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Hi Everyone

I am working on some documents to be sure that we have most of the basic

questions answered on our website. If any of you have visited our site recently,

you know what we already have lots of information concerning MDS and you know

that we are the only organization with such information. But, of course, there

is never enough info!

Please have a look at this particular document and let me know if there is any

other questions that you feel are left unanswered.

http://www.imdsa.com/Mosaic_Down_Syndrome_Facts.pdf

Also, please look at our brochure http://www.imdsa.com/IMDSA_Brochure.pdf and

let me know if you feel there are unanswered questions there as well.

Feel free to browse through the whole site and give us feed back on what else

you would like to see there. We are constantly working on providing you with the

most up-to-date information and your feed back allows us to do that!

So...PLEASE let me know what questions you feel are unanswered on our site! I

really need your help!

imdsapresident@...

Thanks!

Kristy

www.imdsa.com

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I am pretty sure the way it's written is fine, but you know me...

" You cannot determine your child's abilities by the Down syndrome

characteristics they present. "

'he or she presents'?

'characteristics presented'?

Happy 2007!

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Hi Kristy,

I just wanted to commend you on the facts sheet you

have provided for parents, and anyone else who has

some part in the lives of children with MDS. However,

I wanted to point out that ECI is not free of charge

to children 0-3. It depens on your income. I know

this for a fact, because I pay for the services. The

services I recieve are all worth it. On another note,

I was also selected by our local ECI to be part of the

Texas ECI Parent Advisory Committee. I provide them

with feedback on what parents' and their childrens

needs may be.

You are doing a great job!

LInda

--- Kristy Colvin wrote:

> Hi Everyone

> I am working on some documents to be sure that we

> have most of the basic questions answered on our

> website. If any of you have visited our site

> recently, you know what we already have lots of

> information concerning MDS and you know that we are

> the only organization with such information. But, of

> course, there is never enough info!

>

> Please have a look at this particular document and

> let me know if there is any other questions that you

> feel are left unanswered.

> http://www.imdsa.com/Mosaic_Down_Syndrome_Facts.pdf

>

> Also, please look at our brochure

> http://www.imdsa.com/IMDSA_Brochure.pdf and let me

> know if you feel there are unanswered questions

> there as well.

>

> Feel free to browse through the whole site and

> give us feed back on what else you would like to see

> there. We are constantly working on providing you

> with the most up-to-date information and your feed

> back allows us to do that!

>

> So...PLEASE let me know what questions you feel

> are unanswered on our site! I really need your help!

> imdsapresident@...

>

>

> Thanks!

> Kristy

> www.imdsa.com

>

>

> [Non-text portions of this message have been

> removed]

>

>

__________________________________________________

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We got ECI totally free, and had an income at the time that was definitely

way too high to qualify for free anything. I'm wondering why you have to pay?

I thought it was a law that it was free, if not it sure should be!

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-

What is ECI?

Darlene

>

> Hi Kristy,

> I just wanted to commend you on the facts sheet you

> have provided for parents, and anyone else who has

> some part in the lives of children with MDS. However,

> I wanted to point out that ECI is not free of charge

> to children 0-3. It depens on your income. I know

> this for a fact, because I pay for the services. The

> services I recieve are all worth it. On another note,

> I was also selected by our local ECI to be part of the

> Texas ECI Parent Advisory Committee. I provide them

> with feedback on what parents' and their childrens

> needs may be.

>

> You are doing a great job!

> LInda

> --- Kristy Colvin <imdsapresident@... <imdsapresident%40imdsa.com>>

> wrote:

>

> > Hi Everyone

> > I am working on some documents to be sure that we

> > have most of the basic questions answered on our

> > website. If any of you have visited our site

> > recently, you know what we already have lots of

> > information concerning MDS and you know that we are

> > the only organization with such information. But, of

> > course, there is never enough info!

> >

> > Please have a look at this particular document and

> > let me know if there is any other questions that you

> > feel are left unanswered.

> > http://www.imdsa.com/Mosaic_Down_Syndrome_Facts.pdf

> >

> > Also, please look at our brochure

> > http://www.imdsa.com/IMDSA_Brochure.pdf and let me

> > know if you feel there are unanswered questions

> > there as well.

> >

> > Feel free to browse through the whole site and

> > give us feed back on what else you would like to see

> > there. We are constantly working on providing you

> > with the most up-to-date information and your feed

> > back allows us to do that!

> >

> > So...PLEASE let me know what questions you feel

> > are unanswered on our site! I really need your help!

> > imdsapresident@... <imdsapresident%40imdsa.com>

> >

> >

> > Thanks!

> > Kristy

> > www.imdsa.com

> >

> >

> > [Non-text portions of this message have been

> > removed]

> >

> >

>

> __________________________________________________

>

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I am very confused! ECI is a federal program that is available to everyone

regardless of income. You should not have to pay for services through your ECI

program. I do know families who may pay for extra services so their child will

get more than ECI provides, but I can not imagine why you would be paying for

ECI. I will check into this and find out why someone would pay for it.

I am very glad to hear that you were selected to be on this committee! What an

honor!

Thanks!

Kristy

wrote:

Hi Kristy,

I just wanted to commend you on the facts sheet you

have provided for parents, and anyone else who has

some part in the lives of children with MDS. However,

I wanted to point out that ECI is not free of charge

to children 0-3. It depens on your income. I know

this for a fact, because I pay for the services. The

services I recieve are all worth it. On another note,

I was also selected by our local ECI to be part of the

Texas ECI Parent Advisory Committee. I provide them

with feedback on what parents' and their childrens

needs may be.

You are doing a great job!

LInda

--- Kristy Colvin wrote:

> Hi Everyone

> I am working on some documents to be sure that we

> have most of the basic questions answered on our

> website. If any of you have visited our site

> recently, you know what we already have lots of

> information concerning MDS and you know that we are

> the only organization with such information. But, of

> course, there is never enough info!

>

> Please have a look at this particular document and

> let me know if there is any other questions that you

> feel are left unanswered.

> http://www.imdsa.com/Mosaic_Down_Syndrome_Facts.pdf

>

> Also, please look at our brochure

> http://www.imdsa.com/IMDSA_Brochure.pdf and let me

> know if you feel there are unanswered questions

> there as well.

>

> Feel free to browse through the whole site and

> give us feed back on what else you would like to see

> there. We are constantly working on providing you

> with the most up-to-date information and your feed

> back allows us to do that!

>

> So...PLEASE let me know what questions you feel

> are unanswered on our site! I really need your help!

> imdsapresident@...

>

>

> Thanks!

> Kristy

> www.imdsa.com

>

>

> [Non-text portions of this message have been

> removed]

>

>

__________________________________________________

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ECI is Early Childhood Intervention. Your child Birth to 3 receives ST,OT, and

PT if needed.

Kristy

Darlene Benoit wrote:

-

What is ECI?

Darlene

>

> Hi Kristy,

> I just wanted to commend you on the facts sheet you

> have provided for parents, and anyone else who has

> some part in the lives of children with MDS. However,

> I wanted to point out that ECI is not free of charge

> to children 0-3. It depens on your income. I know

> this for a fact, because I pay for the services. The

> services I recieve are all worth it. On another note,

> I was also selected by our local ECI to be part of the

> Texas ECI Parent Advisory Committee. I provide them

> with feedback on what parents' and their childrens

> needs may be.

>

> You are doing a great job!

> LInda

> --- Kristy Colvin <imdsapresident@... <imdsapresident%40imdsa.com>>

> wrote:

>

> > Hi Everyone

> > I am working on some documents to be sure that we

> > have most of the basic questions answered on our

> > website. If any of you have visited our site

> > recently, you know what we already have lots of

> > information concerning MDS and you know that we are

> > the only organization with such information. But, of

> > course, there is never enough info!

> >

> > Please have a look at this particular document and

> > let me know if there is any other questions that you

> > feel are left unanswered.

> > http://www.imdsa.com/Mosaic_Down_Syndrome_Facts.pdf

> >

> > Also, please look at our brochure

> > http://www.imdsa.com/IMDSA_Brochure.pdf and let me

> > know if you feel there are unanswered questions

> > there as well.

> >

> > Feel free to browse through the whole site and

> > give us feed back on what else you would like to see

> > there. We are constantly working on providing you

> > with the most up-to-date information and your feed

> > back allows us to do that!

> >

> > So...PLEASE let me know what questions you feel

> > are unanswered on our site! I really need your help!

> > imdsapresident@... <imdsapresident%40imdsa.com>

> >

> >

> > Thanks!

> > Kristy

> > www.imdsa.com

> >

> >

> > [Non-text portions of this message have been

> > removed]

> >

> >

>

> __________________________________________________

>

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I think it depends on what state you live in. We live in NY and all

the EI services our daughter qualified for were free.

>

> We got ECI totally free, and had an income at the time that was

definitely

> way too high to qualify for free anything. I'm wondering why you

have to pay?

> I thought it was a law that it was free, if not it sure should be!

>

>

>

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You have to pay on a sliding scale based on your income. For instance, I had to

pay $30 per month for Molly's services. They look at your total family income

and the number of people in the family to determine how much you pay.

A.

Special Educator

Simon Kenton HS

11132 Madison Pk.

Independence, KY 41051

(859)960-0348

cynthia.jones@...

________________________________

From: MosaicDS on behalf of Kristy Colvin

Sent: Wed 1/3/2007 4:24 PM

To: MosaicDS

Subject: Re: I need your help!

I am very confused! ECI is a federal program that is available to everyone

regardless of income. You should not have to pay for services through your ECI

program. I do know families who may pay for extra services so their child will

get more than ECI provides, but I can not imagine why you would be paying for

ECI. I will check into this and find out why someone would pay for it.

I am very glad to hear that you were selected to be on this committee! What an

honor!

Thanks!

Kristy

<lindacarr06@... <mailto:lindacarr06%40yahoo.com> > wrote:

Hi Kristy,

I just wanted to commend you on the facts sheet you

have provided for parents, and anyone else who has

some part in the lives of children with MDS. However,

I wanted to point out that ECI is not free of charge

to children 0-3. It depens on your income. I know

this for a fact, because I pay for the services. The

services I recieve are all worth it. On another note,

I was also selected by our local ECI to be part of the

Texas ECI Parent Advisory Committee. I provide them

with feedback on what parents' and their childrens

needs may be.

You are doing a great job!

LInda

--- Kristy Colvin <imdsapresident@... <mailto:imdsapresident%40imdsa.com>

> wrote:

> Hi Everyone

> I am working on some documents to be sure that we

> have most of the basic questions answered on our

> website. If any of you have visited our site

> recently, you know what we already have lots of

> information concerning MDS and you know that we are

> the only organization with such information. But, of

> course, there is never enough info!

>

> Please have a look at this particular document and

> let me know if there is any other questions that you

> feel are left unanswered.

> http://www.imdsa.com/Mosaic_Down_Syndrome_Facts.pdf

<http://www.imdsa.com/Mosaic_Down_Syndrome_Facts.pdf>

>

> Also, please look at our brochure

> http://www.imdsa.com/IMDSA_Brochure.pdf

<http://www.imdsa.com/IMDSA_Brochure.pdf> and let me

> know if you feel there are unanswered questions

> there as well.

>

> Feel free to browse through the whole site and

> give us feed back on what else you would like to see

> there. We are constantly working on providing you

> with the most up-to-date information and your feed

> back allows us to do that!

>

> So...PLEASE let me know what questions you feel

> are unanswered on our site! I really need your help!

> imdsapresident@... <mailto:imdsapresident%40imdsa.com>

>

>

> Thanks!

> Kristy

> www.imdsa.com

>

>

> [Non-text portions of this message have been

> removed]

>

>

__________________________________________________

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Hi Kristy and everyone!!! The sliding scale fee is relatively a new thing .

When started Birth to Three We paid nothing....but those Federal Funds

are Skimpy hence....the sliding scale,.... we paid the last 6 mos. (1/04)

for 's services approx $40 mo. if I remember correctly. It is a flat

rate regardless of how much services your child receives. Also, I believe

there

is a provision in IDEA that allows the states to implement this charge. I

am so excited to see the convention info. I am so excited!!! Let's catch up

soon. Ross Mom to 9, 5 MDS, Kirk 3

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I am glad we got in and out before the fees started - was born in

1999 and was in the IU until 2/2002 when she was transferred to the school

district.

Darlene - mom to (10!) and (7.11)

Can't wait to get my MDS Anklet!!!

>

> Hi Kristy and everyone!!! The sliding scale fee is relatively a new

> thing .

> When started Birth to Three We paid nothing....but those Federal

> Funds

> are Skimpy hence....the sliding scale,.... we paid the last 6 mos. (1/04)

> for 's services approx $40 mo. if I remember correctly. It is a flat

> rate regardless of how much services your child receives. Also, I believe

> there

> is a provision in IDEA that allows the states to implement this charge. I

> am so excited to see the convention info. I am so excited!!! Let's catch

> up

> soon. Ross Mom to 9, 5 MDS, Kirk 3

>

>

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We also live in NY. In NY, ECI is supposed to bill

your insurance first (not all counties enforce this)

and whatever they don't pay, the state pays for. If

your insurance is billed, it does not affect your

deductible, CAP etc.

--- bfh1992 wrote:

> I think it depends on what state you live in. We

> live in NY and all

> the EI services our daughter qualified for were

> free.

>

>

> >

> > We got ECI totally free, and had an income at the

> time that was

> definitely

> > way too high to qualify for free anything. I'm

> wondering why you

> have to pay?

> > I thought it was a law that it was free, if not it

> sure should be!

> >

> >

> > [Non-text portions of this message have been

> removed]

> >

>

>

>

__________________________________________________

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We also live in NY and did not pay for anything. My 2 older kids

went through ECI. I did have to give my insurance information but

never received any notices from my insurance that they were billed.

My youngest is getting speech through the school since he did not

need help until he was 3. I have recommend ECI for many people that

I know and they did not have to pay for it.

Debbie (Mom to Troy (12 Dyslexia) Tyler (10 MTDS) and Shane (3))

> > >

> > > We got ECI totally free, and had an income at the

> > time that was

> > definitely

> > > way too high to qualify for free anything. I'm

> > wondering why you

> > have to pay?

> > > I thought it was a law that it was free, if not it

> > sure should be!

> > >

> > >

> > > [Non-text portions of this message have been

> > removed]

> > >

> >

> >

> >

>

>

> __________________________________________________

>

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This is how Tennessee also does TEIS (Tennessee Early Interventions Services)

Beets

Re: I need your help!

We also live in NY. In NY, ECI is supposed to bill

your insurance first (not all counties enforce this)

and whatever they don't pay, the state pays for. If

your insurance is billed, it does not affect your

deductible, CAP etc.

--- bfh1992 wrote:

> I think it depends on what state you live in. We

> live in NY and all

> the EI services our daughter qualified for were

> free.

>

>

> >

> > We got ECI totally free, and had an income at the

> time that was

> definitely

> > way too high to qualify for free anything. I'm

> wondering why you

> have to pay?

> > I thought it was a law that it was free, if not it

> sure should be!

> >

> >

> > [Non-text portions of this message have been

> removed]

> >

>

>

>

__________________________________________________

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