Re: Looking for friends in a world of pain

[Guest guest]

Hi Kim:

First of all I am so sorry you are going threw this pain day in and day out.. I

have bad back pain and fibromyalgia so I know a little bit about what you are

going threw, I also have 3 kids and am a single mother. First stop beating your

self up. It ant easy going threw this. No one can get how challenging your life

can become or how much a prisoner you feel in your own body when you go threw

this. he medication is no better on top of it because of a chanes ofgetting

hooked on it as well as the side effect. I can not ruff house or play with my

kids like I use to and I am 28 years old. I do spend time with them though and

listen to them. I know its got to be hard on any kid to loss a parent to this

condition but I try to focus on what i can do and not what I can't do. I may not

be able to excerices as good as i use to but i can still walk some. I may not be

able to kick the ball with my kids but i can roll some dics on a board game. I

find little ways to

get round my condition. Even rearranging the house so my chors are eayer to do.

And as for you kids. I am sure they love you and only want you o get better,

Even on the days you can't do anyhing caus your in a druged in dues state as i

call it just listen to there day. Ask them questions and keep the cummicaton

open so when you can onces agian do these things you both will still be close

and it be that much special. As for your husband he singed on for the job of

better or worest. So your in the worest now. Together if you coummicate threw

these tough times you can get threw it, I know easyer said then done. I

certainly don't have any body here to contend to but I still have family around

me that feel my bad days as bad as i do sometimes. They should not just leave

you. Now is a time to band together and be stronge for one another. Sure they

migth have to pitch in and help out more but hey that what family should do when

one of there own takes a hit

like this. As for pain I try to meditate, I know how it sound and I know you

thinking how the hell will that help with me. But if you tune out the world and

foucs on 1 thing weather it be music like i do or anything eles you be surpiesd

how much it can help all though someday we need hat medison any ways. lol I try

to reduces it as much as possible though caus eit will mess with you. I have bad

acid reflx now and easy somick upset cause i chucked pills down for about 2

years none stop for pain. Stronge stuff to. Now I am paying for it. Somedys I

can't stand the smell of food. I don't know if you are religus but i slso fnd

prayer a good sources of relife to. For I know my lord walks with me threw each

day and each day he helps me get threw the worest of it to the nest one and so

one. He brings me one step clsoer to being better, And I may never feel as good

as i use to before i got all this mess handed down on me but as long as I got

him in my life I can

get threw it. Atlest you got a huband and family there that love you/ Life can

be pretty lonely with out these things so keep them close and let themknow each

day that you still there and you still care regarless of this pt you are in

right now. Well take care and I hope this helped. If you need to talk you can

always drop me a line. Its good to vent our frustrations and get them out so hey

cant possion use any futuer, Take care and God bless. Connie

Subject: Looking for friends in a world of pain

To: Hugs-N-Pain

Date: Thursday, February 26, 2009, 10:37 AM

Hi my name is Kim, I have been living with chronic neck pain for two

and a half years, My last surgery was 7 months ago, The pain is

unbearable I feel like all I do is try to get through the day! I am

taking the pain medicine the doctors told me to take but it scares me

because I have been on it for 2 1/2 years, I have tried massage,

chiropractor & acupuncture nothing seems to be working they don't

understand why there is so much pain still. I am scared my whole life

has changed so dramatically! I feel bad for my husband and my kids

they did'nt sign up for this! I used to be this vibrant hard working

woman now I am a 38 year old woman who can't even ride in the car for

a long trip never mind working or excersing that is not even remotely

possible I try not to feel sorry for myself but sometimes you just get

in to one of them moods. I need to talk to people who are going

through the same things so that I feel I am not losing myself!

Sometimes I feel like my husband should take the kids and leave so

that they have some kind of a normal life but then my world would

really be empty and I would feel even more alone than I already do.

Any advice would be greatly appreciated thank you for listening.

[Guest guest]

Kim,

I relate in a lot of ways to your post. You sound like a brave person feeling a

little abandoned and overwhelmed. But you are not alone; please take some

comfort in that. People here do understand.

This year marks 20 years of unrelenting headache (from damage of brain surgery)

and neck pain. I have lived on massive dosages of heavy narcotics, and they did

help. Then my doctor moved and no other doc in this area will touch my case.

Which led me to the pain clinic. I am hoping for the pump, but am in the early

stages of trial procedures.

There is nothing you can do to make your family understand; my finds me an

embarrassment and a bother. Maybe if you speak with yours frankly and from the

heart you will have better luck. I will pray for that. Support would be nice.

Either way, you have to do what makes your quality of life the best possible. We

all deserve that. Please don't let it overwhelm you; answers are out there and

they are here too. This is a great group.

Keeping you in my thoughts,

elaine

> To: Hugs-N-Pain

> From: kimshomestyle@...

> Date: Thu, 26 Feb 2009 15:37:13 +0000

> Subject: Looking for friends in a world of pain

>

> Hi my name is Kim, I have been living with chronic neck pain for two

> and a half years, My last surgery was 7 months ago, The pain is

> unbearable I feel like all I do is try to get through the day! I am

> taking the pain medicine the doctors told me to take but it scares me

> because I have been on it for 2 1/2 years, I have tried massage,

> chiropractor & acupuncture nothing seems to be working they don't

> understand why there is so much pain still. I am scared my whole life

> has changed so dramatically! I feel bad for my husband and my kids

> they did'nt sign up for this! I used to be this vibrant hard working

> woman now I am a 38 year old woman who can't even ride in the car for

> a long trip never mind working or excersing that is not even remotely

> possible I try not to feel sorry for myself but sometimes you just get

> in to one of them moods. I need to talk to people who are going

> through the same things so that I feel I am not losing myself!

> Sometimes I feel like my husband should take the kids and leave so

> that they have some kind of a normal life but then my world would

> really be empty and I would feel even more alone than I already do.

> Any advice would be greatly appreciated thank you for listening.

>

>

>

> ------------------------------------

>

> To read these messages on the Hugs web site go to:

> http://groups.yahoo.com/group/Hugs-N-Pain

> you can contact me privately at starlyin@...

> Rose

> Owner/ Moderator Hugs N Pain

> God Bless our Troops

> Please Pray for them

[Guest guest]

Hello Kim --

I am very sorry to hear of your unrelenting neck pain. You commented

on having surgery on it -- if I may ask what was done? I wonder if

any of your doctors have tested for Chiari? This could also be a

possible explanation for your continuing pain & headaches. Have you

been to a cranial sacral therapist (CST) or had ostheopathic

manipulation? I have chronic neck & lumbar back pain/nerve pain and

I've found both helpful to me -- they are both gentle forms of

alternative medicine.

Feel free to contact me if you need to talk or are looking for a

friend as I am here. You are heard & cared for. I send you courage &

healing energies.

Warmly,

>

>

> Kim,

>

> I relate in a lot of ways to your post. You sound like a brave

person feeling a little abandoned and overwhelmed. But you are not

alone; please take some comfort in that. People here do understand.

>

> This year marks 20 years of unrelenting headache (from damage of

brain surgery) and neck pain. I have lived on massive dosages of

heavy narcotics, and they did help. Then my doctor moved and no other

doc in this area will touch my case. Which led me to the pain clinic.

I am hoping for the pump, but am in the early stages of trial

procedures.

>

> There is nothing you can do to make your family understand; my

finds me an embarrassment and a bother. Maybe if you speak with yours

frankly and from the heart you will have better luck. I will pray for

that. Support would be nice. Either way, you have to do what makes

your quality of life the best possible. We all deserve that. Please

don't let it overwhelm you; answers are out there and they are here

too. This is a great group.

>

> Keeping you in my thoughts,

>

> elaine

>

>

>

>

>

> > To: Hugs-N-Pain

> > From: kimshomestyle@...

> > Date: Thu, 26 Feb 2009 15:37:13 +0000

> > Subject: Looking for friends in a world of pain

> >

> > Hi my name is Kim, I have been living with chronic neck pain for

two

> > and a half years, My last surgery was 7 months ago, The pain is

> > unbearable I feel like all I do is try to get through the day! I

am

> > taking the pain medicine the doctors told me to take but it

scares me

> > because I have been on it for 2 1/2 years, I have tried massage,

> > chiropractor & acupuncture nothing seems to be working they don't

> > understand why there is so much pain still. I am scared my whole

life

> > has changed so dramatically! I feel bad for my husband and my kids

> > they did'nt sign up for this! I used to be this vibrant hard

working

> > woman now I am a 38 year old woman who can't even ride in the car

for

> > a long trip never mind working or excersing that is not even

remotely

> > possible I try not to feel sorry for myself but sometimes you

just get

> > in to one of them moods. I need to talk to people who are going

> > through the same things so that I feel I am not losing myself!

> > Sometimes I feel like my husband should take the kids and leave so

> > that they have some kind of a normal life but then my world would

> > really be empty and I would feel even more alone than I already

do.

> > Any advice would be greatly appreciated thank you for listening.

> >

> >

> >

> > ------------------------------------

> >

> > To read these messages on the Hugs web site go to:

> > http://groups.yahoo.com/group/Hugs-N-Pain

> > you can contact me privately at starlyin@...

> > Rose

> > Owner/ Moderator Hugs N Pain

> > God Bless our Troops

> > Please Pray for them

[Guest guest]

Hi Connie,

It was really nice to hear from you thank you for taking time to write to me. I

am so sorry for all that you are going through, what do you do for your pain

now? I try everything but if I don't take the pain meds it is unbearable and I

can't even get out of bed , I am afraid what happens if this chronic pain lasts

forever I try to stay in today so that I won't get over whelmed . I do pray and

I believe in a power greater than myself, If you know of ways to stop the pain

with out medication I a would love to hear about it, I do all the heating pads,

cold compresses, patches and all the topical creams but I don't get much relief

from that. I am impressed that your a single mom and living in all this pain , I

wish that I had your strength. I appreciate any advice that you have to give.

thank you

kim

From: kimshomestyle <kimshomestyle@ yahoo.com>

Subject: Looking for friends in a world of pain

To: Hugs-N-Pain@ yahoogroups. com

Date: Thursday, February 26, 2009, 10:37 AM

Hi my name is Kim, I have been living with chronic neck pain for two

and a half years, My last surgery was 7 months ago, The pain is

unbearable I feel like all I do is try to get through the day! I am

taking the pain medicine the doctors told me to take but it scares me

because I have been on it for 2 1/2 years, I have tried massage,

chiropractor & acupuncture nothing seems to be working they don't

understand why there is so much pain still. I am scared my whole life

has changed so dramatically! I feel bad for my husband and my kids

they did'nt sign up for this! I used to be this vibrant hard working

woman now I am a 38 year old woman who can't even ride in the car for

a long trip never mind working or excersing that is not even remotely

possible I try not to feel sorry for myself but sometimes you just get

in to one of them moods. I need to talk to people who are going

through the same things so that I feel I am not losing myself!

Sometimes I feel like my husband should take the kids and leave so

that they have some kind of a normal life but then my world would

really be empty and I would feel even more alone than I already do.

Any advice would be greatly appreciated thank you for listening.

[Guest guest]

Hi Kim,

I understand your delima with your family. Before I got engaged to my now

husband, I had to up front telling him about the severe pain I have that shoots

throughout my left arm to the fingers and down my back. I wanted to let him

know that there are alot of things I cannot do alot of the time. This was all

before I even new that I have 3 severe hernieated discs in my neck.

He is very understanding yet sometimes I feel depressed like I am letting the

family down (no kids - but him and the animals can still be alot of work)

I know it is hard to express your pain to others who do not see it or feel it, I

wish sometimes I was gushing blood all over the place so the pain would be

visable (weird I know)

Just do the best you can - if he loves you he will understand and realize he may

have to pitch in more than some other husbands do.

Mainly just know you are not alone.

Also - another note - taking pain medication can be questionable by others who

do not suffer. If I run out (percocet) the withdrawal can be horrible so that

on top of every thing else is also very hard for someone else to understand.

But just remember that you are doing the best you can do and others in pain

totally get it!!!!

Cary

>

> Hi my name is Kim, I have been living with chronic neck pain for two

> and a half years, My last surgery was 7 months ago, The pain is

> unbearable I feel like all I do is try to get through the day! I am

> taking the pain medicine the doctors told me to take but it scares me

> because I have been on it for 2 1/2 years, I have tried massage,

> chiropractor & acupuncture nothing seems to be working they don't

> understand why there is so much pain still. I am scared my whole life

> has changed so dramatically! I feel bad for my husband and my kids

> they did'nt sign up for this! I used to be this vibrant hard working

> woman now I am a 38 year old woman who can't even ride in the car for

> a long trip never mind working or excersing that is not even remotely

> possible I try not to feel sorry for myself but sometimes you just get

> in to one of them moods. I need to talk to people who are going

> through the same things so that I feel I am not losing myself!

> Sometimes I feel like my husband should take the kids and leave so

> that they have some kind of a normal life but then my world would

> really be empty and I would feel even more alone than I already do.

> Any advice would be greatly appreciated thank you for listening.

>

[Guest guest]

Cary thanks for writing back to me. I have a great husband he is kind and loving

but he is also frusterated with the fact that I can't do what others do. I some

times think think the physcological part is just as bad as the pain. It is scary

to think that if my neck ever gets better then my body has to be detoxed from

all the medication. I am going to a pain management clinic on tuesday maybe they

can fix me I hope. And nobody can ever understand what we are all going through

unless they have been there themselves! Are you going to be able to get your

discs fixed in your neck? I look forwrd to talking with you again soon take

care!

Kim

Subject: Re: Looking for friends in a world of pain

To: Hugs-N-Pain

Date: Wednesday, March 4, 2009, 10:02 PM

Hi Kim,

I understand your delima with your family. Before I got engaged to my now

husband, I had to up front telling him about the severe pain I have that shoots

throughout my left arm to the fingers and down my back. I wanted to let him

know that there are alot of things I cannot do alot of the time. This was all

before I even new that I have 3 severe hernieated discs in my neck.

He is very understanding yet sometimes I feel depressed like I am letting the

family down (no kids - but him and the animals can still be alot of work)

I know it is hard to express your pain to others who do not see it or feel it, I

wish sometimes I was gushing blood all over the place so the pain would be

visable (weird I know)

Just do the best you can - if he loves you he will understand and realize he may

have to pitch in more than some other husbands do.

Mainly just know you are not alone.

Also - another note - taking pain medication can be questionable by others who

do not suffer. If I run out (percocet) the withdrawal can be horrible so that

on top of every thing else is also very hard for someone else to understand.

But just remember that you are doing the best you can do and others in pain

totally get it!!!!

Cary

>

> Hi my name is Kim, I have been living with chronic neck pain for two

> and a half years, My last surgery was 7 months ago, The pain is

> unbearable I feel like all I do is try to get through the day! I am

> taking the pain medicine the doctors told me to take but it scares me

> because I have been on it for 2 1/2 years, I have tried massage,

> chiropractor & acupuncture nothing seems to be working they don't

> understand why there is so much pain still. I am scared my whole life

> has changed so dramatically! I feel bad for my husband and my kids

> they did'nt sign up for this! I used to be this vibrant hard working

> woman now I am a 38 year old woman who can't even ride in the car for

> a long trip never mind working or excersing that is not even remotely

> possible I try not to feel sorry for myself but sometimes you just get

> in to one of them moods. I need to talk to people who are going

> through the same things so that I feel I am not losing myself!

> Sometimes I feel like my husband should take the kids and leave so

> that they have some kind of a normal life but then my world would

> really be empty and I would feel even more alone than I already do.

> Any advice would be greatly appreciated thank you for listening.

>

[Guest guest]

Hi Kimberely,

Dr's don't want to operate right now. I need to have all four discs fused so it

is quite extensive - then dealing with coming of the med's is frightening - I

have gotten so use to taking them. When I stop - I just get so tired and

depressed.

I am glad you have a nice husband - mine is nice too but he still gets

frustrated I can tell - but men are strange about coming out and saying whats on

their minds so I have to play the probing game to get him to spit it out - then

when he does I start crying and get really mad.

What a catch 22 - I wish I never started on these meds - it is door I would have

never walked through but here I am. I just hope I am strong enough to stop on

my own when I can.

I am looking for a part time job right now - before I was in sales which started

as part time but ended up being 60-70 hours per week, on 100% commission, you

know that with the economy the way it is you know that even with all those hours

I was still averaging about 3.50 per hour.

Plus, everyone I worked with were so mean and horrible - I hope I can find

something soon because sitting around the house is bad for me and my self

esteem.

Anyway - write back when you can, good luck w/pain clinic - I hope they can help

you.

Cary

>

> Subject: Re: Looking for friends in a world

> of pain

> To: Hugs-N-Pain

> Date: Wednesday, March 4, 2009, 10:02 PM

>

>

>

>

>

>

>

>

>

>

>

>

>

>

> Hi Kim,

>

>

>

> I understand your delima with your family. Before I got

> engaged to my now husband, I had to up front telling him

> about the severe pain I have that shoots throughout my left

> arm to the fingers and down my back. I wanted to let him

> know that there are alot of things I cannot do alot of the

> time. This was all before I even new that I have 3 severe

> hernieated discs in my neck.

>

>

>

> He is very understanding yet sometimes I feel depressed

> like I am letting the family down (no kids - but him and the

> animals can still be alot of work)

>

>

>

> I know it is hard to express your pain to others who do not

> see it or feel it, I wish sometimes I was gushing blood all

> over the place so the pain would be visable (weird I know)

>

>

>

> Just do the best you can - if he loves you he will

> understand and realize he may have to pitch in more than

> some other husbands do.

>

>

>

> Mainly just know you are not alone.

>

>

>

> Also - another note - taking pain medication can be

> questionable by others who do not suffer. If I run out

> (percocet) the withdrawal can be horrible so that on top of

> every thing else is also very hard for someone else to

> understand. But just remember that you are doing the best

> you can do and others in pain totally get it!!!!

>

>

>

> Cary

>

>

>

> >

>

> > Hi my name is Kim, I have been living with chronic

> neck pain for two

>

> > and a half years, My last surgery was 7 months ago,

> The pain is

>

> > unbearable I feel like all I do is try to get through

> the day! I am

>

> > taking the pain medicine the doctors told me to take

> but it scares me

>

> > because I have been on it for 2 1/2 years, I have

> tried massage,

>

> > chiropractor & acupuncture nothing seems to be

> working they don't

>

> > understand why there is so much pain still. I am

> scared my whole life

>

> > has changed so dramatically! I feel bad for my husband

> and my kids

>

> > they did'nt sign up for this! I used to be this

> vibrant hard working

>

> > woman now I am a 38 year old woman who can't even

> ride in the car for

>

> > a long trip never mind working or excersing that is

> not even remotely

>

> > possible I try not to feel sorry for myself but

> sometimes you just get

>

> > in to one of them moods. I need to talk to people who

> are going

>

> > through the same things so that I feel I am not losing

> myself!

>

> > Sometimes I feel like my husband should take the kids

> and leave so

>

> > that they have some kind of a normal life but then my

> world would

>

> > really be empty and I would feel even more alone than

> I already do.

>

> > Any advice would be greatly appreciated thank you for

> listening.

>

> >

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

[Guest guest]

hi elaine the same thing happened to me i lost my doc and i could not find

another doc to touch me i was at a docters apt. i had just paid my copay and one

of the nerses seen i was a dr.fadall knee mess up and thay sead thay could not

see me thay didnot want no lawsuit and give me my copay back and booted me rite

out the door i was lucky enuff to have 3 refills on my pain meds that gave me

time to find a pain doc that was 2 years ago i am still seeing the same pain doc

and as for familely suport i have none thay all thank i am a drug addic the only

suport i get is rite here in this suport group and another good group i belong

to and my wife dose not call me a drug addic all the time now it is hard not

haveing no suport at home so kim i know how you feel donnieKY

Subject: RE: Looking for friends in a world of pain

To: hugs-n-pain

Date: Thursday, February 26, 2009, 4:08 PM

Kim,

I relate in a lot of ways to your post. You sound like a brave person feeling a

little abandoned and overwhelmed. But you are not alone; please take some

comfort in that. People here do understand.

This year marks 20 years of unrelenting headache (from damage of brain surgery)

and neck pain. I have lived on massive dosages of heavy narcotics, and they did

help. Then my doctor moved and no other doc in this area will touch my case.

Which led me to the pain clinic. I am hoping for the pump, but am in the early

stages of trial procedures.

There is nothing you can do to make your family understand; my finds me an

embarrassment and a bother. Maybe if you speak with yours frankly and from the

heart you will have better luck. I will pray for that. Support would be nice.

Either way, you have to do what makes your quality of life the best possible. We

all deserve that. Please don't let it overwhelm you; answers are out there and

they are here too. This is a great group.

Keeping you in my thoughts,

elaine

> To: Hugs-N-Pain

> From: kimshomestyle@...

> Date: Thu, 26 Feb 2009 15:37:13 +0000

> Subject: Looking for friends in a world of pain

>

> Hi my name is Kim, I have been living with chronic neck pain for two

> and a half years, My last surgery was 7 months ago, The pain is

> unbearable I feel like all I do is try to get through the day! I am

> taking the pain medicine the doctors told me to take but it scares me

> because I have been on it for 2 1/2 years, I have tried massage,

> chiropractor & acupuncture nothing seems to be working they don't

> understand why there is so much pain still. I am scared my whole life

> has changed so dramatically! I feel bad for my husband and my kids

> they did'nt sign up for this! I used to be this vibrant hard working

> woman now I am a 38 year old woman who can't even ride in the car for

> a long trip never mind working or excersing that is not even remotely

> possible I try not to feel sorry for myself but sometimes you just get

> in to one of them moods. I need to talk to people who are going

> through the same things so that I feel I am not losing myself!

> Sometimes I feel like my husband should take the kids and leave so

> that they have some kind of a normal life but then my world would

> really be empty and I would feel even more alone than I already do.

> Any advice would be greatly appreciated thank you for listening.

>

>

>

> ------------------------------------

>

> To read these messages on the Hugs web site go to:

> http://groups.yahoo.com/group/Hugs-N-Pain

> you can contact me privately at starlyin@...

> Rose

> Owner/ Moderator Hugs N Pain

> God Bless our Troops

> Please Pray for them

[Guest guest]

hi kim my name is donnie i am a painer to i have rsd it is a pain disisese i

have had it for 8 years i know what you are going throw it is hard if you ever

want to talk i am here donnieKY

From: Elaine Dowell <emdowelllive (DOT) com>

Subject: RE: Looking for friends in a world of pain

To: hugs-n-pain@ yahoogroups. com

Date: Thursday, February 26, 2009, 11:08 AM

Kim,

I relate in a lot of ways to your post. You sound like a brave person feeling a

little abandoned and overwhelmed. But you are not alone; please take some

comfort in that. People here do understand.

This year marks 20 years of unrelenting headache (from damage of brain surgery)

and neck pain. I have lived on massive dosages of heavy narcotics, and they did

help. Then my doctor moved and no other doc in this area will touch my case.

Which led me to the pain clinic. I am hoping for the pump, but am in the early

stages of trial procedures.

There is nothing you can do to make your family understand; my finds me an

embarrassment and a bother. Maybe if you speak with yours frankly and from the

heart you will have better luck. I will pray for that. Support would be nice.

Either way, you have to do what makes your quality of life the best possible. We

all deserve that. Please don't let it overwhelm you; answers are out there

and they are here too. This is a great group.

Keeping you in my thoughts,

elaine

> To: Hugs-N-Pain@ yahoogroups. com

> From: kimshomestyle@ yahoo.com

> Date: Thu, 26 Feb 2009 15:37:13 +0000

> Subject: Looking for friends in a world of pain

>

> Hi my name is Kim, I have been living with chronic neck pain for two

> and a half years, My last surgery was 7 months ago, The pain is

> unbearable I feel like all I do is try to get through the day! I am

> taking the pain medicine the doctors told me to take but it scares me

> because I have been on it for 2 1/2 years, I have tried massage,

> chiropractor & acupuncture nothing seems to be working they don't

> understand why there is so much pain still. I am scared my whole life

> has changed so dramatically! I feel bad for my husband and my kids

> they did'nt sign up for this! I used to be this vibrant hard working

> woman now I am a 38 year old woman who can't even ride in the car for

> a long trip never mind working or excersing that is not even remotely

> possible I try not to feel sorry for myself but sometimes you just get

> in to one of them moods. I need to talk to people who are going

> through the same things so that I feel I am not losing myself!

> Sometimes I feel like my husband should take the kids and leave so

> that they have some kind of a normal life but then my world would

> really be empty and I would feel even more alone than I already do.

> Any advice would be greatly appreciated thank you for listening.

>

>

>

> ------------ --------- --------- ------

>

> To read these messages on the Hugs web site go to:

> http://groups. yahoo.com/ group/Hugs- N-Pain

> you can contact me privately at starlyinaol (DOT) com

> Rose

> Owner/ Moderator Hugs N Pain

> God Bless our Troops

> Please Pray for them

[Guest guest]

Hello Donnie its been awhile, how have you been? Good I hope.

Rod

Looking for friends in a world of pain

>

> Hi my name is Kim, I have been living with chronic neck pain for two

> and a half years, My last surgery was 7 months ago, The pain is

> unbearable I feel like all I do is try to get through the day! I am

> taking the pain medicine the doctors told me to take but it scares me

> because I have been on it for 2 1/2 years, I have tried massage,

> chiropractor & acupuncture nothing seems to be working they don't

> understand why there is so much pain still. I am scared my whole life

> has changed so dramatically! I feel bad for my husband and my kids

> they did'nt sign up for this! I used to be this vibrant hard working

> woman now I am a 38 year old woman who can't even ride in the car for

> a long trip never mind working or excersing that is not even remotely

> possible I try not to feel sorry for myself but sometimes you just get

> in to one of them moods. I need to talk to people who are going

> through the same things so that I feel I am not losing myself!

> Sometimes I feel like my husband should take the kids and leave so

> that they have some kind of a normal life but then my world would

> really be empty and I would feel even more alone than I already do.

> Any advice would be greatly appreciated thank you for listening.

>

>

>

> ------------------------------------

>

> To read these messages on the Hugs web site go to:

> http://groups.yahoo.com/group/Hugs-N-Pain

> you can contact me privately at starlyin@...

> Rose

> Owner/ Moderator Hugs N Pain

> God Bless our Troops

> Please Pray for them

[Guest guest]

Hi, my name is Les ,

I just joined your group, and I'm looking for members who are being treated the

way I'm being treated by Dr's ,(to find out if there's anything we can do about

this ) and it looks like I've entered such a discussion right here ? Recently,

Az. passed a law where everyone who is prescribed narcotics are in a data base

that all Dr's and pharmacists can look at . Now the Dr's are using this to

black-list and shun everyone on drugs that are chronic pain sufferers ,and are

treating us like we're drug addicts ! I left my PCP recently because she lashed

out at me and told me I don't need my opiates , that they don't help my PN. I

told her they do help my PN, and she repeated " opiates don't help PN ! " I went

to a new Dr , and she was even worse !She told me to get rid of my drugs, and I

told her if she has something that will stop my pain, I will ,and all she could

tell me was to increase my Celexa , and keep looking ! She also told me I was

going to die soon because my lipids are so high that my triple bypass will fail

, and that I was so obese I should have surgery . She proceeded to insult me

with one insult after another , and even put down my pain Dr (thankfully I have

this man to control my pain )by saying those Dr's just wanted us to be addicts

..This is the quality of Dr's you get out this way ...I also have some in my

family who don't understand my need for drugs, although my immediate family does

understand . My BIL and his physician fiancée both look at me as if I were a

druggie , too .

Sorry about the long introduction , but I've been venting for the last few days,

this recent Dr has me so upset , and I know that no matter what Dr I go too,it

will be the same,they're all hysterical about anyone on opiates .

Les

thecardiacclub

chronicpainsupportclub4women

Looking for friends in a world of pain

>

> Hi my name is Kim, I have been living with chronic neck pain for two

> and a half years, My last surgery was 7 months ago, The pain is

> unbearable I feel like all I do is try to get through the day! I am

> taking the pain medicine the doctors told me to take but it scares me

> because I have been on it for 2 1/2 years, I have tried massage,

> chiropractor & acupuncture nothing seems to be working they don't

> understand why there is so much pain still. I am scared my whole life

> has changed so dramatically! I feel bad for my husband and my kids

> they did'nt sign up for this! I used to be this vibrant hard working

> woman now I am a 38 year old woman who can't even ride in the car for

> a long trip never mind working or excersing that is not even remotely

> possible I try not to feel sorry for myself but sometimes you just get

> in to one of them moods. I need to talk to people who are going

> through the same things so that I feel I am not losing myself!

> Sometimes I feel like my husband should take the kids and leave so

> that they have some kind of a normal life but then my world would

> really be empty and I would feel even more alone than I already do.

> Any advice would be greatly appreciated thank you for listening.

>

>

>

> ------------------------------------

>

> To read these messages on the Hugs web site go to:

> http://groups.yahoo.com/group/Hugs-N-Pain

> you can contact me privately at starlyin@...

> Rose

> Owner/ Moderator Hugs N Pain

> God Bless our Troops

> Please Pray for them

[Guest guest]

hi rod thangs have been good donnieKY

From: Elaine Dowell <emdowelllive (DOT) com>

Subject: RE: Looking for friends in a world of pain

To: hugs-n-pain@ yahoogroups. com

Date: Thursday, February 26, 2009, 4:08 PM

Kim,

I relate in a lot of ways to your post. You sound like a brave person

feeling a little abandoned and overwhelmed. But you are not alone; please

take some comfort in that. People here do understand.

This year marks 20 years of unrelenting headache (from damage of brain

surgery) and neck pain. I have lived on massive dosages of heavy narcotics,

and they did help. Then my doctor moved and no other doc in this area will

touch my case. Which led me to the pain clinic. I am hoping for the pump,

but am in the early stages of trial procedures.

There is nothing you can do to make your family understand; my finds me an

embarrassment and a bother. Maybe if you speak with yours frankly and from

the heart you will have better luck. I will pray for that. Support would be

nice. Either way, you have to do what makes your quality of life the best

possible. We all deserve that. Please don't let it overwhelm you; answers

are out there and they are here too. This is a great group.

Keeping you in my thoughts,

elaine

> To: Hugs-N-Pain@ yahoogroups. com

> From: kimshomestyle@ yahoo.com

> Date: Thu, 26 Feb 2009 15:37:13 +0000

> Subject: Looking for friends in a world of pain

>

> Hi my name is Kim, I have been living with chronic neck pain for two

> and a half years, My last surgery was 7 months ago, The pain is

> unbearable I feel like all I do is try to get through the day! I am

> taking the pain medicine the doctors told me to take but it scares me

> because I have been on it for 2 1/2 years, I have tried massage,

> chiropractor & acupuncture nothing seems to be working they don't

> understand why there is so much pain still. I am scared my whole life

> has changed so dramatically! I feel bad for my husband and my kids

> they did'nt sign up for this! I used to be this vibrant hard working

> woman now I am a 38 year old woman who can't even ride in the car for

> a long trip never mind working or excersing that is not even remotely

> possible I try not to feel sorry for myself but sometimes you just get

> in to one of them moods. I need to talk to people who are going

> through the same things so that I feel I am not losing myself!

> Sometimes I feel like my husband should take the kids and leave so

> that they have some kind of a normal life but then my world would

> really be empty and I would feel even more alone than I already do.

> Any advice would be greatly appreciated thank you for listening.

>

>

>

> ------------ --------- --------- ------

>

> To read these messages on the Hugs web site go to:

> http://groups. yahoo.com/ group/Hugs- N-Pain

> you can contact me privately at starlyinaol (DOT) com

> Rose

> Owner/ Moderator Hugs N Pain

> God Bless our Troops

> Please Pray for them

[Guest guest]

Donnie, thanks for reaching out I appreciate it, People don't understand what we

are going through! My family does'nt even listen when I talk any more! I went to

a pain clinic yesterday and had trigger point shots in my neck and skull it was

so painful I am still waiting to see if there is any relief it takes three to

five days I dont have much hope in it though I know people that have had it an

said that it doesnt work I will let you know. Talk to you soon. Kim

From: Elaine Dowell <emdowelllive (DOT) com>

Subject: RE: Looking for friends in a world of pain

To: hugs-n-pain@ yahoogroups. com

Date: Thursday, February 26, 2009, 4:08 PM

Kim,

I relate in a lot of ways to your post. You sound like a brave person

feeling a little abandoned and overwhelmed. But you are not alone; please

take some comfort in that. People here do understand.

This year marks 20 years of unrelenting headache (from damage of brain

surgery) and neck pain. I have lived on massive dosages of heavy narcotics,

and they did help. Then my doctor moved and no other doc in this area will

touch my case. Which led me to the pain clinic. I am hoping for the pump,

but am in the early stages of trial procedures.

There is nothing you can do to make your family understand; my finds me an

embarrassment and a bother. Maybe if you speak with yours frankly and from

the heart you will have better luck. I will pray for that. Support would be

nice. Either way, you have to do what makes your quality of life the best

possible. We all deserve that. Please don't let it overwhelm you; answers

are out there and they are here too. This is a great group.

Keeping you in my thoughts,

elaine

> To: Hugs-N-Pain@ yahoogroups. com

> From: kimshomestyle@ yahoo.com

> Date: Thu, 26 Feb 2009 15:37:13 +0000

> Subject: Looking for friends in a world of pain

>

> Hi my name is Kim, I have been living with chronic neck pain for two

> and a half years, My last surgery was 7 months ago, The pain is

> unbearable I feel like all I do is try to get through the day! I am

> taking the pain medicine the doctors told me to take but it scares me

> because I have been on it for 2 1/2 years, I have tried massage,

> chiropractor & acupuncture nothing seems to be working they don't

> understand why there is so much pain still. I am scared my whole life

> has changed so dramatically! I feel bad for my husband and my kids

> they did'nt sign up for this! I used to be this vibrant hard working

> woman now I am a 38 year old woman who can't even ride in the car for

> a long trip never mind working or excersing that is not even remotely

> possible I try not to feel sorry for myself but sometimes you just get

> in to one of them moods. I need to talk to people who are going

> through the same things so that I feel I am not losing myself!

> Sometimes I feel like my husband should take the kids and leave so

> that they have some kind of a normal life but then my world would

> really be empty and I would feel even more alone than I already do.

> Any advice would be greatly appreciated thank you for listening.

>

>

>

> ------------ --------- --------- ------

>

> To read these messages on the Hugs web site go to:

> http://groups. yahoo.com/ group/Hugs- N-Pain

> you can contact me privately at starlyinaol (DOT) com

> Rose

> Owner/ Moderator Hugs N Pain

> God Bless our Troops

> Please Pray for them

[Guest guest]

Good Morning Kim,

I get the injections every other month. Mine go in the lower

back and si joints and hips. I have been doing this for 3 years

now. The longest it has helped is 6 weeks. The last 2 week

stretch is always VERY painful. I wish you the best and hope

the injections work for you. Keep us posted.

Deta

On Thu, Mar 12, 2009 at 2:17 AM, Greenlaw

wrote:

> Donnie, thanks for reaching out I appreciate it, People don't understand

> what we are going through! My family does'nt even listen when I talk any

> more! I went to a pain clinic yesterday and had trigger point shots in my

> neck and skull it was so painful I am still waiting to see if there is any

> relief it takes three to five days I dont have much hope in it though I know

> people that have had it an said that it doesnt work I will let you know.

> Talk to you soon. Kim

>

>

>

> From: Elaine Dowell <emdowelllive (DOT) com>

>

> Subject: RE: Looking for friends in a world of pain

>

> To: hugs-n-pain@ yahoogroups. com

>

> Date: Thursday, February 26, 2009, 4:08 PM

>

> Kim,

>

> I relate in a lot of ways to your post. You sound like a brave person

>

> feeling a little abandoned and overwhelmed. But you are not alone; please

>

> take some comfort in that. People here do understand.

>

> This year marks 20 years of unrelenting headache (from damage of brain

>

> surgery) and neck pain. I have lived on massive dosages of heavy narcotics,

>

>

> and they did help. Then my doctor moved and no other doc in this area will

>

> touch my case. Which led me to the pain clinic. I am hoping for the pump,

>

> but am in the early stages of trial procedures.

>

> There is nothing you can do to make your family understand; my finds me an

>

> embarrassment and a bother. Maybe if you speak with yours frankly and from

>

> the heart you will have better luck. I will pray for that. Support would be

>

>

> nice. Either way, you have to do what makes your quality of life the best

>

> possible. We all deserve that. Please don't let it overwhelm you; answers

>

> are out there and they are here too. This is a great group.

>

> Keeping you in my thoughts,

>

> elaine

>

> > To: Hugs-N-Pain@ yahoogroups. com

>

> > From: kimshomestyle@ yahoo.com

>

> > Date: Thu, 26 Feb 2009 15:37:13 +0000

>

> > Subject: Looking for friends in a world of pain

>

> >

>

> > Hi my name is Kim, I have been living with chronic neck pain for two

>

> > and a half years, My last surgery was 7 months ago, The pain is

>

> > unbearable I feel like all I do is try to get through the day! I am

>

> > taking the pain medicine the doctors told me to take but it scares me

>

> > because I have been on it for 2 1/2 years, I have tried massage,

>

> > chiropractor & acupuncture nothing seems to be working they don't

>

> > understand why there is so much pain still. I am scared my whole life

>

> > has changed so dramatically! I feel bad for my husband and my kids

>

> > they did'nt sign up for this! I used to be this vibrant hard working

>

> > woman now I am a 38 year old woman who can't even ride in the car for

>

> > a long trip never mind working or excersing that is not even remotely

>

> > possible I try not to feel sorry for myself but sometimes you just get

>

> > in to one of them moods. I need to talk to people who are going

>

> > through the same things so that I feel I am not losing myself!

>

> > Sometimes I feel like my husband should take the kids and leave so

>

> > that they have some kind of a normal life but then my world would

>

> > really be empty and I would feel even more alone than I already do.

>

> > Any advice would be greatly appreciated thank you for listening.

>

> >

>

> >

>

> >

>

> > ------------ --------- --------- ------

>

> >

>

> > To read these messages on the Hugs web site go to:

>

> > http://groups. yahoo.com/ group/Hugs- N-Pain

>

> > you can contact me privately at starlyinaol (DOT) com

>

> > Rose

>

> > Owner/ Moderator Hugs N Pain

>

> > God Bless our Troops

>

> > Please Pray for them

[Guest guest]

Good Morning Les and Welcome,

I have NEVER wished all this pain on any1 BUT, I do wish

for just 1 day some of these Dr.'s had to walk in our shoes.

Some days I think it is SO unfair and wonder " why me " but,

I'll know the reason 1 day. Til then, we just have to be here

for 1 another. Keep us posted.

Deta

> Hi, my name is Les ,

> I just joined your group, and I'm looking for members who are being treated

> the way I'm being treated by Dr's ,(to find out if there's anything we can

> do about this ) and it looks like I've entered such a discussion right here

> ? Recently, Az. passed a law where everyone who is prescribed narcotics are

> in a data base that all Dr's and pharmacists can look at . Now the Dr's are

> using this to black-list and shun everyone on drugs that are chronic pain

> sufferers ,and are treating us like we're drug addicts ! I left my PCP

> recently because she lashed out at me and told me I don't need my opiates ,

> that they don't help my PN. I told her they do help my PN, and she repeated

> " opiates don't help PN ! " I went to a new Dr , and she was even worse !She

> told me to get rid of my drugs, and I told her if she has something that

> will stop my pain, I will ,and all she could tell me was to increase my

> Celexa , and keep looking ! She also told me I was going to die soon because

> my lipids are so high that my triple bypass will fail , and that I was so

> obese I should have surgery . She proceeded to insult me with one insult

> after another , and even put down my pain Dr (thankfully I have this man to

> control my pain )by saying those Dr's just wanted us to be addicts .This is

> the quality of Dr's you get out this way ...I also have some in my family

> who don't understand my need for drugs, although my immediate family does

> understand . My BIL and his physician fiancée both look at me as if I were a

> druggie , too .

> Sorry about the long introduction , but I've been venting for the last few

> days, this recent Dr has me so upset , and I know that no matter what Dr I

> go too,it will be the same,they're all hysterical about anyone on opiates .

> Les

>

> thecardiacclub <thecardiacclub%40yahoogroups.com>

>

chronicpainsupportclub4women <chronicpainsupportclub4women%40yaho\

ogroups.com>

>

> Looking for friends in a world of pain

> >

> > Hi my name is Kim, I have been living with chronic neck pain for two

> > and a half years, My last surgery was 7 months ago, The pain is

> > unbearable I feel like all I do is try to get through the day! I am

> > taking the pain medicine the doctors told me to take but it scares me

> > because I have been on it for 2 1/2 years, I have tried massage,

> > chiropractor & acupuncture nothing seems to be working they don't

> > understand why there is so much pain still. I am scared my whole life

> > has changed so dramatically! I feel bad for my husband and my kids

> > they did'nt sign up for this! I used to be this vibrant hard working

> > woman now I am a 38 year old woman who can't even ride in the car for

> > a long trip never mind working or excersing that is not even remotely

> > possible I try not to feel sorry for myself but sometimes you just get

> > in to one of them moods. I need to talk to people who are going

> > through the same things so that I feel I am not losing myself!

> > Sometimes I feel like my husband should take the kids and leave so

> > that they have some kind of a normal life but then my world would

> > really be empty and I would feel even more alone than I already do.

> > Any advice would be greatly appreciated thank you for listening.

> >

> >

> >

> > ------------------------------------

> >

> > To read these messages on the Hugs web site go to:

> > http://groups.yahoo.com/group/Hugs-N-Pain

> > you can contact me privately at starlyin@... <starlyin%40aol.com>

> > Rose

> > Owner/ Moderator Hugs N Pain

> > God Bless our Troops

> > Please Pray for them

[Guest guest]

I think 95% of all painers have had to deal with that kind of doctor but in time

we find one who relates to pain and understands it.

I was able to get my old family doc back after the two years it took to get on

disability and the medicare. I joined with one of those medicare programs that

really helps. Kind of like the ones you see advertised on tv.

At any rate he treats me and he does know me. He is very careful about these

kind of meds but I've never given him one reason to not believe everything I

tell him.

You have to look for these doctors who " get it " about pain.

A doctor who puts another doctor down like that....I wouldn't want to see. I

only know one doctor who was upset with a neuro doctor I saw because he was an

obvious jerk but she didn't say anything. It was the look on her face.

Some doctors don't want to be involved in the chronic pain situation because it

does mean ongoing opiates. So....they try the guilt trip and all kinds of

cutesy avoidance.

You find a doctor with compassion, follow all suggestions that are helpful. One

thing about docs, they like to see progress of some kind. They want to see

something getting better. Treating Chronic pain can be very draining on a

doctor as well as frustrating. It takes a special doc to take it on.

Not some lazy guy/gal who doesn't want to get into the mix and help.

I tell my doc how much I do this or that that betters my health and you can tell

he likes that. My last visit two days ago I told him how the new medicine was

working and how good my blood pressure is doing and how I increase my exercise

because of it and so on. (And I do what I promise to do) You get the picture.

Keep a record.

For most of us it took a number of years to land on the right doc. Make sure

you have all medical proof of pain with you when you see a new doc.

Anyway....running the guilt trip on a patient is really low class and running

down another doctor is really nasty stuff.

You kind of have to test the waters on how they respond to opiate

treatment...are they narcophobs?. This is common.

Narcophobia says a lot about some doctors today. You avoid them and find

someone who is interested in your pain and understands what untreated pain can

do to you in the long run.

Mostly keeping a record of folks on opiates is to prevent fraud and those

collecting doctors to get drugs. It may also be used to protect us from those

that will abuse the doctors/prescriptions. That sense of privacy sort of goes

to hell.

Once you find a good doctor who understands your chronic pain the family needs

to get involved and the doctor can be your biggest ally to help them understand.

I have this neat list of links that teach a lot and hopefully can be helpful to

you and yours...including a letter to normals who don't have chronic pain.

Sometimes I play around the web and find neat stuff on pain. Some of this stuff

will help you understand the doctors side of things. Hopefully it will help you

find the right one.

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

Intractable Pain Patient’s Handbook for Survival

http://pain-topics.org/pdf/IntractablePainSurvival.pdf

Pain Patients Bill Of Rights

http://www.cpmission.com/main/ourights.html

http://www.fmscommunity.org/billofrights.htm

What kind of doctor treats Chronic Pain. May help you your quest.

http://www.chronicpainhub.com/doctor-type-chronic-pain-treatment/

Myths Around Opoids. When doctors treat you like a weak person or a bad person.

http://www.nationalpainfoundation.org/MyTreatment/MyTreatment_Addiction_and_Chro\

nic_Pain.asp

I AM NOT A DRUG ADDICT! This is good.

http://www.drugpolicy.org/donate/involved/activist/silesky3.cfm

Chronic Pain Patient/Family Resources

http://guam-dl.slis.ua.edu/patientinfo/painmanagement/chronic-pain.htm

Letter to Normals from a Person with Chronic Pain

http://www.spine-health.com/forum/chronic-pain/letter-normals-a-person-chronic-p\

ain

Narcophobia

http://www.cssa-inc.org/Articles/narcophobia.htm

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

Good luck to you. When you do find the right doctor...it's like gold.

Lotacats

Express Chronic Pain Awareness

http://www.cafepress.com/lotacatspix/5815010

Lotacatsfunpix.com

http://www.lotacatsfunpix.com/

Deviantart

http://lotacats05.deviantart.com/

>

>

>

> Subject: RE: Looking for friends in a world

> of pain

> To: hugs-n-pain

> Date: Thursday, February 26, 2009, 4:08 PM

>

>

>

> Kim,

>

> I relate in a lot of ways to your post. You sound like a

> brave person feeling a little abandoned and overwhelmed. But

> you are not alone; please take some comfort in that. People

> here do understand.

>

> This year marks 20 years of unrelenting headache (from

> damage of brain surgery) and neck pain. I have lived on

> massive dosages of heavy narcotics, and they did help. Then

> my doctor moved and no other doc in this area will touch my

> case. Which led me to the pain clinic. I am hoping for the

> pump, but am in the early stages of trial procedures.

>

> There is nothing you can do to make your family

> understand; my finds me an embarrassment and a bother. Maybe

> if you speak with yours frankly and from the heart you will

> have better luck. I will pray for that. Support would be

> nice. Either way, you have to do what makes your quality of

> life the best possible. We all deserve that. Please

> don't let it overwhelm you; answers are out there and

> they are here too. This is a great group.

>

> Keeping you in my thoughts,

>

> elaine

>

>

>

>

>

> > To: Hugs-N-Pain

> > From: kimshomestyle@...

> > Date: Thu, 26 Feb 2009 15:37:13 +0000

> > Subject: Looking for friends in a

> world of pain

> >

> > Hi my name is Kim, I have been living with chronic

> neck pain for two

> > and a half years, My last surgery was 7 months ago,

> The pain is

> > unbearable I feel like all I do is try to get

> through the day! I am

> > taking the pain medicine the doctors told me to take

> but it scares me

> > because I have been on it for 2 1/2 years, I have

> tried massage,

> > chiropractor & acupuncture nothing seems to be

> working they don't

> > understand why there is so much pain still. I am

> scared my whole life

> > has changed so dramatically! I feel bad for my

> husband and my kids

> > they did'nt sign up for this! I used to be this

> vibrant hard working

> > woman now I am a 38 year old woman who can't

> even ride in the car for

> > a long trip never mind working or excersing that is

> not even remotely

> > possible I try not to feel sorry for myself but

> sometimes you just get

> > in to one of them moods. I need to talk to people

> who are going

> > through the same things so that I feel I am not

> losing myself!

> > Sometimes I feel like my husband should take the

> kids and leave so

> > that they have some kind of a normal life but then

> my world would

> > really be empty and I would feel even more alone

> than I already do.

> > Any advice would be greatly appreciated thank you

> for listening.

> >

> >

> >

> > ------------------------------------

> >

> > To read these messages on the Hugs web site go to:

> > http://groups.yahoo.com/group/Hugs-N-Pain

> > you can contact me privately at starlyin@...

> > Rose

> > Owner/ Moderator Hugs N Pain

> > God Bless our Troops

> > Please Pray for them

[Guest guest]

Hello Kim --

You mention having trigger point injections to your neck and upper cervical

vertebrae. It does take about 3-5 days for the steroids to " kick-in " but they

say you should begin to notice after 48 hours (at least my pain doctor does) and

to call back if there's no relief or increased pain. Did they do this under

floroscope guided ex-ray? If they didn't I'd highly recommend seeking out this

type of injection treatment as it's more through and accurate. I've had several

series of facet block/steroid injections to my lower lumbar spine -- they worked

about 50 % of the time -- and afterwards we moved to sympathetic nerve block and

heating of my nerve endings. The sympathetic nerve blocks have helped me quite a

bit. The heating of my nerve endings is still a wait and see kind of

thing/procedure.

I'm sorry to hear you're going through so much and in chronic pain all the time.

There's nothing worse. I hope this new healthcare legislation with regard to

chronic pain gets passed by congress -- as it will be tremendously helpful to

people living with chronic pain conditions. I'm fortunate enough to have

understanding GP & FNP's that I continue to work with. My GP is a D.O. versus

M.D. so she's willing to go the extra mile and research other avenues of

treatment.

Wishing you well Kim & Les .. P.S. Hello Donnie .. it's nice to see you once

again .. how are things out KY way? Ready for spring? Here's to it coming sooner

than later.

Warmly,

>

>

>

> From: Elaine Dowell <emdowelllive (DOT) com>

>

> Subject: RE: Looking for friends in a world of pain

>

> To: hugs-n-pain@ yahoogroups. com

>

> Date: Thursday, February 26, 2009, 4:08 PM

>

>

>

> Kim,

>

>

>

> I relate in a lot of ways to your post. You sound like a brave person

>

> feeling a little abandoned and overwhelmed. But you are not alone; please

>

> take some comfort in that. People here do understand.

>

>

>

> This year marks 20 years of unrelenting headache (from damage of brain

>

> surgery) and neck pain. I have lived on massive dosages of heavy narcotics,

>

> and they did help. Then my doctor moved and no other doc in this area will

>

> touch my case. Which led me to the pain clinic. I am hoping for the pump,

>

> but am in the early stages of trial procedures.

>

>

>

> There is nothing you can do to make your family understand; my finds me an

>

> embarrassment and a bother. Maybe if you speak with yours frankly and from

>

> the heart you will have better luck. I will pray for that. Support would be

>

> nice. Either way, you have to do what makes your quality of life the best

>

> possible. We all deserve that. Please don't let it overwhelm you; answers

>

> are out there and they are here too. This is a great group.

>

>

>

> Keeping you in my thoughts,

>

>

>

> elaine

>

>

>

> > To: Hugs-N-Pain@ yahoogroups. com

>

> > From: kimshomestyle@ yahoo.com

>

> > Date: Thu, 26 Feb 2009 15:37:13 +0000

>

> > Subject: Looking for friends in a world of pain

>

> >

>

> > Hi my name is Kim, I have been living with chronic neck pain for two

>

> > and a half years, My last surgery was 7 months ago, The pain is

>

> > unbearable I feel like all I do is try to get through the day! I am

>

> > taking the pain medicine the doctors told me to take but it scares me

>

> > because I have been on it for 2 1/2 years, I have tried massage,

>

> > chiropractor & acupuncture nothing seems to be working they don't

>

> > understand why there is so much pain still. I am scared my whole life

>

> > has changed so dramatically! I feel bad for my husband and my kids

>

> > they did'nt sign up for this! I used to be this vibrant hard working

>

> > woman now I am a 38 year old woman who can't even ride in the car for

>

> > a long trip never mind working or excersing that is not even remotely

>

> > possible I try not to feel sorry for myself but sometimes you just get

>

> > in to one of them moods. I need to talk to people who are going

>

> > through the same things so that I feel I am not losing myself!

>

> > Sometimes I feel like my husband should take the kids and leave so

>

> > that they have some kind of a normal life but then my world would

>

> > really be empty and I would feel even more alone than I already do.

>

> > Any advice would be greatly appreciated thank you for listening.

>

> >

>

> >

>

> >

>

> > ------------ --------- --------- ------

>

> >

>

> > To read these messages on the Hugs web site go to:

>

> > http://groups. yahoo.com/ group/Hugs- N-Pain

>

> > you can contact me privately at starlyinaol (DOT) com

>

> > Rose

>

> > Owner/ Moderator Hugs N Pain

>

> > God Bless our Troops

>

> > Please Pray for them

[Guest guest]

Very much agreed Deta .. wholeheartedly so. Hello Les .. how horrifing the state

senate of AZ actually got away with passing such nasty legislation -- never the

less having doctor's violate their hypocratic oath to due no harm. Have you

tried calling your senators/representatives? I would think there are many others

in AZ living with chronic pain as well. Leaves me speechless and fortunate to

live where I do no less. Thinking of you and listening.

Warmly,

> >

> > From: Elaine Dowell <emdowell@... <emdowell%40live.com>>

> > Subject: RE: Looking for friends in a world of pain

> > To: hugs-n-pain <hugs-n-pain%40yahoogroups.com>

> > Date: Thursday, February 26, 2009, 4:08 PM

> >

> > Kim,

> >

> > I relate in a lot of ways to your post. You sound like a brave person

> > feeling a little abandoned and overwhelmed. But you are not alone; please

> > take some comfort in that. People here do understand.

> >

> > This year marks 20 years of unrelenting headache (from damage of brain

> > surgery) and neck pain. I have lived on massive dosages of heavy narcotics,

> > and they did help. Then my doctor moved and no other doc in this area will

> > touch my case. Which led me to the pain clinic. I am hoping for the pump,

> > but am in the early stages of trial procedures.

> >

> > There is nothing you can do to make your family understand; my finds me an

> > embarrassment and a bother. Maybe if you speak with yours frankly and from

> > the heart you will have better luck. I will pray for that. Support would be

> > nice. Either way, you have to do what makes your quality of life the best

> > possible. We all deserve that. Please don't let it overwhelm you; answers

> > are out there and they are here too. This is a great group.

> >

> > Keeping you in my thoughts,

> >

> > elaine

> >

> > > To: Hugs-N-Pain <Hugs-N-Pain%40yahoogroups.com>

> > > From: kimshomestyle@... <kimshomestyle%40yahoo.com>

> > > Date: Thu, 26 Feb 2009 15:37:13 +0000

> > > Subject: Looking for friends in a world of pain

> > >

> > > Hi my name is Kim, I have been living with chronic neck pain for two

> > > and a half years, My last surgery was 7 months ago, The pain is

> > > unbearable I feel like all I do is try to get through the day! I am

> > > taking the pain medicine the doctors told me to take but it scares me

> > > because I have been on it for 2 1/2 years, I have tried massage,

> > > chiropractor & acupuncture nothing seems to be working they don't

> > > understand why there is so much pain still. I am scared my whole life

> > > has changed so dramatically! I feel bad for my husband and my kids

> > > they did'nt sign up for this! I used to be this vibrant hard working

> > > woman now I am a 38 year old woman who can't even ride in the car for

> > > a long trip never mind working or excersing that is not even remotely

> > > possible I try not to feel sorry for myself but sometimes you just get

> > > in to one of them moods. I need to talk to people who are going

> > > through the same things so that I feel I am not losing myself!

> > > Sometimes I feel like my husband should take the kids and leave so

> > > that they have some kind of a normal life but then my world would

> > > really be empty and I would feel even more alone than I already do.

> > > Any advice would be greatly appreciated thank you for listening.

> > >

> > >

> > >

> > > ------------------------------------

> > >

> > > To read these messages on the Hugs web site go to:

> > > http://groups.yahoo.com/group/Hugs-N-Pain

> > > you can contact me privately at starlyin@... <starlyin%40aol.com>

> > > Rose

> > > Owner/ Moderator Hugs N Pain

> > > God Bless our Troops

> > > Please Pray for them

[Guest guest]

I think 95% of all painers have had to deal with that kind of doctor but in

time we find one who relates to pain and understands it.

I was able to get my old family doc back after the two years it took to get on

disability and the medicare. I joined with one of those medicare programs that

really helps. Kind of like the ones you see advertised on tv.

At any rate he treats me and he does know me. He is very careful about these

kind of meds but I've never given him one reason to not believe everything I

tell him.

You have to look for these doctors who " get it " about pain.

---------------------

I thought I had a good sympathetic one, but one day she turned on me and told

me to get rid of the opiates . Then the new one I went too was even worse, and

I'm wondering if they'll all be that way now that AZ has the drug data base -the

Dr's are abusing it in the wrong way by persecuting the ones who really need

these drugs .I asked my pain Dr for a referral to a sympathetic Dr , and he just

laughed, like as in " good luck ! "

A doctor who puts another doctor down like that....I wouldn't want to see. I

only know one doctor who was upset with a neuro doctor I saw because he was an

obvious jerk but she didn't say anything. It was the look on her face.

--------------------------------------------------------

This Dr was so nasty, I'm still traumatized from all she said to me .She seems

pretty wealthy ,and also does botox and laser and cosmetic surgery , she even

has a lab . It's all about the money and nothing else with her .

Some doctors don't want to be involved in the chronic pain situation because

it does mean ongoing opiates. So....they try the guilt trip and all kinds of

cutesy avoidance.

--------------------

What amazes me is that she isn't even prescribing my drugs , yet she accuses

me of not needing them, and even said in an accusing voice " You're afraid your

drugs are going to be taken away from you, aren't you ! " She is one evil woman

.....

You find a doctor with compassion, follow all suggestions that are helpful.

One thing about docs, they like to see progress of some kind. They want to see

something getting better. Treating Chronic pain can be very draining on a

doctor as well as frustrating. It takes a special doc to take it on.

--------

Thankfully we have pain clinics, these Dr's do want to control our pain and

make us comfortable .

Not some lazy guy/gal who doesn't want to get into the mix and help.

I tell my doc how much I do this or that that betters my health and you can

tell he likes that. My last visit two days ago I told him how the new medicine

was working and how good my blood pressure is doing and how I increase my

exercise because of it and so on. (And I do what I promise to do) You get the

picture. Keep a record.

For most of us it took a number of years to land on the right doc. Make sure

you have all medical proof of pain with you when you see a new doc.

Anyway....running the guilt trip on a patient is really low class and running

down another doctor is really nasty stuff.

----------------

I do that , I keep copies of all my records ...this woman just looked at them

and commented that it's part of getting old, all my illnesses ....

You kind of have to test the waters on how they respond to opiate

treatment...are they narcophobs?. This is common.

Narcophobia says a lot about some doctors today. You avoid them and find

someone who is interested in your pain and understands what untreated pain can

do to you in the long run.

-------------

That would be my pain Dr. ;too bad he can't be my PCP too....

Mostly keeping a record of folks on opiates is to prevent fraud and those

collecting doctors to get drugs. It may also be used to protect us from those

that will abuse the doctors/prescriptions. That sense of privacy sort of goes

to hell.

------------------------

And what I'm seeing here in Az is that it's working against chronic pain

sufferers , they've been thrown into the mix with all the abusers .

Once you find a good doctor who understands your chronic pain the family needs

to get involved and the doctor can be your biggest ally to help them understand.

I have this neat list of links that teach a lot and hopefully can be helpful

to you and yours...including a letter to normals who don't have chronic pain.

Sometimes I play around the web and find neat stuff on pain. Some of this

stuff will help you understand the doctors side of things. Hopefully it will

help you find the right one.\

--------

Thanks so much for all the links, I'll go there right now and read them !

Les

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

Intractable Pain Patient’s Handbook for Survival

http://pain-topics.org/pdf/IntractablePainSurvival.pdf

Pain Patients Bill Of Rights

http://www.cpmission.com/main/ourights.html

http://www.fmscommunity.org/billofrights.htm

What kind of doctor treats Chronic Pain. May help you your quest.

http://www.chronicpainhub.com/doctor-type-chronic-pain-treatment/

Myths Around Opoids. When doctors treat you like a weak person or a bad

person.

http://www.nationalpainfoundation.org/MyTreatment/MyTreatment_Addiction_and_Chro\

nic_Pain.asp

I AM NOT A DRUG ADDICT! This is good.

http://www.drugpolicy.org/donate/involved/activist/silesky3.cfm

Chronic Pain Patient/Family Resources

http://guam-dl.slis.ua.edu/patientinfo/painmanagement/chronic-pain.htm

Letter to Normals from a Person with Chronic Pain

http://www.spine-health.com/forum/chronic-pain/letter-normals-a-person-chronic-p\

ain

Narcophobia

http://www.cssa-inc.org/Articles/narcophobia.htm

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

Good luck to you. When you do find the right doctor...it's like gold.

Lotacats

Express Chronic Pain Awareness

http://www.cafepress.com/lotacatspix/5815010

Lotacatsfunpix.com

http://www.lotacatsfunpix.com/

Deviantart

http://lotacats05.deviantart.com/

>

>

>

> Subject: RE: Looking for friends in a world

> of pain

> To: hugs-n-pain

> Date: Thursday, February 26, 2009, 4:08 PM

>

>

>

> Kim,

>

> I relate in a lot of ways to your post. You sound like a

> brave person feeling a little abandoned and overwhelmed. But

> you are not alone; please take some comfort in that. People

> here do understand.

>

> This year marks 20 years of unrelenting headache (from

> damage of brain surgery) and neck pain. I have lived on

> massive dosages of heavy narcotics, and they did help. Then

> my doctor moved and no other doc in this area will touch my

> case. Which led me to the pain clinic. I am hoping for the

> pump, but am in the early stages of trial procedures.

>

> There is nothing you can do to make your family

> understand; my finds me an embarrassment and a bother. Maybe

> if you speak with yours frankly and from the heart you will

> have better luck. I will pray for that. Support would be

> nice. Either way, you have to do what makes your quality of

> life the best possible. We all deserve that. Please

> don't let it overwhelm you; answers are out there and

> they are here too. This is a great group.

>

> Keeping you in my thoughts,

>

> elaine

>

>

>

>

>

> > To: Hugs-N-Pain

> > From: kimshomestyle@...

> > Date: Thu, 26 Feb 2009 15:37:13 +0000

> > Subject: Looking for friends in a

> world of pain

> >

> > Hi my name is Kim, I have been living with chronic

> neck pain for two

> > and a half years, My last surgery was 7 months ago,

> The pain is

> > unbearable I feel like all I do is try to get

> through the day! I am

> > taking the pain medicine the doctors told me to take

> but it scares me

> > because I have been on it for 2 1/2 years, I have

> tried massage,

> > chiropractor & acupuncture nothing seems to be

> working they don't

> > understand why there is so much pain still. I am

> scared my whole life

> > has changed so dramatically! I feel bad for my

> husband and my kids

> > they did'nt sign up for this! I used to be this

> vibrant hard working

> > woman now I am a 38 year old woman who can't

> even ride in the car for

> > a long trip never mind working or excersing that is

> not even remotely

> > possible I try not to feel sorry for myself but

> sometimes you just get

> > in to one of them moods. I need to talk to people

> who are going

> > through the same things so that I feel I am not

> losing myself!

> > Sometimes I feel like my husband should take the

> kids and leave so

> > that they have some kind of a normal life but then

> my world would

> > really be empty and I would feel even more alone

> than I already do.

> > Any advice would be greatly appreciated thank you

> for listening.

> >

> >

> >

> > ------------------------------------

> >

> > To read these messages on the Hugs web site go to:

> > http://groups.yahoo.com/group/Hugs-N-Pain

> > you can contact me privately at starlyin@...

> > Rose

> > Owner/ Moderator Hugs N Pain

> > God Bless our Troops

> > Please Pray for them

[Guest guest]

Thanks, !

What is the new legislation for chronic pain sufferers, I don't know if I'm

familiar with it ?

Les

thecardiacclub

chronicpainsupportclub4women

Looking for friends in a world of pain

>

> >

>

> > Hi my name is Kim, I have been living with chronic neck pain for two

>

> > and a half years, My last surgery was 7 months ago, The pain is

>

> > unbearable I feel like all I do is try to get through the day! I am

>

> > taking the pain medicine the doctors told me to take but it scares me

>

> > because I have been on it for 2 1/2 years, I have tried massage,

>

> > chiropractor & acupuncture nothing seems to be working they don't

>

> > understand why there is so much pain still. I am scared my whole life

>

> > has changed so dramatically! I feel bad for my husband and my kids

>

> > they did'nt sign up for this! I used to be this vibrant hard working

>

> > woman now I am a 38 year old woman who can't even ride in the car for

>

> > a long trip never mind working or excersing that is not even remotely

>

> > possible I try not to feel sorry for myself but sometimes you just get

>

> > in to one of them moods. I need to talk to people who are going

>

> > through the same things so that I feel I am not losing myself!

>

> > Sometimes I feel like my husband should take the kids and leave so

>

> > that they have some kind of a normal life but then my world would

>

> > really be empty and I would feel even more alone than I already do.

>

> > Any advice would be greatly appreciated thank you for listening.

>

> >

>

> >

>

> >

>

> > ------------ --------- --------- ------

>

> >

>

> > To read these messages on the Hugs web site go to:

>

> > http://groups. yahoo.com/ group/Hugs- N-Pain

>

> > you can contact me privately at starlyinaol (DOT) com

>

> > Rose

>

> > Owner/ Moderator Hugs N Pain

>

> > God Bless our Troops

>

> > Please Pray for them

[Guest guest]

These links were wonderful, WOW ! I've already printed the pain patient's bill

of rights to send to a couple of Dr's who think all pain sufferers are drug

addicts .

Les

thecardiacclub

chronicpainsupportclub4women

Looking for friends in a

> world of pain

> >

> > Hi my name is Kim, I have been living with chronic

> neck pain for two

> > and a half years, My last surgery was 7 months ago,

> The pain is

> > unbearable I feel like all I do is try to get

> through the day! I am

> > taking the pain medicine the doctors told me to take

> but it scares me

> > because I have been on it for 2 1/2 years, I have

> tried massage,

> > chiropractor & acupuncture nothing seems to be

> working they don't

> > understand why there is so much pain still. I am

> scared my whole life

> > has changed so dramatically! I feel bad for my

> husband and my kids

> > they did'nt sign up for this! I used to be this

> vibrant hard working

> > woman now I am a 38 year old woman who can't

> even ride in the car for

> > a long trip never mind working or excersing that is

> not even remotely

> > possible I try not to feel sorry for myself but

> sometimes you just get

> > in to one of them moods. I need to talk to people

> who are going

> > through the same things so that I feel I am not

> losing myself!

> > Sometimes I feel like my husband should take the

> kids and leave so

> > that they have some kind of a normal life but then

> my world would

> > really be empty and I would feel even more alone

> than I already do.

> > Any advice would be greatly appreciated thank you

> for listening.

> >

> >

> >

> > ------------------------------------

> >

> > To read these messages on the Hugs web site go to:

> > http://groups.yahoo.com/group/Hugs-N-Pain

> > you can contact me privately at starlyin@...

> > Rose

> > Owner/ Moderator Hugs N Pain

> > God Bless our Troops

> > Please Pray for them

[Guest guest]

Hi, ,

I was horrified and felt violated when I found this out ! It was then it dawned

on me why I was being treated like a drug addicted outcast ! My senators aren't

anyone I feel that I would get anywhere with , especially since I read they were

in favor of this bill . Thanks so much for understanding .No one should have had

to endure the inflammatory dressing down I got for no reason at all .I was in a

patient gown at the time, so I couldn't even get up and walk out of the room, it

was really traumatizing . My husband could hear her loud voice clear out in the

waiting room .

Les

thecardiacclub

chronicpainsupportclub4women

Looking for friends in a world of pain

> > >

> > > Hi my name is Kim, I have been living with chronic neck pain for two

> > > and a half years, My last surgery was 7 months ago, The pain is

> > > unbearable I feel like all I do is try to get through the day! I am

> > > taking the pain medicine the doctors told me to take but it scares me

> > > because I have been on it for 2 1/2 years, I have tried massage,

> > > chiropractor & acupuncture nothing seems to be working they don't

> > > understand why there is so much pain still. I am scared my whole life

> > > has changed so dramatically! I feel bad for my husband and my kids

> > > they did'nt sign up for this! I used to be this vibrant hard working

> > > woman now I am a 38 year old woman who can't even ride in the car for

> > > a long trip never mind working or excersing that is not even remotely

> > > possible I try not to feel sorry for myself but sometimes you just get

> > > in to one of them moods. I need to talk to people who are going

> > > through the same things so that I feel I am not losing myself!

> > > Sometimes I feel like my husband should take the kids and leave so

> > > that they have some kind of a normal life but then my world would

> > > really be empty and I would feel even more alone than I already do.

> > > Any advice would be greatly appreciated thank you for listening.

> > >

> > >

> > >

> > > ------------------------------------

> > >

> > > To read these messages on the Hugs web site go to:

> > > http://groups.yahoo.com/group/Hugs-N-Pain

> > > you can contact me privately at starlyin@... <starlyin%40aol.com>

> > > Rose

> > > Owner/ Moderator Hugs N Pain

> > > God Bless our Troops

> > > Please Pray for them

[Guest guest]

I thought I had the very best pain management physician there was. thing is.

when I started seeing him his practice was beginning here 5 years ago. Now his

practice is booming. he has more patients than he can see. he was coming to a

medical complex 12 miles from where I live. but he has gotten way to busy to

travel to 3 offices. he is in 2 offices now so I drive 20 which isn't really

that bad. and I guess I will continue to see him. but if you need something

before your 3 months is up U are just #$%# out of luck. this really upsets me.

the last several times I have been he has increased my meds as I asked, but what

if the med doesn't work??? you are still out of luck. Within the first 3 years

I went to him he was going through tech's like crazy because of his schedule.

well he has one now and she is a young little * & (^*. my last appt. I was sitting

in the waiting room I had been there well over a hour and had been to the appt

desk 2 times to see what the problem was. the waiting room had emptied out 2

times. She said she thought I was seeing them after lunch in their other office.

now that made a lot of sense it was like 8:45 when I got there. and the other

office was about 20 further from my home???? So, you don't really have to write

me a letter the new tech does not like me. She was scared I was going to report

her tail and I should have. but I didn't want anymore black marks with her. I

don't know where I got the first ones. At, any rate my Dr used to be really

concerned and would talk to me for at least 5 minutes. if he is in the room for

2 minutes now I consider myself very lucky. and I just don't want to go through

getting to know a new Dr. esp. pain management.!!!!!! I do NOT want to wish

the pain we all have on anyone. but some times I wish the people that give us

such a hard time could have this pain for just 1 day. but then I am sure they

would swear no one else had ever hurt that bad. In, my early years of nursing I

worked surgical and orthopedic. I admit I owe very many people a apology. I had

no idea at that point what pain was. . .... I have tried to tell my daughter

in law that has just passed her boards and is a RN BSN to try and have sympathy

for people as that is one thing you can not know is how bad their pain is.

I guess I typed all this to say I think it is terrible the way we are treated.

but if these people that are marking us could just live a couple of days of our

lives I know they would look at us differently.. Just this year in GA. Everyone

had to have a drug test and could have a random at any time. this is something

that I have never had done. The addicts have also made it really hard on us. We

go to the Dr. pay unreal prices to the DR, pharmacy, etc.... but nothing is

said, it seems about the ones that are selling and buying illegal and going to

the liquor store etc. and we are giving the worst time. I just don't understand

either.

Jena in Ga.

Looking for friends in a

> world of pain

> >

> > Hi my name is Kim, I have been living with chronic

> neck pain for two

> > and a half years, My last surgery was 7 months ago,

> The pain is

> > unbearable I feel like all I do is try to get

> through the day! I am

> > taking the pain medicine the doctors told me to take

> but it scares me

> > because I have been on it for 2 1/2 years, I have

> tried massage,

> > chiropractor & acupuncture nothing seems to be

> working they don't

> > understand why there is so much pain still. I am

> scared my whole life

> > has changed so dramatically! I feel bad for my

> husband and my kids

> > they did'nt sign up for this! I used to be this

> vibrant hard working

> > woman now I am a 38 year old woman who can't

> even ride in the car for

> > a long trip never mind working or excersing that is

> not even remotely

> > possible I try not to feel sorry for myself but

> sometimes you just get

> > in to one of them moods. I need to talk to people

> who are going

> > through the same things so that I feel I am not

> losing myself!

> > Sometimes I feel like my husband should take the

> kids and leave so

> > that they have some kind of a normal life but then

> my world would

> > really be empty and I would feel even more alone

> than I already do.

> > Any advice would be greatly appreciated thank you

> for listening.

> >

> >

> >

> > ------------------------------------

> >

> > To read these messages on the Hugs web site go to:

> > http://groups.yahoo.com/group/Hugs-N-Pain

> > you can contact me privately at starlyin@...

> > Rose

> > Owner/ Moderator Hugs N Pain

> > God Bless our Troops

> > Please Pray for them

[Guest guest]

I sympathize with you, Jena . I would have been livid , with what that

receptionist did to you ! I'm glad you passed that advice along to your DIL . It

seems that usually the nurses are much more up to date and understanding about

chronic pain . The Dr's are turning on all of us instead of the drug addicts

..I'm really concerned that they're going to work real hard to shut down the pain

clinics so that everyone has to suffer . OMG, what is happening ?

Les

thecardiacclub

chronicpainsupportclub4women

Looking for friends in a

> world of pain

> >

> > Hi my name is Kim, I have been living with chronic

> neck pain for two

> > and a half years, My last surgery was 7 months ago,

> The pain is

> > unbearable I feel like all I do is try to get

> through the day! I am

> > taking the pain medicine the doctors told me to take

> but it scares me

> > because I have been on it for 2 1/2 years, I have

> tried massage,

> > chiropractor & acupuncture nothing seems to be

> working they don't

> > understand why there is so much pain still. I am

> scared my whole life

> > has changed so dramatically! I feel bad for my

> husband and my kids

> > they did'nt sign up for this! I used to be this

> vibrant hard working

> > woman now I am a 38 year old woman who can't

> even ride in the car for

> > a long trip never mind working or excersing that is

> not even remotely

> > possible I try not to feel sorry for myself but

> sometimes you just get

> > in to one of them moods. I need to talk to people

> who are going

> > through the same things so that I feel I am not

> losing myself!

> > Sometimes I feel like my husband should take the

> kids and leave so

> > that they have some kind of a normal life but then

> my world would

> > really be empty and I would feel even more alone

> than I already do.

> > Any advice would be greatly appreciated thank you

> for listening.

> >

> >

> >

> > ------------------------------------

> >

> > To read these messages on the Hugs web site go to:

> > http://groups.yahoo.com/group/Hugs-N-Pain

> > you can contact me privately at starlyin@...

> > Rose

> > Owner/ Moderator Hugs N Pain

> > God Bless our Troops

> > Please Pray for them

[Guest guest]

Hi Les,

I am sorry for your experiences with doctors! I've had a few Dr's that were

just plain mean & ignorant about pain. I am very blessed right now to have an

angel for a Dr. There are some great Dr's around, it's just challenging to find

them. Some people have had good results from using the American Pain

Foundation's Dr search:

http://www.painfoundation.org/ResourceLocator.asp

APF is also dedicated to help pain patients and they nave several good articles

and other resources;it's really a good resource.

Best of luck to you & take care!

 

Hugs,

 

From: Elaine Dowell <emdowelllive (DOT) com>

Subject: RE: Looking for friends in a world of pain

To: hugs-n-pain@ yahoogroups. com

Date: Thursday, February 26, 2009, 4:08 PM

Kim,

I relate in a lot of ways to your post. You sound like a brave person feeling a

little abandoned and overwhelmed. But you are not alone; please take some

comfort in that. People here do understand.

This year marks 20 years of unrelenting headache (from damage of brain surgery)

and neck pain. I have lived on massive dosages of heavy narcotics, and they did

help. Then my doctor moved and no other doc in this area will touch my case.

Which led me to the pain clinic. I am hoping for the pump, but am in the early

stages of trial procedures.

There is nothing you can do to make your family understand; my finds me an

embarrassment and a bother. Maybe if you speak with yours frankly and from the

heart you will have better luck. I will pray for that. Support would be nice.

Either way, you have to do what makes your quality of life the best possible. We

all deserve that. Please don't let it overwhelm you; answers are out there and

they are here too. This is a great group.

Keeping you in my thoughts,

elaine

> To: Hugs-N-Pain@ yahoogroups. com

> From: kimshomestyle@ yahoo.com

> Date: Thu, 26 Feb 2009 15:37:13 +0000

> Subject: Looking for friends in a world of pain

>

> Hi my name is Kim, I have been living with chronic neck pain for two

> and a half years, My last surgery was 7 months ago, The pain is

> unbearable I feel like all I do is try to get through the day! I am

> taking the pain medicine the doctors told me to take but it scares me

> because I have been on it for 2 1/2 years, I have tried massage,

> chiropractor & acupuncture nothing seems to be working they don't

> understand why there is so much pain still. I am scared my whole life

> has changed so dramatically! I feel bad for my husband and my kids

> they did'nt sign up for this! I used to be this vibrant hard working

> woman now I am a 38 year old woman who can't even ride in the car for

> a long trip never mind working or excersing that is not even remotely

> possible I try not to feel sorry for myself but sometimes you just get

> in to one of them moods. I need to talk to people who are going

> through the same things so that I feel I am not losing myself!

> Sometimes I feel like my husband should take the kids and leave so

> that they have some kind of a normal life but then my world would

> really be empty and I would feel even more alone than I already do.

> Any advice would be greatly appreciated thank you for listening.

>

>

>

> ------------ --------- --------- ------

>

> To read these messages on the Hugs web site go to:

> http://groups. yahoo.com/ group/Hugs- N-Pain

> you can contact me privately at starlyinaol (DOT) com

> Rose

> Owner/ Moderator Hugs N Pain

> God Bless our Troops

> Please Pray for them