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Re: Vestibular Disorders

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Marie,

Check the ANA website for the article. Hopefully, the article is there. I'll

try to check on it too.

Thanks,

Mark

----Original Message Follows----

Reply-To: NF2_Crewonelist

To: Nf /crew /address <NF2_Crewonelist>

Subject: Vestibular Disorders

Date: Sat, 19 Jun 1999 13:14:38 -0400

For those of you who do not get the ANA Notes, there was an interesting

article on Glasses and Vestibular Disiorders. It is too long to type,

and I don't have a scanner, but in essence it talks about if you have

bifocals, you are causing your brain to work harder, and in the case of

someone with vestibular ;problems it might be more advisable to have two

separate pairs of glasses. He suggests finding an optometrist with

special training in dealing with sensory system problems. Lots of

luck finding someone! I have never had a neuro opthalmologist talk about

vestibular problems, nor had an optomestrist consider it when

prescribing glasses. I wrote the Vestibular Assoc. to ask for a

recommendation of someone in my area (hope they don't send me the name

of the guy who wants to take my license! ) Marie

_______________________________________________________________

Get Free Email and Do More On The Web. Visit http://www.msn.com

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No Mark, I HAVE the article; I get the ANA Notes; but checking the website for

others is a good idea. Marie

Mark Sarmac wrote:

>

>

> Marie,

>

> Check the ANA website for the article. Hopefully, the article is there. I'll

> try to check on it too.

>

> Thanks,

>

> Mark

>

> ----Original Message Follows----

>

> Reply-To: NF2_Crewonelist

> To: Nf /crew /address <NF2_Crewonelist>

> Subject: Vestibular Disorders

> Date: Sat, 19 Jun 1999 13:14:38 -0400

>

>

>

> For those of you who do not get the ANA Notes, there was an interesting

> article on Glasses and Vestibular Disiorders. It is too long to type,

> and I don't have a scanner, but in essence it talks about if you have

> bifocals, you are causing your brain to work harder, and in the case of

> someone with vestibular ;problems it might be more advisable to have two

> separate pairs of glasses. He suggests finding an optometrist with

> special training in dealing with sensory system problems. Lots of

> luck finding someone! I have never had a neuro opthalmologist talk about

> vestibular problems, nor had an optomestrist consider it when

> prescribing glasses. I wrote the Vestibular Assoc. to ask for a

> recommendation of someone in my area (hope they don't send me the name

> of the guy who wants to take my license! ) Marie

>

> _______________________________________________________________

> Get Free Email and Do More On The Web. Visit http://www.msn.com

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If someone wants me to scan in the ANA Notes article (I have a Scanner with

OCR-Optical Character Recognition) Let me know.. I'll send you my snail mail

address so you can mail it to me :)

The Same thing if you have a picture for the Crew Website and don't have

access to a scanner, I can scan most picts :)

Pete

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Marie, I have the scanner and today I highlighted what I would try to

type since I don't really know how to make my scanner work--read too

impatient! I can't hear the thingy working and usually abort thinking

that nothing is happening! I was told at a recent meeting that some

copying can take up to 23 or 25 mins.! Get real!!! But you did a great

job of picking the important part out. One of the Crew in Europe,

Netherlands I think, wrote about this very problem. I, too, have trouble

seeing clearly when " I walk " --that's my best excuse for driving; I have

no problems driving! I joke about only recognizing you when I'm standing

still. It is obviously not a problem simply related to NF2 or it would

never have made the newsletter! In addition to seeing a ophthamologist

instead of just an optometrist(one who is licensed to check eyes and fit

glasses, only), we need to monitor our own driving and take whatever

necessary precautions we will obviously understand we need to take. I

have learned to stop behind another vehicle while I can still see the

tires of that vehicle! Yes, I pray myself on and off interstates. I also

wrote to AARP and strongly suggested that it change its 55/Alive Mature

Manual to reflect that if we do NOT feel safe driving on interstates,

that we use other roads. Twice the instructor told me to slow down and

enter " cautiously " ! (The manual used for this same course this past Jan.

had been admended to reflect that if we don't feel comfortable driving

on interstates to use other roads! We do have to educate and advocate!)

I am well aware that the entrance ramps are made for us to accelerate on

and meld with the flow of traffic which around here is somehwere between

60 and 75 mph despite the speed limit being 55! I enter at about 60 mph!

As I said, I've already ask God to make a space for me and He does.

I don't do night driving unless I have to and rarely is there a " have

to " . All of us without balance know how great we walk at night/dusk on

uneven ground! LOL Know your own limitations and accept them. All the

best in getting to keep your license! Thanks for a good topic to post.

Cya, ie

P.S. Whoever's thunder I copied, with the " Cya " , Thanks! we use it a lot

in Cued Speech but usually write it, " See ya! "

> For those of you who do not get the ANA Notes, there was an interesting

> article on Glasses and Vestibular Disiorders. ......... but in essence it

talks about if you have

> bifocals, you are causing your brain to work harder, and in the case of

> someone with vestibular ;problems it might be more advisable to have two

> separate pairs of glasses. He suggests finding an optometrist with

> special training in dealing with sensory system problems.

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Pete, I have the article; would be glad to send it to you if there is an

interest; would anyone like to see the whole article?

If not, we won't bother. Marie

PeteEMT@... wrote:

> From: PeteEMT@...

>

> If someone wants me to scan in the ANA Notes article (I have a Scanner with

> OCR-Optical Character Recognition) Let me know.. I'll send you my snail mail

> address so you can mail it to me :)

>

> The Same thing if you have a picture for the Crew Website and don't have

> access to a scanner, I can scan most picts :)

>

> Pete

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I agree with your statements. I wrote to the Vestibular Assoc. and asked them

for a recommendation of

a opthamalogist (can never spell that word) in Pgh. area who deals with sensory

or vestibular problems;

my experience, you don't get far trying to find that out otherwise; besides,

with my luck, I am afraid

to go see an opthamalogist now and have HIM tell me I can't drive! I do see

well, altho like you I do

not drive at night. And as Mikey would tell you, here in Pgh. we STOP before we

enter the interstate;

I did that in New Mexico and I thought my daughter-in-law was going to punch me!

I am seriously

considering getting glasses without bifocals for driving. I found an old pair

of prescription

sunglasses that do not have bifocals, and the prescription is still pretty good,

so I have been using

them. Marie

ie W. Lange wrote:

>

>

> Marie, I have the scanner and today I highlighted what I would try to

> type since I don't really know how to make my scanner work--read too

> impatient! I can't hear the thingy working and usually abort thinking

> that nothing is happening! I was told at a recent meeting that some

> copying can take up to 23 or 25 mins.! Get real!!! But you did a great

> job of picking the important part out. One of the Crew in Europe,

> Netherlands I think, wrote about this very problem. I, too, have trouble

> seeing clearly when " I walk " --that's my best excuse for driving; I have

> no problems driving! I joke about only recognizing you when I'm standing

> still. It is obviously not a problem simply related to NF2 or it would

> never have made the newsletter! In addition to seeing a ophthamologist

> instead of just an optometrist(one who is licensed to check eyes and fit

> glasses, only), we need to monitor our own driving and take whatever

> necessary precautions we will obviously understand we need to take. I

> have learned to stop behind another vehicle while I can still see the

> tires of that vehicle! Yes, I pray myself on and off interstates. I also

> wrote to AARP and strongly suggested that it change its 55/Alive Mature

> Manual to reflect that if we do NOT feel safe driving on interstates,

> that we use other roads. Twice the instructor told me to slow down and

> enter " cautiously " ! (The manual used for this same course this past Jan.

> had been admended to reflect that if we don't feel comfortable driving

> on interstates to use other roads! We do have to educate and advocate!)

> I am well aware that the entrance ramps are made for us to accelerate on

> and meld with the flow of traffic which around here is somehwere between

> 60 and 75 mph despite the speed limit being 55! I enter at about 60 mph!

> As I said, I've already ask God to make a space for me and He does.

>

> I don't do night driving unless I have to and rarely is there a " have

> to " . All of us without balance know how great we walk at night/dusk on

> uneven ground! LOL Know your own limitations and accept them. All the

> best in getting to keep your license! Thanks for a good topic to post.

> Cya, ie

>

> P.S. Whoever's thunder I copied, with the " Cya " , Thanks! we use it a lot

> in Cued Speech but usually write it, " See ya! "

>

> > For those of you who do not get the ANA Notes, there was an interesting

> > article on Glasses and Vestibular Disiorders. ......... but in essence it

talks about if you have

> > bifocals, you are causing your brain to work harder, and in the case of

> > someone with vestibular ;problems it might be more advisable to have two

> > separate pairs of glasses. He suggests finding an optometrist with

> > special training in dealing with sensory system problems.

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Dear Marie,

You offered, so I will take you up on it. Please post the article or send to me

directly. I

would really appreciate it.

Bye,

Kim

kim_mitchell@...

_________________________________________________________

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Guest guest

Pete sent me his snail mail address, so I am going to send the article to him

and he will scan

the whole article in. Keep watching. Marie

Kim wrote:

>

>

> Dear Marie,

>

> You offered, so I will take you up on it. Please post the article or send to

me directly. I

> would really appreciate it.

>

> Bye,

> Kim

> kim_mitchell@...

>

> _________________________________________________________

>

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