Re: My dad is ICU on comfort care.

[Guest guest]

Dad is in the dying process, writing all this seem unreal. They are leaving

the hose in his nose, but only to remove the blood from his tummy. He has

MRSA along with other infections. Because, of the damage to his brain, we

were able to to reverse the Full Code he had asked for. When I left the

hospital he was resting peacefully. I will be returning shortly. Thank you

all for your prayers and support.

--------------------------------------------------

Sent: Sunday, February 07, 2010 12:44 PM

To: <livercirrhosissupport >

Subject: Re: hallucinations

> Hi ,

>

> I agree with Bob. My mother was on a feeding tube for about a week and

> then she started rejecting the tube and ate nothing. The only

> hallucinations were 12 hours before she died. I believe that was

> because of the morphine she was given. Yu should ask him what he

> wants and follow his wishes. My mom indicated she was ready to go.

> The next day she said she wasn't ready and three days later she said

> she was ready.

>

> Keep us posted. I am praying for him.

>

> Chris

>

>

>

>

>

>

>> I implore you to consider hospice care for him. The hospital is

>> doing desparate measures on him

>> , and by law, they will continue to do so. I did the same thing for

>> my loved one. I didnt want to admit defeat, and thus I kept Ardis in

>> curative care for a couple of months too long. Palliative care

>> should be considered now, in my humble opinion. If he has no shot at

>> a transplant, no one should be sticking hoses down his nose. End of

>> life is a sacred time.If there is no transplant imminent, end of

>> life care should be considered. Remember,there is only one chance to

>> get it right. If you have not read my story, here is a link. It tell

>> about my experience with what you are now going through. my very

>> best wishes to you. please email me directly if you wish to contact

>> me by phone for any info on hospice care. love, Bobby

>>

>> http://onethreezeroonethree.blogspot.com/

>>

>> ________________________________

>>

>> To: livercirrhosissupport

>> Sent: Sat, February 6, 2010 4:51:49 PM

>> Subject: hallucinations

>>

>> I can not tell you how hard the last month has been on me, my father

>> and my family. I know that I don't keep up on these post as often as

>> I should. However, I have great comfort knowing that when I need you

>> all, you are right here at the touch of my fingers.

>>

>> I have often thought my Dad was going to pull through, that he was

>> going to be ok. He was transferred to ICU again last night making

>> this the third time in thirty days. He is having full blown

>> hallucinations, the nurse said that Hepatic encephalopathy is bad. I

>> was confused at first, his ammonia levels are only 16. I guess he

>> has other toxins building up in his brain. He is tied to the bed and

>> when I was leaving they were inserting a feeding tube in his nose.

>>

>> I can't seem to come to grip with my dad, losing his mind...

>>

>> I am sad, scared and feeling all alone. My heart goes out to those

>> who live with this illness and the people who care for the ill.

>>

>> Thank you and Hugs

>>

>>

>>

[Guest guest]

Soon he will be at peace and free.  I don't know your father or the life he

led, but for me, I truly believe the end of this life will bring peace and

freedom for everyone.

 Dave

________________________________

To: livercirrhosissupport

Sent: Sun, February 7, 2010 3:45:19 PM

Subject: Re: My dad is ICU on comfort care.

 

Dad is in the dying process, writing all this seem unreal. They are leaving

the hose in his nose, but only to remove the blood from his tummy. He has

MRSA along with other infections. Because, of the damage to his brain, we

were able to to reverse the Full Code he had asked for. When I left the

hospital he was resting peacefully. I will be returning shortly. Thank you

all for your prayers and support.

------------ --------- --------- --------- --------- --

From: " Breen " <chrisbreen2009@ gmail.com>

Sent: Sunday, February 07, 2010 12:44 PM

To: <livercirrhosissuppo rtyahoogroups (DOT) com>

Subject: Re: hallucinations

> Hi ,

>

> I agree with Bob. My mother was on a feeding tube for about a week and

> then she started rejecting the tube and ate nothing. The only

> hallucinations were 12 hours before she died. I believe that was

> because of the morphine she was given. Yu should ask him what he

> wants and follow his wishes. My mom indicated she was ready to go.

> The next day she said she wasn't ready and three days later she said

> she was ready.

>

> Keep us posted. I am praying for him.

>

> Chris

>

>

>

>

>

>

>> I implore you to consider hospice care for him. The hospital is

>> doing desparate measures on him

>> , and by law, they will continue to do so. I did the same thing for

>> my loved one. I didnt want to admit defeat, and thus I kept Ardis in

>> curative care for a couple of months too long. Palliative care

>> should be considered now, in my humble opinion. If he has no shot at

>> a transplant, no one should be sticking hoses down his nose. End of

>> life is a sacred time.If there is no transplant imminent, end of

>> life care should be considered. Remember,there is only one chance to

>> get it right. If you have not read my story, here is a link. It tell

>> about my experience with what you are now going through. my very

>> best wishes to you. please email me directly if you wish to contact

>> me by phone for any info on hospice care. love, Bobby

>>

>> http://onethreezero onethree. blogspot. com/

>>

>> ____________ _________ _________ __

>> From: <aharris1028@ hotmail.com>

>> To: livercirrhosissuppo rtyahoogroups (DOT) com

>> Sent: Sat, February 6, 2010 4:51:49 PM

>> Subject: hallucinations

>>

>> I can not tell you how hard the last month has been on me, my father

>> and my family. I know that I don't keep up on these post as often as

>> I should. However, I have great comfort knowing that when I need you

>> all, you are right here at the touch of my fingers.

>>

>> I have often thought my Dad was going to pull through, that he was

>> going to be ok. He was transferred to ICU again last night making

>> this the third time in thirty days. He is having full blown

>> hallucinations, the nurse said that Hepatic encephalopathy is bad. I

>> was confused at first, his ammonia levels are only 16. I guess he

>> has other toxins building up in his brain. He is tied to the bed and

>> when I was leaving they were inserting a feeding tube in his nose.

>>

>> I can't seem to come to grip with my dad, losing his mind...

>>

>> I am sad, scared and feeling all alone. My heart goes out to those

>> who live with this illness and the people who care for the ill.

>>

>> Thank you and Hugs

>>

>>

>>

[Guest guest]

, this may not necessarily be halucinations. My late husband talked

often to an unseen person in the room with him and laughed with this person

as well. This was all after he lost recognition of me or anyone else. He

did this for about 18 hours and then stopped making any responses

whatsoever. I do not believe it to be halucinations, encephalopathy or the

medication. I believe it to be the time of an individual's crossing over.

They are meeting the person meeting them on the other side. Once they are

comfortable with that, they recede further into an unconscious state until

their body lets them go.

Please know I am praying for your Dad and for you and your family. This is

not an easy time for any of you. His suffering will soon be over. Try to

take comfort in that. Believe me when I say I know how hard that is. I

said goodbye to my Mom on Apr. 20, 2006 and my husband on Jan. 26, 2009. My

heart aches for you....................

On Sun, Feb 7, 2010 at 3:45 PM, wrote:

>

>

> Dad is in the dying process, writing all this seem unreal. They are leaving

>

> the hose in his nose, but only to remove the blood from his tummy. He has

> MRSA along with other infections. Because, of the damage to his brain, we

> were able to to reverse the Full Code he had asked for. When I left the

> hospital he was resting peacefully. I will be returning shortly. Thank you

> all for your prayers and support.

>

>

>

> --------------------------------------------------

> From: " Breen "

<chrisbreen2009@...<chrisbreen2009%40gmail.com>

> >

> Sent: Sunday, February 07, 2010 12:44 PM

> To:

<livercirrhosissupport <livercirrhosissupport%40yahoogroups.com>

> >

> Subject: Re: hallucinations

>

> > Hi ,

> >

> > I agree with Bob. My mother was on a feeding tube for about a week and

> > then she started rejecting the tube and ate nothing. The only

> > hallucinations were 12 hours before she died. I believe that was

> > because of the morphine she was given. Yu should ask him what he

> > wants and follow his wishes. My mom indicated she was ready to go.

> > The next day she said she wasn't ready and three days later she said

> > she was ready.

> >

> > Keep us posted. I am praying for him.

> >

> > Chris

> >

> >

> >

> >

> >

> >

> >> I implore you to consider hospice care for him. The hospital is

> >> doing desparate measures on him

> >> , and by law, they will continue to do so. I did the same thing for

> >> my loved one. I didnt want to admit defeat, and thus I kept Ardis in

> >> curative care for a couple of months too long. Palliative care

> >> should be considered now, in my humble opinion. If he has no shot at

> >> a transplant, no one should be sticking hoses down his nose. End of

> >> life is a sacred time.If there is no transplant imminent, end of

> >> life care should be considered. Remember,there is only one chance to

> >> get it right. If you have not read my story, here is a link. It tell

> >> about my experience with what you are now going through. my very

> >> best wishes to you. please email me directly if you wish to contact

> >> me by phone for any info on hospice care. love, Bobby

> >>

> >> http://onethreezeroonethree.blogspot.com/

> >>

> >> ________________________________

> >> From: <aharris1028@...<aharris1028%40hotmail.com>

> >

> >> To:

livercirrhosissupport <livercirrhosissupport%40yahoogroups.com>

> >> Sent: Sat, February 6, 2010 4:51:49 PM

> >> Subject: hallucinations

> >>

> >> I can not tell you how hard the last month has been on me, my father

> >> and my family. I know that I don't keep up on these post as often as

> >> I should. However, I have great comfort knowing that when I need you

> >> all, you are right here at the touch of my fingers.

> >>

> >> I have often thought my Dad was going to pull through, that he was

> >> going to be ok. He was transferred to ICU again last night making

> >> this the third time in thirty days. He is having full blown

> >> hallucinations, the nurse said that Hepatic encephalopathy is bad. I

> >> was confused at first, his ammonia levels are only 16. I guess he

> >> has other toxins building up in his brain. He is tied to the bed and

> >> when I was leaving they were inserting a feeding tube in his nose.

> >>

> >> I can't seem to come to grip with my dad, losing his mind...

> >>

> >> I am sad, scared and feeling all alone. My heart goes out to those

> >> who live with this illness and the people who care for the ill.

> >>

> >> Thank you and Hugs

> >>

> >>

> >>

[Guest guest]

Diane, Thank you so much!

The Hallucinations are gone. I would understand them not being

hallucinations if he was talking to his father who died a few years ago,

however he was screaming for his mother, who is alive and well. Right now my

Dad is in a coma and they say maybe another 24-48 hours. He is not in pain,

he was resting peacefully when I left ICU. I had planned on staying the

night there. But, my son is having a hard time with all this too and I

wanted to be home for him. He is only six and there has been a lot of

whispering in my home. He finally asked me if ( papa fuzzy) My dad would be

ok.... Papa fuzzy was a joke when I was pregnant that just stuck around. LOL

those are the things that I will never forget. I told him that papa was

very sick. He asked me if he was going to heaven and I just said that he

may. He was very upset, I am not sure how to handle all this.

Good night!

--------------------------------------------------

Sent: Sunday, February 07, 2010 10:43 PM

To: <livercirrhosissupport >

Subject: Re: My dad is ICU on comfort care.

> , this may not necessarily be halucinations. My late husband talked

> often to an unseen person in the room with him and laughed with this

> person

> as well. This was all after he lost recognition of me or anyone else. He

> did this for about 18 hours and then stopped making any responses

> whatsoever. I do not believe it to be halucinations, encephalopathy or

> the

> medication. I believe it to be the time of an individual's crossing over.

> They are meeting the person meeting them on the other side. Once they are

> comfortable with that, they recede further into an unconscious state until

> their body lets them go.

>

> Please know I am praying for your Dad and for you and your family. This

> is

> not an easy time for any of you. His suffering will soon be over. Try to

> take comfort in that. Believe me when I say I know how hard that is. I

> said goodbye to my Mom on Apr. 20, 2006 and my husband on Jan. 26, 2009.

> My

> heart aches for you....................

>

>

>

>

> On Sun, Feb 7, 2010 at 3:45 PM,

> wrote:

>

>>

>>

>> Dad is in the dying process, writing all this seem unreal. They are

>> leaving

>>

>> the hose in his nose, but only to remove the blood from his tummy. He has

>> MRSA along with other infections. Because, of the damage to his brain, we

>> were able to to reverse the Full Code he had asked for. When I left the

>> hospital he was resting peacefully. I will be returning shortly. Thank

>> you

>> all for your prayers and support.

>>

>>

>>

>> --------------------------------------------------

>> From: " Breen "

>> <chrisbreen2009@...<chrisbreen2009%40gmail.com>

>> >

>> Sent: Sunday, February 07, 2010 12:44 PM

>> To:

>>

<livercirrhosissupport <livercirrhosissupport%40yahoogroups.com>

>> >

>> Subject: Re: hallucinations

>>

>> > Hi ,

>> >

>> > I agree with Bob. My mother was on a feeding tube for about a week and

>> > then she started rejecting the tube and ate nothing. The only

>> > hallucinations were 12 hours before she died. I believe that was

>> > because of the morphine she was given. Yu should ask him what he

>> > wants and follow his wishes. My mom indicated she was ready to go.

>> > The next day she said she wasn't ready and three days later she said

>> > she was ready.

>> >

>> > Keep us posted. I am praying for him.

>> >

>> > Chris

>> >

>> >

>> >

>> >

>> >

>> >

>> >> I implore you to consider hospice care for him. The hospital is

>> >> doing desparate measures on him

>> >> , and by law, they will continue to do so. I did the same thing for

>> >> my loved one. I didnt want to admit defeat, and thus I kept Ardis in

>> >> curative care for a couple of months too long. Palliative care

>> >> should be considered now, in my humble opinion. If he has no shot at

>> >> a transplant, no one should be sticking hoses down his nose. End of

>> >> life is a sacred time.If there is no transplant imminent, end of

>> >> life care should be considered. Remember,there is only one chance to

>> >> get it right. If you have not read my story, here is a link. It tell

>> >> about my experience with what you are now going through. my very

>> >> best wishes to you. please email me directly if you wish to contact

>> >> me by phone for any info on hospice care. love, Bobby

>> >>

>> >> http://onethreezeroonethree.blogspot.com/

>> >>

>> >> ________________________________

>> >> From:

>> >> <aharris1028@...<aharris1028%40hotmail.com>

>> >

>> >> To:

>> >>

livercirrhosissupport <livercirrhosissupport%40yahoogroups.com>

>> >> Sent: Sat, February 6, 2010 4:51:49 PM

>> >> Subject: hallucinations

>> >>

>> >> I can not tell you how hard the last month has been on me, my father

>> >> and my family. I know that I don't keep up on these post as often as

>> >> I should. However, I have great comfort knowing that when I need you

>> >> all, you are right here at the touch of my fingers.

>> >>

>> >> I have often thought my Dad was going to pull through, that he was

>> >> going to be ok. He was transferred to ICU again last night making

>> >> this the third time in thirty days. He is having full blown

>> >> hallucinations, the nurse said that Hepatic encephalopathy is bad. I

>> >> was confused at first, his ammonia levels are only 16. I guess he

>> >> has other toxins building up in his brain. He is tied to the bed and

>> >> when I was leaving they were inserting a feeding tube in his nose.

>> >>

>> >> I can't seem to come to grip with my dad, losing his mind...

>> >>

>> >> I am sad, scared and feeling all alone. My heart goes out to those

>> >> who live with this illness and the people who care for the ill.

>> >>

>> >> Thank you and Hugs

>> >>

>> >>

>> >>

[Guest guest]

, I'm not sure if your dad has Hep C but I've read that it can cause

hallucinations. I'm so sorry for what you and your dad and family are going

thru. It's so hard on those of us that are left behind. The only way I was able

to live thru the death of my mother was knowing she was finally at peace. The

only way you can handle this is day to day, sometimes moment to moment. Please

know that we are thinking of you. I wish your dad peace, and I wish comfort to

you and your family...Debbie

> >> >

> >> >> I implore you to consider hospice care for him. The hospital is

> >> >> doing desparate measures on him

> >> >> , and by law, they will continue to do so. I did the same thing for

> >> >> my loved one. I didnt want to admit defeat, and thus I kept Ardis in

> >> >> curative care for a couple of months too long. Palliative care

> >> >> should be considered now, in my humble opinion. If he has no shot at

> >> >> a transplant, no one should be sticking hoses down his nose. End of

> >> >> life is a sacred time.If there is no transplant imminent, end of

> >> >> life care should be considered. Remember,there is only one chance to

> >> >> get it right. If you have not read my story, here is a link. It tell

> >> >> about my experience with what you are now going through. my very

> >> >> best wishes to you. please email me directly if you wish to contact

> >> >> me by phone for any info on hospice care. love, Bobby

> >> >>

> >> >> http://onethreezeroonethree.blogspot.com/

> >> >>

> >> >> ________________________________

> >> >> From:

> >> >> <aharris1028@...<aharris1028%40hotmail.com>

> >> >

> >> >> To:

> >> >>

livercirrhosissupport <livercirrhosissupport%40yahoogroups.com>

> >> >> Sent: Sat, February 6, 2010 4:51:49 PM

> >> >> Subject: hallucinations

> >> >>

> >> >> I can not tell you how hard the last month has been on me, my father

> >> >> and my family. I know that I don't keep up on these post as often as

> >> >> I should. However, I have great comfort knowing that when I need you

> >> >> all, you are right here at the touch of my fingers.

> >> >>

> >> >> I have often thought my Dad was going to pull through, that he was

> >> >> going to be ok. He was transferred to ICU again last night making

> >> >> this the third time in thirty days. He is having full blown

> >> >> hallucinations, the nurse said that Hepatic encephalopathy is bad. I

> >> >> was confused at first, his ammonia levels are only 16. I guess he

> >> >> has other toxins building up in his brain. He is tied to the bed and

> >> >> when I was leaving they were inserting a feeding tube in his nose.

> >> >>

> >> >> I can't seem to come to grip with my dad, losing his mind...

> >> >>

> >> >> I am sad, scared and feeling all alone. My heart goes out to those

> >> >> who live with this illness and the people who care for the ill.

> >> >>

> >> >> Thank you and Hugs

> >> >>

> >> >>

> >> >>

[Guest guest]

If your son is asking the question about his grandfather going to heaven,

then I would guess that he is familiar with prayer. You could suggest that

he pray asking God to help his grandfather to go to heaven. Even if your

Dad never went to church, and even when he is in a coma now, we don't know

what is going on in his mind and he could have a last minute change of

heart, and your son could make that happen.

I know that people in comas can sometimes be aware of what is going on

around them. My nephew was in a coma and on a lung machine. When the

chaplin came to visit, we all circled his bed, said the 23rd psalm and the

Lord's Prayer together and his heart monitors jumped. He heard us and

recognized what we were saying. When his wife's aunt came in and talked

about how they liked to go golfing together it also reacted.

We had a big bruhaha in my ex husband's family when the oldest brother

died. A sister in law was very " churchy " and judgmental and said she didn't

think he had gone to heaven. My children were devastated. You notice I put

churchy in quotes. We are told not to judge other people's salvation, but

that doesn't mean we can't pray for it. I hope this doesn't offend

anyone. Jan H

On Sun, Feb 7, 2010 at 11:42 PM, wrote:

> Diane, Thank you so much!

>

> The Hallucinations are gone. I would understand them not being

> hallucinations if he was talking to his father who died a few years ago,

> however he was screaming for his mother, who is alive and well. Right now

> my

> Dad is in a coma and they say maybe another 24-48 hours. He is not in pain,

> he was resting peacefully when I left ICU. I had planned on staying the

> night there. But, my son is having a hard time with all this too and I

> wanted to be home for him. He is only six and there has been a lot of

> whispering in my home. He finally asked me if ( papa fuzzy) My dad would be

> ok.... Papa fuzzy was a joke when I was pregnant that just stuck around.

> LOL

> those are the things that I will never forget. I told him that papa was

> very sick. He asked me if he was going to heaven and I just said that he

> may. He was very upset, I am not sure how to handle all this.

>

> Good night!

>

> --------------------------------------------------

>

> Sent: Sunday, February 07, 2010 10:43 PM

> To: <livercirrhosissupport >

> Subject: Re: My dad is ICU on comfort care.

>

> > , this may not necessarily be halucinations. My late husband

> talked

> > often to an unseen person in the room with him and laughed with this

> > person

> > as well. This was all after he lost recognition of me or anyone else.

> He

> > did this for about 18 hours and then stopped making any responses

> > whatsoever. I do not believe it to be halucinations, encephalopathy or

> > the

> > medication. I believe it to be the time of an individual's crossing

> over.

> > They are meeting the person meeting them on the other side. Once they

> are

> > comfortable with that, they recede further into an unconscious state

> until

> > their body lets them go.

> >

> > Please know I am praying for your Dad and for you and your family. This

> > is

> > not an easy time for any of you. His suffering will soon be over. Try

> to

> > take comfort in that. Believe me when I say I know how hard that is. I

> > said goodbye to my Mom on Apr. 20, 2006 and my husband on Jan. 26, 2009.

> > My

> > heart aches for you....................

> >

> >

> >

> >

> > On Sun, Feb 7, 2010 at 3:45 PM,

> > wrote:

> >

> >>

> >>

> >> Dad is in the dying process, writing all this seem unreal. They are

> >> leaving

> >>

> >> the hose in his nose, but only to remove the blood from his tummy. He

> has

> >> MRSA along with other infections. Because, of the damage to his brain,

> we

> >> were able to to reverse the Full Code he had asked for. When I left the

> >> hospital he was resting peacefully. I will be returning shortly. Thank

> >> you

> >> all for your prayers and support.

> >>

> >>

> >>

> >> --------------------------------------------------

> >> From: " Breen "

> >> <chrisbreen2009@...<chrisbreen2009%40gmail.com>

> >> >

> >> Sent: Sunday, February 07, 2010 12:44 PM

> >> To:

> >> <livercirrhosissupport <livercirrhosissupport%

> 40yahoogroups.com>

> >> >

> >> Subject: Re: hallucinations

> >>

> >> > Hi ,

> >> >

> >> > I agree with Bob. My mother was on a feeding tube for about a week and

> >> > then she started rejecting the tube and ate nothing. The only

> >> > hallucinations were 12 hours before she died. I believe that was

> >> > because of the morphine she was given. Yu should ask him what he

> >> > wants and follow his wishes. My mom indicated she was ready to go.

> >> > The next day she said she wasn't ready and three days later she said

> >> > she was ready.

> >> >

> >> > Keep us posted. I am praying for him.

> >> >

> >> > Chris

> >> >

> >> >

> >> >

> >> >

> >> >

> >> >

> >> >> I implore you to consider hospice care for him. The hospital is

> >> >> doing desparate measures on him

> >> >> , and by law, they will continue to do so. I did the same thing for

> >> >> my loved one. I didnt want to admit defeat, and thus I kept Ardis in

> >> >> curative care for a couple of months too long. Palliative care

> >> >> should be considered now, in my humble opinion. If he has no shot at

> >> >> a transplant, no one should be sticking hoses down his nose. End of

> >> >> life is a sacred time.If there is no transplant imminent, end of

> >> >> life care should be considered. Remember,there is only one chance to

> >> >> get it right. If you have not read my story, here is a link. It tell

> >> >> about my experience with what you are now going through. my very

> >> >> best wishes to you. please email me directly if you wish to contact

> >> >> me by phone for any info on hospice care. love, Bobby

> >> >>

> >> >> http://onethreezeroonethree.blogspot.com/

> >> >>

> >> >> ________________________________

> >> >> From:

> >> >> <aharris1028@...<aharris1028%40hotmail.com>

> >> >

> >> >> To:

> >> >> livercirrhosissupport <livercirrhosissupport%

> 40yahoogroups.com>

> >> >> Sent: Sat, February 6, 2010 4:51:49 PM

> >> >> Subject: hallucinations

> >> >>

> >> >> I can not tell you how hard the last month has been on me, my father

> >> >> and my family. I know that I don't keep up on these post as often as

> >> >> I should. However, I have great comfort knowing that when I need you

> >> >> all, you are right here at the touch of my fingers.

> >> >>

> >> >> I have often thought my Dad was going to pull through, that he was

> >> >> going to be ok. He was transferred to ICU again last night making

> >> >> this the third time in thirty days. He is having full blown

> >> >> hallucinations, the nurse said that Hepatic encephalopathy is bad. I

> >> >> was confused at first, his ammonia levels are only 16. I guess he

> >> >> has other toxins building up in his brain. He is tied to the bed and

> >> >> when I was leaving they were inserting a feeding tube in his nose.

> >> >>

> >> >> I can't seem to come to grip with my dad, losing his mind...

> >> >>

> >> >> I am sad, scared and feeling all alone. My heart goes out to those

> >> >> who live with this illness and the people who care for the ill.

> >> >>

> >> >> Thank you and Hugs

> >> >>

> >> >>

> >> >>

[Guest guest]

Thank you for your words.

Thanks for this day and for our tomorrows

 

Love, Lyncia 

 

 

> >> >

> >> >> I implore you to consider hospice care for him. The hospital is

> >> >> doing desparate measures on him

> >> >> , and by law, they will continue to do so. I did the same thing for

> >> >> my loved one. I didnt want to admit defeat, and thus I kept Ardis in

> >> >> curative care for a couple of months too long. Palliative care

> >> >> should be considered now, in my humble opinion. If he has no shot at

> >> >> a transplant, no one should be sticking hoses down his nose. End of

> >> >> life is a sacred time.If there is no transplant imminent, end of

> >> >> life care should be considered. Remember,there is only one chance to

> >> >> get it right. If you have not read my story, here is a link. It tell

> >> >> about my experience with what you are now going through. my very

> >> >> best wishes to you. please email me directly if you wish to contact

> >> >> me by phone for any info on hospice care. love, Bobby

> >> >>

> >> >> http://onethreezero onethree. blogspot. com/

> >> >>

> >> >> ____________ _________ _________ __

> >> >> From:

> >> >> <aharris1028@ hotmail.com<aharris1028% 40hotmail. com>

> >> >

> >> >> To:

> >> >> livercirrhosissuppo rtyahoogroups (DOT) com<livercirrhosissupp ort%

> 40yahoogroups. com>

> >> >> Sent: Sat, February 6, 2010 4:51:49 PM

> >> >> Subject: hallucinations

> >> >>

> >> >> I can not tell you how hard the last month has been on me, my father

> >> >> and my family. I know that I don't keep up on these post as often as

> >> >> I should. However, I have great comfort knowing that when I need you

> >> >> all, you are right here at the touch of my fingers.

> >> >>

> >> >> I have often thought my Dad was going to pull through, that he was

> >> >> going to be ok. He was transferred to ICU again last night making

> >> >> this the third time in thirty days. He is having full blown

> >> >> hallucinations, the nurse said that Hepatic encephalopathy is bad. I

> >> >> was confused at first, his ammonia levels are only 16. I guess he

> >> >> has other toxins building up in his brain. He is tied to the bed and

> >> >> when I was leaving they were inserting a feeding tube in his nose.

> >> >>

> >> >> I can't seem to come to grip with my dad, losing his mind...

> >> >>

> >> >> I am sad, scared and feeling all alone. My heart goes out to those

> >> >> who live with this illness and the people who care for the ill.

> >> >>

> >> >> Thank you and Hugs

> >> >>

> >> >>

> >> >>

[Guest guest]

, your families suffering will be over soon..their will be times you feel

you should have done more, times you'd have spoken softer, loved harder..you

will wish you had been with him more and done more for him..I felt these

feelings twice recently, with the loss of my mother, and most recently the loss

of my lifelong   bestfriend..as time has helped me heal' nolonger am I

bothered by these feelings of guilt..I know I did all I could .  I still grieve

my friend passing, and miss our ability to tell it all to eachother.  I will

alays grieve that loss, but I have accepted and found a measure of peace about

it.  And so will you , so will you, and your family.  I am sorry for

your families loss...peace and comfortDave

________________________________

To: livercirrhosissupport

Sent: Mon, February 8, 2010 12:42:47 AM

Subject: Re: My dad is ICU on comfort care.

 

Diane, Thank you so much!

The Hallucinations are gone. I would understand them not being

hallucinations if he was talking to his father who died a few years ago,

however he was screaming for his mother, who is alive and well. Right now my

Dad is in a coma and they say maybe another 24-48 hours. He is not in pain,

he was resting peacefully when I left ICU. I had planned on staying the

night there. But, my son is having a hard time with all this too and I

wanted to be home for him. He is only six and there has been a lot of

whispering in my home. He finally asked me if ( papa fuzzy) My dad would be

ok.... Papa fuzzy was a joke when I was pregnant that just stuck around. LOL

those are the things that I will never forget. I told him that papa was

very sick. He asked me if he was going to heaven and I just said that he

may. He was very upset, I am not sure how to handle all this.

Good night!

------------ --------- --------- --------- --------- --

From: " Diane Chandler " <diane.chandler. 75gmail (DOT) com>

Sent: Sunday, February 07, 2010 10:43 PM

To: <livercirrhosissuppo rtyahoogroups (DOT) com>

Subject: Re: My dad is ICU on comfort care.

> , this may not necessarily be halucinations. My late husband talked

> often to an unseen person in the room with him and laughed with this

> person

> as well. This was all after he lost recognition of me or anyone else. He

> did this for about 18 hours and then stopped making any responses

> whatsoever. I do not believe it to be halucinations, encephalopathy or

> the

> medication. I believe it to be the time of an individual's crossing over.

> They are meeting the person meeting them on the other side. Once they are

> comfortable with that, they recede further into an unconscious state until

> their body lets them go.

>

> Please know I am praying for your Dad and for you and your family. This

> is

> not an easy time for any of you. His suffering will soon be over. Try to

> take comfort in that. Believe me when I say I know how hard that is. I

> said goodbye to my Mom on Apr. 20, 2006 and my husband on Jan. 26, 2009.

> My

> heart aches for you......... ......... ..

>

>

>

>

> On Sun, Feb 7, 2010 at 3:45 PM,

> <aharris1028@ hotmail.com>wrote:

>

>>

>>

>> Dad is in the dying process, writing all this seem unreal. They are

>> leaving

>>

>> the hose in his nose, but only to remove the blood from his tummy. He has

>> MRSA along with other infections. Because, of the damage to his brain, we

>> were able to to reverse the Full Code he had asked for. When I left the

>> hospital he was resting peacefully. I will be returning shortly. Thank

>> you

>> all for your prayers and support.

>>

>>

>>

>> ------------ --------- --------- --------- --------- --

>> From: " Breen "

>> <chrisbreen2009@ gmail.com<chrisbreen2009% 40gmail.com>

>> >

>> Sent: Sunday, February 07, 2010 12:44 PM

>> To:

>> <livercirrhosissuppo rtyahoogroups (DOT) com<livercirrhosissupp ort%40yahoogroup

s.com>

>> >

>> Subject: Re: hallucinations

>>

>> > Hi ,

>> >

>> > I agree with Bob. My mother was on a feeding tube for about a week and

>> > then she started rejecting the tube and ate nothing. The only

>> > hallucinations were 12 hours before she died. I believe that was

>> > because of the morphine she was given. Yu should ask him what he

>> > wants and follow his wishes. My mom indicated she was ready to go.

>> > The next day she said she wasn't ready and three days later she said

>> > she was ready.

>> >

>> > Keep us posted. I am praying for him.

>> >

>> > Chris

>> >

>> >

>> >

>> >

>> >

>> >

>> >> I implore you to consider hospice care for him. The hospital is

>> >> doing desparate measures on him

>> >> , and by law, they will continue to do so. I did the same thing for

>> >> my loved one. I didnt want to admit defeat, and thus I kept Ardis in

>> >> curative care for a couple of months too long. Palliative care

>> >> should be considered now, in my humble opinion. If he has no shot at

>> >> a transplant, no one should be sticking hoses down his nose. End of

>> >> life is a sacred time.If there is no transplant imminent, end of

>> >> life care should be considered. Remember,there is only one chance to

>> >> get it right. If you have not read my story, here is a link. It tell

>> >> about my experience with what you are now going through. my very

>> >> best wishes to you. please email me directly if you wish to contact

>> >> me by phone for any info on hospice care. love, Bobby

>> >>

>> >> http://onethreezero onethree. blogspot. com/

>> >>

>> >> ____________ _________ _________ __

>> >> From:

>> >> <aharris1028@ hotmail.com<aharris1028% 40hotmail. com>

>> >

>> >> To:

>> >> livercirrhosissuppo rtyahoogroups (DOT) com<livercirrhosissupp

ort%40yahoogroup s.com>

>> >> Sent: Sat, February 6, 2010 4:51:49 PM

>> >> Subject: hallucinations

>> >>

>> >> I can not tell you how hard the last month has been on me, my father

>> >> and my family. I know that I don't keep up on these post as often as

>> >> I should. However, I have great comfort knowing that when I need you

>> >> all, you are right here at the touch of my fingers.

>> >>

>> >> I have often thought my Dad was going to pull through, that he was

>> >> going to be ok. He was transferred to ICU again last night making

>> >> this the third time in thirty days. He is having full blown

>> >> hallucinations, the nurse said that Hepatic encephalopathy is bad. I

>> >> was confused at first, his ammonia levels are only 16. I guess he

>> >> has other toxins building up in his brain. He is tied to the bed and

>> >> when I was leaving they were inserting a feeding tube in his nose.

>> >>

>> >> I can't seem to come to grip with my dad, losing his mind...

>> >>

>> >> I am sad, scared and feeling all alone. My heart goes out to those

>> >> who live with this illness and the people who care for the ill.

>> >>

>> >> Thank you and Hugs

>> >>

>> >>

>> >>

[Guest guest]

,

It sounds to me as though you are doing everything right with your son.

You're there for him, which is the most important thing you can do for him.

I agree with someone else who said praying with him would be very comforting

to both of you and could certainly give relief to your Dad. I know this is

hard for all of you. As you pray with your little one, please know many

prayers are going up for you, your son, your Dad and all of your family.

May God grant you peace and strength for the journey ahead.

Much love,

Diane

On Mon, Feb 8, 2010 at 12:42 AM, wrote:

>

>

> Diane, Thank you so much!

>

> The Hallucinations are gone. I would understand them not being

> hallucinations if he was talking to his father who died a few years ago,

> however he was screaming for his mother, who is alive and well. Right now

> my

> Dad is in a coma and they say maybe another 24-48 hours. He is not in pain,

>

> he was resting peacefully when I left ICU. I had planned on staying the

> night there. But, my son is having a hard time with all this too and I

> wanted to be home for him. He is only six and there has been a lot of

> whispering in my home. He finally asked me if ( papa fuzzy) My dad would be

>

> ok.... Papa fuzzy was a joke when I was pregnant that just stuck around.

> LOL

> those are the things that I will never forget. I told him that papa was

> very sick. He asked me if he was going to heaven and I just said that he

> may. He was very upset, I am not sure how to handle all this.

>

> Good night!

>

> --------------------------------------------------

> From: " Diane Chandler "

<diane.chandler.75@...<diane.chandler.75%40gmail.com>

> >

> Sent: Sunday, February 07, 2010 10:43 PM

> To:

<livercirrhosissupport <livercirrhosissupport%40yahoogroups.com>

> >

> Subject: Re: My dad is ICU on comfort care.

>

> > , this may not necessarily be halucinations. My late husband talked

> > often to an unseen person in the room with him and laughed with this

> > person

> > as well. This was all after he lost recognition of me or anyone else. He

> > did this for about 18 hours and then stopped making any responses

> > whatsoever. I do not believe it to be halucinations, encephalopathy or

> > the

> > medication. I believe it to be the time of an individual's crossing over.

> > They are meeting the person meeting them on the other side. Once they are

> > comfortable with that, they recede further into an unconscious state

> until

> > their body lets them go.

> >

> > Please know I am praying for your Dad and for you and your family. This

> > is

> > not an easy time for any of you. His suffering will soon be over. Try to

> > take comfort in that. Believe me when I say I know how hard that is. I

> > said goodbye to my Mom on Apr. 20, 2006 and my husband on Jan. 26, 2009.

> > My

> > heart aches for you....................

> >

> >

> >

> >

> > On Sun, Feb 7, 2010 at 3:45 PM,

> > <aharris1028@... <aharris1028%40hotmail.com>>wrote:

> >

> >>

> >>

> >> Dad is in the dying process, writing all this seem unreal. They are

> >> leaving

> >>

> >> the hose in his nose, but only to remove the blood from his tummy. He

> has

> >> MRSA along with other infections. Because, of the damage to his brain,

> we

> >> were able to to reverse the Full Code he had asked for. When I left the

> >> hospital he was resting peacefully. I will be returning shortly. Thank

> >> you

> >> all for your prayers and support.

> >>

> >>

> >>

> >> --------------------------------------------------

> >> From: " Breen "

> >> <chrisbreen2009@... <chrisbreen2009%40gmail.com><chrisbreen2009%

> 40gmail.com>

> >> >

> >> Sent: Sunday, February 07, 2010 12:44 PM

> >> To:

> >>

<livercirrhosissupport <livercirrhosissupport%40yahoogroups.com>

> <livercirrhosissupport%40yahoogroups.com>

> >> >

> >> Subject: Re: hallucinations

> >>

> >> > Hi ,

> >> >

> >> > I agree with Bob. My mother was on a feeding tube for about a week and

> >> > then she started rejecting the tube and ate nothing. The only

> >> > hallucinations were 12 hours before she died. I believe that was

> >> > because of the morphine she was given. Yu should ask him what he

> >> > wants and follow his wishes. My mom indicated she was ready to go.

> >> > The next day she said she wasn't ready and three days later she said

> >> > she was ready.

> >> >

> >> > Keep us posted. I am praying for him.

> >> >

> >> > Chris

> >> >

> >> >

> >> >

> >> >

> >> >

> >> >

> >> >> I implore you to consider hospice care for him. The hospital is

> >> >> doing desparate measures on him

> >> >> , and by law, they will continue to do so. I did the same thing for

> >> >> my loved one. I didnt want to admit defeat, and thus I kept Ardis in

> >> >> curative care for a couple of months too long. Palliative care

> >> >> should be considered now, in my humble opinion. If he has no shot at

> >> >> a transplant, no one should be sticking hoses down his nose. End of

> >> >> life is a sacred time.If there is no transplant imminent, end of

> >> >> life care should be considered. Remember,there is only one chance to

> >> >> get it right. If you have not read my story, here is a link. It tell

> >> >> about my experience with what you are now going through. my very

> >> >> best wishes to you. please email me directly if you wish to contact

> >> >> me by phone for any info on hospice care. love, Bobby

> >> >>

> >> >> http://onethreezeroonethree.blogspot.com/

> >> >>

> >> >> ________________________________

> >> >> From:

> >> >> <aharris1028@... <aharris1028%40hotmail.com><aharris1028%

> 40hotmail.com>

> >> >

> >> >> To:

> >> >>

livercirrhosissupport <livercirrhosissupport%40yahoogroups.com>

> <livercirrhosissupport%40yahoogroups.com>

> >> >> Sent: Sat, February 6, 2010 4:51:49 PM

> >> >> Subject: hallucinations

> >> >>

> >> >> I can not tell you how hard the last month has been on me, my father

> >> >> and my family. I know that I don't keep up on these post as often as

> >> >> I should. However, I have great comfort knowing that when I need you

> >> >> all, you are right here at the touch of my fingers.

> >> >>

> >> >> I have often thought my Dad was going to pull through, that he was

> >> >> going to be ok. He was transferred to ICU again last night making

> >> >> this the third time in thirty days. He is having full blown

> >> >> hallucinations, the nurse said that Hepatic encephalopathy is bad. I

> >> >> was confused at first, his ammonia levels are only 16. I guess he

> >> >> has other toxins building up in his brain. He is tied to the bed and

> >> >> when I was leaving they were inserting a feeding tube in his nose.

> >> >>

> >> >> I can't seem to come to grip with my dad, losing his mind...

> >> >>

> >> >> I am sad, scared and feeling all alone. My heart goes out to those

> >> >> who live with this illness and the people who care for the ill.

> >> >>

> >> >> Thank you and Hugs

> >> >>

>

> >> >>

> >> >>

[Guest guest]

We always thought my Grandmother would see the person she loved most in life at

the end - my Grandfather. However, it turned out to be her Mother, which

stunned everyone because she really didn't ever like her mother. In the end,

her death helped 3 generations bind a little closer together!!! My Grandmother

and her mother, my Great-Grandmother and my Grandmother and my Mother. Mom

didn't really like her mother either but in the end went to visit her at the

home every day.

I'm just soooo glad that I'm not still carrying those silly resentments from the

teenage years. I love my Mom a huge amount and she knows that.

Gloria

________________________________

Diane, Thank you so much!

The Hallucinations are gone. I would understand them not being

hallucinations if he was talking to his father who died a few years ago,

however he was screaming for his mother, who is alive and well. Right now my

Dad is in a coma and they say maybe another 24-48 hours. He is not in pain,

he was resting peacefully when I left ICU. I had planned on staying the

night there. But, my son is having a hard time with all this too and I

wanted to be home for him. He is only six and there has been a lot of

whispering in my home. He finally asked me if ( papa fuzzy) My dad would be

ok.... Papa fuzzy was a joke when I was pregnant that just stuck around. LOL

those are the things that I will never forget. I told him that papa was

very sick. He asked me if he was going to heaven and I just said that he

may. He was very upset, I am not sure how to handle all this.

Good night!

------------ --------- --------- --------- --------- --

From: " Diane Chandler " <diane.chandler. 75gmail (DOT) com>

Sent: Sunday, February 07, 2010 10:43 PM

To: <livercirrhosissuppo rtyahoogroups (DOT) com>

Subject: Re: My dad is ICU on comfort care.

> , this may not necessarily be halucinations. My late husband talked

> often to an unseen person in the room with him and laughed with this

> person

> as well. This was all after he lost recognition of me or anyone else. He

> did this for about 18 hours and then stopped making any responses

> whatsoever. I do not believe it to be halucinations, encephalopathy or

> the

> medication. I believe it to be the time of an individual's crossing over.

> They are meeting the person meeting them on the other side. Once they are

> comfortable with that, they recede further into an unconscious state until

> their body lets them go.

>

> Please know I am praying for your Dad and for you and your family. This

> is

> not an easy time for any of you. His suffering will soon be over. Try to

> take comfort in that. Believe me when I say I know how hard that is. I

> said goodbye to my Mom on Apr. 20, 2006 and my husband on Jan. 26, 2009.

> My

> heart aches for you......... ......... ..

>

>

>

>

> On Sun, Feb 7, 2010 at 3:45 PM,

> <aharris1028@ hotmail.com>wrote:

>

>>

>>

>> Dad is in the dying process, writing all this seem unreal. They are

>> leaving

>>

>> the hose in his nose, but only to remove the blood from his tummy. He has

>> MRSA along with other infections. Because, of the damage to his brain, we

>> were able to to reverse the Full Code he had asked for. When I left the

>> hospital he was resting peacefully. I will be returning shortly. Thank

>> you

>> all for your prayers and support.

>>

>>

>>

>> ------------ --------- --------- --------- --------- --

>> From: " Breen "

>> <chrisbreen2009@ gmail.com<chrisbreen2009% 40gmail.com>

>> >

>> Sent: Sunday, February 07, 2010 12:44 PM

>> To:

>> <livercirrhosissuppo rtyahoogroups (DOT) com<livercirrhosissupp ort%40yahoogroup

s.com>

>> >

>> Subject: Re: hallucinations

>>

>> > Hi ,

>> >

>> > I agree with Bob. My mother was on a feeding tube for about a week and

>> > then she started rejecting the tube and ate nothing. The only

>> > hallucinations were 12 hours before she died. I believe that was

>> > because of the morphine she was given. Yu should ask him what he

>> > wants and follow his wishes. My mom indicated she was ready to go.

>> > The next day she said she wasn't ready and three days later she said

>> > she was ready.

>> >

>> > Keep us posted. I am praying for him.

>> >

>> > Chris

>> >

>> >

>> >

>> >

>> >

>> >

>> >> I implore you to consider hospice care for him. The hospital is

>> >> doing desparate measures on him

>> >> , and by law, they will continue to do so. I did the same thing for

>> >> my loved one. I didnt want to admit defeat, and thus I kept Ardis in

>> >> curative care for a couple of months too long. Palliative care

>> >> should be considered now, in my humble opinion. If he has no shot at

>> >> a transplant, no one should be sticking hoses down his nose. End of

>> >> life is a sacred time.If there is no transplant imminent, end of

>> >> life care should be considered. Remember,there is only one chance to

>> >> get it right. If you have not read my story, here is a link. It tell

>> >> about my experience with what you are now going through. my very

>> >> best wishes to you. please email me directly if you wish to contact

>> >> me by phone for any info on hospice care. love, Bobby

>> >>

>> >> http://onethreezero onethree. blogspot. com/

>> >>

>> >> ____________ _________ _________ __

>> >> From:

>> >> <aharris1028@ hotmail.com<aharris1028% 40hotmail. com>

>> >

>> >> To:

>> >> livercirrhosissuppo rtyahoogroups (DOT) com<livercirrhosissupp

ort%40yahoogroup s.com>

>> >> Sent: Sat, February 6, 2010 4:51:49 PM

>> >> Subject: hallucinations

>> >>

>> >> I can not tell you how hard the last month has been on me, my father

>> >> and my family. I know that I don't keep up on these post as often as

>> >> I should. However, I have great comfort knowing that when I need you

>> >> all, you are right here at the touch of my fingers.

>> >>

>> >> I have often thought my Dad was going to pull through, that he was

>> >> going to be ok. He was transferred to ICU again last night making

>> >> this the third time in thirty days. He is having full blown

>> >> hallucinations, the nurse said that Hepatic encephalopathy is bad. I

>> >> was confused at first, his ammonia levels are only 16. I guess he

>> >> has other toxins building up in his brain. He is tied to the bed and

>> >> when I was leaving they were inserting a feeding tube in his nose.

>> >>

>> >> I can't seem to come to grip with my dad, losing his mind...

>> >>

>> >> I am sad, scared and feeling all alone. My heart goes out to those

>> >> who live with this illness and the people who care for the ill.

>> >>

>> >> Thank you and Hugs

>> >>

>> >>

>> >>