Guest guest Posted March 13, 2009 Report Share Posted March 13, 2009 Unfortunately even Dr's are misinformed about chronic pain. Your Primary Care Dr. has only completed the minimum education requirement to obtain their medical license. Even neurologists and surgeons have not completed the coursework in the causes and treatment of pain. I just spoke to a respected neurologist/surgeon that had me drive 120 miles to his office where he told me he did not want to do any surgery because of my age (29) and because he felt there was not a specific cause of my pain even though 5 seperate Dr's have diagnosed the same problem. Either way after not listening to a word I said he informed me that the way to treat chronic spinal pain/numbness, tingling etc. was to keep my weight down, exercise, and to remove myself from opiates and take Advil instead. I can tell you the exercise is out of the picture since I can barely walk and have been disabled for over a year. I still have a hard time believing that I am disabled even when I got SSI disability the first time I applied for it no questions asked. Either way I am learning that even though a Dr. might seem as if they know what they are talking about they might not. I have also learned that Dr's who think they know everything usually know the least and care the least and are too full of themselves to learn the truth. Thank you for reading my ramblings I stink as a writer Lesley > > > > > > From: Elaine Dowell <emdowell@... <emdowell%40live.com>> > > > Subject: RE: Looking for friends in a world of pain > > > To: hugs-n-pain <hugs-n-pain%40yahoogroups.com> > > > Date: Thursday, February 26, 2009, 4:08 PM > > > > > > Kim, > > > > > > I relate in a lot of ways to your post. You sound like a brave person > > > feeling a little abandoned and overwhelmed. But you are not alone; > > please > > > take some comfort in that. People here do understand. > > > > > > This year marks 20 years of unrelenting headache (from damage of brain > > > surgery) and neck pain. I have lived on massive dosages of heavy > > narcotics, > > > and they did help. Then my doctor moved and no other doc in this area > > will > > > touch my case. Which led me to the pain clinic. I am hoping for the > > pump, > > > but am in the early stages of trial procedures. > > > > > > There is nothing you can do to make your family understand; my finds me > > an > > > embarrassment and a bother. Maybe if you speak with yours frankly and > > from > > > the heart you will have better luck. I will pray for that. Support would > > be > > > nice. Either way, you have to do what makes your quality of life the > > best > > > possible. We all deserve that. Please don't let it overwhelm you; > > answers > > > are out there and they are here too. This is a great group. > > > > > > Keeping you in my thoughts, > > > > > > elaine > > > > > > > To: Hugs-N-Pain <Hugs-N-Pain%40yahoogroups.com> > > > > From: kimshomestyle@... <kimshomestyle%40yahoo.com> > > > > Date: Thu, 26 Feb 2009 15:37:13 +0000 > > > > Subject: Looking for friends in a world of pain > > > > > > > > Hi my name is Kim, I have been living with chronic neck pain for two > > > > and a half years, My last surgery was 7 months ago, The pain is > > > > unbearable I feel like all I do is try to get through the day! I am > > > > taking the pain medicine the doctors told me to take but it scares me > > > > because I have been on it for 2 1/2 years, I have tried massage, > > > > chiropractor & acupuncture nothing seems to be working they don't > > > > understand why there is so much pain still. I am scared my whole life > > > > has changed so dramatically! I feel bad for my husband and my kids > > > > they did'nt sign up for this! I used to be this vibrant hard working > > > > woman now I am a 38 year old woman who can't even ride in the car for > > > > a long trip never mind working or excersing that is not even remotely > > > > possible I try not to feel sorry for myself but sometimes you just get > > > > in to one of them moods. I need to talk to people who are going > > > > through the same things so that I feel I am not losing myself! > > > > Sometimes I feel like my husband should take the kids and leave so > > > > that they have some kind of a normal life but then my world would > > > > really be empty and I would feel even more alone than I already do. > > > > Any advice would be greatly appreciated thank you for listening. > > > > > > > > > > > > > > > > ------------------------------------ > > > > > > > > To read these messages on the Hugs web site go to: > > > > http://groups.yahoo.com/group/Hugs-N-Pain > > > > you can contact me privately at starlyin@... <starlyin%40aol.com> > > > > Rose > > > > Owner/ Moderator Hugs N Pain > > > > God Bless our Troops > > > > Please Pray for them Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2009 Report Share Posted March 13, 2009 Hi Les, Â Oh, I am so sorry for the bad experiences you've had with Dr's!! I've had a couple also that did not understand what it's like to live in my body and that even though narcotics don't takw away the pain, at least they help for awhile. I have an awesome Dr rigth now, TG!! I'm glad to hear you have a PM Dr that treats you. Can I ask what PN is? Â I'm in MN and we also have a data base for pharmacists & Dr's to see who is on narcotics, when they last refilled, where, what med, ect. I know it seems like the system treats us like drug addicts but it is really a safeguard for all of us. I have never had any problem getting my meds filled under this system. It does flag the very few that abuse the narcotics and therefore I think the Dr's feel a little safer prescribing. Â Best of luck to you! I hope you can find relief! Hugs, Â Â From: Elaine Dowell <emdowelllive (DOT) com> Subject: RE: Looking for friends in a world of pain To: hugs-n-pain@ yahoogroups. com Date: Thursday, February 26, 2009, 4:08 PM Kim, I relate in a lot of ways to your post. You sound like a brave person feeling a little abandoned and overwhelmed. But you are not alone; please take some comfort in that. People here do understand. This year marks 20 years of unrelenting headache (from damage of brain surgery) and neck pain. I have lived on massive dosages of heavy narcotics, and they did help. Then my doctor moved and no other doc in this area will touch my case. Which led me to the pain clinic. I am hoping for the pump, but am in the early stages of trial procedures. There is nothing you can do to make your family understand; my finds me an embarrassment and a bother. Maybe if you speak with yours frankly and from the heart you will have better luck. I will pray for that. Support would be nice. Either way, you have to do what makes your quality of life the best possible. We all deserve that. Please don't let it overwhelm you; answers are out there and they are here too. This is a great group. Keeping you in my thoughts, elaine > To: Hugs-N-Pain@ yahoogroups. com > From: kimshomestyle@ yahoo.com > Date: Thu, 26 Feb 2009 15:37:13 +0000 > Subject: Looking for friends in a world of pain > > Hi my name is Kim, I have been living with chronic neck pain for two > and a half years, My last surgery was 7 months ago, The pain is > unbearable I feel like all I do is try to get through the day! I am > taking the pain medicine the doctors told me to take but it scares me > because I have been on it for 2 1/2 years, I have tried massage, > chiropractor & acupuncture nothing seems to be working they don't > understand why there is so much pain still. I am scared my whole life > has changed so dramatically! I feel bad for my husband and my kids > they did'nt sign up for this! I used to be this vibrant hard working > woman now I am a 38 year old woman who can't even ride in the car for > a long trip never mind working or excersing that is not even remotely > possible I try not to feel sorry for myself but sometimes you just get > in to one of them moods. I need to talk to people who are going > through the same things so that I feel I am not losing myself! > Sometimes I feel like my husband should take the kids and leave so > that they have some kind of a normal life but then my world would > really be empty and I would feel even more alone than I already do. > Any advice would be greatly appreciated thank you for listening. > > > > ------------ --------- --------- ------ > > To read these messages on the Hugs web site go to: > http://groups. yahoo.com/ group/Hugs- N-Pain > you can contact me privately at starlyinaol (DOT) com > Rose > Owner/ Moderator Hugs N Pain > God Bless our Troops > Please Pray for them Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2009 Report Share Posted March 13, 2009 You go, Donnie!! lol. Lotacats Express Chronic Pain Awareness http://www.cafepress.com/lotacatspix/5815010 Lotacatsfunpix.com http://www.lotacatsfunpix.com/ Deviantart http://lotacats05.deviantart.com/ > > From: Elaine Dowell <emdowelllive (DOT) com> > > Subject: RE: Looking for friends in a world > of pain > > To: hugs-n-pain@ yahoogroups. com > > Date: Thursday, February 26, 2009, 4:08 PM > > Kim, > > I relate in a lot of ways to your post. You sound like a > brave person > > feeling a little abandoned and overwhelmed. But you are not > alone; please > > take some comfort in that. People here do understand. > > This year marks 20 years of unrelenting headache (from > damage of brain > > surgery) and neck pain. I have lived on massive dosages of > heavy narcotics, > > and they did help. Then my doctor moved and no other doc in > this area will > > touch my case. Which led me to the pain clinic. I am hoping > for the pump, > > but am in the early stages of trial procedures. > > There is nothing you can do to make your family understand; > my finds me an > > embarrassment and a bother. Maybe if you speak with yours > frankly and from > > the heart you will have better luck. I will pray for that. > Support would be > > nice. Either way, you have to do what makes your quality of > life the best > > possible. We all deserve that. Please don't let it > overwhelm you; answers > > are out there and they are here too. This is a great group. > > Keeping you in my thoughts, > > elaine > > > To: Hugs-N-Pain@ yahoogroups. com > > > From: kimshomestyle@ yahoo.com > > > Date: Thu, 26 Feb 2009 15:37:13 +0000 > > > Subject: Looking for friends in a world > of pain > > > > > > Hi my name is Kim, I have been living with chronic > neck pain for two > > > and a half years, My last surgery was 7 months ago, > The pain is > > > unbearable I feel like all I do is try to get through > the day! I am > > > taking the pain medicine the doctors told me to take > but it scares me > > > because I have been on it for 2 1/2 years, I have > tried massage, > > > chiropractor & acupuncture nothing seems to be > working they don't > > > understand why there is so much pain still. I am > scared my whole life > > > has changed so dramatically! I feel bad for my husband > and my kids > > > they did'nt sign up for this! I used to be this > vibrant hard working > > > woman now I am a 38 year old woman who can't even > ride in the car for > > > a long trip never mind working or excersing that is > not even remotely > > > possible I try not to feel sorry for myself but > sometimes you just get > > > in to one of them moods. I need to talk to people who > are going > > > through the same things so that I feel I am not losing > myself! > > > Sometimes I feel like my husband should take the kids > and leave so > > > that they have some kind of a normal life but then my > world would > > > really be empty and I would feel even more alone than > I already do. > > > Any advice would be greatly appreciated thank you for > listening. > > > > > > > > > > > > ------------ --------- --------- ------ > > > > > > To read these messages on the Hugs web site go to: > > > http://groups. yahoo.com/ group/Hugs- N-Pain > > > you can contact me privately at starlyinaol (DOT) com > > > Rose > > > Owner/ Moderator Hugs N Pain > > > God Bless our Troops > > > Please Pray for them Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2009 Report Share Posted March 13, 2009 Hi,Lesley, I'm very sorry about your experience with that cold and compassionless excuse for a neuro . Advil for acute and devastating pain , OMG ! Your description of Dr's that are full of their ego's was right on target, I've met more than a few ..I'm sorry you drove all that way to be put down so profoundly !I feel so helpless against a system that is so cold and callous . Les thecardiacclub chronicpainsupportclub4women Looking for friends in a world of pain > > > > > > > > Hi my name is Kim, I have been living with chronic neck pain for two > > > > and a half years, My last surgery was 7 months ago, The pain is > > > > unbearable I feel like all I do is try to get through the day! I am > > > > taking the pain medicine the doctors told me to take but it scares me > > > > because I have been on it for 2 1/2 years, I have tried massage, > > > > chiropractor & acupuncture nothing seems to be working they don't > > > > understand why there is so much pain still. I am scared my whole life > > > > has changed so dramatically! I feel bad for my husband and my kids > > > > they did'nt sign up for this! I used to be this vibrant hard working > > > > woman now I am a 38 year old woman who can't even ride in the car for > > > > a long trip never mind working or excersing that is not even remotely > > > > possible I try not to feel sorry for myself but sometimes you just get > > > > in to one of them moods. I need to talk to people who are going > > > > through the same things so that I feel I am not losing myself! > > > > Sometimes I feel like my husband should take the kids and leave so > > > > that they have some kind of a normal life but then my world would > > > > really be empty and I would feel even more alone than I already do. > > > > Any advice would be greatly appreciated thank you for listening. > > > > > > > > > > > > > > > > ------------------------------------ > > > > > > > > To read these messages on the Hugs web site go to: > > > > http://groups.yahoo.com/group/Hugs-N-Pain > > > > you can contact me privately at starlyin@... <starlyin%40aol.com> > > > > Rose > > > > Owner/ Moderator Hugs N Pain > > > > God Bless our Troops > > > > Please Pray for them Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2009 Report Share Posted March 14, 2009 hi how is my freand lotacats doing and how is the kittys doing i am laying here with my retarded cat he hates to be by his self he is a good companion he stays on the couch as much as me donnieKY > > From: Elaine Dowell <emdowelllive (DOT) com> > > Subject: RE: Looking for friends in a world > of pain > > To: hugs-n-pain@ yahoogroups. com > > Date: Thursday, February 26, 2009, 4:08 PM > > Kim, > > I relate in a lot of ways to your post. You sound like a > brave person > > feeling a little abandoned and overwhelmed. But you are not > alone; please > > take some comfort in that. People here do understand. > > This year marks 20 years of unrelenting headache (from > damage of brain > > surgery) and neck pain. I have lived on massive dosages of > heavy narcotics, > > and they did help. Then my doctor moved and no other doc in > this area will > > touch my case. Which led me to the pain clinic. I am hoping > for the pump, > > but am in the early stages of trial procedures. > > There is nothing you can do to make your family understand; > my finds me an > > embarrassment and a bother. Maybe if you speak with yours > frankly and from > > the heart you will have better luck. I will pray for that. > Support would be > > nice. Either way, you have to do what makes your quality of > life the best > > possible. We all deserve that. Please don't let it > overwhelm you; answers > > are out there and they are here too. This is a great group. > > Keeping you in my thoughts, > > elaine > > > To: Hugs-N-Pain@ yahoogroups. com > > > From: kimshomestyle@ yahoo.com > > > Date: Thu, 26 Feb 2009 15:37:13 +0000 > > > Subject: Looking for friends in a world > of pain > > > > > > Hi my name is Kim, I have been living with chronic > neck pain for two > > > and a half years, My last surgery was 7 months ago, > The pain is > > > unbearable I feel like all I do is try to get through > the day! I am > > > taking the pain medicine the doctors told me to take > but it scares me > > > because I have been on it for 2 1/2 years, I have > tried massage, > > > chiropractor & acupuncture nothing seems to be > working they don't > > > understand why there is so much pain still. I am > scared my whole life > > > has changed so dramatically! I feel bad for my husband > and my kids > > > they did'nt sign up for this! I used to be this > vibrant hard working > > > woman now I am a 38 year old woman who can't even > ride in the car for > > > a long trip never mind working or excersing that is > not even remotely > > > possible I try not to feel sorry for myself but > sometimes you just get > > > in to one of them moods. I need to talk to people who > are going > > > through the same things so that I feel I am not losing > myself! > > > Sometimes I feel like my husband should take the kids > and leave so > > > that they have some kind of a normal life but then my > world would > > > really be empty and I would feel even more alone than > I already do. > > > Any advice would be greatly appreciated thank you for > listening. > > > > > > > > > > > > ------------ --------- --------- ------ > > > > > > To read these messages on the Hugs web site go to: > > > http://groups. yahoo.com/ group/Hugs- N-Pain > > > you can contact me privately at starlyinaol (DOT) com > > > Rose > > > Owner/ Moderator Hugs N Pain > > > God Bless our Troops > > > Please Pray for them Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2009 Report Share Posted March 14, 2009 hi how is my freand lotacats doing and how is the kittys doing i am laying here with my retarded cat he hates to be by his self he is a good companion he stays on the couch as much as me donnieKY > > From: Elaine Dowell <emdowelllive (DOT) com> > > Subject: RE: Looking for friends in a world > of pain > > To: hugs-n-pain@ yahoogroups. com > > Date: Thursday, February 26, 2009, 4:08 PM > > Kim, > > I relate in a lot of ways to your post. You sound like a > brave person > > feeling a little abandoned and overwhelmed. But you are not > alone; please > > take some comfort in that. People here do understand. > > This year marks 20 years of unrelenting headache (from > damage of brain > > surgery) and neck pain. I have lived on massive dosages of > heavy narcotics, > > and they did help. Then my doctor moved and no other doc in > this area will > > touch my case. Which led me to the pain clinic. I am hoping > for the pump, > > but am in the early stages of trial procedures. > > There is nothing you can do to make your family understand; > my finds me an > > embarrassment and a bother. Maybe if you speak with yours > frankly and from > > the heart you will have better luck. I will pray for that. > Support would be > > nice. Either way, you have to do what makes your quality of > life the best > > possible. We all deserve that. Please don't let it > overwhelm you; answers > > are out there and they are here too. This is a great group. > > Keeping you in my thoughts, > > elaine > > > To: Hugs-N-Pain@ yahoogroups. com > > > From: kimshomestyle@ yahoo.com > > > Date: Thu, 26 Feb 2009 15:37:13 +0000 > > > Subject: Looking for friends in a world > of pain > > > > > > Hi my name is Kim, I have been living with chronic > neck pain for two > > > and a half years, My last surgery was 7 months ago, > The pain is > > > unbearable I feel like all I do is try to get through > the day! I am > > > taking the pain medicine the doctors told me to take > but it scares me > > > because I have been on it for 2 1/2 years, I have > tried massage, > > > chiropractor & acupuncture nothing seems to be > working they don't > > > understand why there is so much pain still. I am > scared my whole life > > > has changed so dramatically! I feel bad for my husband > and my kids > > > they did'nt sign up for this! I used to be this > vibrant hard working > > > woman now I am a 38 year old woman who can't even > ride in the car for > > > a long trip never mind working or excersing that is > not even remotely > > > possible I try not to feel sorry for myself but > sometimes you just get > > > in to one of them moods. I need to talk to people who > are going > > > through the same things so that I feel I am not losing > myself! > > > Sometimes I feel like my husband should take the kids > and leave so > > > that they have some kind of a normal life but then my > world would > > > really be empty and I would feel even more alone than > I already do. > > > Any advice would be greatly appreciated thank you for > listening. > > > > > > > > > > > > ------------ --------- --------- ------ > > > > > > To read these messages on the Hugs web site go to: > > > http://groups. yahoo.com/ group/Hugs- N-Pain > > > you can contact me privately at starlyinaol (DOT) com > > > Rose > > > Owner/ Moderator Hugs N Pain > > > God Bless our Troops > > > Please Pray for them Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2009 Report Share Posted March 14, 2009 hi how is my freand lotacats doing and how is the kittys doing i am laying here with my retarded cat he hates to be by his self he is a good companion he stays on the couch as much as me donnieKY > > From: Elaine Dowell <emdowelllive (DOT) com> > > Subject: RE: Looking for friends in a world > of pain > > To: hugs-n-pain@ yahoogroups. com > > Date: Thursday, February 26, 2009, 4:08 PM > > Kim, > > I relate in a lot of ways to your post. You sound like a > brave person > > feeling a little abandoned and overwhelmed. But you are not > alone; please > > take some comfort in that. People here do understand. > > This year marks 20 years of unrelenting headache (from > damage of brain > > surgery) and neck pain. I have lived on massive dosages of > heavy narcotics, > > and they did help. Then my doctor moved and no other doc in > this area will > > touch my case. Which led me to the pain clinic. I am hoping > for the pump, > > but am in the early stages of trial procedures. > > There is nothing you can do to make your family understand; > my finds me an > > embarrassment and a bother. Maybe if you speak with yours > frankly and from > > the heart you will have better luck. I will pray for that. > Support would be > > nice. Either way, you have to do what makes your quality of > life the best > > possible. We all deserve that. Please don't let it > overwhelm you; answers > > are out there and they are here too. This is a great group. > > Keeping you in my thoughts, > > elaine > > > To: Hugs-N-Pain@ yahoogroups. com > > > From: kimshomestyle@ yahoo.com > > > Date: Thu, 26 Feb 2009 15:37:13 +0000 > > > Subject: Looking for friends in a world > of pain > > > > > > Hi my name is Kim, I have been living with chronic > neck pain for two > > > and a half years, My last surgery was 7 months ago, > The pain is > > > unbearable I feel like all I do is try to get through > the day! I am > > > taking the pain medicine the doctors told me to take > but it scares me > > > because I have been on it for 2 1/2 years, I have > tried massage, > > > chiropractor & acupuncture nothing seems to be >% Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2009 Report Share Posted March 14, 2009 hi how is my freand lotacats doing and how is the kittys doing i am laying here with my retarded cat he hates to be by his self he is a good companion he stays on the couch as much as me donnieKY > > From: Elaine Dowell <emdowelllive (DOT) com> > > Subject: RE: Looking for friends in a world > of pain > > To: hugs-n-pain@ yahoogroups. com > > Date: Thursday, February 26, 2009, 4:08 PM > > Kim, > > I relate in a lot of ways to your post. You sound like a > brave person > > feeling a little abandoned and overwhelmed. But you are not > alone; please > > take some comfort in that. People here do understand. > > This year marks 20 years of unrelenting headache (from > damage of brain > > surgery) and neck pain. I have lived on massive dosages of > heavy narcotics, > > and they did help. Then my doctor moved and no other doc in > this area will > > touch my case. Which led me to the pain clinic. I am hoping > for the pump, > > but am in the early stages of trial procedures. > > There is nothing you can do to make your family understand; > my finds me an > > embarrassment and a bother. Maybe if you speak with yours > frankly and from > > the heart you will have better luck. I will pray for that. > Support would be > > nice. Either way, you have to do what makes your quality of > life the best > > possible. We all deserve that. Please don't let it > overwhelm you; answers > > are out there and they are here too. This is a great group. > > Keeping you in my thoughts, > > elaine > > > To: Hugs-N-Pain@ yahoogroups. com > > > From: kimshomestyle@ yahoo.com > > > Date: Thu, 26 Feb 2009 15:37:13 +0000 > > > Subject: Looking for friends in a world > of pain > > > > > > Hi my name is Kim, I have been living with chronic > neck pain for two > > > and a half years, My last surgery was 7 months ago, > The pain is > > > unbearable I feel like all I do is try to get through > the day! I am > > > taking the pain medicine the doctors told me to take > but it scares me > > > because I have been on it for 2 1/2 years, I have > tried massage, > > > chiropractor & acupuncture nothing seems to be > working they don't > > > understand why there is so much pain still. I am > scared my whole life > > > has changed so dramatically! I feel bad for my husband > and my kids > > > they did'nt sign up for this! I used to be this > vibrant hard working > > > woman now I am a 38 year old woman who can't even > ride in the car for > > > a long trip never mind working or excersing that is > not even remotely > > > possible I try not to feel sorry for myself but > sometimes you just get > > > in to one of them moods. I need to talk to people who > are going > > > through the same things so that I feel I am not losing > myself! > > > Sometimes I feel like my husband should take the kids > and leave so > > > that they have some kind of a normal life but then my > world would > > > really be empty and I would feel even more alone than > I already do. > > > Any advice would be greatly appreciated thank you for > listening. > > > > > > > > > > > > ------------ --------- --------- ------ > > > > > > To read these messages on the Hugs web site go to: > > > http://groups. yahoo.com/ group/Hugs- N-Pain > > > you can contact me privately at starlyinaol (DOT) com > > > Rose > > > Owner/ Moderator Hugs N Pain > > > God Bless our Troops > > > Please Pray for them Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2009 Report Share Posted March 14, 2009 hi les my name is donnieKY i am a painer most docs thank painers are addics befor thay look at you thay have got you labeled as a addic and brush you off i had a doc i wet to see set a cross the room from me i looked at hem and sead you have done desided all ready there is nothing rong with me or you would be over here looking at my knee instead of setting overthere he came over looked at my knee and sead you were rite i figerd you were looking for a script we need to get you a sergery date and i am sorry he sead there is so menny pill hunters out there it makes it hard on the people that do have a problem all most everbody thank us painers are addics it dose not bother me thay thank like that i know i have a problem and that is all that matters les i hope you have a less pain nite and you ever want to talk i am here donnieKY Subject: Re: Looking for friends in a world of pain To: Hugs-N-Pain Date: Friday, March 13, 2009, 7:36 AM Unfortunately even Dr's are misinformed about chronic pain. Your Primary Care Dr. has only completed the minimum education requirement to obtain their medical license. Even neurologists and surgeons have not completed the coursework in the causes and treatment of pain. I just spoke to a respected neurologist/ surgeon that had me drive 120 miles to his office where he told me he did not want to do any surgery because of my age (29) and because he felt there was not a specific cause of my pain even though 5 seperate Dr's have diagnosed the same problem. Either way after not listening to a word I said he informed me that the way to treat chronic spinal pain/numbness, tingling etc. was to keep my weight down, exercise, and to remove myself from opiates and take Advil instead. I can tell you the exercise is out of the picture since I can barely walk and have been disabled for over a year. I still have a hard time believing that I am disabled even when I got SSI disability the first time I applied for it no questions asked. Either way I am learning that even though a Dr. might seem as if they know what they are talking about they might not. I have also learned that Dr's who think they know everything usually know the least and care the least and are too full of themselves to learn the truth. Thank you for reading my ramblings I stink as a writer Lesley > > > > > Hi, my name is Les , > > > I just joined your group, and I'm looking for members who are being > > treated > > > the way I'm being treated by Dr's ,(to find out if there's anything we > > can > > > do about this ) and it looks like I've entered such a discussion right > > here > > > ? Recently, Az. passed a law where everyone who is prescribed narcotics > > are > > > in a data base that all Dr's and pharmacists can look at . Now the Dr's > > are > > > using this to black-list and shun everyone on drugs that are chronic > > pain > > > sufferers ,and are treating us like we're drug addicts ! I left my PCP > > > recently because she lashed out at me and told me I don't need my > > opiates , > > > that they don't help my PN. I told her they do help my PN, and she > > repeated > > > " opiates don't help PN ! " I went to a new Dr , and she was even worse > > !She > > > told me to get rid of my drugs, and I told her if she has something that > > > will stop my pain, I will ,and all she could tell me was to increase my > > > Celexa , and keep looking ! She also told me I was going to die soon > > because > > > my lipids are so high that my triple bypass will fail , and that I was > > so > > > obese I should have surgery . She proceeded to insult me with one insult > > > after another , and even put down my pain Dr (thankfully I have this man > > to > > > control my pain )by saying those Dr's just wanted us to be addicts .This > > is > > > the quality of Dr's you get out this way ...I also have some in my > > family > > > who don't understand my need for drugs, although my immediate family > > does > > > understand . My BIL and his physician fiancée both look at me as if I > > were a > > > druggie , too . > > > Sorry about the long introduction , but I've been venting for the last > > few > > > days, this recent Dr has me so upset , and I know that no matter what Dr > > I > > > go too,it will be the same,they're all hysterical about anyone on > > opiates . > > > Les > > > > > > thecardiacclub@ yahoogroup Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2009 Report Share Posted March 14, 2009 hi les my name is donnieKY i am a painer most docs thank painers are addics befor thay look at you thay have got you labeled as a addic and brush you off i had a doc i wet to see set a cross the room from me i looked at hem and sead you have done desided all ready there is nothing rong with me or you would be over here looking at my knee instead of setting overthere he came over looked at my knee and sead you were rite i figerd you were looking for a script we need to get you a sergery date and i am sorry he sead there is so menny pill hunters out there it makes it hard on the people that do have a problem all most everbody thank us painers are addics it dose not bother me thay thank like that i know i have a problem and that is all that matters les i hope you have a less pain nite and you ever want to talk i am here donnieKY Subject: Re: Looking for friends in a world of pain To: Hugs-N-Pain Date: Friday, March 13, 2009, 7:36 AM Unfortunately even Dr's are misinformed about chronic pain. Your Primary Care Dr. has only completed the minimum education requirement to obtain their medical license. Even neurologists and surgeons have not completed the coursework in the causes and treatment of pain. I just spoke to a respected neurologist/ surgeon that had me drive 120 miles to his office where he told me he did not want to do any surgery because of my age (29) and because he felt there was not a specific cause of my pain even though 5 seperate Dr's have diagnosed the same problem. Either way after not listening to a word I said he informed me that the way to treat chronic spinal pain/numbness, tingling etc. was to keep my weight down, exercise, and to remove myself from opiates and take Advil instead. I can tell you the exercise is out of the picture since I can barely walk and have been disabled for over a year. I still have a hard time believing that I am disabled even when I got SSI disability the first time I applied for it no questions asked. Either way I am learning that even though a Dr. might seem as if they know what they are talking about they might not. I have also learned that Dr's who think they know everything usually know the least and care the least and are too full of themselves to learn the truth. Thank you for reading my ramblings I stink as a writer Lesley > > > > > Hi, my name is Les , > > > I just joined your group, and I'm looking for members who are being > > treated > > > the way I'm being treated by Dr's ,(to find out if there's anything we > > can > > > do about this ) and it looks like I've entered such a discussion right > > here > > > ? Recently, Az. passed a law where everyone who is prescribed narcotics > > are > > > in a data base that all Dr's and pharmacists can look at . Now the Dr's > > are > > > using this to black-list and shun everyone on drugs that are chronic > > pain > > > sufferers ,and are treating us like we're drug addicts ! I left my PCP > > > recently because she lashed out at me and told me I don't need my > > opiates , > > > that they don't help my PN. I told her they do help my PN, and she > > repeated > > > " opiates don't help PN ! " I went to a new Dr , and she was even worse > > !She > > > told me to get rid of my drugs, and I told her if she has something that > > > will stop my pain, I will ,and all she could tell me was to increase my > > > Celexa , and keep looking ! She also told me I was going to die soon > > because > > > my lipids are so high that my triple bypass will fail , and that I was > > so > > > obese I should have surgery . She proceeded to insult me with one insult > > > after another , and even put down my pain Dr (thankfully I have this man > > to > > > control my pain )by saying those Dr's just wanted us to be addicts .This > > is > > > the quality of Dr's you get out this way ...I also have some in my > > family > > > who don't understand my need for drugs, although my immediate family > > does > > > understand . My BIL and his physician fiancée both look at me as if I > > were a > > > druggie , too . > > > Sorry about the long introduction , but I've been venting for the last > > few > > > days, this recent Dr has me so upset , and I know that no matter what Dr > > I > > > go too,it will be the same,they're all hysterical about anyone on > > opiates . > > > Les > > > > > > thecardiacclub@ yahoogroups. com <thecardiacclub% 40yahoogroups. com> > > > chronicpainsupportc lub4women@ yahoogroups. com > > <chronicpainsupport club4women% 40yahoogroups. com> > > > > > > RE: Looking for friends in a world of pain > > > > > > hi elaine the same thing happened to me i lost my doc and i could not > > find > > > another doc to touch me i was at a docters apt. i had just paid my copay > > and > > > one of the nerses seen i was a dr.fadall knee mess up and thay sead thay > > > could not see me thay didnot want no lawsuit and give me my copay back > > and > > > booted me rite out the door i was lucky enuff to have 3 refills on my > > pain > > > meds that gave me time to find a pain doc that was 2 years ago i am > > still > > > seeing the same pain doc and as for familely suport i have none thay all > > > thank i am a drug addic the only suport i get is rite here in this > > suport > > > group and another good group i belong to and my wife dose not call me a > > drug > > > addic all the time now it%2 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2009 Report Share Posted March 14, 2009 hi les my name is donnieKY i am a painer most docs thank painers are addics befor thay look at you thay have got you labeled as a addic and brush you off i had a doc i wet to see set a cross the room from me i looked at hem and sead you have done desided all ready there is nothing rong with me or you would be over here looking at my knee instead of setting overthere he came over looked at my knee and sead you were rite i figerd you were looking for a script we need to get you a sergery date and i am sorry he sead there is so menny pill hunters out there it makes it hard on the people that do have a problem all most everbody thank us painers are addics it dose not bother me thay thank like that i know i have a problem and that is all that matters les i hope you have a less pain nite and you ever want to talk i am here donnieKY Subject: Re: Looking for friends in a world of pain To: Hugs-N-Pain Date: Friday, March 13, 2009, 7:36 AM Unfortunately even Dr's are misinformed about chronic pain. Your Primary Care Dr. has only completed the minimum education requirement to obtain their medical license. Even neurologists and surgeons have not completed the coursework in the causes and treatment of pain. I just spoke to a respected neurologist/ surgeon that had me drive 120 miles to his office where he told me he did not want to do any surgery because of my age (29) and because he felt there was not a specific cause of my pain even though 5 seperate Dr's have diagnosed the same problem. Either way after not listening to a word I said he informed me that the way to treat chronic spinal pain/numbness, tingling etc. was to keep my weight down, exercise, and to remove myself from opiates and take Advil instead. I can tell you the exercise is Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2009 Report Share Posted March 14, 2009 hi les my name is donnieKY i am a painer most docs thank painers are addics befor thay look at you thay have got you labeled as a addic and brush you off i had a doc i wet to see set a cross the room from me i looked at hem and sead you have done desided all ready there is nothing rong with me or you would be over here looking at my knee instead of setting overthere he came over looked at my knee and sead you were rite i figerd you were looking for a script we need to get you a sergery date and i am sorry he sead there is so menny pill hunters out there it makes it hard on the people that do have a problem all most everbody thank us painers are addics it dose not bother me thay thank like that i know i have a problem and that is all that matters les i hope you have a less pain nite and you ever want to talk i am here donnieKY Subject: Re: Looking for friends in a world of pain To: Hugs-N-Pain Date: Friday, March 13, 2009, 7:36 AM Unfortunately even Dr's are misinformed about chronic pain. Your Primary Care Dr. has only completed the minimum education requirement to obtain their medical license. Even neurologists and surgeons have not completed the coursework in the causes and treatment of pain. I just spoke to a respected neurologist/ surgeon that had me drive 120 miles to his office where he told me he did not want to do any surgery because of my age (29) and because he felt there was not a specific cause of my pain even though 5 seperate Dr's have diagnosed the same problem. Either way after not listening to a word I said he informed me that the way to treat chronic spinal pain/numbness, tingling etc. was to keep my weight down, exercise, and to remove myself from opiates and take Advil instead. I can tell you the exercise is Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2009 Report Share Posted March 14, 2009 hi les my name is donnieKY i am a painer most docs thank painers are addics befor thay look at you thay have got you labeled as a addic and brush you off i had a doc i wet to see set a cross the room from me i looked at hem and sead you have done desided all ready there is nothing rong with me or you would be over here looking at my knee instead of setting overthere he came over looked at my knee and sead you were rite i figerd you were looking for a script we need to get you a sergery date and i am sorry he sead there is so menny pill hunters out there it makes it hard on the people that do have a problem all most everbody thank us painers are addics it dose not bother me thay thank like that i know i have a problem and that is all that matters les i hope you have a less pain nite and you ever want to talk i am here donnieKY Subject: Re: Looking for friends in a world of pain To: Hugs-N-Pain Date: Friday, March 13, 2009, 7:36 AM Unfortunately even Dr's are misinformed about chronic pain. Your Primary Care Dr. has only completed the minimum education requirement to obtain their medical license. Even neurologists and surgeons have not completed the coursework in the causes and treatment of pain. I just spoke to a respected neurologist/ surgeon that had me drive 120 miles to his office where he told me he did not want to do any surgery because of my age (29) and because he felt there was not a specific cause of my pain even though 5 seperate Dr's have diagnosed the same problem. Either way after not listening to a word I said he informed me that the way to treat chronic spinal pain/numbness, tingling etc. was to keep my weight down, exercise, and to remove myself from opiates and take Advil instead. I can tell you the exercise is out of the picture since I can barely walk and have been disabled for over a year. I still have a hard time believing that I am disabled even when I got SSI disability the first time I applied for it no questions asked. Either way I am learning that even though a Dr. might seem as if they know what they are talking about they might not. I have also learned that Dr's who think they know everything usually know the least and care the least and are too full of themselves to learn the truth. Thank you for reading my ramblings I stink as a writer Lesley > > > > > > From: Elaine Dowell <emdowell@.. . <emdowell%40live. com>> > > > Subject: RE: Looking for friends in a world of pain > > > To: hugs-n-pain@ yahoogroups. com <hugs-n-pain% 40yahoogroups. com> > > > Date: Thursday, February 26, 2009, 4:08 PM > > > > > > Kim, > > > > > > I relate in a lot of ways to your post. You sound like a brave person > > > feeling a little abandoned and overwhelmed. But you are not alone; > > please > > > take some comfort in that. People here do understand. > > > > > > This year marks 20 years of unrelenting headache (from damage of brain > > > surgery) and neck pain. I have lived on massive dosages of heavy > > narcotics, > > > and they did help. Then my doctor moved and no other doc in this area > > will > > > touch my case. Which led me to the pain clinic. I am hoping for the > > pump, > > > but am in the early stages of trial procedures. > > > > > > There is nothing you can do to make your family understand; my finds me > > an > > > embarrassment and a bother. Maybe if you speak with yours frankly and > > from > > > the heart you will have better luck. I will pray for that. Support would > > be > > > nice. Either way, you have to do what makes your quality of life the > > best > > > possible. We all deserve that. Please don't let it overwhelm you; > > answers > > > are out there and they are here too. This is a great group. > > > > > > Keeping you in my thoughts, > > > > > > elaine > > > > > > > To: Hugs-N-Pain@ yahoogroups. com <Hugs-N-Pain% 40yahoogroups. com> > > > > From: kimshomestyle@ ... <kimshomestyle% 40yahoo.com> > > > > Date: Thu, 26 Feb 2009 15:37:13 +0000 > > > > Subject: Looking for friends in a world of pain > > > > > > > > Hi my name is Kim, I have been living with chronic neck pain for two > > > > and a half years, My last surgery was 7 months ago, The pain is > > > > unbearable I feel like all I do is try to get through the day! I am > > > > taking the pain medicine the doctors told me to take but it scares me > > > > because I have been on it for 2 1/2 years, I have tried massage, > > > > chiropractor & acupuncture nothing seems to be working they don't > > > > understand why there is so much pain still. I am scared my whole life > > > > has changed so dramatically! I feel bad for my husband and my kids > > > > they did'nt sign up for this! I used to be this vibrant hard working > > > > woman now I am a 38 year old woman who can't even ride in the car for > > > > a long trip never mind working or excersing that is not even remotely > > > > possible I try not to feel sorry for myself but sometimes you just get > > > > in to one of them moods. I need to talk to people who are going > > > > through the same things so that I feel I am not losing myself! > > > > Sometimes I feel like my husband should take the kids and leave so > > > > that they have some kind of a normal life but then my world would > > > > really be empty and I would feel even more alone than I already do. > > > > Any advice would be greatly appreciated thank you for listening. > > > > > > > > > > > > > > > > ------------ --------- --------- ------ > > > > > > > > To read these messages on the Hugs web site go to: > > > > http://groups. yahoo.com/ group/Hugs- N-Pain > > > > you can contact me privately at starlyin@... <starlyin%40aol. com> > > > > Rose > > > > Owner/ Moderator Hugs N Pain > > > > God Bless our Troops > > > > Please Pray for them Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2009 Report Share Posted March 14, 2009 hi jenny you are rite it is nice to have this group it is the only suport most of us get donnieKY From: Greenlaw <kimshomestyle@ yahoo.com> Subject: Re: Looking for friends in a world of pain To: Hugs-N-Pain@ yahoogroups. com Date: Thursday, March 12, 2009, 2:17 AM Donnie, thanks for reaching out I appreciate it, People don't understand what we are going through! My family does'nt even listen when I talk any more! I went to a pain clinic yesterday and had trigger point shots in my neck and Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2009 Report Share Posted March 14, 2009 hi jenny you are rite it is nice to have this group it is the only suport most of us get donnieKY From: Elaine Dowell <emdowelllive (DOT) com> Subject: RE: Looking for friends in a world of pain To: hugs-n-pain@ yahoogroups. com Date: Thursday, February 26, 2009, 4:08 PM Kim, I relate in a lot of ways to your post. You sound like a brave person feeling a little abandoned and overwhelmed. But you are not alone; please take some comfort in that. People here do understand. This year marks 20 years of unrelenting headache (from damage of brain surgery) and neck pain. I have lived on massive dosages of heavy narcotics, and they did help. Then my doctor moved and no other doc in this area will touch my case. Which led me to the pain clinic. I am hoping for the pump, but am in the early stages of trial procedures. There is nothing you can do to make your family understand; my finds me an embarrassment and a bother. Maybe if you speak with yours frankly and from the heart you will have better luck. I will pray for that. Support would be nice. Either way, you have to do what makes your quality of life the best possible. We all deserve that. Please don't let it overwhelm you; answers are out there and they are here too. This is a great group. Keeping you in my thoughts, elaine > To: Hugs-N-Pain@ yahoogroups. com > From: kimshomestyle@ yahoo.com > Date: Thu, 26 Feb 2009 15:37:13 +0000 > Subject: Looking for friends in a world of pain > > Hi my name is Kim, I have been living with chronic neck pain for two > and a half years, My last surgery was 7 months ago, The pain is > unbearable I feel like all I do is try to get through the day! I am > taking the pain medicine the doctors told me to take but it scares me > because I have been on it for 2 1/2 years, I have tried massage, > chiropractor & acupuncture nothing seems to be working they don't > understand why there is so much pain still. I am scared my whole life > has changed so dramatically! I feel bad for my husband and my kids > they did'nt sign up for this! I used to be this vibrant hard working > woman now I am a 38 year old woman who can't even ride in the car for > a long trip never mind working or excersing that is not even remotely > possible I try not to feel sorry for myself but sometimes you just get > in to one of them moods. I need to talk to people who are going > through the same things so that I feel I am not losing myself! > Sometimes I feel like my husband should take the kids and leave so > that they have some kind of a normal life but then my world would > really be empty and I would feel even more alone than I already do. > Any advice would be greatly appreciated thank you for listening. > > > > ------------ --------- --------- ------ > > To read these messages on the Hugs web site go to: > http://groups. yahoo.com/ group/Hugs- N-Pain > you can contact me privately at starlyinaol (DOT) com > Rose > Owner/ Moderator Hugs N Pain > God Bless our Troops > Please Pray for them Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2009 Report Share Posted March 14, 2009 Hi,Donnie, Great to meet you ! I see you've been shunned and labeled too, and know all too well how I'm feeling ! Judged and convicted without a jury .....I'm so glad that Dr apologized to you ! I didn't get an apology, and in fact, I was treated even more unkindly for trying to speak up for myself . Thanks so much for the very kind welcome ! Les thecardiacclub chronicpainsupportclub4women Looking for friends in a world of pain > > > > > > > > Hi my name is Kim, I have been living with chronic neck pain for two > > > > and a half years, My last surgery was 7 months ago, The pain is > > > > unbearable I feel like all I do is try to get through the day! I am > > > > taking the pain medicine the doctors told me to take but it scares me > > > > because I have been on it for 2 1/2 years, I have tried massage, > > > > chiropractor & acupuncture nothing seems to be working they don't > > > > understand why there is so much pain still. I am scared my whole life > > > > has changed so dramatically! I feel bad for my husband and my kids > > > > they did'nt sign up for this! I used to be this vibrant hard working > > > > woman now I am a 38 year old woman who can't even ride in the car for > > > > a long trip never mind working or excersing that is not even remotely > > > > possible I try not to feel sorry for myself but sometimes you just get > > > > in to one of them moods. I need to talk to people who are going > > > > through the same things so that I feel I am not losing myself! > > > > Sometimes I feel like my husband should take the kids and leave so > > > > that they have some kind of a normal life but then my world would > > > > really be empty and I would feel even more alone than I already do. > > > > Any advice would be greatly appreciated thank you for listening. > > > > > > > > > > > > > > > > ------------ --------- --------- ------ > > > > > > > > To read these messages on the Hugs web site go to: > > > > http://groups. yahoo.com/ group/Hugs- N-Pain > > > > you can contact me privately at starlyin@... <starlyin%40aol. com> > > > > Rose > > > > Owner/ Moderator Hugs N Pain > > > > God Bless our Troops > > > > Please Pray for them Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2009 Report Share Posted March 14, 2009 That was quite a story, and amazing ! I'm glad you have a good Dr now, anyway !The most compassionate Dr I had was the cardiac surgeon who did my triple bypass in November 2007 . They said I had less than 2 days to live and had gotten to Er just in time . He was very caring and answered all my questions . I found out he's diabetic, as I am . Too bad he can't be my regular Dr ! Les thecardiacclub chronicpainsupportclub4women Looking for friends in a world of pain > > > > > > > > > > Hi my name is Kim, I have been living with chronic neck pain for two > > > > > and a half years, My last surgery was 7 months ago, The pain is > > > > > unbearable I feel like all I do is try to get through the day! I am > > > > > taking the pain medicine the doctors told me to take but it scares me > > > > > because I have been on it for 2 1/2 years, I have tried massage, > > > > > chiropractor & acupuncture nothing seems to be working they don't > > > > > understand why there is so much pain still. I am scared my whole life > > > > > has changed so dramatically! I feel bad for my husband and my kids > > > > > they did'nt sign up for this! I used to be this vibrant hard working > > > > > woman now I am a 38 year old woman who can't even ride in the car for > > > > > a long trip never mind working or excersing that is not even remotely > > > > > possible I try not to feel sorry for myself but sometimes you just get > > > > > in to one of them moods. I need to talk to people who are going > > > > > through the same things so that I feel I am not losing myself! > > > > > Sometimes I feel like my husband should take the kids and leave so > > > > > that they have some kind of a normal life but then my world would > > > > > really be empty and I would feel even more alone than I already do. > > > > > Any advice would be greatly appreciated thank you for listening. > > > > > > > > > > > > > > > > > > > > ------------------------------------ > > > > > > > > > > To read these messages on the Hugs web site go to: > > > > > http://groups.yahoo.com/group/Hugs-N-Pain > > > > > you can contact me privately at starlyin@ <starlyin%40aol.com> > > > > > Rose > > > > > Owner/ Moderator Hugs N Pain > > > > > God Bless our Troops > > > > > Please Pray for them Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 15, 2009 Report Share Posted March 15, 2009 Hi Les, Â Yes I'm lucky to have the Dr I do and it sounds like your pain Dr is at least on your side. PN does sound very painful! What cause that? Can anything be done to ease the pain? Best of luck to you & take care! Â Â From: Elaine Dowell <emdowelllive (DOT) com> Subject: RE: Looking for friends in a world of pain To: hugs-n-pain@ yahoogroups. com Date: Thursday, February 26, 2009, 4:08 PM Kim, I relate in a lot of ways to your post. You sound like a brave person feeling a little abandoned and overwhelmed. But you are not alone; please take some comfort in that. People here do understand. This year marks 20 years of unrelenting headache (from damage of brain surgery) and neck pain. I have lived on massive dosages of heavy narcotics, and they did help. Then my doctor moved and no other doc in this area will touch my case. Which led me to the pain clinic. I am hoping for the pump, but am in the early stages of trial procedures. There is nothing you can do to make your family understand; my finds me an embarrassment and a bother. Maybe if you speak with yours frankly and from the heart you will have better luck. I will pray for that. Support would be nice. Either way, you have to do what makes your quality of life the best possible. We all deserve that. Please don't let it overwhelm you; answers are out there and they are here too. This is a great group. Keeping you in my thoughts, elaine > To: Hugs-N-Pain@ yahoogroups. com > From: kimshomestyle@ yahoo.com > Date: Thu, 26 Feb 2009 15:37:13 +0000 > Subject: Looking for friends in a world of pain > > Hi my name is Kim, I have been living with chronic neck pain for two > and a half years, My last surgery was 7 months ago, The pain is > unbearable I feel like all I do is try to get through the day! I am > taking the pain medicine the doctors told me to take but it scares me > because I have been on it for 2 1/2 years, I have tried massage, > chiropractor & acupuncture nothing seems to be working they don't > understand why there is so much pain still. I am scared my whole life > has changed so dramatically! I feel bad for my husband and my kids > they did'nt sign up for this! I used to be this vibrant hard working > woman now I am a 38 year old woman who can't even ride in the car for > a long trip never mind working or excersing that is not even remotely > possible I try not to feel sorry for myself but sometimes you just get > in to one of them moods. I need to talk to people who are going > through the same things so that I feel I am not losing myself! > Sometimes I feel like my husband should take the kids and leave so > that they have some kind of a normal life but then my world would > really be empty and I would feel even more alone than I already do. > Any advice would be greatly appreciated thank you for listening. > > > > ------------ --------- --------- ------ > > To read these messages on the Hugs web site go to: > http://groups. yahoo.com/ group/Hugs- N-Pain > you can contact me privately at starlyinaol (DOT) com > Rose > Owner/ Moderator Hugs N Pain > God Bless our Troops > Please Pray for them Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 15, 2009 Report Share Posted March 15, 2009 My tuxedo cat is doing her soft crying right now. The kind of cry that makes you look up and ask... " You ok? " My weirdo cat, Gizmo, is getting funnier. She won't eat the treats I got them and are crazy about. She would, however, eat my grahm crackers. She's the one who likes saltines. I'm still happy about my blood pressure holding steady and good. That mscontin is really helping. Lotacats Express Chronic Pain Awareness http://www.cafepress.com/lotacatspix/5815010 Lotacatsfunpix.com http://www.lotacatsfunpix.com/ Deviantart http://lotacats05.deviantart.com/ > > > > From: Elaine Dowell <emdowelllive (DOT) com> > > > > Subject: RE: Looking for friends in a > world > > of pain > > > > To: hugs-n-pain@ yahoogroups. com > > > > Date: Thursday, February 26, 2009, 4:08 PM > > > > Kim, > > > > I relate in a lot of ways to your post. You sound like > a > > brave person > > > > feeling a little abandoned and overwhelmed. But you > are not > > alone; please > > > > take some comfort in that. People here do understand. > > > > This year marks 20 years of unrelenting headache (from > > damage of brain > > > > surgery) and neck pain. I have lived on massive > dosages of > > heavy narcotics, > > > > and they did help. Then my doctor moved and no other > doc in > > this area will > > > > touch my case. Which led me to the pain clinic. I am > hoping > > for the pump, > > > > but am in the early stages of trial procedures. > > > > There is nothing you can do to make your family > understand; > > my finds me an > > > > embarrassment and a bother. Maybe if you speak with > yours > > frankly and from > > > > the heart you will have better luck. I will pray for > that. > > Support would be > > > > nice. Either way, you have to do what makes your > quality of > > life the best > > > > possible. We all deserve that. Please don't let it > > overwhelm you; answers > > > > are out there and they are here too. This is a great > group. > > > > Keeping you in my thoughts, > > > > elaine > > > > > To: Hugs-N-Pain@ yahoogroups. com > > > > > From: kimshomestyle@ yahoo.com > > > > > Date: Thu, 26 Feb 2009 15:37:13 +0000 > > > > > Subject: Looking for friends in a > world > > of pain > > > > > > > > > > Hi my name is Kim, I have been living with > chronic > > neck pain for two > > > > > and a half years, My last surgery was 7 months > ago, > > The pain is > > > > > unbearable I feel like all I do is try to get > through > > the day! I am > > > > > taking the pain medicine the doctors told me to > take > > but it scares me > > > > > because I have been on it for 2 1/2 years, I have > > tried massage, > > > > > chiropractor & acupuncture nothing seems to > be > > working they don't > > > > > understand why there is so much pain still. I am > > scared my whole life > > > > > has changed so dramatically! I feel bad for my > husband > > and my kids > > > > > they did'nt sign up for this! I used to be > this > > vibrant hard working > > > > > woman now I am a 38 year old woman who can't > even > > ride in the car for > > > > > a long trip never mind working or excersing that > is > > not even remotely > > > > > possible I try not to feel sorry for myself but > > sometimes you just get > > > > > in to one of them moods. I need to talk to people > who > > are going > > > > > through the same things so that I feel I am not > losing > > myself! > > > > > Sometimes I feel like my husband should take the > kids > > and leave so > > > > > that they have some kind of a normal life but > then my > > world would > > > > > really be empty and I would feel even more alone > than > > I already do. > > > > > Any advice would be greatly appreciated thank you > for > > listening. > > > > > > > > > > > > > > > > > > > > ------------ --------- --------- ------ > > > > > > > > > > To read these messages on the Hugs web site go > to: > > > > > http://groups. yahoo.com/ group/Hugs- N-Pain > > > > > you can contact me privately at starlyinaol (DOT) com > > > > > Rose > > > > > Owner/ Moderator Hugs N Pain > > > > > God Bless our Troops > > > > > Please Pray for them Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 15, 2009 Report Share Posted March 15, 2009 Hi Les. I get too overwelmed to write sometimes - that's why this is so late. I had one pain doc who wouldn't treat me once he ran out of expensive procedures. Then I switched to a different pain doc who insisted on repeating those same procedures. When it made my pain much worse, he told me to take some ibuprofen! I called up the administrators of the facility he worked out of, and told them what he said. They were very kind and switched me to the pain doc I have now. There has to be someone out there that will listen to you. Just be persistant. Welcome and write me anytime. It might take me awhile to write back, but be patient. Alanna Sent from my Verizon Wireless BlackBerry Re: Looking for friends in a world of pain Hi, my name is Les , I just joined your group, and I'm looking for members who are being treated the way I'm being treated by Dr's ,(to find out if there's anything we can do about this ) and it looks like I've entered such a discussion right here ? Recently, Az. passed a law where everyone who is prescribed narcotics are in a data base that all Dr's and pharmacists can look at . Now the Dr's are using this to black-list and shun everyone on drugs that are chronic pain sufferers ,and are treating us like we're drug addicts ! I left my PCP recently because she lashed out at me and told me I don't need my opiates , that they don't help my PN. I told her they do help my PN, and she repeated " opiates don't help PN ! " I went to a new Dr , and she was even worse !She told me to get rid of my drugs, and I told her if she has something that will stop my pain, I will ,and all she could tell me was to increase my Celexa , and keep looking ! She also told me I was going to die soon because my lipids are so high that my triple bypass will fail , and that I was so obese I should have surgery . She proceeded to insult me with one insult after another , and even put down my pain Dr (thankfully I have this man to control my pain )by saying those Dr's just wanted us to be addicts ..This is the quality of Dr's you get out this way ...I also have some in my family who don't understand my need for drugs, although my immediate family does understand . My BIL and his physician fiancée both look at me as if I were a druggie , too . Sorry about the long introduction , but I've been venting for the last few days, this recent Dr has me so upset , and I know that no matter what Dr I go too,it will be the same,they're all hysterical about anyone on opiates . Les thecardiacclub chronicpainsupportclub4women Looking for friends in a world of pain > > Hi my name is Kim, I have been living with chronic neck pain for two > and a half years, My last surgery was 7 months ago, The pain is > unbearable I feel like all I do is try to get through the day! I am > taking the pain medicine the doctors told me to take but it scares me > because I have been on it for 2 1/2 years, I have tried massage, > chiropractor & acupuncture nothing seems to be working they don't > understand why there is so much pain still. I am scared my whole life > has changed so dramatically! I feel bad for my husband and my kids > they did'nt sign up for this! I used to be this vibrant hard working > woman now I am a 38 year old woman who can't even ride in the car for > a long trip never mind working or excersing that is not even remotely > possible I try not to feel sorry for myself but sometimes you just get > in to one of them moods. I need to talk to people who are going > through the same things so that I feel I am not losing myself! > Sometimes I feel like my husband should take the kids and leave so > that they have some kind of a normal life but then my world would > really be empty and I would feel even more alone than I already do. > Any advice would be greatly appreciated thank you for listening. > > > > ------------------------------------ > > To read these messages on the Hugs web site go to: > http://groups.yahoo.com/group/Hugs-N-Pain > you can contact me privately at starlyin@... > Rose > Owner/ Moderator Hugs N Pain > God Bless our Troops > Please Pray for them Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 15, 2009 Report Share Posted March 15, 2009 Hi,Alanna , Good to meet you ! I'm sorry you had so much trouble trying to find a pain Dr !I shouldn't be complaining, because I found one right off, and he makes sure I have enough of the right meds to control the pain . My complaint is that AZ has a drug data base to control the drug addicts that go from one Dr to the next, which is a good idea ;the problem is that there are some Dr's who are abusing the data base by blacklisting those that are chronic pain sufferers,and placing them in the same category as drug abusers .I talked to my pain Dr and he said that there is a stigma against even the legitimate people . I've fired 2 Drs now for persecuting me and telling me to get off my drugs, making me feel shamed and like I'm the lowest form of humanity . The most recent Dr was even harassing me, accusing me " You're afraid someone is going to take your drugs away, aren't you !!! And told me to get off them-I told her I would if she had something to take my pain away , and that the opiates were my last resort . She told me " to keep looking . " She also proceeded to state that the pain Dr's just want people hooked on drugs !! The cold and compassionless way people like myself are being treated is a travesty ! I'm still shaken from that encounter, she was raising her voice so loud at me that my husband heard her out in the waiting room . Les thecardiacclub chronicpainsupportclub4women Looking for friends in a world of pain > > Hi my name is Kim, I have been living with chronic neck pain for two > and a half years, My last surgery was 7 months ago, The pain is > unbearable I feel like all I do is try to get through the day! I am > taking the pain medicine the doctors told me to take but it scares me > because I have been on it for 2 1/2 years, I have tried massage, > chiropractor & acupuncture nothing seems to be working they don't > understand why there is so much pain still. I am scared my whole life > has changed so dramatically! I feel bad for my husband and my kids > they did'nt sign up for this! I used to be this vibrant hard working > woman now I am a 38 year old woman who can't even ride in the car for > a long trip never mind working or excersing that is not even remotely > possible I try not to feel sorry for myself but sometimes you just get > in to one of them moods. I need to talk to people who are going > through the same things so that I feel I am not losing myself! > Sometimes I feel like my husband should take the kids and leave so > that they have some kind of a normal life but then my world would > really be empty and I would feel even more alone than I already do. > Any advice would be greatly appreciated thank you for listening. > > > > ------------------------------------ > > To read these messages on the Hugs web site go to: > http://groups.yahoo.com/group/Hugs-N-Pain > you can contact me privately at starlyin@... > Rose > Owner/ Moderator Hugs N Pain > God Bless our Troops > Please Pray for them Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 15, 2009 Report Share Posted March 15, 2009 Hi, , Yes, I'm so relieved I have my pain Dr ;without him, I would be in unbearable pain 24/7,I don't think I could have survived it .PN is caused by a number of things .In my case, it started right after I went on the statin drugs, though the neuro is convinced it's caused by my diabetes .The only thing that eases the pain is my meds , I take the least amount I can get by with , because of the side effects .Thanks so much for the good wishes !Best of luck to you, too ! : ) Les thecardiacclub chronicpainsupportclub4women Looking for friends in a world of pain > > Hi my name is Kim, I have been living with chronic neck pain for two > and a half years, My last surgery was 7 months ago, The pain is > unbearable I feel like all I do is try to get through the day! I am > taking the pain medicine the doctors told me to take but it scares me > because I have been on it for 2 1/2 years, I have tried massage, > chiropractor & acupuncture nothing seems to be working they don't > understand why there is so much pain still. I am scared my whole life > has changed so dramatically! I feel bad for my husband and my kids > they did'nt sign up for this! I used to be this vibrant hard working > woman now I am a 38 year old woman who can't even ride in the car for > a long trip never mind working or excersing that is not even remotely > possible I try not to feel sorry for myself but sometimes you just get > in to one of them moods. I need to talk to people who are going > through the same things so that I feel I am not losing myself! > Sometimes I feel like my husband should take the kids and leave so > that they have some kind of a normal life but then my world would > really be empty and I would feel even more alone than I already do. > Any advice would be greatly appreciated thank you for listening. > > > > ------------ --------- --------- ------ > > To read these messages on the Hugs web site go to: > http://groups. yahoo.com/ group/Hugs- N-Pain > you can contact me privately at starlyinaol (DOT) com > Rose > Owner/ Moderator Hugs N Pain > God Bless our Troops > Please Pray for them Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2009 Report Share Posted March 16, 2009 Les, Wow! I am so sorry you had to go through that. It sounds horrible. If I were you I would contact your senator or representative to put some kind of controls on that database. I live in Wisconsin, so we don't have anything like that. The concept sounds OK, but I could see how checking out different doctors to try to get help could really backfire. I doubt if I'd last a week without my pain meds. Yet people wonder why we are so afraid of being without them, when our whole lives revolve around having them. I have 2 little boys to take care of - I can't just check out. Good talking to you. Alanna Sent from my Verizon Wireless BlackBerry Re: Looking for friends in a world of pain Hi,Alanna , Good to meet you ! I'm sorry you had so much trouble trying to find a pain Dr !I shouldn't be complaining, because I found one right off, and he makes sure I have enough of the right meds to control the pain . My complaint is that AZ has a drug data base to control the drug addicts that go from one Dr to the next, which is a good idea ;the problem is that there are some Dr's who are abusing the data base by blacklisting those that are chronic pain sufferers,and placing them in the same category as drug abusers .I talked to my pain Dr and he said that there is a stigma against even the legitimate people . I've fired 2 Drs now for persecuting me and telling me to get off my drugs, making me feel shamed and like I'm the lowest form of humanity . The most recent Dr was even harassing me, accusing me " You're afraid someone is going to take your drugs away, aren't you !!! And told me to get off them-I told her I would if she had something to take my pain away , and that the opiates were my last resort . She told me " to keep looking . " She also proceeded to state that the pain Dr's just want people hooked on drugs !! The cold and compassionless way people like myself are being treated is a travesty ! I'm still shaken from that encounter, she was raising her voice so loud at me that my husband heard her out in the waiting room . Les thecardiacclub chronicpainsupportclub4women Looking for friends in a world of pain > > Hi my name is Kim, I have been living with chronic neck pain for two > and a half years, My last surgery was 7 months ago, The pain is > unbearable I feel like all I do is try to get through the day! I am > taking the pain medicine the doctors told me to take but it scares me > because I have been on it for 2 1/2 years, I have tried massage, > chiropractor & acupuncture nothing seems to be working they don't > understand why there is so much pain still. I am scared my whole life > has changed so dramatically! I feel bad for my husband and my kids > they did'nt sign up for this! I used to be this vibrant hard working > woman now I am a 38 year old woman who can't even ride in the car for > a long trip never mind working or excersing that is not even remotely > possible I try not to feel sorry for myself but sometimes you just get > in to one of them moods. I need to talk to people who are going > through the same things so that I feel I am not losing myself! > Sometimes I feel like my husband should take the kids and leave so > that they have some kind of a normal life but then my world would > really be empty and I would feel even more alone than I already do. > Any advice would be greatly appreciated thank you for listening. > > > > ------------------------------------ > > To read these messages on the Hugs web site go to: > http://groups.yahoo.com/group/Hugs-N-Pain > you can contact me privately at starlyin@... > Rose > Owner/ Moderator Hugs N Pain > God Bless our Troops > Please Pray for them Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2009 Report Share Posted March 16, 2009 I'm glad you're feeling better. I used to have a cat named Gizmo too! I got him from a farm when he was only 5 weeks old and he had these giant ears - just like a gremlin! He was a crazy cat too. My old Golden Retriever used to carry him around by the scruff of his neck and we couldn't open the door without him running outside. He howled so loud when I took him to the vet that people in the office would think they were killing him. It makes me laugh just thinking @ him. Take care. Alanna Sent from my Verizon Wireless BlackBerry Looking for friends in a > world > > of pain > > > > > > > > > > Hi my name is Kim, I have been living with > chronic > > neck pain for two > > > > > and a half years, My last surgery was 7 months > ago, > > The pain is > > > > > unbearable I feel like all I do is try to get > through > > the day! I am > > > > > taking the pain medicine the doctors told me to > take > > but it scares me > > > > > because I have been on it for 2 1/2 years, I have > > tried massage, > > > > > chiropractor & acupuncture nothing seems to > be > > working they don't > > > > > understand why there is so much pain still. I am > > scared my whole life > > > > > has changed so dramatically! I feel bad for my > husband > > and my kids > > > > > they did'nt sign up for this! I used to be > this > > vibrant hard working > > > > > woman now I am a 38 year old woman who can't > even > > ride in the car for > > > > > a long trip never mind working or excersing that > is > > not even remotely > > > > > possible I try not to feel sorry for myself but > > sometimes you just get > > > > > in to one of them moods. I need to talk to people > who > > are going > > > > > through the same things so that I feel I am not > losing > > myself! > > > > > Sometimes I feel like my husband should take the > kids > > and leave so > > > > > that they have some kind of a normal life but > then my > > world would > > > > > really be empty and I would feel even more alone > than > > I already do. > > > > > Any advice would be greatly appreciated thank you > for > > listening. > > > > > > > > > > > > > > > > > > > > ------------ --------- --------- ------ > > > > > > > > > > To read these messages on the Hugs web site go > to: > > > > > http://groups. yahoo.com/ group/Hugs- N-Pain > > > > > you can contact me privately at starlyinaol (DOT) com > > > > > Rose > > > > > Owner/ Moderator Hugs N Pain > > > > > God Bless our Troops > > > > > Please Pray for them Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 17, 2009 Report Share Posted March 17, 2009 Hi,Alanna , I would love to do that , though I don't think I'd get too far, I think they were instrumental is helping get this through . I can't imagine having small kids to care from with chronic pain, I'm so sorry . I hope tomorrow is a good day for you , Les Looking for friends in a world of pain > > Hi my name is Kim, I have been living with chronic neck pain for two > and a half years, My last surgery was 7 months ago, The pain is > unbearable I feel like all I do is try to get through the day! I am > taking the pain medicine the doctors told me to take but it scares me > because I have been on it for 2 1/2 years, I have tried massage, > chiropractor & acupuncture nothing seems to be working they don't > understand why there is so much pain still. I am scared my whole life > has changed so dramatically! I feel bad for my husband and my kids > they did'nt sign up for this! I used to be this vibrant hard working > woman now I am a 38 year old woman who can't even ride in the car for > a long trip never mind working or excersing that is not even remotely > possible I try not to feel sorry for myself but sometimes you just get > in to one of them moods. I need to talk to people who are going > through the same things so that I feel I am not losing myself! > Sometimes I feel like my husband should take the kids and leave so > that they have some kind of a normal life but then my world would > really be empty and I would feel even more alone than I already do. > Any advice would be greatly appreciated thank you for listening. > > > > ------------------------------------ > > To read these messages on the Hugs web site go to: > http://groups.yahoo.com/group/Hugs-N-Pain > you can contact me privately at starlyin@... > Rose > Owner/ Moderator Hugs N Pain > God Bless our Troops > Please Pray for them Quote Link to comment Share on other sites More sharing options...
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