What to do now.

[Guest guest]

Starting last January my son (5 this past march) starting having what looking

like abdominal cramping and was treated for constipation for 5 weeks then put in

the hospital for tests and we were sent home saying they wouldn't figure it out

to find a way to deal with it. When it got to the point of 45 cramps/spasms, 16

peed pants and 16 trips to the bathroom one day they sent us to a urologist who

dianosed him with TCS from the original tests that were done when we were sent

home and told to deal with it. Since then he's had 3 surgeries last year

(April, September and October) and is still experiencing the symptoms that

started last Januray. His symptoms are cramping where he drops to the floor, he

grunts, face gets red and usually pees his pants, sometimes on the bad ones he

poops his pants. He has no idea when he has to go to the bathroom. The

cramps/spasms are getting worse, sometimes he can't breathe and the doctors have

pretty much given up so now we don't know what to do. He has at least 6-12

spasms a day and up to 40. He is on ditropan (25 mg/day, and gabapentin (200 mg

3/day). We feel like we are hitting a brick wall and don't know what to do now.

He starts kindergarten next week and we have no idea how he is going to handle

it. He occasionally poops his pants when having a spasm as well. The doctors

have said they don't know what it is and it seems like they have given up trying

to figure it out. I don't know how much more he can take, he told us he wants

to cut the cramps out with a knife. Does anyone have any suggestions or going

through similar symptoms.

Is there a way to post a video of a spasms to see if anyone has seen anything

like this?

Thanks for reading, sorry it's so long.