Re: Was it a convulsion?

[Guest guest]

Cyn, have you heard of Zyprexa? It's a drug my doc gives me samples of since it

has no generic and is expensive, even with my insurance. It has helped me quite

a bit on my depression and patience. As far as the severe spasms, sounds like a

seizure. But you say you were coherent the whole time? Wow, I don't know.

Maybe a severe side effect of a med you're taking?

Kris

Was it a convulsion?

I haven't been active on any of the lists lately. I went through a period

of severe depression and psychosis recently, (I'm BiPolar with Severe

Depressive disorder as well as paranoia and psychosis), and just haven't

had the strength or will to get online.

A few nights ago I fell down in the hallway, and my left side just started

twitching...I couldn't stand up for a while, as I had no control over my

body for about 5 minutes. This really scared me. Has anyone else

experienced this? Many times (especially when in bed or curled up on the

couch) I'll notice mile twitching in my limbs. Most of the time it's just

an arm or leg, and it's not severe, but it's enough that it's annoying. Is

this a part of fibro? I also have dystonia, but I don't think it's from that.

TIA,

cyn

[Guest guest]

Just responding to the section on the " twitches " or " spasms " . I have

fibromyalgia. I also have what's called psychogenic seizures... these are

seizures which are exactly like what you are describing, and yes I'm awake and

alert the entire time they are occuring. Psychogenic seizures is a stress

related condition and the majority of people who have it also have fibromyalgia,

although no formal link has yet been found. Unfortunately, there is no drug

they can give you to get rid of the seizures. Most of my treatment for them has

consisted of doing breathing lessons. Try and be aware of what you were doing

right before they happen, sometimes there will be a warning such as a change of

sight, smell, a vein throbbing. If you notice any of those just sit down and

try and relax as much as possible (yes, I know it's hard when the seizure is

freaking you out :-) ) While the seizure is going on, I do breathing exercises

(almost like lamaze breathing) and it seems to calm down my body

enough so the seizure will subside. I can't be positive you have the same

thing I do, but it might be worth checking with your doctor. Jenni

e Sheehan wrote:Cyn, have you heard of Zyprexa?

It's a drug my doc gives me samples of since it has no generic and is expensive,

even with my insurance. It has helped me quite a bit on my depression and

patience. As far as the severe spasms, sounds like a seizure. But you say you

were coherent the whole time? Wow, I don't know. Maybe a severe side effect

of a med you're taking?

Kris

Was it a convulsion?

I haven't been active on any of the lists lately. I went through a period

of severe depression and psychosis recently, (I'm BiPolar with Severe

Depressive disorder as well as paranoia and psychosis), and just haven't

had the strength or will to get online.

A few nights ago I fell down in the hallway, and my left side just started

twitching...I couldn't stand up for a while, as I had no control over my

body for about 5 minutes. This really scared me. Has anyone else

experienced this? Many times (especially when in bed or curled up on the

couch) I'll notice mile twitching in my limbs. Most of the time it's just

an arm or leg, and it's not severe, but it's enough that it's annoying. Is

this a part of fibro? I also have dystonia, but I don't think it's from that.

TIA,

cyn

1. While it is wonderful to share our experiences with everyone on the list as

to what treatments do and don't work for us, pls always check with your dr.

Some treatments are dangerous when given along with other meds as well as to

certain health conditions or just dangerous in general.

2. If you are in a difficult situation (doesn't matter what it is) pls don't be

afraid to ask for help. It is the first step to trying to make that situation

better.

Have a nice day everyone.

[Guest guest]

I guess I just need to get used to it, lol! It's not nearly as annoying as

waking up with my back as stiff as a board and not being able to move until

I get some painkillers and clonapin in me. I can actually feel the clonapin

go to work, relaxing the muscles, and the pain-killers take away the

screaming pain.

I do have to admit, though, the worst pain I've ever experienced (outside

of childbirth) was when I got food-poisoning from eating a bad batch of

cole slaw from KFC. To this day, I can't eat KFC, which is a shame because

I love their chicken. But that food poisoning had me screaming for hours,

and when I went to the ER I screamed and begged for someone to kill me. I

guess I was disturbing the other patients, because they finally rushed me

to the back and hooked me up to an IV with a healthy dose of Dilaudid in

it. When they decided it was time to send me home, the nurse felt I looked

bad enough to have another dose of Dilaudid. They'd already taken out the

IV, so the nurseshe just found a vein and injected it right into the vein.

They wheeled me out to the car in a wheel chair, as I was too weak (and

probably wasted as well!) to walk. The effects lasted several days, and

when I saw my pdoc the next day he wrote me a prescription for Vicodin. He

said he normally didn't write RX for narcotics, but he could see I really

needed something to help me get through the next couple of days.

I think I lost 10 lbs in that week....the only thing I ate was yogurt &

ginger ale. I just laid on the couch and watched Buffy the Vampire Slayer, lol!

((((hugs))))

cyn

At 10:51 PM 7/10/2004 -0400, poetrybycarmen@... wrote:

>yep,me too,hon....i twitch all the time...i can sit and watch the muscles

>moving around,it is scary...i figure it is another Fibro thingy...(((Hugs)))

>carmen

cyn

clmerritt@...

Time.....time ....time is what turns kittens into cats