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Re: Looking for friends in a world of pain

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Unfortunately even Dr's are misinformed about chronic pain. Your Primary Care

Dr. has only completed the minimum education requirement to obtain their medical

license. Even neurologists and surgeons have not completed the coursework in

the causes and treatment of pain. I just spoke to a respected

neurologist/surgeon that had me drive 120 miles to his office where he told me

he did not want to do any surgery because of my age (29) and because he felt

there was not a specific cause of my pain even though 5 seperate Dr's have

diagnosed the same problem. Either way after not listening to a word I said he

informed me that the way to treat chronic spinal pain/numbness, tingling etc.

was to keep my weight down, exercise, and to remove myself from opiates and take

Advil instead. I can tell you the exercise is out of the picture since I can

barely walk and have been disabled for over a year. I still have a hard time

believing that I am disabled even when I got SSI disability the first time I

applied for it no questions asked. Either way I am learning that even though a

Dr. might seem as if they know what they are talking about they might not. I

have also learned that Dr's who think they know everything usually know the

least and care the least and are too full of themselves to learn the truth.

Thank you for reading my ramblings I stink as a writer :)

Lesley

> > >

> > > From: Elaine Dowell <emdowell@... <emdowell%40live.com>>

> > > Subject: RE: Looking for friends in a world of pain

> > > To: hugs-n-pain <hugs-n-pain%40yahoogroups.com>

> > > Date: Thursday, February 26, 2009, 4:08 PM

> > >

> > > Kim,

> > >

> > > I relate in a lot of ways to your post. You sound like a brave person

> > > feeling a little abandoned and overwhelmed. But you are not alone;

> > please

> > > take some comfort in that. People here do understand.

> > >

> > > This year marks 20 years of unrelenting headache (from damage of brain

> > > surgery) and neck pain. I have lived on massive dosages of heavy

> > narcotics,

> > > and they did help. Then my doctor moved and no other doc in this area

> > will

> > > touch my case. Which led me to the pain clinic. I am hoping for the

> > pump,

> > > but am in the early stages of trial procedures.

> > >

> > > There is nothing you can do to make your family understand; my finds me

> > an

> > > embarrassment and a bother. Maybe if you speak with yours frankly and

> > from

> > > the heart you will have better luck. I will pray for that. Support would

> > be

> > > nice. Either way, you have to do what makes your quality of life the

> > best

> > > possible. We all deserve that. Please don't let it overwhelm you;

> > answers

> > > are out there and they are here too. This is a great group.

> > >

> > > Keeping you in my thoughts,

> > >

> > > elaine

> > >

> > > > To: Hugs-N-Pain <Hugs-N-Pain%40yahoogroups.com>

> > > > From: kimshomestyle@... <kimshomestyle%40yahoo.com>

> > > > Date: Thu, 26 Feb 2009 15:37:13 +0000

> > > > Subject: Looking for friends in a world of pain

> > > >

> > > > Hi my name is Kim, I have been living with chronic neck pain for two

> > > > and a half years, My last surgery was 7 months ago, The pain is

> > > > unbearable I feel like all I do is try to get through the day! I am

> > > > taking the pain medicine the doctors told me to take but it scares me

> > > > because I have been on it for 2 1/2 years, I have tried massage,

> > > > chiropractor & acupuncture nothing seems to be working they don't

> > > > understand why there is so much pain still. I am scared my whole life

> > > > has changed so dramatically! I feel bad for my husband and my kids

> > > > they did'nt sign up for this! I used to be this vibrant hard working

> > > > woman now I am a 38 year old woman who can't even ride in the car for

> > > > a long trip never mind working or excersing that is not even remotely

> > > > possible I try not to feel sorry for myself but sometimes you just get

> > > > in to one of them moods. I need to talk to people who are going

> > > > through the same things so that I feel I am not losing myself!

> > > > Sometimes I feel like my husband should take the kids and leave so

> > > > that they have some kind of a normal life but then my world would

> > > > really be empty and I would feel even more alone than I already do.

> > > > Any advice would be greatly appreciated thank you for listening.

> > > >

> > > >

> > > >

> > > > ------------------------------------

> > > >

> > > > To read these messages on the Hugs web site go to:

> > > > http://groups.yahoo.com/group/Hugs-N-Pain

> > > > you can contact me privately at starlyin@... <starlyin%40aol.com>

> > > > Rose

> > > > Owner/ Moderator Hugs N Pain

> > > > God Bless our Troops

> > > > Please Pray for them

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Hi Les,

 

Oh, I am so sorry for the bad experiences you've had with Dr's!! I've had a

couple also that did not understand what it's like to live in my body and that

even though narcotics don't takw away the pain, at least they help for awhile. I

have an awesome Dr rigth now, TG!! I'm glad to hear you have a PM Dr that treats

you. Can I ask what PN is?

 

I'm in MN and we also have a data base for pharmacists & Dr's to see who is on

narcotics, when they last refilled, where, what med, ect. I know it seems like

the system treats us like drug addicts but it is really a safeguard for all of

us. I have never had any problem getting my meds filled under this system. It

does flag the very few that abuse the narcotics and therefore I think the Dr's

feel a little safer prescribing.

 

Best of luck to you! I hope you can find relief!

Hugs,

 

 

From: Elaine Dowell <emdowelllive (DOT) com>

Subject: RE: Looking for friends in a world of pain

To: hugs-n-pain@ yahoogroups. com

Date: Thursday, February 26, 2009, 4:08 PM

Kim,

I relate in a lot of ways to your post. You sound like a brave person feeling a

little abandoned and overwhelmed. But you are not alone; please take some

comfort in that. People here do understand.

This year marks 20 years of unrelenting headache (from damage of brain surgery)

and neck pain. I have lived on massive dosages of heavy narcotics, and they did

help. Then my doctor moved and no other doc in this area will touch my case.

Which led me to the pain clinic. I am hoping for the pump, but am in the early

stages of trial procedures.

There is nothing you can do to make your family understand; my finds me an

embarrassment and a bother. Maybe if you speak with yours frankly and from the

heart you will have better luck. I will pray for that. Support would be nice.

Either way, you have to do what makes your quality of life the best possible. We

all deserve that. Please don't let it overwhelm you; answers are out there and

they are here too. This is a great group.

Keeping you in my thoughts,

elaine

> To: Hugs-N-Pain@ yahoogroups. com

> From: kimshomestyle@ yahoo.com

> Date: Thu, 26 Feb 2009 15:37:13 +0000

> Subject: Looking for friends in a world of pain

>

> Hi my name is Kim, I have been living with chronic neck pain for two

> and a half years, My last surgery was 7 months ago, The pain is

> unbearable I feel like all I do is try to get through the day! I am

> taking the pain medicine the doctors told me to take but it scares me

> because I have been on it for 2 1/2 years, I have tried massage,

> chiropractor & acupuncture nothing seems to be working they don't

> understand why there is so much pain still. I am scared my whole life

> has changed so dramatically! I feel bad for my husband and my kids

> they did'nt sign up for this! I used to be this vibrant hard working

> woman now I am a 38 year old woman who can't even ride in the car for

> a long trip never mind working or excersing that is not even remotely

> possible I try not to feel sorry for myself but sometimes you just get

> in to one of them moods. I need to talk to people who are going

> through the same things so that I feel I am not losing myself!

> Sometimes I feel like my husband should take the kids and leave so

> that they have some kind of a normal life but then my world would

> really be empty and I would feel even more alone than I already do.

> Any advice would be greatly appreciated thank you for listening.

>

>

>

> ------------ --------- --------- ------

>

> To read these messages on the Hugs web site go to:

> http://groups. yahoo.com/ group/Hugs- N-Pain

> you can contact me privately at starlyinaol (DOT) com

> Rose

> Owner/ Moderator Hugs N Pain

> God Bless our Troops

> Please Pray for them

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Guest guest

You go, Donnie!! lol.

Lotacats

Express Chronic Pain Awareness

http://www.cafepress.com/lotacatspix/5815010

Lotacatsfunpix.com

http://www.lotacatsfunpix.com/

Deviantart

http://lotacats05.deviantart.com/

>

> From: Elaine Dowell <emdowelllive (DOT) com>

>

> Subject: RE: Looking for friends in a world

> of pain

>

> To: hugs-n-pain@ yahoogroups. com

>

> Date: Thursday, February 26, 2009, 4:08 PM

>

> Kim,

>

> I relate in a lot of ways to your post. You sound like a

> brave person

>

> feeling a little abandoned and overwhelmed. But you are not

> alone; please

>

> take some comfort in that. People here do understand.

>

> This year marks 20 years of unrelenting headache (from

> damage of brain

>

> surgery) and neck pain. I have lived on massive dosages of

> heavy narcotics,

>

> and they did help. Then my doctor moved and no other doc in

> this area will

>

> touch my case. Which led me to the pain clinic. I am hoping

> for the pump,

>

> but am in the early stages of trial procedures.

>

> There is nothing you can do to make your family understand;

> my finds me an

>

> embarrassment and a bother. Maybe if you speak with yours

> frankly and from

>

> the heart you will have better luck. I will pray for that.

> Support would be

>

> nice. Either way, you have to do what makes your quality of

> life the best

>

> possible. We all deserve that. Please don't let it

> overwhelm you; answers

>

> are out there and they are here too. This is a great group.

>

> Keeping you in my thoughts,

>

> elaine

>

> > To: Hugs-N-Pain@ yahoogroups. com

>

> > From: kimshomestyle@ yahoo.com

>

> > Date: Thu, 26 Feb 2009 15:37:13 +0000

>

> > Subject: Looking for friends in a world

> of pain

>

> >

>

> > Hi my name is Kim, I have been living with chronic

> neck pain for two

>

> > and a half years, My last surgery was 7 months ago,

> The pain is

>

> > unbearable I feel like all I do is try to get through

> the day! I am

>

> > taking the pain medicine the doctors told me to take

> but it scares me

>

> > because I have been on it for 2 1/2 years, I have

> tried massage,

>

> > chiropractor & acupuncture nothing seems to be

> working they don't

>

> > understand why there is so much pain still. I am

> scared my whole life

>

> > has changed so dramatically! I feel bad for my husband

> and my kids

>

> > they did'nt sign up for this! I used to be this

> vibrant hard working

>

> > woman now I am a 38 year old woman who can't even

> ride in the car for

>

> > a long trip never mind working or excersing that is

> not even remotely

>

> > possible I try not to feel sorry for myself but

> sometimes you just get

>

> > in to one of them moods. I need to talk to people who

> are going

>

> > through the same things so that I feel I am not losing

> myself!

>

> > Sometimes I feel like my husband should take the kids

> and leave so

>

> > that they have some kind of a normal life but then my

> world would

>

> > really be empty and I would feel even more alone than

> I already do.

>

> > Any advice would be greatly appreciated thank you for

> listening.

>

> >

>

> >

>

> >

>

> > ------------ --------- --------- ------

>

> >

>

> > To read these messages on the Hugs web site go to:

>

> > http://groups. yahoo.com/ group/Hugs- N-Pain

>

> > you can contact me privately at starlyinaol (DOT) com

>

> > Rose

>

> > Owner/ Moderator Hugs N Pain

>

> > God Bless our Troops

>

> > Please Pray for them

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Guest guest

Hi,Lesley,

I'm very sorry about your experience with that cold and compassionless excuse

for a neuro . Advil for acute and devastating pain , OMG ! Your description of

Dr's that are full of their ego's was right on target, I've met more than a few

..I'm sorry you drove all that way to be put down so profoundly !I feel so

helpless against a system that is so cold and callous .

Les

thecardiacclub

chronicpainsupportclub4women

Looking for friends in a world of pain

> > > >

> > > > Hi my name is Kim, I have been living with chronic neck pain for two

> > > > and a half years, My last surgery was 7 months ago, The pain is

> > > > unbearable I feel like all I do is try to get through the day! I am

> > > > taking the pain medicine the doctors told me to take but it scares

me

> > > > because I have been on it for 2 1/2 years, I have tried massage,

> > > > chiropractor & acupuncture nothing seems to be working they don't

> > > > understand why there is so much pain still. I am scared my whole

life

> > > > has changed so dramatically! I feel bad for my husband and my kids

> > > > they did'nt sign up for this! I used to be this vibrant hard working

> > > > woman now I am a 38 year old woman who can't even ride in the car

for

> > > > a long trip never mind working or excersing that is not even

remotely

> > > > possible I try not to feel sorry for myself but sometimes you just

get

> > > > in to one of them moods. I need to talk to people who are going

> > > > through the same things so that I feel I am not losing myself!

> > > > Sometimes I feel like my husband should take the kids and leave so

> > > > that they have some kind of a normal life but then my world would

> > > > really be empty and I would feel even more alone than I already do.

> > > > Any advice would be greatly appreciated thank you for listening.

> > > >

> > > >

> > > >

> > > > ------------------------------------

> > > >

> > > > To read these messages on the Hugs web site go to:

> > > > http://groups.yahoo.com/group/Hugs-N-Pain

> > > > you can contact me privately at starlyin@... <starlyin%40aol.com>

> > > > Rose

> > > > Owner/ Moderator Hugs N Pain

> > > > God Bless our Troops

> > > > Please Pray for them

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Share on other sites

Guest guest

hi how is my freand lotacats doing and how is the kittys doing i am laying here

with my retarded cat he hates to be by his self he is a good companion he stays

on the couch as much as me donnieKY

>

> From: Elaine Dowell <emdowelllive (DOT) com>

>

> Subject: RE: Looking for friends in a world

> of pain

>

> To: hugs-n-pain@ yahoogroups. com

>

> Date: Thursday, February 26, 2009, 4:08 PM

>

> Kim,

>

> I relate in a lot of ways to your post. You sound like a

> brave person

>

> feeling a little abandoned and overwhelmed. But you are not

> alone; please

>

> take some comfort in that. People here do understand.

>

> This year marks 20 years of unrelenting headache (from

> damage of brain

>

> surgery) and neck pain. I have lived on massive dosages of

> heavy narcotics,

>

> and they did help. Then my doctor moved and no other doc in

> this area will

>

> touch my case. Which led me to the pain clinic. I am hoping

> for the pump,

>

> but am in the early stages of trial procedures.

>

> There is nothing you can do to make your family understand;

> my finds me an

>

> embarrassment and a bother. Maybe if you speak with yours

> frankly and from

>

> the heart you will have better luck. I will pray for that.

> Support would be

>

> nice. Either way, you have to do what makes your quality of

> life the best

>

> possible. We all deserve that. Please don't let it

> overwhelm you; answers

>

> are out there and they are here too. This is a great group.

>

> Keeping you in my thoughts,

>

> elaine

>

> > To: Hugs-N-Pain@ yahoogroups. com

>

> > From: kimshomestyle@ yahoo.com

>

> > Date: Thu, 26 Feb 2009 15:37:13 +0000

>

> > Subject: Looking for friends in a world

> of pain

>

> >

>

> > Hi my name is Kim, I have been living with chronic

> neck pain for two

>

> > and a half years, My last surgery was 7 months ago,

> The pain is

>

> > unbearable I feel like all I do is try to get through

> the day! I am

>

> > taking the pain medicine the doctors told me to take

> but it scares me

>

> > because I have been on it for 2 1/2 years, I have

> tried massage,

>

> > chiropractor & acupuncture nothing seems to be

> working they don't

>

> > understand why there is so much pain still. I am

> scared my whole life

>

> > has changed so dramatically! I feel bad for my husband

> and my kids

>

> > they did'nt sign up for this! I used to be this

> vibrant hard working

>

> > woman now I am a 38 year old woman who can't even

> ride in the car for

>

> > a long trip never mind working or excersing that is

> not even remotely

>

> > possible I try not to feel sorry for myself but

> sometimes you just get

>

> > in to one of them moods. I need to talk to people who

> are going

>

> > through the same things so that I feel I am not losing

> myself!

>

> > Sometimes I feel like my husband should take the kids

> and leave so

>

> > that they have some kind of a normal life but then my

> world would

>

> > really be empty and I would feel even more alone than

> I already do.

>

> > Any advice would be greatly appreciated thank you for

> listening.

>

> >

>

> >

>

> >

>

> > ------------ --------- --------- ------

>

> >

>

> > To read these messages on the Hugs web site go to:

>

> > http://groups. yahoo.com/ group/Hugs- N-Pain

>

> > you can contact me privately at starlyinaol (DOT) com

>

> > Rose

>

> > Owner/ Moderator Hugs N Pain

>

> > God Bless our Troops

>

> > Please Pray for them

Link to comment
Share on other sites

Guest guest

hi how is my freand lotacats doing and how is the kittys doing i am laying here

with my retarded cat he hates to be by his self he is a good companion he stays

on the couch as much as me donnieKY

>

> From: Elaine Dowell <emdowelllive (DOT) com>

>

> Subject: RE: Looking for friends in a world

> of pain

>

> To: hugs-n-pain@ yahoogroups. com

>

> Date: Thursday, February 26, 2009, 4:08 PM

>

> Kim,

>

> I relate in a lot of ways to your post. You sound like a

> brave person

>

> feeling a little abandoned and overwhelmed. But you are not

> alone; please

>

> take some comfort in that. People here do understand.

>

> This year marks 20 years of unrelenting headache (from

> damage of brain

>

> surgery) and neck pain. I have lived on massive dosages of

> heavy narcotics,

>

> and they did help. Then my doctor moved and no other doc in

> this area will

>

> touch my case. Which led me to the pain clinic. I am hoping

> for the pump,

>

> but am in the early stages of trial procedures.

>

> There is nothing you can do to make your family understand;

> my finds me an

>

> embarrassment and a bother. Maybe if you speak with yours

> frankly and from

>

> the heart you will have better luck. I will pray for that.

> Support would be

>

> nice. Either way, you have to do what makes your quality of

> life the best

>

> possible. We all deserve that. Please don't let it

> overwhelm you; answers

>

> are out there and they are here too. This is a great group.

>

> Keeping you in my thoughts,

>

> elaine

>

> > To: Hugs-N-Pain@ yahoogroups. com

>

> > From: kimshomestyle@ yahoo.com

>

> > Date: Thu, 26 Feb 2009 15:37:13 +0000

>

> > Subject: Looking for friends in a world

> of pain

>

> >

>

> > Hi my name is Kim, I have been living with chronic

> neck pain for two

>

> > and a half years, My last surgery was 7 months ago,

> The pain is

>

> > unbearable I feel like all I do is try to get through

> the day! I am

>

> > taking the pain medicine the doctors told me to take

> but it scares me

>

> > because I have been on it for 2 1/2 years, I have

> tried massage,

>

> > chiropractor & acupuncture nothing seems to be

> working they don't

>

> > understand why there is so much pain still. I am

> scared my whole life

>

> > has changed so dramatically! I feel bad for my husband

> and my kids

>

> > they did'nt sign up for this! I used to be this

> vibrant hard working

>

> > woman now I am a 38 year old woman who can't even

> ride in the car for

>

> > a long trip never mind working or excersing that is

> not even remotely

>

> > possible I try not to feel sorry for myself but

> sometimes you just get

>

> > in to one of them moods. I need to talk to people who

> are going

>

> > through the same things so that I feel I am not losing

> myself!

>

> > Sometimes I feel like my husband should take the kids

> and leave so

>

> > that they have some kind of a normal life but then my

> world would

>

> > really be empty and I would feel even more alone than

> I already do.

>

> > Any advice would be greatly appreciated thank you for

> listening.

>

> >

>

> >

>

> >

>

> > ------------ --------- --------- ------

>

> >

>

> > To read these messages on the Hugs web site go to:

>

> > http://groups. yahoo.com/ group/Hugs- N-Pain

>

> > you can contact me privately at starlyinaol (DOT) com

>

> > Rose

>

> > Owner/ Moderator Hugs N Pain

>

> > God Bless our Troops

>

> > Please Pray for them

Link to comment
Share on other sites

Guest guest

hi how is my freand lotacats doing and how is the kittys doing i am laying here

with my retarded cat he hates to be by his self he is a good companion he stays

on the couch as much as me donnieKY

>

> From: Elaine Dowell <emdowelllive (DOT) com>

>

> Subject: RE: Looking for friends in a world

> of pain

>

> To: hugs-n-pain@ yahoogroups. com

>

> Date: Thursday, February 26, 2009, 4:08 PM

>

> Kim,

>

> I relate in a lot of ways to your post. You sound like a

> brave person

>

> feeling a little abandoned and overwhelmed. But you are not

> alone; please

>

> take some comfort in that. People here do understand.

>

> This year marks 20 years of unrelenting headache (from

> damage of brain

>

> surgery) and neck pain. I have lived on massive dosages of

> heavy narcotics,

>

> and they did help. Then my doctor moved and no other doc in

> this area will

>

> touch my case. Which led me to the pain clinic. I am hoping

> for the pump,

>

> but am in the early stages of trial procedures.

>

> There is nothing you can do to make your family understand;

> my finds me an

>

> embarrassment and a bother. Maybe if you speak with yours

> frankly and from

>

> the heart you will have better luck. I will pray for that.

> Support would be

>

> nice. Either way, you have to do what makes your quality of

> life the best

>

> possible. We all deserve that. Please don't let it

> overwhelm you; answers

>

> are out there and they are here too. This is a great group.

>

> Keeping you in my thoughts,

>

> elaine

>

> > To: Hugs-N-Pain@ yahoogroups. com

>

> > From: kimshomestyle@ yahoo.com

>

> > Date: Thu, 26 Feb 2009 15:37:13 +0000

>

> > Subject: Looking for friends in a world

> of pain

>

> >

>

> > Hi my name is Kim, I have been living with chronic

> neck pain for two

>

> > and a half years, My last surgery was 7 months ago,

> The pain is

>

> > unbearable I feel like all I do is try to get through

> the day! I am

>

> > taking the pain medicine the doctors told me to take

> but it scares me

>

> > because I have been on it for 2 1/2 years, I have

> tried massage,

>

> > chiropractor & acupuncture nothing seems to be

>%

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Share on other sites

Guest guest

hi how is my freand lotacats doing and how is the kittys doing i am laying here

with my retarded cat he hates to be by his self he is a good companion he stays

on the couch as much as me donnieKY

>

> From: Elaine Dowell <emdowelllive (DOT) com>

>

> Subject: RE: Looking for friends in a world

> of pain

>

> To: hugs-n-pain@ yahoogroups. com

>

> Date: Thursday, February 26, 2009, 4:08 PM

>

> Kim,

>

> I relate in a lot of ways to your post. You sound like a

> brave person

>

> feeling a little abandoned and overwhelmed. But you are not

> alone; please

>

> take some comfort in that. People here do understand.

>

> This year marks 20 years of unrelenting headache (from

> damage of brain

>

> surgery) and neck pain. I have lived on massive dosages of

> heavy narcotics,

>

> and they did help. Then my doctor moved and no other doc in

> this area will

>

> touch my case. Which led me to the pain clinic. I am hoping

> for the pump,

>

> but am in the early stages of trial procedures.

>

> There is nothing you can do to make your family understand;

> my finds me an

>

> embarrassment and a bother. Maybe if you speak with yours

> frankly and from

>

> the heart you will have better luck. I will pray for that.

> Support would be

>

> nice. Either way, you have to do what makes your quality of

> life the best

>

> possible. We all deserve that. Please don't let it

> overwhelm you; answers

>

> are out there and they are here too. This is a great group.

>

> Keeping you in my thoughts,

>

> elaine

>

> > To: Hugs-N-Pain@ yahoogroups. com

>

> > From: kimshomestyle@ yahoo.com

>

> > Date: Thu, 26 Feb 2009 15:37:13 +0000

>

> > Subject: Looking for friends in a world

> of pain

>

> >

>

> > Hi my name is Kim, I have been living with chronic

> neck pain for two

>

> > and a half years, My last surgery was 7 months ago,

> The pain is

>

> > unbearable I feel like all I do is try to get through

> the day! I am

>

> > taking the pain medicine the doctors told me to take

> but it scares me

>

> > because I have been on it for 2 1/2 years, I have

> tried massage,

>

> > chiropractor & acupuncture nothing seems to be

> working they don't

>

> > understand why there is so much pain still. I am

> scared my whole life

>

> > has changed so dramatically! I feel bad for my husband

> and my kids

>

> > they did'nt sign up for this! I used to be this

> vibrant hard working

>

> > woman now I am a 38 year old woman who can't even

> ride in the car for

>

> > a long trip never mind working or excersing that is

> not even remotely

>

> > possible I try not to feel sorry for myself but

> sometimes you just get

>

> > in to one of them moods. I need to talk to people who

> are going

>

> > through the same things so that I feel I am not losing

> myself!

>

> > Sometimes I feel like my husband should take the kids

> and leave so

>

> > that they have some kind of a normal life but then my

> world would

>

> > really be empty and I would feel even more alone than

> I already do.

>

> > Any advice would be greatly appreciated thank you for

> listening.

>

> >

>

> >

>

> >

>

> > ------------ --------- --------- ------

>

> >

>

> > To read these messages on the Hugs web site go to:

>

> > http://groups. yahoo.com/ group/Hugs- N-Pain

>

> > you can contact me privately at starlyinaol (DOT) com

>

> > Rose

>

> > Owner/ Moderator Hugs N Pain

>

> > God Bless our Troops

>

> > Please Pray for them

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Share on other sites

Guest guest

hi les my name is donnieKY i am a painer most docs thank painers are addics

befor thay look at you thay have got you labeled as a addic and brush you off i

had a doc i wet to see set a cross the room from me i looked at hem and sead you

have done desided all ready there is nothing rong with me or you would be over

here looking at my knee instead of setting overthere he came over looked at my

knee and sead you were rite i figerd you were looking for a script we need to

get you a sergery date and i am sorry he sead there is so menny pill hunters out

there it makes it hard on the people that do have a problem all most everbody

thank us painers are addics it dose not bother me thay thank like that i know i

have a problem and that is all that matters les i hope you have a less pain nite

and you ever want to talk i am here donnieKY

Subject: Re: Looking for friends in a world of pain

To: Hugs-N-Pain

Date: Friday, March 13, 2009, 7:36 AM

Unfortunately even Dr's are misinformed about chronic pain. Your Primary Care

Dr. has only completed the minimum education requirement to obtain their medical

license. Even neurologists and surgeons have not completed the coursework in the

causes and treatment of pain. I just spoke to a respected neurologist/ surgeon

that had me drive 120 miles to his office where he told me he did not want to do

any surgery because of my age (29) and because he felt there was not a specific

cause of my pain even though 5 seperate Dr's have diagnosed the same problem.

Either way after not listening to a word I said he informed me that the way to

treat chronic spinal pain/numbness, tingling etc. was to keep my weight down,

exercise, and to remove myself from opiates and take Advil instead. I can tell

you the exercise is out of the picture since I can barely walk and have been

disabled for over a year. I still have a hard time believing that I am disabled

even when I got

SSI disability the first time I applied for it no questions asked. Either way I

am learning that even though a Dr. might seem as if they know what they are

talking about they might not. I have also learned that Dr's who think they know

everything usually know the least and care the least and are too full of

themselves to learn the truth. Thank you for reading my ramblings I stink as a

writer :)

Lesley

> >

> > > Hi, my name is Les ,

> > > I just joined your group, and I'm looking for members who are being

> > treated

> > > the way I'm being treated by Dr's ,(to find out if there's anything we

> > can

> > > do about this ) and it looks like I've entered such a discussion right

> > here

> > > ? Recently, Az. passed a law where everyone who is prescribed narcotics

> > are

> > > in a data base that all Dr's and pharmacists can look at . Now the Dr's

> > are

> > > using this to black-list and shun everyone on drugs that are chronic

> > pain

> > > sufferers ,and are treating us like we're drug addicts ! I left my PCP

> > > recently because she lashed out at me and told me I don't need my

> > opiates ,

> > > that they don't help my PN. I told her they do help my PN, and she

> > repeated

> > > " opiates don't help PN ! " I went to a new Dr , and she was even worse

> > !She

> > > told me to get rid of my drugs, and I told her if she has something that

> > > will stop my pain, I will ,and all she could tell me was to increase my

> > > Celexa , and keep looking ! She also told me I was going to die soon

> > because

> > > my lipids are so high that my triple bypass will fail , and that I was

> > so

> > > obese I should have surgery . She proceeded to insult me with one insult

> > > after another , and even put down my pain Dr (thankfully I have this man

> > to

> > > control my pain )by saying those Dr's just wanted us to be addicts .This

> > is

> > > the quality of Dr's you get out this way ...I also have some in my

> > family

> > > who don't understand my need for drugs, although my immediate family

> > does

> > > understand . My BIL and his physician fiancée both look at me as if I

> > were a

> > > druggie , too .

> > > Sorry about the long introduction , but I've been venting for the last

> > few

> > > days, this recent Dr has me so upset , and I know that no matter what Dr

> > I

> > > go too,it will be the same,they're all hysterical about anyone on

> > opiates .

> > > Les

> > >

> > > thecardiacclub@ yahoogroup

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Guest guest

hi les my name is donnieKY i am a painer most docs thank painers are addics

befor thay look at you thay have got you labeled as a addic and brush you off i

had a doc i wet to see set a cross the room from me i looked at hem and sead you

have done desided all ready there is nothing rong with me or you would be over

here looking at my knee instead of setting overthere he came over looked at my

knee and sead you were rite i figerd you were looking for a script we need to

get you a sergery date and i am sorry he sead there is so menny pill hunters out

there it makes it hard on the people that do have a problem all most everbody

thank us painers are addics it dose not bother me thay thank like that i know i

have a problem and that is all that matters les i hope you have a less pain nite

and you ever want to talk i am here donnieKY

Subject: Re: Looking for friends in a world of pain

To: Hugs-N-Pain

Date: Friday, March 13, 2009, 7:36 AM

Unfortunately even Dr's are misinformed about chronic pain. Your Primary Care

Dr. has only completed the minimum education requirement to obtain their medical

license. Even neurologists and surgeons have not completed the coursework in the

causes and treatment of pain. I just spoke to a respected neurologist/ surgeon

that had me drive 120 miles to his office where he told me he did not want to do

any surgery because of my age (29) and because he felt there was not a specific

cause of my pain even though 5 seperate Dr's have diagnosed the same problem.

Either way after not listening to a word I said he informed me that the way to

treat chronic spinal pain/numbness, tingling etc. was to keep my weight down,

exercise, and to remove myself from opiates and take Advil instead. I can tell

you the exercise is out of the picture since I can barely walk and have been

disabled for over a year. I still have a hard time believing that I am disabled

even when I got

SSI disability the first time I applied for it no questions asked. Either way I

am learning that even though a Dr. might seem as if they know what they are

talking about they might not. I have also learned that Dr's who think they know

everything usually know the least and care the least and are too full of

themselves to learn the truth. Thank you for reading my ramblings I stink as a

writer :)

Lesley

> >

> > > Hi, my name is Les ,

> > > I just joined your group, and I'm looking for members who are being

> > treated

> > > the way I'm being treated by Dr's ,(to find out if there's anything we

> > can

> > > do about this ) and it looks like I've entered such a discussion right

> > here

> > > ? Recently, Az. passed a law where everyone who is prescribed narcotics

> > are

> > > in a data base that all Dr's and pharmacists can look at . Now the Dr's

> > are

> > > using this to black-list and shun everyone on drugs that are chronic

> > pain

> > > sufferers ,and are treating us like we're drug addicts ! I left my PCP

> > > recently because she lashed out at me and told me I don't need my

> > opiates ,

> > > that they don't help my PN. I told her they do help my PN, and she

> > repeated

> > > " opiates don't help PN ! " I went to a new Dr , and she was even worse

> > !She

> > > told me to get rid of my drugs, and I told her if she has something that

> > > will stop my pain, I will ,and all she could tell me was to increase my

> > > Celexa , and keep looking ! She also told me I was going to die soon

> > because

> > > my lipids are so high that my triple bypass will fail , and that I was

> > so

> > > obese I should have surgery . She proceeded to insult me with one insult

> > > after another , and even put down my pain Dr (thankfully I have this man

> > to

> > > control my pain )by saying those Dr's just wanted us to be addicts .This

> > is

> > > the quality of Dr's you get out this way ...I also have some in my

> > family

> > > who don't understand my need for drugs, although my immediate family

> > does

> > > understand . My BIL and his physician fiancée both look at me as if I

> > were a

> > > druggie , too .

> > > Sorry about the long introduction , but I've been venting for the last

> > few

> > > days, this recent Dr has me so upset , and I know that no matter what Dr

> > I

> > > go too,it will be the same,they're all hysterical about anyone on

> > opiates .

> > > Les

> > >

> > > thecardiacclub@ yahoogroups. com <thecardiacclub% 40yahoogroups. com>

> > > chronicpainsupportc lub4women@ yahoogroups. com

> > <chronicpainsupport club4women% 40yahoogroups. com>

> > >

> > > RE: Looking for friends in a world of pain

> > >

> > > hi elaine the same thing happened to me i lost my doc and i could not

> > find

> > > another doc to touch me i was at a docters apt. i had just paid my copay

> > and

> > > one of the nerses seen i was a dr.fadall knee mess up and thay sead thay

> > > could not see me thay didnot want no lawsuit and give me my copay back

> > and

> > > booted me rite out the door i was lucky enuff to have 3 refills on my

> > pain

> > > meds that gave me time to find a pain doc that was 2 years ago i am

> > still

> > > seeing the same pain doc and as for familely suport i have none thay all

> > > thank i am a drug addic the only suport i get is rite here in this

> > suport

> > > group and another good group i belong to and my wife dose not call me a

> > drug

> > > addic all the time now it%2

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Guest guest

hi les my name is donnieKY i am a painer most docs thank painers are addics

befor thay look at you thay have got you labeled as a addic and brush you off i

had a doc i wet to see set a cross the room from me i looked at hem and sead you

have done desided all ready there is nothing rong with me or you would be over

here looking at my knee instead of setting overthere he came over looked at my

knee and sead you were rite i figerd you were looking for a script we need to

get you a sergery date and i am sorry he sead there is so menny pill hunters out

there it makes it hard on the people that do have a problem all most everbody

thank us painers are addics it dose not bother me thay thank like that i know i

have a problem and that is all that matters les i hope you have a less pain nite

and you ever want to talk i am here donnieKY

Subject: Re: Looking for friends in a world of pain

To: Hugs-N-Pain

Date: Friday, March 13, 2009, 7:36 AM

Unfortunately even Dr's are misinformed about chronic pain. Your Primary Care

Dr. has only completed the minimum education requirement to obtain their medical

license. Even neurologists and surgeons have not completed the coursework in the

causes and treatment of pain. I just spoke to a respected neurologist/ surgeon

that had me drive 120 miles to his office where he told me he did not want to do

any surgery because of my age (29) and because he felt there was not a specific

cause of my pain even though 5 seperate Dr's have diagnosed the same problem.

Either way after not listening to a word I said he informed me that the way to

treat chronic spinal pain/numbness, tingling etc. was to keep my weight down,

exercise, and to remove myself from opiates and take Advil instead. I can tell

you the exercise is

Link to comment
Share on other sites

Guest guest

hi les my name is donnieKY i am a painer most docs thank painers are addics

befor thay look at you thay have got you labeled as a addic and brush you off i

had a doc i wet to see set a cross the room from me i looked at hem and sead you

have done desided all ready there is nothing rong with me or you would be over

here looking at my knee instead of setting overthere he came over looked at my

knee and sead you were rite i figerd you were looking for a script we need to

get you a sergery date and i am sorry he sead there is so menny pill hunters out

there it makes it hard on the people that do have a problem all most everbody

thank us painers are addics it dose not bother me thay thank like that i know i

have a problem and that is all that matters les i hope you have a less pain nite

and you ever want to talk i am here donnieKY

Subject: Re: Looking for friends in a world of pain

To: Hugs-N-Pain

Date: Friday, March 13, 2009, 7:36 AM

Unfortunately even Dr's are misinformed about chronic pain. Your Primary Care

Dr. has only completed the minimum education requirement to obtain their medical

license. Even neurologists and surgeons have not completed the coursework in the

causes and treatment of pain. I just spoke to a respected neurologist/ surgeon

that had me drive 120 miles to his office where he told me he did not want to do

any surgery because of my age (29) and because he felt there was not a specific

cause of my pain even though 5 seperate Dr's have diagnosed the same problem.

Either way after not listening to a word I said he informed me that the way to

treat chronic spinal pain/numbness, tingling etc. was to keep my weight down,

exercise, and to remove myself from opiates and take Advil instead. I can tell

you the exercise is

Link to comment
Share on other sites

Guest guest

hi les my name is donnieKY i am a painer most docs thank painers are addics

befor thay look at you thay have got you labeled as a addic and brush you off i

had a doc i wet to see set a cross the room from me i looked at hem and sead you

have done desided all ready there is nothing rong with me or you would be over

here looking at my knee instead of setting overthere he came over looked at my

knee and sead you were rite i figerd you were looking for a script we need to

get you a sergery date and i am sorry he sead there is so menny pill hunters out

there it makes it hard on the people that do have a problem all most everbody

thank us painers are addics it dose not bother me thay thank like that i know i

have a problem and that is all that matters les i hope you have a less pain nite

and you ever want to talk i am here donnieKY

Subject: Re: Looking for friends in a world of pain

To: Hugs-N-Pain

Date: Friday, March 13, 2009, 7:36 AM

Unfortunately even Dr's are misinformed about chronic pain. Your Primary Care

Dr. has only completed the minimum education requirement to obtain their medical

license. Even neurologists and surgeons have not completed the coursework in the

causes and treatment of pain. I just spoke to a respected neurologist/ surgeon

that had me drive 120 miles to his office where he told me he did not want to do

any surgery because of my age (29) and because he felt there was not a specific

cause of my pain even though 5 seperate Dr's have diagnosed the same problem.

Either way after not listening to a word I said he informed me that the way to

treat chronic spinal pain/numbness, tingling etc. was to keep my weight down,

exercise, and to remove myself from opiates and take Advil instead. I can tell

you the exercise is out of the picture since I can barely walk and have been

disabled for over a year. I still have a hard time believing that I am disabled

even when I got

SSI disability the first time I applied for it no questions asked. Either way I

am learning that even though a Dr. might seem as if they know what they are

talking about they might not. I have also learned that Dr's who think they know

everything usually know the least and care the least and are too full of

themselves to learn the truth. Thank you for reading my ramblings I stink as a

writer :)

Lesley

> > >

> > > From: Elaine Dowell <emdowell@.. . <emdowell%40live. com>>

> > > Subject: RE: Looking for friends in a world of pain

> > > To: hugs-n-pain@ yahoogroups. com <hugs-n-pain% 40yahoogroups. com>

> > > Date: Thursday, February 26, 2009, 4:08 PM

> > >

> > > Kim,

> > >

> > > I relate in a lot of ways to your post. You sound like a brave person

> > > feeling a little abandoned and overwhelmed. But you are not alone;

> > please

> > > take some comfort in that. People here do understand.

> > >

> > > This year marks 20 years of unrelenting headache (from damage of brain

> > > surgery) and neck pain. I have lived on massive dosages of heavy

> > narcotics,

> > > and they did help. Then my doctor moved and no other doc in this area

> > will

> > > touch my case. Which led me to the pain clinic. I am hoping for the

> > pump,

> > > but am in the early stages of trial procedures.

> > >

> > > There is nothing you can do to make your family understand; my finds me

> > an

> > > embarrassment and a bother. Maybe if you speak with yours frankly and

> > from

> > > the heart you will have better luck. I will pray for that. Support would

> > be

> > > nice. Either way, you have to do what makes your quality of life the

> > best

> > > possible. We all deserve that. Please don't let it overwhelm you;

> > answers

> > > are out there and they are here too. This is a great group.

> > >

> > > Keeping you in my thoughts,

> > >

> > > elaine

> > >

> > > > To: Hugs-N-Pain@ yahoogroups. com <Hugs-N-Pain% 40yahoogroups. com>

> > > > From: kimshomestyle@ ... <kimshomestyle% 40yahoo.com>

> > > > Date: Thu, 26 Feb 2009 15:37:13 +0000

> > > > Subject: Looking for friends in a world of pain

> > > >

> > > > Hi my name is Kim, I have been living with chronic neck pain for two

> > > > and a half years, My last surgery was 7 months ago, The pain is

> > > > unbearable I feel like all I do is try to get through the day! I am

> > > > taking the pain medicine the doctors told me to take but it scares me

> > > > because I have been on it for 2 1/2 years, I have tried massage,

> > > > chiropractor & acupuncture nothing seems to be working they don't

> > > > understand why there is so much pain still. I am scared my whole life

> > > > has changed so dramatically! I feel bad for my husband and my kids

> > > > they did'nt sign up for this! I used to be this vibrant hard working

> > > > woman now I am a 38 year old woman who can't even ride in the car for

> > > > a long trip never mind working or excersing that is not even remotely

> > > > possible I try not to feel sorry for myself but sometimes you just get

> > > > in to one of them moods. I need to talk to people who are going

> > > > through the same things so that I feel I am not losing myself!

> > > > Sometimes I feel like my husband should take the kids and leave so

> > > > that they have some kind of a normal life but then my world would

> > > > really be empty and I would feel even more alone than I already do.

> > > > Any advice would be greatly appreciated thank you for listening.

> > > >

> > > >

> > > >

> > > > ------------ --------- --------- ------

> > > >

> > > > To read these messages on the Hugs web site go to:

> > > > http://groups. yahoo.com/ group/Hugs- N-Pain

> > > > you can contact me privately at starlyin@... <starlyin%40aol. com>

> > > > Rose

> > > > Owner/ Moderator Hugs N Pain

> > > > God Bless our Troops

> > > > Please Pray for them

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hi jenny you are rite it is nice to have this group it is the only suport most

of us get donnieKY

From: Greenlaw <kimshomestyle@ yahoo.com>

Subject: Re: Looking for friends in a world of pain

To: Hugs-N-Pain@ yahoogroups. com

Date: Thursday, March 12, 2009, 2:17 AM

Donnie, thanks for reaching out I appreciate it, People don't understand what we

are going through! My family does'nt even listen when I talk any more! I went to

a pain clinic yesterday and had trigger point shots in my neck and

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hi jenny you are rite it is nice to have this group it is the only suport most

of us get donnieKY

From: Elaine Dowell <emdowelllive (DOT) com>

Subject: RE: Looking for friends in a world of pain

To: hugs-n-pain@ yahoogroups. com

Date: Thursday, February 26, 2009, 4:08 PM

Kim,

I relate in a lot of ways to your post. You sound like a brave person

feeling a little abandoned and overwhelmed. But you are not alone; please

take some comfort in that. People here do understand.

This year marks 20 years of unrelenting headache (from damage of brain

surgery) and neck pain. I have lived on massive dosages of heavy narcotics,

and they did help. Then my doctor moved and no other doc in this area will

touch my case. Which led me to the pain clinic. I am hoping for the pump,

but am in the early stages of trial procedures.

There is nothing you can do to make your family understand; my finds me an

embarrassment and a bother. Maybe if you speak with yours frankly and from

the heart you will have better luck. I will pray for that. Support would be

nice. Either way, you have to do what makes your quality of life the best

possible. We all deserve that. Please don't let it overwhelm you; answers

are out there and they are here too. This is a great group.

Keeping you in my thoughts,

elaine

> To: Hugs-N-Pain@ yahoogroups. com

> From: kimshomestyle@ yahoo.com

> Date: Thu, 26 Feb 2009 15:37:13 +0000

> Subject: Looking for friends in a world of pain

>

> Hi my name is Kim, I have been living with chronic neck pain for two

> and a half years, My last surgery was 7 months ago, The pain is

> unbearable I feel like all I do is try to get through the day! I am

> taking the pain medicine the doctors told me to take but it scares me

> because I have been on it for 2 1/2 years, I have tried massage,

> chiropractor & acupuncture nothing seems to be working they don't

> understand why there is so much pain still. I am scared my whole life

> has changed so dramatically! I feel bad for my husband and my kids

> they did'nt sign up for this! I used to be this vibrant hard working

> woman now I am a 38 year old woman who can't even ride in the car for

> a long trip never mind working or excersing that is not even remotely

> possible I try not to feel sorry for myself but sometimes you just get

> in to one of them moods. I need to talk to people who are going

> through the same things so that I feel I am not losing myself!

> Sometimes I feel like my husband should take the kids and leave so

> that they have some kind of a normal life but then my world would

> really be empty and I would feel even more alone than I already do.

> Any advice would be greatly appreciated thank you for listening.

>

>

>

> ------------ --------- --------- ------

>

> To read these messages on the Hugs web site go to:

> http://groups. yahoo.com/ group/Hugs- N-Pain

> you can contact me privately at starlyinaol (DOT) com

> Rose

> Owner/ Moderator Hugs N Pain

> God Bless our Troops

> Please Pray for them

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Share on other sites

Guest guest

Hi,Donnie,

Great to meet you ! I see you've been shunned and labeled too, and know all too

well how I'm feeling ! Judged and convicted without a jury .....I'm so glad that

Dr apologized to you ! I didn't get an apology, and in fact, I was treated even

more unkindly for trying to speak up for myself .

Thanks so much for the very kind welcome !

Les

thecardiacclub

chronicpainsupportclub4women

Looking for friends in a world of pain

> > > >

> > > > Hi my name is Kim, I have been living with chronic neck pain for two

> > > > and a half years, My last surgery was 7 months ago, The pain is

> > > > unbearable I feel like all I do is try to get through the day! I am

> > > > taking the pain medicine the doctors told me to take but it scares me

> > > > because I have been on it for 2 1/2 years, I have tried massage,

> > > > chiropractor & acupuncture nothing seems to be working they don't

> > > > understand why there is so much pain still. I am scared my whole life

> > > > has changed so dramatically! I feel bad for my husband and my kids

> > > > they did'nt sign up for this! I used to be this vibrant hard working

> > > > woman now I am a 38 year old woman who can't even ride in the car for

> > > > a long trip never mind working or excersing that is not even remotely

> > > > possible I try not to feel sorry for myself but sometimes you just get

> > > > in to one of them moods. I need to talk to people who are going

> > > > through the same things so that I feel I am not losing myself!

> > > > Sometimes I feel like my husband should take the kids and leave so

> > > > that they have some kind of a normal life but then my world would

> > > > really be empty and I would feel even more alone than I already do.

> > > > Any advice would be greatly appreciated thank you for listening.

> > > >

> > > >

> > > >

> > > > ------------ --------- --------- ------

> > > >

> > > > To read these messages on the Hugs web site go to:

> > > > http://groups. yahoo.com/ group/Hugs- N-Pain

> > > > you can contact me privately at starlyin@... <starlyin%40aol. com>

> > > > Rose

> > > > Owner/ Moderator Hugs N Pain

> > > > God Bless our Troops

> > > > Please Pray for them

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That was quite a story, and amazing ! I'm glad you have a good Dr now, anyway

!The most compassionate Dr I had was the cardiac surgeon who did my triple

bypass in November 2007 . They said I had less than 2 days to live and had

gotten to Er just in time . He was very caring and answered all my questions . I

found out he's diabetic, as I am . Too bad he can't be my regular Dr !

Les

thecardiacclub

chronicpainsupportclub4women

Looking for friends in a world of pain

> > > > >

> > > > > Hi my name is Kim, I have been living with chronic neck pain for

two

> > > > > and a half years, My last surgery was 7 months ago, The pain is

> > > > > unbearable I feel like all I do is try to get through the day! I

am

> > > > > taking the pain medicine the doctors told me to take but it

scares me

> > > > > because I have been on it for 2 1/2 years, I have tried massage,

> > > > > chiropractor & acupuncture nothing seems to be working they

don't

> > > > > understand why there is so much pain still. I am scared my whole

life

> > > > > has changed so dramatically! I feel bad for my husband and my

kids

> > > > > they did'nt sign up for this! I used to be this vibrant hard

working

> > > > > woman now I am a 38 year old woman who can't even ride in the

car for

> > > > > a long trip never mind working or excersing that is not even

remotely

> > > > > possible I try not to feel sorry for myself but sometimes you

just get

> > > > > in to one of them moods. I need to talk to people who are going

> > > > > through the same things so that I feel I am not losing myself!

> > > > > Sometimes I feel like my husband should take the kids and leave

so

> > > > > that they have some kind of a normal life but then my world

would

> > > > > really be empty and I would feel even more alone than I already

do.

> > > > > Any advice would be greatly appreciated thank you for listening.

> > > > >

> > > > >

> > > > >

> > > > > ------------------------------------

> > > > >

> > > > > To read these messages on the Hugs web site go to:

> > > > > http://groups.yahoo.com/group/Hugs-N-Pain

> > > > > you can contact me privately at starlyin@ <starlyin%40aol.com>

> > > > > Rose

> > > > > Owner/ Moderator Hugs N Pain

> > > > > God Bless our Troops

> > > > > Please Pray for them

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Guest guest

Hi Les,

 

Yes I'm lucky to have the Dr I do and it sounds like your pain Dr is at least on

your side. PN does sound very painful! What cause that? Can anything be done to

ease the pain? Best of luck to you & take care!

 

 

From: Elaine Dowell <emdowelllive (DOT) com>

Subject: RE: Looking for friends in a world of pain

To: hugs-n-pain@ yahoogroups. com

Date: Thursday, February 26, 2009, 4:08 PM

Kim,

I relate in a lot of ways to your post. You sound like a brave person feeling a

little abandoned and overwhelmed. But you are not alone; please take some

comfort in that. People here do understand.

This year marks 20 years of unrelenting headache (from damage of brain surgery)

and neck pain. I have lived on massive dosages of heavy narcotics, and they did

help. Then my doctor moved and no other doc in this area will touch my case.

Which led me to the pain clinic. I am hoping for the pump, but am in the early

stages of trial procedures.

There is nothing you can do to make your family understand; my finds me an

embarrassment and a bother. Maybe if you speak with yours frankly and from the

heart you will have better luck. I will pray for that. Support would be nice.

Either way, you have to do what makes your quality of life the best possible. We

all deserve that. Please don't let it overwhelm you; answers are out there and

they are here too. This is a great group.

Keeping you in my thoughts,

elaine

> To: Hugs-N-Pain@ yahoogroups. com

> From: kimshomestyle@ yahoo.com

> Date: Thu, 26 Feb 2009 15:37:13 +0000

> Subject: Looking for friends in a world of pain

>

> Hi my name is Kim, I have been living with chronic neck pain for two

> and a half years, My last surgery was 7 months ago, The pain is

> unbearable I feel like all I do is try to get through the day! I am

> taking the pain medicine the doctors told me to take but it scares me

> because I have been on it for 2 1/2 years, I have tried massage,

> chiropractor & acupuncture nothing seems to be working they don't

> understand why there is so much pain still. I am scared my whole life

> has changed so dramatically! I feel bad for my husband and my kids

> they did'nt sign up for this! I used to be this vibrant hard working

> woman now I am a 38 year old woman who can't even ride in the car for

> a long trip never mind working or excersing that is not even remotely

> possible I try not to feel sorry for myself but sometimes you just get

> in to one of them moods. I need to talk to people who are going

> through the same things so that I feel I am not losing myself!

> Sometimes I feel like my husband should take the kids and leave so

> that they have some kind of a normal life but then my world would

> really be empty and I would feel even more alone than I already do.

> Any advice would be greatly appreciated thank you for listening.

>

>

>

> ------------ --------- --------- ------

>

> To read these messages on the Hugs web site go to:

> http://groups. yahoo.com/ group/Hugs- N-Pain

> you can contact me privately at starlyinaol (DOT) com

> Rose

> Owner/ Moderator Hugs N Pain

> God Bless our Troops

> Please Pray for them

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Share on other sites

Guest guest

My tuxedo cat is doing her soft crying right now. The kind of cry that makes

you look up and ask... " You ok? " My weirdo cat, Gizmo, is getting funnier. She

won't eat the treats I got them and are crazy about. She would, however, eat my

grahm crackers. She's the one who likes saltines.

I'm still happy about my blood pressure holding steady and good. That mscontin

is really helping.

Lotacats

Express Chronic Pain Awareness

http://www.cafepress.com/lotacatspix/5815010

Lotacatsfunpix.com

http://www.lotacatsfunpix.com/

Deviantart

http://lotacats05.deviantart.com/

> >

> > From: Elaine Dowell <emdowelllive (DOT) com>

> >

> > Subject: RE: Looking for friends in a

> world

> > of pain

> >

> > To: hugs-n-pain@ yahoogroups. com

> >

> > Date: Thursday, February 26, 2009, 4:08 PM

> >

> > Kim,

> >

> > I relate in a lot of ways to your post. You sound like

> a

> > brave person

> >

> > feeling a little abandoned and overwhelmed. But you

> are not

> > alone; please

> >

> > take some comfort in that. People here do understand.

> >

> > This year marks 20 years of unrelenting headache (from

> > damage of brain

> >

> > surgery) and neck pain. I have lived on massive

> dosages of

> > heavy narcotics,

> >

> > and they did help. Then my doctor moved and no other

> doc in

> > this area will

> >

> > touch my case. Which led me to the pain clinic. I am

> hoping

> > for the pump,

> >

> > but am in the early stages of trial procedures.

> >

> > There is nothing you can do to make your family

> understand;

> > my finds me an

> >

> > embarrassment and a bother. Maybe if you speak with

> yours

> > frankly and from

> >

> > the heart you will have better luck. I will pray for

> that.

> > Support would be

> >

> > nice. Either way, you have to do what makes your

> quality of

> > life the best

> >

> > possible. We all deserve that. Please don't let it

> > overwhelm you; answers

> >

> > are out there and they are here too. This is a great

> group.

> >

> > Keeping you in my thoughts,

> >

> > elaine

> >

> > > To: Hugs-N-Pain@ yahoogroups. com

> >

> > > From: kimshomestyle@ yahoo.com

> >

> > > Date: Thu, 26 Feb 2009 15:37:13 +0000

> >

> > > Subject: Looking for friends in a

> world

> > of pain

> >

> > >

> >

> > > Hi my name is Kim, I have been living with

> chronic

> > neck pain for two

> >

> > > and a half years, My last surgery was 7 months

> ago,

> > The pain is

> >

> > > unbearable I feel like all I do is try to get

> through

> > the day! I am

> >

> > > taking the pain medicine the doctors told me to

> take

> > but it scares me

> >

> > > because I have been on it for 2 1/2 years, I have

> > tried massage,

> >

> > > chiropractor & acupuncture nothing seems to

> be

> > working they don't

> >

> > > understand why there is so much pain still. I am

> > scared my whole life

> >

> > > has changed so dramatically! I feel bad for my

> husband

> > and my kids

> >

> > > they did'nt sign up for this! I used to be

> this

> > vibrant hard working

> >

> > > woman now I am a 38 year old woman who can't

> even

> > ride in the car for

> >

> > > a long trip never mind working or excersing that

> is

> > not even remotely

> >

> > > possible I try not to feel sorry for myself but

> > sometimes you just get

> >

> > > in to one of them moods. I need to talk to people

> who

> > are going

> >

> > > through the same things so that I feel I am not

> losing

> > myself!

> >

> > > Sometimes I feel like my husband should take the

> kids

> > and leave so

> >

> > > that they have some kind of a normal life but

> then my

> > world would

> >

> > > really be empty and I would feel even more alone

> than

> > I already do.

> >

> > > Any advice would be greatly appreciated thank you

> for

> > listening.

> >

> > >

> >

> > >

> >

> > >

> >

> > > ------------ --------- --------- ------

> >

> > >

> >

> > > To read these messages on the Hugs web site go

> to:

> >

> > > http://groups. yahoo.com/ group/Hugs- N-Pain

> >

> > > you can contact me privately at starlyinaol (DOT) com

> >

> > > Rose

> >

> > > Owner/ Moderator Hugs N Pain

> >

> > > God Bless our Troops

> >

> > > Please Pray for them

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Guest guest

Hi Les.

I get too overwelmed to write sometimes - that's why this is so late. I had one

pain doc who wouldn't treat me once he ran out of expensive procedures. Then I

switched to a different pain doc who insisted on repeating those same

procedures. When it made my pain much worse, he told me to take some ibuprofen!

I called up the administrators of the facility he worked out of, and told them

what he said. They were very kind and switched me to the pain doc I have now.

There has to be someone out there that will listen to you. Just be persistant.

Welcome and write me anytime. It might take me awhile to write back, but be

patient. :)

Alanna

Sent from my Verizon Wireless BlackBerry

Re: Looking for friends in a world of pain

Hi, my name is Les ,

I just joined your group, and I'm looking for members who are being treated the

way I'm being treated by Dr's ,(to find out if there's anything we can do about

this ) and it looks like I've entered such a discussion right here ? Recently,

Az. passed a law where everyone who is prescribed narcotics are in a data base

that all Dr's and pharmacists can look at . Now the Dr's are using this to

black-list and shun everyone on drugs that are chronic pain sufferers ,and are

treating us like we're drug addicts ! I left my PCP recently because she lashed

out at me and told me I don't need my opiates , that they don't help my PN. I

told her they do help my PN, and she repeated " opiates don't help PN ! " I went

to a new Dr , and she was even worse !She told me to get rid of my drugs, and I

told her if she has something that will stop my pain, I will ,and all she could

tell me was to increase my Celexa , and keep looking ! She also told me I was

going to die soon because my lipids are so high that my triple bypass will fail

, and that I was so obese I should have surgery . She proceeded to insult me

with one insult after another , and even put down my pain Dr (thankfully I have

this man to control my pain )by saying those Dr's just wanted us to be addicts

..This is the quality of Dr's you get out this way ...I also have some in my

family who don't understand my need for drugs, although my immediate family does

understand . My BIL and his physician fiancée both look at me as if I were a

druggie , too .

Sorry about the long introduction , but I've been venting for the last few days,

this recent Dr has me so upset , and I know that no matter what Dr I go too,it

will be the same,they're all hysterical about anyone on opiates .

Les

thecardiacclub

chronicpainsupportclub4women

Looking for friends in a world of pain

>

> Hi my name is Kim, I have been living with chronic neck pain for two

> and a half years, My last surgery was 7 months ago, The pain is

> unbearable I feel like all I do is try to get through the day! I am

> taking the pain medicine the doctors told me to take but it scares me

> because I have been on it for 2 1/2 years, I have tried massage,

> chiropractor & acupuncture nothing seems to be working they don't

> understand why there is so much pain still. I am scared my whole life

> has changed so dramatically! I feel bad for my husband and my kids

> they did'nt sign up for this! I used to be this vibrant hard working

> woman now I am a 38 year old woman who can't even ride in the car for

> a long trip never mind working or excersing that is not even remotely

> possible I try not to feel sorry for myself but sometimes you just get

> in to one of them moods. I need to talk to people who are going

> through the same things so that I feel I am not losing myself!

> Sometimes I feel like my husband should take the kids and leave so

> that they have some kind of a normal life but then my world would

> really be empty and I would feel even more alone than I already do.

> Any advice would be greatly appreciated thank you for listening.

>

>

>

> ------------------------------------

>

> To read these messages on the Hugs web site go to:

> http://groups.yahoo.com/group/Hugs-N-Pain

> you can contact me privately at starlyin@...

> Rose

> Owner/ Moderator Hugs N Pain

> God Bless our Troops

> Please Pray for them

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Share on other sites

Guest guest

Hi,Alanna ,

Good to meet you ! I'm sorry you had so much trouble trying to find a pain Dr !I

shouldn't be complaining, because I found one right off, and he makes sure I

have enough of the right meds to control the pain . My complaint is that AZ has

a drug data base to control the drug addicts that go from one Dr to the next,

which is a good idea ;the problem is that there are some Dr's who are abusing

the data base by blacklisting those that are chronic pain sufferers,and placing

them in the same category as drug abusers .I talked to my pain Dr and he said

that there is a stigma against even the legitimate people . I've fired 2 Drs now

for persecuting me and telling me to get off my drugs, making me feel shamed and

like I'm the lowest form of humanity . The most recent Dr was even harassing

me, accusing me " You're afraid someone is going to take your drugs away, aren't

you !!! And told me to get off them-I told her I would if she had something to

take my pain away , and that the opiates were my last resort . She told me " to

keep looking . " She also proceeded to state that the pain Dr's just want people

hooked on drugs !! The cold and compassionless way people like myself are being

treated is a travesty ! I'm still shaken from that encounter, she was raising

her voice so loud at me that my husband heard her out in the waiting room .

Les

thecardiacclub

chronicpainsupportclub4women

Looking for friends in a world of pain

>

> Hi my name is Kim, I have been living with chronic neck pain for two

> and a half years, My last surgery was 7 months ago, The pain is

> unbearable I feel like all I do is try to get through the day! I am

> taking the pain medicine the doctors told me to take but it scares me

> because I have been on it for 2 1/2 years, I have tried massage,

> chiropractor & acupuncture nothing seems to be working they don't

> understand why there is so much pain still. I am scared my whole life

> has changed so dramatically! I feel bad for my husband and my kids

> they did'nt sign up for this! I used to be this vibrant hard working

> woman now I am a 38 year old woman who can't even ride in the car for

> a long trip never mind working or excersing that is not even remotely

> possible I try not to feel sorry for myself but sometimes you just get

> in to one of them moods. I need to talk to people who are going

> through the same things so that I feel I am not losing myself!

> Sometimes I feel like my husband should take the kids and leave so

> that they have some kind of a normal life but then my world would

> really be empty and I would feel even more alone than I already do.

> Any advice would be greatly appreciated thank you for listening.

>

>

>

> ------------------------------------

>

> To read these messages on the Hugs web site go to:

> http://groups.yahoo.com/group/Hugs-N-Pain

> you can contact me privately at starlyin@...

> Rose

> Owner/ Moderator Hugs N Pain

> God Bless our Troops

> Please Pray for them

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Share on other sites

Guest guest

Hi, ,

Yes, I'm so relieved I have my pain Dr ;without him, I would be in unbearable

pain 24/7,I don't think I could have survived it .PN is caused by a number of

things .In my case, it started right after I went on the statin drugs, though

the neuro is convinced it's caused by my diabetes .The only thing that eases the

pain is my meds , I take the least amount I can get by with , because of the

side effects .Thanks so much for the good wishes !Best of luck to you, too ! : )

Les

thecardiacclub

chronicpainsupportclub4women

Looking for friends in a world of pain

>

> Hi my name is Kim, I have been living with chronic neck pain for two

> and a half years, My last surgery was 7 months ago, The pain is

> unbearable I feel like all I do is try to get through the day! I am

> taking the pain medicine the doctors told me to take but it scares me

> because I have been on it for 2 1/2 years, I have tried massage,

> chiropractor & acupuncture nothing seems to be working they don't

> understand why there is so much pain still. I am scared my whole life

> has changed so dramatically! I feel bad for my husband and my kids

> they did'nt sign up for this! I used to be this vibrant hard working

> woman now I am a 38 year old woman who can't even ride in the car for

> a long trip never mind working or excersing that is not even remotely

> possible I try not to feel sorry for myself but sometimes you just get

> in to one of them moods. I need to talk to people who are going

> through the same things so that I feel I am not losing myself!

> Sometimes I feel like my husband should take the kids and leave so

> that they have some kind of a normal life but then my world would

> really be empty and I would feel even more alone than I already do.

> Any advice would be greatly appreciated thank you for listening.

>

>

>

> ------------ --------- --------- ------

>

> To read these messages on the Hugs web site go to:

> http://groups. yahoo.com/ group/Hugs- N-Pain

> you can contact me privately at starlyinaol (DOT) com

> Rose

> Owner/ Moderator Hugs N Pain

> God Bless our Troops

> Please Pray for them

Link to comment
Share on other sites

Guest guest

Les,

Wow! I am so sorry you had to go through that. It sounds horrible. If I were

you I would contact your senator or representative to put some kind of controls

on that database. I live in Wisconsin, so we don't have anything like that.

The concept sounds OK, but I could see how checking out different doctors to try

to get help could really backfire.

I doubt if I'd last a week without my pain meds. Yet people wonder why we are

so afraid of being without them, when our whole lives revolve around having

them. I have 2 little boys to take care of - I can't just check out.

Good talking to you.

Alanna

Sent from my Verizon Wireless BlackBerry

Re: Looking for friends in a world of pain

Hi,Alanna ,

Good to meet you ! I'm sorry you had so much trouble trying to find a pain Dr !I

shouldn't be complaining, because I found one right off, and he makes sure I

have enough of the right meds to control the pain . My complaint is that AZ has

a drug data base to control the drug addicts that go from one Dr to the next,

which is a good idea ;the problem is that there are some Dr's who are abusing

the data base by blacklisting those that are chronic pain sufferers,and placing

them in the same category as drug abusers .I talked to my pain Dr and he said

that there is a stigma against even the legitimate people . I've fired 2 Drs now

for persecuting me and telling me to get off my drugs, making me feel shamed and

like I'm the lowest form of humanity . The most recent Dr was even harassing

me, accusing me " You're afraid someone is going to take your drugs away, aren't

you !!! And told me to get off them-I told her I would if she had something to

take my pain away , and that the opiates were my last resort . She told me " to

keep looking . " She also proceeded to state that the pain Dr's just want people

hooked on drugs !! The cold and compassionless way people like myself are being

treated is a travesty ! I'm still shaken from that encounter, she was raising

her voice so loud at me that my husband heard her out in the waiting room .

Les

thecardiacclub

chronicpainsupportclub4women

Looking for friends in a world of pain

>

> Hi my name is Kim, I have been living with chronic neck pain for two

> and a half years, My last surgery was 7 months ago, The pain is

> unbearable I feel like all I do is try to get through the day! I am

> taking the pain medicine the doctors told me to take but it scares me

> because I have been on it for 2 1/2 years, I have tried massage,

> chiropractor & acupuncture nothing seems to be working they don't

> understand why there is so much pain still. I am scared my whole life

> has changed so dramatically! I feel bad for my husband and my kids

> they did'nt sign up for this! I used to be this vibrant hard working

> woman now I am a 38 year old woman who can't even ride in the car for

> a long trip never mind working or excersing that is not even remotely

> possible I try not to feel sorry for myself but sometimes you just get

> in to one of them moods. I need to talk to people who are going

> through the same things so that I feel I am not losing myself!

> Sometimes I feel like my husband should take the kids and leave so

> that they have some kind of a normal life but then my world would

> really be empty and I would feel even more alone than I already do.

> Any advice would be greatly appreciated thank you for listening.

>

>

>

> ------------------------------------

>

> To read these messages on the Hugs web site go to:

> http://groups.yahoo.com/group/Hugs-N-Pain

> you can contact me privately at starlyin@...

> Rose

> Owner/ Moderator Hugs N Pain

> God Bless our Troops

> Please Pray for them

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Share on other sites

Guest guest

I'm glad you're feeling better. I used to have a cat named Gizmo too! I got

him from a farm when he was only 5 weeks old and he had these giant ears - just

like a gremlin!

He was a crazy cat too. My old Golden Retriever used to carry him around by the

scruff of his neck and we couldn't open the door without him running outside.

He howled so loud when I took him to the vet that people in the office would

think they were killing him. It makes me laugh just thinking @ him. Take care.

Alanna

Sent from my Verizon Wireless BlackBerry

Looking for friends in a

> world

> > of pain

> >

> > >

> >

> > > Hi my name is Kim, I have been living with

> chronic

> > neck pain for two

> >

> > > and a half years, My last surgery was 7 months

> ago,

> > The pain is

> >

> > > unbearable I feel like all I do is try to get

> through

> > the day! I am

> >

> > > taking the pain medicine the doctors told me to

> take

> > but it scares me

> >

> > > because I have been on it for 2 1/2 years, I have

> > tried massage,

> >

> > > chiropractor & acupuncture nothing seems to

> be

> > working they don't

> >

> > > understand why there is so much pain still. I am

> > scared my whole life

> >

> > > has changed so dramatically! I feel bad for my

> husband

> > and my kids

> >

> > > they did'nt sign up for this! I used to be

> this

> > vibrant hard working

> >

> > > woman now I am a 38 year old woman who can't

> even

> > ride in the car for

> >

> > > a long trip never mind working or excersing that

> is

> > not even remotely

> >

> > > possible I try not to feel sorry for myself but

> > sometimes you just get

> >

> > > in to one of them moods. I need to talk to people

> who

> > are going

> >

> > > through the same things so that I feel I am not

> losing

> > myself!

> >

> > > Sometimes I feel like my husband should take the

> kids

> > and leave so

> >

> > > that they have some kind of a normal life but

> then my

> > world would

> >

> > > really be empty and I would feel even more alone

> than

> > I already do.

> >

> > > Any advice would be greatly appreciated thank you

> for

> > listening.

> >

> > >

> >

> > >

> >

> > >

> >

> > > ------------ --------- --------- ------

> >

> > >

> >

> > > To read these messages on the Hugs web site go

> to:

> >

> > > http://groups. yahoo.com/ group/Hugs- N-Pain

> >

> > > you can contact me privately at starlyinaol (DOT) com

> >

> > > Rose

> >

> > > Owner/ Moderator Hugs N Pain

> >

> > > God Bless our Troops

> >

> > > Please Pray for them

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Share on other sites

Guest guest

Hi,Alanna ,

I would love to do that , though I don't think I'd get too far, I think they

were instrumental is helping get this through . I can't imagine having small

kids to care from with chronic pain, I'm so sorry .

I hope tomorrow is a good day for you ,

Les

Looking for friends in a world of pain

>

> Hi my name is Kim, I have been living with chronic neck pain for two

> and a half years, My last surgery was 7 months ago, The pain is

> unbearable I feel like all I do is try to get through the day! I am

> taking the pain medicine the doctors told me to take but it scares me

> because I have been on it for 2 1/2 years, I have tried massage,

> chiropractor & acupuncture nothing seems to be working they don't

> understand why there is so much pain still. I am scared my whole life

> has changed so dramatically! I feel bad for my husband and my kids

> they did'nt sign up for this! I used to be this vibrant hard working

> woman now I am a 38 year old woman who can't even ride in the car for

> a long trip never mind working or excersing that is not even remotely

> possible I try not to feel sorry for myself but sometimes you just get

> in to one of them moods. I need to talk to people who are going

> through the same things so that I feel I am not losing myself!

> Sometimes I feel like my husband should take the kids and leave so

> that they have some kind of a normal life but then my world would

> really be empty and I would feel even more alone than I already do.

> Any advice would be greatly appreciated thank you for listening.

>

>

>

> ------------------------------------

>

> To read these messages on the Hugs web site go to:

> http://groups.yahoo.com/group/Hugs-N-Pain

> you can contact me privately at starlyin@...

> Rose

> Owner/ Moderator Hugs N Pain

> God Bless our Troops

> Please Pray for them

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Share on other sites

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