Re: Looking for friends in a world of pain

[Guest guest]

Hi Alanna,

 

Oh, I hear you about the meds; I know I wouldn't be able to go a week without

them too! I am a single mom to 3 boys, ages 4, 13 & 16 and they need me; it's

not a choice to stay in bed or the recliner and that's all I could do before I

had some pain meds. I remember crying in pain when I had to crawl to the

bathroom! People can just not live like that! I pray througj research and

sensitive Dr's that a day comes when we all can live a life with little/no pain

and can do the things we want to again.

Hang in there!

 

 

Subject: Re: Looking for friends in a world of pain

To: Hugs-N-Pain

Date: Monday, March 16, 2009, 10:47 AM

Les,

Wow! I am so sorry you had to go through that. It sounds horrible. If I were you

I would contact your senator or representative to put some kind of controls on

that database. I live in Wisconsin, so we don't have anything like that. The

concept sounds OK, but I could see how checking out different doctors to try to

get help could really backfire.

I doubt if I'd last a week without my pain meds. Yet people wonder why we are so

afraid of being without them, when our whole lives revolve around having them. I

have 2 little boys to take care of - I can't just check out.

Good talking to you.

Alanna

Sent from my Verizon Wireless BlackBerry

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[Guest guest]

You are so strong being able to take care of children with chronic pain.  I

used to watch a friend's children a year ago and even though I was only 28 at

the time I could barely manage.  The hardest part was lifting the baby all of

the time, because of my pain and my heart condition I had my tubes tied so I

would not have any children.  Fortunately I have a very understanding husband

and 2 basset hounds that are just like my children.

________________________________

To: Hugs-N-Pain

Sent: Monday, March 16, 2009 9:47:09 AM

Subject: Re: Looking for friends in a world of pain

Les,

Wow! I am so sorry you had to go through that. It sounds horrible. If I were you

I would contact your senator or representative to put some kind of controls on

that database. I live in Wisconsin, so we don't have anything like that. The

concept sounds OK, but I could see how checking out different doctors to try to

get help could really backfire..

I doubt if I'd last a week without my pain meds. Yet people wonder why we are so

afraid of being without them, when our whole lives revolve around having them. I

have 2 little boys to take care of - I can't just check out.

Good talking to you.

Alanna

Sent from my Verizon Wireless BlackBerry

Re: Looking for friends in a world of pain

Hi,Alanna ,

Good to meet you ! I'm sorry you had so much trouble trying to find a pain Dr !I

shouldn't be complaining, because I found one right off, and he makes sure I

have enough of the right meds to control the pain . My complaint is that AZ has

a drug data base to control the drug addicts that go from one Dr to the next,

which is a good idea ;the problem is that there are some Dr's who are abusing

the data base by blacklisting those that are chronic pain sufferers,and placing

them in the same category as drug abusers .I talked to my pain Dr and he said

that there is a stigma against even the legitimate people . I've fired 2 Drs now

for persecuting me and telling me to get off my drugs, making me feel shamed and

like I'm the lowest form of humanity . The most recent Dr was even harassing me,

accusing me " You're afraid someone is going to take your drugs away, aren't you

!!! And told me to get off them-I told her I would if she had something to take

my pain away

, and that the opiates were my last resort . She told me " to keep looking

... " She also proceeded to state that the pain Dr's just want people hooked on

drugs !! The cold and compassionless way people like myself are being treated is

a travesty ! I'm still shaken from that encounter, she was raising her voice so

loud at me that my husband heard her out in the waiting room .

Les

thecardiacclub@ yahoogroups. com

chronicpainsupportc lub4women@ yahoogroups. com

Looking for friends in a world of pain

>

> Hi my name is Kim, I have been living with chronic neck pain for two

> and a half years, My last surgery was 7 months ago, The pain is

> unbearable I feel like all I do is try to get through the day! I am

> taking the pain medicine the doctors told me to take but it scares me

> because I have been on it for 2 1/2 years, I have tried massage,

> chiropractor & acupuncture nothing seems to be working they don't

> understand why there is so much pain still. I am scared my whole life

> has changed so dramatically! I feel bad for my husband and my kids

> they did'nt sign up for this! I used to be this vibrant hard working

> woman now I am a 38 year old woman who can't even ride in the car for

> a long trip never mind working or excersing that is not even remotely

> possible I try not to feel sorry for myself but sometimes you just get

> in to one of them moods. I need to talk to people who are going

> through the same things so that I feel I am not losing myself!

> Sometimes I feel like my husband should take the kids and leave so

> that they have some kind of a normal life but then my world would

> really be empty and I would feel even more alone than I already do.

> Any advice would be greatly appreciated thank you for listening.

>

>

>

> ------------ --------- --------- ------

>

> To read these messages on the Hugs web site go to:

> http://groups. yahoo.com/ group/Hugs- N-Pain

> you can contact me privately at starlyinaol (DOT) com

> Rose

> Owner/ Moderator Hugs N Pain

> God Bless our Troops

> Please Pray for them

[Guest guest]

Les,

It is hard sometimes having the kids, but they are the real reason I keep going.

I sometimes feel guilty that I can't do so much for them, but they have really

stepped up to the plate. They are far more independent and self sufficent than

most kids their age. I hope someday they will look back and realize how strong

I have to be just to get through the day. I figure some mom is better than no

mom.

Part of my depression comes from feeling so overwelmed by all the things I can't

get done. I dreamt I was being chased by man eating lions for several nights -

I think it represents the stuff that is " eating me up " ! So I've been trying to

accomplish just a few small things each day so I don't feel so blue. I have to

be careful not to overdo it and make my pain worse. It's such a balancing act.

Take care and I hope your pain is mild today.

Alanna

Sent from my Verizon Wireless BlackBerry

Re: Looking for friends in a world of pain

Hi,Alanna ,

I would love to do that , though I don't think I'd get too far, I think they

were instrumental is helping get this through . I can't imagine having small

kids to care from with chronic pain, I'm so sorry .

I hope tomorrow is a good day for you ,

Les

Looking for friends in a world of pain

>

> Hi my name is Kim, I have been living with chronic neck pain for two

> and a half years, My last surgery was 7 months ago, The pain is

> unbearable I feel like all I do is try to get through the day! I am

> taking the pain medicine the doctors told me to take but it scares me

> because I have been on it for 2 1/2 years, I have tried massage,

> chiropractor & acupuncture nothing seems to be working they don't

> understand why there is so much pain still. I am scared my whole life

> has changed so dramatically! I feel bad for my husband and my kids

> they did'nt sign up for this! I used to be this vibrant hard working

> woman now I am a 38 year old woman who can't even ride in the car for

> a long trip never mind working or excersing that is not even remotely

> possible I try not to feel sorry for myself but sometimes you just get

> in to one of them moods. I need to talk to people who are going

> through the same things so that I feel I am not losing myself!

> Sometimes I feel like my husband should take the kids and leave so

> that they have some kind of a normal life but then my world would

> really be empty and I would feel even more alone than I already do.

> Any advice would be greatly appreciated thank you for listening.

>

>

>

> ------------------------------------

>

> To read these messages on the Hugs web site go to:

> http://groups.yahoo.com/group/Hugs-N-Pain

> you can contact me privately at starlyin@...

> Rose

> Owner/ Moderator Hugs N Pain

> God Bless our Troops

> Please Pray for them

[Guest guest]

,

Does your pain just keep getting worse and worse? I worry what's going to

happen when I can't do anything anymore. It' so easy for doctors to say just go

to bed when it gets too bad. Who's going to help my boys with the homework or

make supper. My husband tries to help, but he gets easily overwelmed. Do you

have other family to help you? I don't know how you do it, especially with such

little ones. If I get SSDI, I might hire a friend of mine to help me with some

of the housework. I asked my husband if we could get a maid & he blew his

stack. If I had my own $ coming in, it would be my decision. Now, it takes me

3 days to clean a bathroom! Anyway, I hope you have pain free day and enjoy

your kids and spring.

Alanna

Sent from my Verizon Wireless BlackBerry

Re: Looking for friends in a world of pain

To: Hugs-N-Pain

Date: Monday, March 16, 2009, 10:47 AM

Les,

Wow! I am so sorry you had to go through that. It sounds horrible. If I were you

I would contact your senator or representative to put some kind of controls on

that database. I live in Wisconsin, so we don't have anything like that. The

concept sounds OK, but I could see how checking out different doctors to try to

get help could really backfire.

I doubt if I'd last a week without my pain meds. Yet people wonder why we are so

afraid of being without them, when our whole lives revolve around having them. I

have 2 little boys to take care of - I can't just check out.

Good talking to you.

Alanna

Sent from my Verizon Wireless BlackBerry

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[Guest guest]

I hear you about kids stepping up to the plate. My twins started working right

out of the gate when I was going thru the disability thing. They kept the roof

over our heads (be it ever so humble at the time). The summer before their last

year the job corps here trained them all summer and made them work in real jobs.

What a pay off that was.

I think this opportunity...and it is an opportunity... for kids to learn how to

pull this off without complaining. Mine did not complain one word...just put

the shoulder to the wheel. They were prepared thru the job corp training and

knew people in families pitch in whenever possible.

When I won the disability I took a chunk of that money and got them something

they really wanted. Then we did a vacation in Vegas for the star trek thing and

helicopter ride and so on as a reward for their pitching in like that.

Out of the whole thing they learned a lot. This is ablesson they won't learn in

school and it really shows off the character.

You are right about doing something each day that accomplishes something. I got

involved with Wired Safety do volunteer work to help internet victims. It keeps

me involved in something in real life and helps someone. Then doing the T

Shirts...keeps me going and gives me a small amount of independence.

I always do something around the house each day no matter what. Pat yourself on

the back over and over. Look in the mirror and say... " Well done! " and mean it.

Lotacats

Express Chronic Pain Awareness

http://www.cafepress.com/lotacatspix/5815010

Lotacatsfunpix.com

http://www.lotacatsfunpix.com/

Deviantart

http://lotacats05.deviantart.com/

>

>

>

> Subject: RE: Looking for friends in a

> world of pain

> To: hugs-n-pain

> Date: Thursday, February 26, 2009, 4:08 PM

>

>

>

> Kim,

>

> I relate in a lot of ways to your post. You sound

> like a brave person feeling a little abandoned and

> overwhelmed. But you are not alone; please take some comfort

> in that. People here do understand.

>

> This year marks 20 years of unrelenting headache

> (from damage of brain surgery) and neck pain. I have lived

> on massive dosages of heavy narcotics, and they did help.

> Then my doctor moved and no other doc in this area will

> touch my case. Which led me to the pain clinic. I am hoping

> for the pump, but am in the early stages of trial

> procedures.

>

> There is nothing you can do to make your family

> understand; my finds me an embarrassment and a bother. Maybe

> if you speak with yours frankly and from the heart you will

> have better luck. I will pray for that. Support would be

> nice. Either way, you have to do what makes your quality of

> life the best possible. We all deserve that. Please

> don't let it overwhelm you; answers are out there and

> they are here too. This is a great group.

>

> Keeping you in my thoughts,

>

> elaine

>

>

>

>

>

> > To: Hugs-N-Pain

> > From: kimshomestyle@...

> > Date: Thu, 26 Feb 2009 15:37:13 +0000

> > Subject: Looking for friends in a

> world of pain

> >

> > Hi my name is Kim, I have been living with

> chronic neck pain for two

> > and a half years, My last surgery was 7 months

> ago, The pain is

> > unbearable I feel like all I do is try to get

> through the day! I am

> > taking the pain medicine the doctors told me to

> take but it scares me

> > because I have been on it for 2 1/2 years, I

> have tried massage,

> > chiropractor & acupuncture nothing seems to

> be working they don't

> > understand why there is so much pain still. I am

> scared my whole life

> > has changed so dramatically! I feel bad for my

> husband and my kids

> > they did'nt sign up for this! I used to be

> this vibrant hard working

> > woman now I am a 38 year old woman who can't

> even ride in the car for

> > a long trip never mind working or excersing that

> is not even remotely

> > possible I try not to feel sorry for myself but

> sometimes you just get

> > in to one of them moods. I need to talk to

> people who are going

> > through the same things so that I feel I am not

> losing myself!

> > Sometimes I feel like my husband should take the

> kids and leave so

> > that they have some kind of a normal life but

> then my world would

> > really be empty and I would feel even more alone

> than I already do.

> > Any advice would be greatly appreciated thank

> you for listening.

> >

> >

> >

> > ------------------------------------

> >

> > To read these messages on the Hugs web site go

> to:

> > http://groups.yahoo.com/group/Hugs-N-Pain

> > you can contact me privately at

> starlyin@...

> > Rose

> > Owner/ Moderator Hugs N Pain

> > God Bless our Troops

> > Please Pray for them

[Guest guest]

Hi,Allana ,

You're right ,your kids will look back and realize how strong you were ,and how

it helped them to be strong . My Mom was very ill all through my growing up

years ,and I remember what it took for her to do what she was able to manage to

do ,she made me realize my own strengths .

Les

thecardiacclub

chronicpainsupportclub4women

Looking for friends in a world of pain

>

> Hi my name is Kim, I have been living with chronic neck pain for two

> and a half years, My last surgery was 7 months ago, The pain is

> unbearable I feel like all I do is try to get through the day! I am

> taking the pain medicine the doctors told me to take but it scares me

> because I have been on it for 2 1/2 years, I have tried massage,

> chiropractor & acupuncture nothing seems to be working they don't

> understand why there is so much pain still. I am scared my whole life

> has changed so dramatically! I feel bad for my husband and my kids

> they did'nt sign up for this! I used to be this vibrant hard working

> woman now I am a 38 year old woman who can't even ride in the car for

> a long trip never mind working or excersing that is not even remotely

> possible I try not to feel sorry for myself but sometimes you just get

> in to one of them moods. I need to talk to people who are going

> through the same things so that I feel I am not losing myself!

> Sometimes I feel like my husband should take the kids and leave so

> that they have some kind of a normal life but then my world would

> really be empty and I would feel even more alone than I already do.

> Any advice would be greatly appreciated thank you for listening.

>

>

>

> ------------------------------------

>

> To read these messages on the Hugs web site go to:

> http://groups.yahoo.com/group/Hugs-N-Pain

> you can contact me privately at starlyin@...

> Rose

> Owner/ Moderator Hugs N Pain

> God Bless our Troops

> Please Pray for them

[Guest guest]

Hi Alanna,

 

I know what you mean about the kids & balancing act, it's so hard! I too feel

guilty a lot; mostly for what I can not do with my youngest son, Evan, who is 4.

My older boys (13 & 16) had the " normal " me and I took them everywhere, they

were in 2-3 sports a year, we did all the fun stuff; circus, zoo, library story

time, mom & child classes, ect, ect. I feel like I am cheating Evan because it's

lucky if we get to WalMart once a week. I just can't go very much becuase of the

pain/symptoms; I can't sit, stand or walk for very long and that leaves a lot of

stuff out. I just keep praying I will get better. Hope you are well!

 

Hugs,

 

 

From: Elaine Dowell <emdowelllive (DOT) com>

Subject: RE: Looking for friends in a world of pain

To: hugs-n-pain@ yahoogroups. com

Date: Thursday, February 26, 2009, 4:08 PM

Kim,

I relate in a lot of ways to your post. You sound like a brave person feeling a

little abandoned and overwhelmed. But you are not alone; please take some

comfort in that. People here do understand.

This year marks 20 years of unrelenting headache (from damage of brain surgery)

and neck pain. I have lived on massive dosages of heavy narcotics, and they did

help. Then my doctor moved and no other doc in this area will touch my case.

Which led me to the pain clinic. I am hoping for the pump, but am in the early

stages of trial procedures.

There is nothing you can do to make your family understand; my finds me an

embarrassment and a bother. Maybe if you speak with yours frankly and from the

heart you will have better luck. I will pray for that. Support would be nice.

Either way, you have to do what makes your quality of life the best possible. We

all deserve that. Please don't let it overwhelm you; answers are out there and

they are here too. This is a great group.

Keeping you in my thoughts,

elaine

> To: Hugs-N-Pain@ yahoogroups. com

> From: kimshomestyle@ yahoo.com

> Date: Thu, 26 Feb 2009 15:37:13 +0000

> Subject: Looking for friends in a world of pain

>

> Hi my name is Kim, I have been living with chronic neck pain for two

> and a half years, My last surgery was 7 months ago, The pain is

> unbearable I feel like all I do is try to get through the day! I am

> taking the pain medicine the doctors told me to take but it scares me

> because I have been on it for 2 1/2 years, I have tried massage,

> chiropractor & acupuncture nothing seems to be working they don't

> understand why there is so much pain still. I am scared my whole life

> has changed so dramatically! I feel bad for my husband and my kids

> they did'nt sign up for this! I used to be this vibrant hard working

> woman now I am a 38 year old woman who can't even ride in the car for

> a long trip never mind working or excersing that is not even remotely

> possible I try not to feel sorry for myself but sometimes you just get

> in to one of them moods. I need to talk to people who are going

> through the same things so that I feel I am not losing myself!

> Sometimes I feel like my husband should take the kids and leave so

> that they have some kind of a normal life but then my world would

> really be empty and I would feel even more alone than I already do.

> Any advice would be greatly appreciated thank you for listening.

>

>

>

> ------------ --------- --------- ------

>

> To read these messages on the Hugs web site go to:

> http://groups. yahoo.com/ group/Hugs- N-Pain

> you can contact me privately at starlyinaol (DOT) com

> Rose

> Owner/ Moderator Hugs N Pain

> God Bless our Troops

> Please Pray for them

[Guest guest]

Hi Alanna,

I think my pain has gotten worse over time. I have a lot more issues then I did

when all this started. At first it was all my back and legs from the herinated

disc. The rest of my body has been falling apart ever since. Seriously, the

fibro is more intense then it was in the beginning, despite medication for it.

 

I do have help and I hire my boys' aunt sometimes to fo things; yesterday she

gave my dogs a bath. She is very helpful and lives with us for 2 years; I wish

she still did.

 

I hope you have a good, low pain day!

 

Hugs,

 

 

Subject: Re: Looking for friends in a world of pain

To: Hugs-N-Pain

Date: Monday, March 16, 2009, 10:47 AM

Les,

Wow! I am so sorry you had to go through that. It sounds horrible. If I were you

I would contact your senator or representative to put some kind of controls on

that database. I live in Wisconsin, so we don't have anything like that. The

concept sounds OK, but I could see how checking out different doctors to try to

get help could really backfire.

I doubt if I'd last a week without my pain meds. Yet people wonder why we are so

afraid of being without them, when our whole lives revolve around having them. I

have 2 little boys to take care of - I can't just check out.

Good talking to you.

Alanna

Sent from my Verizon Wireless BlackBerry

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[Guest guest]

Just wanted to say Hello to and everyone.Its been 8 weeks since my surgery

, so i " m still left handed..LOL ..I don't think i could ever get use to it. How

are you doing? I to am still shuffling around all my boys...Hope you have a good

day...

> To: Hugs-N-Pain

> From: meandallmyboys@...

> Date: Fri, 20 Mar 2009 04:31:10 -0700

> Subject: Re: Looking for friends in a world of pain

>

> Hi Alanna,

>

> I know what you mean about the kids & balancing act, it's so hard! I too feel

guilty a lot; mostly for what I can not do with my youngest son, Evan, who is 4.

My older boys (13 & 16) had the " normal " me and I took them everywhere, they

were in 2-3 sports a year, we did all the fun stuff; circus, zoo, library story

time, mom & child classes, ect, ect. I feel like I am cheating Evan because it's

lucky if we get to WalMart once a week. I just can't go very much becuase of the

pain/symptoms; I can't sit, stand or walk for very long and that leaves a lot of

stuff out. I just keep praying I will get better. Hope you are well!

>

> Hugs,

>

>

>

>

>

>

>

>

>

>

> From: Elaine Dowell <emdowelllive (DOT) com>

> Subject: RE: Looking for friends in a world of pain

> To: hugs-n-pain@ yahoogroups. com

> Date: Thursday, February 26, 2009, 4:08 PM

>

>

>

> Kim,

>

> I relate in a lot of ways to your post. You sound like a brave person feeling

a little abandoned and overwhelmed. But you are not alone; please take some

comfort in that. People here do understand.

>

> This year marks 20 years of unrelenting headache (from damage of brain

surgery) and neck pain. I have lived on massive dosages of heavy narcotics, and

they did help. Then my doctor moved and no other doc in this area will touch my

case. Which led me to the pain clinic. I am hoping for the pump, but am in the

early stages of trial procedures.

>

> There is nothing you can do to make your family understand; my finds me an

embarrassment and a bother. Maybe if you speak with yours frankly and from the

heart you will have better luck. I will pray for that. Support would be nice.

Either way, you have to do what makes your quality of life the best possible. We

all deserve that. Please don't let it overwhelm you; answers are out there and

they are here too. This is a great group.

>

> Keeping you in my thoughts,

>

> elaine

>

>

>

>

>

> > To: Hugs-N-Pain@ yahoogroups. com

> > From: kimshomestyle@ yahoo.com

> > Date: Thu, 26 Feb 2009 15:37:13 +0000

> > Subject: Looking for friends in a world of pain

> >

> > Hi my name is Kim, I have been living with chronic neck pain for two

> > and a half years, My last surgery was 7 months ago, The pain is

> > unbearable I feel like all I do is try to get through the day! I am

> > taking the pain medicine the doctors told me to take but it scares me

> > because I have been on it for 2 1/2 years, I have tried massage,

> > chiropractor & acupuncture nothing seems to be working they don't

> > understand why there is so much pain still. I am scared my whole life

> > has changed so dramatically! I feel bad for my husband and my kids

> > they did'nt sign up for this! I used to be this vibrant hard working

> > woman now I am a 38 year old woman who can't even ride in the car for

> > a long trip never mind working or excersing that is not even remotely

> > possible I try not to feel sorry for myself but sometimes you just get

> > in to one of them moods. I need to talk to people who are going

> > through the same things so that I feel I am not losing myself!

> > Sometimes I feel like my husband should take the kids and leave so

> > that they have some kind of a normal life but then my world would

> > really be empty and I would feel even more alone than I already do.

> > Any advice would be greatly appreciated thank you for listening.

> >

> >

> >

> > ------------ --------- --------- ------

> >

> > To read these messages on the Hugs web site go to:

> > http://groups. yahoo.com/ group/Hugs- N-Pain

> > you can contact me privately at starlyinaol (DOT) com

> > Rose

> > Owner/ Moderator Hugs N Pain

> > God Bless our Troops

> > Please Pray for them

[Guest guest]

hi les how are you doing less pain i hope tell me about your self nice to mete

you donnieKY

From: snowlesley@rocketma il.com <snowlesley@rocketma il.com>

Subject: Re: Looking for friends in a world of pain

To: Hugs-N-Pain@ yahoogroups. com

Date: Friday, March 13, 2009, 7:36 AM

Unfortunately even Dr's are misinformed about chronic pain. Your Primary Care

Dr. has only completed the minimum education requirement to obtain their medical

license. Even neurologists and surgeons have not completed the coursework in the

causes and treatment of pain. I just spoke to a respected neurologist/ surgeon

that had me drive 120 miles to his office where he told me he did not want to do

any surgery because of my age (29) and because he felt there was not a specific

cause of my pain even though 5 seperate Dr's have diagnosed the same problem.

Either way after not listening to a word I said he informed me that the way to

treat chronic spinal pain/numbness, tingling etc. was to keep my weight down,

exercise, and to remove myself from opiates and take Advil instead. I can tell

you the exercise is out of the picture since I can barely walk and have been

disabled for over a year. I still have a hard time believing that I am disabled

even when I got

SSI disability the first time I applied for it no questions asked. Either way I

am learning that even though a Dr. might seem as if they know what they are

talking about they might not. I have also learned that Dr's who think they know

everything usually know the least and care the least and are too full of

themselves to learn the truth. Thank you for reading my ramblings I stink as a

writer

Lesley

> >

> > > Hi, my name is Les ,

> > > I just joined your group, and I'm looking for members who are being

> > treated

> > > the way I'm being treated by Dr's ,(to find out if there's anything we

> > can

> > > do about this ) and it looks like I've entered such a discussion right

> > here

> > > ? Recently, Az. passed a law where everyone who is prescribed narcotics

> > are

> > > in a data base that all Dr's and pharmacists can look at . Now the Dr's

> > are

> > > using this to black-list and shun everyone on drugs that are chronic

> > pain

> > > sufferers ,and are treating us like we're drug addicts ! I left my PCP

> > > recently because she lashed out at me and told me I don't need my

> > opiates ,

> >%2

[Guest guest]

hi les how are you doing less pain i hope tell me about your self nice to mete

you donnieKY

From: snowlesley@rocketma il.com <snowlesley@rocketma il.com>

Subject: Re: Looking for friends in a world of pain

To: Hugs-N-Pain@ yahoogroups. com

Date: Friday, March 13, 2009, 7:36 AM

Unfortunately even Dr's are misinformed about chronic pain. Your Primary Care

Dr. has only completed the minimum education requirement to obtain their medical

license. Even neurologists and surgeons have not completed the coursework in the

causes and treatment of pain. I just spoke to a respected neurologist/ surgeon

that had me drive 120 miles to his office where he told me he did not want to do

any surgery because of my age (29) and because he felt there was not a specific

cause of my pain even though 5 seperate Dr's have diagnosed the same problem.

Either way after not listening to a word I said he informed me that the way to

treat chronic spinal pain/numbness, tingling etc. was to keep my weight down,

exercise, and to remove myself from opiates and take Advil instead. I can tell

you the exercise is out of the picture since I can barely walk and have been

disabled for over a year. I still have a hard time believing that I am disabled

even when I got

SSI disability the first time I applied for it no questions asked. Either way I

am learning that even though a Dr. might seem as if they know what they are

talking about they might not. I have also learned that Dr's who think they know

everything usually know the least and care the least and are too full of

themselves to learn the truth. Thank you for reading my ramblings I stink as a

writer

Lesley

> > >

> > > From: Elaine Dowell <emdowell@.. . <emdowell%40live. com>>

> > > Subject: RE: Looking for friends in a world of pain

> > > To: hugs-n-pain@ yahoogroups. com <hugs-n-pain% 40yahoogroups. com>

> > > Date: Thursday, February 26, 2009, 4:08 PM

> > >

> > > Kim,

> > >

> > > I relate in a lot of ways to your post. You sound like a brave person

> > > feeling a little abandoned and overwhelmed. But you are not alone;

> > please

> > > take some comfort in that. People here do understand.

> > >

> > > This year marks 20 years of unrelenting headache (from damage of brain

> > > surgery) and neck pain. I have lived on massive dosages of heavy

> > narcotics,

> > > and they did help. Then my doctor moved and no other doc in this area

> > will

> > > touch my case. Which led me to the pain clinic. I am hoping for the

> > pump,

> > > but am in the early stages of trial procedures.

> > >

> > > There is nothing you can do to make your family understand; my finds me

> > an

> > > embarrassment and a bother. Maybe if you speak with yours frankly and

> > from

> > > the heart you will have better luck. I will pray for that. Support would

> > be

> > > nice. Either way, you have to do what makes your quality of life the

> > best

> > > possible. We all deserve that. Please don't let it overwhelm you;

> > answers

> > > are out there and they are here too. This is a great group.

> > >

> > > Keeping you in my thoughts,

> > >

> > > elaine

> > >

> > > > To: Hugs-N-Pain@ yahoogroups. com <Hugs-N-Pain% 40yahoogroups. com>

> > > > From: kimshomestyle@ ... <kimshomestyle% 40yahoo.com>

> > > > Date: Thu, 26 Feb 2009 15:37:13 +0000

> > > > Subject: Looking for friends in a world of pain

> > > >

> > > > Hi my name is Kim, I have been living with chronic neck pain for two

> > > > and a half years, My last surgery was 7 months ago, The pain is

> > > > unbearable I feel like all I do is try to get through the day! I am

> > > > taking the pain medicine the doctors told me to take but it scares me

> > > > because I have been on it for 2 1/2 years, I have tried massage,

> > > > chiropractor & acupuncture nothing seems to be working they don't

> > > > understand why there is so much pain still. I am scared my whole life

> > > > has changed so dramatically! I feel bad for my husband and my kids

> > > > they did'nt sign up for this! I used to be this vibrant hard working

> > > > woman now I am a 38 year old woman who can't even ride in the car for

> > > > a long trip never mind working or excersing that is not even remotely

> > > > possible I try not to feel sorry for myself but sometimes you just get

> > > > in to one of them moods. I need to talk to people who are going

> > > > through the same things so that I feel I am not losing myself!

> > > > Sometimes I feel like my husband should take the kids and leave so

> > > > that they have some kind of a normal life but then my world would

> > > > really be empty and I would feel even more alone than I already do.

> > > > Any advice would be greatly appreciated thank you for listening.

> > > >

> > > >

> > > >

> > > > ------------ --------- --------- ------

> > > >

> > > > To read these messages on the Hugs web site go to:

> > > > http://groups. yahoo.com/ group/Hugs- N-Pain

> > > > you can contact me privately at starlyin@... <starlyin%40aol. com>

> > > > Rose

> > > > Owner/ Moderator Hugs N Pain

> > > > God Bless our Troops

> > > > Please Pray for them

[Guest guest]

hi les how are you doing less pain i hope tell me about your self nice to mete

you donnieKY

From: snowlesley@rocketma il.com <snowlesley@rocketma il.com>

Subject: Re: Looking for friends in a world of pain

To: Hugs-N-Pain@ yahoogroups. com

Date: Friday, March 13, 2009, 7:36 AM

Unfortunately even Dr's are misinformed about chronic pain. Your Primary Care

Dr. has only completed the minimum education requirement to obtain their medical

license. Even neurologists and surgeons have not completed the coursework in the

causes and treatment of pain. I just spoke to a respected neurologist/ surgeon

that had me drive 120 miles to his office where he told me he did not want to do

any surgery because of my age (29) and because he felt there was not a specific

cause of my pain even though 5 seperate Dr's have diagnosed the same problem.

Either way after not listening to a word I said he informed me that the way to

treat chronic spinal pain/numbness, tingling etc. was to keep my weight down,

exercise, and to remove myself from opiates and take Advil instead. I can tell

you the exercise is out of the picture since I can barely walk and have been

disabled for over a year. I still have a hard time believing that I am disabled

even when I got

SSI disability the first time I applied for it no questions asked. Either way I

am learning that even though a Dr. might seem as if they know what they are

talking about they might not. I have also learned that Dr's who think they know

everything usually know the least and care the least and are too full of

themselves to learn the truth. Thank you for reading my ramblings I stink as a

writer

Lesley

%2

[Guest guest]

hi les how are you doing less pain i hope tell me about your self nice to mete

you donnieKY

From: snowlesley@rocketma il.com <snowlesley@rocketma il.com>

Subject: Re: Looking for friends in a world of pain

To: Hugs-N-Pain@ yahoogroups. com

Date: Friday, March 13, 2009, 7:36 AM

Unfortunately even Dr's are misinformed about chronic pain. Your Primary Care

Dr. has only completed the minimum education requirement to obtain their medical

license. Even neurologists and surgeons have not completed the coursework in the

causes and treatment of pain. I just spoke to a respected neurologist/ surgeon

that had me drive 120 miles to his office where he told me he did not want to do

any surgery because of my age (29) and because he felt there was not a specific

cause of my pain even though 5 seperate Dr's have diagnosed the same problem.

Either way after not listening to a word I said he informed me that the way to

treat chronic spinal pain/numbness, tingling etc. was to keep my weight down,

exercise, and to remove myself from opiates and take Advil instead. I can tell

you the exercise is out of the picture since I can barely walk and have been

disabled for over a year. I still have a hard time believing that I am disabled

even when I got

SSI disability the first time I applied for it no questions asked. Either way I

am learning that even though a Dr. might seem as if they know what they are

talking about they might not. I have also learned that Dr's who think they know

everything usually know the least and care the least and are too full of

themselves to learn the truth. Thank you for reading my ramblings I stink as a

writer

Lesley

> > >

> > > From: Elaine Dowell <emdowell@.. . <emdowell%40live. com>>

> > > Subject: RE: Looking for friends in a world of pain

> > > To: hugs-n-pain@ yahoogroups. com <hugs-n-pain% 40yahoogroups. com>

> > > Date: Thursday, February 26, 2009, 4:08 PM

> > >

> > > Kim,

> > >

> > > I relate in a lot of ways to your post. You sound like a brave person

> > > feeling a little abandoned and overwhelmed. But you are not alone;

> > please

> > > take some comfort in that. People here do understand.

> > >

> > > This year marks 20 years of unrelenting headache (from damage of brain

> > > surgery) and neck pain. I have lived on massive dosages of heavy

> > narcotics,

> > > and they did help. Then my doctor moved and no other doc in this area

> > will

> > > touch my case. Which led me to the pain clinic. I am hoping for the

> > pump,

> > > but am in the early stages of trial procedures.

> > >

> > > There is nothing you can do to make your family understand; my finds me

> > an

> > > embarrassment and a bother. Maybe if you speak with yours frankly and

> > from

> > > the heart you will have better luck. I will pray for that. Support would

> > be

> > > nice. Either way, you have to do what makes your quality of life the

> > best

> > > possible. We all deserve that. Please don't let it overwhelm you;

> > answers

> > > are out there and they are here too. This is a great group.

> > >

> > > Keeping you in my thoughts,

> > >

> > > elaine

> > >

> > > &

[Guest guest]

hi les how are you doing less pain i hope tell me about your self nice to mete

you donnieKY

From: snowlesley@rocketma il.com <snowlesley@rocketma il.com>

Subject: Re: Looking for friends in a world of pain

To: Hugs-N-Pain@ yahoogroups. com

Date: Friday, March 13, 2009, 7:36 AM

Unfortunately even Dr's are misinformed about chronic pain. Your Primary Care

Dr. has only completed the minimum education requirement to obtain their medical

license. Even neurologists and surgeons have not completed the coursework in the

causes and treatment of pain. I just spoke to a respected neurologist/ surgeon

that had me drive 120 miles to his office where he told me he did not want to do

any surgery because of my age (29) and because he felt there was not a specific

cause of my pain even though 5 seperate Dr's have diagnosed the same problem.

Either way after not listening to a word I said he informed me that the way to

treat chronic spinal pain/numbness, tingling etc. was to keep my weight down,

exercise, and to remove myself from opiates and take Advil instead. I can tell

you the exercise is out of the picture since I can barely walk and have been

disabled for over a year. I still have a hard time believing that I am disabled

even when I got

SSI disability the first time I applied for it no questions asked. Either way I

am learning that even though a Dr. might seem as if they know what they are

talking about they might not. I have also learned that Dr's who think they know

everything usually know the least and care the least and are too full of

themselves to learn the truth. Thank you for reading my ramblings I stink as a

writer

Lesley

> > >

> > > From: Elaine Dowell <emdowell@.. . <emdowell%40live. com>>

> > > Subject: RE: Looking for friends in a world of pain

> > > To: hugs-n-pain@ yahoogroups. com <hugs-n-pain% 40yahoogroups. com>

> > > Date: Thursday, February 26, 2009, 4:08 PM

> > >

> > > Kim,

> > >

> > > I relate in a lot of ways to your post. You sound like a brave person

> > > feeling a little abandoned and overwhelmed. But you are not alone;

> > please

> > > take some comfort in that. People here do understand.

> > >

> > > This year marks 20 years of unrelenting headache (from damage of brain

> > > surgery) and neck pain. I have lived on massive dosages of heavy

> > narcotics,

> > > and they did help. Then my doctor moved and no other doc in this area

> > will

> > > touch my case. Which led me to the pain clinic. I am hoping for the

> > pump,

> > > but am in the early stages of trial procedures.

> > >

> > > There is nothing you can do to make your family understand; my finds me

> > an

> > > embarrassment and a bother. Maybe if you speak with yours frankly and

> > from

> > > the heart you will have better luck. I will pray for that. Support would

> > be

> > > nice. Either way, you have to do what makes your quality of life the

> > best

> > > possible. We all deserve that. Please don't let it overwhelm you;

> > answers

> > > are out there and they are here too. This is a great group.

> > >

> > > Keeping you in my thoughts,

> > >

> > > elaine

> > >

> > > > To: Hugs-N-Pain@ yahoogroups. com <Hugs-N-Pain% 40yahoogroups. com>

> > > > From: kimshomestyle@ ... <kimshomestyle% 40yahoo.com>

> > > > Date: Thu, 26 Feb 2009 15:37:13 +0000

> > > > Subject: Looking for friends in a world of pain

> > > >

> > > > Hi my name is Kim, I have been living with chronic neck pain for two

> > > > and a half years, My last surgery was 7 months ago, The pain is

> > > > unbearable I feel like all I do is try to get through the day! I am

> > > > taking the pain medicine the doctors told me to take but it scares me

> > > > because I have been on it for 2 1/2 years, I have tried massage,

> > > > chiropractor & acupuncture nothing seems to be working they don't

> > > > understand why there is so much pain still. I am scared my whole life

> > > > has changed so dramatically! I feel bad for my husband and my kids

> > > > they did'nt sign up for this! I used to be this vibrant hard working

> > > > woman now I am a 38 year old woman who can't even ride in the car for

> > > > a long trip never mind working or excersing that is not even remotely

> > > > possible I try not to feel sorry for myself but sometimes you just get

> > > > in to one of them moods. I need to talk to people who are going

> > > > through the same things so that I feel I am not losing myself!

> > > > Sometimes I feel like my husband should take the kids and leave so

> > > > that they have some kind of a normal life but then my world would

> > > > really be empty and I would feel even more alone than I already do.

> > > > Any advice would be greatly appreciated thank you for listening.

> > > >

> > > >

> > > >

> > > > ------------ --------- --------- ------

> > > >

> > > > To read these messages on the Hugs web site go to:

> > > > http://groups. yahoo.com/ group/Hugs- N-Pain

> > > > you can contact me privately at starlyin@... <starlyin%40aol. com>

> > > > Rose

> > > > Owner/ Moderator Hugs N Pain

> > > > God Bless our Troops

> > > > Please Pray for them

[Guest guest]

Hi, Donnie ,

I live in Phx Az, and my illnesses include PN , severe arthritis , spine damage

with bone spurs and bulging disks etc , and I'm diabetic and have sleep apnea

and other things going on.I've had a triple bypass in 2007 . My worse pain comes

from the Peripheral neuropathy, and the only relief I get is from opiates that I

take as sparingly as I can,because of the side effects .How are you doing

Donnie ? I'm sorry you're a chronic painer too, I know all of us truly

understand the challenge we have .

Les

thecardiacclub

chronicpainsupportclub4women

Looking for friends in a world of pain

> > > >

> > > > Hi my name is Kim, I have been living with chronic neck pain for two

> > > > and a half years, My last surgery was 7 months ago, The pain is

> > > > unbearable I feel like all I do is try to get through the day! I am

> > > > taking the pain medicine the doctors told me to take but it scares me

> > > > because I have been on it for 2 1/2 years, I have tried massage,

> > > > chiropractor & acupuncture nothing seems to be working they don't

> > > > understand why there is so much pain still. I am scared my whole life

> > > > has changed so dramatically! I feel bad for my husband and my kids

> > > > they did'nt sign up for this! I used to be this vibrant hard working

> > > > woman now I am a 38 year old woman who can't even ride in the car for

> > > > a long trip never mind working or excersing that is not even remotely

> > > > possible I try not to feel sorry for myself but sometimes you just get

> > > > in to one of them moods. I need to talk to people who are going

> > > > through the same things so that I feel I am not losing myself!

> > > > Sometimes I feel like my husband should take the kids and leave so

> > > > that they have some kind of a normal life but then my world would

> > > > really be empty and I would feel even more alone than I already do.

> > > > Any advice would be greatly appreciated thank you for listening.

> > > >

> > > >

> > > >

> > > > ------------ --------- --------- ------

> > > >

> > > > To read these messages on the Hugs web site go to:

> > > > http://groups. yahoo.com/ group/Hugs- N-Pain

> > > > you can contact me privately at starlyin@... <starlyin%40aol. com>

> > > > Rose

> > > > Owner/ Moderator Hugs N Pain

> > > > God Bless our Troops

> > > > Please Pray for them

[Guest guest]

Thanks Alanna,

I'm going to try to remember that phrase and keep repeating it as the mommy

guilt tried to sink in! Keep in touch & take care!

 

Hugs,

 

 

From: Elaine Dowell <emdowelllive (DOT) com>

Subject: RE: Looking for friends in a world of pain

To: hugs-n-pain@ yahoogroups. com

Date: Thursday, February 26, 2009, 4:08 PM

Kim,

I relate in a lot of ways to your post. You sound like a brave person feeling a

little abandoned and overwhelmed. But you are not alone; please take some

comfort in that. People here do understand.

This year marks 20 years of unrelenting headache (from damage of brain surgery)

and neck pain. I have lived on massive dosages of heavy narcotics, and they did

help. Then my doctor moved and no other doc in this area will touch my case.

Which led me to the pain clinic. I am hoping for the pump, but am in the early

stages of trial procedures.

There is nothing you can do to make your family understand; my finds me an

embarrassment and a bother. Maybe if you speak with yours frankly and from the

heart you will have better luck. I will pray for that. Support would be nice.

Either way, you have to do what makes your quality of life the best possible. We

all deserve that. Please don't let it overwhelm you; answers are out there and

they are here too. This is a great group.

Keeping you in my thoughts,

elaine

> To: Hugs-N-Pain@ yahoogroups. com

> From: kimshomestyle@ yahoo.com

> Date: Thu, 26 Feb 2009 15:37:13 +0000

> Subject: Looking for friends in a world of pain

>

> Hi my name is Kim, I have been living with chronic neck pain for two

> and a half years, My last surgery was 7 months ago, The pain is

> unbearable I feel like all I do is try to get through the day! I am

> taking the pain medicine the doctors told me to take but it scares me

> because I have been on it for 2 1/2 years, I have tried massage,

> chiropractor & acupuncture nothing seems to be working they don't

> understand why there is so much pain still. I am scared my whole life

> has changed so dramatically! I feel bad for my husband and my kids

> they did'nt sign up for this! I used to be this vibrant hard working

> woman now I am a 38 year old woman who can't even ride in the car for

> a long trip never mind working or excersing that is not even remotely

> possible I try not to feel sorry for myself but sometimes you just get

> in to one of them moods. I need to talk to people who are going

> through the same things so that I feel I am not losing myself!

> Sometimes I feel like my husband should take the kids and leave so

> that they have some kind of a normal life but then my world would

> really be empty and I would feel even more alone than I already do.

> Any advice would be greatly appreciated thank you for listening.

>

>

>

> ------------ --------- --------- ------

>

> To read these messages on the Hugs web site go to:

> http://groups. yahoo.com/ group/Hugs- N-Pain

> you can contact me privately at starlyinaol (DOT) com

> Rose

> Owner/ Moderator Hugs N Pain

> God Bless our Troops

> Please Pray for them

[Guest guest]

Lotacats,

Thanks for all the words of encouragement. It helps to hear that your kids went

through it and turned out OK.

How have you been feeling? My pain has been bad with all the rain, but it's a

little better today.

Take care,

Alanna

Sent from my Verizon Wireless BlackBerry

Looking for friends in a

> world of pain

> >

> > Hi my name is Kim, I have been living with

> chronic neck pain for two

> > and a half years, My last surgery was 7 months

> ago, The pain is

> > unbearable I feel like all I do is try to get

> through the day! I am

> > taking the pain medicine the doctors told me to

> take but it scares me

> > because I have been on it for 2 1/2 years, I

> have tried massage,

> > chiropractor & acupuncture nothing seems to

> be working they don't

> > understand why there is so much pain still. I am

> scared my whole life

> > has changed so dramatically! I feel bad for my

> husband and my kids

> > they did'nt sign up for this! I used to be

> this vibrant hard working

> > woman now I am a 38 year old woman who can't

> even ride in the car for

> > a long trip never mind working or excersing that

> is not even remotely

> > possible I try not to feel sorry for myself but

> sometimes you just get

> > in to one of them moods. I need to talk to

> people who are going

> > through the same things so that I feel I am not

> losing myself!

> > Sometimes I feel like my husband should take the

> kids and leave so

> > that they have some kind of a normal life but

> then my world would

> > really be empty and I would feel even more alone

> than I already do.

> > Any advice would be greatly appreciated thank

> you for listening.

> >

> >

> >

> > ------------------------------------

> >

> > To read these messages on the Hugs web site go

> to:

> > http://groups.yahoo.com/group/Hugs-N-Pain

> > you can contact me privately at

> starlyin@...

> > Rose

> > Owner/ Moderator Hugs N Pain

> > God Bless our Troops

> > Please Pray for them