UPDATE - Toddler in Pain? HELP!

[Guest guest]

Thanks to everyone that responded! :-D

Sorry for the confusion. My dd has not had surgery... by 10 days I

meant she has been in pain 10 days. Even now as she sleeps beside me

she is moaning in pain. :-(

A bit of history - she has 2 syrinx a smaller one up high and a

larger on T6-L2 at 7mm at it's greated diameter. I have heard " fatty

filum " but not an actual dx of Tethered cord - though she does have

2 lower back birthmarks, asym legs.

I would have thought UTI or Constipation but she had a test for UTI

8days ago and it was neg. She has had normal bowel. But she is

definatly crying related to all of that.

She had urodynamic testing done in Jan. They only did 1/2 a test -

they filled her up and took the x-rays but didn't test how she

voids. GGGRRRRR! I was mad about that.

ANyway - we saw a ped. who knew nothing about syrinx - told me to

use diaper cream for her pain - BUT SHE HAS NO RASH!!! @@

I am waiting to hear back from her neuro, neurosurgeon and

urologist. I hope they have some answers for my little one! :-(

Jen and Luli

>

> HI! I posted last week but only got 1 response... here we are 10

days

> later and my dd is still having alot of pain. She is crying all

the

> time now. I sent emails to her neuro, NS and Urologist... but it

> seems so bad I am taking her to a Pediatrician later today.

> For all the parents out there... what sort of " diaper " pain did

your

> babies have? My dd is 2.5 years old and keeps crying about " ouwie

in

> diaper " and at one point today was on her tippy toes screaming in

> pain, I thought she had a bad bowel movement... but when I

changed

> her it was only wet.

> She had a tummy flu 10 days ago and I thought that was why she was

in

> pain and crying but has been over that for 7 days and is still

crying

> in pain. SHe lifts her left foot as she crys.

> Can anyone help me with what they saw in their child and what I

should

> be looking for?

> THANKS!!!

>

> Jen and Luli

>