Guest guest Posted July 5, 1999 Report Share Posted July 5, 1999 Dear , Kramer, a fellow Crewby here. That stroke question is worded just fine. Hope you get an answer to it and it is either in NF2 Review or you post it on Crew. I haven't had a problem with stroke (I think !) and I've had 12 NF related surgeries. Didn't realize it was such a risk or problem until I read Crew postings. Thanks for thinking of all of us and writing up this question. Your daughters sound beautiful. This comes from a lady who had three sons. God bless you and all your ladies. Kramer Stroke Question >From: ffusca@... ( A. Fusca) > >Crew, > >I prepared a DRAFT question on strokes and have attached it below. Please >give me any comments you have and I'll revise accordingly. We can then >forward the question to Petito and ask if one of the HEI doctors can >answer it. We can put this in the NF2 Review. > >. > >----------------------------- >Stroke Question: > >A significant number NF2 patients suffered strokes during NF2 related >surgery. The consequences of the stroke are often sever but the patient is >usually given little (if any) information about the stroke. Please provide a >general discussion of strokes in NF2 related surgery. The discussion should >address the following questions: > >How common are strokes in NF2 related surgery? >How is the patient monitored for the occurrence of a stroke? >What is done during surgery to prevent strokes? >When a stroke does occur, what immediate actions are taken to minimize damage? >Why are doctors generally reluctant to discuss the stroke with the patient? > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 5, 1999 Report Share Posted July 5, 1999 & Crew- How about: Types of strokes - how they affect functioning? Factors affecting recovery - degree of recovery? Barbara B, NYC Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 1999 Report Share Posted July 9, 1999 I am a little confused by all this; is this note from Rick's son? Why is Rick in the hospital?? I was wondering why we have not heard from him. Tell him we are all thinking of him; . Marie S. Skyer, Jr. wrote: > > > " Rick " has been in the hospital yet again. Bet I know why, and what > complications resulted in all this. Hospitalised 3 times in 5 months. > 49 days, 12 days and 4 days.. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 1999 Report Share Posted July 9, 1999 the note is from me, I was there hospital again with pneumonia in July! What will happen in the winter? all of this is stroke related and the need for thr trachea tube. I have never been sick and now? For a bitter person I have aright to it. do you sleep at night with a 1 in diameter tube in your throat? how about the 1/4 inch one in my gut at the same time? the pills 4 times a day, vertigo where at times I stand and fall! not tomention the expense thats enormous. There iis more too! speaking of pills they go in the G tube I have and never do I eat or swallow anything via mouth. Think about it. Into LA in very good health, walking talking and even laughing. Doesnt happen and more. ABI might be wonderful but there is a risk, don't fool yourself. Only Adam , before his death, came out with the potential for harm. Yes it can do good, but think it over. The CI and ABI are very differen in placement and ooperation. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 1999 Report Share Posted July 9, 1999 Rick Did you ever tell us what your problems swallowing are?Maybe I missed it.Anyhow,I wanted to share something I wasn't allowed to eat,had a peg tube put in my gut,and got pneumonia .I was treated,and released.in the hospital.I was home a week,and had pneumonia again.This went on untill my 3rd trip to the hospital,with pneumonia,the Dr finally ran test and found even though I wasn't eatimg or drinking, saliva was going into my lungs. Anyhow,I'm not sure if this is anything like your problem,but If it is,I just wanted to speed up your Dr's. thought process,and save you afew ambulance rides. Jimmy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2012 Report Share Posted September 1, 2012 Rick, what doctor is taking care of you back in New York? Marie At 08:29 PM 8/2/99 -0700, you wrote: > > >Been having big probs so not on the cres for a month almost. Yes Ji mmy I have >saliva or something going to the lungs. Sept surgery might be to sew down the >epiglottis to prevent the pnemonia. > >Jimmy wrote: > >> Rick >> Did you ever tell us what your problems swallowing are?Maybe I missed >> it.Anyhow,I wanted to share something I wasn't allowed to eat,had a peg >> tube put in my gut,and got pneumonia .I was treated,and released.in the >> hospital.I was home a week,and had pneumonia again.This went on untill >> my 3rd trip to the hospital,with pneumonia,the Dr finally ran test and >> found even though I wasn't eatimg or drinking, saliva was going into my >> lungs. >> Anyhow,I'm not sure if this is anything like your problem,but If it is,I >> just wanted to speed up your Dr's. thought process,and save you afew >> ambulance rides. >> >> Jimmy >> >> ------------------------------------------------------------------------ >> >> Subject: Re: Stroke Question >> Date: Fri, 09 Jul 1999 19:33:44 -0700 >> >> Reply-To: NF2_Crewonelist >> Organization: AT & T Worldnet Service >> To: NF2_Crewonelist >> References: <md5:8E0CB2143672370ACBBD03FA8782B0EF> >> >> >> >> >> the note is from me, I was there hospital again with pneumonia in July! >> What will happen in the winter? all of this is stroke related and the >> need for thr trachea tube. I have never been sick and now? For a >> bitter person I have aright to it. do you sleep at night with a 1 in >> diameter tube in your throat? how about the 1/4 inch one in my gut at >> the same time? the pills 4 times a day, vertigo where at times I stand >> and fall! not tomention the expense thats enormous. There iis more too! >> speaking of pills they go in the G tube I have and never do I eat or >> swallow anything via mouth. Think about it. Into LA in very good health, >> walking talking and even laughing. Doesnt happen and more. ABI might be >> wonderful but there is a risk, don't fool yourself. Only Adam , >> before his death, came out with the potential for harm. Yes it can do >> good, but think it over. The CI and ABI are very differen in placement >> and ooperation. > > > > Quote Link to comment Share on other sites More sharing options...
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