Re: The Brothers of Pain ...

[Guest guest]

eeeeee......

Yes, the plane leaves about 8:30 tonite. Surgery is 11:00 am tmrw (Tuesday).

That will be at St. ph's as thats Pablo's place of preference. And even

though I gotta share a room, I think its a better place than St. Vnnny's. I

bet my nurse speaks english anyway.

My mom, sister and dad will be there too. They are staying at the Sheraton

Universal I think its called. I get a discount at Sheraton properties cuz

Caesars has the same parent company.

Tell me about the doc at Cedar. Is he supposed to be good? If you dropped

Pablo for a reason, let me know. I just want a good surgeon and I'm not real

loyal to anyone so far. I do want to talk to Adler soon about maybe zapping a

couple of my spinal tumors while they're still small.

I'm really scared. Leaving the hospital in a wheelchair isn't even my bigges

fear. Going through all of this and having the pain remain would suck. I

mean, i don't think they know 100% which tumor is causing this. But the whole

hospital experience really causes me grief, a lot of anxiety, ya know? I

think thats why I am so willing to try radiation.

I hope you can make it by sometime. Not sure how long I will be held

prisoner. I'm hoping only a few days cuz Pablo plans to go after this tumor

from the FRONT, the abdomen. I guess the pelvis bone kinda blocks a clear

shot from the back. Guys like you and I are so bloody thin (I weigh 116 now)

that they can get to the spine fairly easily from the front as long as its

low enough. .

Oh, and Pablo's secretary just called with the pre-op instructions. Seems I

get to have a Fleet enima tonite. Actually I have to have TWO !! One 3 hours

after the other. I won't hit the hotel til about 10:00 so I guess I'll be up

all nite. NF2 leaves you alone for awhile and then really comes after you

hard. I know we all have our own crosses to bare, but why couldn't we have

just been born with big feet or something???

I've been sleeping in my desk chair too. I tried sitting up in bed, but for

some reason the legs need to be bent with the feet on the floor. Whatever

works, but the lack of sleep made it so I couldn't work all of last week.

grrrrrrr..... thanks for the reassurance tho.

Take care bud.

-Pat

[Guest guest]

Oh I see by your note to Pat I was wrong, you do not go to HEI for spine surgery

either?? What hospital do you go it?

I've heard " misery loves company " but you guys are carrying it a bit too far!

Marie

JOHN M PETITO wrote:

> From: BGXG89A@... ( JOHN M PETITO)

>

> -- [ From: Petito * EMC.Ver #2.5.3 ] --

>

> Hey we'd make a great blues band huh?

>

> ,

> Marie Drew just forwarded this note to me. Are you headed for surgery

> THIS Tuesday morning? You are seeing Dr Pablo Lawner, yes? We can come

> to your room and visit you and pet you and feed you food that's yummy

> but bad for you, yes?

> Oh gosh, you sound like you are in some MAJOR PAIN Big Guy. I am

sorry

> to hear that ... but fortunately you are not alone. No sir-ee. I also

> started getting that lower back pain in my posterior and down the leg --

> exactly like you described. Isn't that great?

> Yup, If I lay flat for more than a few minutes ... the demons come.

> And since last month, I'm sleeping in my big desk chair ... instead of

> next to my sweetie, sniff.

> Butt, oops I mean " but " here's some good news: I've had tumors

removed

> from this same place 5 times before, and in EVERY case the surgery

> stopped the pain ... for a few years. I hope this is the case with you

> my friend. Hopefully I'll get mine out in a few weeks. I wont be

> seeing Pablo this time but a Dr. named Todd Lanman at Cedars Sinai.

>

> > Maybe I'll have to have a butt-ectomy. >

>

> A " butt-ectomy " ? How about a rectum-ectomy or an anus-minus?

>

> Gail sez " Hi sugarpants. " She's such a flirt.

> Hey, puleeez let us know how you are.

>

> john-boy

>

> ------- FORWARD, Original message follows -------

>

> > Date: Sunday, 16-May-99 01:49 AM

> >

> > From: Marie Drew \ Internet: (mcdrew@...)

> > To: Petito \ PRODIGY: (BGXG89A)

> >

> > Subject: Did You See This

> >

> > I know I hate to be left out on stuff, but geez... Everybody seems

> to be

> > going in the " shop " for repairs. I am having spine surgery on Tuesday

> morning

> > at St. ph's hospital in N. Hollywood. I am an HEI guy but my

> neurosurgeon

> > doesn't work through them. So at least I get to avoid St. 's

> this time.

> >

> > NF2 is a pain in the butt, and literally this time. The tumor (4 cm)

> is by the

> > tailbone / pelvis and is putting pressure on nerves that go into my

> right leg

> > so my butt cheak hurts a lot. I have had to sleep sitting up for 10

> days now,

> > popping Vicodin like M$Ms too. Laying flat makes the whole area burn

> like

> > crazy. I'm really hoping and praying the surgery ends the pain. My

> mom was

> > crying when she heard I had to have surgery, but after recent posts

> here I

> > told her that the fact they can do surgery to try and help is a good

> thing.

> > What if the tumor were inoperable and I was facing this pain for the

> rest of

> > my life? So I'm kinda keeping with that positive view here. This will

> only be

> > my second spine surgery. I had another back in '87. I have about a

> dozen spine

> > tumors, and threy are all kinda ganging up on me, causing a lot of

> weakness

> > and muscle loss. But this is the first time in a long time I have to

> worry

> > about one

> >

> > I'll let ya know how the surgery goes. Maybe I'll have to have a butt-

> ectomy.

> >

> >

> > TTYS... Pat

> >

> >

>

> ------- FORWARD, End of original message -------

>

> ------------------------------------------------------------------------

> ONElist members are using Shared Files in great ways!

> http://www.onelist.com

> Are you? If not, see our homepage for details.

[Guest guest]

Go Pat! I am here feeling discouraged because I am probably going to go for

surgery #3 and I am wondering if my head can take it, and then I read about

you and ; at least I don't have any pain!!--course that could have to do

with the fact that there may be nothing up there---. I agree, some people

get zits, we get NF2! Wishing you the best and saying a little prayer to.

Marie

At 06:32 PM 5/17/99 EDT, you wrote:

>From: PDillon438@...

>

>eeeeee......

>

>Yes, the plane leaves about 8:30 tonite. Surgery is 11:00 am tmrw (Tuesday).

>That will be at St. ph's as thats Pablo's place of preference. And even

>though I gotta share a room, I think its a better place than St. Vnnny's. I

>bet my nurse speaks english anyway.

>

>My mom, sister and dad will be there too. They are staying at the Sheraton

>Universal I think its called. I get a discount at Sheraton properties cuz

>Caesars has the same parent company.

>

>Tell me about the doc at Cedar. Is he supposed to be good? If you dropped

>Pablo for a reason, let me know. I just want a good surgeon and I'm not real

>loyal to anyone so far. I do want to talk to Adler soon about maybe zapping a

>couple of my spinal tumors while they're still small.

>

>I'm really scared. Leaving the hospital in a wheelchair isn't even my bigges

>fear. Going through all of this and having the pain remain would suck. I

>mean, i don't think they know 100% which tumor is causing this. But the whole

>hospital experience really causes me grief, a lot of anxiety, ya know? I

>think thats why I am so willing to try radiation.

>

>I hope you can make it by sometime. Not sure how long I will be held

>prisoner. I'm hoping only a few days cuz Pablo plans to go after this tumor

>from the FRONT, the abdomen. I guess the pelvis bone kinda blocks a clear

>shot from the back. Guys like you and I are so bloody thin (I weigh 116 now)

>that they can get to the spine fairly easily from the front as long as its

>low enough. .

>

>Oh, and Pablo's secretary just called with the pre-op instructions. Seems I

>get to have a Fleet enima tonite. Actually I have to have TWO !! One 3 hours

>after the other. I won't hit the hotel til about 10:00 so I guess I'll be up

>all nite. NF2 leaves you alone for awhile and then really comes after you

>hard. I know we all have our own crosses to bare, but why couldn't we have

>just been born with big feet or something???

>

>I've been sleeping in my desk chair too. I tried sitting up in bed, but for

>some reason the legs need to be bent with the feet on the floor. Whatever

>works, but the lack of sleep made it so I couldn't work all of last week.

>grrrrrrr..... thanks for the reassurance tho.

>

>Take care bud.

>

>-Pat

>

>------------------------------------------------------------------------

>ONElist: bringing the world together.

>http://www.onelist.com

>Join a new list today!

>