Re: DX: Celiac Disease, Facet Disease, Hives, Sleep Disorder, Infections, Gastritis

[Guest guest]

Joanie,

Your experience sounds like it has been a real-life nightmare for you and I

hope and

pray that things get better for you. It also sounds very typical of what

happens to people

with mold illness and unfortunately, the lack of understanding you have

gotten from medical people

is typical too.

Joanie, I had a bunch of thoughts as you spelled out (very articulately)

what has been happening

to you.

I don't know your situation and some of what I suggest might be impossible

for you, if so, pleae forgive me, i am just trying to brainstorm what might

help you.

First and most importantly, you need to understand that you can't be a

passive observer in your own death or life.

You need to understand that yes, the system is broken. Other people DON'T

care and they can't be expected

to rescue you. You need to take charge of whatever you CAN and protect

YOURSELF.

The mold is poison and it will continue to make you sicker and sicker. In

order to lessen your exposure you need to change the dynamics of the

situation, but of course, if you do, you run the rsk of being evicted even

quicker because clearly, at this point

they want you out of there because you can't pay rent. And because they made

you sick. The past is the past and its horrible but your immediate situation

is that you MUST GET BETTER SOON and you need to do whatever is in your

power to lessen your exposure to the mold that clearly is still in your

apartment without bringing further catastrophes on yourself.

You need to find a way to have the carpet that is on the concrete removed

SAFELY but I don't know what it is.

It sounds to me as if you must be on a very tight budget. Where are you

located?

Carpet should never be on concrete in a basement/ground floor (on slab)

apartment.

You also need to be able to breathe fresh air and that sounds like it means

that you will need to have continuous fan-forced air

into a window. Try to find the window in your apartment that gets the

freshest air, on the upwind side of your building, if possible

and then put a fan on that window blowing in, set on medium. On the downwind

side of your apartment, put another fan blowing out, set on low. The idea is

to have a slight pressurization of your apartment to keep the mold that is

inside your walls inside.

Also, make sure that you have fans, working fans in your kitchen and

bathroom. If they are broken, make your landlord fix them somehow if its

possible. Send them registered letters demanding they fix these things. get

it all in writing.

I don't know what else to suggest.. Get a good multivitamin/mineral combo

and take it. Get a bottle of low dose alpha lipoic acid pills and take them

3 x a day. NAC and milk thistle might also help. Get lots of vitamin C. If I

were you (and I have been in a similar situation, so I have a lot more

experience than many) i would also take supplemental whey protein because

high protein status seems to lessen damage done by mold and also because

your system may not be absorbing nutrients the way it should be.

If you can go to a mold savvy doctor or get a doctor to give you an rx for

cholestyramine - that would help but the bottom line is that you need to do

whatever you can to transition out of that apartment into another low-income

friendly apartment without these serious mold problems. A dry one.

Activated charcoal pills might help if the cholestyramine is not feasible

for you..

But the fresh air is the most important. And eliminating - ventilating any

sources of moisture which you CAN control .. (cooking showers, etc.)

I wish there was more I could offer you. God bless you and good luck.

On 4/16/07, joanieknibbe2006 <joanieknibbe2006@...> wrote:

>

> I rented this apartment in 2000 using the City of Salem Voucher. In

> 2002 the apartment had septic backups, spilling from the tub and

> toilet onto the bathroom floor. I have cabinets in there, which

> soaked up the nasty fecal water. I cleaned all of this. From this

> point, there was a continued spewing, like a small leak from the

> water heater in that Laundry Room at the back of my apartment.

>

>

[Guest guest]

Joanie,

You desperately need to go to a mold savvy DOCTOR who can bring this all

together for you.

I don't know if that is possible for you in some straightforward money

upfront way but perhaps

it is possible via some kind of pro-bono situation. Ask around on here,

others may know more.

You need to collect all of your medical information and get it very well

organized.. and then work on that.

Again, good luck.

[Guest guest]

This sounds horrible but I can certainly relate to the neurological parts and

the fatigue. KC and his wife, Sharon, suggested I try white vinegar on

everything I touch and taking vinegar baths with 2 cups vinegar per bath.

Hasn't gotten rid of everything but I am feeling better than I have in a long

time. Let us know if it helps. Take care and our prayers are with yoy.

In His Service,

Young<><

joanieknibbe2006 <joanieknibbe2006@...> wrote:

I rented this apartment in 2000 using the City of Salem Voucher. In

2002 the apartment had septic backups, spilling from the tub and

toilet onto the bathroom floor. I have cabinets in there, which

soaked up the nasty fecal water. I cleaned all of this. From this

point, there was a continued spewing, like a small leak from the

water heater in that Laundry Room at the back of my apartment.

The reason I say this, in 2005 when the pipe blew, the Landlord came

and fixed something back there in that room. He came to my door, saw

my daughter soaking up this huge water intrusion. This time the water

had come into my hallway, living room and the kitchen. I have

cabinets in the kitchen on the floor, so they had time to soak up

water, smell and damage my health even more.

The day the pipe burst, we soaked up all we could with towels. But,

the water had stayed on this carpet for months, with huge lumps ander

the carpet. I do have a pad, but do not know what is under that pad.

It might be cement floor or a wood floor. I am not messing with that

part of lifting the carpet.

The landlord just stayed in my front door entry, commented on the man

next door. He said, " Gee, how could he not hear that explosion? " I

did not understand that comment. He laughed as he left. He never did

anything for me and my daughter here with 4 other kids. I did not

have knowledge of water intrusion hurting people's health. From that

time until now, no one has acted on my behalf. I highly believe the

man next door to me bought this building in 2002 and then it was

turned over again to a new Landlord. It is my belief they are all

playing games on who the real owners are and they are covering up, so

that I do not kow who to target for a lawsuit. Government involved

for sure!

I was kicked off the Voucher November 2005. My daughter had moved in,

on my one-bedroom voucher contract. The Landlord never issued us a

renting contract at that time. From December 2005 until May 2006, my

daughter had paid the rent for me. After that, due to her marriage, I

was left here alone, not able to pay any rent. From May 2006 until

June 2006 there was no rent paid. Then, my ex-husband paid July and

August 2006 rent. Then from here, no rent paid and then the Landlord

just waited for rent, but yet he posted non-payment notices on my

door from September 2006 until December 2006. I forced him to give me

a rental contract in November 2006. At this date and time, I had

submitted the rental agreement to a Housing Authority. I applied to

be on Housing again. Long list of waiting to be accepted.

I had my disability claim from December 2003 and saw the ALJ

September 2006 and won a fully favorable claim for back pay of SSI. I

tried to work Oct. 2003 thru Dec. 2003, but failed as a caregiver. I

had dizziness, facial mask of pain, numbness, headaches and vertigo

became horrible.

I have had to stay here not going anywhere without any money to move.

I then had a court order to be Evicted this April 9, 2007. My mother-

in-law then paid $4200.00 for all the back rent. I had the doctor's

note not to be moved out due to so much back pain, facet disease,

daily diarrhea, atrophic mucosa gastritis, hives, yeast, many

infections, and not able to walk hardly anymore.

The medical problems started May 2003. At that time, my face had gone

numb. It was like a facial mask of numbness, along with a really dead

like nose. I have some pressure behind my nose. I saw the ENT, and he

did the Brain Scan. No MS and No Tumors. I saw the Neurologist and

she said it was Trigeminal Neuralgia in my face. I also had many

bulging discs all of the sudden. My walking stopped September 2004.

No one knows why.

I have had diarrhea since June of 2005, it is daily! At this time I

had a huge sore on my stomach, infected and the doctor left it on me

for almost one year before he had cut it out. He never did a culture.

I had to have this sore packed 3 times, with no pain killer, and let

me tell you, it was killing me to have it packed. No one told me what

it was. I asked for a shot to numb me, but he could not because it

would send it into the blood stream he told me. I would not go back

to pack it. I quit that, but the sore is still there. It hurts deep

inside. No one cares.

I saw the Gastro doctor and he did the Colonscopy, all is ok. I

worked with the New Neurologist in 20006 and he did the B12 Shots and

Folic Acid right away on me. He did the Spinal Tap. After six months

he did the Vitamin K bloodwork and I am Gluten Allergic. Celiac

disease! I had so much pain that he referred me to the Pain

Management Center for Epidurials, late 2006.

I had 2 sessions and had new pain. I had sudden outbreak of hives. I

was on Prednisone and out come this huge, foot long mucus ball and it

scared me, so I flushed it! Not the next time, I am prepared to save

it. Since Nov. 2006 I went off all narcotics. I must use Lomotil

daily.

I have been torn on the anus since 2005, due to all the diarrhea. I

have huge sores inside of rectum and anus. I assume they are Yeast,

due to the Dimorphic changes, fungus to yeast, not sure what they

are. I am always bloated up. I have mood changes, but they told me

that I was in Menopause. I sweated daily so badly that I had to live

infront of a fan. These sweats were not Menopause related. I had

hives, itching with this sweating.

I recently in 2007, also had a hard time holding down 16 ozs. of

water. I was having to hold in my bladder up to 32 ozs. of water for

Pelvic and Vaginal Ultrasounds. I had pain in the breast so badly

that I had the Mammogram and all is ok. I still have pain in the arm

pits up to each breasts, below the breasts I am always sweating badly

and daily I have to wash off. I fear these hives!!!

From Nov. 2006 until now the itching is less and less, but at times

it comes back with a vengence. I hardly eat at times, so tired,

insomnia, headaches, my ankles are red and in pain as I hobble to

walk. My neck, left shoulder, shoulder blade and on down my spine is

in pain. I am home bound. Helpless.

There is so much more, but at least you can see into my story by what

I have written. I hope it makes sense.

Bye,

Joanie Knibbe

---------------------------------

Ahhh...imagining that irresistible " new car " smell?

Check outnew cars at Autos.

[Guest guest]

,

That's great to hear . Any kind of relief from any of the

symptoms is welcomed. Don't be afraid to try it a little bit

stronger, from what I understand Epson Salt baths are good too to

help draw some of the toxins. One of the best parts, it's cheap and

anyone can do it. Just a beginning of a long road.

KC

--- In , <scottie592002@...>

wrote:

>

> This sounds horrible but I can certainly relate to the

neurological parts and the fatigue. KC and his wife, Sharon,

suggested I try white vinegar on everything I touch and taking

vinegar baths with 2 cups vinegar per bath. Hasn't gotten rid of

everything but I am feeling better than I have in a long time. Let

us know if it helps. Take care and our prayers are with yoy.

>

> In His Service,

> Young<><

>

> joanieknibbe2006 <joanieknibbe2006@...>

wrote: I rented this apartment in

2000 using the City of Salem Voucher. In

> 2002 the apartment had septic backups, spilling from the tub and

> toilet onto the bathroom floor. I have cabinets in there, which

> soaked up the nasty fecal water. I cleaned all of this. From this

> point, there was a continued spewing, like a small leak from the

> water heater in that Laundry Room at the back of my apartment.

>

> The reason I say this, in 2005 when the pipe blew, the Landlord

came

> and fixed something back there in that room. He came to my door,

saw

> my daughter soaking up this huge water intrusion. This time the

water

> had come into my hallway, living room and the kitchen. I have

> cabinets in the kitchen on the floor, so they had time to soak up

> water, smell and damage my health even more.

>

> The day the pipe burst, we soaked up all we could with towels.

But,

> the water had stayed on this carpet for months, with huge lumps

ander

> the carpet. I do have a pad, but do not know what is under that

pad.

> It might be cement floor or a wood floor. I am not messing with

that

> part of lifting the carpet.

>

> The landlord just stayed in my front door entry, commented on the

man

> next door. He said, " Gee, how could he not hear that explosion? "

I

> did not understand that comment. He laughed as he left. He never

did

> anything for me and my daughter here with 4 other kids. I did not

> have knowledge of water intrusion hurting people's health. From

that

> time until now, no one has acted on my behalf. I highly believe

the

> man next door to me bought this building in 2002 and then it was

> turned over again to a new Landlord. It is my belief they are all

> playing games on who the real owners are and they are covering

up, so

> that I do not kow who to target for a lawsuit. Government

involved

> for sure!

>

> I was kicked off the Voucher November 2005. My daughter had moved

in,

> on my one-bedroom voucher contract. The Landlord never issued us

a

> renting contract at that time. From December 2005 until May 2006,

my

> daughter had paid the rent for me. After that, due to her

marriage, I

> was left here alone, not able to pay any rent. From May 2006

until

> June 2006 there was no rent paid. Then, my ex-husband paid July

and

> August 2006 rent. Then from here, no rent paid and then the

Landlord

> just waited for rent, but yet he posted non-payment notices on my

> door from September 2006 until December 2006. I forced him to

give me

> a rental contract in November 2006. At this date and time, I had

> submitted the rental agreement to a Housing Authority. I applied

to

> be on Housing again. Long list of waiting to be accepted.

>

> I had my disability claim from December 2003 and saw the ALJ

> September 2006 and won a fully favorable claim for back pay of

SSI. I

> tried to work Oct. 2003 thru Dec. 2003, but failed as a

caregiver. I

> had dizziness, facial mask of pain, numbness, headaches and

vertigo

> became horrible.

>

> I have had to stay here not going anywhere without any money to

move.

> I then had a court order to be Evicted this April 9, 2007. My

mother-

> in-law then paid $4200.00 for all the back rent. I had the

doctor's

> note not to be moved out due to so much back pain, facet disease,

> daily diarrhea, atrophic mucosa gastritis, hives, yeast, many

> infections, and not able to walk hardly anymore.

>

> The medical problems started May 2003. At that time, my face had

gone

> numb. It was like a facial mask of numbness, along with a really

dead

> like nose. I have some pressure behind my nose. I saw the ENT,

and he

> did the Brain Scan. No MS and No Tumors. I saw the Neurologist

and

> she said it was Trigeminal Neuralgia in my face. I also had many

> bulging discs all of the sudden. My walking stopped September

2004.

> No one knows why.

>

> I have had diarrhea since June of 2005, it is daily! At this time

I

> had a huge sore on my stomach, infected and the doctor left it on

me

> for almost one year before he had cut it out. He never did a

culture.

> I had to have this sore packed 3 times, with no pain killer, and

let

> me tell you, it was killing me to have it packed. No one told me

what

> it was. I asked for a shot to numb me, but he could not because

it

> would send it into the blood stream he told me. I would not go

back

> to pack it. I quit that, but the sore is still there. It hurts

deep

> inside. No one cares.

>

> I saw the Gastro doctor and he did the Colonscopy, all is ok. I

> worked with the New Neurologist in 20006 and he did the B12 Shots

and

> Folic Acid right away on me. He did the Spinal Tap. After six

months

> he did the Vitamin K bloodwork and I am Gluten Allergic. Celiac

> disease! I had so much pain that he referred me to the Pain

> Management Center for Epidurials, late 2006.

>

> I had 2 sessions and had new pain. I had sudden outbreak of

hives. I

> was on Prednisone and out come this huge, foot long mucus ball

and it

> scared me, so I flushed it! Not the next time, I am prepared to

save

> it. Since Nov. 2006 I went off all narcotics. I must use Lomotil

> daily.

>

> I have been torn on the anus since 2005, due to all the diarrhea.

I

> have huge sores inside of rectum and anus. I assume they are

Yeast,

> due to the Dimorphic changes, fungus to yeast, not sure what they

> are. I am always bloated up. I have mood changes, but they told

me

> that I was in Menopause. I sweated daily so badly that I had to

live

> infront of a fan. These sweats were not Menopause related. I had

> hives, itching with this sweating.

>

> I recently in 2007, also had a hard time holding down 16 ozs. of

> water. I was having to hold in my bladder up to 32 ozs. of water

for

> Pelvic and Vaginal Ultrasounds. I had pain in the breast so badly

> that I had the Mammogram and all is ok. I still have pain in the

arm

> pits up to each breasts, below the breasts I am always sweating

badly

> and daily I have to wash off. I fear these hives!!!

>

> From Nov. 2006 until now the itching is less and less, but at

times

> it comes back with a vengence. I hardly eat at times, so tired,

> insomnia, headaches, my ankles are red and in pain as I hobble to

> walk. My neck, left shoulder, shoulder blade and on down my spine

is

> in pain. I am home bound. Helpless.

>

> There is so much more, but at least you can see into my story by

what

> I have written. I hope it makes sense.

>

> Bye,

>

> Joanie Knibbe

>

>

>

>

>

>

>

>

> ---------------------------------

> Ahhh...imagining that irresistible " new car " smell?

> Check outnew cars at Autos.

>

>

[Guest guest]

Joanie,

Several good points have been made in order to try and help you

through this. Put everything in black and white and keep a daily log

of everything, who you contacted, what they have said, times and

dates. This also includes your condition, everything you may feel is

connected.

Yes, mold/mycotoxins can be very hazardous to your health but this

is secondary to water damaged buildings. In your case the sewage

backup is another nightmare and first and foremost should be your

number one concern. Do a search on sewage spills or backups, I know

there are several websites that pertain to just this. The gram

negative and positive bacteria can cause you a multitude of

diseases, infections, you name it. Another very long list.

I know it is easy for every one of us to tell you you must leave,

get out as soon as possible, but when finances are not available or

living spaces (apartments, etc.) this can be almost impossible. You

may not realize it now but if the landlord evicted you you may be

thanking him later, because of the health ramifications from these

type of exposures mold and bacteria could be a nightmare out of

control.

I would assume you have already contacted local, state and federal

agencies, including the health department. The sewage backup and

bacteria that you are being exposed to should be enough for them to

investigate immediately. That is well documented. It would be to

your best interest to have that carpeting and padding removed and

the flooring disinfected. You should not be in the apartment while

this is being done. Even if you have to live on bare concrete this

would be much better than that carpet full of you name it. Really

this should be done by professionals, but whoever does it, should

wear proper protective gear.

Best of luck to you,

KC

>

> I rented this apartment in 2000 using the City of Salem Voucher.

In

> 2002 the apartment had septic backups, spilling from the tub and

> toilet onto the bathroom floor. I have cabinets in there, which

> soaked up the nasty fecal water. I cleaned all of this. From this

> point, there was a continued spewing, like a small leak from the

> water heater in that Laundry Room at the back of my apartment.

>

> The reason I say this, in 2005 when the pipe blew, the Landlord

came

> and fixed something back there in that room. He came to my door,

saw

> my daughter soaking up this huge water intrusion. This time the

water

> had come into my hallway, living room and the kitchen. I have

> cabinets in the kitchen on the floor, so they had time to soak up

> water, smell and damage my health even more.

>

> The day the pipe burst, we soaked up all we could with towels.

But,

> the water had stayed on this carpet for months, with huge lumps

ander

> the carpet. I do have a pad, but do not know what is under that

pad.

> It might be cement floor or a wood floor. I am not messing with

that

> part of lifting the carpet.

>

> The landlord just stayed in my front door entry, commented on the

man

> next door. He said, " Gee, how could he not hear that explosion? " I

> did not understand that comment. He laughed as he left. He never

did

> anything for me and my daughter here with 4 other kids. I did not

> have knowledge of water intrusion hurting people's health. From

that

> time until now, no one has acted on my behalf. I highly believe

the

> man next door to me bought this building in 2002 and then it was

> turned over again to a new Landlord. It is my belief they are all

> playing games on who the real owners are and they are covering up,

so

> that I do not kow who to target for a lawsuit. Government involved

> for sure!

>

> I was kicked off the Voucher November 2005. My daughter had moved

in,

> on my one-bedroom voucher contract. The Landlord never issued us a

> renting contract at that time. From December 2005 until May 2006,

my

> daughter had paid the rent for me. After that, due to her

marriage, I

> was left here alone, not able to pay any rent. From May 2006 until

> June 2006 there was no rent paid. Then, my ex-husband paid July

and

> August 2006 rent. Then from here, no rent paid and then the

Landlord

> just waited for rent, but yet he posted non-payment notices on my

> door from September 2006 until December 2006. I forced him to give

me

> a rental contract in November 2006. At this date and time, I had

> submitted the rental agreement to a Housing Authority. I applied

to

> be on Housing again. Long list of waiting to be accepted.

>

> I had my disability claim from December 2003 and saw the ALJ

> September 2006 and won a fully favorable claim for back pay of

SSI. I

> tried to work Oct. 2003 thru Dec. 2003, but failed as a caregiver.

I

> had dizziness, facial mask of pain, numbness, headaches and

vertigo

> became horrible.

>

> I have had to stay here not going anywhere without any money to

move.

> I then had a court order to be Evicted this April 9, 2007. My

mother-

> in-law then paid $4200.00 for all the back rent. I had the

doctor's

> note not to be moved out due to so much back pain, facet disease,

> daily diarrhea, atrophic mucosa gastritis, hives, yeast, many

> infections, and not able to walk hardly anymore.

>

> The medical problems started May 2003. At that time, my face had

gone

> numb. It was like a facial mask of numbness, along with a really

dead

> like nose. I have some pressure behind my nose. I saw the ENT, and

he

> did the Brain Scan. No MS and No Tumors. I saw the Neurologist and

> she said it was Trigeminal Neuralgia in my face. I also had many

> bulging discs all of the sudden. My walking stopped September

2004.

> No one knows why.

>

> I have had diarrhea since June of 2005, it is daily! At this time

I

> had a huge sore on my stomach, infected and the doctor left it on

me

> for almost one year before he had cut it out. He never did a

culture.

> I had to have this sore packed 3 times, with no pain killer, and

let

> me tell you, it was killing me to have it packed. No one told me

what

> it was. I asked for a shot to numb me, but he could not because it

> would send it into the blood stream he told me. I would not go

back

> to pack it. I quit that, but the sore is still there. It hurts

deep

> inside. No one cares.

>

> I saw the Gastro doctor and he did the Colonscopy, all is ok. I

> worked with the New Neurologist in 20006 and he did the B12 Shots

and

> Folic Acid right away on me. He did the Spinal Tap. After six

months

> he did the Vitamin K bloodwork and I am Gluten Allergic. Celiac

> disease! I had so much pain that he referred me to the Pain

> Management Center for Epidurials, late 2006.

>

> I had 2 sessions and had new pain. I had sudden outbreak of hives.

I

> was on Prednisone and out come this huge, foot long mucus ball and

it

> scared me, so I flushed it! Not the next time, I am prepared to

save

> it. Since Nov. 2006 I went off all narcotics. I must use Lomotil

> daily.

>

> I have been torn on the anus since 2005, due to all the diarrhea.

I

> have huge sores inside of rectum and anus. I assume they are

Yeast,

> due to the Dimorphic changes, fungus to yeast, not sure what they

> are. I am always bloated up. I have mood changes, but they told me

> that I was in Menopause. I sweated daily so badly that I had to

live

> infront of a fan. These sweats were not Menopause related. I had

> hives, itching with this sweating.

>

> I recently in 2007, also had a hard time holding down 16 ozs. of

> water. I was having to hold in my bladder up to 32 ozs. of water

for

> Pelvic and Vaginal Ultrasounds. I had pain in the breast so badly

> that I had the Mammogram and all is ok. I still have pain in the

arm

> pits up to each breasts, below the breasts I am always sweating

badly

> and daily I have to wash off. I fear these hives!!!

>

> From Nov. 2006 until now the itching is less and less, but at

times

> it comes back with a vengence. I hardly eat at times, so tired,

> insomnia, headaches, my ankles are red and in pain as I hobble to

> walk. My neck, left shoulder, shoulder blade and on down my spine

is

> in pain. I am home bound. Helpless.

>

> There is so much more, but at least you can see into my story by

what

> I have written. I hope it makes sense.

>

> Bye,

>

> Joanie Knibbe

>