Guest guest Posted October 29, 2011 Report Share Posted October 29, 2011 I think we are all so different that it's really hard to provide a list of symptoms. For me, the biggest symptom that was resolved with adequate T4 was that I got my brain back - brain fog dramatically lifted. From what I have read in medical research, they are not sure whether the T3 crosses the blood-brain barrier and that it's possible that only T4 does and the conversion to the active hormone T3 happens in the brain itself. If this is the case, then I think one could have a lot of other neuro problems which can include neuropathic pain, depression, etc. I have a couple of friends that were on the T3 only protocol and depression was their major symptom. Once they started on some T4, they noticed a big difference. One thing I will note is that in my experience, it takes a lot of detective work to figure out if one thing is the cause of symptoms (e.g., low T4, issues with the compounded T3 or whatever) or if there are other factors. The symptoms you describe with the neck pain, muscle pain etc were ones that I had when I had very severe inflammation from Lyme disease and mold exposure. Once I was treated for those things, my neck pain went away. I got Lyme again in 2008 and the neck pain was back. When I am exposed to mold that pain returns. I'm not trying to say these are your particular issues, but anything that might cause inflammation could be. So unless one stays in one's home all the time, follows the exact same habits, eats the same thing, gets the same amount of sleep, etc. then there are quite a few variables. I used to get a lot of pain if I consumed foods in the nightshade family. Nightshade is a toxin, but you get extremely small amounts in foods, but I still reacted. Once I detoxified (both from the toxins produced by the Lyme infection and from mold exposure), I have a much higher tolerance to things like that. Keeping a food diary, paying attention to your physical environment (if I go to someone's home and there is mold, I have to leave immediately to avoid a strong neurological reaction), noticing how you feel after x hours of sleep, minimizing stress which can trigger recurrence of underlying infections, etc. One other consideration is that some of us are extremely sensitive to whether changes. My symptoms flare before the fronts come through. I'm not sure if this helps, just some things you might want to consider. That all said, I think your suspicion of the T3 could be correct. Do you know what filler they used. For a while, I was extremely sensitive the ingredient in OTC products that were timed release. B. > > I've looked around a bit to find out symptoms of low Free T4. I am on 75 mcg of Timed Release T3. The latest lab report shows my Free T4 has dropped from mid range to BELOW the bottom of the range. > > I'm trying to figure out what is contributing to my current symptoms, and am wondering if it is the Free T4...or something else. > > An internet search doesn't really help me, but I remember things being discussed here, and I don't know how to go back and look up the conversations...I get too many results that don't apply. > > Anyway, I'm having an unusual amount of body aches. I'm sore just about everywhere. I'm used to having a sore neck or back from time to time, but I'm hobbling around today like an 100 year old woman. > > I know my cortisol is borderline low...and I'm waiting to treat it until I figure out if I need to do something else treatment-wise on the thyroid. > > I'm starting to get the idea it may be an issue with the timed release T3...I thought it was the answer to my problems because of the way my b/p didn't spike after taking it. Reading up a bit on the timed release seems to suggest many people don't do well on it. I will be sorry to hear that if that ends up being the case. > > Sorry to ask so many questions recently. I do appreciate everyone's input. > > K > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 29, 2011 Report Share Posted October 29, 2011 I went to a talk recently by a compounding pharmacist. i found it interesting that he said low levels of T4 while at the same time having higher T3 can be an indication of low iron. steph Ellis Ecke, LPC, LCDC Life Transformation Coaching and Counseling www.stephanieecke.com "Let the Transformation Begin!" Re: What are symptoms of Low Free T4? I think we are all so different that it's really hard to provide a list of symptoms. For me, the biggest symptom that was resolved with adequate T4 was that I got my brain back - brain fog dramatically lifted. From what I have read in medical research, they are not sure whether the T3 crosses the blood-brain barrier and that it's possible that only T4 does and the conversion to the active hormone T3 happens in the brain itself. If this is the case, then I think one could have a lot of other neuro problems which can include neuropathic pain, depression, etc. I have a couple of friends that were on the T3 only protocol and depression was their major symptom. Once they started on some T4, they noticed a big difference. One thing I will note is that in my experience, it takes a lot of detective work to figure out if one thing is the cause of symptoms (e.g., low T4, issues with the compounded T3 or whatever) or if there are other factors. The symptoms you describe with the neck pain, muscle pain etc were ones that I had when I had very severe inflammation from Lyme disease and mold exposure. Once I was treated for those things, my neck pain went away. I got Lyme again in 2008 and the neck pain was back. When I am exposed to mold that pain returns. I'm not trying to say these are your particular issues, but anything that might cause inflammation could be. So unless one stays in one's home all the time, follows the exact same habits, eats the same thing, gets the same amount of sleep, etc. then there are quite a few variables. I used to get a lot of pain if I consumed foods in the nightshade family. Nightshade is a toxin, but you get extremely small amounts in foods, but I still reacted .. Once I detoxified (both from the toxins produced by the Lyme infection and from mold exposure), I have a much higher tolerance to things like that. Keeping a food diary, paying attention to your physical environment (if I go to someone's home and there is mold, I have to leave immediately to avoid a strong neurological reaction), noticing how you feel after x hours of sleep, minimizing stress which can trigger recurrence of underlying infections, etc. One other consideration is that some of us are extremely sensitive to whether changes. My symptoms flare before the fronts come through. I'm not sure if this helps, just some things you might want to consider. That all said, I think your suspicion of the T3 could be correct. Do you know what filler they used. For a while, I was extremely sensitive the ingredient in OTC products that were timed release. B. > > I've looked around a bit to find out symptoms of low Free T4. I am on 75 mcg of Timed Release T3. The latest lab report shows my Free T4 has dropped from mid range to BELOW the bottom of the range. > > I'm trying to figure out what is contributing to my current symptoms, and am wondering if it is the Free T4...or something else. > > An internet search doesn't really help me, but I remember things being discussed here, and I don't know how to go back and look up the conversations...I get too many results that don't apply. > > Anyway, I'm having an unusual amount of body aches. I'm sore just about everywhere. I'm used to having a sore neck or back from time to time, but I'm hobbling around today like an 100 year old woman. > > I know my cortisol is borderline low...and I'm waiting to treat it until I figure out if I need to do something else treatment-wise on the thyroid. > > I'm starting to get the idea it may be an issue with the timed release T3...I thought it was the answer to my problems because of the way my b/p didn't spike after taking it. Reading up a bit on the timed release seems to suggest many people don't do well on it. I will be sorry to hear that if that ends up being the case. > > Sorry to ask so many questions recently. I do appreciate everyone's input. > > K > ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 29, 2011 Report Share Posted October 29, 2011 This is extremely interesting as this is where my younger son is. His Free T3 has been over-range with a very low (just within range) Free T4. And, he has low Ferritin. I personally believe that is one of his big issues. I'd be curious if the pharmacist had a reference as I can't find any research nor a single article discussing this (it tends to state that it's the opposite - i.e., low Free T3 with high T4 because the iron is necessary for the thyroid conversion). B. > > I've looked around a bit to find out symptoms of low Free T4. I am on 75 mcg > f Timed Release T3. The latest lab report shows my Free T4 has dropped from mid > ange to BELOW the bottom of the range. > > I'm trying to figure out what is contributing to my current symptoms, and am > ondering if it is the Free T4...or something else. > > An internet search doesn't really help me, but I remember things being > iscussed here, and I don't know how to go back and look up the > onversations...I get too many results that don't apply. > > Anyway, I'm having an unusual amount of body aches. I'm sore just about > verywhere. I'm used to having a sore neck or back from time to time, but I'm > obbling around today like an 100 year old woman. > > I know my cortisol is borderline low...and I'm waiting to treat it until I > igure out if I need to do something else treatment-wise on the thyroid. > > I'm starting to get the idea it may be an issue with the timed release T3...I > hought it was the answer to my problems because of the way my b/p didn't spike > fter taking it. Reading up a bit on the timed release seems to suggest many > eople don't do well on it. I will be sorry to hear that if that ends up being > he case. > > Sorry to ask so many questions recently. I do appreciate everyone's input. > > K > > > > ----------------------------------- > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 29, 2011 Report Share Posted October 29, 2011 I'll try to find my notes. If course he recommends compounded ferrous glyconate. Ellis Ecke, LPC, LCDC www.thetraumaqueen.com > > This is extremely interesting as this is where my younger son is. His Free T3 has been over-range with a very low (just within range) Free T4. And, he has low Ferritin. I personally believe that is one of his big issues. I'd be curious if the pharmacist had a reference as I can't find any research nor a single article discussing this (it tends to state that it's the opposite - i.e., low Free T3 with high T4 because the iron is necessary for the thyroid conversion). > > B. > > >> >> I've looked around a bit to find out symptoms of low Free T4. I am on 75 mcg >> f Timed Release T3. The latest lab report shows my Free T4 has dropped from mid >> ange to BELOW the bottom of the range. >> >> I'm trying to figure out what is contributing to my current symptoms, and am >> ondering if it is the Free T4...or something else. >> >> An internet search doesn't really help me, but I remember things being >> iscussed here, and I don't know how to go back and look up the >> onversations...I get too many results that don't apply. >> >> Anyway, I'm having an unusual amount of body aches. I'm sore just about >> verywhere. I'm used to having a sore neck or back from time to time, but I'm >> obbling around today like an 100 year old woman. >> >> I know my cortisol is borderline low...and I'm waiting to treat it until I >> igure out if I need to do something else treatment-wise on the thyroid. >> >> I'm starting to get the idea it may be an issue with the timed release T3...I >> hought it was the answer to my problems because of the way my b/p didn't spike >> fter taking it. Reading up a bit on the timed release seems to suggest many >> eople don't do well on it. I will be sorry to hear that if that ends up being >> he case. >> >> Sorry to ask so many questions recently. I do appreciate everyone's input. >> >> K >> >> >> >> ----------------------------------- >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2011 Report Share Posted November 1, 2011 I called the doctor to ask why I'm having such problems of sore muscles, fatigue, chills, etc. and to ask if it could be low FT4 symptoms or possibly some issues with the timed release T3. He reminded me I started Iodoral about 10 days ago, and I am probably de-toxing. I looked it up, and apparently there are some of us that de-tox BROMIDE when beginning idodine replacement. I found a list of symptoms on a breast cancer choices website, and I was amazed to see that I'm experiencing many of these symptoms. My husband started Iodoral several months ago and didn't have any of the symptoms I'm experiencing. It seems that salt loading with celtic salt helps, plus lots of Vitamin C and drinking lots of water. I tried it last night, and amazingly enough it seems to be relieving some of the symptoms. I'm sooooo not qualified to have hypothyroid problems. One needs to be some sort of a genius to figure everything out. Just wondering if anyone here has had a similar experience? > > I've looked around a bit to find out symptoms of low Free T4. I am on 75 mcg of Timed Release T3. The latest lab report shows my Free T4 has dropped from mid range to BELOW the bottom of the range. > > Quote Link to comment Share on other sites More sharing options...
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