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Re: Digest Number 454

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Bradly,

regarding your concern over whether to bring Aubrey to an endocrinologist,

perhaps your pediatrician can give an Rx for the labs to be drawn and that

way next time you get her blood done for something else, they can draw the

growth hormones also. If something comes back aberrant then he can refer you

to an endocrinolgist. It may save you from a long and unnecessary office

visit while you wait and see how her growth continues. I did this with my

daughter Diane who also has CHARGE(both of my daughters do) although she is

growing well, I still wanted to make sure I had everything covered but

couldn't bear to go to one extra appointment that i didn't have to. If the

pediatrician doesn't do it for you, ask every single one of her specialists.

someone is bound to feel sorry for you somewhere along the way :-)

hope that helps

Jen Katapodis wife to Mike and mom to our CHaRgErs Emma(51/2) Diane (3)

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