Re: Welcome Marriah and Gideon!

May 29, 2007

Hi Marriah and welcome to our family. Congratulations on your new son. Can't

wait to hear all about him.

Also welcome to all of our other new members. I am a little behind.

Donna - gram to Adam mds 4 1/2

Kristy Colvin wrote:

Hi Everyone

We have a new family joining us! Here is what she had to say....

My name is Marriah, Im a 24 year old who was blessed with my first baby

boy two weeks ago. His name is Gideon he has

mosaic down syndrome.

Welcome to our family Marriah! I am so glad you have joined us! Congratulations

on your new baby boy! Please tell us all about Gideon! Where do you live? We may

have families close to you. Please feel free to ask any questions you may have.

We will all be very happy to share our experiences with you.

Kristy Colvin

IMDSA President & Conference Coordinator

Mom to Arron 25, 22, Tim 21 MDS, Stevan 20 and Garrett 11

SAVE THE DATE! JUNE 29 - JULY 1 MDS RESEARCH & AWARENESS CONFERENCE!

www.imdsa.com

May 29, 2007

Wow Marriah! I am so proud of you for getting involved so soon!

Congratulations on your sweet baby boy and welcome to the group!

Leslee, mom to Drew Alees (almost 3 mds) and Darby (6)

Re: Welcome Marriah and Gideon!

Hi Marriah and welcome to our family. Congratulations on your new son. Can't

wait to hear all about him.

Also welcome to all of our other new members. I am a little behind.

Donna - gram to Adam mds 4 1/2

Kristy Colvin wrote:

Hi Everyone

We have a new family joining us! Here is what she had to say....

My name is Marriah, Im a 24 year old who was blessed with my first baby

boy two weeks ago. His name is Gideon he has

mosaic down syndrome.

Welcome to our family Marriah! I am so glad you have joined us!

Congratulations on your new baby boy! Please tell us all about Gideon! Where do

you live? We may have families close to you. Please feel free to ask any

questions you may have. We will all be very happy to share our experiences with

you.

Kristy Colvin

IMDSA President & Conference Coordinator

Mom to Arron 25, 22, Tim 21 MDS, Stevan 20 and Garrett 11

SAVE THE DATE! JUNE 29 - JULY 1 MDS RESEARCH & AWARENESS CONFERENCE!

www.imdsa.com

May 29, 2007

Gideon is 16 days old today and he is gaining weight steadily and

starting to eat on his own, he was born 5 weeks premature and so we

are still in the intensive care unit at the hospital. I am from

washougal washington, clark county. I love my son so much, I never

knew I could love someone so much. When I first found out he had downs

I was very upset, I cried for him just thinking about how hard life

might be for him, I also cried because I had this image of what my

baby was going to be like. When I found out Gideon had MDS I was more

relieved. After a day or two though, it doesnt matter what he has I

love him and I am going to work hard with him and help him reach his

greatest potential. He has a small AV Canal defect in his heart so

that is our next challenge. I just wanted to join to maybe chat with

other parents whos kids have MDS in my area, I want to learn all I can

about it. Sincerely, Marriah

May 29, 2007

congratulations I'm so glad he is eating on his own. My little girl had

A/V repair done an three months. Will Gideon need surgery?

Jo Ann mom to ,4, ASD and , 20 mnths,MDS

>

> Gideon is 16 days old today and he is gaining weight steadily and

> starting to eat on his own, he was born 5 weeks premature and so we

> are still in the intensive care unit at the hospital. I am from

> washougal washington, clark county. I love my son so much, I never

> knew I could love someone so much. When I first found out he had

downs

> I was very upset, I cried for him just thinking about how hard life

> might be for him, I also cried because I had this image of what my

> baby was going to be like. When I found out Gideon had MDS I was more

> relieved. After a day or two though, it doesnt matter what he has I

> love him and I am going to work hard with him and help him reach his

> greatest potential. He has a small AV Canal defect in his heart so

> that is our next challenge. I just wanted to join to maybe chat with

> other parents whos kids have MDS in my area, I want to learn all I

can

> about it. Sincerely, Marriah

>

May 29, 2007

Hi Marriah.

Welcome!! I am so glad you found us here!! It is a wonderful place to ask

questions, chat or just brag about your new little one. Congratulations.

Kim

Mom to Mia 16 months MDS

IMDSA Membership Chairperson

www.imdsa.com<http://www.imdsa.com/>

Welcome Marriah and Gideon!

Hi Everyone

We have a new family joining us! Here is what she had to say....

My name is Marriah, Im a 24 year old who was blessed with my first baby

boy two weeks ago. His name is Gideon he has

mosaic down syndrome.

Welcome to our family Marriah! I am so glad you have joined us!

Congratulations on your new baby boy! Please tell us all about Gideon! Where do

you live? We may have families close to you. Please feel free to ask any

questions you may have. We will all be very happy to share our experiences with

you.

Kristy Colvin

IMDSA President & Conference Coordinator

Mom to Arron 25, 22, Tim 21 MDS, Stevan 20 and Garrett 11

SAVE THE DATE! JUNE 29 - JULY 1 MDS RESEARCH & AWARENESS CONFERENCE!

www.imdsa.com

May 29, 2007

he may need surgery they said, but the holes are small and there is

a chance they will heal on there own, how long did it take your

little girl to recover after surgery? Werent you scared!!!

>

> congratulations I'm so glad he is eating on his own. My little

girl had

> A/V repair done an three months. Will Gideon need surgery?

> Jo Ann mom to ,4, ASD and , 20 mnths,MDS

> >

> > Gideon is 16 days old today and he is gaining weight steadily

and

> > starting to eat on his own, he was born 5 weeks premature and so

we

> > are still in the intensive care unit at the hospital. I am from

> > washougal washington, clark county. I love my son so much, I

never

> > knew I could love someone so much. When I first found out he had

> downs

> > I was very upset, I cried for him just thinking about how hard

life

> > might be for him, I also cried because I had this image of what

my

> > baby was going to be like. When I found out Gideon had MDS I was

more

> > relieved. After a day or two though, it doesnt matter what he

has I

> > love him and I am going to work hard with him and help him reach

his

> > greatest potential. He has a small AV Canal defect in his heart

so

> > that is our next challenge. I just wanted to join to maybe chat

with

> > other parents whos kids have MDS in my area, I want to learn all

I

> can

> > about it. Sincerely, Marriah

> >

>

May 30, 2007

Hi

My little girl, Zephany will be 1 year old on June 6. She had her AV canal

repaired on Feb. 27th. She did great and I was really surprised because they had

her off all pain meds within 48 hours. Sitting up really quick too. Her hole was

as big as a mans wristwatch face, and she also had 3 smaller holes. Only one

hole closed on it's own. One week later she was to be released but her heart

started skipping beats. The doctors decided to keep her overnight to monitor her

and the next day total heart block. They had to jump start her heart and rush

her to OR for a pacer. Now she is fine and her pacer only paces her at 4%. The

doctor said for this type of AV canal repair this was the only case that he had

to go back in and put in a pacer. The pacer will be coming out within a year

since she's not using it but at night when she's in a deep sleep.

Re: Welcome Marriah and Gideon!

he may need surgery they said, but the holes are small and there is

a chance they will heal on there own, how long did it take your

little girl to recover after surgery? Werent you scared!!!

>

> congratulations I'm so glad he is eating on his own. My little

girl had

> A/V repair done an three months. Will Gideon need surgery?

> Jo Ann mom to ,4, ASD and , 20 mnths,MDS

> >

> > Gideon is 16 days old today and he is gaining weight steadily

and

> > starting to eat on his own, he was born 5 weeks premature and so

we

> > are still in the intensive care unit at the hospital. I am from

> > washougal washington, clark county. I love my son so much, I

never

> > knew I could love someone so much. When I first found out he had

> downs

> > I was very upset, I cried for him just thinking about how hard

life

> > might be for him, I also cried because I had this image of what

my

> > baby was going to be like. When I found out Gideon had MDS I was

more

> > relieved. After a day or two though, it doesnt matter what he

has I

> > love him and I am going to work hard with him and help him reach

his

> > greatest potential. He has a small AV Canal defect in his heart

so

> > that is our next challenge. I just wanted to join to maybe chat

with

> > other parents whos kids have MDS in my area, I want to learn all

I

> can

> > about it. Sincerely, Marriah

> >

>

May 30, 2007

We were really lucky was released from the hospital two days

early and had no problems after. She was fully healed in six weeks.I

can't even tell you how hard it was to hand her over to the

surgerical nurse, but I knew If I didn't I would never get to know

the precious little girl she would become. I know how intense and

scarey the NICU can be ( we were there for two months) so keep your

spirts up and even though it's hard try to get enough rest you can't

be there for him if you wear your self out.I'm so glad you found this

group these people are wonderful . Don't be afraid to ask anything.

Jo Ann mom to ,4,ASD and ,20mnths,MDS

MosaicDS , " athena3330 " wrote:

>

> he may need surgery they said, but the holes are small and there is

> a chance they will heal on there own, how long did it take your

> little girl to recover after surgery? Werent you scared!!!

>

> >

> > congratulations I'm so glad he is eating on his own. My little

> girl had

> > A/V repair done an three months. Will Gideon need surgery?

> > Jo Ann mom to ,4, ASD and , 20 mnths,MDS

> > >

> > > Gideon is 16 days old today and he is gaining weight steadily

> and

> > > starting to eat on his own, he was born 5 weeks premature and

so

> we

> > > are still in the intensive care unit at the hospital. I am from

> > > washougal washington, clark county. I love my son so much, I

> never

> > > knew I could love someone so much. When I first found out he

had

> > downs

> > > I was very upset, I cried for him just thinking about how hard

> life

> > > might be for him, I also cried because I had this image of what

> my

> > > baby was going to be like. When I found out Gideon had MDS I

was

> more

> > > relieved. After a day or two though, it doesnt matter what he

> has I

> > > love him and I am going to work hard with him and help him

reach

> his

> > > greatest potential. He has a small AV Canal defect in his heart

> so

> > > that is our next challenge. I just wanted to join to maybe chat

> with

> > > other parents whos kids have MDS in my area, I want to learn

all

> I

> > can

> > > about it. Sincerely, Marriah

> > >

> >

>

May 30, 2007

Marriah,

Welcome, I'm Becky (Also the PR Officer for IMDSA) and Austin had the AV Canal

defect at 4 months and had surgery at 5 months to repair it, but when the Heart

Surgeon opened Austin up he found the diagnosis was wrong and that Austin had 2

holes in each canal. Austin spent 3 hours in surgery, was off the venilator by

4PM the day of surgery and had the chest tube removed the next day and by day 3

Post Op was on the Pediatric Ward and was home by the weekend. He's been

unstoppable ever siince. He took about 2 months to completely recover from

surgery.

Hope this helps some,

Becky

Mom to Austin 4.5 MDS

athena3330 wrote:

he may need surgery they said, but the holes are small and there is

a chance they will heal on there own, how long did it take your

little girl to recover after surgery? Werent you scared!!!

>

> congratulations I'm so glad he is eating on his own. My little

girl had

> A/V repair done an three months. Will Gideon need surgery?

> Jo Ann mom to ,4, ASD and , 20 mnths,MDS

> >

> > Gideon is 16 days old today and he is gaining weight steadily

and

> > starting to eat on his own, he was born 5 weeks premature and so

we

> > are still in the intensive care unit at the hospital. I am from

> > washougal washington, clark county. I love my son so much, I

never

> > knew I could love someone so much. When I first found out he had

> downs

> > I was very upset, I cried for him just thinking about how hard

life

> > might be for him, I also cried because I had this image of what

my

> > baby was going to be like. When I found out Gideon had MDS I was

more

> > relieved. After a day or two though, it doesnt matter what he

has I

> > love him and I am going to work hard with him and help him reach

his

> > greatest potential. He has a small AV Canal defect in his heart

so

> > that is our next challenge. I just wanted to join to maybe chat

with

> > other parents whos kids have MDS in my area, I want to learn all

I

> can

> > about it. Sincerely, Marriah

> >

>

---------------------------------

Moody friends. Drama queens. Your life? Nope! - their life, your story.

Play Sims Stories at Yahoo! Games.

May 30, 2007

THANK YOU

Becky Rowe wrote: Marriah,

Welcome, I'm Becky (Also the PR Officer for IMDSA) and Austin had the AV Canal

defect at 4 months and had surgery at 5 months to repair it, but when the Heart

Surgeon opened Austin up he found the diagnosis was wrong and that Austin had 2

holes in each canal. Austin spent 3 hours in surgery, was off the venilator by

4PM the day of surgery and had the chest tube removed the next day and by day 3

Post Op was on the Pediatric Ward and was home by the weekend. He's been

unstoppable ever siince. He took about 2 months to completely recover from

surgery.

Hope this helps some,

Becky

Mom to Austin 4.5 MDS

athena3330 wrote:

he may need surgery they said, but the holes are small and there is

a chance they will heal on there own, how long did it take your

little girl to recover after surgery? Werent you scared!!!

>

> congratulations I'm so glad he is eating on his own. My little

girl had

> A/V repair done an three months. Will Gideon need surgery?

> Jo Ann mom to ,4, ASD and , 20 mnths,MDS

> >

> > Gideon is 16 days old today and he is gaining weight steadily

and

> > starting to eat on his own, he was born 5 weeks premature and so

we

> > are still in the intensive care unit at the hospital. I am from

> > washougal washington, clark county. I love my son so much, I

never

> > knew I could love someone so much. When I first found out he had

> downs

> > I was very upset, I cried for him just thinking about how hard

life

> > might be for him, I also cried because I had this image of what

my

> > baby was going to be like. When I found out Gideon had MDS I was

more

> > relieved. After a day or two though, it doesnt matter what he

has I

> > love him and I am going to work hard with him and help him reach

his

> > greatest potential. He has a small AV Canal defect in his heart

so

> > that is our next challenge. I just wanted to join to maybe chat

with

> > other parents whos kids have MDS in my area, I want to learn all

I

> can

> > about it. Sincerely, Marriah

> >

>

---------------------------------

Moody friends. Drama queens. Your life? Nope! - their life, your story.

Play Sims Stories at Yahoo! Games.

May 30, 2007

THANK YOU

laurensmom4561 wrote:

We were really lucky was released from the hospital two days

early and had no problems after. She was fully healed in six weeks.I

can't even tell you how hard it was to hand her over to the

surgerical nurse, but I knew If I didn't I would never get to know

the precious little girl she would become. I know how intense and

scarey the NICU can be ( we were there for two months) so keep your

spirts up and even though it's hard try to get enough rest you can't

be there for him if you wear your self out.I'm so glad you found this

group these people are wonderful . Don't be afraid to ask anything.

Jo Ann mom to ,4,ASD and ,20mnths,MDS

MosaicDS , " athena3330 " wrote:

>

> he may need surgery they said, but the holes are small and there is

> a chance they will heal on there own, how long did it take your

> little girl to recover after surgery? Werent you scared!!!

>

> >

> > congratulations I'm so glad he is eating on his own. My little

> girl had

> > A/V repair done an three months. Will Gideon need surgery?

> > Jo Ann mom to ,4, ASD and , 20 mnths,MDS

> > >

> > > Gideon is 16 days old today and he is gaining weight steadily

> and

> > > starting to eat on his own, he was born 5 weeks premature and

so

> we

> > > are still in the intensive care unit at the hospital. I am from

> > > washougal washington, clark county. I love my son so much, I

> never

> > > knew I could love someone so much. When I first found out he

had

> > downs

> > > I was very upset, I cried for him just thinking about how hard

> life

> > > might be for him, I also cried because I had this image of what

> my

> > > baby was going to be like. When I found out Gideon had MDS I

was

> more

> > > relieved. After a day or two though, it doesnt matter what he

> has I

> > > love him and I am going to work hard with him and help him

reach

> his

> > > greatest potential. He has a small AV Canal defect in his heart

> so

> > > that is our next challenge. I just wanted to join to maybe chat

> with

> > > other parents whos kids have MDS in my area, I want to learn

all

> I

> > can

> > > about it. Sincerely, Marriah

> > >

> >

>

---------------------------------

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May 30, 2007

Thanks for the reply, Im glad your daughter Zephany is doing well Its nice to

hear that the surgery went ok. Best wishes!

Bolduc wrote: Hi