Guest guest Posted August 6, 1999 Report Share Posted August 6, 1999 Ticia, MOrgan had her fundo done a year ago. It was a very difficult decision, but I am so glad that we had it done. She has been a different child since that time. It even has lessened that amount of ear infections that she has had! We found that when she started to get really gunky and mucousy that we needed to vent her. And we always made sure we did it before she ate. She had a lot of gas bubbbles at first, but now handles it quite well with regular venting. My husband always does a very thorough one before she goes to bed and that really helps ALL of us sleep better, too. , wife to Rich, mom to ,3, CHARGE, Makenzie,7, and , our CHARGEr in heaven Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 15, 1999 Report Share Posted August 15, 1999 Tricia- Just a quick hello! We elected not to have a fundo done and (luckily) my daughter outgrew her reflux at about 1 yr of age. So... unfortunately I can give you no advice in that area. Just wanted to say hi because I did student teaching at Kallanghur State School and just loved visiting Brisbane! Welcome to the list! Michele W mom to Aubrie (20 mos) CHaRgE and (7 yrs), wife to DJ, in IL westml@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 15, 1999 Report Share Posted August 15, 1999 Hi! Myname is Tricia . I live in Brisbane,Australia.I have a ten month old daughter named Shanae ! She was born with Choanal Atresia,Bilateral. She also has Colobomas Bilateral ,Ear Abnormalities, Deveopmental Delay, Swallow Problems etc:. Shanae has just had a fundo done for Gross Reflux and I am thinking I have done the wrong thing . She has always had a small problem with swallowing her secretions but now it is ten times worse . She is now choking and coughing much worse than before. We are having to suction her all the time and she waking up choking on her secretions, The doctors tell me that this will improve but I find it difficult to believe anything they say anymore. If anyone else had similar problems after a fundo I would love to hear about it. She has a Genie Button and is totally G fed only tasting foods orally, .. Thanking You Mum to Shaun 13 ,8 and Shanae 10mths Charge Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 15, 1999 Report Share Posted August 15, 1999 Tricia, Welcome to you and Shanae! Glad to meet you. All I can draw on is our experience with the fundo. My daughter, Kennedy is 18 months old and had a Nissen fundoplication done at 6 months. She did wretch and have a hard time for about 2 months afterwards. This was very difficult, I hated to watch her wretch, it was awful. But, I'm glad to say, since then things have gone really well. I am very happy with our decision to have the fundo done (the docs were encouraging a j tube which wasn't what we were prepared for). When was Shanae's fundo done? If it is really recent, I would give it a little more time for her body to adjust. Good luck and I hope the secretions ease up really soon. Mom to Kennedy 18 mos old CHARGEr, 10, 8, and wife to Graeme New Brunswick, Canada Visit the " Weir homepage " at: http://www.geocities.com/SunsetStrip/Palms/5716 ICQ #1426476 Hi! Myname is Tricia . I live in Brisbane,Australia.I have a ten month old daughter named Shanae ! She was born with Choanal Atresia,Bilateral. She also has Colobomas Bilateral ,Ear Abnormalities, Deveopmental Delay, Swallow Problems etc:. Shanae has just had a fundo done for Gross Reflux and I am thinking I have done the wrong thing . She has always had a small problem with swallowing her secretions but now it is ten times worse . She is now choking and coughing much worse than before. We are having to suction her all the time and she waking up choking on her secretions, The doctors tell me that this will improve but I find it difficult to believe anything they say anymore. If anyone else had similar problems after a fundo I would love to hear about it. She has a Genie Button and is totally G fed only tasting foods orally, .. Thanking You Mum to Shaun 13 ,8 and Shanae 10mths Charge Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 15, 1999 Report Share Posted August 15, 1999 Tricia, That might be a really good point that brought up. We have never vented Kennedy, so I didn't even mention that. That could be part or all of your problem. I had a hard time finding someone who knew how to use the button at all after Kennedy had it put in. I basically taught myself. I don't think they're all the rage here, but I " m happy she's got it! Mom to Kennedy 18 mos old CHARGEr, 10, 8, and wife to Graeme New Brunswick, Canada Visit the " Weir homepage " at: http://www.geocities.com/SunsetStrip/Palms/5716 ICQ #1426476 > > >Ticia, >MOrgan had her fundo done a year ago. It was a very difficult decision, >but I am so glad that we had it done. She has been a different child >since that time. It even has lessened that amount of ear infections >that she has had! We found that when she started to get really gunky >and mucousy that we needed to vent her. And we always made sure we did >it before she ate. She had a lot of gas bubbbles at first, but now >handles it quite well with regular venting. My husband always does a >very thorough one before she goes to bed and that really helps ALL of us >sleep better, too. >, wife to Rich, mom to ,3, CHARGE, Makenzie,7, and , >our CHARGEr in heaven > >--------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 16, 1999 Report Share Posted August 16, 1999 Ginn wrote: > > > > Ticia, > MOrgan had her fundo done a year ago. It was a very difficult decision, > but I am so glad that we had it done. She has been a different child > since that time. It even has lessened that amount of ear infections > that she has had! We found that when she started to get really gunky > and mucousy that we needed to vent her. And we always made sure we did > it before she ate. She had a lot of gas bubbbles at first, but now > handles it quite well with regular venting. My husband always does a > very thorough one before she goes to bed and that really helps ALL of us > sleep better, too. > , wife to Rich, mom to ,3, CHARGE, Makenzie,7, and , > our CHARGEr in heaven > , What were s symptoms before the Nissen, outright reflux or something a little less obvious? What did you try before the Nissens to alleviate her problems? MacKenzie is 14mos.old and as far as I can tell nowhere near outgrowing the reflux. She's on all the meds. and is j-tube fed, but she refluxes and chokes and aspirates off just the stomach secretions. We're getting really tired of this and are considering putting a limit on when enough is enough. We're thinking that by the age of 2 if the reflux is no better it probably will never be. I'm scared to death of the Nissen but quality of life has to count for something. Jeanie Colp mom to MacKenzie 14mos.CHARGE, Tyler 7, & Zachary 5 Nova Scotia, Canada Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 16, 1999 Report Share Posted August 16, 1999 Tricia, My daughter, Aubrey, who is almost 10 months old (Aug 19), just had her 2nd fundo operation. Since the surgery which was only 1 week ago, her secretions are worse and she is coughing and choking on them much worse than before. However, Aubrey has a trach, and she constantly has respiratory infections, colds, etc. She came out of the hospital this time with another respiratory infection, just like always happens when she is hospitalized. We are hoping that this is what is causing her problems with coughing, gagging, etc. and not the redone fundo. Is it possible that Shanae could have caught a cold or something like that, which may be causing it? Bradley father to Aubrey, almost 10 months Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 16, 1999 Report Share Posted August 16, 1999 One thing I would add is if you do the venting, make sure you replace the electrolytes, etc. stuff that comes out.....for Aubrey, we used a syringe, flipped it upside down to push the air out, then put the stuff that came out (which I think contains needed electrolytes) back in.... Bradley Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 16, 1999 Report Share Posted August 16, 1999 Tricia, Welcome to the list. I am late in saying hello, as I was in New Orleans at a conference. didn't have a fundo, but it seems like the experts have been giving great advice, as usual! I hope that Shanae is doing better soon. Good Luck Janet Wife to Matt Mom to & (CHaRGEr) 7, nne 2 Mom to 2, and 1. Weymouth, Massachusetts Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 16, 1999 Report Share Posted August 16, 1999 Jeanie, 's reflux symptoms were not as severe as some on the list, but she vomited and gagged a lot. We couldn't let her cry hard or even giggle hard as this would cause her to cough and puke. Then she'd have ear and sinus infections from the vomit and irritation in her nose and ear canals. We tried Prilosec and Reglan (which worked the best)and also had cisipride, which didn't seem to do anything. We also tried feeding her very slowly, but as she got a little bit more active, it was hard to not feel guilty making her sit for 1 hour plus. We elevated her bed, tried sleeping sitting up, etc. but nothing worked. 's fundo is not a full Nissen, it is about a 270 degree wrap, according to her doc, so she is able to burp some and she does vomit a tiny bit if she is very sick. Hope this helps. > , > What were s symptoms before the Nissen, outright reflux or > something a little less obvious? What did you try before the Nissens to > alleviate her problems? > MacKenzie is 14mos.old and as far as I can tell nowhere near > outgrowing the reflux. She's on all the meds. and is j-tube fed, but > she refluxes and chokes and aspirates off just the stomach secretions. > We're getting really tired of this and are considering putting a limit > on when enough is enough. We're thinking that by the age of 2 if the > reflux is no better it probably will never be. I'm scared to death of > the Nissen but quality of life has to count for something. > > Jeanie Colp > mom to MacKenzie 14mos.CHARGE, Tyler 7, & Zachary 5 > Nova Scotia, Canada > > --------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 1999 Report Share Posted August 22, 1999 At 08:51 AM 15/08/99 +1000, you wrote: >Hi! >Myname is Tricia . I live in Brisbane,Australia.I have a ten month old daughter named >Shanae ! She was born with Choanal Atresia,Bilateral. She also has Colobomas Bilateral >,Ear Abnormalities, Deveopmental Delay, Swallow Problems etc:. Shanae has just had a fundo >done for Gross Reflux and I am thinking I have done the wrong thing . She has always had a >small problem with swallowing her secretions but now it is ten times worse . She is now >choking and coughing much worse than before. We are having to suction her all the time and >she waking up choking on her secretions, The doctors tell me that this will improve but I >find it difficult to believe anything they say anymore. If anyone else had similar problems >after a fundo I would love to hear about it. She has a Genie Button and is totally G fed >only tasting foods orally, . >Thanking You > Mum to Shaun 13 ,8 and Shanae 10mths Charge Hi Tricia, Welcome!! Glad to see you finally post. I would have welcomed you earlier, but I have been sooo busy. Hopefully the others on this list will be able to answer all those questions that I haven't been able too. :-) Hope Shanae is doing better. I will contact you, as soon as I get some time. Tiena Mum to Mikaela (12), Cady (9 CHaRgE)and Paige(8), Wife to Arron Brisbane, Australia ICQ# 39832930 (Hooch) Quote Link to comment Share on other sites More sharing options...
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