Re: brain balancing centers

[Guest guest]

Haven,Thanks for the information. I will find the book. We are on hundreds of $ of supplements too. Is this medicine a prescription so I have to get a doctor to order it?-- Sent from my Palm Pixi

Thanks Kim!After my son regressed and we basically got abandoned and "shunned" by his pediatricians office --- that is what they do, you know...if something goes wrong, then they shun you. when I went back trying to get answers, they just kept telling me I was "imagining things" that I was just over protective and a first time mother and blah blah blah... and they knew he had talked but wasn't talking any more and having horrendous staring spells.

When I wanted testing for mercury poisoning they put us through hell, gave us the run around, sent us back and forth between offices, wore us down over a five hour period until we left. Before that, they wouldn't allow us to be in the regular waiting room, they separated us from everyone in a separate waiting room.

After we had run the gambit of doctors telling us it was "hopeless" and to "go home and just accept it," i started looking on the Internet and found the A-M group. Dr. Cutler tried to teach me a lot of stuff, and we got started with biomed, but we put off chelation far too long, I think. I mean, I don't think it is too late, but considering how well my son did with diet and metabolic supports, I truly believe if we had done AC chelation back then, our son would be healed by now.

I mean, by age four and a half, the only thing that could have possibly given away that Ethan had ASD was the fact he wasn't really talking much yet, though taking away soy had produced him saying his first meaningful sentence.

Then after spending $$$$$ on DAN! and just stagnating.... It was a combination of things: reactions after IV chelation along with regression -- the stimming that was gone by age four returned with a vengeance. It also brought back some major hyper activity, so then the DAN's answer to this was to try to convince me to put him on Prozac. When we had first started seeing him he acted like he was a very natural oriented physician.

Then when our son reacted to IV EDTA really badly, he tried to convince us to keep going but add oral steroids. Then it was the fact that -- well just something I found out and it was costing us about 280 out of pocket every week, and we didn't have it, and we have gone as far in debt as we can go.

With IV DMPS and reactions I thought it was sulfur, but then he had the same reaction only worse with IV EDTA alone. I was NOT going to give him oral steroids as he had them once and had a psychotic episode, and I damn sure wasn't going to put my son on Prozac for stimming and hyper activity.

I was sick of all the band-aids! So I had been off the A-M group for some time -- just got too busy, and I went back and started learning again. From there I learned about the REcovery from Autism group, and they are a serious group and no nonsense and focus on doing AC chelation. they have been a God send, and they are not afraid to give a person a kick in the pants when they need one.

I needed one. Due to the reacitons of IV chelation, I was really scared to start any kind of chelation again, but I re-read Andy's books and the files and asked questions and finally started. It is "low and slow" and a very safe form of chelation. But it takes commitment and an acceptance of a loss of sustained sleep on weekends, but my husband is on board and does most of the night doses (he says he has to get up anyway).

I can take anywhere form 100 to 300 weeks to get all the mercury and other heavy metals out. We are only on round three, but already I see improvement in auditory processing. My son is very calm on rounds unless yeast flares up, and then I give GSE now twice a day. I learned his "reactions" were probably not true asthma at all, but a sign of adrenal fatigue and used ACE and have see no signs of asthma since.

In fact, before we started chelating again, my son was needing Benadryl and his rescue inhaler about four times a week. I was so afraid to put him back on Pulmacort as it had made him gain too much weight. Since beginning AC chelation, my son has not needed his rescue inhaler ONCE. It is blowing me away because we have been battling respiratory issues since he regressed.

H started with chronic infections and then pneumonia, which he has had eight times since age two. Until two years ago, he would get a respiratory infection with a fever every two to three weeks like clockwork.

Of course, we are home schooling now and I think having him out of the school environment has helped, but I think what we are doing now with chelation, biotin, GSE, and ACE as needed is really to credit.I would NEVER again recommend IV chelation nor challenge tests to any parent. The last reaction my son had was frightening. He would have these delayed reactions about forty-five minutes after treatment, and the last one scared the hell out of us.

The first day we did AC protocol, he started with the tell-tale coughing and clearing his throat. Then I gave ACE and he was fine. He hasn't coughed like that since. I just give him a little ACE in the mornings to support his adrenal function. If I see too much hyperactivity, I back off the ACE.

Of course, there are other supplements they need through the AC protocol, and thee are explained in Andy's book.If you are interested in this form of chelation, you need to read his book, and I admit, it is not an easy read, but then you can ask to join the RFA group, and then have access to the files section which make things more concise. The moderators are extremely knowledgeable and you can get a hair test from DDI ordered and seeif your child is, indeed, heavy metals toxic (which I think most of our children are).

I hadn't seen progression in my son in quite some time. I saw regression in some key areas with IV chelation -- plus it was just expensive and frightening, and I don't think it is safe, and I realize now that all it did was over the mercury around and deposit it elsewhere in my kids body.

We had been at a plateau for a long time.Now, just with three rounds, I see improvement. My son is better on rounds -- calmer and more with it. on the second and third days after a round, it seems the yeast flares and he can be very hyper and stim a lot, but the biotin and GSE help tremendously.

Dr. Cutler made a lot of sense to me years ago, and I have come full circle back to this. If I had listened to him years ago, it would have saved us a lot of money.AC chelation is very inexpensive compared to DAN and every other therapy out there. I think diet helps. Supplementation is needed, so that is pretty similar but not as extensive as DAN (good gosh the money we spent trying this supplement and that per a DAN). The supplements in this protocol are very basic.

So the first steps would be to read "Amalgam Illness," and then get a DDI hair test. We started chelation first and I just sent the hair test off. My son was diagnosed with heavy metal intoxication at age three by a neurologist, so we knew he was mercury toxic. We did a hair test years ago, but it wasn't DDI, but looking at it -- I could tell he was toxic -- all his mineral ratios were way off. Copper was way too high -- so high his regular doctor freaked and thought he had 's disease.

His baby teeth also began demineralizing after regression, which is another sign of abnormal mineral transport. His body wasn't able to get the calcium it needed from his gut, so it started sucking it out of his teeth. This is also a sign of mercury poisoning.

[Guest guest]

Kim,If you do the DDI hair test, then you can know what to chelate with.  My son has some issues, so we are using ALA only for now.  You can buy ALA at any health food or drug store.A lot of parents start with DMPS and then add ALA.

ALA is unique because it crosses the blood-brain barrier.  Some say it chelates it out of the brain.  I've heard others say it works because it raises glutathione levels.  I am trying to study and understand the biochemistry of it.

I wouldn't buy it at Wal- Mart, though. We got our ALA from Kirkman's, our DMSA from Vitamin Research Products, and our ACE from Thorne.If you are seriously considering chelating with the AC Protocol, then you can request to join the Recovery from Autism group.  This is a no nonsense group.  It is very focused on the AC Protocol to recover children.  The moderators are very careful who they allow join.  They have high expectations:  You have to read Andy's book and you have to read the files section once they allow you in the group.  They will get frustrated with you if If you ask fro an answer that is provided int he files.

I've been " kicked in the pants " a couple of times because I read so much and sometimes everything gets confused in my head.  But they are a wonderful group and I am glad they are there to help.  these moms have been through it, and they are extremely knowledgeable.

Now back to ALA.  Berkley did an extensive study on it.  First they fed very old rats ALC (acetyl-L-Carnitine).  After a while on this, the very old mice started acting like middle-aged mice.  Then the researchers added in ALA -- a very powerful anti oxidant and some believe a powerful chelator (it is a chelator whether directly or indirectly by raising glutathione levels).

Also, both ALC and ALA are unique in that these are the few substances that can actually get inside cells and repair mitochondria.We put our son on ALC at the beginning of our journey when he was but two.  I credit it with helping him regain speech.

What most people don't know about ALA is that it crosses the BBB and can carry metals into the brain if: you don't dose it on its half-life for a minimum of 64 hours (Andy says 72 hours is best), and if you have ANY amalgams in your mouth it will leech mercury from them as well as other parts of your body and carry that mercury into your brain.  So ALA is a no-no for people with amalgams (any form of chelation is).

After the researchers were giving ALC and ALA for a while, they were astonished to find that the very old mice they had started with were acting like teen-aged mice!  It is a fountain of youth combination, so they have marketed it under the name of " Juvenon. "   But again, if people take this supplement and have amalgams in their mouths or don't dose on the half-life of every three hours, they will over the long term wind up making matters worse.

I took it a few times (I have amalgams) and Wo! did I experience the brain fog!  I won't take any kind of chelator again until all my amalgams are out.Also, if you get amalgams out, you have to wait three months to use ALA, but can start fairly quickly after with just DMSA.  Those who find through hair testing that they have problems with lead, will need DMSA at some point.

ALA is VERY safe if used according to specifications (dosing on the half life of three hours -- Andy does say parents can dose every four at night only, but we stick with three.This is in my opinion, the safest way to chelate and is effective.  Please, do not use challenge tests or IV.  It caused my son serious reations, some types of regression, and is very expensive.

With the AC Protocol, the supplements are very basic.  You will read in the files section about having a yeast protocol, supplement protocol, and viral and bacterial protocol if they are needed.  It is the least expensive of all interventions, I think.  We wasted our life savings on DAN which gave great gains in the beginning without chelation, but then led us to a money pit of stagnation.

I think the younger the better, but it is never too late.  There is a clinic up in Oklahoma that does chelation on Alzheimer patients, and many of them have lost the Alzheimer's diagnosis.  Research has shown that chelation is effective in treating cardiovascular disease, and I think it will soon be a standard form of treatment. Our children cannot wait for double-blind studies.

Most parents report improvement by the tenth round, but others report improvements even sooner.  I see the improvement in our son.  His stimming is reduced by more than fifty percent except when yeast flares up.  I can't believe how quiet and non-hyper he is on rounds!  He has begun initiating conversation himself rather than us having to initiate.  I have not seen signs of " asthma " since the first day of round one!  This is miraculous for us.  it is the longest time he has gone without some kind of asthma symptoms since he was two! 

ALA is safe and the protocol only requires parents to divide supplements up four times a day rather than two or three.  It requires you lose a little sleep on the weekends, and it is very inexpensive, and best of all, there is a group who will support you and help.  If you can get a doctor on board who will be willing to go along, Dr. Cutler will consult via your doctor.  If you feel the need to have a doc on board.

Dan docs probably won't because then they can't make the money off you unless you are doing it their way, so beware.  We are doing it and when we want certain tests run, we will find a doc to run them.  We've learned enough to know what to look for.  For our son the biggest concern was his neutrophil count.

Above the things mentioned above, it is up to you what more you want to add to your protocol.  We do diet and we are always trying to clean that up more.  We are going to re-do food allergy testing in March and then I will come up with a good rotation diet again.

I also listen to about Body Ecology, and I also want to add in some real, home made kefir, and just keep making his diet better.I'm not a doctor, so I can't give you " medical " advice.  I can only say what we did and talk about what we are doing and report the positive changes we see.  My son was " lost. "

When we went to Children's Medical Center in Dallas to see the head of pediatric neurology.  I brought all our research with us, and this doctor gave my son the heavy Metal Intoxication diagnosis, but it was hush-hush and creepy and we were " warned " not to implicate vaccines, thought the doc basically admitted that was the only place our son could have gotten the mercury.  He even APOLOGIZED to us for that, but then he said,

" But you've just got to understand, by mass vaccinating, we are saving so many, BUT there are going to be " LOSSES. "   Your child is one of them, and you just need to go home and accept it. "

Can you imagine how livid we were?  Our son had lost ALL speech, and at many times he seemed so catatonic that it frightened the hell out of me.  My tears during those years could fill a lake.  Both this neurologist, another one, and various mainstream MD's told us it was hopeless.  The third developmental pediatrician told us it was hopeless and told us to find an institution to put him in and then just go on with our lives (our son was only three).  I told her I was not going to put my son in a institution.  Then she put her hand on my shoulder and said, " Well then, if you can  " just hang on " a little longer, I have drugs I can give him that will " make YOUR LIFE easier. "

I got mad and pushed her hand off and said, " I am not looking to make MY life easier;  I am looking to make the quality of my son's life better, so you can keep your dope. "   I left and never went back.  She said my son would never be potty trained.  He was fully potty trained by age five.  She said my son would never make a friend.  He has made friends but does need more work in the social area.  She said he would never learn academics.  He is moving at a fast pace now in home school.  He is almost at grade level in spelling, second grade in reading comprehension, second grade in math and writing.  If anyone had thought to continue the foundation I gave him in academics years ago, he would not be so far behind.

I blame myself for that.  I should have just kept home schooling or pulled him again much sooner, but I kept hoping he could gt an appropriate program and I could go back to work.  It is financially strapping to our family, and we miss that income, but my son cannot get these years back, and I am so enjoying teaching him and watching his amazing progress!  He so wants to be an architect, he says, and come hell or high water, I aim to see he gets his shot.  That is the ONLY " shot " my son needs.

Ask to join the RFA group.  can order a DDI hair test for you.  Apply the rules of counting to see what issues your child has, formulate a plan with either DMSA and then ALA added later or chelate with just ALA.  by all means I recommend ALC if your child is not already on it. Get your basic supplements in place before you start.  Andy's amounts seem high to me, so we are working up slowly and watching for signs of intolerance.  Every child is different.

Our son started with 12.5 mg of ALA (we have to split the capsules) though per ANDY he needs about 18 mg, but we will raise it every five rounds.The toughest part is the commitment to 100 to three hundred rounds --that is 100 to 300 weekends to get all the metals out. I just keep thinking that our son could be relatively free of mercury by the time he is fourteen.  I love my son no matter what, but I do want to see what he is like mercury free.  My guess is he will be healthier and that is our main goal.

He has already regained all forms of speech, though his speech is probably delayed about four or five years.  Biomed brought him back to us, and all the mainstream had to offer was psychotropics, hopelessness, and institutionalization.  It was a " no-brainer " choice for us as to who to follow.  We took the road less traveled, and it has made all the difference.

[Guest guest]

Haven - awesome you are seeing results with AC chelation. You are right this

intervention is one of the least expensive anyone can do and it is helpful to

hear real stories of real progress. Thanks for sharing.

>

> Thanks Kim!

>

> After my son regressed and we basically got abandoned and " shunned " by his

> pediatricians office --- that is what they do, you know...if something goes

> wrong, then they shun you. when I went back trying to get answers, they

> just kept telling me I was " imagining things " that I was just over

> protective and a first time mother and blah blah blah... and they knew he

> had talked but wasn't talking any more and having horrendous staring spells.

>

> When I wanted testing for mercury poisoning they put us through hell, gave

> us the run around, sent us back and forth between offices, wore us down over

> a five hour period until we left. Before that, they wouldn't allow us to be

> in the regular waiting room, they separated us from everyone in a separate

> waiting room.

>

> After we had run the gambit of doctors telling us it was " hopeless " and to

> " go home and just accept it, " i started looking on the Internet and found

> the A-M group. Dr. Cutler tried to teach me a lot of stuff, and we got

> started with biomed, but we put off chelation far too long, I think. I

> mean, I don't think it is too late, but considering how well my son did with

> diet and metabolic supports, I truly believe if we had done AC chelation

> back then, our son would be healed by now.

>

> I mean, by age four and a half, the only thing that could have possibly

> given away that Ethan had ASD was the fact he wasn't really talking much

> yet, though taking away soy had produced him saying his first meaningful

> sentence.

>

> Then after spending $$$$$ on DAN! and just stagnating.... It was a

> combination of things: reactions after IV chelation along with regression --

> the stimming that was gone by age four returned with a vengeance. It also

> brought back some major hyper activity, so then the DAN's answer to this was

> to try to convince me to put him on Prozac. When we had first started

> seeing him he acted like he was a very natural oriented physician.

>

> Then when our son reacted to IV EDTA really badly, he tried to convince us

> to keep going but add oral steroids. Then it was the fact that -- well just

> something I found out and it was costing us about 280 out of pocket every

> week, and we didn't have it, and we have gone as far in debt as we can go.

>

> With IV DMPS and reactions I thought it was sulfur, but then he had the same

> reaction only worse with IV EDTA alone. I was NOT going to give him oral

> steroids as he had them once and had a psychotic episode, and I damn sure

> wasn't going to put my son on Prozac for stimming and hyper activity.

>

> I was sick of all the band-aids! So I had been off the A-M group for some

> time -- just got too busy, and I went back and started learning again. From

> there I learned about the REcovery from Autism group, and they are a serious

> group and no nonsense and focus on doing AC chelation. they have been a God

> send, and they are not afraid to give a person a kick in the pants when they

> need one.

>

> I needed one. Due to the reacitons of IV chelation, I was really scared to

> start any kind of chelation again, but I re-read Andy's books and the files

> and asked questions and finally started. It is " low and slow " and a very

> safe form of chelation. But it takes commitment and an acceptance of a loss

> of sustained sleep on weekends, but my husband is on board and does most of

> the night doses (he says he has to get up anyway).

>

> I can take anywhere form 100 to 300 weeks to get all the mercury and other

> heavy metals out. We are only on round three, but already I see improvement

> in auditory processing. My son is very calm on rounds unless yeast flares

> up, and then I give GSE now twice a day. I learned his " reactions " were

> probably not true asthma at all, but a sign of adrenal fatigue and used ACE

> and have see no signs of asthma since.

>

> In fact, before we started chelating again, my son was needing Benadryl and

> his rescue inhaler about four times a week. I was so afraid to put him back

> on Pulmacort as it had made him gain too much weight. Since beginning AC

> chelation, my son has not needed his rescue inhaler ONCE. It is blowing me

> away because we have been battling respiratory issues since he regressed.

>

> H started with chronic infections and then pneumonia, which he has had eight

> times since age two. Until two years ago, he would get a respiratory

> infection with a fever every two to three weeks like clockwork.

>

> Of course, we are home schooling now and I think having him out of the

> school environment has helped, but I think what we are doing now with

> chelation, biotin, GSE, and ACE as needed is really to credit.

>

> I would NEVER again recommend IV chelation nor challenge tests to any

> parent. The last reaction my son had was frightening. He would have these

> delayed reactions about forty-five minutes after treatment, and the last one

> scared the hell out of us.

>

> The first day we did AC protocol, he started with the tell-tale coughing and

> clearing his throat. Then I gave ACE and he was fine. He hasn't coughed

> like that since. I just give him a little ACE in the mornings to support

> his adrenal function. If I see too much hyperactivity, I back off the ACE.

>

> Of course, there are other supplements they need through the AC protocol,

> and thee are explained in Andy's book.

>

> If you are interested in this form of chelation, you need to read his book,

> and I admit, it is not an easy read, but then you can ask to join the RFA

> group, and then have access to the files section which make things more

> concise. The moderators are extremely knowledgeable and you can get a hair

> test from DDI ordered and seeif your child is, indeed, heavy metals toxic

> (which I think most of our children are).

>

> I hadn't seen progression in my son in quite some time. I saw regression in

> some key areas with IV chelation -- plus it was just expensive and

> frightening, and I don't think it is safe, and I realize now that all it did

> was over the mercury around and deposit it elsewhere in my kids body.

> We had been at a plateau for a long time.

>

> Now, just with three rounds, I see improvement. My son is better on rounds

> -- calmer and more with it. on the second and third days after a round, it

> seems the yeast flares and he can be very hyper and stim a lot, but the

> biotin and GSE help tremendously.

>

> Dr. Cutler made a lot of sense to me years ago, and I have come full circle

> back to this. If I had listened to him years ago, it would have saved us a

> lot of money.

>

> AC chelation is very inexpensive compared to DAN and every other therapy out

> there. I think diet helps. Supplementation is needed, so that is pretty

> similar but not as extensive as DAN (good gosh the money we spent trying

> this supplement and that per a DAN). The supplements in this protocol are

> very basic.

>

> So the first steps would be to read " Amalgam Illness, " and then get a DDI

> hair test. We started chelation first and I just sent the hair test off.

> My son was diagnosed with heavy metal intoxication at age three by a

> neurologist, so we knew he was mercury toxic. We did a hair test years ago,

> but it wasn't DDI, but looking at it -- I could tell he was toxic -- all his

> mineral ratios were way off. Copper was way too high -- so high his regular

> doctor freaked and thought he had 's disease.

>

> His baby teeth also began demineralizing after regression, which is another

> sign of abnormal mineral transport. His body wasn't able to get the calcium

> it needed from his gut, so it started sucking it out of his teeth. This is

> also a sign of mercury poisoning.

>