New Member (VCha173195@...)

[Guest guest]

Hi Everyone,

I have a new member to introduce. Let's welcome a to the Crew!

Glad to have you with us a. Jump in anytime.

Carla

---------------

LET SEE, I'M 37 YRS. OLD. I'M MARRIED, HAVE TWO CHILDREN. THEY ARE 12

AND 8

YRS. OLD. I'M A " FULL TIME " MOM AT HOME ALSO.

MY FIRST ACOUSTIC NEUROMA SURGERY WAS IN 1986. IT TOOK TWO SURGERY'S TO

REMOVE A 5CM TUMOR. I HAD LOSS OF HEARING IN THE RIGHT EAR ALONG WITH

THE

FACIAL PARALYSIS.

ALSO EYE PROBLEMS. THE TUMOR WAS SO LARGE IT CAUSED a lot OF BALANCE

TROUBLE.

IN 1994 I HAD MY YEARLY MRI CHECK UP AND THERE WAS REGROWTH ON THE RIGHT

SIDE

ALONG WITH A SMALL ACOUSTIC NEUROMA ON THE LEFT SIDE. THIS IS WHEN I

FOUND

OUT ABOUT PEOPLE THAT HAVE NF. THE GENETICS COUNSELOR EXPLAINED ALL THE

INFO

TO US.

IN 1996 I HAD THE REGROWTH REMOVED.EVERYTHING WAS O.K. BUT THE BALANCE

GAVE

ME MORE TROUBLE.

AS OF NOW WE ARE WATCHING THE GROWTH OF THE TUMOR ON THE LEFT SIDE. I

HAD

GONE IN MARCH TO HAVE A CHECK UP (MRI)

AND THERE WAS MORE GROWTH WITHIN A YEAR. SO I'M TO GO BACK IN SEPTEMBER

FOR

ANOTHER CHECK. MY HEARING IN THE ONLY EAR IS GOING DOWN HILL ALSO. I'VE

BEEN

TOLD THAT WHEN THE TUMOR IS REMOVED THAT I WILL BE DEAF. SO I HAVE BEEN

CHECKING ON AN AUDITORY BRAINSTEM IMPLANT.

I MUST SAY TO IN 12 YEARS I HAVE LEARNED a lot. MOSTLY ABOUT MYSELF AND

THE

ADJUSTMENTS WE HAVE ALL LEARNED TO DEAL WITH . I'M SO GLAD THERE ARE

OTHER

FOLKS WHO ARE OUT THERE BECAUSE YOU FEEL LIKE THE ONLY ONE IN THE WORLD.

THE ANA NEWSLETTER HAS BEEN A GODSEND AND NOW THERE IS NF2 CREW !!

I HOPE I HAVE SENT ENOUGH INFO , LET ME KNOW IF THERE IS SOMETHING ELSE

THAT

IS NEEDED.

SINCERELY,

PAULA