Strokes

[Guest guest]

wrote:

>When I had my stroke in '86, the doctor never even told me it

happened! I

>thought all the problems I was having were due to brain stem

damage. I found

>out about 6 months after the operation for some therapists. I

wanted to

>asked the doctor why he was such a wimp and did not tell me. But

I had a

>great deal of respect for this doctor (and still do). I never

did ask so

>perhaps we are both wimps?

Each time I had my strokes, the doctors were wimps too. They

never told me what was wrong. With my first one, the doctor

glowed before the surgery, " Oh, with her age she will be back to

school in a week or two. " I was 17, in my senior year of high

school. Well, after the surgery... when I was a complete mess

in the hospital room, he took my mom out in the hall, " I don't

know what happened... this wasn't supposed to happen. " I dont

think I ever really saw him come in my room again. He would just

have his " assistants " come look at me and say only a few words

like , " she's going to be fine " to my mom in the hallway.

Jennette

[Guest guest]

Hi All

I found this page today and found it very interesting,

www.ntu.ac.uk/ess/hallam/health/phildi.htm

I have also sent an email to one group asking about the Strokes we are

reporting, I will send you any answer I receive.

[Guest guest]

/NF2 Crew,

Are strokes common re NF2, my mother after surgery had a haemorrhage?, not sure

as it looked more as a result of a stroke, which lead to total paralysis on her

left side. At first it improved slightly but she was never able to swallow or

walk after the operation. I was wondering if this happens to others with NF2, we

were told it was not the tumour operation that caused the problem, it was the

need for further surgery during the night prior to the removal. Is there a risk

of strokes re the operation if so why does no one say? Over the five years after

the operation from time to time she had odd feelings in her fingers and legs, I

mean tingly sort of feeling. We were given no warning of this happening.

Just for information also, there is the Chest, Heart and Stroke Association if

anyone wants information (UK), let me know if you want any information.

Crawford

Strokes

Hi All

I found this page today and found it very interesting,

www.ntu.ac.uk/ess/hallam/health/phildi.htm

I have also sent an email to one group asking about the Strokes we are

reporting, I will send you any answer I receive.

[Guest guest]

Hi ,

I'm not a stroke expert so I am only giving you my opinion. A hemorrhage is

a stroke caused by bleeding in the brain as correctly pointed out and I

erred about. In any case, I believe having an NF2 type operation (ie,

involving the head) presents a significant risk of a stroke. How much of a

risk I do not know but we are trying to find out. Your guess is as good as

mine as to why the doctors generally do not mention this risk before the

surgery or, if you do have a stroke, explain what happened after the surgery.

>/NF2 Crew,

>Are strokes common re NF2, my mother after surgery had a haemorrhage?, not

sure as it looked more as a result of a stroke, which lead to total

paralysis on her left side. At first it improved slightly but she was never

able to swallow or walk after the operation. I was wondering if this happens

to others with NF2, we were told it was not the tumour operation that caused

the problem, it was the need for further surgery during the night prior to

the removal. Is there a risk of strokes re the operation if so why does no

one say? Over the five years after the operation from time to time she had

odd feelings in her fingers and legs, I mean tingly sort of feeling. We were

given no warning of this happening.

>Just for information also, there is the Chest, Heart and Stroke Association

if anyone wants information (UK), let me know if you want any information.

> Crawford