Handle

[Guest guest]

Hi Jeanie,

Thank you for the recent fee schedule for Judith at the HANDLE Institute! That

is very exciting that you will be travelling

to Michigan to see her. I will be very interested to see how you and MacKenzie

like the exercises.

wendy

> ,

> Judith's fee is now $1300.00 in Seattle and $1600.00 when she's

> travelling to do an assessment. This fee includes 6 months worth of

> follow up, via video tape if necessary.

>

> Jeanie Colp

> We are tentatively planning to go to Michigan, Nov. 1st.

[Guest guest]

Our cost for the Handle Institute was $1600. We were told that " sometimes "

the insurance companies do pay. Our pediatrician is going to write a letter

for us but we really don't know if insurnance will pay yet. My husband and

I decided that we just needed to try this as it seems as though we had

exhausted our sources for helping with improvement.

At our 1 week follow-up last Monday the 4 physical therapist being trained

by Judith said that they saw improvement. I too was not sure I saw it.

(too close and too hopeful). However after 2 weeks I honestly feel that

Karlee's muscle tone has a different feel. I have always noticed how much

different my nieces and nephews felt when picked up compared to Karlee. I

really believe her muscle tone is improving which surely will help with a

fatigue problem at school.

We are to keep in touch by e-mail with Judith and will be seen sometime in

the next 6 months when she is in the midwest again.

When I met with Karlee's 5th grade teachers this week I explained what we

were doing. (as well as what CHARGE syndrome is, what Karlee has been

through, what a hearing loss means in the classroom and what adaptations

need to be made for hearing, low muscle tone, poor balance, and weak

binocular vision) I told them that I expect improvement in her condition

but I don't know how fast or how much.

When I asked my principal for time to speak to the teachers he asked if I

would need 15 minutes. (He didn't have a clue how complicated this is) I

said I needed at least 45 minutes. It ended up being 1 hour and 20 minutes.

Everyone seemed very cooperative and flexible.

from IL (Karlee 11 years)