Re: Here's my first long, miserable note...

[Guest guest]

That seems so unfair, ya know?

>

Yup, we know. Good to hear from you Raena even if you had a lousy

weekend. We all do understand. Hugs.

[Guest guest]

> his lungs. Sunday was better, but I am left with this feeling of

> frustration and anger...what most families would have welcomed as a

> fun surprise was devastating for us. That seems so unfair, ya know?

Oh Raena, I know. I know.

*sniff* *wipe eyes*

I'm sorry.

-Sara.

[Guest guest]

Oh Raena -

I got uncomfortable just READING that. I would really have hated to

have gone thru it.

Big hugs all around to you guys.

Ugh.

Unfair? Yep.

Penny :-(

[Guest guest]

Oh Raena, what a dreadful day. I know I've had them. What can you do? You

can only prepare for so much. Hope today was better.

Amy H

Kepler 4 ASD and Bethany 5 & 1/2 NT

" Illegitimus non carborundum "

(Lat: Don't let the bastards grind you down)

-Gen. ph Stilwell

_________________________________________________________________

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[Guest guest]

In a message dated 10/23/01 12:34:30 PM Pacific Daylight Time,

Zoyavitch@... writes:

> I happened to look down at Sam's face as he sat quietly on

> my lap and I saw tears literally streaming down his face. The noise and

> stimulation were way too much for him and I don't know why I didn't think

> of

> that ahead of time except I was just so excited for him to see his beloved

> Blue's Clues that it completely slipped my mind.

>

>

This brought tears to my eyes, Terry.

I have a vague recollection of that exact thing happening

when my daughter was around that age. Bless you.

Barb

[Guest guest]

>>We were sitting on the floor in front of

> the stage about 5 minutes into the show as children all over were

clapping

> and singing when I happened to look down at Sam's face as he sat

quietly on

> my lap and I saw tears literally streaming down his face. The

noise and

> stimulation were way too much for him and I don't know why I didn't

think of

> that ahead of time except I was just so excited for him to see his

beloved

> Blue's Clues that it completely slipped my mind.>>

Terri,

I think that's one thing that is so hard about all of this; the fact

that you can't just DO what you think would be fun. There's no just

hopping into the car to go. And even when you can plan ahead, you

always have to be ready with a plan B, just in case what you thought

would be okay to do isn't...

Isn't it funny how the fact that our kids are so inflexible makes it

necessary for us to bend in every direction? It's like there's this

quota of how much flexibility has to be built into the universe, and

if our kids can't handle their share, we have to make up for it...

On the up side, I'm a better person for it all. Never knew I could

figure out so many options to dealing with things in everyday

life...things that people take for granted. Never knew I would enjoy

simple things so much, or value the words " I love you, Mama " so much--

-when you only hear them once or twice a year, you really hear them

(no matter how garbled they are)...SO, out of pure necessity, I'm

more creative, more grateful, more observant, a better listener, and

more patient than I ever would have been if everything was hunky-

dorey all the time here.

Too bad there's not an easier way to learn all that...

Raena

[Guest guest]

In a message dated 10/24/2001 8:58:00 AM Eastern Daylight Time,

rgr4us@... writes:

> SO, out of pure necessity, I'm more creative, more grateful, more observant,

> a better listener, and more patient than I ever would have been if

> everything was hunky-dorey all the time here.

>

> Too bad there's not an easier way to learn all that...

>

>

UGG. I am still in the anger stage, I guess, cuz I feel like I never wanted

to learn any of that stuff in the first place and so can't get excited about

doing so under duress. Did that sound as bitchy as I think it did? I don't

mean for it too, I'm just in a bratty place lately....

******Terry******

Wife to: Ron

Mom to: Alec 10, NVLD - Sam 4, Autism - Abbie 3, PDD-NOS

[Guest guest]

Raena,

I'm wondering what you can tell me about CDD as a diagnostic category?

What does it look like? What differentiates CDD from autism?

You are the first real live person I've heard from that has a child with this

dx.

:-)

kandie

Kandie and (9 years)

* 's website: <A

HREF= " http://kidsactivities.homestead.com/spage.html " >spage</A>

*

[Guest guest]

In a message dated 10/24/2001 3:27:39 PM Eastern Daylight Time,

rgr4us@... writes:

> For what it's worth, I noticed on your note that your kids are about

> 4 years behind mine (my son with DSI/LD---probable NLD is now 14, my

> daughter with DSI/dyspraxia/auditory processing challenges is now 10,

> and my son with CDD is now 7. We have been close to where you are

> now, and believe me, it wasn't a pretty sight...still isn't a lot of

> days.

>

>

No, you didn't necessarily sound excited, like I said I'm just feeling

bratty. I appreciate the nod about the ages though, it gives me some hope

that things might get better. Actually, that's not our problem, though.

Things do get better, they just don't ever STAY better.

Excuse my whining...I'll hopefully be over myself in a few days.

******Terry******

Wife to: Ron

Mom to: Alec 10, NVLD - Sam 4, Autism - Abbie 3, PDD-NOS

[Guest guest]

>>I feel like I never wanted

> to learn any of that stuff in the first place and so can't get

excited about doing so under duress.>>

Terry...

Oops! Did I sound excited? :-) I guess at this point, living with

three kids with challenges and a fourth who's furious at having

gotten tossed into such a " weird " family, coming up with some kind of

a positive outlook on things has become the only way to survive.

Please note that I didn't say, " I'm wonderfully patient, grateful,

etc... " I said " MORE " --and don't forget, I started out on this thread

whining about how frustrating the whole deal is...

For what it's worth, I noticed on your note that your kids are about

4 years behind mine (my son with DSI/LD---probable NLD is now 14, my

daughter with DSI/dyspraxia/auditory processing challenges is now 10,

and my son with CDD is now 7. We have been close to where you are

now, and believe me, it wasn't a pretty sight...still isn't a lot of

days.

Raena

[Guest guest]

> I'm wondering what you can tell me about CDD as a diagnostic category?

> What does it look like? What differentiates CDD from autism?

>

> You are the first real live person I've heard from that has a child with

this

> dx.

>

You know I meant to say something like that and I never even welcomed Raena,

at least I don't think I did, because my life just got away with me. Do

tell us, Raena. You have a rapt audience.

Salli