Re: for Dee

[Guest guest]

Thanks so much Dee, I surely would! I really have to work on my diet anyway

because I am extremely iron deficient anemic. My Ferritin is 4 (my doc wants it

no less than 50). I know that part of the problem is that I don't eat much. One

small meal once a day in the evening. Hard to get enough iron that way. My doc

wants me on iron supplements but I told her that I have enough trouble with my

bowels without constipating myself with iron...so she says ..ok, we'll add

mirolax (fiber)...well, the problem is that (excuse me for being so frank) my

" inner " sphincter, not the anus but the one up inside, doesn't want to open. If

I took iron and fiber (artificially) I'm afraid that I would just blow up like a

balloon and be miserable. I don't mind adding iron and fiber through diet

though. So....since I need to address the diet anyway, might as well go on an

anti-inflammatory one   I know a bit about homeopathy myself so I might be

able to do some research and

find a homeopathic that will help. I am already on Thiamine and Folic acid.. As

you said, in order to get supplements that you can actually digest you have to

pay high dollar So many of them are basically worthless. If the minerals

aren't chelated you are basically just throwing your money in the trash. Well,

will start with what I can change and see what happens. Thanks for sharing!

From: Dee Allaert <deeinbchotmail (DOT) com>

Subject: RE: Struggling Tonight w/ extreme nerve pain (a 9 out of 10 on

pain scale)

To: tetheredspinalcord@ yahoogroups. com

Date: Friday, January 23, 2009, 4:28 AM

Re panic attacks - I suffered for years with them but they gradually went away

when I started a good nutritional program with a naturopath. Do you take a

B-Comples? If not it might be worth a try but give it 6 months or so before

deciding whether or not it helps. Hope you are feeling better soon.

Dee

To: tetheredspinalcord@ yahoogroups. com

From: emaher1916gmail (DOT) com

Date: Fri, 23 Jan 2009 03:20:44 +0000

Subject: Struggling Tonight w/ extreme nerve pain (a 9 out of 10 on pain

scale)

I've really been struggling a lot these past two weeks with my pain

levels. I don't know if it's the weather or just randomness that

brings it on -- but what I DO know is I woke up today with a

horribley intense headache and lumbar nerve pain off the charts. I

want to add -- I've been living with chronic neuropathy since May

2007 -- having it everyday -- versus previously where-in it would

creep up a month here or there, but never 24/7.

The thing sucks is I'm having a left sympathetic lumbar nerve block

with heating of my nerve endings on Tuesday morning and have to cease

taking my Mobic (meloxicam - anti-inflammatory. ) The mobic paired

with flexeril controls my muscle spams and makes each day tolerable --

on a good day -- I even " forget " about my pain -- and I see hope in

that.

My pain was a 9 out of 10 today. I awoke at 10:00am made myself a

cuppa sat on the couch, finished it, watched a bit of tele -- BBC

America I believe and then went back to bed at 12:00p b/c my

neuropathy and headache combined were too much to deal with. I woke

up later than expected with only 15 minutes to get ready and rush out

the door for my PT appointment. I always try to have a couple instant

cold packs (travel size) on hand (just in case) and brought one with

me. It made the 20 minute drive a little less than horrible. My

neuropathy hardly ever brings me to the point of tears but today was

different. That and Gray's Babylon was on the radio and after

that Leonard Cohens " Hallelujah " that did it for sure.

I tried to make it seem like " all was fine " when Nick (my PT) came

out to get me from the waiting room lounge but just couldn't fake it -

- I never was a good liar. I said my pain was excruciating. He said

walking on the treadmill would help ease my tense back and I can't

say it was magically better after 9 minutes -- but for those 9

minutes I was able to " go somewhere else " and take my mind off

things. We then did some stretching excercises on the excercise ball.

One's up till now I've never done.

I stopped at the grocery on the way home for a few essential

household items and then headed on home. I had a fight/spat with my

Mom who was upset/un-nerved b/c I didn't pick up the tax forms she

needed from the IRS office. In the event she got home earlier than

me, I left a note about things. I said I'd been in excruciating pain

all day and while my headache began to subside during PT my back was

a whole nother story.

After dinner I did some gentle yoga stretching and a few other PT

excercises. Do I feel better? I'll rule on that tomorrow. It's just

nice to have a place to share these things b/c I've tried many,

numerous times to discuss this with my Mom and other family members

and the only person I can sometimes relate to is my brother, Matt who

lives in NYC. I got an e-mail from my dear friend who's in

Brasil until April with my other dear friend Sidnei (male) (they're

married.) It helped take my mind off things.

I've been icing my back 25 min on 35 min off. With taking the

flexeril and my other medications I'm getting sleepy. I seem to get

to sleep fine but wake up at 3:30ish in extreme pain, take another

percocet, valium and go sit on the couch with a blanket and read --

when I'm able to " fall back " asleep -- I only then return to bed.

I believe there were a couple other people who have nightmares,

insomnia and night pain.

What things help you?

Is there any certain thing in particular that you find comforting?

How many times a week do you experience this?

What about panic attacks? When I have them and I do quite often, even

more so lately I try " rescue remedy " first but then after much deep

breathing and calming my mind -- I resort to xanax. I don't really

like taking it b/c it makes me sleepy.

Thanks for listening.

--

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