Re: brain balancing centers

[Guest guest]

I have wondered this too, one of my sons therapist told me it did wonders for her son. 

I live in San .

> My son has his last session tomorrow. It has been life-changing for us. Where are you located?

> > Sent from my iPhone> > > > Has anyone ever used or heard of the Brain Balancing centers? Our doctor recommended that we look in to it for our son. I was wondering if anyone has any recommendations about them as they are quite pricey.

> > Thanks, Christy> > > > > >

[Guest guest]

We're very thankful we did a session (12 weeks) at Brain Balance in Plano from

July-Nov 2010.

As with everything, it's just supplemental. Most centers put a strong emphasis

on diet. When I was there, the previous director who was fired, was not doing

his job in this department, but this didn't affect my child's progress because

we already had addressed diet intensively.

I think Brain Balance is awesome and my child is proof. However I do believe

currently that they are better suited for adhd, the upper end of the spectrum.

By the time we went, my son was considered largely recovered form autism

already. He was moderate to severe in diagnosis early on.

Kids who are more severe will need multiple sessions. But again it's just

supplemental. We've done years of intensive interventions.

Atlanta Georgia has a good pre-Brain Balance center. That's where I'd go if my

son hadn't been in the spot he was in. For us Plano was adequate.

It was very very good for our son. The last day, he got into our van and said

" mama if I ever flip back to my left brain will you please bring me back to

Plano. " " when I grow up, I " m going to have a brain balance center in my

backyard and I'll be the director. So all the kids can feel better. " My son

was once non-verbal.

The new director in Plano is very good. For us, it turned our son on. He

hopped on a bike and went flying down the road. He became social and

emotional...he turned on completely right in front of our eyes. Since we've

been home now several weeks, it just keeps getting better.

> >

> > Has anyone ever used or heard of the Brain Balancing centers? Our doctor

> recommended that we look in to it for our son. I was wondering if anyone has

> any recommendations about them as they are quite pricey.

> >

> > Thanks, Christy

> >

> >

> >

> >

> >

> >

>

[Guest guest]

Thank you so much for al of the information. We live in Burleson, outside of Ft.

Worth. I'm interested in the Plano location. Our son is pretty high

functioning. He has Pdd, NOS and is 11. He can carry on a conversation with

us, and has improved in many areas, but we

feel that there is more to the puzzle. His main issues still stem in reading

comprehension and social skills.

> > >

> > > Has anyone ever used or heard of the Brain Balancing centers? Our doctor

> > recommended that we look in to it for our son. I was wondering if anyone has

> > any recommendations about them as they are quite pricey.

> > >

> > > Thanks, Christy

> > >

> > >

> > >

> > >

> > >

> > >

> >

>

[Guest guest]

,Can you give me more information about what they do at Brain Balance?  We drove to Plano for the last three summers for ESY in a private school.  It was always good for our son, and he made progress.

Now, of course, my son easily vocalizes that he does not want to spend three hours in a car every day (1.5 there and back due to traffic -- he hates traffic!).   But I am curious as to the types of things they do at BB.  Where in Plano is it?

Of course, we have been home schooling and Ethan is getting six hours a week of RPM, and he is making phenomenal progress, especially in his comprehension skills!  We could not be more pleased.  Home schooling is working well for our son.

Thanks,Haven

[Guest guest]

Christy,Your son and my son sound so much alike!  My son was diagnosed right on the border of moderate severe, and he lost all speech at fifteen months.  He has improved greatly with biomed and is now high functioning, but still  has a long way to go bio-medically and academically.  His areas of need are reading comprehension, social skills, and math (and writing too).  But he has made a lot of progress since we started home schooling.

You are in Burleson and we are about 35 miles SE of Dallas.  Would you be interested in discussing directly the possibility of some social " play dates " for our boys once the weather gets better unless we could find something indoors and we could meet halfway between?

My son is also eleven.Feel free to contact me off-list if you might be interested.Thanks,Haven

[Guest guest]

Haven: This is so wonderful to hear how well your son is doing. You are a wonderful mother. Hilda From: Texas-Autism-Advocacy [mailto:Texas-Autism-Advocacy ] On Behalf Of Haven DeLaySent: Thursday, January 27, 2011 6:51 AMTo: Texas-Autism-Advocacy Subject: Re: Re: brain balancing centers ,Can you give me more information about what they do at Brain Balance? We drove to Plano for the last three summers for ESY in a private school. It was always good for our son, and he made progress.Now, of course, my son easily vocalizes that he does not want to spend three hours in a car every day (1.5 there and back due to traffic -- he hates traffic!). But I am curious as to the types of things they do at BB. Where in Plano is it?Of course, we have been home schooling and Ethan is getting six hours a week of RPM, and he is making phenomenal progress, especially in his comprehension skills! We could not be more pleased. Home schooling is working well for our son.Thanks,Haven

[Guest guest]

Brain Balancing?.....what exactly is? it will be nice to find out if there is a center in Houston

any info. please pass on

thanks

rosie

Subject: brain balancing centersTo: Texas-Autism-Advocacy Date: Wednesday, January 26, 2011, 2:30 PM

Has anyone ever used or heard of the Brain Balancing centers? Our doctor recommended that we look in to it for our son. I was wondering if anyone has any recommendations about them as they are quite pricey.Thanks, Christy

[Guest guest]

Closest one is in Austin. You can Brain Balancing Center

From: Texas-Autism-Advocacy [mailto:Texas-Autism-Advocacy ] On Behalf Of Rosie ToskySent: Thursday, January 27, 2011 11:35 AMTo: Texas-Autism-Advocacy Subject: Re: brain balancing centers

Brain Balancing?.....what exactly is? it will be nice to find out if there is a center in Houston

any info. please pass on

thanks

rosie

Subject: brain balancing centersTo: Texas-Autism-Advocacy Date: Wednesday, January 26, 2011, 2:30 PM

Has anyone ever used or heard of the Brain Balancing centers? Our doctor recommended that we look in to it for our son. I was wondering if anyone has any recommendations about them as they are quite pricey.Thanks, Christy

[Guest guest]

I believe that you are referring to Brain Balance Centers. I have been told by one of my own patients that they charge around $7000 for twelve weeks of care. I am not sure about what they do but since it revolves around functional neurology, I would expect that they are doing functional neuro exercises like eye movements, interactive metronome, core training and structural improvement (chiropractic). As as franchise I would not expect them to be directly involved in diagnostics such as heavy metal testing, alllergies, amino acid balance, etc. I have an acquaintance who actually owns one of the Brain Balance franchises but when I see him at neurology conferences, he is actually quite reticent about giving any details about it.

Walls, D.C.

brain balancing centers

To: Texas-Autism-Advocacy

Date: Wednesday, January 26, 2011, 2:30 PM

Has anyone ever used or heard of the Brain Balancing centers? Our doctor recommended that we look in to it for our son. I was wondering if anyone has any recommendations about them as they are quite pricey.

Thanks, Christy

[Guest guest]

I am always leery when it cost the big bucks.  Obviously these people must know how strapped ASD families are.  Trust me, we spent thousands of dollars on DAN! before I realized we had just stagnated, and then when there was no progress forward, the doctor wanted to do oral steroids and psychotropics.  No thanks.  We first started seeing a DAN because we wanted to heal our son as naturally as possible.

I have been at this for over nine years, and Dr. Cutler gave me some very good advice early on:  If it is going to work, you will see improvement, and if not, stop doing it and move on.  I wish I had listened to him then about the proper way to chelate, but I was just so scared about everything in the beginning.

I know every child is different and the same formula may not work for every child, but my son made great early improvement on the following:Cleaning up the diet and going gf/cf/sfAdding vitamins, minerals, amino acids, EFA/flax and or fish oil

Rotation dietEpsom salt bathsRemoval of refined sugarsin-home, modified ABA and floor-time done by parents.Speech and OTBeing " in his business " all the timeHome schooling from age 3.5 -4.5 (and we should have just kept HS)

PS was a waste of precious time.Melatonin for sleep disturbanceTalking to him ALL the time in the car (pointing things out, asking questions even if he didn't answer)Having him make choices about EVERYTHING (started with a choice between two things (his first phrases were " This one " or " that one. "

Lowering his toxic load where ever possibleNO re-vaccination*****IV chelation brought back stimming and finger flicking and a big problem with yeast.  It also caused frightening asthmatic reactions in our son.

******I credit his progress now to the above plus:RPM academic tutoring by Mueller in Dallas (who is a Godsend and VERY reasonable and affordable)Home schoolingWorking hard on trying to get the yeast under control again using biotin and GSE.

Social Skills training at IASIS in ville.ACE as needed for adrenal supportAC Protocol for chelation.I wish it was a magic bullet for every child, but it worked for our son who was completely non-verbal with catatonic-like staring spells, horrible behavior, temper tantrums, constipation, etc.

He is not done yet and still has issues to address, but I love having conversations with him.  He is great kid.I would try all the natural things first, and if they don't work, then you can give these more expensive things a try.  I say this as if it can be avoided for a family to go broke trying these expensive things -- I hope so.

We went broke trying this and that over the years with DAN.  JMO.

[Guest guest]

You are so right about the cost. I'm always leery when something costs thousands and thousands of dollars! Every child is different. In my case, the things that work for us are sending him to school, OT, and ST. I'd really like to do more, but we are only one income. We are on the waiting lists for a few places. I can tell that my son has made a lot of improvements this year. I have heard of families getting into 100k+ into debt trying several things.Subject: Re: brain balancing centersTo: Texas-Autism-Advocacy Date: Thursday, January 27,

2011, 2:12 PM

I am always leery when it cost the big bucks. Obviously these people must know how strapped ASD families are. Trust me, we spent thousands of dollars on DAN! before I realized we had just stagnated, and then when there was no progress forward, the doctor wanted to do oral steroids and psychotropics. No thanks. We first started seeing a DAN because we wanted to heal our son as naturally as possible.

I have been at this for over nine years, and Dr. Cutler gave me some very good advice early on: If it is going to work, you will see improvement, and if not, stop doing it and move on. I wish I had listened to him then about the proper way to chelate, but I was just so scared about everything in the beginning.

I know every child is different and the same formula may not work for every child, but my son made great early improvement on the following:Cleaning up the diet and going gf/cf/sfAdding vitamins, minerals, amino acids, EFA/flax and or fish oil

Rotation dietEpsom salt bathsRemoval of refined sugarsin-home, modified ABA and floor-time done by parents.Speech and OTBeing "in his business" all the timeHome schooling from age 3.5 -4.5 (and we should have just kept HS)

PS was a waste of precious time.Melatonin for sleep disturbanceTalking to him ALL the time in the car (pointing things out, asking questions even if he didn't answer)Having him make choices about EVERYTHING (started with a choice between two things (his first phrases were "This one" or "that one."

Lowering his toxic load where ever possibleNO re-vaccination*****IV chelation brought back stimming and finger flicking and a big problem with yeast. It also caused frightening asthmatic reactions in our son.

******I credit his progress now to the above plus:RPM academic tutoring by Mueller in Dallas (who is a Godsend and VERY reasonable and affordable)Home schoolingWorking hard on trying to get the yeast under control again using biotin and GSE.

Social Skills training at IASIS in ville.ACE as needed for adrenal supportAC Protocol for chelation.I wish it was a magic bullet for every child, but it worked for our son who was completely non-verbal with catatonic-like staring spells, horrible behavior, temper tantrums, constipation, etc.

He is not done yet and still has issues to address, but I love having conversations with him. He is great kid.I would try all the natural things first, and if they don't work, then you can give these more expensive things a try. I say this as if it can be avoided for a family to go broke trying these expensive things -- I hope so.

We went broke trying this and that over the years with DAN. JMO.

[Guest guest]

What is PS and ACE?How do you do aba or floor time at home when you don't have any time as both parents work or if the husband is noncommittal to any type of intervention or avoidant to any sort of training to help your child. I know it falls then onto the mom so how do you not go insane? Sent from my iPhone

You are so right about the cost. I'm always leery when something costs thousands and thousands of dollars! Every child is different. In my case, the things that work for us are sending him to school, OT, and ST. I'd really like to do more, but we are only one income. We are on the waiting lists for a few places. I can tell that my son has made a lot of improvements this year. I have heard of families getting into 100k+ into debt trying several things.Subject: Re: brain balancing centersTo: Texas-Autism-Advocacy Date: Thursday, January 27,

2011, 2:12 PM

I am always leery when it cost the big bucks. Obviously these people must know how strapped ASD families are. Trust me, we spent thousands of dollars on DAN! before I realized we had just stagnated, and then when there was no progress forward, the doctor wanted to do oral steroids and psychotropics. No thanks. We first started seeing a DAN because we wanted to heal our son as naturally as possible.

I have been at this for over nine years, and Dr. Cutler gave me some very good advice early on: If it is going to work, you will see improvement, and if not, stop doing it and move on. I wish I had listened to him then about the proper way to chelate, but I was just so scared about everything in the beginning.

I know every child is different and the same formula may not work for every child, but my son made great early improvement on the following:Cleaning up the diet and going gf/cf/sfAdding vitamins, minerals, amino acids, EFA/flax and or fish oil

Rotation dietEpsom salt bathsRemoval of refined sugarsin-home, modified ABA and floor-time done by parents.Speech and OTBeing "in his business" all the timeHome schooling from age 3.5 -4.5 (and we should have just kept HS)

PS was a waste of precious time.Melatonin for sleep disturbanceTalking to him ALL the time in the car (pointing things out, asking questions even if he didn't answer)Having him make choices about EVERYTHING (started with a choice between two things (his first phrases were "This one" or "that one."

Lowering his toxic load where ever possibleNO re-vaccination*****IV chelation brought back stimming and finger flicking and a big problem with yeast. It also caused frightening asthmatic reactions in our son.

******I credit his progress now to the above plus:RPM academic tutoring by Mueller in Dallas (who is a Godsend and VERY reasonable and affordable)Home schoolingWorking hard on trying to get the yeast under control again using biotin and GSE.

Social Skills training at IASIS in ville.ACE as needed for adrenal supportAC Protocol for chelation.I wish it was a magic bullet for every child, but it worked for our son who was completely non-verbal with catatonic-like staring spells, horrible behavior, temper tantrums, constipation, etc.

He is not done yet and still has issues to address, but I love having conversations with him. He is great kid.I would try all the natural things first, and if they don't work, then you can give these more expensive things a try. I say this as if it can be avoided for a family to go broke trying these expensive things -- I hope so.

We went broke trying this and that over the years with DAN. JMO.

[Guest guest]

We, too, have been on this journey for a LONG time. My son will be 11 in March; we adopted him at nearly 3. At that time he was dx moderate autism, was non-verbal, no eye contact, terrible fine motor, bounced around everywhere. We, too, have done DAN and some other things that didn't make much, if any, progress. BUT, we are now at a very happy place! He is doing great and is so happy! His academics are catching up and this past fall was the kicker for his school's football team. And was awesome!He is gfcfsf and takes multiple supplements chosen specifically for him. We buy almost all organic, cook mostly from scratch (I have 4 kids and one's a baby, so if I can swing it anyone can!) and monitor refined sugars, starches, etc. Functional neuro work over the past three months has been VERY positive for us. We did not go to a Brain Balance center, but found

a clinic in Aledo that turned out to be amazing. There was no cookie-cutter approach. We are very very pleased. In fact, my son's teacher called today to go over some testing and she mentioned how other teachers on campus had commented on how much he had changed and improved. Sent from my iPhoneOn Jan 27, 2011, at 2:12 PM, Haven DeLay

wrote:

I am always leery when it cost the big bucks. Obviously these people must know how strapped ASD families are. Trust me, we spent thousands of dollars on DAN! before I realized we had just stagnated, and then when there was no progress forward, the doctor wanted to do oral steroids and psychotropics. No thanks. We first started seeing a DAN because we wanted to heal our son as naturally as possible.

I have been at this for over nine years, and Dr. Cutler gave me some very good advice early on: If it is going to work, you will see improvement, and if not, stop doing it and move on. I wish I had listened to him then about the proper way to chelate, but I was just so scared about everything in the beginning.

I know every child is different and the same formula may not work for every child, but my son made great early improvement on the following:Cleaning up the diet and going gf/cf/sfAdding vitamins, minerals, amino acids, EFA/flax and or fish oil

Rotation dietEpsom salt bathsRemoval of refined sugarsin-home, modified ABA and floor-time done by parents.Speech and OTBeing "in his business" all the timeHome schooling from age 3.5 -4.5 (and we should have just kept HS)

PS was a waste of precious time.Melatonin for sleep disturbanceTalking to him ALL the time in the car (pointing things out, asking questions even if he didn't answer)Having him make choices about EVERYTHING (started with a choice between two things (his first phrases were "This one" or "that one."

Lowering his toxic load where ever possibleNO re-vaccination*****IV chelation brought back stimming and finger flicking and a big problem with yeast. It also caused frightening asthmatic reactions in our son.

******I credit his progress now to the above plus:RPM academic tutoring by Mueller in Dallas (who is a Godsend and VERY reasonable and affordable)Home schoolingWorking hard on trying to get the yeast under control again using biotin and GSE.

Social Skills training at IASIS in ville.ACE as needed for adrenal supportAC Protocol for chelation.I wish it was a magic bullet for every child, but it worked for our son who was completely non-verbal with catatonic-like staring spells, horrible behavior, temper tantrums, constipation, etc.

He is not done yet and still has issues to address, but I love having conversations with him. He is great kid.I would try all the natural things first, and if they don't work, then you can give these more expensive things a try. I say this as if it can be avoided for a family to go broke trying these expensive things -- I hope so.

We went broke trying this and that over the years with DAN. JMO.

[Guest guest]

In Plano, it is $6000, $5500 if you pay up front for 36 sessions. Then $500 for

the TRIAD which is an organic acid test, amino acid and IgG food sensitivity.

Yes it is like you explained with chiropractic exercises for 1/2 hour and 1/2

hour of tutoring.

>

>

>

> Subject: brain balancing centers

> To: Texas-Autism-Advocacy

> Date: Wednesday, January 26, 2011, 2:30 PM

>

>

>

> Has anyone ever used or heard of the Brain Balancing centers? Our doctor

recommended that we look in to it for our son. I was wondering if anyone has any

recommendations about them as they are quite pricey.

>

> Thanks, Christy

>

[Guest guest]

What are PC & ACE? I've never heard of either of those. We're attempting a biomedical approach & considering RPM for our non-verbal 9 yr old son who has developed some vocal stimming that has become a significant issue both at home & at school recently.Sent from my iPhone

I am always leery when it cost the big bucks. Obviously these people must know how strapped ASD families are. Trust me, we spent thousands of dollars on DAN! before I realized we had just stagnated, and then when there was no progress forward, the doctor wanted to do oral steroids and psychotropics. No thanks. We first started seeing a DAN because we wanted to heal our son as naturally as possible.

I have been at this for over nine years, and Dr. Cutler gave me some very good advice early on: If it is going to work, you will see improvement, and if not, stop doing it and move on. I wish I had listened to him then about the proper way to chelate, but I was just so scared about everything in the beginning.

I know every child is different and the same formula may not work for every child, but my son made great early improvement on the following:Cleaning up the diet and going gf/cf/sfAdding vitamins, minerals, amino acids, EFA/flax and or fish oil

Rotation dietEpsom salt bathsRemoval of refined sugarsin-home, modified ABA and floor-time done by parents.Speech and OTBeing "in his business" all the timeHome schooling from age 3.5 -4.5 (and we should have just kept HS)

PS was a waste of precious time.Melatonin for sleep disturbanceTalking to him ALL the time in the car (pointing things out, asking questions even if he didn't answer)Having him make choices about EVERYTHING (started with a choice between two things (his first phrases were "This one" or "that one."

Lowering his toxic load where ever possibleNO re-vaccination*****IV chelation brought back stimming and finger flicking and a big problem with yeast. It also caused frightening asthmatic reactions in our son.

******I credit his progress now to the above plus:RPM academic tutoring by Mueller in Dallas (who is a Godsend and VERY reasonable and affordable)Home schoolingWorking hard on trying to get the yeast under control again using biotin and GSE.

Social Skills training at IASIS in ville.ACE as needed for adrenal supportAC Protocol for chelation.I wish it was a magic bullet for every child, but it worked for our son who was completely non-verbal with catatonic-like staring spells, horrible behavior, temper tantrums, constipation, etc.

He is not done yet and still has issues to address, but I love having conversations with him. He is great kid.I would try all the natural things first, and if they don't work, then you can give these more expensive things a try. I say this as if it can be avoided for a family to go broke trying these expensive things -- I hope so.

We went broke trying this and that over the years with DAN. JMO.

[Guest guest]

The book Disconnected Kids explains the theory. My son in the last month of his

3rd 12 week session at Brain Balance. He has lost some of his mathmatical

ability. His gross motor skills have improved as has his interest in riding a

scooter. His toy play has also improved. His academic scores have improved on

Brain Balancing testing but at school is only at grade level in spelling. His

language has not improved. He is 8 and speaks in 2 word phrases. He cannot ask

or answer " w " questions. So yes we've seen gains but we have a long long way to

go.

>

> ,

>

> Can you give me more information about what they do at Brain Balance? We

> drove to Plano for the last three summers for ESY in a private school. It

> was always good for our son, and he made progress.

>

> Now, of course, my son easily vocalizes that he does not want to spend three

> hours in a car every day (1.5 there and back due to traffic -- he hates

> traffic!). But I am curious as to the types of things they do at BB.

> Where in Plano is it?

>

> Of course, we have been home schooling and Ethan is getting six hours a week

> of RPM, and he is making phenomenal progress, especially in his

> comprehension skills! We could not be more pleased. Home schooling is

> working well for our son.

>

> Thanks,

>

> Haven

>

[Guest guest]

Yes, we're about half  way there!  but in all honesty, the majority of it is from his immune problems and sooo many visits to the ER and medicine insurance refused to cover.  So yes, be careful because before this all started, we were comfortable, and now we will probably never be able to retire.

I don' t regret the things we've tried, but really the things that worked were the less expensive things.  DAN doctors who want to see your child every week can rack up a lot of expense.  Ours once admonished us for not coming every week, and then they just willy nilly order this test and that test and you have to be the one to say " hold on a minute. "   The parent has to educate themselves, and decide which tests THEY want run, I think.

[Guest guest]

Oops-PS is what I meant- so tired lately that I'm not sure what I'm typing...;)Sent from my iPhone

What are PC & ACE? I've never heard of either of those. We're attempting a biomedical approach & considering RPM for our non-verbal 9 yr old son who has developed some vocal stimming that has become a significant issue both at home & at school recently.Sent from my iPhone

I am always leery when it cost the big bucks. Obviously these people must know how strapped ASD families are. Trust me, we spent thousands of dollars on DAN! before I realized we had just stagnated, and then when there was no progress forward, the doctor wanted to do oral steroids and psychotropics. No thanks. We first started seeing a DAN because we wanted to heal our son as naturally as possible.

I have been at this for over nine years, and Dr. Cutler gave me some very good advice early on: If it is going to work, you will see improvement, and if not, stop doing it and move on. I wish I had listened to him then about the proper way to chelate, but I was just so scared about everything in the beginning.

I know every child is different and the same formula may not work for every child, but my son made great early improvement on the following:Cleaning up the diet and going gf/cf/sfAdding vitamins, minerals, amino acids, EFA/flax and or fish oil

Rotation dietEpsom salt bathsRemoval of refined sugarsin-home, modified ABA and floor-time done by parents.Speech and OTBeing "in his business" all the timeHome schooling from age 3.5 -4.5 (and we should have just kept HS)

PS was a waste of precious time.Melatonin for sleep disturbanceTalking to him ALL the time in the car (pointing things out, asking questions even if he didn't answer)Having him make choices about EVERYTHING (started with a choice between two things (his first phrases were "This one" or "that one."

Lowering his toxic load where ever possibleNO re-vaccination*****IV chelation brought back stimming and finger flicking and a big problem with yeast. It also caused frightening asthmatic reactions in our son.

******I credit his progress now to the above plus:RPM academic tutoring by Mueller in Dallas (who is a Godsend and VERY reasonable and affordable)Home schoolingWorking hard on trying to get the yeast under control again using biotin and GSE.

Social Skills training at IASIS in ville.ACE as needed for adrenal supportAC Protocol for chelation.I wish it was a magic bullet for every child, but it worked for our son who was completely non-verbal with catatonic-like staring spells, horrible behavior, temper tantrums, constipation, etc.

He is not done yet and still has issues to address, but I love having conversations with him. He is great kid.I would try all the natural things first, and if they don't work, then you can give these more expensive things a try. I say this as if it can be avoided for a family to go broke trying these expensive things -- I hope so.

We went broke trying this and that over the years with DAN. JMO.

[Guest guest]

PS is public school, and ACE is adrenal cortex extract.  To learn more bout ACE you would have to ask one more knowledgeable.  I only recently learned about it, and I am inclined to think my son's " asthma " is more indicative of adrenal fatigue than a true asthma.  the last time he started having symptoms, I gave ACE, and the asthma stopped.

In addition, before starting ACE, my son was using his inhaler three to four times a week.  I was afraid we were going to have to put him on steroids again.  since using ACE, my son has not needed his rescue inhaler nor Benadryl at all, but it has just been about two weeks.  However, this is a phenomenal amount of time for my son to go without a rescue inhaler, steroids, or Benadryl during a winter month.

I would not tell anyone to use ACE without becoming more knowledgeable or speaking to doctor or parent knowledgeable about it.  Too much and a kid could be very hyper.  I tried it before giving it too my son.  I only took less than 12 mg, but I felt like I had too much adrenalin running through my body.  I lowered the dose more for me, and felt " normal. "   By this I mean better as I have hypothyroidism.  Being under a lot of stress taxes the adrenals.  Mercury poisoning exhausts the adrenals.  I think adrenal fatigue may be something one can discern form a hair test and counting rules.  I will let you know as I learn more, or perhaps one more knowledgeable will reply.

All I know is for my son, this is the least amount of time he has gone without showing signs of an asthma attack coming on, so I keep it in my purse and take it with me (along with his other interventions).  Right now I am just ecstatic that for the time being I don't have to consider putting him back on steroids.

I only give some to my son when I see signs of adrenal fatigue.  I am not yet as knowledgeable as I want to be, but I know it helped when my son was showing signs of asthmatic reaction during a chelation round.  I am always reading and trying to learn more. 

[Guest guest]

Sometimes I did think I might have a nervous breakdown.  I always worked.  I started working when I was thirteen.  The first time I was without a full time job was when I got pregnant at forty.  I tried to keep working but then miscarried my son's twin.  Then I was on bed rest, and then I developed hyperemesis gravadarum.

The HEG was pure hell!  For those who don't know what it is, it is morning sickness twenty-four hours a day for the ENTIRE pregnancy.  It never goes away.  Not only was I puking ALL the time, it came with debilitating vertigo.  the more I moved, the sicker I got.  It got worse as the day wore on, with the evenings being almost unbearable.   I was basically an invalid for my whole pregnancy.  I had to sit in the lazy boy chair and just try not to move, so that the vertigo would let up and I wouldn't keep puking.  I had to go to the hospital a few times for fluids.

They kept reassuring me that this was a " good " sign that the pregnancy was healthy. I had one good month (my seventh) in which the vertigo abated, and I only felt nauseous 24 -7 and threw up only once or twice a day.  During that month I worked substitute teaching.

Then when my son came I was offered a position but was holding him in my arms, and I just couldn't do it.  So we sacrificed and cut back, and my plan was to go back to teaching when he started school.  Then at fifteen months he got more shots, regressed immediately with the full loss of speech and he started getting sick all the time.  Who was I going to find to hire me me when my son was sick with a fever every two weeks like clockwork?  A day care wasn't going to take a child with a fever, and what was it going to cost to have someone come in?  So we have just been sacrificing ever since.

Even on steroids he was still missing twenty-five days a year due to infections.Then we decided to home school.I know I am lucky to have my husband who goes to work everyday, and who is very supportive of all the interventions.

We couldn't afford a professional ABA, so having been a teacher for a long time before he was born, and having had some experience with special needs children, I just ordered " Behavioral Interventions for Young Children with Autism " and followed the book.  I read about Floor- time and integrated some of those strategies.  My " job " became caring for my son and teaching him.  I started this after pulling him out of PS the first time, and did this home program for a year.  He made great progress, but then I put him back in school and can't really talk a lot about that any more other than to say that after years of trying " we settled the matter. "   And here we are home schooling again.

Then since we live on a farm, I breed a couple of mares a year, imprint train the foals and sell them.  Or I buy a horse and hopefully turn around and sell him for a profit.  and for a long time I taught riding in the evenings and on the weekends when my husband could watch him.  As soon as the weather gets better, I will be doing this again.

Most of the time, I'm just on automatic pilot, but then sometimes I just feel exhausted, have a pity party for myself, and somehow pick myself back up and keep going.  It is a lot better now that I don't have the anxiety of having to deal with a PS.  So that makes it better.   Watching my son FINALLY make academic progress really lifts my spirits and makes it all worth it.  But I DO miss making my own money (even if it all went in the same pot anyway).

I do miss having " me " time.  But then I think these years for my son are never going to come again, and there is a window of great opportunity here for him.I am lucky to somehow be able to do this.  I am not single.  But my husband just had a biopsy and though it came back as no cancer yet, he has to be checked every six months, so I do think about " What if " from time to time.  I think in our position, I have to.  What if some years down the road our son still needs a lot of help?  what if I have to go it alone?  He has had to think these things too as I have had three biopsies over the years.  Neither one of wants to have to do it alone. 

My heart goes out to those of you who do.  Some are the friends I have made along the way -- and I wish I had the answers.  All you can do is what you are capable of doing, and no one can judge you for not being able to do what I did or what  another parent did.  If I someday find that I am a single parent, I will have to go back to work. I will have to find a school for my son -- and I dread the thought of what school he might have to go to, but you've got to survive.  You've got to provide food, shelter, and clothing and provide for the basic medical needs of a child, and whatever you can do beyond that is what you do, and you can't beat yourself up about it.

I stated what we did just to give parents ideas -- not to admonish anyone for not doing the same.  What works for one child may not work for another.  It sucks that so many things in this country are getting attention while this epidemic barely gets mentioned except in some fringe, negative light.  Of course, I believe vaccine damage is a large part of it, and therefore, I am livid at times that these children just got thrown away when I feel someone owes them for the damage so that they can get what they need to get better.

If there were ONE thing I would urge you to do that you could do even being a single parent -- though this one thing would be hard in some ways, it would be to look into AC chelation.  First, you would get a DDI hair test and apply counting rules to see if your child is mercury toxic, and if so, then I would tell you to read Andy's book and prepare to do AC chelation.  The cost compared to other interventions is low but has the potential to reap great gains.  If your child is mercury toxic, then the root cause of a lot of the behaviors and problems in all body systems is the mercury. This stuff is so toxic that ONE DROP would pollute our pond for the rest of my lifetime, so why would anyone think it safe to inject in little babies?  They say " Oh but this is ethyl-mercury. "   Well, where are the safety studies and the synergistic studies they did on infants regarding ethyl mercury and all the other toxins and attenuated and live viruses all going in a baby all at once?

 Get the mercury out and see what happens.  But this requires a time commitment and some loss of sleep.  This is a " low and slow "   and very safe method of chelation and can take one to three years.  But many parents report seeing noticeable gains after only ten weeks (doing chelation three days on and four days off).

We are about to start round three.  I already see improvement in auditory processing, and as I mentioned, with the addition of ACE, reduction in asthmatic symptoms.  So if you can only do one thing, I suggest you consider this.  You as the parent must be the one to decide which path you take.  You know your child best.

After  years of trying so many different things, I do believe IV chelation to be dangerous (as well as expensive).  I know my son had severe reactions to it, and I would never do that again. Being a single parent, AC may be rough as you would have three nights where you have to wake every 3 - 4 hours.  Some dose every four hours during the night, but we wake every three hours round the clock.  Parents with kids that go to school start dosing after school on Friday and give the last dose before school on Monday morning.   It has not been as hard as we thought it was going to be. We just keep the doses and water by the bed and the hardest dose is the first night dose and after that, he wakes up, takes his pill and goes back to sleep. 

You might consider this.  We had a lot of testing done when our son regressed, and he was diagnosed with heavy metal intoxication at a children's hospital, and even THEY admitted they did not know much about chelation.  Pretty scary. that is when I learned that there are no toxicologists who are MD's.  This boggles my mind in this age.  We need toxicologists who go on to become Md's or DO's.

Just take the first step and get a DDI hair test and go from there.  One step at a time.  Do not overwhelm yourself.  And never feel like in this you have to " keep up with the es. "   You don't. 

[Guest guest]

OOps, I meant the longest amount of time going without needing asthma

meds. duh!

[Guest guest]

Dr Walls, I'm often asked what fancy tests/treatments we did to address immune

function. Along with autism we USED to have seizures and asthma. I looked

into the protocols, yasko, DAN, immunologists, etc...

I ended up listenting to Natasha Mcbride and Donna Gates as a starting

point. Gut and Psycology syndrome made so much sense to me. We followed the

Body Ecology Diet. Most hollywood celebs with a full team of help couldn't

stay on this diet for 2 weeks! Try living in America with a non verbal sick

child who doesn't even look at you.

Doctors still laugh out loud if you even mention diet. School officials roll

their eyes. Family and friends abandon you.

Dr Walls, I think most people on this board understand that more than 70% of

immune function is in the gut. However there is misinformation to sort through

in understanding how to address this. Let alone the unimaginable hurdles of

actually implementing these changes.

I think many believe they are doing proper dietary changes, but when you take a

closer look the diet is still has sugar and hard to digest foods, bad oils that

congest the liver etc.....

Again, even if parents had THE ANSWER in their hands about how to treat the

gut....this still doesn't address how to implement the changes. I can say with

100% certainty that without Spectrum of Hope (at the time costing us $1000,s

each month) we could never have sorted our way through all of this.

Until doctors stop laughing at us, and school officials stop rolling their eyes,

many families find this process impossible to stay on top of. I'm truly

shocked that I stayed alive and married through the process.

>

>

> You spoke of immune problems and it struck a chord with me. Did you know

that the largest immune organ of the body is the gut? Did you also know that a

leaky gut is a very important player in immune problems? Did you also know that

leaky gut has a high correlation with leaky blood - brain barrier? I ask these

questions as a way to educate this list on the fact that allergy/autoimmune

problems treatment should commence with treating the gut and that entails

removing suspected foods and doing a gut rebuild program to restore full

function to the enterocytes that maintain the blood/gut barrier.

> Dr. Walls

>

>

>

>

>

>

> Re: brain balancing centers

>

>

>

>

>

> Yes, we're about half way there! but in all honesty, the majority of it is

from his immune problems and sooo many visits to the ER and medicine insurance

refused to cover. So yes, be careful because before this all started, we were

comfortable, and now we will probably never be able to retire.

>

> I don' t regret the things we've tried, but really the things that worked were

the less expensive things. DAN doctors who want to see your child every week

can rack up a lot of expense. Ours once admonished us for not coming every

week, and then they just willy nilly order this test and that test and you have

to be the one to say " hold on a minute. " The parent has to educate themselves,

and decide which tests THEY want run, I think.

>

[Guest guest]

Doc,Yes, of course we know this.  When you have a child sick all the time who also has constipation so bad they wind up with impaction and mega colon, you learn it the hard way.Changing diet is not an easy thing to do .  We did a lot when he was very young so that it would just be a way of life for him, but now, through , we have learned a lot more and so wish to move in that direction, but we parents are " dancing as fast as we can " most of the time -- trying to fight the educational battles, the medical battles of idiot doctors who knowing our child's history still want to " talk us into " a flu shot. 

We have been through all the rolling eyes from everyone in town and we keep plugging along.  I wish we could implement everything all at once, but it just isn't possible.  There are plenty of us here who have spent our life savings and then some to try to heal our children, and there is always someone new coming a long who wants more money, which many here no longer have.

But, yes, we know the key is the gut, but in our opinion, when you have a child with an official diagnosis of Heavy metal intoxication, Everything is going to be a band-aid until you get the mercury out.  We are trying to do both at the same time.

For now, we are sticking with the AC Protocol and ACE.  It's working, and it is very inexpensive compared to other interventions.  Dr. Andy Cutler tried to explain so much to me back in 2002, and I listened some but was so anxious I didn't listen enough.  But he said if something is working, you will see improvement and then you stick with it, so that is what we are going to do. 

Dr.  Walls, I appreciate your input, but I am wondering the cost of all these botanicals or herbals compared to one bottle of ACE?  We are retesting for food allergies in March and will remove offending foods.

, I loved what you wrote.  You inspire me to always to better nutritionally, and I thank you for that:)I have to laugh.  I took my son for his " well child " visit, and we were talking about ACE and diet, and he said, " Well, it is all about 'DO NO HARM' "

I just about fell out of my chair as this is the very doctor who tried to talk me into jabbing my son with the flu shot  last winter.  Do no harm my & $$!It's getting to where I'm scared to go see an MD because I'm afraid they are going to go " Private Practice " on us and just vaccinate against our will and think themselves heroes for it.  Do no harm......they don't know the meaning, and the oath isn't worth the paper its printed on.  MONEY is their god.

I have said this many times, if ANY of the powers that be gave a damn about the health and well being of children, they would put as much or more energy into cleaning up the food, air, and water supplies which affect our children dearly as they put into their mass vaccination program.

[Guest guest]

Haven,I love your opinions. If we could just educate more parents before they blindly follow the doctors orders.Please post more info on ACE and AC Chelation. Your sons progress is inspiring. We were able to potty train our 11 yo using ABA last month. Both our kids now have 1:1 aides in PS and are flourishing. Now we need to tackle detox.Kim-- Sent from my Palm Pixi

Doc,Yes, of course we know this. When you have a child sick all the time who also has constipation so bad they wind up with impaction and mega colon, you learn it the hard way.Changing diet is not an easy thing to do . We did a lot when he was very young so that it would just be a way of life for him, but now, through , we have learned a lot more and so wish to move in that direction, but we parents are "dancing as fast as we can" most of the time -- trying to fight the educational battles, the medical battles of idiot doctors who knowing our child's history still want to "talk us into" a flu shot.

We have been through all the rolling eyes from everyone in town and we keep plugging along. I wish we could implement everything all at once, but it just isn't possible. There are plenty of us here who have spent our life savings and then some to try to heal our children, and there is always someone new coming a long who wants more money, which many here no longer have.

But, yes, we know the key is the gut, but in our opinion, when you have a child with an official diagnosis of Heavy metal intoxication, Everything is going to be a band-aid until you get the mercury out. We are trying to do both at the same time.

For now, we are sticking with the AC Protocol and ACE. It's working, and it is very inexpensive compared to other interventions. Dr. Andy Cutler tried to explain so much to me back in 2002, and I listened some but was so anxious I didn't listen enough. But he said if something is working, you will see improvement and then you stick with it, so that is what we are going to do.

Dr. Walls, I appreciate your input, but I am wondering the cost of all these botanicals or herbals compared to one bottle of ACE? We are retesting for food allergies in March and will remove offending foods.

, I loved what you wrote. You inspire me to always to better nutritionally, and I thank you for that:)I have to laugh. I took my son for his "well child" visit, and we were talking about ACE and diet, and he said, "Well, it is all about 'DO NO HARM'"

I just about fell out of my chair as this is the very doctor who tried to talk me into jabbing my son with the flu shot last winter. Do no harm my & $$!It's getting to where I'm scared to go see an MD because I'm afraid they are going to go "Private Practice" on us and just vaccinate against our will and think themselves heroes for it. Do no harm......they don't know the meaning, and the oath isn't worth the paper its printed on. MONEY is their god.

I have said this many times, if ANY of the powers that be gave a damn about the health and well being of children, they would put as much or more energy into cleaning up the food, air, and water supplies which affect our children dearly as they put into their mass vaccination program.

[Guest guest]

Thanks Kim!After my son regressed and we basically got abandoned and " shunned "   by his pediatricians office --- that is what they do, you know...if something goes wrong, then they shun you.  when I went back trying to get answers, they just kept telling me I was " imagining things " that I was just over protective and a first time mother and blah blah blah...  and they knew he had talked but wasn't talking any more and having horrendous staring spells.

When I wanted testing for mercury poisoning they put us through hell, gave us the run around, sent us back and forth between offices, wore us down over a five hour period until we left.  Before that, they wouldn't allow us to be in the regular waiting room, they separated us from everyone in a separate waiting room. 

After we had run the gambit of doctors telling us it was " hopeless " and to " go home and just accept it, "   i started looking on the Internet and found the A-M group.  Dr. Cutler tried to teach me a lot of stuff, and we got started with biomed, but we put off chelation far too long, I think.  I mean, I don't think it is too late, but considering how well my son did with diet and metabolic supports, I truly believe if we had done AC chelation back then, our son would be healed by now.

I mean, by age four and a half, the only thing that could have possibly given away that Ethan had ASD was the fact he wasn't really talking much yet, though taking away soy had produced him saying his first meaningful sentence. 

Then after spending $$$$$ on DAN! and just stagnating.... It was a combination of things: reactions after IV chelation along with regression -- the stimming that was gone by age four returned with a vengeance.  It also brought back some major hyper activity, so then the DAN's answer to this was to try to convince me to put him on Prozac.  When we had first started seeing him he acted like he was a very natural oriented physician.

Then when our son reacted to IV EDTA really badly, he tried to convince us to keep going but add oral steroids.  Then it was the fact that -- well just something I found out and it was costing us about 280 out of pocket every week, and we didn't have it, and we have gone as far in debt as we can go.

With IV DMPS and reactions I thought it was sulfur, but then he had the same reaction only worse with IV EDTA alone.  I was NOT going to give him oral steroids as he had them once and had a psychotic episode, and I damn sure wasn't going to put my son on Prozac for stimming and hyper activity.

I was sick of all the band-aids!  So I had been off the A-M group for some time -- just got too busy, and I went back and started learning again.  From there I learned about the REcovery from Autism group, and they are a serious group and no nonsense and focus on doing AC chelation.  they have been a God send, and they are not afraid to give a person a kick in the pants when they need one. 

I needed one.  Due to the reacitons of IV chelation, I was really scared to start any kind of chelation again, but I re-read Andy's books and the files and asked questions and finally started.  It is " low and slow "   and a very safe form of chelation.  But it takes commitment and an acceptance of a loss of sustained sleep on weekends, but my husband is on board and does most of the night doses (he says he has to get up anyway).

I can take anywhere form 100 to 300 weeks to get all the mercury and other heavy metals out.  We are only on round three, but already I see improvement in auditory processing.  My son is very calm on rounds unless yeast flares up, and then I give GSE now twice a day.  I learned his " reactions " were probably not true asthma at all, but a sign of adrenal fatigue and used ACE and have see no signs of asthma since.

In fact, before we started chelating again, my son was needing Benadryl and his rescue inhaler about four times a week.  I was so afraid to put him back on Pulmacort as it had made him gain too much weight.  Since beginning AC chelation, my son has not needed his rescue inhaler ONCE.  It is blowing me away because we have been battling respiratory issues since he regressed.

H started with chronic infections and then pneumonia, which he has had eight times since age two.  Until two years ago, he would get a respiratory infection with a fever every two to three weeks like clockwork. 

Of course, we are home schooling now and I think having him out of the school environment  has helped, but I think what we are doing now with chelation, biotin, GSE, and ACE as needed is really to credit.I would NEVER again recommend IV chelation nor challenge tests to any parent.  The last reaction my son had was frightening.  He would have these delayed reactions about forty-five minutes after treatment, and the last one scared the hell out of us. 

The first day we did AC protocol, he started with the tell-tale coughing and clearing his throat.  Then I gave ACE and he was fine.  He hasn't coughed like that since.  I just give him a little ACE in the mornings to support his adrenal function.  If I see too much hyperactivity, I back off the ACE.

Of course, there are other supplements they need through the AC protocol, and thee are explained in Andy's book.If you are interested in this form of chelation,  you need to read his book, and I admit, it is not an easy read, but then you can ask to join the RFA group, and then have access to the files section which make things more concise.  The moderators are extremely knowledgeable and you can get a hair test from DDI ordered and seeif your child is, indeed, heavy metals toxic (which I think most of our children are).

I hadn't seen progression in my son in quite some time.  I saw regression in some key areas with IV chelation -- plus it was just expensive and frightening, and I don't think it is safe, and I realize now that all it did was over the mercury around and deposit it elsewhere in my kids body.

We had been at a plateau for a long time.Now, just with three rounds, I see improvement.  My son is better on rounds -- calmer and more with it.  on the second and third days after a round, it seems the yeast flares and he can be very hyper and stim a lot, but the biotin and GSE help tremendously.

Dr. Cutler made a lot of sense to me years ago, and I have come full circle back to this.  If I had listened to him years ago, it would have saved us a lot of money.AC chelation is very inexpensive compared to DAN and every other therapy out there.  I think diet helps.  Supplementation is needed, so that is pretty similar but not as extensive as DAN (good gosh the money we spent trying this supplement and that per a DAN).  The supplements in this protocol are very basic.

So the first steps would be to read " Amalgam Illness, " and then get a DDI hair test.  We started chelation first and I just sent the hair test off.  My son was diagnosed with heavy metal intoxication at age three by a neurologist, so we knew he was mercury toxic.  We did a hair test years ago, but it wasn't DDI, but looking at it -- I could tell he was toxic -- all his mineral ratios were way off. Copper was way too high -- so high his regular doctor freaked and thought he had 's disease.

His baby teeth also began demineralizing after regression, which is another sign of abnormal mineral transport.  His body wasn't able to get the calcium it needed from his gut, so it started sucking it out of his teeth.  This is also a sign of mercury poisoning.