Guest guest Posted June 26, 1999 Report Share Posted June 26, 1999 Rhonda, Glad you found your way to the crew. As for inoperable, get 2nd, 3rd, 4th, 5th opinions. Could someone give her Dr. Epsteins address or phone number? Mikey A in Pittsburgh-getting older but still good looking At 09:34 PM 6/23/99 -0500, you wrote: > about it , they tell my sister she is inoperable. Rhonda Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 26, 1999 Report Share Posted June 26, 1999 Rhonda - This is Bev in N.Y. again - you mentioned laser surgery for your sister. Are you talking about stereotatic radiation or the gammaknife? We were advised to have stereotatic radiation, so only the larger acoustic neuroma on one side was done to see if it worked. It took about 9 months before a shrinkage could be seen. But after another year, a cyst started to grow within that tumor - so that didn't help him at all. But there are some people that it works for. I just don't understand the difference. Why it works for one and not another person. Actually, there is too much we don't know about NF2. It's very frustrating. The steriods my son had to take because of the radiation caused more problems. The depression was another thing. Good luck to your sister and your family. It's a very difficult thing to go through. Will say another prayer for all of you. BEV in NY Quote Link to comment Share on other sites More sharing options...
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