Re: Looking for friends in a world of pain

[Guest guest]

Elaine, Thank You so much for replying to  me I am glad for your advice! I have

to say that sometimes you get to  a point where the pain is so bad you feel

like what am I doing I don't want to live like this and then mt 8 year old son

willl flash me the biggest smile and I will know that it is all worth it. Any

advice on how to find a good doctor the one that did my surgery feels like I

should be better and dismisses what I say so I got  a second opinion

they told me I have to wait two years after the last surgery then if I am not

healed I can look at another doctor ( two years of this pain!) they feel that my

muscles and my nerves are all messed up and is going to take a long time to

heal. I know in my heart that this won't go away the pain is so much worse than

before the surgery that is the part that shocks me well I know I am just

rambling Thank You for listening!

Kim

Subject: RE: Looking for friends in a world of pain

To: hugs-n-pain

Date: Thursday, February 26, 2009, 11:08 AM

Kim,

I relate in a lot of ways to your post. You sound like a brave person feeling a

little abandoned and overwhelmed. But you are not alone; please take some

comfort in that. People here do understand.

This year marks 20 years of unrelenting headache (from damage of brain surgery)

and neck pain. I have lived on massive dosages of heavy narcotics, and they did

help. Then my doctor moved and no other doc in this area will touch my case.

Which led me to the pain clinic. I am hoping for the pump, but am in the early

stages of trial procedures.

There is nothing you can do to make your family understand; my finds me an

embarrassment and a bother. Maybe if you speak with yours frankly and from the

heart you will have better luck. I will pray for that. Support would be nice.

Either way, you have to do what makes your quality of life the best possible. We

all deserve that. Please don't let it overwhelm you; answers are out there

and they are here too. This is a great group.

Keeping you in my thoughts,

elaine

> To: Hugs-N-Pain

> From: kimshomestyle@...

> Date: Thu, 26 Feb 2009 15:37:13 +0000

> Subject: Looking for friends in a world of pain

>

> Hi my name is Kim, I have been living with chronic neck pain for two

> and a half years, My last surgery was 7 months ago, The pain is

> unbearable I feel like all I do is try to get through the day! I am

> taking the pain medicine the doctors told me to take but it scares me

> because I have been on it for 2 1/2 years, I have tried massage,

> chiropractor & acupuncture nothing seems to be working they don't

> understand why there is so much pain still. I am scared my whole life

> has changed so dramatically! I feel bad for my husband and my kids

> they did'nt sign up for this! I used to be this vibrant hard working

> woman now I am a 38 year old woman who can't even ride in the car for

> a long trip never mind working or excersing that is not even remotely

> possible I try not to feel sorry for myself but sometimes you just get

> in to one of them moods. I need to talk to people who are going

> through the same things so that I feel I am not losing myself!

> Sometimes I feel like my husband should take the kids and leave so

> that they have some kind of a normal life but then my world would

> really be empty and I would feel even more alone than I already do.

> Any advice would be greatly appreciated thank you for listening.

>

>

>

> ------------------------------------

>

> To read these messages on the Hugs web site go to:

> http://groups.yahoo.com/group/Hugs-N-Pain

> you can contact me privately at starlyin@...

> Rose

> Owner/ Moderator Hugs N Pain

> God Bless our Troops

> Please Pray for them

[Guest guest]

Hi Cary,

 I am so sorry about the four discs I have had three fused in my neck I hate to

say it but I don't think the pain will ever stop my last surgery was seven

months ago the pain gets worse if I try to even do a few neck stretches to

strenghten  my muscles. I am scared to my body is used to the medicine but what

choice do we have if we don't take it the pain is so bad I can't even get out of

bed in the morning your right it is a catch 22, my husband does the same thing I

have to fish it out of him it must be a guy thing! I am thinking that surgery

might not be the way to go for you, I had  it done and it's no better the pain

is still there so now I have the pain and some nice ugly scars on my neck! I

think we jsut need to keep talking to other people in this situation I joined

here only a week or so ago but it helps to finally talk to people that know what

we are going through!  I have to find a new job because I am a breakfast

restaurant owner and I

can't do my job. have a good day Cary Keep your chin up!

> From: caryanne04 <caryanne04yahoo (DOT) com>

> Subject: Re: Looking for friends in a world

> of pain

> To: Hugs-N-Pain@ yahoogroups. com

> Date: Wednesday, March 4, 2009, 10:02 PM

>

>

>

>

>

>

>

>

>

>

>

>

>

>

> Hi Kim,

>

>

>

> I understand your delima with your family. Before I got

> engaged to my now husband, I had to up front telling him

> about the severe pain I have that shoots throughout my left

> arm to the fingers and down my back. I wanted to let him

> know that there are alot of things I cannot do alot of the

> time. This was all before I even new that I have 3 severe

> hernieated discs in my neck.

>

>

>

> He is very understanding yet sometimes I feel depressed

> like I am letting the family down (no kids - but him and the

> animals can still be alot of work)

>

>

>

> I know it is hard to express your pain to others who do not

> see it or feel it, I wish sometimes I was gushing blood all

> over the place so the pain would be visable (weird I know)

>

>

>

> Just do the best you can - if he loves you he will

> understand and realize he may have to pitch in more than

> some other husbands do.

>

>

>

> Mainly just know you are not alone.

>

>

>

> Also - another note - taking pain medication can be

> questionable by others who do not suffer. If I run out

> (percocet) the withdrawal can be horrible so that on top of

> every thing else is also very hard for someone else to

> understand. But just remember that you are doing the best

> you can do and others in pain totally get it!!!!

>

>

>

> Cary

>

>

>

> >

>

> > Hi my name is Kim, I have been living with chronic

> neck pain for two

>

> > and a half years, My last surgery was 7 months ago,

> The pain is

>

> > unbearable I feel like all I do is try to get through

> the day! I am

>

> > taking the pain medicine the doctors told me to take

> but it scares me

>

> > because I have been on it for 2 1/2 years, I have

> tried massage,

>

> > chiropractor & acupuncture nothing seems to be

> working they don't

>

> > understand why there is so much pain still. I am

> scared my whole life

>

> > has changed so dramatically! I feel bad for my husband

> and my kids

>

> > they did'nt sign up for this! I used to be this

> vibrant hard working

>

> > woman now I am a 38 year old woman who can't even

> ride in the car for

>

> > a long trip never mind working or excersing that is

> not even remotely

>

> > possible I try not to feel sorry for myself but

> sometimes you just get

>

> > in to one of them moods. I need to talk to people who

> are going

>

> > through the same things so that I feel I am not losing

> myself!

>

> > Sometimes I feel like my husband should take the kids

> and leave so

>

> > that they have some kind of a normal life but then my

> world would

>

> > really be empty and I would feel even more alone than

> I already do.

>

> > Any advice would be greatly appreciated thank you for

> listening.

>

> >

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

[Guest guest]

Hi, Deta ,

Thanks so much for the warm welcome ! I wish, too, that they could walk in our

shoes , this certain Dr, she needs more than a day..and still I don't think she

would get it , she is that lacking in compassion .Having each other means so

much , we're the only ones who can really understand this pain others have, day

after day, year after year .

Les

thecardiacclub

chronicpainsupportclub4women

Looking for friends in a world of pain

> >

> > Hi my name is Kim, I have been living with chronic neck pain for two

> > and a half years, My last surgery was 7 months ago, The pain is

> > unbearable I feel like all I do is try to get through the day! I am

> > taking the pain medicine the doctors told me to take but it scares me

> > because I have been on it for 2 1/2 years, I have tried massage,

> > chiropractor & acupuncture nothing seems to be working they don't

> > understand why there is so much pain still. I am scared my whole life

> > has changed so dramatically! I feel bad for my husband and my kids

> > they did'nt sign up for this! I used to be this vibrant hard working

> > woman now I am a 38 year old woman who can't even ride in the car for

> > a long trip never mind working or excersing that is not even remotely

> > possible I try not to feel sorry for myself but sometimes you just get

> > in to one of them moods. I need to talk to people who are going

> > through the same things so that I feel I am not losing myself!

> > Sometimes I feel like my husband should take the kids and leave so

> > that they have some kind of a normal life but then my world would

> > really be empty and I would feel even more alone than I already do.

> > Any advice would be greatly appreciated thank you for listening.

> >

> >

> >

> > ------------------------------------

> >

> > To read these messages on the Hugs web site go to:

> > http://groups.yahoo.com/group/Hugs-N-Pain

> > you can contact me privately at starlyin@... <starlyin%40aol.com>

> > Rose

> > Owner/ Moderator Hugs N Pain

> > God Bless our Troops

> > Please Pray for them

[Guest guest]

They are really just becoming a known thing here in Ga where I live. unless you

went to Atlanta. I surely hope that the dr's don't turn away from us. here

where I live it is a constant referral. go to this, Dr, then another, etc. at

the present time I have 3 and I desperately need a good gastro. but I don't

think there is such a thing.

Looking for friends in a

> world of pain

> >

> > Hi my name is Kim, I have been living with chronic

> neck pain for two

> > and a half years, My last surgery was 7 months ago,

> The pain is

> > unbearable I feel like all I do is try to get

> through the day! I am

> > taking the pain medicine the doctors told me to take

> but it scares me

> > because I have been on it for 2 1/2 years, I have

> tried massage,

> > chiropractor & acupuncture nothing seems to be

> working they don't

> > understand why there is so much pain still. I am

> scared my whole life

> > has changed so dramatically! I feel bad for my

> husband and my kids

> > they did'nt sign up for this! I used to be this

> vibrant hard working

> > woman now I am a 38 year old woman who can't

> even ride in the car for

> > a long trip never mind working or excersing that is

> not even remotely

> > possible I try not to feel sorry for myself but

> sometimes you just get

> > in to one of them moods. I need to talk to people

> who are going

> > through the same things so that I feel I am not

> losing myself!

> > Sometimes I feel like my husband should take the

> kids and leave so

> > that they have some kind of a normal life but then

> my world would

> > really be empty and I would feel even more alone

> than I already do.

> > Any advice would be greatly appreciated thank you

> for listening.

> >

> >

> >

> > ------------------------------------

> >

> > To read these messages on the Hugs web site go to:

> > http://groups.yahoo.com/group/Hugs-N-Pain

> > you can contact me privately at starlyin@...

> > Rose

> > Owner/ Moderator Hugs N Pain

> > God Bless our Troops

> > Please Pray for them

[Guest guest]

I wish you luck w/your Dr. I too believe we are going to be the one's

left out to dry. People are on the news here everyday for drug charges

and the Dr.'s are simply going to stop treating ANY pain. I try and not

think about it. I have enough on my mind now. Sure hope you have

a restful evening.

Deta

> Hi, Deta ,

> Thanks so much for the warm welcome ! I wish, too, that they could walk in

> our shoes , this certain Dr, she needs more than a day..and still I don't

> think she would get it , she is that lacking in compassion .Having each

> other means so much , we're the only ones who can really understand this

> pain others have, day after day, year after year .

> Les

>

>

> thecardiacclub

> chronicpainsupportclub4women

>

> Looking for friends in a world of pain

> > >

> > > Hi my name is Kim, I have been living with chronic neck pain for two

> > > and a half years, My last surgery was 7 months ago, The pain is

> > > unbearable I feel like all I do is try to get through the day! I am

> > > taking the pain medicine the doctors told me to take but it scares me

> > > because I have been on it for 2 1/2 years, I have tried massage,

> > > chiropractor & acupuncture nothing seems to be working they don't

> > > understand why there is so much pain still. I am scared my whole life

> > > has changed so dramatically! I feel bad for my husband and my kids

> > > they did'nt sign up for this! I used to be this vibrant hard working

> > > woman now I am a 38 year old woman who can't even ride in the car for

> > > a long trip never mind working or excersing that is not even remotely

> > > possible I try not to feel sorry for myself but sometimes you just get

> > > in to one of them moods. I need to talk to people who are going

> > > through the same things so that I feel I am not losing myself!

> > > Sometimes I feel like my husband should take the kids and leave so

> > > that they have some kind of a normal life but then my world would

> > > really be empty and I would feel even more alone than I already do.

> > > Any advice would be greatly appreciated thank you for listening.

> > >

> > >

> > >

> > > ------------------------------------

> > >

> > > To read these messages on the Hugs web site go to:

> > > http://groups.yahoo.com/group/Hugs-N-Pain

> > > you can contact me privately at starlyin@... <starlyin%40aol.com>

> > > Rose

> > > Owner/ Moderator Hugs N Pain

> > > God Bless our Troops

> > > Please Pray for them

[Guest guest]

I hadn't even known about pain centers until someone in a group suggested I go

to one, and found out there was one near my home . My concern isn't that our

pain Dr's will leave us ,because they really want to help us, but that the rest

of the medical field will try to get them shut down ; out here, the Dr's have a

vendetta against the pain sufferer and the pain Dr's who treat us . I think

there are many Dr's that don't say a thing and feel it's up to us to find a pain

Dr, as long as we don't ask them for pain meds , but there are some Dr's , like

the last two I went too, who are gunning for the pain sufferer and the pain

clinics . The most recent Dr even accused the pain Dr's of trying to get us

addicted !! I refused to tell her who I go too when she asked me , knowing how

she feels about them .

Les

thecardiacclub

chronicpainsupportclub4women

Looking for friends in a

> world of pain

> >

> > Hi my name is Kim, I have been living with chronic

> neck pain for two

> > and a half years, My last surgery was 7 months ago,

> The pain is

> > unbearable I feel like all I do is try to get

> through the day! I am

> > taking the pain medicine the doctors told me to take

> but it scares me

> > because I have been on it for 2 1/2 years, I have

> tried massage,

> > chiropractor & acupuncture nothing seems to be

> working they don't

> > understand why there is so much pain still. I am

> scared my whole life

> > has changed so dramatically! I feel bad for my

> husband and my kids

> > they did'nt sign up for this! I used to be this

> vibrant hard working

> > woman now I am a 38 year old woman who can't

> even ride in the car for

> > a long trip never mind working or excersing that is

> not even remotely

> > possible I try not to feel sorry for myself but

> sometimes you just get

> > in to one of them moods. I need to talk to people

> who are going

> > through the same things so that I feel I am not

> losing myself!

> > Sometimes I feel like my husband should take the

> kids and leave so

> > that they have some kind of a normal life but then

> my world would

> > really be empty and I would feel even more alone

> than I already do.

> > Any advice would be greatly appreciated thank you

> for listening.

> >

> >

> >

> > ------------------------------------

> >

> > To read these messages on the Hugs web site go to:

> > http://groups.yahoo.com/group/Hugs-N-Pain

> > you can contact me privately at starlyin@...

> > Rose

> > Owner/ Moderator Hugs N Pain

> > God Bless our Troops

> > Please Pray for them

[Guest guest]

hi everbody when it comes to a pain docter find a good painmanagement docter

donnieKY

>  >

>  > From: Elaine Dowell <emdowell@... <emdowell%40live.com>>

>  > Subject: RE: Looking for friends in a world of pain

>  > To: hugs-n-pain <hugs-n-pain%40yahoogroups.com>

>  > Date: Thursday, February 26, 2009, 4:08 PM

>  >

>  > Kim,

>  >

>  > I relate in a lot of ways to your post. You sound like a brave person

>  > feeling a little abandoned and overwhelmed. But you are not alone;

> please

>  > take some comfort in that. People here do understand.

>  >

>  > This year marks 20 years of unrelenting headache (from damage of brain

>  > surgery) and neck pain. I have lived on massive dosages of heavy

> narcotics,

>  > and they did help. Then my doctor moved and no other doc in this area

> will

>  > touch my case. Which led me to the pain clinic. I am hoping for the

> pump,

>  > but am in the early stages of trial procedures.

>  >

>  > There is nothing you can do to make your family understand; my finds me

> an

>  > embarrassment and a bother. Maybe if you speak with yours frankly and

> from

>  > the heart you will have better luck. I will pray for that. Support would

> be

>  > nice. Either way, you have to do what makes your quality of life the

> best

>  > possible. We all deserve that. Please don't let it overwhelm you;

> answers

>  > are out there and they are here too. This is a great group.

>  >

>  > Keeping you in my thoughts,

>  >

>  > elaine

>  >

>  > > To: Hugs-N-Pain <Hugs-N-Pain%40yahoogroups.com>

>  > > From: kimshomestyle@... <kimshomestyle%40yahoo.com>

>  > > Date: Thu, 26 Feb 2009 15:37:13 +0000

>  > > Subject: Looking for friends in a world of pain

>  > >

>  > > Hi my name is Kim, I have been living with chronic neck pain for two

>  > > and a half years, My last surgery was 7 months ago, The pain is

>  > > unbearable I feel like all I do is try to get through the day! I am

>  > > taking the pain medicine the doctors told me to take but it scares me

>  > > because I have been on it for 2 1/2 years, I have tried massage,

>  > > chiropractor & acupuncture nothing seems to be working they don't

>  > > understand why there is so much pain still. I am scared my whole life

>  > > has changed so dramatically! I feel bad for my husband and my kids

>  > > they did'nt sign up for this! I used to be this vibrant hard working

>  > > woman now I am a 38 year old woman who can't even ride in the car for

>  > > a long trip never mind working or excersing that is not even remotely

>  > > possible I try not to feel sorry for myself but sometimes you just get

>  > > in to one of them moods. I need to talk to people who are going

>  > > through the same things so that I feel I am not losing myself!

>  > > Sometimes I feel like my husband should take the kids and leave so

>  > > that they have some kind of a normal life but then my world would

>  > > really be empty and I would feel even more alone than I already do.

>  > > Any advice would be greatly appreciated thank you for listening.

>  > >

>  > >

>  > >

>  > > ------------------------------------

>  > >

>  > > To read these messages on the Hugs web site go to:

>  > > http://groups.yahoo.com/group/Hugs-N-Pain

>  > > you can contact me privately at starlyin@... <starlyin%40aol.com>

>  > > Rose

>  > > Owner/ Moderator Hugs N Pain

>  > > God Bless our Troops

>  > > Please Pray for them

[Guest guest]

hi everbody when it comes to a pain docter find a good painmanagement docter

donnieKY

>  >

>  > From: Elaine Dowell <emdowell@... <emdowell%40live.com>>

>  > Subject: RE: Looking for friends in a world of pain

>  > To: hugs-n-pain <hugs-n-pain%40yahoogroups.com>

>  > Date: Thursday, February 26, 2009, 4:08 PM

>  >

>  > Kim,

>  >

>  > I relate in a lot of ways to your post. You sound like a brave person

>  > feeling a little abandoned and overwhelmed. But you are not alone;

> please

>  > take some comfort in that. People here do understand.

>  >

>  > This year marks 20 years of unrelenting headache (from damage of brain

>  > surgery) and neck pain. I have lived on massive dosages of heavy

> narcotics,

>  > and they did help. Then my doctor moved and no other doc in this area

> will

>  > touch my case. Which led me to the pain clinic. I am hoping for the

> pump,

>  > but am in the early stages of trial procedures.

>  >

>  > There is nothing you can do to make your family understand; my finds me

> an

>  > embarrassment and a bother. Maybe if you speak with yours frankly and

> from

>  > the heart you will have better luck. I will pray for that. Support would

> be

>  > nice. Either way, you have to do what makes your quality of life the

> best

>  > possible. We all deserve that. Please don't let it overwhelm you;

> answers

>  > are out there and they are here too. This is a great group.

>  >

>  > Keeping you in my thoughts,

>  >

>  > elaine

>  >

>  > > To: Hugs-N-Pain <Hugs-N-Pain%40yahoogroups.com>

>  > > From: kimshomestyle@... <kimshomestyle%40yahoo.com>

>  > > Date: Thu, 26 Feb 2009 15:37:13 +0000

>  > > Subject: Looking for friends in a world of pain

>  > >

>  > > Hi my name is Kim, I have been living with chronic neck pain for two

>  > > and a half years, My last surgery was 7 months ago, The pain is

>  > > unbearable I feel like all I do is try to get through the day! I am

>  > > taking the pain medicine the doctors told me to take but it scares me

>  > > because I have been on it for 2 1/2 years, I have tried massage,

>  > > chiropractor & acupuncture nothing seems to be working they don't

>  > > understand why there is so much pain still. I am scared my whole life

>  > > has changed so dramatically! I feel bad for my husband and my kids

>  > > they did'nt sign up for this! I used to be this vibrant hard working

>  > > woman now I am a 38 year old woman who can't even ride in the car for

>  > > a long trip never mind working or excersing that is not even remotely

>  > > possible I try not to feel sorry for myself but sometimes you just get

>  > > in to one of them moods. I need to talk to people who are going

>  > > through the same things so that I feel I am not losing myself!

>  > > Sometimes I feel like my husband should take the kids and leave so

>  > > that they have some kind of a normal life but then my world would

>  > > really be empty and I would feel even more alone than I already do.

>  > > Any advice would be greatly appreciated thank you for listening.

>  > >

>  > >

>  > >

>  > > ------------------------------------

>  > >

>  > > To read these messages on the Hugs web site go to:

>  > > http://groups.yahoo.com/group/Hugs-N-Pain

>  > > you can contact me privately at starlyin@... <starlyin%40aol.com>

>  > > Rose

>  > > Owner/ Moderator Hugs N Pain

>  > > God Bless our Troops

>  > > Please Pray for them

[Guest guest]

hi kim i have tryed all the stuff you try to make the pain better i have tryed

ever treatment for rsd i have got to the point with my familey i dont care what

thay thank i dont have to go around them i have my disibility i can watch tv all

day or what ever i want go fishing go have fun and it pisses them off and i dont

care donnieKY

From: Elaine Dowell <emdowelllive (DOT) com>

Subject: RE: Looking for friends in a world of pain

To: hugs-n-pain@ yahoogroups. com

Date: Thursday, February 26, 2009, 4:08 PM

Kim,

I relate in a lot of ways to your post. You sound like a brave person

feeling a little abandoned and overwhelmed. But you are not alone; please

take some comfort in that. People here do understand.

This year marks 20 years of unrelenting headache (from damage of brain

surgery) and neck pain. I have lived on massive dosages of heavy narcotics,

and they did help. Then my doctor moved and no other doc in this area will

touch my case. Which led me to the pain clinic. I am hoping for the pump,

but am in the early stages of trial procedures.

There is nothing you can do to make your family understand; my finds me an

embarrassment and a bother. Maybe if you speak with yours frankly and from

the heart you will have better luck. I will pray for that. Support would be

nice. Either way, you have to do what makes your quality of life the best

possible. We all deserve that. Please don't let it overwhelm you; answers

are out there and they are here too. This is a great group.

Keeping you in my thoughts,

elaine

> To: Hugs-N-Pain@ yahoogroups. com

> From: kimshomestyle@ yahoo.com

> Date: Thu, 26 Feb 2009 15:37:13 +0000

> Subject: Looking for friends in a world of pain

>

> Hi my name is Kim, I have been living with chronic neck pain for two

> and a half years, My last surgery was 7 months ago, The pain is

> unbearable I feel like all I do is try to get through the day! I am

> taking the pain medicine the doctors told me to take but it scares me

> because I have been on it for 2 1/2 years, I have tried massage,

> chiropractor & acupuncture nothing seems to be working they don't

> understand why there is so much pain still. I am scared my whole life

> has changed so dramatically! I feel bad for my husband and my kids

> they did'nt sign up for this! I used to be this vibrant hard working

> woman now I am a 38 year old woman who can't even ride in the car for

> a long trip never mind working or excersing that is not even remotely

> possible I try not to feel sorry for myself but sometimes you just get

> in to one of them moods. I need to talk to people who are going

> through the same things so that I feel I am not losing myself!

> Sometimes I feel like my husband should take the kids and leave so

> that they have some kind of a normal life but then my world would

> really be empty and I would feel even more alone than I already do.

> Any advice would be greatly appreciated thank you for listening.

>

>

>

> ------------ --------- --------- ------

>

> To read these messages on the Hugs web site go to:

> http://groups. yahoo.com/ group/Hugs- N-Pain

> you can contact me privately at starlyinaol (DOT) com

> Rose

> Owner/ Moderator Hugs N Pain

> God Bless our Troops

> Please Pray for them

[Guest guest]

I have a wonderful one! The 2 PCP's I went to who are against anyone taking

pain meds are trying to find out who he is so they can go after him ,I assume

thats' why they want to know ; I won't tell them ...

Les

thecardiacclub

chronicpainsupportclub4women

Looking for friends in a world of pain

> > >

> > > Hi my name is Kim, I have been living with chronic neck pain for two

> > > and a half years, My last surgery was 7 months ago, The pain is

> > > unbearable I feel like all I do is try to get through the day! I am

> > > taking the pain medicine the doctors told me to take but it scares me

> > > because I have been on it for 2 1/2 years, I have tried massage,

> > > chiropractor & acupuncture nothing seems to be working they don't

> > > understand why there is so much pain still. I am scared my whole life

> > > has changed so dramatically! I feel bad for my husband and my kids

> > > they did'nt sign up for this! I used to be this vibrant hard working

> > > woman now I am a 38 year old woman who can't even ride in the car for

> > > a long trip never mind working or excersing that is not even remotely

> > > possible I try not to feel sorry for myself but sometimes you just get

> > > in to one of them moods. I need to talk to people who are going

> > > through the same things so that I feel I am not losing myself!

> > > Sometimes I feel like my husband should take the kids and leave so

> > > that they have some kind of a normal life but then my world would

> > > really be empty and I would feel even more alone than I already do.

> > > Any advice would be greatly appreciated thank you for listening.

> > >

> > >

> > >

> > > ------------------------------------

> > >

> > > To read these messages on the Hugs web site go to:

> > > http://groups.yahoo.com/group/Hugs-N-Pain

> > > you can contact me privately at starlyin@... <starlyin%40aol.com>

> > > Rose

> > > Owner/ Moderator Hugs N Pain

> > > God Bless our Troops

> > > Please Pray for them

[Guest guest]

Hi Kim,

 

I remember how much extra pain I'd get after the injections; uh, no fun! I truly

hope you get some relief soon and iti will last awhile for you! Some people get

very good results from the injections and they can last up to a few months; I

will hope you are one of them.

As far as family goes...this is so hard! When we hurt so bad we can hardly stand

it and then have our own family dismiss our pain. A support group like this is

vital to chronic painers. Take care!

 

Hugs,

 

 

From: Elaine Dowell <emdowelllive (DOT) com>

Subject: RE: Looking for friends in a world of pain

To: hugs-n-pain@ yahoogroups. com

Date: Thursday, February 26, 2009, 4:08 PM

Kim,

I relate in a lot of ways to your post. You sound like a brave person

feeling a little abandoned and overwhelmed. But you are not alone; please

take some comfort in that. People here do understand.

This year marks 20 years of unrelenting headache (from damage of brain

surgery) and neck pain. I have lived on massive dosages of heavy narcotics,

and they did help. Then my doctor moved and no other doc in this area will

touch my case. Which led me to the pain clinic. I am hoping for the pump,

but am in the early stages of trial procedures.

There is nothing you can do to make your family understand; my finds me an

embarrassment and a bother. Maybe if you speak with yours frankly and from

the heart you will have better luck. I will pray for that. Support would be

nice. Either way, you have to do what makes your quality of life the best

possible. We all deserve that. Please don't let it overwhelm you; answers

are out there and they are here too. This is a great group.

Keeping you in my thoughts,

elaine

> To: Hugs-N-Pain@ yahoogroups. com

> From: kimshomestyle@ yahoo.com

> Date: Thu, 26 Feb 2009 15:37:13 +0000

> Subject: Looking for friends in a world of pain

>

> Hi my name is Kim, I have been living with chronic neck pain for two

> and a half years, My last surgery was 7 months ago, The pain is

> unbearable I feel like all I do is try to get through the day! I am

> taking the pain medicine the doctors told me to take but it scares me

> because I have been on it for 2 1/2 years, I have tried massage,

> chiropractor & acupuncture nothing seems to be working they don't

> understand why there is so much pain still. I am scared my whole life

> has changed so dramatically! I feel bad for my husband and my kids

> they did'nt sign up for this! I used to be this vibrant hard working

> woman now I am a 38 year old woman who can't even ride in the car for

> a long trip never mind working or excersing that is not even remotely

> possible I try not to feel sorry for myself but sometimes you just get

> in to one of them moods. I need to talk to people who are going

> through the same things so that I feel I am not losing myself!

> Sometimes I feel like my husband should take the kids and leave so

> that they have some kind of a normal life but then my world would

> really be empty and I would feel even more alone than I already do.

> Any advice would be greatly appreciated thank you for listening.

>

>

>

> ------------ --------- --------- ------

>

> To read these messages on the Hugs web site go to:

> http://groups. yahoo.com/ group/Hugs- N-Pain

> you can contact me privately at starlyinaol (DOT) com

> Rose

> Owner/ Moderator Hugs N Pain

> God Bless our Troops

> Please Pray for them

[Guest guest]

Hi,,

Thanks so much , only we sufferers can understand what it does to us when we're

shunned that way ! I'm so glad you have an awesome Dr now ! PN stands for

peripheral neuropathy , it's when the nerves slowly die, it's a progressive

disease and is extremely painful , like stepping on hot coals, having the pain

like an abscessed tooth , stepping on cactus, that sort of pain . It's

unrelenting ,and can spread to all the organs in your body.On top of that I have

very severe arthritis all over my body . The data base is a good idea, but some

of the Dr's here are using it to black list the people who aren't abusing it .My

pain Dr and I discussed it, and he said they have no reason at all to go after

me that way, because I'm one of those that really needs them and doesn't abuse

them . I think they're looking at my data and thinking I'm taking higher doses

than I am because I only come in every two months for the pain meds ,so I get

double prescriptions .

Thanks so much !

Les

thecardiacclub

chronicpainsupportclub4women

Looking for friends in a world of pain

>

> Hi my name is Kim, I have been living with chronic neck pain for two

> and a half years, My last surgery was 7 months ago, The pain is

> unbearable I feel like all I do is try to get through the day! I am

> taking the pain medicine the doctors told me to take but it scares me

> because I have been on it for 2 1/2 years, I have tried massage,

> chiropractor & acupuncture nothing seems to be working they don't

> understand why there is so much pain still. I am scared my whole life

> has changed so dramatically! I feel bad for my husband and my kids

> they did'nt sign up for this! I used to be this vibrant hard working

> woman now I am a 38 year old woman who can't even ride in the car for

> a long trip never mind working or excersing that is not even remotely

> possible I try not to feel sorry for myself but sometimes you just get

> in to one of them moods. I need to talk to people who are going

> through the same things so that I feel I am not losing myself!

> Sometimes I feel like my husband should take the kids and leave so

> that they have some kind of a normal life but then my world would

> really be empty and I would feel even more alone than I already do.

> Any advice would be greatly appreciated thank you for listening.

>

>

>

> ------------ --------- --------- ------

>

> To read these messages on the Hugs web site go to:

> http://groups. yahoo.com/ group/Hugs- N-Pain

> you can contact me privately at starlyinaol (DOT) com

> Rose

> Owner/ Moderator Hugs N Pain

> God Bless our Troops

> Please Pray for them

[Guest guest]

Thank you.

Here's a couple more. Sometimes we don't think we have any power at all but we

have a few channels. We can complain about doctors who treat us bad or make

accusations that are unfounded. Calling someone an addict or making suggestions

of that kind are out of line. Like I said, I used to be certified in psych and

was a certified substance abuse councilor.

Addiction is diagnosed by someone who can and is trained to do so. It is NOT

done by pointing and just saying so. Many of the doctors who knew me used me

for that purpose simply because I was trained in that area and could diagnose.

Even the shrinks used me a lot in that area.

NO ONE but NO ONE can just point and say you are. You must go thru diagnosis by

someone who is trained to do so. Many doctors will have a shrink see potential

pain management patients before treatment just to be more comfortable with it.

That's kewl. It's not a bad idea.

You can contact the state medical board in your state and register a complaint.

You can also get involved in the AMA.

http://www.amavic.com.au/page/Our_Services/Community_Info/Choosing_a_Doctor/Comp\

laints_about_Doctors/

http://yourtotalhealth.ivillage.com/ama-membership-amp-finding-good-doctor.html

http://www.amavic.com.au/page/Our_Services/Community_Info/Choosing_a_Doctor/Comp\

laints_about_Doctors/

Doctors have no business treating patients in a way that leaves them afraid or

feeling guilty and let them know that you do not appreciate it by registering

the complaint. If they don't want to treat chronic pain, fine....they have that

choice. Just say so and provide the name of one who may do that for you.

Again about addiction. It is a complex medical issue and deserves treating by

those trained to do so and diagnosed by those trained to do so. It is NOT a

morale issue. It is a disease and a tuff one. I've never looked on an addict

as a person with morale problems.

They are held accountable for bad things they may do but when treating it you do

not judge them. Part of the cycle is the heavy duty guilt.

People make it a morale issue because everyone around them is affected and

addicts do desperate things because the disease reaches that point and that's

why the whole family is treated. This isn't to say the addict isn't held

responsible for his desperate actions like stealing, etc.

I've had deep respect for the majority of my addicts and have loved working with

them. It's a hard road but they end up really strong people.

Next time someone points and calls you an addict let 'em have it. Ask if they

are specifically trained to do that.

Also for you that love your doctor. They have thank you cards for your doctor.

http://www.ama-assn.org/ama/no-index/about-ama/15588.shtml

Anyway...I'm glad the links helped and I hope you can get your family involved.

Remember that part of why they deny your disease is that they are helpless to

help you and that makes them feel guilty and powerless and that causes a certain

lashing out. It's getting past all of that.

Lotacats

Express Chronic Pain Awareness

http://www.cafepress.com/lotacatspix/5815010

Lotacatsfunpix.com

http://www.lotacatsfunpix.com/

Deviantart

http://lotacats05.deviantart.com/

> >

> >

> >

> > Subject: RE: Looking for friends in

> a world

> > of pain

> > To: hugs-n-pain

> > Date: Thursday, February 26, 2009, 4:08 PM

> >

> >

> >

> > Kim,

> >

> > I relate in a lot of ways to your post. You sound

> like a

> > brave person feeling a little abandoned and

> overwhelmed. But

> > you are not alone; please take some comfort in that.

> People

> > here do understand.

> >

> > This year marks 20 years of unrelenting headache

> (from

> > damage of brain surgery) and neck pain. I have lived

> on

> > massive dosages of heavy narcotics, and they did

> help. Then

> > my doctor moved and no other doc in this area will

> touch my

> > case. Which led me to the pain clinic. I am hoping

> for the

> > pump, but am in the early stages of trial

> procedures.

> >

> > There is nothing you can do to make your family

> > understand; my finds me an embarrassment and a

> bother. Maybe

> > if you speak with yours frankly and from the heart

> you will

> > have better luck. I will pray for that. Support

> would be

> > nice. Either way, you have to do what makes your

> quality of

> > life the best possible. We all deserve that. Please

> > don't let it overwhelm you; answers are out

> there and

> > they are here too. This is a great group.

> >

> > Keeping you in my thoughts,

> >

> > elaine

> >

> >

> >

> >

> >

> > > To: Hugs-N-Pain

> > > From: kimshomestyle@...

> > > Date: Thu, 26 Feb 2009 15:37:13 +0000

> > > Subject: Looking for friends in

> a

> > world of pain

> > >

> > > Hi my name is Kim, I have been living with

> chronic

> > neck pain for two

> > > and a half years, My last surgery was 7

> months ago,

> > The pain is

> > > unbearable I feel like all I do is try to get

> > through the day! I am

> > > taking the pain medicine the doctors told me

> to take

> > but it scares me

> > > because I have been on it for 2 1/2 years, I

> have

> > tried massage,

> > > chiropractor & acupuncture nothing seems

> to be

> > working they don't

> > > understand why there is so much pain still. I

> am

> > scared my whole life

> > > has changed so dramatically! I feel bad for

> my

> > husband and my kids

> > > they did'nt sign up for this! I used to

> be this

> > vibrant hard working

> > > woman now I am a 38 year old woman who

> can't

> > even ride in the car for

> > > a long trip never mind working or excersing

> that is

> > not even remotely

> > > possible I try not to feel sorry for myself

> but

> > sometimes you just get

> > > in to one of them moods. I need to talk to

> people

> > who are going

> > > through the same things so that I feel I am

> not

> > losing myself!

> > > Sometimes I feel like my husband should take

> the

> > kids and leave so

> > > that they have some kind of a normal life but

> then

> > my world would

> > > really be empty and I would feel even more

> alone

> > than I already do.

> > > Any advice would be greatly appreciated thank

> you

> > for listening.

> > >

> > >

> > >

> > > ------------------------------------

> > >

> > > To read these messages on the Hugs web site

> go to:

> > > http://groups.yahoo.com/group/Hugs-N-Pain

> > > you can contact me privately at

> starlyin@...

> > > Rose

> > > Owner/ Moderator Hugs N Pain

> > > God Bless our Troops

> > > Please Pray for them

[Guest guest]

Hi, ,

I belong to the APF also ! I went to a meeting they had in our city some months

ago, and my pain Dr was there ! That guy is wonderful . I asked him for a

referral of a sympathetic primary or internist Dr, and he just laughed and said

good luck ; it's that bad out here .

Les

thecardiacclub

chronicpainsupportclub4women

Looking for friends in a world of pain

>

> Hi my name is Kim, I have been living with chronic neck pain for two

> and a half years, My last surgery was 7 months ago, The pain is

> unbearable I feel like all I do is try to get through the day! I am

> taking the pain medicine the doctors told me to take but it scares me

> because I have been on it for 2 1/2 years, I have tried massage,

> chiropractor & acupuncture nothing seems to be working they don't

> understand why there is so much pain still. I am scared my whole life

> has changed so dramatically! I feel bad for my husband and my kids

> they did'nt sign up for this! I used to be this vibrant hard working

> woman now I am a 38 year old woman who can't even ride in the car for

> a long trip never mind working or excersing that is not even remotely

> possible I try not to feel sorry for myself but sometimes you just get

> in to one of them moods. I need to talk to people who are going

> through the same things so that I feel I am not losing myself!

> Sometimes I feel like my husband should take the kids and leave so

> that they have some kind of a normal life but then my world would

> really be empty and I would feel even more alone than I already do.

> Any advice would be greatly appreciated thank you for listening.

>

>

>

> ------------ --------- --------- ------

>

> To read these messages on the Hugs web site go to:

> http://groups. yahoo.com/ group/Hugs- N-Pain

> you can contact me privately at starlyinaol (DOT) com

> Rose

> Owner/ Moderator Hugs N Pain

> God Bless our Troops

> Please Pray for them

[Guest guest]

Thanks for these links, too , I appreciate it ! My youngest daughter used to be

a substance abuse councilor , also . It should be illegal for these Dr's to

label someone like me , damaging my reputation and insulting me that way . I

checked my board of medical examiners , and they don't even acknowledge

complaints that are verbal insults made by Dr's , so they say whatever they want

to the patients , knowing full well that they're not accountable to anyone

..Maybe that's why there are so many bad Dr's here, they know they can do or say

just about anything . There were a series of articles in our paper a few years

back about how bad our BOMA was , but that didn't make them clean up their act .

The only things that they really come down on Dr's here about are prescribing

too many narcotics ,and Dr's that try to prescribe holistic approaches .

Les

thecardiacclub

chronicpainsupportclub4women

Looking for friends in

> a

> > world of pain

> > >

> > > Hi my name is Kim, I have been living with

> chronic

> > neck pain for two

> > > and a half years, My last surgery was 7

> months ago,

> > The pain is

> > > unbearable I feel like all I do is try to get

> > through the day! I am

> > > taking the pain medicine the doctors told me

> to take

> > but it scares me

> > > because I have been on it for 2 1/2 years, I

> have

> > tried massage,

> > > chiropractor & acupuncture nothing seems

> to be

> > working they don't

> > > understand why there is so much pain still. I

> am

> > scared my whole life

> > > has changed so dramatically! I feel bad for

> my

> > husband and my kids

> > > they did'nt sign up for this! I used to

> be this

> > vibrant hard working

> > > woman now I am a 38 year old woman who

> can't

> > even ride in the car for

> > > a long trip never mind working or excersing

> that is

> > not even remotely

> > > possible I try not to feel sorry for myself

> but

> > sometimes you just get

> > > in to one of them moods. I need to talk to

> people

> > who are going

> > > through the same things so that I feel I am

> not

> > losing myself!

> > > Sometimes I feel like my husband should take

> the

> > kids and leave so

> > > that they have some kind of a normal life but

> then

> > my world would

> > > really be empty and I would feel even more

> alone

> > than I already do.

> > > Any advice would be greatly appreciated thank

> you

> > for listening.

> > >

> > >

> > >

> > > ------------------------------------

> > >

> > > To read these messages on the Hugs web site

> go to:

> > > http://groups.yahoo.com/group/Hugs-N-Pain

> > > you can contact me privately at

> starlyin@...

> > > Rose

> > > Owner/ Moderator Hugs N Pain

> > > God Bless our Troops

> > > Please Pray for them

[Guest guest]

The worst of the worst when it cane to Pain Dr's was older pain Dr. who lived in

FT. , CO he really helped me out with what was going on in my body. He

instructed me to stay home from work due to all my pain, and then in a few weeks

I would be getting a TENS Unit everything was supposed to become great again.

Instead he cancelled my most important appt so he could go cross country helium

ballooning. He and his group had a terrible accidentand he passed away. I

understood how all of that could have happened and how I needed to give the

office time. Things started getting so bad that they refused to sign any

paperwork that I needed for work. Long story short I got fired. Now though I

have a wonderful Dr. and I love his staff and the surgeon I talked to cand find

a heart

> > > >

> > > > From: Elaine Dowell <emdowell@ <emdowell%40live.com>>

> > > > Subject: RE: Looking for friends in a world of pain

> > > > To: hugs-n-pain <hugs-n-pain%40yahoogroups.com>

> > > > Date: Thursday, February 26, 2009, 4:08 PM

> > > >

> > > > Kim,

> > > >

> > > > I relate in a lot of ways to your post. You sound like a brave

person

> > > > feeling a little abandoned and overwhelmed. But you are not alone;

> > > please

> > > > take some comfort in that. People here do understand.

> > > >

> > > > This year marks 20 years of unrelenting headache (from damage of

brain

> > > > surgery) and neck pain. I have lived on massive dosages of heavy

> > > narcotics,

> > > > and they did help. Then my doctor moved and no other doc in this

area

> > > will

> > > > touch my case. Which led me to the pain clinic. I am hoping for the

> > > pump,

> > > > but am in the early stages of trial procedures.

> > > >

> > > > There is nothing you can do to make your family understand; my finds

me

> > > an

> > > > embarrassment and a bother. Maybe if you speak with yours frankly

and

> > > from

> > > > the heart you will have better luck. I will pray for that. Support

would

> > > be

> > > > nice. Either way, you have to do what makes your quality of life the

> > > best

> > > > possible. We all deserve that. Please don't let it overwhelm you;

> > > answers

> > > > are out there and they are here too. This is a great group.

> > > >

> > > > Keeping you in my thoughts,

> > > >

> > > > elaine

> > > >

> > > > > To: Hugs-N-Pain <Hugs-N-Pain%40yahoogroups.com>

> > > > > From: kimshomestyle@ <kimshomestyle%40yahoo.com>

> > > > > Date: Thu, 26 Feb 2009 15:37:13 +0000

> > > > > Subject: Looking for friends in a world of pain

> > > > >

> > > > > Hi my name is Kim, I have been living with chronic neck pain for

two

> > > > > and a half years, My last surgery was 7 months ago, The pain is

> > > > > unbearable I feel like all I do is try to get through the day! I

am

> > > > > taking the pain medicine the doctors told me to take but it scares

me

> > > > > because I have been on it for 2 1/2 years, I have tried massage,

> > > > > chiropractor & acupuncture nothing seems to be working they don't

> > > > > understand why there is so much pain still. I am scared my whole

life

> > > > > has changed so dramatically! I feel bad for my husband and my kids

> > > > > they did'nt sign up for this! I used to be this vibrant hard

working

> > > > > woman now I am a 38 year old woman who can't even ride in the car

for

> > > > > a long trip never mind working or excersing that is not even

remotely

> > > > > possible I try not to feel sorry for myself but sometimes you just

get

> > > > > in to one of them moods. I need to talk to people who are going

> > > > > through the same things so that I feel I am not losing myself!

> > > > > Sometimes I feel like my husband should take the kids and leave so

> > > > > that they have some kind of a normal life but then my world would

> > > > > really be empty and I would feel even more alone than I already

do.

> > > > > Any advice would be greatly appreciated thank you for listening.

> > > > >

> > > > >

> > > > >

> > > > > ------------------------------------

> > > > >

> > > > > To read these messages on the Hugs web site go to:

> > > > > http://groups.yahoo.com/group/Hugs-N-Pain

> > > > > you can contact me privately at starlyin@ <starlyin%40aol.com>

> > > > > Rose

> > > > > Owner/ Moderator Hugs N Pain

> > > > > God Bless our Troops

> > > > > Please Pray for them

[Guest guest]

hi how is my freand lotacats doing and how is the kittys doing i am laying here

with my retarded cat he hates to be by his self he is a good companion he stays

on the couch as much as me donnieKY

>

> From: Elaine Dowell <emdowelllive (DOT) com>

>

> Subject: RE: Looking for friends in a world

> of pain

>

> To: hugs-n-pain@ yahoogroups. com

>

> Date: Thursday, February 26, 2009, 4:08 PM

>

> Kim,

>

> I relate in a lot of ways to your post. You sound like a

> brave person

>

> feeling a little abandoned and overwhelmed. But you are not

> alone; please

>

> take some comfort in that. People here do understand.

>

> This year marks 20 years of unrelenting headache (from

> damage of brain

>

> surgery) and neck pain. I have lived on massive dosages of

> heavy narcotics,

>

> and they did help. Then my doctor moved and no other doc in

> this area will

>

> touch my case. Which led me to the pain clinic. I am hoping

> for the pump,

>

> but am in the early stages of trial procedures.

>

> There is nothing you can do to make your family understand;

> my finds me an

>

> embarrassment and a bother. Maybe if you speak with yours

> frankly and from

>

> the heart you will have better luck. I will pray for that.

> Support would be

>

> nice. Either way, you have to do what makes your quality of

> life the best

>

> possible. We all deserve that. Please don't let it

> overwhelm you; answers

>

> are out there and they are here too. This is a great group.

>

> Keeping you in my thoughts,

>

> elaine

>

> > To: Hugs-N-Pain@ yahoogroups. com

>

> > From: kimshomestyle@ yahoo.com

>

> > Date: Thu, 26 Feb 2009 15:37:13 +0000

>

> > Subject: Looking for friends in a world

> of pain

>

> >

>

> > Hi my name is Kim, I have been living with chronic

> neck pain for two

>

> > and a half years, My last surgery was 7 months ago,

> The pain is

>

> > unbearable I feel like all I do is try to get through

> the day! I am

>

> > taking the pain medicine the doctors told me to take

> but it scares me

>

> > because I have been on it for 2 1/2 years, I have

> tried massage,

>

> > chiropractor & acupuncture nothing seems to be

> working they don't

>

> > understand why there is so much pain still. I am

> scared my whole life

>

> > has changed so dramatically! I feel bad for my husband

> and my kids

>

> > they did'nt sign up for this! I used to be this

> vibrant hard working

>

> > woman now I am a 38 year old woman who can't even

> ride in the car for

>

> > a long trip never mind working or excersing that is

> not even remotely

>

> > possible I try not to feel sorry for myself but

> sometimes you just get

>

> > in to one of them moods. I need to talk to people who

> are going

>

> > through the same things so that I feel I am not losing

> myself!

>

> > Sometimes I feel like my husband should take the kids

> and leave so

>

> > that they have some kind of a normal life but then my

> world would

>

> > really be empty and I would feel even more alone than

> I already do.

>

> > Any advice would be greatly appreciated thank you for

> listening.

>

> >

>

> >

>

> >

>

> > ------------ --------- --------- ------

>

> >

>

> > To read these messages on the Hugs web site go to:

>

> > http://groups. yahoo.com/ group/Hugs- N-Pain

>

> > you can contact me privately at starlyinaol (DOT) com

>

> > Rose

>

> > Owner/ Moderator Hugs N Pain

>

> > God Bless our Troops

>

> > Please Pray for them Yahoo!%2

[Guest guest]

hi lotacats there is nothing like are cats and i have a big boxer dog that is

laying beside me rite now he is my shato he go,s everwere with me in the worm

months he loves to ride he sleeps at the foot of the couch every nite and he is

the best minding dog he is great i have had hem 1 year now he sets in the front

seat like a person when we go running around donnieKY

> >

> > From: Elaine Dowell <emdowelllive (DOT) com>

> >

> > Subject: RE: Looking for friends in a

> world

> > of pain

> >

> > To: hugs-n-pain@ yahoogroups. com

> >

> > Date: Thursday, February 26, 2009, 4:08 PM

> >

> > Kim,

> >

> > I relate in a lot of ways to your post. You sound like

> a

> > brave person

> >

> > feeling a little abandoned and overwhelmed. But you

> are not

> > alone; please

> >

> > take some comfort in that. People here do understand.

> >

> > This year marks 20 years of unrelenting headache (from

> > damage of brain

> >

> > surgery) and neck pain. I have lived on massive

> dosages of

> > heavy narcotics,

> >

> > and they did help. Then my doctor moved and no other

> doc in

> > this area will

> >

> > touch my case. Which led me to the pain clinic. I am

> hoping

> > for the pump,

> >

> > but am in the early stages of trial procedures.

> >

> > There is nothing you can do to make your family

> understand;

> > my finds me an

> >

> > embarrassment and a bother. Maybe if you speak with

> yours

> > frankly and from

> >

> > the heart you will have better luck. I will pray for

> that.

> > Support would be

> >

> > nice. Either way, you have to do what makes your

> quality of

> > life the best

> >

> > possible. We all deserve that. Please don't let it

> > overwhelm you; answers

> >

> > are out there and they are here too. This is a great

> group.

> >

> > Keeping you in my thoughts,

> >

> > elaine

> >

> > > To: Hugs-N-Pain@ yahoogroups. com

> >

> > > From: kimshomestyle@ yahoo.com

> & gt%

[Guest guest]

hi lotacats there is nothing like are cats and i have a big boxer dog that is

laying beside me rite now he is my shato he go,s everwere with me in the worm

months he loves to ride he sleeps at the foot of the couch every nite and he is

the best minding dog he is great i have had hem 1 year now he sets in the front

seat like a person when we go running around donnieKY

> >

> > From: Elaine Dowell <emdowelllive (DOT) com>

> >

> > Subject: RE: Looking for friends in a

> world

> > of pain

> >

> > To: hugs-n-pain@ yahoogroups. com

> >

> > Date: Thursday, February 26, 2009, 4:08 PM

> >

> > Kim,

> >

> > I relate in a lot of ways to your post. You sound like

> a

> > brave person

> >

> > feeling a little abandoned and overwhelmed. But you

> are not

> > alone; please

> >

> > take some comfort in that. People here do understand.

> >

> > This year marks 20 years of unrelenting headache (from

> > damage of brain

> >

> > surgery) and neck pain. I have lived on massive

> dosages of

> > heavy narcotics,

> >

> > and they did help. Then my doctor moved and no other

> doc in

> > this area will

> >

> > touch my case. Which led me to the pain clinic. I am

> hoping

> > for the pump,

> >

> > but am in the early stages of trial procedures.

> >

> > There is nothing you can do to make your family

> understand;

> > my finds me an

> >

> > embarrassment and a bother. Maybe if you speak with

> yours

> > frankly and from

> >

> > the heart you will have better luck. I will pray for

> that.

> > Support would be

> >

> > nice. Either way, you have to do what makes your

> quality of

> > life the best

> >

> > possible. We all deserve that. Please don't let it

> > overwhelm you; answers

> >

> > are out there and they are here too. This is a great

> group.

> >

> > Keeping you in my thoughts,

> >

> > elaine

> >

> > > To: Hugs-N-Pain@ yahoogroups. com

> >

> > > From: kimshomestyle@ yahoo.com

> >

> > > Date: Thu, 26 Feb 2009 15:37:13 +0000

> >

> > > Subject: Looking for friends in a

> world

> > of pain

> >

> > >

> >

> > > Hi my name is Kim, I have been living with

> chronic

> > neck pain for two

> >

> > > and a half years, My last surgery was 7 months

> ago,

> > The pain is

> >

> > > unbearable I feel like all I do is try to get

> through

> > the day! I am

> >

> > > taking the pain medicine the doctors told me to

> take

> > but it scares me

> >

> > > because I have been on it for 2 1/2 years, I have

> > tried massage,

> >

> > > chiropractor & acupuncture nothing seems to

> be

> > working they don't

> >

> > > understand why there is so much pain still. I am

> > scared my whole life

> >

> > > has changed so dramatically! I feel bad for my

> husband

> > and my kids

> >

> > > they did'nt sign up for this! I used to be

> this

> > vibrant hard working

> >

> > > woman now I am a 38 year old woman who can't

> even

> > ride in the car for

> >

> > > a long trip never mind working or excersing that

> is

> > not even remotely

> >

> > > possible I try not to feel sorry for myself but

> > sometimes you just get

> >

> > > in to one of

[Guest guest]

hi lotacats there is nothing like are cats and i have a big boxer dog that is

laying beside me rite now he is my shato he go,s everwere with me in the worm

months he loves to ride he sleeps at the foot of the couch every nite and he is

the best minding dog he is great i have had hem 1 year now he sets in the front

seat like a person when we go running around donnieKY

> >

> > From: Elaine Dowell <emdowelllive (DOT) com>

> >

> > Subject: RE: Looking for friends in a

> world

> > of pain

> >

> > To: hugs-n-pain@ yahoogroups. com

> >

> > Date: Thursday, February 26, 2009, 4:08 PM

> >

> > Kim,

> >

> > I relate in a lot of ways to your post. You sound like

> a

> > brave person

> >

> > feeling a little abandoned and overwhelmed. But you

> are not

> > alone; please

> >

> > take some comfort in that. People here do understand.

> >

> > This year marks 20 years of unrelenting headache (from

> > damage of brain

> >

> > surgery) and neck pain. I have lived on massive

> dosages of

> > heavy narcotics,

> >

> > and they did help. Then my doctor moved and no other

> doc in

> > this area will

> >

> > touch my case. Which led me to the pain clinic. I am

> hoping

> > for the pump,

> >

> > but am in the early stages of trial procedures.

> >

> > There is nothing you can do to make your family

> understand;

> > my finds me an

> >

> > embarrassment and a bother. Maybe if you speak with

> yours

> > frankly and from

> >

> > the heart you will have better luck. I will pray for

> that.

> > Support would be

> >

> > nice. Either way, you have to do what makes your

> quality of

> > life the best

> >

> > possible. We all deserve that. Please don't let it

> > overwhelm you; answers

> >

> > are out there and they are here too. This is a great

> group.

> >

> > Keeping you in my thoughts,

> >

> > elaine

> >

> > > To: Hugs-N-Pain@ yahoogroups. com

> >

> > > From: kimshomestyle@ yahoo.com

> >

> > > Date: Thu, 26 Feb 2009 15:37:13 +0000

> >

> > > Subject: Looking for friends in a

> world

> > of pain

> >

> > >

> >

> > > Hi my name is Kim, I have been living with

> chronic

> > neck pain for two

> >

> > > and a half years, My last surgery was 7 months

> ago,

> > The pain is

> >

> > > unbearable I feel like all I do is try to get

> through

> > the day! I am

> >

> > > taking the pain medicine the doctors told me to

> take

> > but it scares me

> >

> > > because I have been on it for 2 1/2 years, I have

> > tried massage,

> >

> > > chiropractor & acupuncture nothing seems to

> be

> > working they don't

> >

> > > understand why there is so much pain still. I am

> > scared my whole life

> >

> > > has changed so dramatically! I feel bad for my

> husband

> > and my kids

> >

> > > they did'nt sign up for this! I used to be

> this

> > vibrant hard working

> >

> > > woman now I am a 38 year old woman who can't

> even

> > ride in the car for

> >

> > > a long trip never mind working or excersing that

> is

> > not even remotely

> >

> > > possible I try not to feel sorry for myself but

> > sometimes you just get

> >

> > > in to one of them moods. I need to talk to people

> who

> > are going

> >

> > > through the same things so that I feel I am not

> losing

> > myself!

> >

> > > Sometimes I feel like my husband should take the

> kids

> > and leave so

> >

> > > that they have some kind of a normal life but

> then my

> > world would

> >

> > > really be empty and I would feel even more alone

> than

> > I already do.

> >

> > > Any advice would be greatly appreciated thank you

> for

> > listening.

> >

> > >

> >

> > >

> >

> > >

> >

> > > ------------ --------- --------- ------

> >

> > >

> >

> > > To read these messages on the Hugs web site go

> to:

> >

> > > http://groups. yahoo.com/ group/Hugs- N-Pain

> >

> > > you can contact me privately at starlyinaol (DOT) com

> >

> > > Rose

> >

> > > Owner/ Moderator Hugs N Pain

> >

> > > God Bless our Troops

> >

> > > Please Pray for them

[Guest guest]

hi lotacats there is nothing like are cats and i have a big boxer dog that is

laying beside me rite now he is my shato he go,s everwere with me in the worm

months he loves to ride he sleeps at the foot of the couch every nite and he is

the best minding dog he is great i have had hem 1 year now he sets in the front

seat like a person when we go running around donnieKY

> >

> > From: Elaine Dowell <emdowelllive (DOT) com>

> >

> > Subject: RE: Looking for friends in a

> world

> > of pain

> >

> > To: hugs-n-pain@ yahoogroups. com

> >

> > Date: Thursday, February 26, 2009, 4:08 PM

> >

> > Kim,

> >

> > I relate in a lot of ways to your post. You sound like

> a

> > brave person

> >

> > feeling a little abandoned and overwhelmed. But you

> are not

> > alone; please

> >

> > take some comfort in that. People here do understand.

> >

> > This year marks 20 years of unrelenting headache (from

> > damage of brain

> >

> > surgery) and neck pain. I have lived on massive

> dosages of

> > heavy narcotics,

> >

> > and they did help. Then my doctor moved and no other

> doc in

> > this area will

> >

> > touch my case. Which led me to the pain clinic. I am

> hoping

> > for the pump,

> >

> > but am in the early stages of trial procedures.

> >

> > There is nothing you can do to make your family

> understand;

> > my finds me an

> >

> > embarrassment and a bother. Maybe if you speak with

> yours

> > frankly and from

> >

> > the heart you will have better luck. I will pray for

> that.

> > Support would be

> >

> > nice. Either way, you have to do what makes your

> quality of

> > life the best

> >

> > possible. We all deserve that. Please don't let it

> > overwhelm you; answers

> >

> > are out there and they are here too. This is a great

> group.

> >

> > Keeping you in my thoughts,

> >

> > elaine

> >

> > > To: Hugs-N-Pain@ yahoogroups. com

> >

> > > From: kimshomestyle@ yahoo.com

> >

> > > Date: Thu, 26 Feb 2009 15:37:13 +0000

> >

> > > Subject: Looking for friends in a

> world

> > of pain

> >

> > >

> >

> > > Hi my name is Kim, I have been living with

> chronic

> > neck pain for two

> >

> > > and a half years, My last surgery was 7 months

> ago,

> > The pain is

> >

> > > unbearable I feel like all I do is try to get

> through

> > the day! I am

> >

> > > taking the pain medicine the doctors told me to

> take

> > but it scares me

> >

> > > because I have been on it for 2 1/2 years, I have

> > tried massage,

> >

> > > chiropractor & acupuncture nothing seems to

> be

> > working they don't

> >

> > > understand why there is so much pain still. I am

> > scared my whole life

> >

> > > has changed so dramatically! I feel bad for my

> husband

> > and my kids

> >

> > > they did'nt sign up for this! I used to be

> this

> > vibrant hard working

> >

> > > woman now I am a 38 year old woman who can't

> even

> > ride in the car for

> >

> > > a long trip never mind working or excersing that

> is

> > not even remotely

> >

> > > possible I try not to feel sorry for myself but

> > sometimes you just get

> >

> > > in to one of them moods. I need to talk to people

> who

> > are going

> >

> > > through the same things so that I feel I am not

> losing

> > myself!

> >

> > > Sometimes I feel like my husband should take the

> kids

> > and leave so

> >

> > > that they have some kind of a normal life but

> then my

> > world would

> >

> > > really be empty and I would feel even more alone

> than

> > I already do.

> >

> > > Any advice would be greatly appreciated thank you

> for

> > listening.

> >

> > >

> >

> > >

> >

> > >

> >

> > > ------------ --------- --------- ------

& g

[Guest guest]

,

I used to do everything with my kids too. My husband does a lot of stuff that I

can't, but then I feel really left out. But you know kids love their moms for

who they are, not what they can do. And it's not like I CHOSE to be like this.

I think they'll understand more as they get older.

Thanks for sharing with me.

Alanna

Sent from my Verizon Wireless BlackBerry

Looking for friends in a world of pain

>

> Hi my name is Kim, I have been living with chronic neck pain for two

> and a half years, My last surgery was 7 months ago, The pain is

> unbearable I feel like all I do is try to get through the day! I am

> taking the pain medicine the doctors told me to take but it scares me

> because I have been on it for 2 1/2 years, I have tried massage,

> chiropractor & acupuncture nothing seems to be working they don't

> understand why there is so much pain still. I am scared my whole life

> has changed so dramatically! I feel bad for my husband and my kids

> they did'nt sign up for this! I used to be this vibrant hard working

> woman now I am a 38 year old woman who can't even ride in the car for

> a long trip never mind working or excersing that is not even remotely

> possible I try not to feel sorry for myself but sometimes you just get

> in to one of them moods. I need to talk to people who are going

> through the same things so that I feel I am not losing myself!

> Sometimes I feel like my husband should take the kids and leave so

> that they have some kind of a normal life but then my world would

> really be empty and I would feel even more alone than I already do.

> Any advice would be greatly appreciated thank you for listening.

>

>

>

> ------------ --------- --------- ------

>

> To read these messages on the Hugs web site go to:

> http://groups. yahoo.com/ group/Hugs- N-Pain

> you can contact me privately at starlyinaol (DOT) com

> Rose

> Owner/ Moderator Hugs N Pain

> God Bless our Troops

> Please Pray for them

[Guest guest]

hi les how are you doing less pain i hope tell me about your self nice to mete

you donnieKY

From: snowlesley@rocketma il.com <snowlesley@rocketma il.com>

Subject: Re: Looking for friends in a world of pain

To: Hugs-N-Pain@ yahoogroups. com

Date: Friday, March 13, 2009, 7:36 AM

Unfortunately even Dr's are misinformed about chronic pain. Your Primary Care

Dr. has only completed the minimum education requirement to obtain their medical

license. Even neurologists and surgeons have not completed the coursework in the

causes and treatment of pain. I just spoke to a respected neurologist/ surgeon

that had me drive 120 miles to his office where he told me he did not want to do

any surgery because of my age (29) and because he felt there was not a specific

cause of my pain even though 5 seperate Dr's have diagnosed the same problem.

Either way after not listening to a word I said he informed me that the way to

treat chronic spinal pain/numbness, tingling etc. was to keep my weight down,

exercise, and to remove myself from opiates and take Advil instead. I can tell

you the exercise is out of the picture since I can barely walk and have been

disabled for over a year. I still have a hard time believing that I am disabled

even when I got

SSI disability the first time I applied for it no questions asked. Either way I

am learning that even though a Dr. might seem as if they know what they are

talking about they might not. I have also learned that Dr's who think they know

everything usually know the least and care the least and are too full of

themselves to learn the truth. Thank you for reading my ramblings I stink as a

writer

Lesley

> >

> > > Hi, my name is Les ,

> > > I just joined your group, and I'm looking for members who are being

> > treated

> > > the way I'm being treated by Dr's ,(to find out if there's anything we

> > can

> > > do about this ) and it looks like I've entered such a discussion right

> > here

> > > ? Recently, Az. passed a law where everyone who is prescribed narcotics

> > are

> > > in a data base that all Dr's and pharmacists can look at . Now the Dr's

> > are

> > > using this to black-list and shun everyone on drugs that are chronic

> > pain

> > > sufferers ,and are treating us like we're drug addicts ! I left my PCP

> > > recently because she lashed out at me and told me I don't need my

> > opiates ,

> >%2

[Guest guest]

hi les how are you doing less pain i hope tell me about your self nice to mete

you donnieKY

From: snowlesley@rocketma il.com <snowlesley@rocketma il.com>

Subject: Re: Looking for friends in a world of pain

To: Hugs-N-Pain@ yahoogroups. com

Date: Friday, March 13, 2009, 7:36 AM

Unfortunately even Dr's are misinformed about chronic pain. Your Primary Care

Dr. has only completed the minimum education requirement to obtain their medical

license. Even neurologists and surgeons have not completed the coursework in the

causes and treatment of pain. I just spoke to a respected neurologist/ surgeon

that had me drive 120 miles to his office where he told me he did not want to do

any surgery because of my age (29) and because he felt there was not a specific

cause of my pain even though 5 seperate Dr's have diagnosed the same problem.

Either way after not listening to a word I said he informed me that the way to

treat chronic spinal pain/numbness, tingling etc. was to keep my weight down,

exercise, and to remove myself from opiates and take Advil instead. I can tell

you the exercise is out of the picture since I can barely walk and have been

disabled for over a year. I still have a hard time believing that I am disabled

even when I got

SSI disability the first time I applied for it no questions asked. Either way I

am learning that even though a Dr. might seem as if they know what they are

talking about they might not. I have also learned that Dr's who think they know

everything usually know the least and care the least and are too full of

themselves to learn the truth. Thank you for reading my ramblings I stink as a

writer

Lesley

> > >

> > > From: Elaine Dowell <emdowell@.. . <emdowell%40live. com>>

> > > Subject: RE: [Hugs-N-Pain

[Guest guest]

hi les how are you doing less pain i hope tell me about your self nice to mete

you donnieKY

Subject: Re: Re: Looking for friends in a world of pain

To: Hugs-N-Pain

Date: Sunday, March 15, 2009, 5:13 AM

Hi,Donnie,

Great to meet you ! I see you've been shunned and labeled too, and know all too

well how I'm feeling ! Judged and convicted without a jury .....I'm so glad that

Dr apologized to you ! I didn't get an apology, and in fact, I was treated even

more unkindly for trying to speak up for myself .

Thanks so much for the very kind welcome !

Les

thecardiacclub@ yahoogroups. com

chronicpainsupportc lub4women@ yahoogroups. com

Re: Re: Looking for friends in a world of pain

hi les my name is donnieKY i am a painer most docs thank painers are addics

befor thay look at you thay have got you labeled as a addic and brush you off i

had a doc i wet to see set a cross the room from me i looked at hem and sead you

have done desided all ready there is nothing rong with me or you would be over

here looking at my knee instead of setting overthere he came over looked at my

knee and%2