Re: wendy surgery scheduled for next friday

[Guest guest]

surgery for tethered cord next Friday.  Tight Filum Terminale with lipoma. 

Somebody please give me some info on what to expect such as pain afterward?  How

long should I expect to be in hospital?  How long should I expect to be off

work.  Doctor told me probably two or three days hospital 3-4 weeks back to

work?  Doctor little hard to understand, I think he said it would be a

decompressive laminectomy.  thanks wendy

>>>>

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>>>> Subject: I need help dealing with family and life's

>>> frustration

>>>> To: tetheredspinalcord@ yahoogroups. com

>>>> Date: Monday, December 29, 2008, 11:32 PM

>>>>

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>>>> I'm 25 years old and need help with how to deal with family. I have

>>> a

>>>> tethered cord and been thru 4 surgery's. Each time it only took

>>> about

>>>> 6 months to recover and be up walking again but this last one has

>>>> taken over 2 years of full time PT. With my new PT program I am

>>>> FINALLY showing faster (Still slow for me) signs of improving but

>>>> still on a walker.

>>>>

>>>> What is difficult is walking up every morning knowing that

>>> everything

>>>> I do that day is going to be difficult. And when something no matter

>>>> how small it is goes wrong or is harder I get frustrated and my mood

>>>> changes. And when that happens I snap when my parents tell me to

>>> " get

>>>> over it " or " move on, your frustration is making it worse, you are

>>>> making your life harder " Basically my parents no matter how much

>>> pain

>>>> I'm in, how little of sleep I got or how hard it is for me to take a

>>>> step, want me to suck it up, move past it and be happy/positive/

>>> smile.

>>>> But I cant, no matter how hard I try. I'm working out 5 to 6 hours a

>>>> day to walk again and I'm at this point " Is it really worth all this

>>>> frustration "

>>>> I'm sorry but if you are not dealing with a TC you have no idea what

>>>> we deal with every day. So how do I get this point across to my

>>>> family? Since they feel they know exactly what I am going thru since

>>>> they have been going thru this with me since I was 13.

>>>>

>>>> I need help because I'm really tired of being in a constant shitty

>>>> mood because I have been told by my parent that its my fault I'm

>>> still

>>>> battling recovery due to my frustration. Soon I'm afraid I'm just

>>>> going to give up!

>>>>

>>>>

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[Guest guest]

3-4 weeks off work sounds very ambitious. Everyone heals at a different rates

but I think 1-3 months is more realistic. I think I have heard some people in

this group go back after a month, but others after several months or longer. I

am not back to work 10 months post-op but have other issues going on as well. I

could not have imagined going back to work till at least 3 months post-op when I

think back to my initial recovery. Also depends on your job, sedentary or not.

I was told 3-4 days in hospital but was there for 5. All depends how soon you

are up walking and navigating stairs. Expect to be lying down for the first 24

hours to try and avoid a spinal leak. I remember the pain not being that bad

until I got off the morphine which I had real trouble with. I do remember day

two being the worst and then starting to feel better on day 3. Once you get up

walking and moving around the pain will actually decrease. Do you have someone

at home to help you out when you get discharged? I really needed my husband

home for the first week to help me with showering, dressing, meals, etc. I also

really needed him in hospital when I was flat on my back. If you have any

specific questions feel free to ask.

To: tetheredspinalcord

From: wenrn68@...

Date: Thu, 8 Jan 2009 21:06:00 -0800

Subject: Re: wendy surgery scheduled for next friday

surgery for tethered cord next Friday. Tight Filum Terminale with

lipoma. Somebody please give me some info on what to expect such as pain

afterward? How long should I expect to be in hospital? How long should I

expect to be off work. Doctor told me probably two or three days hospital 3-4

weeks back to work? Doctor little hard to understand, I think he said it would

be a decompressive laminectomy. thanks wendy

>>>>

>>>>

>>>> Subject: I need help dealing with family and life's

>>> frustration

>>>> To: tetheredspinalcord@ yahoogroups. com

>>>> Date: Monday, December 29, 2008, 11:32 PM

>>>>

>>>>

>>>>

>>>>

>>>>

>>>>

>>>> I'm 25 years old and need help with how to deal with family. I have

>>> a

>>>> tethered cord and been thru 4 surgery's. Each time it only took

>>> about

>>>> 6 months to recover and be up walking again but this last one has

>>>> taken over 2 years of full time PT. With my new PT program I am

>>>> FINALLY showing faster (Still slow for me) signs of improving but

>>>> still on a walker.

>>>>

>>>> What is difficult is walking up every morning knowing that

>>> everything

>>>> I do that day is going to be difficult. And when something no matter

>>>> how small it is goes wrong or is harder I get frustrated and my mood

>>>> changes. And when that happens I snap when my parents tell me to

>>> " get

>>>> over it " or " move on, your frustration is making it worse, you are

>>>> making your life harder " Basically my parents no matter how much

>>> pain

>>>> I'm in, how little of sleep I got or how hard it is for me to take a

>>>> step, want me to suck it up, move past it and be happy/positive/

>>> smile.

>>>> But I cant, no matter how hard I try. I'm working out 5 to 6 hours a

>>>> day to walk again and I'm at this point " Is it really worth all this

>>>> frustration "

>>>> I'm sorry but if you are not dealing with a TC you have no idea what

>>>> we deal with every day. So how do I get this point across to my

>>>> family? Since they feel they know exactly what I am going thru since

>>>> they have been going thru this with me since I was 13.

>>>>

>>>> I need help because I'm really tired of being in a constant shitty

>>>> mood because I have been told by my parent that its my fault I'm

>>> still

>>>> battling recovery due to my frustration. Soon I'm afraid I'm just

>>>> going to give up!

>>>>

>>>>

>>>>

>>>>

>>>>

>>>>

>>>>

>>>>

>>>>

>>>>

>>>>

>>>>

>>>>

>>>>

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