Re: Drop foot and other muscle atrophy

[Guest guest]

>>Adam has had an atrophying arm for 5 years--it's hard to tell on a growing

child if it is getting worse.<<

I developed this when I was 4...

>>However, just last week I mentioned to him that I want him to get some

occupational therapy to see if we can fight this somewhat.<<

I don't mean to discourage you....but they had me doing all kinds of

exercises but they didn't help. I hope they work for Adam though...

>>Rubinstein in NYC said it could be a tumor, such as in his brachial plexus

or

spine, or even a coating of schwann cells along the nerve in his arm/hand. <<

Thats what I was told about mine..but they couldn't tell anything from the

MRI done recently... nor from the CAT scan I had done all those years ago.

There isn't anything they can do at this point anyway. I've got an atrophied

right arm for life....and since I've had it since I'm little I guess I got

used to it. I still hate being asked " What happened to your arm? " ... or the

stares I sometimes get. But I can deal with it..

>>A test called EMG can be done to try and determine where the weakness is

emanating--but I have to warn you that it is one of the most sadistic,

painful tests I've ever witnessed. They stick thick pins directly into

muscle and turn up electric current to see at what level the

" sensation " (read:pain) is felt. <<

They had this done on me when I was 4... and thankfully I don't remember it.

My parents say I was screaming... and that they'd never want to put me

through that again.. I know I wouldn't...esp. as there is nothing they can

do for me...

[Guest guest]

In a message dated 8/1/99 12:12:56 PM Eastern Daylight Time,

MegzDreams@... writes:

<< >>A test called EMG can be done to try and determine where the weakness is

emanating--but I have to warn you that it is one of the most sadistic,

painful tests I've ever witnessed. They stick thick pins directly into

muscle and turn up electric current to see at what level the

" sensation " (read:pain) is felt. << >>

I've had it done twice.. (ohh so much fun) to try to figure out where my foot

drop was originating. They didn't really find much of anything except to say

it's probably a tumor in your leg :x

Well anyways this winter much to everyone's surprise I went Downhill Skiing 3

or 4 times (I've skiied since I was 10 so it wasn't exactly like I was a

novice at it) After Skiing a couple of times I thought my foot felt stronger

so I stopped using the Foot Drop Brace. In my 6 month checkup I told all this

to the Doc who did affirm that the Foot was stronger and the foot drop was

almost gone. And he's not sure why since the tumor didn't go away.

Pete

[Guest guest]

:

>

> << >>A test called EMG can be done to try and determine where the weakness

is

> emanating--but I have to warn you that it is one of the most sadistic,

> painful tests I've ever witnessed. They stick thick pins directly into

> muscle and turn up electric current to see at what level the

> " sensation " (read:pain) is felt. << >>

oy vey- loads of fun- abouut as much as being in an closed mri after a

spinal tap for three hours.- the type where if you are flat more than 10 min

you barf your lungs up- speedy (who hates needles anyway.

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[Guest guest]

I had the EMG with some geek at UCLA in '86 - he lost the results and I had

the tests again 3 days later :I haven't seen that doc since :-) It was not as

bad as a couple other tests people have mentioned I forget the names of, like

the one where they inject some dye into you, put you on a flat table, then

use some kinda big, square x-ray thing that makes your head feel like it will

explode. Spinal taps are a lot of fun too. :-)

-Pat

[Guest guest]

PDillon438@... writes:

<< It was not as bad as a couple other tests people have mentioned I forget

the names of, like the one where they inject some dye into you, put you on a

flat table, then use some kinda big, square x-ray thing that makes your head

feel like it will explode.

***************************************************************************

I remember that test fondly--the myelogram.

Steve

[Guest guest]

Myleogram ?? Was that the one where they stop half way through so you can puke

from the pain, while you are strapped to the table with your feet at the ceiling

and your heads hitting the floor ?? Then you have to lay still for two days so

your head doesn't burst ? I thought there was also one call a Nuro-ensephlagraph

(can't spell that one) thought that one involved air ?? or was this just a bad

childhood dream ? I'll never forget it anyway, they could use it as capitol

punishment.

MRI's a walk in the park no matter what goes wrong !!!

All the best from me and them in OZ

Scwashdc@... wrote:

> From: Scwashdc@...

>

> PDillon438@... writes:

> << It was not as bad as a couple other tests people have mentioned I forget

> the names of, like the one where they inject some dye into you, put you on a

> flat table, then use some kinda big, square x-ray thing that makes your head

> feel like it will explode.

>

> ***************************************************************************

> I remember that test fondly--the myelogram.

>

> Steve

[Guest guest]

In a message dated 8/5/99 9:00:56 PM Eastern Daylight Time,

r-skyer-jr@... writes:

<< this is real late but I want to know some things. My right arm is weak,

no atrophy as of yet, but I do have bilateral tumors in my arm pits, did

you ever have these? I don't know if its related to atrophy or not but

since surgery too its been weaker. Is this a omen? >>

Not sure if you're talking to me but I'll answer anyway <g> No tumors in the

arm pits here... Apparantly my arm just kept getting weaker... I started

having trouble moving my fingers...etc. It hasn't grown since then either (I

was 4). Not sure if its an omen or not.. you never know I guess

[Guest guest]

this is real late but I want to know some things. My right arm is weak,

no atrophy as of yet, but I do have bilateral tumors in my arm pits, did

you ever have these? I don't know if its related to atrophy or not but

since surgery too its been weaker. Is this a omen?

Rick