Re: Greetings

[Guest guest]

Hi,,

My name is Les , I also have degenerative arthritis in all those areas , and

bulging disks , spondylosis , spurs, everything going on ...I also have

peripheral neuropathy and carpal tunnel syndrome . I'm sorry the people you

live with don't understand your pain . My family understands , but I don't have

a PCP anymore, the last ones I had black listed me because I have to take

opiates for my pain , so they treat me like I'm the scourge of the earth,and

have no sympathy at all .

I'm sorry for your pain and understand .

Les

thecardiacclub

chronicpainsupportclub4women

Greetings

Hi, my name is , 38yr old, female, Oregonian and I have been suffering

from chronic pain for..oh...15 years or so. I am diagnosed with PTSD (from

being in military) and I have degenerative arthritis in my spine, knees, neck,

shoulders and ankles. I have a few other " gems " of health problems, but that is

the one that limits me most. I live with people who have no idea what it's like

to live with pain everyday of your life...and to know you will NEVER have an end

to it. In that light, I'm looking for a support group, people who understand

what it's like, how you can get so depressed, and at the same time..so angry.

THanks for allowing me to join this group

[Guest guest]

Hello ,

 

I am also an Oregonian with chronic pain (Fibro), the Oregon winters don't help

but it is a great place to live, I live in the Willamette Valley. 

 

I hope this group helps you, it's nice to have friends that understand what you

are going through because I have found most people don't.

 

Take care

 

Subject: Greetings

To: Hugs-N-Pain

Date: Sunday, March 22, 2009, 11:23 AM

Hi, my name is , 38yr old, female, Oregonian and I have been suffering from

chronic pain for..oh...15 years or so. I am diagnosed with PTSD (from being in

military) and I have degenerative arthritis in my spine, knees, neck, shoulders

and ankles. I have a few other " gems " of health problems, but that is the one

that limits me most. I live with people who have no idea what it's like to live

with pain everyday of your life...and to know you will NEVER have an end to it.

In that light, I'm looking for a support group, people who understand what it's

like, how you can get so depressed, and at the same time..so angry.

THanks for allowing me to join this group

[Guest guest]

Gentle hugs back, Marla! We shall have virtual lunch together, in that case.

Hmmm, how about Rome? Nah, too much traffic. Naples has better food, anyway!

Love to all,

Melody

>

> Melody,

>

> Wish I live near you - you sound like a wonderful understanding person.

>

> Gentle hugs,

> Marla

[Guest guest]

: I'm not familiar with tramadol. Did it help any better or worse than

what you've previously tried?

Love to all,

Melody

>

I live off of vicodin, valium, and tramadol, plus anti depressants. Not a

pleasant way to go through life, but I'd rather not have the pain. The pain

meds don't help a lot, they dull the pain a bit, but the VA will not give me

anything stronger...so I do the best I can, as I'm sure all of us do. I'd

say...try new docs?

>

[Guest guest]

Brand name of Tramadol is Ultram. The VA (whom I deal with) has two pain

meds...Vicodin and Tramadol..period...and i've been on both for so long..neither

one of them really " work " ...they just take the edge of.

Perhaps some of you can help me a bit...I'm really depressed lately..I'll

explain:

I've had back problems for years, I'm " used " to that pain. It's not

pleasant..but I've learnt to handle it, what to do about it, etc. About a month

ago I had a " new " pain spring up..full blown felt like I was being stabbed in my

lower right abdomen area pain. I went to the ER (it was that bad) and had ct,

Contrast ct, blood work, pelvic, etc done. All came back fine, nothing there,

if there is...time will bring it to the surface. I did the follow up thing with

my doc...and was told same thing, with one new thing..lesions on my liver (that

would not cause this amount of pain), so she sent me to ultrasound. I haven't

gotten the results back on that yet (ty VA). I have a GI appt on the 8th of

April to see about getting the other test (cam up the hiney ugh), as I have

Collagenous Colitis.

About a year ago I had a surgery to remove an egg sized lump from the same area

as this pain...but...nothing shows (as far as it growing back). Doctor said

maybe it was scar tissue..but why would it happen now (no problem up until a

month ago). The pain is spreading..it is now going down my leg to my knee, to

the point my leg hurts so bad I can't walk sometimes. Today my left side

started to hurt a bit (not bad yet, just a twinge here and there). I " m

terrified...angry...worried..you name it. No one can help me. I'm crying night

and day, can barely sleep for the pain, I'm becoming a full blown (pardon the

language) bitch to everyone. Does anyone have any ideas, thoughts, perhaps a

way I can help myself get over this, get my mind going in other directions?

THanks in advance

[Guest guest]

I'm sorry to hear about this new and awful pain, .I hope it isn't serious

, whatever is going on .

Les

thecardiacclub

chronicpainsupportclub4women

Re: Re: Greetings

Brand name of Tramadol is Ultram. The VA (whom I deal with) has two pain

meds...Vicodin and Tramadol..period...and i've been on both for so long..neither

one of them really " work " ...they just take the edge of.

Perhaps some of you can help me a bit...I'm really depressed lately..I'll

explain:

I've had back problems for years, I'm " used " to that pain. It's not

pleasant..but I've learnt to handle it, what to do about it, etc. About a month

ago I had a " new " pain spring up..full blown felt like I was being stabbed in my

lower right abdomen area pain. I went to the ER (it was that bad) and had ct,

Contrast ct, blood work, pelvic, etc done. All came back fine, nothing there,

if there is...time will bring it to the surface. I did the follow up thing with

my doc...and was told same thing, with one new thing..lesions on my liver (that

would not cause this amount of pain), so she sent me to ultrasound. I haven't

gotten the results back on that yet (ty VA). I have a GI appt on the 8th of

April to see about getting the other test (cam up the hiney ugh), as I have

Collagenous Colitis.

About a year ago I had a surgery to remove an egg sized lump from the same

area as this pain...but...nothing shows (as far as it growing back). Doctor

said maybe it was scar tissue..but why would it happen now (no problem up until

a month ago). The pain is spreading..it is now going down my leg to my knee, to

the point my leg hurts so bad I can't walk sometimes. Today my left side

started to hurt a bit (not bad yet, just a twinge here and there). I " m

terrified...angry...worried..you name it. No one can help me. I'm crying night

and day, can barely sleep for the pain, I'm becoming a full blown (pardon the

language) bitch to everyone. Does anyone have any ideas, thoughts, perhaps a

way I can help myself get over this, get my mind going in other directions?

THanks in advance

[Guest guest]

Melody, I am not close enough to you to have lunch but,

I sure wish I were and and I would LOVE to. I like Golden Coral

& there isn't 1 in the state that I know of. I also would LOVE

to meet and talk w/you more. I like the outlook you have on life

and I'm SO sorry you lost your husband. Mine is my rock and

if he goes before me I don't know what I'll do or how I'll manage.

That's why I don't think about it!! I hope you have a good night

and rest well. I'm going to try it now. I hate going to bed as I'm

up and down all night and will feel worse in the morning than

I do now. Anyway, good night and God bless.

Deta

> Oh, , you have hit on something that I bet many of us have

> experienced - living with people that just don't understand what it's like,

> and look at you sometimes with that " it CAN'T be hurting that much! " look on

> their face. Sometimes living with someone who also has a chronic pain

> situation can be just as difficult, since there is always that tendency to

> " know " that the other's pain couldn't be as bad as yours. It shouldn't be a

> " contest " , but sometimes it comes to that.

>

> That's why I am scouring the 'net for a doctor in my area who is a chronic

> pain sufferer, too. Only someone in our shoes, I believe, can really

> understand. That, and an inventor who can come up with a meter that can

> measure pain on a visible screen so we don't have to keep doing this

> one-to-ten thing over and over again, only to get skepticism at every turn.

>

> My last visit to the ER last March was the only sunshine in what was a very

> bad year - the person who saw me first off had had an encounter with an

> irakanji (a tiny jellyfish that, if you survive, can send pain like few have

> ever felt through your whole body for days and days) on vacation in

> Australia. When I told him that on the 1-10 scale I was at a 12, he didn't

> bat an eyelash. Told me about his experience with a " I do understand " kind

> of tone about him. The doctor who came in afterward gave me the

> " pelvic-pain+female+50's = exaggeration " look. This is the same one that had

> earlier looked at the films on my spine and told me I had a tumor in my

> spine (I had a vertebroplasty the previous year, where they support a

> collapsing vertebra with " medical cement. " ) I wish I'd been a fly on the

> wall when the radiologist explained the " tumor " to the ER doctor.

>

> Go ahead and be as angry as you want, as angry as you need to be. I thought

> my anger had peaked when my husband, my lifemate, my friend, died 3 years

> ago. He was the only human being I ever met who knew intuitively how I felt,

> and never questioned my sincerity when I told him how it was. Not only was

> he much more worthy of life than me, he was one of those intellects that

> people shake their heads at in wonder at the photographic memory he had. I

> keep fighting the urge to rage against the pain, both physical and

> emotional, both of that loss and the physical pain, and try to keep it in

> context by reminding myself that there are others who are worse off than me.

> You know what? It doesn't help much. It still hurts a lot, even if I know

> that you hurt more. All we can do is be there for each other, and offer what

> support we can.

>

> If there is anyone on this list who lives in or near Inverness, Florida

> (Citrus County) and would like to have lunch and talk, let me know. I'm a

> female veteran, too (Navy retired.) I'd be happy to meet you. Golden Corral,

> maybe? ;-)

>

> Here's to a cure for us all.

>

> Melody

>

> ________________________________

> From: Karnosh <djjennyk@... <djjennyk%40embarqmail.com>>

> Subject: Greetings

>

> Hi, my name is , 38yr old, female, Oregonian and I have been suffering

> from chronic pain for..oh...15 years or so. I am diagnosed with PTSD (from

> being in military) and I have degenerative arthritis in my spine, knees,

> neck, shoulders and ankles. I have a few other " gems " of health problems,

> but that is the one that limits me most. I live with people who have no idea

> what it's like to live with pain everyday of your life...and to know you

> will NEVER have an end to it. In that light, I'm looking for a support

> group, people who understand what it's like, how you can get so depressed,

> and at the same time..so angry.

>

> .___

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[Guest guest]

>

> Hi, my name is , 38yr old, female, Oregonian and I have been suffering

from chronic pain for..oh...15 years or so. I am diagnosed with PTSD (from

being in military) and I have degenerative arthritis in my spine, knees, neck,

shoulders and ankles. I have a few other " gems " of health problems, but that is

the one that limits me most. I live with people who have no idea what it's like

to live with pain everyday of your life...and to know you will NEVER have an end

to it. In that light, I'm looking for a support group, people who understand

what it's like, how you can get so depressed, and at the same time..so angry.

>

> THanks for allowing me to join this group

>

>

>

[Guest guest]

>

> Brand name of Tramadol is Ultram. The VA (whom I deal with) has two pain

meds...Vicodin and Tramadol..period...and i've been on both for so long..neither

one of them really " work " ...they just take the edge of.

>

> Perhaps some of you can help me a bit...I'm really depressed lately..I'll

explain:

>

> I've had back problems for years, I'm " used " to that pain. It's not

pleasant..but I've learnt to handle it, what to do about it, etc. About a month

ago I had a " new " pain spring up..full blown felt like I was being stabbed in my

lower right abdomen area pain. I went to the ER (it was that bad) and had ct,

Contrast ct, blood work, pelvic, etc done. All came back fine, nothing there,

if there is...time will bring it to the surface. I did the follow up thing with

my doc...and was told same thing, with one new thing..lesions on my liver (that

would not cause this amount of pain), so she sent me to ultrasound. I haven't

gotten the results back on that yet (ty VA). I have a GI appt on the 8th of

April to see about getting the other test (cam up the hiney ugh), as I have

Collagenous Colitis.

> About a year ago I had a surgery to remove an egg sized lump from the same

area as this pain...but...nothing shows (as far as it growing back). Doctor

said maybe it was scar tissue..but why would it happen now (no problem up until

a month ago). The pain is spreading..it is now going down my leg to my knee, to

the point my leg hurts so bad I can't walk sometimes. Today my left side

started to hurt a bit (not bad yet, just a twinge here and there). I " m

terrified...angry...worried..you name it. No one can help me. I'm crying night

and day, can barely sleep for the pain, I'm becoming a full blown (pardon the

language) bitch to everyone. Does anyone have any ideas, thoughts, perhaps a

way I can help myself get over this, get my mind going in other directions?

THanks in advance

>

>

>