I am an adult with MDS--new here!

[Guest guest]

My name is . I am 34. I didn't know I had MDS until the age of

19 when I ended up pregnant. That's when my Mom finally decided to tell

me. I felt lost and confused. She told me I could never have kids. I've

had 4 miscarriages. I never ever really felt normal. I always knew

there was something wrong with me but I didn't know what. I've suffered

from depression for years. What's different about me is I have an IQ, I

do get confused sometimes but I think that is just natural. I have some

of the physicalities of MDS. You can see it in my face and body. My

heart is small. So my whole left side of my body is smaller than the

right. I'm overweight. But I do have some control of that because I

have lost some. I've always wondered if there was anyone else like me.

Someone who appears normal on the outside, has the IQ but has some

physical problems. I've been worried about health issues. Like what

should I expect throught out my life, will I ever deteriate? Life

expectantcy? I know I'll never have babies. I just don't want to be

alone anymore.

Age:34