain. I have lived on massive dosages of heavy > > narcotics, > > > and they did help. Then my doctor moved and no other doc in this area > > will > > > touch my case. Which led me to the pain clinic. I am hoping for the > > pump, > > > but am in the early stages of trial procedures. > > > > > > There is nothing you can do to make your family understand; my finds me > > an > > > embarrassment and a bother. Maybe if you speak with yours frankly and > > from > > > the heart you will have better luck. I will pray for that. Support would > > be > > > nice. Either way, you have to do what makes your quality of life the > > best > > > possible. We all deserve that. Please don't let it overwhelm you; > > answers > > > are out there and they are here too. This is a great group. > > > > > > Keeping you in my thoughts, > > > > > > elaine > > > > > > > To: Hugs-N-Pain@ yahoogroups. com <Hugs-N-Pain% 40yahoogroups. com> > > > > From: kimshomestyle@ ... <kimshomestyle% 40yahoo.com> > > > > Date: Thu, 26 Feb 2009 15:37:13 +0000 > > > > Subject: Looking for friends in a world of pain > > > > > > > > Hi my name is Kim, I have been living with chronic neck pain for two > > > > and a half years, My last surgery was 7 months ago, The pain is > > > > unbearable I feel like all I do is try to get through the day! I am > > > > taking the pain medicine the doctors told me to take but it scares me > > > > because I have been on it for 2 1/2 years, I have tried massage, > > > > chiropractor & acupuncture nothing seems to be working they don't > > > > understand why there is so much pain still. I am scared my whole life > > > > has changed so dramatically! I feel bad for my husband and my kids > > > > they did'nt sign up for this! I used to be this vibrant hard working > > > > woman now I am a 38 year old woman who can't even ride in the car for > > > > a long trip never mind working or excersing that is not even remotely > > > > possible I try not to feel sorry for myself but sometimes you just get > > > > in to one of them moods. I need to talk to people who are going > > > > through the same things so that I feel I am not losing myself! > > > > Sometimes I feel like my husband should take the kids and leave so > > > > that they have some kind of a normal life but then my world would > > > > really be empty and I would feel even more alone than I already do. > > > > Any advice would be greatly appreciated thank you for listening. > > > > > > > > > > > > > > > > ------------ --------- --------- ------ > > > > > > > > To read these messages on the Hugs web site go to: > > > > http://groups. yahoo.com/ group/Hugs- N-Pain > > > > you can contact me privately at starlyin@... <starlyin%40aol. com> > > > > Rose > > > > Owner/ Moderator Hugs N Pain > > > > God Bless our Troops > > > > Please Pray for them Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2009 Report Share Posted March 23, 2009 hi less it sucks being a painer cant hardly do enything my wife thanks i am a drug addic and will not have nothing to do with me i am so lonely i get know atention at all i would not know how to act if i got some atention donnieKY From: snowlesley@rocketma il.com <snowlesley@ rocketma il.com> Subject: Re: Looking for friends in a world of pain To: Hugs-N-Pain@ yahoogroups. com Date: Friday, March 13, 2009, 7:36 AM Unfortunately even Dr's are misinformed about chronic pain. Your Primary Care Dr. has only completed the minimum education requirement to obtain their medical license. Even neurologists and surgeons have not completed the coursework in the causes and treatment of pain. I just spoke to a respected neurologist/ surgeon that had me drive 120 miles to his office where he told me he did not want to do any surgery because of my age (29) and because he felt there was not a specific cause of my pain even though 5 seperate Dr's have diagnosed the same problem. Either way after not listening to a word I said he informed me that the way to treat chronic spinal pain/numbness, tingling etc. was to keep my weight down, exercise, and to remove myself from opiates and take Advil instead. I can tell you the exercise is out of the picture since I can barely walk and have been disabled for over a year. I still have a hard time believing that I am disabled even when I got SSI disability the first time I applied for it no questions asked. Either way I am learning that even though a Dr. might seem as if they know what they are talking about they might not. I have also learned that Dr's who think they know everything usually know the least and care the least and are too full of themselves to learn the truth. Thank you for reading my ramblings I stink as a writer Lesley > > > > > > From: Elaine Dowell <emdowell@.. . <emdowell%40live. com>> > > > Subject: RE: Looking for friends in a world of pain > > > To: hugs-n-pain@ yahoogroups. com <hugs-n-pain% 40yahoogroups. com> > > > Date: Thursday, February 26, 2009, 4:08 PM > > > > > > Kim, > > > > > > I relate in a lot of ways to your post. You sound like a brave person > > > feeling a little abandoned and overwhelmed. But you are not alone; > > please > > > take some comfort in that. People here do understand. > > > > > > This year marks 20 years of unrelenting headache (from damage of brain > > > surgery) and neck pain. I have lived on massive dosages of heavy > > narcotics, > > > and they did help. Then my doctor moved and no other doc in this area > > will > > > touch my case. Which led me to the pain clinic. I am hoping for the > > pump, > > > but am in the early stages of trial procedures. > > > > > > There is nothing you can do to make your family understand; my finds me > > an > > > embarrassment and a bother. Maybe if you speak with yours frankly and > > from > > > the heart you will have better luck. I will pray for that. Support would > > be > > > nice. Either way, you have to do what makes your quality of life the > > best > > > possible. We all deserve that. Please don't let it overwhelm you; > > answers > > > are out there and they are here too. This is a great group. > > > > > > Keeping you in my thoughts, > > > > > > elaine > > > > > > > To: Hugs-N-Pain@ yahoogroups. com <Hugs-N-Pain% 40yahoogroups. com> > > > > From: kimshomestyle@ ... <kimshomestyle% 40yahoo.com> > > > > Date: Thu, 26 Feb 2009 15:37:13 +0000 > > > > Subject: Looking for friends in a world of pain > > > > > > > > Hi my name is Kim, I have been living with chronic neck pain for two > > > > and a half years, My last surgery was 7 months ago, The pain is > > > > unbearable I feel like all I do is try to get through the day! I am > > > > taking the pain medicine the doctors told me to take but it scares me > > > > because I have been on it for 2 1/2 years, I have tried massage, > > > > chiropractor & acupuncture nothing seems to be working they don't > > > > understand why there is so much pain still. I am scared my whole life > > > > has changed so dramatically! I feel bad for my husband and my kids > > > > they did'nt sign up for this! I used to be this vibrant hard working > > > > woman now I am a 38 year old woman who can't even ride in the car for > > > > a long trip never mind working or excersing that is not even remotely > > > > possible I try not to feel sorry for myself but sometimes you just get > > > > in to one of them moods. I need to talk to people who are going > > > > through the same things so that I feel I am not losing myself! > > > > Sometimes I feel like my husband should take the kids and leave so > > > > that they have some kind of a normal life but then my world would > > > > really be empty and I would feel even more alone than I already do. > > > > Any advice would be greatly appreciated thank you for listening. > > > > > > > > > > > > > > > > ------------ --------- --------- ------ > > > > > > > > To read these messages on the Hugs web site go to: > > > > http://groups. yahoo.com/ group/Hugs- N-Pain > > > > you can contact me privately at starlyin@... <starlyin%40aol. com> > > > > Rose > > > > Owner/ Moderator Hugs N Pain > > > > God Bless our Troops > > > > Please Pray for them Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2009 Report Share Posted March 23, 2009 hi less it sucks being a painer cant hardly do enything my wife thanks i am a drug addic and will not have nothing to do with me i am so lonely i get know atention at all i would not know how to act if i got some atention donnieKY From: snowlesley@rocketma il.com <snowlesley@ rocketma il.com> Subject: Re: Looking for friends in a world of pain To: Hugs-N-Pain@ yahoogroups. com Date: Friday, March 13, 2009, 7:36 AM Unfortunately even Dr's are misinformed about chronic pain. Your Primary Care Dr. has only completed the minimum education requirement to obtain their medical license. Even neurologists and surgeons have not completed the coursework in the causes and treatment of pain. I just spoke to a respected neurologist/ surgeon that had me drive 120 miles to his office where he told me he did not want to do any surgery because of my age (29) and because he felt there was not a specific cause of my pain even though 5 seperate Dr's have diagnosed the same problem. Either way after not listening to a word I said he informed me that the way to treat chronic spinal pain/numbness, tingling etc. was to keep my weight down, exercise, and to remove myself from opiates and take Advil instead. I can tell you the exercise is out of the picture since I can barely walk and have been disabled for over a year. I still have a hard time believing that I am disabled even when I got SSI disability the first time I applied for it no questions asked. Either way I am learning that even though a Dr. might seem as if they know what they are talking about they might not. I have also learned that Dr's who think they know everything usually know the least and care the least and are too full of themselves to learn the truth. Thank you for reading my ramblings I stink as a writer Lesley > > > > > > From: Elaine Dowell <emdowell@.. . <emdowell%40live. com>> > > > Subject: RE: Looking for friends in a world of pain > > > To: hugs-n-pain@ yahoogroups. com <hugs-n-pain% 40yahoogroups. com> > > > Date: Thursday, February 26, 2009, 4:08 PM > > > > > > Kim, > > > > > > I relate in a lot of ways to your post. You sound like a brave person > > > feeling a little abandoned and overwhelmed. But you are not alone; > > please > > > take some comfort in that. People here do understand. > > > > > > This year marks 20 years of unrelenting headache (from damage of brain > > > surgery) and neck pain. I have lived on massive dosages of heavy > > narcotics, > > > and they did help. Then my doctor moved and no other doc in this area > > will > > > touch my case. Which led me to the pain clinic. I am hoping for the > > pump, > > > but am in the early stages of trial procedures. > > > > > > There is nothing you can do to make your family understand; my finds me > > an > > > embarrassment and a bother. Maybe if you speak with yours frankly and > > from > > > the heart you will have better luck. I will pray for that. Support would > > be > > > nice. Either way, you have to do what makes your quality of life the > > best > > > possible. We all deserve that. Please don't let it overwhelm you; > > answers > > > are out there and they are here too. This is a great group. > > > > > > Keeping you in my thoughts, > > > > > > elaine > > > > > > > To: Hugs-N-Pain@ yahoogroups. com <Hugs-N-Pain% 40yahoogroups. com> > > > > From: kimshomestyle@ ... <kimshomestyle% 40yahoo.com> > > > > Date: Thu, 26 Feb 2009 15:37:13 +0000 > > > > Subject: Looking for friends in a world of pain > > > > > > > > Hi my name is Kim, I have been living with chronic neck pain for two > > > > and a half years, My last surgery was 7 months ago, The pain is > > > > unbearable I feel like all I do is try to get through the day! I am > > > > taking the pain medicine the doctors told me to take but it scares me > > > > because I have been on it for 2 1/2 years, I have tried massage, > > > > chiropractor & acupuncture nothing seems to be working they don't > > > > understand why there is so much pain still. I am scared my whole life > > > > has changed so dramatically! I feel bad for my husband and my kids > > > > they did'nt sign up for this! I used to be this vibrant hard working > > > > woman now I am a 38 year old woman who can't even ride in the car for > > > > a long trip never mind working or excersing that is not even remotely > > > > possible I try not to feel sorry for myself but sometimes you just get > > > > in to one of them moods. I need to talk to people who are going > > > > through the same things so that I feel I am not losing myself! > > > > Sometimes I feel like my husband should take the kids and leave so > > > > that they have some kind of a normal life but then my world would > > > > really be empty and I would feel even more alone than I already do. > > > > Any advice would be greatly appreciated thank you for listening. > > > > > > > > > > > > > > > > ------------ --------- --------- ------ > > > > > > > > To read these messages on the Hugs web site go to: > > > > http://groups. yahoo.com/ group/Hugs- N-Pain > > > > you can contact me privately at starlyin@... <starlyin%40aol. com> > > > > Rose > > > > Owner/ Moderator Hugs N Pain > > > > God Bless our Troops > > > > Please Pray for them Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2009 Report Share Posted March 23, 2009 I'm sorry your own wife feels that way, Donnie .My family is really good and understanding , although my BIL and future SIL don't understand at all .. but then she's a Dr and they are the most uninformed of all . Les thecardiacclub chronicpainsupportclub4women Looking for friends in a world of pain > > > > > > > > Hi my name is Kim, I have been living with chronic neck pain for two > > > > and a half years, My last surgery was 7 months ago, The pain is > > > > unbearable I feel like all I do is try to get through the day! I am > > > > taking the pain medicine the doctors told me to take but it scares me > > > > because I have been on it for 2 1/2 years, I have tried massage, > > > > chiropractor & acupuncture nothing seems to be working they don't > > > > understand why there is so much pain still. I am scared my whole life > > > > has changed so dramatically! I feel bad for my husband and my kids > > > > they did'nt sign up for this! I used to be this vibrant hard working > > > > woman now I am a 38 year old woman who can't even ride in the car for > > > > a long trip never mind working or excersing that is not even remotely > > > > possible I try not to feel sorry for myself but sometimes you just get > > > > in to one of them moods. I need to talk to people who are going > > > > through the same things so that I feel I am not losing myself! > > > > Sometimes I feel like my husband should take the kids and leave so > > > > that they have some kind of a normal life but then my world would > > > > really be empty and I would feel even more alone than I already do. > > > > Any advice would be greatly appreciated thank you for listening. > > > > > > > > > > > > > > > > ------------ --------- --------- ------ > > > > > > > > To read these messages on the Hugs web site go to: > > > > http://groups. yahoo.com/ group/Hugs- N-Pain > > > > you can contact me privately at starlyin@... <starlyin%40aol. com> > > > > Rose > > > > Owner/ Moderator Hugs N Pain > > > > God Bless our Troops > > > > Please Pray for them Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 25, 2009 Report Share Posted March 25, 2009 Donnie, I get the same crap from my husband. He acts like I'm pond scum because I have to take opiates. I said something about my pain being worse because of the rain, and he rolls his eyes! Then when I asked him if he thought I was imagining it, he wouldn't say a word. I will practically kill myself to make supper - sometimes I can't even eat it because I'm in so much pain. He doesn' even bother to say " thank you " . I'd kill to have him give me a hug or offer to rub some cream on me or SOMETHING! Then he goes to church and acts all holy. I'd like to be there at the gates of heaven when St. asks him why he was so mean to his poor sick wife! Sounds like my husband and your wife deserve each other, heh? For those out there who have a supporive spouse, thank the dear Lord every single day. Didn't mean to get so carried away, I guess I just needed to vent. Take care, Alanna Sent from my Verizon Wireless BlackBerry Looking for friends in a world of pain > > > > > > > > Hi my name is Kim, I have been living with chronic neck pain for two > > > > and a half years, My last surgery was 7 months ago, The pain is > > > > unbearable I feel like all I do is try to get through the day! I am > > > > taking the pain medicine the doctors told me to take but it scares me > > > > because I have been on it for 2 1/2 years, I have tried massage, > > > > chiropractor & acupuncture nothing seems to be working they don't > > > > understand why there is so much pain still. I am scared my whole life > > > > has changed so dramatically! I feel bad for my husband and my kids > > > > they did'nt sign up for this! I used to be this vibrant hard working > > > > woman now I am a 38 year old woman who can't even ride in the car for > > > > a long trip never mind working or excersing that is not even remotely > > > > possible I try not to feel sorry for myself but sometimes you just get > > > > in to one of them moods. I need to talk to people who are going > > > > through the same things so that I feel I am not losing myself! > > > > Sometimes I feel like my husband should take the kids and leave so > > > > that they have some kind of a normal life but then my world would > > > > really be empty and I would feel even more alone than I already do. > > > > Any advice would be greatly appreciated thank you for listening. > > > > > > > > > > > > > > > > ------------ --------- --------- ------ > > > > > > > > To read these messages on the Hugs web site go to: > > > > http://groups. yahoo.com/ group/Hugs- N-Pain > > > > you can contact me privately at starlyin@... <starlyin%40aol. com> > > > > Rose > > > > Owner/ Moderator Hugs N Pain > > > > God Bless our Troops > > > > Please Pray for them Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 25, 2009 Report Share Posted March 25, 2009 Lotacats, Thanks for all the words of encouragement. It helps to hear that your kids went through it and turned out OK. How have you been feeling? My pain has been bad with all the rain, but it's a little better today. Take care, Alanna Sent from my Verizon Wireless BlackBerry Looking for friends in a > world of pain > > > > Hi my name is Kim, I have been living with > chronic neck pain for two > > and a half years, My last surgery was 7 months > ago, The pain is > > unbearable I feel like all I do is try to get > through the day! I am > > taking the pain medicine the doctors told me to > take but it scares me > > because I have been on it for 2 1/2 years, I > have tried massage, > > chiropractor & acupuncture nothing seems to > be working they don't > > understand why there is so much pain still. I am > scared my whole life > > has changed so dramatically! I feel bad for my > husband and my kids > > they did'nt sign up for this! I used to be > this vibrant hard working > > woman now I am a 38 year old woman who can't > even ride in the car for > > a long trip never mind working or excersing that > is not even remotely > > possible I try not to feel sorry for myself but > sometimes you just get > > in to one of them moods. I need to talk to > people who are going > > through the same things so that I feel I am not > losing myself! > > Sometimes I feel like my husband should take the > kids and leave so > > that they have some kind of a normal life but > then my world would > > really be empty and I would feel even more alone > than I already do. > > Any advice would be greatly appreciated thank > you for listening. > > > > > > > > ------------------------------------ > > > > To read these messages on the Hugs web site go > to: > > http://groups.yahoo.com/group/Hugs-N-Pain > > you can contact me privately at > starlyin@... > > Rose > > Owner/ Moderator Hugs N Pain > > God Bless our Troops > > Please Pray for them Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2009 Report Share Posted March 26, 2009 Since my new pain med the pain is better. I can't say enough for the " 'contin " type drugs right now. I'm not saying that the pain is gone ...that never happens. It's just easier to deal with. I'm actually starting to use some of the exercise equipment here...like the treadmill since starting the mscontin. I get breakthru but at least my doctor will be thrilled I'm doing more with my poor ol' body. Kids put in situations where it isn't all I, Me, My...is a good thing. Too many are spoiled rotten and then real life becomes a really biiiggggg surprise. They can only gain from helping out the family in tuff situations. Lotacats Express Chronic Pain Awareness http://www.cafepress.com/lotacatspix/5815010 Lotacatsfunpix.com http://www.lotacatsfunpix.com/ Deviantart http://lotacats05.deviantart.com/ > > > > > > > > Subject: RE: Looking for friends > in a > > world of pain > > To: hugs-n-pain > > Date: Thursday, February 26, 2009, 4:08 PM > > > > > > > > Kim, > > > > I relate in a lot of ways to your post. You > sound > > like a brave person feeling a little abandoned and > > overwhelmed. But you are not alone; please take some > comfort > > in that. People here do understand. > > > > This year marks 20 years of unrelenting > headache > > (from damage of brain surgery) and neck pain. I have > lived > > on massive dosages of heavy narcotics, and they did > help. > > Then my doctor moved and no other doc in this area > will > > touch my case. Which led me to the pain clinic. I am > hoping > > for the pump, but am in the early stages of trial > > procedures. > > > > There is nothing you can do to make your family > > understand; my finds me an embarrassment and a bother. > Maybe > > if you speak with yours frankly and from the heart you > will > > have better luck. I will pray for that. Support would > be > > nice. Either way, you have to do what makes your > quality of > > life the best possible. We all deserve that. Please > > don't let it overwhelm you; answers are out there > and > > they are here too. This is a great group. > > > > Keeping you in my thoughts, > > > > elaine > > > > > > > > > > > > > To: Hugs-N-Pain > > > From: kimshomestyle@... > > > Date: Thu, 26 Feb 2009 15:37:13 +0000 > > > Subject: Looking for friends > in a > > world of pain > > > > > > Hi my name is Kim, I have been living with > > chronic neck pain for two > > > and a half years, My last surgery was 7 > months > > ago, The pain is > > > unbearable I feel like all I do is try to > get > > through the day! I am > > > taking the pain medicine the doctors told > me to > > take but it scares me > > > because I have been on it for 2 1/2 years, > I > > have tried massage, > > > chiropractor & acupuncture nothing > seems to > > be working they don't > > > understand why there is so much pain still. > I am > > scared my whole life > > > has changed so dramatically! I feel bad for > my > > husband and my kids > > > they did'nt sign up for this! I used to > be > > this vibrant hard working > > > woman now I am a 38 year old woman who > can't > > even ride in the car for > > > a long trip never mind working or excersing > that > > is not even remotely > > > possible I try not to feel sorry for myself > but > > sometimes you just get > > > in to one of them moods. I need to talk to > > people who are going > > > through the same things so that I feel I am > not > > losing myself! > > > Sometimes I feel like my husband should > take the > > kids and leave so > > > that they have some kind of a normal life > but > > then my world would > > > really be empty and I would feel even more > alone > > than I already do. > > > Any advice would be greatly appreciated > thank > > you for listening. > > > > > > > > > > > > ------------------------------------ > > > > > > To read these messages on the Hugs web site > go > > to: > > > http://groups.yahoo.com/group/Hugs-N-Pain > > > you can contact me privately at > > starlyin@... > > > Rose > > > Owner/ Moderator Hugs N Pain > > > God Bless our Troops > > > Please Pray for them Quote Link to comment Share on other sites More sharing options...
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