Re: nutrition

[Guest guest]

Absolutely not, .  I would never laugh at what you have said.  Long before doing AC chelation, we began using diet, supplementation, probiotics with our son and this brought about a lot of progression.  It brought us back our son.

I believe in what you say because he is not yet fully recovered, and so I think these things like gf/sf/cf are not enough, but I do know my son has to be gf/cf/sf for now as I have seen the monster he turns into if he gets these proteins, but you give a guide of how to extend these things for the benefit of all our children.  I have alwasy believed that diet and nutrition are a huge part of the puzzle, though I do believe that if vaccines hadn't damaged him in the first place, his body would have been more capable of handling the " Mc's. "   It would not have been right, so in a way this opened my eyes.  These fast foods are NOT good for anyone.

That part I am thankful for at least.  But we have extended the diet over the years to keep getting better and better such as weeding out all processed foods; cutting out dyes, preservatives and fillers, eliminating foods that come in cans, never using aluminum foil to store or cook food in, eliminating refined sugar.

We think incorporating GAPS, BED or both is a great idea.  I would love to do them for myself, but it is expensive.  In order to buy healthy food for our son we just spent close to 400 dollars at Whole foods.  This will last a month or a little more, but we still have to feed ourselves too.  I go to the BED site all the time and want to buy the starter kit and some kefir starter but by the time I get there I realize we are already broke for the month.

Unfortunately as parents we often have to choose between this or that for a time, but many of us slowly move in the direction you speak of.  I am not talking about therapy, though we shelled out a lot for speech back in the day.  That is not an issue now, but it is either buy at WHOLE FOODS or get stuck with the nasty, junk filled stuff  that is bioengineered or cloned that they sell in our nearby little town.  Whole Foods, as you know is much more expensive and there we buy the food just for our son and my husband and us must eat the junk...

So all I am saying is that most parents are doing the best they can -- those who choose to do some kind of intervention, and they have to make choices based on what they can afford. It is oftentimes not a matter of not wanting to do it.  I would love to combine BED with GAPS and what we are already doing, but we just can't do it all at once, and that is wihtout having to shell out money for therapy.  He wouldn't be getting therapy if it weren't for a waiver, and luckily they come to the house and I believe this has helped  in addition to dietary intervention.  I don't think he wouldhave been able to learn to ride a bike without the help our PT gave us.  This may be a little thing to some and not seem important, but when your son cries and puts a note on your desk that says, " I want to do like other kids, "   It is hard to ignore.  So sometimes other interventions are needed simply for the emotional well being of a child that don't have a lot to do with the deep issue of recovery, but a lot to do with the moment at hand.

I have the utmost respect for you and you give me a goal to shoot for, and as soon as we can afford the next step, we will.  Who wouldn't want the hope of what you have achieved with your children?  We all do.  How did you make it work financially because in checking into the BED site and the GAPS site, it is not cheap.

I think you are wonderful and never stop trying to help!

[Guest guest]

We needed many therapies for sure. I am not at all saying that they are a waste. I am saying though that sometimes the energy it takes to fight for therapies and the money/time it takes could maybe be better spent for a few months getting better habits at home. Once the kids eat what you say, you don’t have to spend so much money to make it all work.

These diets are costly, but there are a few things that might help you that we’ve uncovered.

Diets are expensive when you are trying to replicate the standard american diet with GFCFSF options. Diets are expensive when parents are trying to make sure their kids are happy and still have favorites. Sometimes in all aspects of life it’s important to work smarter not harder.

I just wonder if we can all work smarter.

A BED vege culture starter is about $25. These 6 packets can last 6 months. 6 months of cultured vegetables!!! A BED kefir starter is also about $25. These 6 packets can make many transfers. Each packet can transfer at least 6x. You can totally use a box to make living young coconut water kefir for 6 months. Potent Proteins is $40ish I think. I’ve been in a hotel for about 3 months now since we are relocating. My kids get a tiny amt of this concentrated spirulina plus powder each day in their applesauce. Juice Plus my kids have for free for 3 years. I’m part of a program where I pay for my JP, and my kids are free.

I don’t think the issue is all about cost, as much as it is how darn hard it is to get the kids what they need to eat....not what they want, or what the parents want so that all can do a diet and still live a “normal life.â€

Good eggs, a good chicken with the bones, and some bone marrow from the butcher can last a whole week of mineral rich type GAPS foods. Pair these with a green smoothie and cultured vegetables. A bone broth poured over soaked/sprouted quinoa is delish and very nourishing and not expensive. I can get quinoa seeds each month for about $8 and make them stretch for my soups.

Haven you all are a success story. Your child is doing great. How wonderful that he is communicating that he wants to be like other kids. So is the mother who has found a way to give her child the best life possible given her strengths and talents...whether the child “recovers†or not. But we can all do better, and keep learning. I feel so much resistance with diet changes and autism.

This is a nightmare, and a mess and no parent should be blamed. I think all parents on this board have or are trying everything. Overall though, I think it is fair to say that a massive dietary change in this country is severly lacking. Autism is largely related to poor nutrition that has been coming down through the generations. Weakened immune systems from many toxic triggers. Genetic mutations from many toxic triggers.

When the FDA declares pizza a vegetable we have a problem. Sadly our kids would benefit the most from a shift in this country.

I still wake up at least one night a week in a sweat and up all night tossing I have so much guilt over all the mistakes I made with my baby boy. I would give anything to have his healthy little brain in my hands again. Untouched and well nourished so that he could have had a normal childhood. I choose to see this all as a blessing and gift. But I ache that I was robbed, and certainly that he has been robbed. I guess this is why I’ll never give up sharing information.

[Guest guest]

I agree with you, of course, but now my son is twelve.  I can see gradual shifting, which we are alwasy doing, but I wonder if what I am doing is " bad " still for him.I build his meals froma plan of a meat (protein, which could be beans) and then a vegetable or salad and a fruit.  I try to by all organic but sometimes have to go with " all natural " and once in a while I have to buy something conventionally growth (though I cringe when I do).

Are you saying that a ground lamb patty coated in tapioca flour or coconut flour and grilled in a pan with just a little organic coconut oil or grape-seed oil is bad?  I was reading on the GAPS site that 50% of a meal should be raw.  This makes good sense to me, and I can certainly see moving in that direction.  I want to try the coconut kefir, but have you seen the price of young green coconuts lately?  And each one only yields about 1 cup of the water.  Can you buy the water from the BED site and make the kefir from that?

I also like the idea of adding in and trying some fermented veggies.  I can see slowly making these changes, but with h im at his age and now taller and bigger than me....it is not like the old days when I could bear hug him to get him to try something new, but that is not to say I won't try.

I am proud and happy and feel blessed with regards to how far he has come, but there are still issues.  He still meets the counting rules for mercury toxicity.  Mercury can remain in the body and brain once it binds for up to twenty-five years -- and all that while it continues to do damage.

I don't know how far he can go and worry that there has been some permanent, irreversible damage.  He was diagnosed at age three with " Heavy Metal poisoning " at a major metropolitan children's hospital, and it was creepy how " hush-hush " it was.  Everyone was speaking in whispered tones and saying they were sorry but that we needed to mass vaccinate to save " so many', " but the neurologist said, " There are going to be losses, and your son is one of them, and you just need to go home and accept it. "   They wanted to secretly admit him to the hospital and IV chelate him but they wanted to say he got the mercury from a defective thermostat.  Then they said we couldn't implicate vaccines because " That idea is just not accepted here. "

I wonder if it had anything to do with the $$$$$$$$$ the hospital receives from the pharmaceutical industry?  You think?Then they admitted they really didn't know much about chelation, so we said we would not agree without a toxicologist consulting.  Then we really got into it and of course decided not to trust them further with our child.

For my son it was instantaneous in regression.  i walked into that doctor's office with a child who talked, and walked out with one who would not say another discernible word for over three years.I agree the toxic environment and of course toxic food are culpable as well, but injecting this abject trash into babies is beyond me! 

But I think the things you suggest are good ideas in conjunction with a safe chelation protocol (AC) -- in fact, I think diet and nutrition are vital.I will continue to read more and more about BED and GAPS and implement those little steps.  There are soooo many different diets now.  When we started there was gf/cf/sf and there was nothing prepackaged at that time, so I just started cooking from scratch and pretty much do that every day, three meals a day, but once in a while I let him have an allergen free frozen dinner by Ian's.  Are you saying again that this is a bad thing to do?

Is it wrong to want food to be healthy and pleasing to the palette?Is it wrong at XMAS to make the " sugar " cookies using Xylitol?  I mean is this an all or nothing way of life?Haven

[Guest guest]

Haven if you feel that your diet is right for him then this is your answer.

I'm not the judge and jury. Diet is one part of things. A big part though

and I think 12 is young. If you have to bread things this may be a problem

when it comes to viral/bacterial/fungal infections. If he can sit down and eat

a plateful of cultured foods great. If he has habits that lead in the

direction of carbs, or sugar then yes these things can be removed. This was

our experience in our home. Not until I removed grains and fruit could I turn

the awful cravings around.

I don't have to be strict with my kids any longer. We don't stray far though.

There was a time when I couldn't give my kids fruit....for like 4 years.

Up until last year our holidays sucked in the food department, but I believed it

was worth it. I would soak and sprout quinoa, steam it, then put it in the

food processor with vanilla flavor and coconut oil....make a " dough " and make a

cookie...top with cinamon. My kids ate these because it was good to them

having been on nothing but cultured foods all day long.

I don't know how your son will do. All I can share is what I learned.

I watched my addict kid turn a corner and learn to love vegetables...crave them.

This was a big part of his autism. It had something to do with infections.

So I wonder how many kids with their particular eating habits could be well if

put on a strict routine. I wish we could do this in a medical setting, but

this does not yet exist.

You live with him, what do you think? Moms know, we just need information to

piece together the puzzle. Your diet is great. You carry a lot of guilt and

need to prove that you are a good mom. You are a good mom. But the diet you

share would not have helped my son. He needed deeper than this. You are a

wonderful homeschooling mom. You could step by step continue to add more

healign tools. However it all has to go...or you'll be on a hamster wheel with

his fixes....even though they have become healthier versions of " fixes. "

If there is a better way....an easier way I want to hear it.

>

> I agree with you, of course, but now my son is twelve. I can see

> gradual shifting, which we are alwasy doing, but I wonder if what I am

> doing is " bad " still for him.

>

> I build his meals froma plan of a meat (protein, which could be beans) and

> then a vegetable or salad and a fruit. I try to by all organic but

> sometimes have to go with " all natural " and once in a while I have to buy

> something conventionally growth (though I cringe when I do).

>

> Are you saying that a ground lamb patty coated in tapioca flour or coconut

> flour and grilled in a pan with just a little organic coconut oil or

> grape-seed oil is bad? I was reading on the GAPS site that 50% of a meal

> should be raw. This makes good sense to me, and I can certainly see moving

> in that direction. I want to try the coconut kefir, but have you seen the

> price of young green coconuts lately? And each one only yields about 1 cup

> of the water. Can you buy the water from the BED site and make the kefir

> from that?

>

> I also like the idea of adding in and trying some fermented veggies. I can

> see slowly making these changes, but with h im at his age and now taller

> and bigger than me....it is not like the old days when I could bear hug him

> to get him to try something new, but that is not to say I won't try.

>

> I am proud and happy and feel blessed with regards to how far he has come,

> but there are still issues. He still meets the counting rules for mercury

> toxicity. Mercury can remain in the body and brain once it binds for up to

> twenty-five years -- and all that while it continues to do damage.

> I don't know how far he can go and worry that there has been some

> permanent, irreversible damage. He was diagnosed at age three with " Heavy

> Metal poisoning " at a major metropolitan children's hospital, and it was

> creepy how " hush-hush " it was. Everyone was speaking in whispered tones

> and saying they were sorry but that we needed to mass vaccinate to save " so

> many', " but the neurologist said, " There are going to be losses, and your

> son is one of them, and you just need to go home and accept it. " They

> wanted to secretly admit him to the hospital and IV chelate him but they

> wanted to say he got the mercury from a defective thermostat. Then they

> said we couldn't implicate vaccines because " That idea is just not accepted

> here. "

>

> I wonder if it had anything to do with the $$$$$$$$$ the hospital receives

> from the pharmaceutical industry? You think?

> Then they admitted they really didn't know much about chelation, so we said

> we would not agree without a toxicologist consulting. Then we really got

> into it and of course decided not to trust them further with our child.

>

> For my son it was instantaneous in regression. i walked into that doctor's

> office with a child who talked, and walked out with one who would not say

> another discernible word for over three years.

>

> I agree the toxic environment and of course toxic food are culpable as

> well, but injecting this abject trash into babies is beyond me!

>

> But I think the things you suggest are good ideas in conjunction with a

> safe chelation protocol (AC) -- in fact, I think diet and nutrition are

> vital.

>

> I will continue to read more and more about BED and GAPS and implement

> those little steps. There are soooo many different diets now. When we

> started there was gf/cf/sf and there was nothing prepackaged at that time,

> so I just started cooking from scratch and pretty much do that every day,

> three meals a day, but once in a while I let him have an allergen free

> frozen dinner by Ian's. Are you saying again that this is a bad thing to

> do?

>

> Is it wrong to want food to be healthy and pleasing to the palette?

>

> Is it wrong at XMAS to make the " sugar " cookies using Xylitol? I mean is

> this an all or nothing way of life?

>

> Haven

>